Low thyroid symptoms and conditions

Hello . . . why do we continue to take medications that cause us such physical and mental anguish . . . we hope for a life . . . I am one of those who takes a cocktail containing . . . Lithium, Lamictal, Cymbalta, Sequel, Topamax and other medications for high blood pressure, low thyroid and osteoporosis . . . down four medications . . . because I have a good doctor . . . it is impossible to distinguish which one or the synergism of the medications . . . which do what . . . what I want to say . . . there are more medications now . . . more doctors . . . change doctors . . . change medications . . . you might not feel great . . . but you will feel better about taking control . . . it has happened to me . . . M.

My hair loss actually started 10 years ago with the advent of menopause. It was less an issue of hair loss but that my hair started to grow in baby fine. With that came a depression. A hormone implant helped. Later, celexa and then lexapro helped particularly with the symptoms of irritable bladder. Other symptoms that started 10 years ago included a slowing pulse rate, lower body temp, lost my eyebrows on the sides, etc. I was bounced between cardiologists and endocrinologists -- blaming a marginally low thyroid. An MD, alternative doctor, blamed mercury which did not abate with two separate rounds of IV chelation. Finally, my heart slowed into the 30s and the exhaustion was extreme. Got a pacemaker which helped but did not cure the exhaustion. Sleep apnea study showed a sleep disorder but no apnea. I am on thyroid meds (125 mg.), mycardis, and .75 patch of estrogen. Wellbutrin 150 mg was added about 6 months ago and that helped tremendously with the tiredness. It was great but I finally noticed that I could see my scalp -- my hair had thinned that much with that low dose. I went to various doctors (including a dermatologist) who never mentioned the connection with any of my meds. They could not tug hair out of my head and suggested a genetic problem (the women in my family have big heads of hair until they die in their 90s). Finally a physician friend in Florida suggested that Wellbutrin might be the problem. I am off of it and tired. Too soon to see if the hair loss is getting better. I just want the loss to stop and to start regrowing my hair. Suggestions? A new doc recommended Provigil for exhaustion but there is some hair loss with that noted on the blogs. I have been taking a b complex, biotin, minerals, a vitamin for hair, zinc, D, MSM -- a handful of supplements. I need something for energy (I am a college professor of graduate students) but will not put my hair at risk. I am lost in all the information about how to stop hair loss and help my hair grow out.

Hello Ladies....I am 56 and diaged Hashimotos disease 3 years ago.At the moment on 112mcg of synthroid....dosage started off low and have gradually worked up....So angry with drs...was seeing endo, but moved and using family practice...so frustrated with weight gain approx 25lbs since diag. Also does the word sweat ....mmmm perspire for all us ladies, mean anything? I can't even wash dishes without breaking out in to a sweat...mmm beads of perspiration....Dry skin, I own stock in Aveeno....Also....does anyone get "boil type" skin eruptions in the nether region...butt, inner thighs etc? Does anyone or has anyone done any serious research on Iodine? I try to eat as well as I can, was doing Weight Watchers and gained weight do ya hear me? I am questioning my idodine intake or lack of....Presently take mulit vit with 150mcg. Considering uping it and dc ing my synthroid...cuz docs have been useless....eat less, (how much more less?) exercise more...I swim so much I look like a freaking prune....Any comments?

Hello To All,

I too am on this med, I have been on it for 1 year as of July 2008-

35 pounds, brain fog, headaches, eye sight for reading, chest pain and fluttering heart beat. My doctor who is my friend has told me that he will up my dose... "Dear God" any more and I will go nuts. Does anyone know of any study done in a medical journal that theu could forward to me so I can show my doctor.

Please email me at ****** I would be so very thankful.

Thanks to all and be healthy.

Wow! So glad and sad to find other sufferers. I wish our doctors would listen to us and take us seriously! Why are they stuck on forcing Synthroid on us? At this point, I think I'd rather not take any Synthroid. I stumbled upon this site while looking for something I might take to counteract the effects of Synthroid. I had to halve my 112 mg pills because of the side effects: frequents headaches, bloating, weight gain, irritability and anxiety, dry mucus membranes (eyes, nose, throat, etc.), allergies, muscle fatigue, achy joints. Of course, my doctor is slowly upping the dosage again, because my TSH is chronically high, but I feel like sh*t, physically and mentally. I used to feel so much more normal and like myself before I was diagnosed and "forced" to take Synthroid.

I read your post about Nuvaring. I am only on my first ring. So far it seems okay and don't know if it is to blame for my hair that has been coming out non stop also. the hair loss started when I had the paraguard inserted into my cervix. I did some google research and a lot of women were complaining of the same thing. I immediately had it removed but the doc said it was non hormonal. I thought that perhaps my body just didn't agree with the copper that it is made from. she told me about the NuvaRing, so here I am trying it. the hair loss is still there and it has been going on for about 1 month now and I have lost a lot of it. I just gave birth to my second daughter 4 months ago, and don't know if my hair loss is postpardom or related to all these wacky methods of birth control. Has anyone else suffered hair loss from the NuvaRing or paraguard. Does anyone have recommendations on how I could improve my hair and stop it from falling out. when it is coming out the root tip is with every strand. I'm so scared over this...

I'd like to say that I think the Old version of Synthroid that existed
before 1982-83 was MUCH better than what is produced today,
I'd done quite well on Old Synthroid from 1975 to 1982 after
RAI treatment for a bad case of Grave's disease when I was
eleven years old....but when Synthroid was changed to be
more "cost-effective" for its manufacturer, my life was basically
destroyed--and I haven't recovered since then, despite trying many
different doses of various thyroid drugs.

Symptoms I've gotten since Synthroid changed in '82 include:
Severe breathing trouble that really limits what I can do every
single day; extremely dry skin in certain places--like legs and
feet; much poorer memory and thinking ability; much drier hair
and too much hair falling out; tendency to get chest pains whether
dose is too low, too high, or "normal," have had a lot of trouble with
blood pressure at times; getting red in face; too much weight gain
for what I eat; lymphedema (much swelling in legs and feet),
inability to sleep well; always feel congested or blocked up;
vision problems like black spots floating before eyes; sensitivity
to light; double or triple vision at times; involuntary eye-twitching
at times. I'm sure I've forgotten some things, too....

A very odd thing about Synthroid since 1982 (and the other drugs
that've copied it, since that time) is that it tends to give me
symptoms of both high and low thyroid trouble at the same
time, while also causing new symptoms that I'd never had in
the first place. Old Synthroid was much more clear-cut for me.
If the dose was too low, I'd have typical low thyroid symptoms
only (too tired, dry skin, etc), and if too high, I'd get only typical
high thyroid symptoms (too nervous, insomnia, racing heart, etc),
Much easier to adjust and work with than today's Synthroid.

At any rate, I was left with little working thyroid gland after my
intitial Grave's treatment, so I am (unfortunately) very dependent
on GOOD thyroid medicine to help me. In my opinion, I haven't
had any good stuff to take since Old Synthroid left the market
in 1982-83. Haven't been well to accomplish much since that
time--feel like I'm getting punished for being a thyroid patient,
which is ridiculous, really--because I know better medicine once
existed, and I want it again!

Have tried many avenues to get someone to produce Old Synthroid
again, but no luck--I'm not rich, famous, or politically connected,
so no one listens to me. But if anyone out there reading this can
help in some way, please feel free to contact me--maybe we can
work together to bring back a better treatment that would help at
least some folks out there who are really suffering. S.D.

I've took a very high dosage of prednisone for 6 years, from the age of ten years old. 17 years later, i still have an extreme moon face. The only thing that has ever helped me was a facial exerciser (a microcurrent devise), but those results can be hard an expensive to maintain. As anyone else ever had a moon face that wouldnt go away even after stopping their prednisone usage after a long period of time? Does anyone have any advice for me, on how i can finally get rid of this horrible extreme moonface? my face and all my facial features are swollen, including my eyelids, this has been goin on for years. I also have suffered for years from severe chronic diarrhea from an illeostomy reversal. Please help me.

I have been taking Lisinopril for several years. I am 52 years old. I have had terrible scratchiness and coughing at night. As soon as I lay down it starts. I am sweating terribly for no reason. I worked with a personal trainer all last year but could not lose any weight. I have gained weighed and very large waist. After reading this column I feel that all of these side effects are coming from taking this pill. I am also taking Zocor so that is what I am looking up next. Have a dr. appt. this week and I am getting off all of this..... I am so excited to think that there is a reason why I couldn't lose any weight and only gain. My stomach also looks bloated quite a bit. Does the sweating relate to anyone else out there? I didn't hear too much on that from other writers. Please let me know!

Hi all,

I am 53 and from the UK. I was on Lisinopril for 13 years. First 5mg, later 10mg then a few weeks ago 20mg as my BP was 169/90. Afetr 8 days of taking this dose I felt strange and felt as if I was about to fall down when walking. Also had a feeling I was kinda walking sideways if that makes sense. Anyway, went for check-up with health worker at docs surgery and after 8 days on this stuff instead of my BP being reduced it was up to 210/120. The health worker took my BP 5 times and looked cncerned while trying to reassure me not to be concerned. She went of to consult the senior practice nurse and made me an appointment for the next day to see my GP. The next day I told my GP how I was feeling and he said he didn't know why my BP had gone higher on the double dose of Lis but to continue taking it along with nother drug he prescribed called Amlodipine 5mg, a calcium channel blocker. After another couple of days I felt very ill. Palpitations, dizzy, and a feeling every ten minutes or so as if my chest was puncched from the inside, a very uncomfortable feeling indeed. I decided on a process of ilimination and stopped the Lis but kept taking the latter drug. Almost imedietly I felt better even though my BP was round about 146/85. I started to realize that symptoms I had for 13 years were probably due to the Lis. Symptoms including, waking suddenly, literally choking on acid as my throat closed in a spasm, Strange nightmares, food sticling halfway down my gullet causing extreme discomfort etc. On top of this, nearly two years ago I was diagnosed with auto immune disease and had radioactive iodine treatment on an overactive thyroid, an overactive thyroid that instead of making me lose weight, made me put it on. A while later I was diagnosed as having type two diebetes which I tried to control with diet. Now since stopping the Lis my blood sugar readings have never been better, in fact I wonder now if I was ever diebetic at all. The most upsetting thing is, I now wonder if the thyroid malfunction was caused by the Lis. I feel much better like a veil has been lifted from my mind, no longer moody or having foggy thinking. I hope I have not gone on too long. I wish you all luck with your meds. I have started taking Hawthorn berry capsules which it's claimed help to lower BP naturally. My BP today is 140/80 but does fluctuate.
Lawrence

I have been on nuvaring for about 9 months. I have the followin symptoms:

-tired all the time
-horrible headaches
-smelly discharge
-lower back aches
-hate having sex
-weight gain
-very very moody

I havn't had any of these problems until after getting on the nuvaring. I never thought it would be the nuvaring until i found this website. I have 2 kids so i always thought that stress and work was making me tired. I seem to never catch up on sleep! I have low thyroid so i even thought it was that so i went and saw my Dr. but my thyroid was fine, but i was still soooo tired! I am soo mean to my husband and other people. I snap so easily now! I get soo agravated! This is not me!! I have the worst headaches ever! My back hurts all the time & when i stand up too long it hurts really bad down there. & again, i thought maybe because of having kids, but i never had these problems before i got on nuvaring & my oldest child is 3! This discharge is discusting! Alot comes out when i pull my ring out! & it smells reall bad! I smell all the time because of this discharge! In the past 4 months i have gained weight, so bad i even thought i might be pregnant! Oh & i got my 1st yeast infection being on nuvaring! I have never had one in my life before!! & i hate having sex, i just hate it!! I get soo mad when my husband even mentions sex! This nuvaring has messed my life up! I just took it out a few days ago b/c im on my period! I'm not putting it back in and hopefully things will get better!!!!

I was diagnosed with hypothyroidism in April of this year (2007) kind of by accident through a routine checkup. I had gained a bit of weight over the past two years, but that was really my only symptom. I was begun on 75 mcg of a generic brand of Synthroid, levothyroxine. Since I began this medication, I have rapidly gained another 15 pounds despite a 1,000 calorie per day diet. I retain fluid horribly. My ankles, wrists, hands and face swell daily. My muscles ache, especially my legs, upon walking across a room. I'm fatigued, short of breath. My LDL cholesterol level has skyrocketed in only three months and now I'm being told I need to be on a statin drug. I cry frequently and feel uncharacteristically anxious and irritable, but this could be due to the frustration I am experiencing with the loss of my sense of well-being. In essence, I felt much better before being placed on the medication. I may, in fact, discontinue the medication totally and see if over time I begin to feel better. Like so many other stories I'm hearing, my doctor seems totally unconcerned.

I'm 31 and a recovered cancer patient (in remission since 2001). I've been trough it all. Surgery, chemo, radiation, BMT's, you name it. I currently suffer from three separate sleep disorders, as well as hypothyroidism. As you can imagine, I've grown to become very in tune with my body. And, having gone through everything I have over the years, and having taken all kinds of medications, I have never experienced such dissatisfaction and such a high level of negative side-effects as I have with Toprol XL.

My primary care doctor, who is also a cardiologist, put me on Toprol XL to treat an elevated heart rate -- as a result of all my past health issues, my auto-regulatory system is, as he puts is, “just messed-up now.” He started me on 50 mg a day. Immediately, I experienced trouble breathing: I woke one night and felt as though I was drowning. Over the course of about 8 months, he's lowered my dose to 12.5 mg a day. And, for a while, that seemed to be OK. But, recently, the trouble breathing has returned.

I'm at a point now where I'm afraid to go to sleep -- the moment I lie down, I find myself gasping for air. All day long, I have a constant wheezing. I can't go up a flight of stairs without needing to sit down and catch my breath -- I feel as though I'm about to faint from loss of air. I spend most of my day with a sensation of being suffocated. I cough frequently, but it gives me no relief.

I have noticed other side effects. Notable is the weight gain. I've never in my life weighed more than 145 lbs. I’m 163 now. I was blaming the weight gain on the thyroid, but I'm on a fairly high dose of that medication, and I've yet to experience any loss of weight. I'm gaining, despite only eating one meal a day. I attribute this weight to the Toprol.

Also, I have been experiencing moments of extreme anxiety -- this is very unusual for me. I also want to say that never once during all my dealings with cancer did I ever experience depression, and that right there should give you an indication of what type of person I am. Yet, now, since being on the Toprol XL, I find I lack the energy and desire to do much of anything anymore.

My doctor seems very quick to dismiss my concerns, telling me, "you need to give this medication a chance." I think 8 months of my life is enough -- I have lost all patience with this medication, and I'm just about losing it with him, as well. I didn't survive cancer and all the other complications that came with it just to have my life brought to a total standstill by a single medication. This is so infuriating.

I'm making an appointment to speak with my doctor right away. If he continues to insist I stay on Toprol XL and ignore my concerns, I will tell him I no longer feel comfortable with having him as my primary care physician. I want my life back.

I was diagnosed with a sluggish thyroid also and the dr put me on 50 mcg of levoxyl. I had all of these symptoms of low thyroid hormones and didn't know it. I never put all the problems to the same culprit. I had very bad muscle aches, with or without exercise. I kept thinking I had bruised or torn something. I had weight gain on WW and a health study I was on. Nothing, I mean nothing would help me lose weight. I've gained 20 pounds. Which also caused depression. Sometimes I would have low blood sugar, when I've never had problems with blood sugar before. I was very tired all the time. I felt like I couldn't make it in the evenings and some mornings. I would complain to my PCP that I felt like I had just caught a cold - really drained and tired. I have really severe allergies and couldn't figure out why. After starting the meds I felt bad the first day - diarhea, nausea. Then for the first couple of days I felt great. Then the fourth day I couldn't sleep and felt shaky and had nausea only at night. After about three nights of no sleep, I cut the pill in half and took it. Then I was able to rest at night and didn't feel shaky on the inside. I took 25 mcg for about two weeks and then I started feeling the same way again. So I called the office and the dr said to take 3/4 of a pill. That worked fine for the frst week, but then I started getting these headaches that won't quit. I used the process of elimination and the thyroid meds were the only thing that changed. I will have to call tomorrow and see what I can do about that. If anyone has some of these problems let me know. The dr said that it doesn't have any side effects, but I beg to differ. I'm not sure what dosage to take today. I've had these bad headaches with a little dizziness for a week now.

OMG!! I thought I was losing my mind untiil I read a post here with my symptoms. Sensations of heat and cold at the same time. Very cold and body temp below 97 degrees. Have been on Advair 250/50 for about 2 years. Shortly afterwards, started having low thyroid and hard to maintain weight. Used to be on Albuteral, Atrovent and Pulmocort. Have emphysema along with asthma component. It is hard to breathe for about 30 min after taking Advair. Want to go back to my old meds, or at least try something different like Foradil, maybe.

Well, this is my 1st month on Ovcon. I found out that I was anemic, very low thyroid and I had my period for 1 month before getting on this pill. Yes, I'm a little bloated, but it's not that bad. The only thing would be that I got my period today & I'm not supposed to get it until next week. We'll see how it goes. So far, I haven't experienced any bad side effects.

I would strongly recommend anyone with hypothyroidism or on thyroid medication read a book called The Thyroid Solution. I believe the author was Dr. Arem. He seems to be an open-minded physician fully aware of the catastrophic effect low thyroid hormone and also quite aware of the inadequate care most patients are receiving.

There are so many misconceptions about thyroid health-- and many general practitioners do not have nearly enough information to be helping patients. He fully covers the problem of relying on your doctor to provide the adequate dosage. As well, many people with so-called 'normal' TSH levels still show symptoms of hypothyroidism. In fact, the 'normal' range was simply found by measuring the TSH of a cross-section of people to determine what level makes most people feel healthy. The problem with this is that some people may naturally have an extremely low TSH, but if it raises to a 4 (which is considered fine) that person may feel quite ill. There body knows something has changed but to a doctor who only looks at blood tests, they can't see why there is a problem.
In the past doctors used symptomology to determine the health of a patient, not ridiculous blood tests!
Best of all, Dr. Arem confirms that your symptoms are NOT IN YOUR HEAD like doctors try to convince you.

This is also a great book for people dealing with family members who are hypothyroid to understand what their loved one is dealing with emotionally.

My other messages didn't post so I'll try again--- Depending on where you look, oral contraceptives are contra-indicated for use with thyroid medications. Estrogens bind with thyroid hormones so your body can't use them-- then you sufer the effects of low thyroid hormones, like fatigue and weight gain. My doctors have freely given me BCP even though I suffer from hypothyroidism. If you do alot of research you'll see that not only do bcp cause thyroid imbalances, but so do some foods (such as eating alot of soy.) Family doctors get next to no training in endocrinology and aren't aware of the side-effects of bcp.

And on to negative side effects--- after 2 months on Yasmin I suffered an enormous grand mal seizure and had to be taken to the ER. I have never had a seizure prior to taking Yasmin. When I looked, seizures are a barely mentioned side effect and considered rare. I"d love to know how many women have had seizures and just didn't report it or didn't realize it was the Yasmin.
My neurologist can find nothing that might have caused my seizure (like a tumour, etc). Although my family doctor won't say Yasmin was the cause, I have been ordered off of it. (gladly!) Coincidence?

I think women need to be aware that taking Yasmin has huge consequences. I had taken another tri-phasic bcp for a decade just fine. I went on Yasmin because of the low dose and thought it would be better for me. Now it has cost me weeks of work, truama to my family, and a very long, difficult recovery from the seizure. (I pulled every muscles, I couldn't think clearly, and I bit my tongue so badly I couldn't eat for days.)
Yasmin is not candy like doctors make it out to be. I recently heard and expert call bcp the biggest human trial in history. There is every chance enormous numbers of women will suffer awful consequences (like breat cancer) after years and years of use! As well, Yasmin is so new on the market none of us can be certain it is safe. It wouldn't surprise me if this drug is pulled from the market somewhere down the line. Everyone on this sight seems to be suffering terribly because of it.

I was diagnosed with low thyroid in July of 05 after my MD ran some blood work due to a rash and fever. Prior to that, I had no symptoms of hypothyroidism and in fact am a competitive triathlete and road cyclist. MD put me on Levothyroxine and even though my levels came down, I noticed no changes in energy, metabolism, etc. In October, I began having extreme headaches accompanied with numbness and tingling. MD refered me to a neurologist and after numerous, expensive tests, everything came back negative. Blamed it on anxiety and stress. I blame it on this drug. I feel worse now while my levels are normal?, then I did when they were originally diagnosed as being too high. What's the benefits of this drug if it makes you feel like crap? How can so many of us have these same side effects with not response from our doctors?

have been taking Atorvastatin for 5 months, prescribed by the hospital after I was hospitalised for 3 days following a minor stroke. I was prescribed 20mg which I took for about three and a half months. I felt dizzy a bit and believed this was side affects from my stroke. My cholesterol was 6.2 which is considered quite high. I decided to cut down the dose to 10 mg as I hate taking drugs of any kind and a friend of mine who has low thyroid like me ( we are both on thyroxine) told me that she had been told that one should not take statins with an under active thyroid. This is why I reduced the dose. Having found this website I am beggining to realise that the shoulder and neck pain that has developed over the last months and also an increase in the dryness to my eyes and a swollen finger joint - could all possibly be due to Atorvastatin. I have now stopped taking the drug -- my shoulders are just beginning to feel easier now , I await relief from my swollen painful finger-- will let you know results.