Lung condition symptoms and conditions

I have been on prednisone continuously now for 15 years. I was put on it in March of 1995 for a lung condition called chronic eosinophilic pneumonia. I was 122 pounds when I first started prednisone. Now 15 years later I am 197 pounds. I am 35 years old with osteoporosis. I have dealt with depression, terrible headaches, stomach ulcers, hormonal imbalance, hair loss, swollen feet and ankles, I now wear glasses when I didn't before, I have thin skin now that looks older than my 35 years, I deal with night sweats, and in the summer out in the heat my very round moon face turns red as a beet. But, no one can get me off the prednisone. I have seen many specialists, and within 1-2 days of starting to wean past 10mg I get so sick I have to be hospitalized, I literally can't breathe or live without it. I hate this stuff and what its done to me, but I have no choice but to take it or I will die. Doctors have tried alternate medications, nothing but prednisone works. If there is ANYONE who has had to be on it as long as I have or have had success in getting off it after being on it for so long, I would love to hear from you.

Thank you for this site...although it is too late being I already poisoned myself with my 1st dosage - I know better now to STOP TAKING THIS DRUG IMMEDIATELY.
31 y/o male - non smoker - In good overall health.

What happened...(brief history of what got me to the point of being prescribed this horrid drug)
I caught a cold a few days after drinking quite heavily at a wedding (Aprox 1 month ago). It was severe enough for me to take a trip to this new doctor that is in my network and nearby (how I wish I could use my old family doctor that is out of network).
Symptoms then were congestion in my head and upper chest, cold sweats, runny nose. The doctor told me to take some over the counter stuff and try to fight it off w/ Mucinex, and Zyrtec - and lots of liquids. If that didn't work, he asked me to return.
It took about 5 days, and I seemed to kick the cold.
Approximately 2 weeks went by where I was feeling fine, then it seemed as if I was coming down with something again. (Last Thursday was when I started feeling ill)
I think what brought it on this time was breathing in excess dust at work opening some skids of paper in our warehouse.
Anyhow, this time around I had a pretty serious cough, felt feverish, and fatigued.
Sunday morning I woke up and took two Mucinex to break up the cough (which work great by the way)...and I hacked up something awful enough to call my doctors emergency line and have him paged. I was ready to go to the ER. It wasn't just phlegm or mucas - it was a soild mass of lord knows what containing blood. It look like an organ from a small critter.
Doctor said to keep taking the Mucinex and if I didn't feel better to come see him.
The coughing got worse on Monday, and the mucus I was spitting up wasn't pretty.
I went to see him yesterday afternoon (Tuesday) and he said its time to start you on an antibiotic and diagonsed me with an Upper Respiratory Infection.
He gave me Avelox, and Advair, and I asked for some of the good cough syrup w/ the codeine. He also sent me for a chest X-ray.
I got home around 4pm, made some food, then took some syrup and tried the advair.
I waited to take the Avelox til later on in the evening so I could set up a routine as I work nights and 9pm would be good.
I took the Avelox, around then, along with another dose of the cough syrup.
Around 1 hour later I felt extremely nauseous. I would burp, and feel almost ready to vomit...it was my body rejecting this horrible drug. The nausea came and went, came and went - then I got tired.

I laid down around 11pm and then the REAL trouble started. I must have fell asleep for about 30 mins, then woke up suddenly gasping for air...It felt like my heart was about to stop. I sat up in the bed panicked. I then got a little nervous, but calmed myself down, drank another glass of water and tried to fall back asleep. Sure enough just as I was about to drift off, the same sudden feeling of my breathing or heartbeat was interrupted and I sat up again. I had tingling in my chin area and in my arms. Walking to the bathroom I felt slightly disoriented and dizzy, and my legs and whole body felt weak. I also started getting itchy in my legs and groin area. Now I'm scared to go to sleep so I come to the computer and started researching this Avelox. It's 3:30 am now as I'm writing this. I looked at this site and http://www.fluoroquinolones.org/ before decided to post my experience.
I am still very itchy, slight nauseous, and feel disoriented. I'm scared to lay down to sleep now, but hopefully that will wear off soon - but I feel very nervous, uncontrollably. I almost want to induce vomiting to maybe get out any of the drug that is left in my stomach, but hate vomiting.
I will not take another dosage of this Avelox, no matter what this doctor tells me...and will give him a piece of my mind for prescribing this instead of something like ammoxocillin or just penicillin.

I am 49 yr old male and was diagnosed with a severe upper respiratory infection. Was put on Prednisone for 20 days. I never did experience depression, but I did experience the hyper state and was full of energy big time. It was actually nice ...had felt better than I had in a long time. Two of the side effects that I have been experiencing is sweating a lot more than normal ... I mean just the littlest of exercise and my shirt is soaked. Also my back and the back of my neck has broken out with acne ... that really hurts. I am using Desoximetasone which is a prescription cream and it has almost cleared all my acne up. I was about 250lbs and lost to 235lbs in the twenty days I was on it. I never changed my eating habits ...weight just fell off ...... man I wish they could put that it another pill without all the side effects. Now that I have been off for a couple of weeks ...I have gained some of the weight back ... but I'm really trying to change my eating habits and get back to 235 and go lower.
I wonder if everyone posting would also put their blood type on their comments. There are so many different opinions of Prednisone ...there has to be a reason why you have so many effects for some and very little for others. I did research this drug while I ws taking it and read that if you take it for longer than 30 days that your body will stop making the natural prednisone that it makes. Thats why you hear when people take it for long periods of time ...you are destined to take for the rest of your life.
As far as lung condition, I can breathe again and I think I'm totally cured ... I have a follow up with my lung doctor next week.
My prayers are with you guys .... I agree .. I don't think I want to take Prednisone ever again. My blood type is AB+

I have long standing lung problems and after recent infection have just had 6 day course of 40mg prednisalone, which ended 3 days ago. since stopping the steroids i feel terrible my face is swollen i am in pain everywhere i have the runs i feel sick im dizzy by breathing isn't good. I telephoned the doctor to ask if he could leave me a prescription tili get to see him tomorrow and he refused as he says my symptoms are not due to prednisalone which i know are. ive been prescribed steroids for my lung condition for 30 years on and off so i know exactly what they do to me. i am so angry and depressed that i cannot get help.

I had my left lung fill with fluid and collapse after radiation treatment for Breast Cancer. The lung was drained with Thorocentesis and I was hospitalized for a week and put on prednisone - 40 mg reduced to zero in 1 week. I experienced symptoms of heart attack as reaction to reduction from prednisone. When it was determined by enzyme testing in hospital that heart not damaged I was sent home with prescription of prednisone starting at 60 -10 days, to 40- 5 days, to 30 - 10 days, to 20-10 days. The cumulative effect of these doses was all the side effects mentioned by others, loss of emotional and physical balance, stability, swelling, moon face, insomnia, depression, crying, stomach pain, constipation, etc. I dropped myself to 20mg for 9 days but on the 8th day had recurrence of lung pain and feared possible fluid build up through tissues damage/leak caused by radiation - they are calling it pleurisy or pleural effusion. (It was also determined that I must be on constant oxygen and sleep on oxygen as my breathing capacity is below 88 off of oxygen.) Dr. found not enough fluid to drain without risk to damaging my diaphragm so upped the prednisone again to 30 for 14 days. Using pain and shortness of breath as a measure of lung condition I must not dampen pain now but suffer it to monitor my lung so as to avoid trips for constant X-rays. I continue to suffer from prednisone and it has disabled me so that my normal life cannot be resumed in any way. I want to get off of it, but after reading these reports, I am very worried - supposedly the steroid is allowing my radiated lung to heal, but if that is not happening I think the steroids are possibly more life threatening than the lung - in any case, what life? What other choices do I have to survive the damage done to me by radiation?

I started taking Prednisone in late November for inflammation of my lungs, a complication of influenza A. I started at 50 mg daily, then went to 75, then was hospitalized and went to 160 intravenously. After about a week, I was reduced to 120 then 75 by mouth a few days later. After 15 days in the hospital, I was released only to come back two days later with internal bleeding. I was released two days later and my doctor knocked several days off my withdrawal plan. About midway through all this, I started having a constant mild headache. After my second release, the headache started to get worse. The headache became debilitating and I spent some time in the ER where codeine helped. (I'm allergic to morphine which would have been their choice). The codeine helped for a day or two, but when I got to 60mg of codeine with no effect I gave up on the pills. My doctor gave me some sort of anti-inflammatory shot which helped.

I've been off Prednisone now for over a week and still have a constant headache, but most of the time it's not bad and only moderate at times. On average I see a gradual improvement.

I have had increased appetite and energy (in the beginning) followed by face and neck swelling, headache, nausea, blurred vision, internal bleeding and large muscle weakness.

I know that I needed something to stop my lung inflammation, but the cure has been worse than the disease at this point.

My diagnosis for needing this med was taccycardia, irregular heart beat, and now very slightly evalated blood pressure (that seems to bother me more than the DR says it should )I have been trying to find a new drug that doesn't interfer with my COPD (Chronic Obstructive Pulmonary Disease...in other words trouble breathing) Most of the heart meds add to your symptoms causing thick phlegm to build up, or wheezing. Most of the side effects for Betaxolol did go away eventually. I had horrible anxiety that seemed to ache from the inside out - that has finally dissipated. Itching & irritability also went away. I don't sleep well on this med at all - find my self waking in the middle of the nite and can't get back to sleep. To reduce the breathing problems this med causes for my lung condition I have tried taking the drug every other day and I experience my heart bouncing around in my chest, squeezed throat, serious trouble breathing cause my lungs don't work when my heart rhythm is wacky. Of course nothing shows up on the 30 day Event Heart Monitor they put me on so I might as well talk to the moon. Boy would I love to hear from anyone with asthma, COPD, emphysema, etc that needs BP meds and what works for them!

My mother was on Prednisone - 2-5 day doses one week apart for a lung condition. She has been different since then, withdrawn, almost depressed. I know it wasn't a large dose but she is only 98 lbs. Last dose was about 4 weeks ago. Usually she is bright and really with it. She is 78 years old.

Is this possible?
Thanks

the only side effect I noticed from prednisone was amazingly enhanced alertness... I was prescribed a gradually declining dose over a 10-day period for an acute lung condition. the lungs improved completely for a short duration (5-6 weeks), but the level of alertness I felt was unlike anything I had ever felt in my life; it was a zen-calm-like alertness, not a caffeinated-buzz-like alertness, and it truly felt like this is the way we humans ought to feel all the time; I sorely miss that experience!