September 21th
2009
4:53 PM
I was about 1 month in to my 3 month cycle of taking doxycycline for blepharitis issues when I started having symptoms. It started on a friday night with extreme indigestion. There was a lot of pain in my chest and also into my arm. I was belching and very uncomfortable. Next day I woke up and only had the pain in my arm, belching and pain in my left abdomen under my rib cage.
I thought it was just really bad indigestion from something I ate so I continued with the medicine. Within a few days time I deteriorated more and more. The pain in my abdomen had spread from just being on the left to being left, center and right. I also got random pains all over my body it seemed. This seemed to come and go throughout the day. My vision would blur, I had extreme anxiety and also depression, my arm remained weak and then my legs got weak as well. The fatigue was overwhelming. I'm usually an insomniac who struggles to fall asleep by 1:30. I began to struggle to stay awake until 11. The lymph node in my neck also enlarged, and I began to experience a loss of appetite. I have currently lost 5 pounds in one week. I also always feel dehydrated and in a fog. I went to an urgent care clinic and the doctor really just thought I was crazy from what I could tell.
I stopped taking doxycycline about 5 days ago and the fatigue is slowly letting go(very slowly). The blurred vision has cleared up a bit but still comes and goes. My mood is still very down and I can't help to still feel anxious and can't stop wondering if I have some deadly disease process going on. The heartburn and abdomen pains are also subsiding slowly(I feel a little better each day).
I'm glad I found this website. It's helped me not freak out as much about my symptoms(although I still have my moments). Since I started feeling bad I've convinced myself that I have heart attack symptoms, pulmonary embolism symptoms, symptoms of AIDS and symptoms of lymphoma. It's still hard to not feel like doomsday is upon me but reading that many of you have had similar feelings and side effects makes me feel a little better.
I just hope this clears up soon because I think as long as I feel pain, tired or anything off I will be anxious about it. I have fear of ending up on Mystery Diagnosis lol.
-- By kelce | Reply | (2) replies | Private Message me
July 31th
2009
5:21 PM
I have been on this for 6 days for a UTI. I personally am not allergic to sulfa drugs and have had absolutely no problem while on it so I can't speak to specific side effects but I do have something to say about it. I'm a little confused as to why so many of you believe that this drug should be taken off the market. Surprise, a lot of people are allergic to sulfa drugs which accounts for the vast majority of adverse events described by nearly everyone on this post. And guess what, every single drug comes with side effects (Tylenol, Advil, Tums, etc. are no exception) and you accept the risk of those side effects when you put it in your body and weigh that risk against the possible benefits. It's not your doctor's or the drug company's fault you're allergic! Antibiotics, including this one, have saved millions upon millions of lives. It seems intuitive but it evidently must be said: if you're allergic to it STOP TAKING IT and call your doctor so he can prescribe a different antibiotic. Seriously people, it's not rocket science. Hives are a pretty straight- forward symptom of an allergy and one that can be diagnosed by the lay person. I am a medical professional, but even if I wasn't, you don't need an MD behind your name to figure that one out. Why would you continue to take it after having an obvious reaction? (a reaction that, by the way, is a well documented, clearly stated possible side effect of this particular medication if you'd taken the time to ask any questions whatsoever regarding your own health, not a surprise adverse event of a bad drug) It's not rocket science, it's common sense people. When I'm prescribed something I'm not familiar with, my first question is, "What do I need to know about this." Even after a satisfactory explanation, I look it up before taking it. In fact, that's how I found this post. Which brings me to my last point, why is it that people blindly put things into their bodies that they know nothing about. If the pharmacist doesn't explain drug information to you in person, that's what the little drug safety pamphlet attached to your Rx is for. Read it, that's why it's there. OR, there's always the option of using this wonderful resource called the internet. Use your brains for god sake and take a more active, responsible, and informed role in your own healthcare process. You are ultimately responsible for your own health, and to be completely honest, you're one of the only people who actually cares about it (guess what, your doctor probably isn't one of them because he has a hundred other pain in the ass patients with no common sense to keep track of). Think people...
-- By kiralyhne | Reply | (4) replies | Private Message me
June 14th
2009
10:14 PM
I mentioned this a few weeks ago and have found the source of my comments. It is in Peter D'Adamo's book "Eat Right For Your Blood Type". The reason I found this interesting is because my dad had a terrible reaction to Levaquin and was curious about his blood type after reading that AB and B blood types should avoid fluoroquinolones. Dad passed away in March, but ascertained his blood type from mom's, mine, and brother. I am O, brother AB, and mom type A. Dad, therefore had to be B. Food for thought.
Dad had ulnar nerve damage, loss of appetite, shortness of breath, insomnia, pain in calves and shoulders,etc. Succumbed suddenly from rare b-cell lymphoma in lungs, which just appeared out of nowhere while in hospital for Levaquin reaction. Mom unfortunately took Levaquin last month. Then suddenly is now dying from Anaplastic Thyroid Cancer. Is this all a coincidence? Is this stuff fertilizer for cancer?
June 9th
2009
1:35 PM
My Mom was prescribed Levofloxacin ( AKA Levaquin) by her retarded doc for a mild cold and a sore throat.
After taking 2 tablets of 500mg each my mom is down is severe pain all over her body! she has joint pains, neck pain, arms, palms shes got severe pain all over her body!
She also has severe itching on the palms and her arms as well..
Headaches,
Things aren't looking good.
She in real pain! She tells me she just wants the pain to stop and that she was better off with the cold and sore throat.
She has stopped taking Levaquin.
Anyone got anyway to help her? something?? She is asleep now but tmr Im going to ask her to drink some kefir..
Thanks
-- By gregoryhouse | Reply | (3) replies | Private Message me
April 20th
2009
10:20 PM
Ran into friend at grocery store with mystery illness. Docs attribute it to Agent Orange exposure. Been at death's doorstep for a year. Hands were extremely cold and has little energy. Showed up one day at golf course with oxygen bottle! Asked him if he had taken Levaquin. Unfortunately had. Docs again fail to link antibiotic exposure to his ailments.
I wonder how many illnesses and deaths this poison has caused? Why does the FDA allow this crap? Do you people realize that the average person is clueless about the side effects of drugs like this. Put total confidence and their well being in the hands of ignorant docs and profit crazed drug companies.
Ignorant oncologist failed to link my dad's symptoms to Levaquin, instead attributed them to b-cell lymphoma which just happened to suddenly appear. Rituxan and numerous other drugs (Heparin, Lasix, Gamma globulin, Tylenol, antibiotics, Insulin, steroids, Flowmax, etc.) was too much. A fiasco, people think he died of lymphoma. Was walking three miles a day before taking Levaquin, for an undiagnosed lung infection.
March 18th
2009
2:20 PM
My 14 year old daughter received her first Guardasil shot in May 2008 second in September and was diagnosed with Hodgkins Lymphoma in November 2008. The diagnosis was questioned at my daughters Oncologist in conjunction with the shot. I never heard anything else after that. Luckily she is in remission after Chemo and many treatments
-- By gcopen | Reply | (3) replies | Private Message me
February 20th
2009
8:41 PM
My 17 year old daughter had her scheduled three doses of gardasil and within the last month was diagnosed with Hodgkins Lymphoma. I have tucked away the names of about a dozen others that have had the same diagnoses after two or three gardasil shots. I FIRMLY believe gardasil triggered my daughter's lymphoma. WILL NOT give it to my younger daughter and research each day to find statistical evidence. Hodgkins Lymphoma symptoms are: fever, night sweats, weight loss, itching, swollen lymph nodes, fatigue, pain on drinking even a little alcohol. Most people do not experience all of these symptoms. The most common symptoms are swollen lymph nodes and fatigue. The itching and pain on alcohol consumption should be a big fat red flag! Beware...
-- By htlm2000 | Reply | Private Message me
July 22th
2008
9:23 AM
I have posted several times. My 16 year old daughter took singulair for 4.5 years starting 11-17-03 and ending 3-28-08. She was the dancer,cheerleader who starting cutting her legs with razors and completely changed. Lost friends, depressed, withdrawn,anxiey attacks,headaches,stomach aches on and on and on..... I took her to a Psychiatrist who gave her Fluoxetine which did not help. She is doing much better now that she is off Singulair but will never be the same. She found a lump in the back of her neck and a lump in the groin area. I remember Concerned citizen mentioning Lymphoma(cancer) discovered in some of the Singulair Children because of the reduced immune system connection. I have also found some info on this on line. We are going to the Doctor Thursday and I will have tests run. Concerned citizen are you still out there? Have you found out anything else? Sue
-- By 58peppy | Reply | (3) replies | Private Message me
July 2th
2008
10:16 PM
REMICADE IS DEADLY and the Cenjtcor downplays the severe side effects that normal blood work will not pick up. The drug causes and increased risk of lymphoma. WHY AREN'T THEY URGING PATIENTS TO GET A BASELINE BONE MARROW BIOPSY!!!! MARK MY WORDS...PEOPLE ARE GOING TO BE DROPPING LIKE FLYS WITH CANCERS FROM THIS TOXIC DRUG!!!!!
-- By cathyxiii | Reply | (1) replies | Private Message me
June 30th
2008
11:16 PM
The arthritis/crohn’s disease drug Remicade, manufactured by Centocor is a deadly drug and should be taken off the market. The drug has caused death and permanent damage to patients across the world. The drug company makes billions of dollars and downplays the side effects including the increased risk of lymphoma and blood problems. The company downplays infusion-related reactions saying that those reactions usually occur within 1-2 hours post infusion. Here’s the truth:
*Centocor has been reprimanded by the FDA for publishing false claims in its marketing literature given to physicians. See FDA website for official document.
*The literature lists syncope (drop in blood pressure), bradycardia (slowed heartrate), pancytopenia (dangerous drop in blood cells..platelets, whit blood cells, red blood cells etc, increased risk of lymphoma, serum sickness. The literature says to call MD if you are “pale”.
*Here is a case of what happened to a woman in her 30’s with rheumatoid arthritis after only the 2nd infusion. She was not on methotrexate at all so this is all Remicade’s fault. Approximately 2-3 days after the 2nd infusion the patient began to feel tired and sore but still worked an 8 hour shift that day. By 12 midnight the patient’s entire body flared up…every joint was literally swollen and she was vomiting violently.. She could barely get to a phone to call for help. Her blood pressure dropped to 50/40 and all of her blood counts plummeted. Her Sedimentation Rate (which measures inflammation had always been below 2 and it spiked to 29!!!) Remicade caused the opposite of what it was supposed to do. It also increased greatly her C-Reactive Protein which is also a measurement of inflammation and can cause cardiac inflammatory processes as well increasing the risk of cardiac damage. The nurse in the triage area told the patient that if she had not called for help SHE WOULD HAVE DIED !!! She ended up in the hospital for 5 days in an isolation room. She was in excruciating pain and had to be given Oxycontin every 12 hours and Dilaudid IV every 2 hours to control the pain. For the first 2-3 days she could not even walk or go to the bathroom without assistance. She was given high doses of prednisone to decrease the inflammatory process and get her pain under control. A hematologist performed a bone marrow biopsy which revealed an abnormal population of plasma cells that can develop into myeloma or lymphoma. The hematologist said that the patient would have to be monitored lifelong to watch the pre-cancerous cells. The patient was out of work for 3 months and was forced to change jobs because of her fatigue level and short term memory problems. She also suffered post-traumatic stress due to her near-death experience and total upheaval in her life. She is a healthcare professional. Even 4 years after the reaction her blood counts are still abnormal and she has still had short term memory problems and vision problems.
-- By lopi13 | Reply | (3) replies | Private Message me
June 21th
2008
9:51 AM
i was diagnosed w/non hodgkin lymphoma in 2006, back surgery since had chronic back pain docs say maybe for life i take percocet to ease the severe pain in which i have they have help me thru some serious pains meanwhile i can be myself and perform as usual limited that is
-- By jrcornier1969 | Reply | Private Message me
May 30th
2008
3:38 PM
Now a new side effect, I have posted other side effects that were enough to get off the remicade. I went in and had another surgery because the side effects of this drug was killing me.{see other effects I posted under Jbill} So now the Doctors are looking into Brain damage. I am going to have a MRI done to see if this is a reality, I feel as though I have lost my wits. this is not something that I came up with, it is starting to show up in others and is talked about among the doctors that treat us. I used remicade for approx 4 years and feel like it is a dangerous drug. It can work pretty good but would not take it on a regular basis. I will not take it again.
-- By jbill | Reply | (1) replies | Private Message me
May 25th
2008
10:50 PM
Thank God I found this site. My doctor thinks I'm mad, she has a Mirena herself and thinks it's wonderful. I had the Mirena put in because of severe blood loss anemia two years ago. I've had a headache on the left side of my head for 18 months. Heart palpitations right before my unpredictable periods, chest pain, serious stomach upsets, numbness and tingling that made me think I had MS or a brain tumor, and countless other frightening symptoms. I had Hodgkin's Lymphoma when I was 23 which was successfully treated, this Mirena has had me concerned daily that I had relapsed and that it just wasn't being picked up. I've been so frightened of what's been happening to me, but now I will INSIST that the thing is removed right away. Thank you so much for you honesty about your symptoms, I no longer feel alone.
-- By poldot | Reply | (2) replies | Private Message me
May 16th
2008
7:31 PM
It saddens me to read all the horrible effects this drug has caused. My husband took Levaquin back in August 2007and after 2 days starting have aching muscles, joints, drenching night sweats, high fever, rash. He took this poison drug for days(for a swollen lymph node in groin) and the side effects would not go away. He too was a very healthy 43 year old who worked out 4-5 times a week and very physically fit. This went on for months. He was tested for TB, AIDS, Lyme disease, I think every infectious disease and lymphoma, all came back negative. In Oct. 2007 he was hospitalized for 6 days and we were told that he had a very rare disease called Still's Disease. (google it and read about it please) I with all my heart and soul feel that LEVAQUIN brought this disease on. There is very little known about Still's but it's scary to think that doctors are giving this poison to patients. My husband has been on daily injections of Kineret, Methotrexate and Predisone since October and thank God these meds have given him relief. PLEASE DO NOT TAKE LEVAQUIN and tell all you family, friends and co-workers about it!
-- By gqhobbs | Reply | (1) replies | Private Message me
April 23th
2008
2:33 PM
HI EVERYONE I HAVE BEEN TAKING L24 FOR 3 MONTHS NOW AND I HAVEN'T HAD ANY SIDE EFFECTS UNTIL RECENTLY I SWEAT VERY BADLY AT NIGHT IS THEIR ANYONE ELSE LIKE THIS. BUT OVER ALL I LIKE THE PILL AND IT'S VERY HELPFUL
-- By happyface5 | Reply | (2) replies | Private Message me
April 22th
2008
5:25 PM
I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464
-- By sherrie77 | Reply | (4) replies | Private Message me
February 26th
2008
11:21 PM
Hey there ladies, I just started taking Loestrin 24. I am 41 yrs old. I have a history of endometriosis, with bleeding lasting for 10-12 days a month. I was at my wits end with the monthly pain. I was on the pill for many, many years. I went off it 6 years ago, I went through chemo for Hodgkins lymphoma, and wanted my body to run naturally no hormones no nothing. So here I am taking the pill again, and to my surprise, I have severe PMS!!! I never had it before, but the rage I have is just terrible. I know it is not me, but it scares me. I have breast tenderness, brown spotting too, sharp pains in my side, dull headache,acne, and yes the rage. My poor husband was chewing food next to me, I wanted to beat him,the noise errrrr. Cybil (lol)
-- By apple2001 | Reply | Private Message me
December 20th
2007
10:21 AM
I've been taking Omeprazole for the last 4-5 days for the "possible treatment of H. Pylori" while we are waiting on a nuclear gallbladder test. After I started taking this I noticed my stomach going into cramps. Just like when you have a tummy bug and you get spasms or knots in your tummy. Very uncool, painful, and the only thing that seems to make it stop is eating and making my tummy full. (At least 90% of the discomfort and pain leaves when I do that) so I have been off of it for a little over 24 hours, and this morning I woke with some tummy cramps again. I'm thinking it may take a couple of days for everything to return to normal. I'm not going to take it anymore. (drugs - geesh - if you hear a commercial say it treats arthritis but may cause lymphoma - good god, why do that? Sorry I just think it's horrible about some drugs not that I have arthritis but I'd rather take a pain pill for it than turn around and get cancer)
-- By asipes | Reply | Private Message me
September 19th
2006
5:00 PM
My significant other took Doxycylene, 100 mg, twice a day for two weeks to treat a swollen lymph node under his arm. During the treatment he experienced nausea, stomach pain, rash and cold sweats, nothing too bad. 3 days after the last dose everything got significantly worse. It started with sever chest pain, so bad we went to the emergency room thinking it was a heart attack or blood clot. They found nothing and discharged him. Over the next 3 weeks he started vomitting, diahrea and developed jaundice. Constant queeziness and chest pain. After numerous tests, ultra sounds, MRCP, the doctor has ruled out various hepatitas's and every other disease he could think of. He's also rulled out any kind of bile duct blockage after the MRCP. Its now been 7 weeks since all this started, my friend has dropped 40 lb's (190 down to 152) and still dropping. Our doctor (gastro interologist) has admitted he's stumped and is currently contacting a professor in Miami as a last hope. The only thing our doctor keeps comming back to is the Doxycyclene and that my friend may have had that one rare acute reaction. We're frazzled and don't know what to do next.
-- By rod.sulte | Reply | (2) replies | Private Message me
August 21th
2006
7:45 AM
Last year in March I was put on Lisinopril for elevated blood pressure. Two months into taking this medication, I started having swelling of lymph nodes in my under arms. Mamogram and chest x-ray were done to rule out lymphoma. I suspected the lisinopril and upon stopping the medication swelling of lymph nodes (slowly) subsided. This year my mother who is 88, was put on Lisinopril for congestive heart failure, again two to three months into taking the Lisinopril she developed what seems to be medically induced lupus erythematosus (rash) on her wrist. She was concerned that it might be a cancerous as the eruptions were so unsightly. Her family Dr. referred her to a surgeon, and mother has since underwent surgery with general anesthesia to remove two of these eruptions that were not cancerous thankfully. A co -worker was on Lisinopril also for blood pressure and suddenly developed terrible swelling of the lips, which would subside and then return. His Dr. referred him to an allergist. These episodes were not only scary but resulted in time lost from work and unnecessary costs. I would be interested to know if anyone has experienced the severe rash or swelling of the lymph nodes.
-- By jvanosdol | Reply | Private Message me
April 24th
2006
5:00 PM
insane, i thought i had bone cancer or lymphoma, the pain in my hip ..my arms..my legs were awful. I felt like i had arthiritis over night. Because i had recent bone marrow aspiration, the dr.'s thought that i had bone infection..can you imagine being tired and feeling sick and achy 24 hours...no sleep ..worst thing that i have taken..i just quit and went back to my asmanex i m fine...do not take advair
-- By hera23 | Reply | Private Message me
December 25th
2004
8:17 AM
My doctor just prescribed Zocor to me on 12/22/04. He did not even check my cholestrol. I'm a diabetetic. My sugar has been around 400. I went 2 weeks without meds. My doctor would not prescribe me with any meds, since I had to rescedule an appointment to see him. I was reading some of these complaints about Zocor, and I was shocked. A lot of the complainees, are on 20 mg or less. My doctor has me doing 40 mg. I only took it once. I think I will learn from you folks' mistakes. I'm starting to think I may have a quack for a doctor. He misdiagnosed me, when I had lymphoma. When I had sensations of being choked and pressure in my head, he said it was allergies. 6 months later, I complained again about the same simtoms, he said it was asthma. I was forced to go to the hospital, when I almost passed out while driving my truck. After a 10 hour visit at the emergency room and numorous tests, I was found to have a tumor the size of a baseball next to my heart. The tumor was pushing on my wind pipe and the major artery that supplies blood to the right side of my body. I was stage 4. As for side effects of Zocor, I'm going to hold off on using Zocor, so I don't get any.
-- By hbowtieman | Reply | Private Message me
July 23th
2004
12:21 PM
Have been taking Advair 250/50 since October, 2002, and have not had to use an emergency inhaler once since that time. HOWEVER, had to start taking the drug every other day, once per day only, to eliminate hoarshness since I speak with clients for hours often during the business day. With very wet summer, was having some wheezing due to mold reaction over last several weeks, and increased dosage to once, every day. Last two days have had irregular heartbeats and I went off of caffeine totally months ago due to a previous arrthymia episode that lasted 5 days (wore Holter monitor for a day) some 4 months ago. Stopped all caffeine (except some chocolate!) and all alcohol at that time, but who can eliminate all daily stress. Convinced that Advair is causing the premature beats since there is causality to the increased dosage of late. Five months ago experienced periods of dizziness that disappeared after several weeks. There are studies now that steroids, in suppressing the body's immune system and its resultant reactions to triggers or allergens, can contribute to the onset of blood cancers such as lymphoma and other immunological diseases. Use Flonase for sinus swelling, and now looking for alternative to Advair. There is no question in my mind that a patient has to constantly question both drug interactions and overall side effects, i.e., cost-benefit analysis.
-- By advisor | Reply | Private Message me
Remicade (5) Levaquin (4) Gardasil (2) Advair HFA (2) Loestrin 24 Fe (2) Doxycycline Hyclate (2) Bactrim (1) Zocor (1) Mirena (1) Singulair (1) SMZ-TMP DS (1) Percocet 10/325 (1) Lipitor (1) Omeprazole (1) Naprosyn (1) Lisinopril (1) Zostavax (1) Prograf (1) Synthroid (1) Rituxan (1)
October 1th
2009
8:25 PM
I feel compelled to share my daughter's horrendous experience, which we (and some of our docs) believe was a reaction to Bactrim. Her chills, high, high fever, night sweats, itching and majorly swollen lymph nodes mimicked lymphoma. She had a biopsy of one of the swollen lymph nodes and it revealed Kikuchi' s Disease or Kikuchi-Fujimoto's Disease. Google it. Thankfully, it was benign and self-limited, but it made her very very sick and it was scary and most probably triggered by her allergic reaction to Bactrim - taken for acne. We will never take this drug again.
-- By mjws19 | Reply | (1) replies | Private Message me