Local news symptoms and conditions

My son is 5 years old and has been on Singulair for 2 years. I am so relieved to find this website after seeing a report about Singular on the local news.
Just the other day I was telling my husband how much it bothers me that our son is not very affectionate. We also have a 3 year old who hugs, laughs and plays like a normal child should. My son, on the other hand, is very rigid if you try to hug him, very serious if you try to joke, and VERY, VERY emotional when I leave him anywhere...as if I'll never return! I don't know how many mornings I've left day care in tears. I always thought to myself "What are we doing wrong?" "Why would he think we weren't coming back?" He is also very moody and argumentative. He reminds me of a very stressed out businessman in his late 50's. Not to mention the leg pains and the nightmares...we have always chalked it all up to "normal" things kids go through. Now that I have read all of the postings on this page I know there is hope. None of us want our children to be unhappy. Thanks for informing me...we are stopping Singulair Immediately!!

Recently, my sister at 39 years old lost her life to a condition called pulmonary thromboembolism, which was directly caused by the birth control pill she was taking, YAZ. I need to know if there is something that we can do. She left behind three young children, and it is not fair that just because a product has a warning label that gives manufacturers a license to destroy a family and take a life. I believe that warning labels on products are just another example of economics being placed above public safety. Please reach me asap if there is someone who can help.

I posted my side effect 4 month ago hopping that someone will have some answers, the dent keeps on getting BIGGER it’s already the size of a lemon. Since the doctors or FDA don’t want to give us a strait answer I suggest that we all try to contact our local news ASAP.

I just saw an ad for a local news special on WBZ - the Boston CBS station that will address the Singulair problems. This Wednesday at 11:00. I just TiVo'd it. About time!!

Levaquin is a wonderful drug and one of a very few that help men with prostatitis. If you have ever suffered with a prostatitis infection you know what i mean. No problems here with Leviquin.

Well I hope we can all breath a little easier after the "new" story came out about the dangers. We finally hit home and we should all be proud of ourselves that we finally got through to these companies. Todays Boston Herald, the local news, it"s everywhere!!!!! God Bless us all for being patient!!!!!Hurray!!!!!!

All I can say is that when I heard that CIPRO and if I understand correctly LEVAQUIN will now have the "Black Box" warning, I thought THANK GOD. .I wonder how many people are "the box" from the drug and/or from committing suicide from this horrific drug?

THANK YOU, FDA, for listening to those who contacted you via letters and emails. Also, who knows? Maybe this board made a little bit of difference.

Either way, a warning is not a ban. I can't understand how Bextra could be pulled off the market and LEVAQUIN "lives all" to do more damage to some.

Pray for this drug to be further scrutinized and researched!!!!!!!!!!!!

I just contacted CNN to give them a tip/heads up to our message board so that they can consider doing a news story about this situation to raise awareness. Please send them your concerns and personal story to:
http://www.cnn.com/feedback/forms/form11b.html?2
If enough of us email them, they will start to listen.

Lourdes
Mother of Julian
(severely affected by Singulair use)
Suffered severe head drops seizures, obsessive compulsive and agressive behavior and night terror and hallucinations.

Repeating Our Story:

Repeating my post from way down below - IN CASE someone's child with these head drops is looking for someone with similar symptoms. WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray alot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure. We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed ALOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student. Doctors cannot explain how he was cured - there is just no explanation. Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life. He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine. My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair". I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too. If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me starwedd2@aol.com - I will be glad to share any other information. LET'S RAISE AWARENESS TOGETHER and stop more damage from occuring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become. Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address: Dateline@NBCUNI.com I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at: To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses: 20/20 147 Columbus Avenue New York, NY 10023 Primetime 147 Columbus Avenue New York, NY 10023 Together we will do something to help avoid more tragedies I went ahead and reported our experience online to the FDA: https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm

I have an 8 year old son who has been on singulair for about 2 years now. We have a very busy schedule with school, scouts, and football. So we often times would forget to take the pill as the Dr. recommended to take it before bed. Well around November we began taking the medication on a daily basis as prescribed. And since November the number of side effects from this medication has been alarming. I never made the connection to the medication until I came across the information on this website and on other forums. Since November my son has been on his medication consistently and over the past 5 months I have seen so many changes in him. Many that alarm me and have caused me concern but many others that through this website have come to light.

My son has always been a shy but outgoing child. He is very caring and loving and recently he has turned into this selfish, depressed, paranoid, and emotional child. His teachers have made comments saying they don't know what it is with him but they see a change and they were not sure what the cause. I was not sure either. Recently we went for a walk at the park and he said, "I feel like everyone is looking at me". I just shrugged off his comment and said, everyone is looking at you. You are a handsome boy and we are at the park. People enjoy watching other people. Then he would often times tell me he was sad and he did not know why. Said I have a whole in my heart and I don't know what to do to make it better. My heart would just break for him. I felt helpless for him. He has also been aggressive. He has been in 3 fights in the past 3 months. My son also experienced rashes on his body. He has a batch of rough dry irritated skin on his belly and it has now cleared up. He had 3 patches of dry skin on his back and that also has began to clear. His legs also were achy and he has not since complained about leg pains.

This past week we were on vacation for spring break. Well being vacation and not being at home threw our normal schedule for a loop. So we took the regular AM medications (Flonase, Pulmacourt inhaler) but forgot all about the Singulair evening pill. He has not had a pill for 9 days now. Last night we had football practice and I noticed how eager he was to do well and I noticed how much more excited he was about it. I thought it was because he was enjoying it and learning something new. Now I feel like I have a clearer vision into what was REALLY going on. I will NOT give my son Singulair EVER again! I feel misguided that my doctor did not tell me that these were possible side effects. I trusted him and was at my whits end in finding a reslution to my sons asthma issues.