Lung disease symptoms and conditions

My husband has pulmonary fibrosis and has been on prednisone since June 2008. It worked wonders for him and he was able to function normally; he started at 60 mg. He has slowly been coming down off the prednisone and is currently taking 1 mg. Since he got down below 20mg he has been losing energy and ambition and interest; he is terribly weak and any little exertion has him gasping for air; his legs are so weak he can hardly walk and only for a short time. He does not sleep during the day but does not sleep much at night either. We know these effects are the result of coming off the prednisone but I'm wondering how long the effects will last.

Was prescribed Levaquin in November 2008 for suspected pneumonia, then 5 other times until last week. I've had really bad knee, thigh and arm and shoulder pain for the last 2 months. My legs get so weak and painful that getting out of a chair makes me want to cry, i've got to the stage that i need to hold on to something just to get on to my feet. My arms are rather weak, i can't even lift a small 10lb box without pains shooting down my arm. I've since stopped my last prescription of Levaquin 750mg daily for 7 days, the pain seems to have eased a little but not enough.

My pulmonologist keeps prescribing Levaquin each time i catch a cold or have shortness of breath. I was also taking 60mg of Prednisone from November 2008 until March for newly diagnosed Lung Disease. I've complained to him more than once about pain and weakness in my legs etc. He keeps telling me my muscles are deconditioned.

I've now started physical therapy and i'm doing aqua therapy, so we'll see if this works or not. Maybe it will also help my restless legs, which seems to have intensified this past few weeks.

Im sad to find out all the problems people are having from levaquin. But now Im able to put 2 and 2 together because Im realizing whats been compromising my health. This is my second year with bronchitis and my second prescription of levaquin. I now believe its what has caused me horrible nightmares, suicidal thoughts, irritation, mental anguish, stress tendon/muscle pain in my arms and shoulders. I bent over to pick up my dog to help him into the car and I got a terrible pain in my chest. I thought I was dying. And I still have a rattle in my lungs after 2 weeks of levaquin so it has not helped at all. If anything it has caused me more problems that has opened the door for additional medications of unknown origin. I wish I could find a real witch doctor.

hi all. thanks for writing your comments here. it has helped me today, another HORRIBLE day of prednisone hell. i have been seriously ill for 8 months been told ever other week I'm likely going to die from lung disease (i'm 35) and after a painful lung biopsy have been told my lung problems are almost all reversible... after a year on high dose prednisone. i was on 40mg a day for a month a while back and was so out of control from rage and crying and insomnia and panic/suicidality, ravenous appetite, that they lowered me to 30. then after biopsy they said i should be on 100mg to cure me, we settled at 60mg. it's been 24 days. The moon face started about one week in. i've gained 8 lbs. i am an emotional wreck. i have at least one rage filled attack per day where i am screaming and want to kill somebody or destroy something. some days i am so filled with hopelessness and worry i just want to die. my body changes (after just losing 30 lbs and being a work out fanatic my shortness of breath makes it impossible to walk up 2 flights of stairs without resting) face changes, acne, excess body hair (oh my god please make it stop i'm like a chia pet and i'm so afraid it is going to get worse) double chin, puffy eyes and cheeks, absolutely uncontrollable emotions and mood swings, inability to be logical or reasonable. i don't want to leave the house, i'm panicked and scared all the time. i never sleep. ambian gives me minimal relief (just started taking it) i feel like i'm losing everything, except my lung functioning is returning and i'm not going to die from this illness (they assure me THIS week) i understand light at the end of the tunnel, but living like this is unbearable most days, almost impossible the rest of the time. am i alone with the severity of this? or are all the others like me too busy hiding the sharps and crying in a corner to write on this board? thanks for listening :)

figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.
figures, forgot to mention what HELPS. no eating after 8 (7pm is better) no salt, no sugar, exercise, even just a walk every day, anything physical, i walk like a grandma on the treadmill but i still do it, sometimes it is the only thing that stops my crying. no alcohol, support and understanding from loved ones, it's not you, its the drugs. good luck.

I was just placed on Cellecept last week- 500 Mg 4 times a day-
for my autoimmune muscular myopathy- I was a body builder 6 months ago- now I can barely make it across the Target parking lot.
I am sure the myopathy is Statin induced as I was on Lipitor-)rather than Prednisone as my doctor said less side effects.
He said I should see improvement in about 6 weeks- is any body taking Cellcept for autoimmune disease?
Thank you.
PS; So far- side effects seem to be weakness- more shakiness-

i have a rare form of asthma and am often on high doses of intravenous steroids in the hospital. i get every symptom anyone has noted but I actually steroid induced psychosis (i have no mental health problems generally). I have horrifying visual and auditory hallucinatins.

at National Jewish Hospital they treated this with 1o mg valium with each dose of steroids and Depacote. I can't take Depacote any more because of pancreatic symptoms and the valiun alone helps but doesn't resolve the problem.

Plus I lose my vision almost completely. All the other typical symptoms seem more severe (accordinf to my MD's) than usually experienced so apparently you can be extra sensitive to steroids, i have been tried on Prednisone, Mthylprednisone and Dekadron,

Plus, I have had steroid induced myopathy (where the muscles are eaten away) to the pint of not being able to sit or walk.

I have lost 2 inches of height in 2 years.

and worse of all, my brain seems to just take a vacation - i have amnesia for almost everything that happens.

But breathe first - deal with the rest as it comes.

As far as weight - i have gained 28 lbs in 24 hours (the hospital nurse checked me with three scales) and have lost 39 lbs in 2 weeks -trust me - that is not a pretty sight.

I have had insomnia from November through Feb with psychiatrist doing everything they could to put me under.

If I didn't have a lung disease and was not prohibited from doing almost everything there is to do, I could while on Prednisone clean my entire house cleaner than it has ever been, and then probably achieve world peace because I have never felt so capable of accomplishing tasks (ones that are rote mostly) my family has to watch me to keep me from getting up in the middle of the night and doing something stupid.

And I am a health care professional who usually has excellent judgement. I am a nice person who never loses my temper or says an ugly word but while on steroids I am not only totally unreasonable but verbally abusive at times (many times)

the psychosis thought is the one thing that is really terrifying.

I have what some might caterogize as tremors, blurry vvision, and some blackouts. If there is anyone who can help me. and it makes me lose weight to point that I am 20 years old, 5 foot 7 inches and only weigh in about 85 to 90lbs. an that's a good weight. I started high school weighing in at around 65-70lbs. This is not the life I want. They say I need it to live. I have a terminal Lung Disease, but I have been off for 7 months. Started taking it again today and the problems started again. HELP ME !!!!!!

Started with 40mg prednisone in May. Very Psycotic in ICU. Had insomnia in the beginning but that subsided. Gained 40 lbs. all in the abdomen area. I have the moon face and purplish eruptions on my arms. I am down to 25 mgs and hope I can manage on 20 soon. It is the only cure for the lung disease that I have. I can't knock it too much.

I was diagnosed with a lung disease called BOOP. It is relatively rare and is progressive. I started 2 days ago (2/28/04) on 50mg. per day of Prednisone. So far I have some insomnia and a lot of "energy" during the day. Also, a lot of silliness. At what point should I expect the weight gain and moon face etc...? email me with any info you may have especially on this disease in particular. *******