Lung disorder symptoms and conditions

I am taking prednisone and probably will for the rest of my life due to a rare lung disorder. I am down to 5 mg every day. When I first was put on it, I was taking 20 mg which wasn't too bad. The Dr. increased it to 80 mg. That was a living nightmare. My eyes hurt so bad from the pressure. My pressure in my eyes were very high. The Doctors did cut it down to 5 mg which isn't a good idea as you should taper off of it slowly. I still have some hip pain but it's not to bad. I do try to keep busy and that does help. It does make one's period irregular if you are a woman. I feel for those high school students taking this stuff. Also, it can make your sugar high so get tested for diabetes. This drug does suck but it also can be a lifesaver.

I am 54 and have recently been diagnosed with a lung disorder known as Boop as well as hemolytic anemia both of which require massive doses of steroids. I started out on 100mm for ten days, IV. and went home on 80 two weeks later. I am now onn 50 daily and weaning off 1omm at a time to see how I am doingl. Both illnesses are life threatening if not treated so I really don't have much choice. I may even need chemo for the blood disorder as well.
I have the same miserable side effects you all mentioned. The moon face is like looking in the mirror at a monster I don't recognize. My mood swings are awful, I get so angry at my husband and son as they just don't understand what it feels like. All the aches, the insomnia, the weight, bloat and pains in back and side. I know that I have to be on this for a minimum of 6 months manybe more and I can't stand looking and feeling like this. I already had a weight problem because of meds I am still on from when I had Breast Cancer five years ago and they put weight on as well. (I used to be a size 5 and now I can't even look and see what size I wear. Of course I guess it is better to be alive and fat then dead and thin, but sometimes I don't feel that way. Why can't they find a drug that can work withougt all these other side effects.