May 12th
2007
6:57 PM
My 6 year old son has had all of these more or less. He has been on Singulair for about 5 months. We took him off last Friday when he started having seizures. It is only now that we are connecting the things he has complained about. He is still going through testing but everytime a test is done it is negative. He is in perfect health. The dr.s are stumped. What happens is, he smells a wierd smell. Then he sees lights. After this he has a bad headache and becomes weak so he lays down. Shortly thereafter he stiffens and starts shaking his arms and legs while clinching his hands. He also grunts and makes a buzzing sound and appears as though he only breathes out. the dr.s say it is not seizures but movement disorder and if it is Singulair it should be out of his system within 3 days... He is still having the seizure type fits and its been a week since we took him off singulair. He is still losing his temper and having horrible dreams as well. Cat scan was normal, EEG was normal, blood work is ok, they want to do an MRI but does this sound familiar to anyone?
-- By micah | Reply | (14) replies | Private Message me
April 14th
2008
10:40 PM
Hi, I have written on this forum before. Our son (6) was on Singulair for over 3 years for Asthma. Over those years, his whole personality changed; it happened so slowly, however, that we assumed that those changes were "phases". We stopped Singulair 16 days ago, and we have seen big changes in our son. Thus, I want to summarize our side effects by describing the changes in my son:
-- By happymom | Reply | Private Message meSuddenly no more fears (nightly waking up scared to death, and fear of being alone in any room in the house during the day), sleeping through the night, less agitated and less aggressive, better listening skills (again!) and more interest in learning (this was a child that once loved science and did math at age 3. He lost interest in anything that had to do with learning). He draws happy faces again. He is also less nervous. He lets us hug him again, and tells us how much he loves us.
Some days are better, some days are worse. There are times he still tells me that he wants to "throw himself in the trash" and other negative things about himself and his life. We also still see obsessive compulsive behavior (a tic where he touches his head and then his legs from his feet up, driving me crazy), but it is slowly getting less severe. But overall the changes are very clear.
As for the Asthma: we still use Flovent once a day: so far we had no setbacks. Our doctor noted the side effects, but was rather surprised about them. Obviously, I will NOT EVER give my children Singulair again, no matter what the doctor will tell us.