April 3th
2008
6:31 PM
Wow. I can't even express how blown away I am by all of this.My son is 7 and has been on singulair since he was 2. He was moved to the 5 mg last year in March. The only difference between my son and all of your stories is that when he was in kindergarten we discovered a rather large arachnoid cyst in his brain that had to be drained. It was easy to blame some if not all of his behavioral problems on the location of the cyst. It is in the left temperol lobe. Having something in that region of the brain can cause behavior problems. His cyst was also big enough to push on his pituitary gland making him think he needed to use the bathroom all the time. He had a slight case of diabetes insipidus. During all of this he was complaining of headaches, fatigue, leg pain, the boy could not walk from one end of the mall to the other, he would melt down at the slightest provocation and turn into an angry little monster at around diner time. We attributed it to low sodium levels messing with his head, but his blood work never reflected someone who was THAT bad. After his surgery he had some normal depression, but in March, four months after, he became a different person. He was full of rage and anger and almost got kicked out of school. He broke things at home and lashed out at people, he said awful things. He was put on Tegretol, (that made him very sick) and Wellbutrin. Since he couldn't tolerate the tegretol they switched him to abilify. He still takes this. The one time we tried to take him off he went completely nuts again. Same kind of aggressive behavior, lashing out, no self control, crying all the time, very moody, saying things like "nobody loves me." My son is the sweetest person you will ever know. Before all of this, he would melt your heart with his kind words. Now he has been diagnosed with ADD, Aspergers, and has all of one friend at school. I go every day to eat lunch with him so he doesn't have to sit alone. I completely understand that my son will continue to have problems once this medicine is out of his system, because he does have other issues, but this morning the first thing he said to me was, "Mom it's weird, I don't know why but I feel so happy."
He has been off the Singulair for 6 days now. I called his allergist and he was VERY interested in all of this and wants to meet with me. He has always been so heartbroken by how my son has struggled. Don't think all doctors are bad. This one isn't. He is going to help me report all of this. He is really upset too. Of course he is older, been around for ever. I don't know. He cares about his patients. His receptionist said she thought they would be getting a ton of calls about this and I was the only one. Hang in there everyone. Alone we are quite together we are LOUD.
September 10th
2008
3:28 PM
I have been on Diovan 160 for two years. Have put on 10 - 12 lbs. Have developed low sodium levels, muscle pain and slightly elevated blood sugar levels. Is low sodium level a possible side effect of taking Diovan?
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