Lyme symptoms and conditions

i finished my 30 days of doxy for lyme feel a little better but not back to normal..still ways to go before i get better this drug has a lot of side effects but i really had no other choice stuck with it and feel better.but still have rapid heart beat,fatigue,weak,light headed..my dizziness is gone it still sounds bad but i do feel a lot better than i was. i was a complete mess my advice is to stick it out if u could and see what happens but if you have more choices i would try something else i had no alternative..

I am on day 13 of doxycycline for suspected Lyme. The headache is unbearable and constant. Only relief is lying down. Decision day today whether to go the last 7 days (I will be in hospital) on Doxy or stop in hopes that I can return to decent health. Any ideas appreciated. I am worried

I've been taking doxy for lyme disease. tomorrow nov.2 is my last day of a 30 day cycle. my dizziness is gone, but still getting rapid heartbeat, and feel very weak..does any one feel better after their done with doxy or has any one fully recovered ?? please post reply...

I started taking Doxycycline Hyclate 100mg on oct 25,2009. I have had anxiety, its been something i have been battling with up until 2 years ago and since then i have had no anxiety attacks. When i started taking the doxycycline, i started to become anxious and starting having anxiety once again. I have also become very shaky, i have a hard time swallowing pills so i brake the capsule open and put it my cup, put just a little bit of water in there and mix it around. could this affect the way the medicine is suppose to work. i have no other option because i have to take it to clear my infection, but i don't want it to harm me. please email me at ****** if you can help.

I am taking Doxycycline 100mg 2 times a day for 3 weeks for lyme. the only side effect that I did have was extreme nausea and stomach pain. it happened 3 times and all 3 times I only drank a small glass of water. I found that drinking 16 oz or more would have no side effects. I feel great and still do all activities with absolutely no side effects.i have 3 more days till Im done.

hey when u are done with the pro antibiotics let me know how it works out. i also have lyme and have 13 days to go on doxy but i don't feel that much better i don't know if it's the lyme or the doxy but i wanna know if u full recover. please write back thank you

Hello Friends, it's been a week after i finished my 21 day Doxy treatment for lyme, Im still feel lot of fatigue and joint pain, i went to see my doctor yesterday, he explained the fatigue is a normal side effect after finishing the treatment. I feel so weak headache and migraines. The doctor told me to take pro-biotics and vitamins to recover faster i just started taking the pro-biotics today so i have to wait how it goes. the dizziness, migraines and fatigue doctor said it's a normal symptom of Doxy,, I hope these side effects will go away soon. if anyone has the same side effects after the treatment please write me.
Drink a lot of water.

thanks for sharing your stories,, we are not alone here.

sorry forget to mention. any recovery from Lyme disease?

Hello friends, thanks for posting all this information about Doxy and Lyme disease that makes me feel I’m not alone here, I finished my 21 day treatment for Lyme disease yesterday, but after completed the treatment I feel so weak, tired and little dizzy I have not energy left, I m wonder it’s part of the side effects, and still in my system. I hope these symptoms go away soon and be normal again. The joint pain seems to get little better or maybe it’s too soon to tell.
Has anyone gone through all these? Thank you friends and we are not alone out there…

i was diagnosed with Lyme disease and was prescribed doxycycl hyc 100mg for 30 days the doctor told me take with food so i take it with breakfast and dinner..one pill twice a day. the first two days i felt great everything was going away but on the third day everything was coming back dizziness,fatigue,tired,blurred vision,rapid heart beat..the doctor specifically told me to take with food or i will get severe stomach cramps and nausea with food and a large glass of water after i take it no nausea or cramping.. but I've been also getting a tingling feeling in my feet and hands has anyone else felt the same? he also said to stay out of the sun or u will burn easily..

this is my second week of this drug and my joints hurts, feel dizzy and weak, Im taking after breakfast and after dinner, I think it's better this way, don't take with an empty stomach.
the doctor said I have lyme disease but he said i have only 1 positive band normally needs 2 to be positive... does anyone knows this?

Thanks guys ... keep strong

I've now taken 12 days of 21 day course of treatment. After struggling with acid reflux, nausea, etc., I thought I'd share some things that I found that helped me tolerate it better in hopes it may help others.

I take a pill as soon as I get up and then another as soon as I get home from work - 5:30 a.m. and 5:30 p.m. I drink a good 4-6 oz. before I take the pill and another 8-10 after swallowing the pill. I try not to eat any later than 2 hours before going to bed, which has dramatically reduced and mostly eliminated the acid reflux.

I've been following the instructions to the letter - not eating 2 hours before or 1 hour after taking the pill and no dairy for 2 hours in hopes it would give maximum absorption to get rid of the Lyme Disease. However, I've found that by keeping something on my stomach during the times I can eat, my nausea has also been lessened. I was really struggling with nausea about 45 minutes after taking the pill, but have found increasing the water to the levels indicated above helped reduce the nausea.

All that said, I'm feeling some fatigue, am a bit lightheaded and my stomach is bloated and a bit tender. Still, it's not nearly as bad as some of you are reporting and while I wondered at Day 4 if I could complete all 21, I'm now hopeful I'll be able to make it. I will, however, be doing a happy dance when I take the last of the pills next Friday. Good luck to all - hope maybe something I've suggested may help someone!

I took doxy for 5 days then stopped because of side effects. It is 12 months later and I still have a very uncomfortable burning feeling on arms, chest, and back.

Has anyone had this prolonged side effect? Has anyone been able to get rid of it?

Thanks

I've been prescribed 100 mg. of Doxycycline Hyclate twice a day for 21 days for Lyme Disease. I was tested to rule that and rheumatoid arthritis out because of hand pain - and I don't know who was more surprised when I tested positive - my doctor or me. Any symptoms I had, including the hand pain, I attributed to the aging process (51/female).

Took the first pill in the later evening on a Friday and waited the 30 minutes before going to bed (instructions said not to lay down for 30 min.). I woke up in the middle of the night with terrible acid reflux, which I've never had. I found it difficult to time taking pill after not eating for 2 hours and waiting 1 hour afterward - never realized how often I ate small snacks. Same thing the next two nights - I also had heartburn, which is rare for me.

I realized it would be far easier if I took the pill immediately after rising and as soon as I came home from work. That has greatly reduced the heartburn and eliminated the acid reflux.

I am fully committed to taking the pill to have the best results in eliminating the bacteria from Lyme Disease, so I'm taking it exactly as prescribed on an empty stomach. This is causing some stomach upset and nausea, which is the worst in the hour after I take the pill while I wait until I can eat - especially in the last 15 minutes, when I feel on the verge of vomiting. I try to keep myself busy, but even without looking a clock, I can tell where I am in the hour. I am hopeful that by taking the meds on an empty stomach, I'll get maximum absorption - but it's been a struggle for me.

One other discovery I've made is that the nausea is less the rest of the day if I eat - and carbs seem to be what is most appealing. I'm far more easily nauseated during the entire day, some days more than others. I feel some fatigue, but nothing that is so severe I'm not able to function and go to work. I feel bloated and my stomach just vaguely hurts, so I'm trying to wear loose clothing.

I'm finding this drug therapy a bit difficult, as I felt pretty well beforehand. My doctor has recommended I give this my best effort, as it is the "go to" drug for Lyme Disease, but has said if I can't handle it, she will give me an alternative. I am trying to stick this out, partly out of determination and silly pride, but also because I am allergic to a lot of drugs and since I seem to be able to tolerate it, albeit with some discomfort, I figure I should suck it up. I have a little bit of the tingling, am occasionally feeling a little flushed - usually when I'm highly nauseated (which is a typical reaction for me), but nothing horribly bothersome.

I'm hoping I don't develop the sleeplessness, anxiety or depression that many of you have reported, as I feel terrible for you. That would become a deal breaker for me.

Unless it's my imagination, my hand pain is reducing and some achiness I just figured was normal has been lessening. If this was the result of Lyme Disease and I can get rid of that, this (hopefully) temporary discomfort will be worth it. Good luck to all.

I was about 1 month in to my 3 month cycle of taking doxycycline for blepharitis issues when I started having symptoms. It started on a friday night with extreme indigestion. There was a lot of pain in my chest and also into my arm. I was belching and very uncomfortable. Next day I woke up and only had the pain in my arm, belching and pain in my left abdomen under my rib cage.

I thought it was just really bad indigestion from something I ate so I continued with the medicine. Within a few days time I deteriorated more and more. The pain in my abdomen had spread from just being on the left to being left, center and right. I also got random pains all over my body it seemed. This seemed to come and go throughout the day. My vision would blur, I had extreme anxiety and also depression, my arm remained weak and then my legs got weak as well. The fatigue was overwhelming. I'm usually an insomniac who struggles to fall asleep by 1:30. I began to struggle to stay awake until 11. The lymph node in my neck also enlarged, and I began to experience a loss of appetite. I have currently lost 5 pounds in one week. I also always feel dehydrated and in a fog. I went to an urgent care clinic and the doctor really just thought I was crazy from what I could tell.

I stopped taking doxycycline about 5 days ago and the fatigue is slowly letting go(very slowly). The blurred vision has cleared up a bit but still comes and goes. My mood is still very down and I can't help to still feel anxious and can't stop wondering if I have some deadly disease process going on. The heartburn and abdomen pains are also subsiding slowly(I feel a little better each day).

I'm glad I found this website. It's helped me not freak out as much about my symptoms(although I still have my moments). Since I started feeling bad I've convinced myself that I have heart attack symptoms, pulmonary embolism symptoms, symptoms of AIDS and symptoms of lymphoma. It's still hard to not feel like doomsday is upon me but reading that many of you have had similar feelings and side effects makes me feel a little better.

I just hope this clears up soon because I think as long as I feel pain, tired or anything off I will be anxious about it. I have fear of ending up on Mystery Diagnosis lol.

The weight gain is horrible and the headaches are happening daily. I feel really tired and achy all day and restless during sleep. I have Lyme disease and not sure if these symptoms are from the drug or from the disease itself but I'm pretty sure the weight gain is from water retention caused by the Doxycycline. I hope this will go away after my 21 days is up.

wow, well i have lyme and mono. the doxy is actually helping this horrible cough i have. but anyway its causing insomnia which is the exact opposite of what i need right now with mono. everything looks out of proportion, like my arms being really long. i just threw up and thats why i looked this up. i have to go to school i don't know how im going to deal with all this during classes, im taking 100 mg 2x daily for lyme.

Took Doxy for 2 years for Lyme and Babesia. Never had a problem with it. I stopped taking it for 8 months, then the Lyme disease symptoms returned. So I started back up on it. I noticed migrating pain in all of my joints...even every toe. I stopped taking it for a week and the joint pain pretty much resolved. I started it up again and sure enough, joint pain returned mainly in my knees and hands. Constant cracking of my thumbs, knees, toes,elbows. It also caused my tendons to become very tight and sore in my right hand. Making it hard to hold my dog's leash or open a door knob. Whether it was a bad herxheimer reaction or just my body deciding it was sick of this drug......I may never know.

Last month, I went to see a dermatologist as a result of being bitten by bugs while staying in a motel. The doctor looked at the bites and one particular bite on my right arm, which he said was a tick bite. For that bite, the doctor prescribed to me a drug called Doxycycline HYC for Lyme Disease that I had to take for 30 days. Number one, I hate taking drugs and I have never taken any medication for that long a period of time, except for the Centrum multi vitamin I take on a daily basis.

I went back to the doctor's office earlier this month showing him more bites on my back and a rash on my right leg, the latter of which he said was an allergic reaction to the drug prescribed. He said Doxycycline HYC was the drug that is used to treat Lyme Disease and that I had to finish the course.

On Wednesday of last week, I had four pills left when I noticed a slight change in my vision. I took the pills Wednesday and Thursday and was done with them on Thursday to finish the course. By Saturday, my vision was very blurry and I only have one eye. I wear safety glasses to protect that eye with no prescription in the lenses.

On Saturday, I walked over to the pharmacy and the pharmacist printed out a report on that drug and there is an indication – along with many other side effects – citing blurry vision. On Sunday, I spoke with the doctor's colleague, who asked me whether I was also having headaches while taking that drug. I told the colleague I was having headaches but that I was taking Tylenol when the headaches occurred. The colleague not only told me I could have been prescribed another drug (which I was surprised to hear but would it have mattered anyhow because I only had four pills left) but he also said that my vision will get better but it will take time. I really wish I knew in what time frame my vision will come back because the colleague also mentioned that I may have to see a neurologist and I am wondering because of that statement if something happened in my brain during the times I was getting the headaches that could have affected my vision.

Then I was talking to a nurse friend yesterday concerning the blurry vision – which is still blurry since Saturday of last week – and she asked me if I have diabetes. I told her I do not have diabetes but she said blurry vision is associated with diabetes and that I could lose my sight.

I cannot believe all that has happened as a result of taking that Doxycycline HYC. I also went to have an eye exam and the eye doctor scheduled an appointment for October 8 to see me again to see if the vision clears up on its own. He said if it does not, I must now start to wear prescription lenses. But I am really skeptical about waiting that long because every day I wake up, my vision seems to be getting blurrier and blurrier. I am blown away about all of this -- all as a result of taking that drug. And I have to sit very close to the computer screen in order to see to type anything.

Because my nurse friend was talking about diabetes being associated with the blurry vision, I also went searching about that yesterday and found this statement:

"The use of antibiotics can affect blood glucose levels, at times contributing to elevations and in some cases a decrease in blood glucose levels, depending on the antibiotic used, as well as individual response. Antibiotics are also used for the treatment of infections, which often contribute to elevations in blood glucose, in and of themselves. In the case of Lyme disease the relapsing cyclic activity of the Borreila spirochete, may also contribute to times of elevations in blood glucose, due to the increased presence of infectious organisms during periods of such activity. It is important to discuss your blood glucose response to treatment with your Doctor, as improved blood glucose control during times of treatment
for any infectious state, helps the body put up a better fight."

I am stuck in my apartment scared to death and very, very, very depressed about this blurry vision. Moreover, I unable to drive to the locations I need to get to for my job because not only is it hazardous for me to drive on a consistent basis, but my bills are coming due and no way of paying them.

I was on doxycycline for three weeks because the doctor believed I had Lyme disease due to the slight headache, mild fever, and aching joints that I was experiencing. I was fine for the first few days, but then I began to develop some unusual symptoms. The symptoms fluctuated day to day, but I was never free from one or more of these symptoms: severe headache, chills, night sweats, tingling in my arms, weakness in my legs, ear ache, numbness in my face (especially my eyes and lips), anxiety, depression, insomnia, pain in my eyes, and neck, and stiffness in my jaw. At the end of three weeks, I seemed to have more Lyme symptoms than before I began the medication. My Lyme test was negative, but with my continuing symptoms my doctor recommended that I take the medicine for ten more days, and retest for Lyme. The first day back on the medicine I was sicker than ever. I waited it out because the doctor insisted that it was the best thing to do. I finished the medicine, and the effects were less intense. My second Lyme test was negative. I am being tested for Fifth's disease (my son was ill with it just as I began to experience my swelling joints - a condition that can not be treated, uggh). I seem to get worse if I don't drink all day and night - a lot of water is needed, all the time. The effects also increase when I go to bed, recline on the couch, allow myself to become nervous about my condition, or over work myself through the day. I was at the pediatrician with my son yesterday, and mentioned my problem, wondering how long it could take to get the medicine out of my system. She told me it could be as long as a few months. It's been two weeks since I took my last pill.

I have been on Levaquin 750mg for an infection in the bone of my toe. I am also on a daily IV drip of antibiotics. Since I have been taking the Levaquin, I ache all over. Every joint aches from my hands to my ankles.
I'm wondering if this is all a side effect of the Levaquin. I have nothing else to blame the aches upon.

On Doxycycline 100mg twice a day for 12 days then 200mg twice a day for 12 days for very-likely Lyme Dz (fever, hip rash) apparently diagnosed in the first month of infection. First few days on Doxy I had a lot of esophageal spasms (kind of a cramping in the middle of the chest), but those subsided.

About the time I was finishing the 24 day course of Doxy, got red-violet itchy rash of both hands just over the lower knuckles (where the fingers meet the hands) after a long drive - unsure of sun exposure. Just walking in the sun for a few minutes sets it off. Little improved now 6 days off the Doxy. I'm a doc and first wondered if it was a sign of dermatologists - a pretty bad disease that includes a knuckle rash and muscle breakdown and is sometimes related to Lyme or cancers! It was very reassuring to read all the patient prior reports here of very similar problems on Doxycycline. This is a great site and glad to contribute to it with my story.

Hi All,

I am so glad that I found this group of postings. For the past 5 days I have been experiencing muscle pain which began on the inside of my left knee day 1. On the second day I had significant pain in both calf muscles as if I had begun a new calf workout routine(I haven't) as well as pain in the large back muscle that runs down either side of the spine. Day 3 I noticed serious pain in my forearms and wrists. The forearm pain is causing hand cramping and my thumbs don't seem to function properly. I tried to sign a credit card receipt today and could barely grip the pen. I now have pain in my neck muscles as well.

I know I have taken Levaquin in the past 6 months, I am just not exactly sure when it was. I am definitely going to research that. I went to the Dr. yesterday to discuss my muscle pain. He took 2 viles of blood. He said he is going to check for Lyme's disease and other infection. I am hopeful it is not something serious. I must say thought, many of the posts above sound a lot like what I am experiencing. I am going to be beyond angry if I have a permanent condition from taking Levaquin. Some pain I believe I can deal with. It is the current poor function of my hands I am most concerned with.

I wish all of you the best in recovering. If my condition turns out to be something else I will repost.

I was diagnosed on June 13, 2009 with cellulite. I had a bump and rash on my right elbow and was given 2 antibiotics for it. After 3 days and no results form the antibiotics I went to my primary doctor who told me it was lyme disease because with lyme disease the rash goes away from the heart. I had no other symptoms from it and no bulls eye and the blood tests were negative. I was put on dioxycycline for 21 days and on the 19th day I missed a dose and took another one 6 hours later and then another one another 6 hours later and developed itchiness all over my body. I called my dr. who told me that with only 2 pills left and being on for 20 days I can stop the dioxycycline. OK great! a few days later still itching and he told me to take Zyrtec symptomatically as needed. Still no rash anywhere on my body. OK, so I am on Zyrtec and 2 weeks later I develop a tash on my face. I go to dermatologist and he says it is just acne and gives me tetracycline and erythromycin and call him in 2 weeks. I don't know if I am having an allergic reaction or not and decide to go to another dermatologist who tells me it is an allergic reaction and gives me xyzal for itching and corticosteroid for face and tells me I have high histamine levels. I then go to an allergist and he tells me he thinks its just acne from shaving using electric razor and use erythromycin but NOT to take tetracycline just in case I am allergic to antibiotics. I then go a different dermatologist who tells me I have folliculitis/acne and to take Keflax and a sulfate cream to use. A week and 1/2 after my face is OK with the rash down considerable and I am able to shave again. 4 days into the KEflax I develop a rash on both my elbows. I go to my primary and he says it is contact dermatitis but to take blood test and stool sampler to see about possible infection from antibiotics that destroyed good antibodies. It may be that my good antibodies are not strong enough so continue with yogurt and we will see. I am today having a sore throat, diarrhea and little stuffy nose so who knows what is going on. Also, I am 37 year old male who has nt been the same since going on doxycycline for supposed lyme disease-
I will post again when dr. gives me blood results and stool results.