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Here are side effects posted by other members, that mention mail.
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400 Side Effects posted for mail

August 9th
2009
3:10 AM

I am a 61 year old mail. Two years ago I suffered chest pain resulting in the fitting of two stents was placed on Lipitor and had the usual liver function test which proved normal. Initially I was put on a low dose but as my cholesterol level did not improve eventually I was placed on 80mg which is the highest dose and this did lower my cholesterol level to a satisfactory level. A few months ago I had severe unexplained back pain which I thought might be due to the statin and when I stopped taking it, very quickly the pain went. I have restarted the medication for about 6 weeks now and in the last few days have had intense pain in my lower legs, hips and lumbar region. I have decided now to stop taking the drug and will be seeing my doctor shortly. Although I am taking other medication (amlodipine, perindopril and bisoprolol) for blood pressure I feel quite sure that my intolerable pain is due to the statin.

-- By kingland20 | Reply | (3) replies | Private Message me

June 3th
2009
2:17 PM

I'm sitting here in tears reading all of your posts because I've also been on prednisone and have horrible side effects. I was diagnosed with metastatic breast cancer in my lungs in June of 2002 and, after starting at 60 mg/day then, I have been on 20 mg/day for years now. The very first posting that I read mentioned problems with the femur bone. Besides all of the other problems associated with this devastating drug, in December, 2007, I broke a bone in my left foot with no known cause for it. Then I started experiencing pain standing or walking in my left leg and was diagnosed with a fractured femur bone and after several months of trying to get it to heal (including an ultrasonic bone healing system), it just kept getting worse until an orthopedic surgeon recommended that I have a 16 inch rod put into my leg which I did and it ended up to be one of the worst decisions that I have ever made. After experiencing all of the prednisone side effects for almost seven years including depression, severe fatigue, weight gain, moon face, thin skin, cataract surgery on both eyes, hump on my back, mood swings, etc., the pain and suffering that were caused by that operation brought me to seriously consider suicide. I was also diagnosed with chemical neuropathy in both of my legs also which makes my legs so weak that I have to crawl up any steps and have trouble just standing. I actually have an appointment for this evening to have an x-ray done to see what is wrong with my knees and did not realize that this also is yet another side effect. I never make it through the night without waking up in pain and getting a pain pill and then getting up in the morning is almost unbearable with that "burning" pain. I am now on Cymbalta for depression, Xanax for anxiety, Percocet for pain, and of course 20 mg of Prednisone. I was told that I would have to remain on Prednisone for the rest of my life because of the lung scarring and COPD. After reading all of your comments, I have decided that I would rather put up with any breathing problems (and I don't even know how slight they may be at this point) than to remain on the Prednisone. I have tried weaning off several times but get so fatigued that I can't move and that's dropping one mg every week. I'm affected by the decrease but it gets out of hand when I get to 14 mg and I get so frustrated and depressed at not being able to do anything that I just go back up to the 20 mg/day. If you have been able to wean off of it, would you please let me know how you did it and what you had to go through? I'm 65 years old now but I have two wonderful granddaughters (ages 4 and 6) who I can't do any normal "Grammy" things with anymore at this point and I have to change this condition for them and for me. Obviously, the doctors don't recognize the severity of the drug because they just keep prescribing it and out of a regular doctor, an oncologist, an orthopedic surgeon and a neurologist, they can't seem to get together to come up with a solution. I have to say that I haven't considered suicide lately but I do wish that I would just die and be out of this pain. My family and definitely my granddaughters and wanting to see them grow up are the only things that keep me going. There are probably things that I'm forgetting but I'm sure that one of you have covered it in our posting. Although my family is so supportive, no one and I really mean not one of them, realizes knows what we all go through because of this drug. How could they know that something that is supposed to help you could cause these problems? My life is a living hell, all because a pulmonary doctor prescribed prednisone seven years ago and I trusted him to only do what was right without informing me of what was to come. I more than sympathasize with all of you. I sincerely appreciate the time that you took to post to this site and so thankful to know now that this knee pain is not something new that I have but another side effect of the prednisone. I wouldn't have known that if it wasn't for this site because I'd be willing to bet that after I would have had this x-ray done, one of my doctors would have just prescribed another medication to take. Please feel free to contact me directly with any comments or especially any help that you can give me. I know that all of you are going through the same thing so if I can do anything for you, even just listen and understand, please contact me also. Sometimes that's the only thing that people can do is to listen and someone who is in the same situation can always understand. I'm here for anyone who needs a hug for the day.

-- By karen122275 | Reply | (2) replies | Private Message me

April 27th
2009
10:54 PM

I have been taking Diovan not Diovan HTC for about a year. Recently I have noticed pain in both of my shoulders and in the joint of one finger. I also experienced very significant pain in my left wrist that seemed to come out of the blue. One of my hobbies is archery but the pain in my shoulders and upper arms does not allow me to enjoy this hobby. I simply cannot draw my bow without pain. I also cannot throw a ball with any authority without pain. I am a 65 year old mail and have never had any trouble like this until Diovan. I plan to stop taking it for a couple of weeks to see what changes I notice and will report back.

-- By eberris | Reply | Private Message me

April 20th
2009
10:20 PM

Ran into friend at grocery store with mystery illness. Docs attribute it to Agent Orange exposure. Been at death's doorstep for a year. Hands were extremely cold and has little energy. Showed up one day at golf course with oxygen bottle! Asked him if he had taken Levaquin. Unfortunately had. Docs again fail to link antibiotic exposure to his ailments.
I wonder how many illnesses and deaths this poison has caused? Why does the FDA allow this crap? Do you people realize that the average person is clueless about the side effects of drugs like this. Put total confidence and their well being in the hands of ignorant docs and profit crazed drug companies.
Ignorant oncologist failed to link my dad's symptoms to Levaquin, instead attributed them to b-cell lymphoma which just happened to suddenly appear. Rituxan and numerous other drugs (Heparin, Lasix, Gamma globulin, Tylenol, antibiotics, Insulin, steroids, Flowmax, etc.) was too much. A fiasco, people think he died of lymphoma. Was walking three miles a day before taking Levaquin, for an undiagnosed lung infection.

-- By seakelp27 | Reply | (5) replies | Private Message me

March 17th
2009
2:39 PM

I've been thinking that stress was causing all these symptoms but now I'm thinking differently. I only took Lactase Enzyme because I thought herbal was better. After taking it for a week I found I could eat a variety of foods I wasn't able to eat prior.
One morning I awoke and was bleeding profusely from the bowels. The bleeding went on for four days then stopped. The doctor booked with with a specialist who said it would be two months before he could see me so I figured I'd cure myself or bleed to death.
I started drinking cabbage juice and am taking 3 acidophiles daily.and that stopped the bleeding completely. Last night I had a craving for ice cream which turned out to be a bad mistake. The pain was excruciating although I don't vomit and didn't get diarrhea. It looks like the side effects of this super duper lactose cure is permanent because I haven't taken the enzyme for a month now.

-- By justoneofu | Reply | (1) replies | Private Message me

March 6th
2009
9:31 AM

I have been on Synthroid for about five months. I started out on a relatively small dosage- 50 mcg. My Doctor upped me 50 mcg every month after he checked my TSH levels. They started out at 150, and right now they're at a 10. I hate this medication. Im now on a 250 mcg, and my side effects keep getting worse. I have probably lost about a third of my hair. I started to loose weigh, but i don't feel like i really am anymore. I am very moody, and also emotional. I lash out for absolutely NO reason whatsoever. Im hot, cold, but can never find a comfortable temperature. Im always tired, No matter if i just wake up, or if its time to go to bed. He's put me on Celexa, he said i was just depressed. But its not depression. Three months ago i wouldn't have lashed out for something as small as the mail didn't come. I hate to be this way, and i wish i didn't have to take this medication for the rest of my life.

-- By ericaxnicolex09 | Reply | (1) replies | Private Message me

February 20th
2009
12:27 AM

I have taken an oral form of Doxycycline daily for at least a year.
Before, I thought such symptoms were relevant to a fluctuation of bodily chemicals during pubescent growth.
I am now sure otherwise.
During the time between when I was prescribed and today, I would never have known that these things were side effects of an antibiotic.
I'd wake up every morning, take a shower, and feel like I'd vomit if I kept standing. I laid down on my bed and realized I felt way too hot. I'd take off my shirt and lay down in front of my floor fan.......Now, every morning after I take a shower, I stand out in my back patio, 45 degrees, in only my boxers--completely comfortable for as long as whenever.
I have terrible sleep.
I stay up at night thinking too much about almost nothing.
Overwhelming self-conscious thoughts.
Overwhelming.
Sometimes I feel like I have to do simple things manually, instead such movements occurring normally, like auto-pilot.
Walking. A majority of the time I walk, its like my first steps:
bring left knee forward, put left heel down, bring right knee forward.....
Blinking.
Concentration.
Anxiety, paranoia, you name it--
I developed a smoking habit that numbed out all the stress.
I am not quite sure if I was addicted other the occasional crave of a cigarette, but...
Look,
every now and then, because my doxycycline came in the mail, I would have a week or two without it.
I think, antibiotic, right? Doesn't matter right? just like a Vitamin? just take it and whooosh its all good, it does what it does, helps my acne whatever--
during those periods without it, I felt distinguishibly happy and calm and I didn't even crave cigarettes.

As of now, I realize that those were not loony mood swings, and, a multitude of people suffer and have suffered from doxycycline.

-- By gabriel12 | Reply | (1) replies | Private Message me

February 17th
2009
4:24 PM

I am 24 years old and I was prescribed MICROGESTIN FE which is the generic of Loestrin. It was AWFUL! I took Yaz for about 2 months but it gave me such bad headaches I stopped. Other than that I've never been on birth control. That was about 6 months ago. So I started Microgestin and was fine for the first few days. On my eighth night I woke up feeling really nauseated. I went back to sleep but ended up waking up multiple times afterward to throw up. I threw up 4 times that day and had the worst headache ever. The whole day I just layed in bed sleeping or watching movies. It was awful. I was so weak I didn't even go get the mail. The whole week after I was slightly nauseated a lot of the time and really nauseated about once a day. I didn't have much of an appetite and I had crazy mood swings. I would be happy one moment and on the verge of tears the next. I broke out on my chin and cheek, which is really unusual for me. I stopped taking the pills on about day 14 and am so glad I did. I have had a slight period / discharge after that but am feeling a lot better. ~ S. from TX

-- By susanaustin1 | Reply | Private Message me

November 20th
2008
9:20 PM

I had my mirena inserted in March of 2008, after talking to two different doctors and doing a lot of research about my options. I had been on the pill but was really irregular about taking it (which renders it almost worthless). Next I used Nuvaring--a GODSEND when I was in college! I never had to worry about timing and just sent for another three month supply through the mail. I decided to get Mirena when I knew my insurance would end when I graduated. I and 23, and have been in a monogamous relationship for six years which means my risk of contracting an STD which would lead to PID (which can be very very serious when you have an IUD, and the IUD makes it easier to develop PID) is low. My docs also told me the reason they usually only like to insert Mirena into women who have had children is these women's cervixes aren't as tight and closed as a woman, like myself, who has never had kids. This didn't effect insertion for me--it was a breeze after a few ibuprofen.

I've had my Mirena for over 8 months now, and after the first 3 months or so my cramps (which were in my lower back and were very sharp) and my bleeding (which lasted about a month) were gone. I had periods for a few more months..but I have been COMPLETELY period/cramps/bloating/mood swing free for the past 4 months. I'm very happy about Mirena! A little acne, but NOT a big deal. Please remember these posts are almost all by women who have had bad experiences...What about those of us who have had good experiences? Mirena, like any hormonal contraceptive, effects different women in different ways.

-- By jamieu | Reply | (3) replies | Private Message me

November 14th
2008
10:55 PM

Hi, Ive had the Mirena for 2 weeks now and it has been TERRIBLE, I have had terrible sharp pains off and on... I have never had kids but is a contraction like the pain that I am feeling? My doctor suggested that I have it put it since I felt sick with the pill and specially if I am not ready to have a baby yet. I've been married six months now.... I don't know if this will go away and I don't know what to do, the only thing good about this is that my sex drive is much better, lol... but this is terrible what should I do? Should I have it taken out and will it hurt?

-- By svgm00 | Reply | (8) replies | Private Message me

October 23th
2008
9:22 PM

I have been on Seroquel for three days now...tonight will be my third night taking it and so far I've had severe persistent sore throat, stuffy nose ] and my eyes have been so itchy. I'm pretty sure it's just a cold going around but those are also very important side effects and I've already called my doctor about it and he also said it was just something going around. I have noticed I've been hungry, hungry, hungry and I eat A TON already as it is. I'm 110 lbs and I eat like a horse, I always have, even before I started the medication. I'm 5'1" and now I'm worried I'm going to blow up to the size of a house! I can't monitor how much I eat because I eat so much as it is. I do, somewhat, somewhat remember eating a block of cheese last night before bed time. I know why they say to take it before bedtime!! It knocks me out. Which is bad because I have a 17 month old who still wakes up around 4-5ish in the morning. His bedroom is right across the hall from ours and we have his door cracked open an inch and we leave ours halfway open so we can hear him. I am usually a light sleeper but last night I noticed that it sounded like he was across the street, I could hardly hear him. I'm surprised I even made it out of bed, got him and brought him back to our bed without running into something or dropping him. It's scary. It really is. My doctor is giving it to me to treat my mood swings. I'm hoping they don't do diagnose me with bipolar disorder like they've talked about when I was a teen. I have had some tachycardia but I also have a heart problem I was born with that has been pretty messed up for over a week--I started having premature ventricular contractions, but this was before I started the medication. I am actually wearing an EKG-like monitor during the day to record this...this has nothing to do with the medicine but I thought I'd through it in there in case they decided it is. I talked to my cardiologist today and told her I was on this medication. Well, it's about 8:17 here and I need to go take the medicine and hit the sack...goodnight.

-- By tricial | Reply | (1) replies | Private Message me

August 25th
2008
10:02 PM

My mom had Crohn's & just passed away at the age of 44. My mom died from a enlarged heart in which was due to taking Remicade for many years. We started getting stuff in the mail about all the side effects & worst things that could happen. Well it happened all the WORST things you could think of. IF YOU LOVE SOMEONE TAKING THIS MEDICAN let them know what it does !! I'm getting married in October, & my mother will not be there, due to DEATH FROM REMICADE !!

Good Luck to those on it, & try to get off !!

-- By katied08 | Reply | Private Message me

July 31th
2008
3:57 PM

i have been on warfarin since April 2008 when i had a clot in my left leg. since, i haven`t really had much going on until last week. i was rushed to the hospital by ambulance. i got dizzy and had a very cold wave rush up my body twice. when it was over, i couldn`t hear anything and my temples were tingling and my heart rate was elevated along with my bp. the er drs didn`t seem concerned with any thing that had to do with the dvt or the warfarin. their response???????? you drink too much coffee. WELL. i haven`t had a cup of coffee for almost a week, and have also quit smoking. i am still dizzy. my head feels heavy. i get little cool rushes that almost take my breath away, i don`t feel like ME. i feel like someone has taken over the me i knew. my family doctor has done liver, mono, hepatitis, b12, folic acid profiles, all negative. had a ct scan yesterday, normal. having an echocardiogram next week and having a holter monitor put on for 24 hrs to monitor my heart. i have done nothing but sleep since this episode. my husband is scared to death i`m gonna die during the night, he wakes up just to check on me. i haven`t been sleeping very well, as i`m afraid i`m not gonna wake up. i am only 40. i am not ready to let my life go to pot because of a drug that all the doctors insist is "safe". well i don`t know. call me stupid, but if its so safe, why do they kill rats with it????????????

-- By katmarie468 | Reply | (2) replies | Private Message me

July 6th
2008
4:50 PM

I just quit Yaz 8 days ago, was on it for 6 months. I had the copper t iud in for 4 months but the pain and non-stop bleeding was too much so I thought I'd give the coolest, newest pill out on the market a try. First week was awful; headaches, fatigue and nausea, but I knew I had to give it 3 months. First 2 months it really helped with cramps and bloating, but slowly the mood swings crept in. I was very emotional, depressed, random bouts of anger, bloating, cramping, 2 periods per month and spotting, gained 8lbs, uncontrollable hunger, appetite was ridicules. But the reason I felt I HAD to stop taking it was the fatigue, I could no longer do my 6 mile jogs, I struggled to walk to get the mail, I was for the first time in my life a couch potato. Before I began Yaz I was 115lbs, 5'7, have always been very active and eat only 100% organic health food, drink only green tea and water. Needless to say I was in shape, cellulite free my entire life till now. On the 5 month of Yaz I noticed cellulite on my legs!!! I was know as a sweet and very patient lovable girl, NOT ANYMORE! I used to never use bad words, now I use the F-word all day long, I pick fights with everyone and feel sooo angry all the time. I hope sharing my story helps other women understand that it's not them, it's this awful drug. I am going to use the LadyComp for bc, I will NEVER again put synthetic hormones in my body.

-- By angelito | Reply | (2) replies | Private Message me

June 1th
2008
10:44 PM

As a 43 year old male in otherwise excellent health, I've always been opposed to being on meds of any kind unless absolutely necessary. My blood pressure has been borderline for a few years now, and I couldn't seem to get it lower with diet and exercise. So I allowed my doctor to prescribe something. I'm on 20mg of Lisinopril and 25mg of hydrochlorat. I'm glad to have a site like this available where I can be forewarned of side effects. So far, I've only experienced the dry cough, which my doctor warned me about. But it hasn't been too bad. It seems to bother me most shortly after falling asleep at night (because it wake me up). Actually, it seems like a welcome trade-off to the daily headaches I was suffering (I can't believe I haven't had a headache in over a week because I used to wake up with one daily). I've only been on this prescription for 10 days, so I'll continue to monitor myself for some of the potential side-effects that have plagued others.

-- By jcbinabq | Reply | (1) replies | Private Message me

May 29th
2008
6:44 PM

Hello!!! I feel like you people are reading my mail! I have an appt with my doc tomorrow. I've been on the nuvaring for 5 months & have gained 10 pounds (seems to be the magic number!) & have TOTALLY lost my sex drive. And I used to be like Samantha on Sex And The City! I'm praying that as soon as I get off this thing, I'll be back to previously fabulous self! I've also experienced fatigue. Anyone else? What gives?!?!

-- By austinmama | Reply | Private Message me

May 3th
2008
8:10 PM

My mother started taking Ambien CR around a year ago about this time last summer. Almost immediately I noticed a severe change in her mood and demeanor. She started experiencing tremendous mood swings, delusions, paranoid and aggressive thoughts, sleepwalking, eating and others activities while asleep and waking up not remembering a thing. In a matter of 4 months she had totally lost the ability to think or care for herself. Her house was about to be foreclosed on because she hadn't paid any of her bills in 4 months! Not only that she had been throwing away all of he mail and business information so even when I tried to take over the finances I couldn't because there was no paper work left to find anywhere in the house. To top it all off she was going through the process of preparing for a surgery on her back that she had been waiting for almost a year.
The surgery was supposed to last a few hours and then she would have to stay in the hospital for 1 week for recovery and then do a couple more weeks of rehabilitation. By this point though she had been taking the Ambien every night for about 5 months and at 2am about twelve hours after surgery I received a call from the hospital saying that my mother was catching a cab home from the hospital and had signed herself out against doctors advice. They also told me that she was having paranoid delusions that people were watching her from the parking lot of the hospital and that the hospital was trying to overly drug her up. My mother confirmed these statements as the security guard handed her the phone to try to have me persuade her to stay.
She couldn't remember anything or do anything and her delusions were getting worse. One evening it got to the point where the delusions combined with her back pain sent her by ambulance into the emergency room. While going thru intake she couldn't even answer basic questions like her name and age with out prompting from me to have her answer. This brought up a huge response from the intake nurse who asked if the only reason for the visit was back pain or if something else was wrong. She was then transported to a crisis center for an evalutation, which made her mood severely extreme she became verbally aggressive defensive and paranoid. Before the crisis center could even complete an evaluation they had to come and ask me about her basic medical history because she couldn't even correctly give them that information.
After they finished the evaluation they came to the conclusion that my 49 year old mother either had schizophrenia or dementia! These two mental disabilities do not just manifest themselves in people who them and their families have no history. The interviewer, staff, and doctors were at a complete loss and had no idea what was going on or creating my mother’s mood swings and bizarre behavior. They tried to threaten her to get her to sign herself inpatient saying that if she had come back again she would not have a choice but that didn't work. State law requires that only a person that is harm to himself or herself or someone else can be admitted into an impatient crisis ward and since she had made no such threat nothing could be done.
I started to talk to her doctors finding out that they were noticing the came bizarre behaviors that were not present before and accumulating a list of medications that she was on. After fully investigating the possibility of a drug interaction between the medications and the possibility that she was experiencing psychosis and finding out that that again was not the cause I became even more discouraged and frantic. Then I started to talk to some of the students at my college and found out that they were also experiencing the same problems either in their own lives or with their loved ones the only commonality between the collections of people I talked to that were experiencing the same problems was the drug Ambien. I immediately called my mothers doctor and he advised me that must be source of the problem and for her to stop taking the medicine. It took about 2months for my mothers’ mental state to return to normal but it has taken over a year and a bankruptcy to clear away the damage that Ambien had created in her life.

-- By tlcsheart1512 | Reply | Private Message me

April 30th
2008
10:45 AM

I discovered this site last Wednesday morning - without taking the time to list all of the grief I felt reading through the pediatric postings, I will briefly note my 4 year old daughter has been on Singulair for 2 years now. What I now realize is all the behavior issues, night screaming, etc. are so easily dismissed as stages of a toddler. She has suffered (as well as our family) every symptom and behavior listed by parents on this site with the exception of leg cramps.

Our entire family can see the dramatic results since taking her last pill last Tuesday night. The melt downs and tantrums are all but over, she even commented "hey, I listened right away" on the second day without Singulair. She is still having night terrors - I call them that because they are in no way a dream or nightmare, but rather agonizing moments that break our hearts to hear. I hope those will soon go away as well so her sleep pattern results in a restful night.

Am I angry that we have all suffered for 2 years only to find we have been basically poisoning her? Am I angry that for the 2 years her dad and I have sunk pretty low, feeling inadequate as a parent to teach and discipline our child? Am I angry that after 20 years of marriage, raising a great 16 year old in the midst of all this, we were to the point of the ADD, bipolar, etc. theory that would have been misdiagnosed? Heck no, we are all so thankful to have come across this site and are so giddy and excited to be happy again.

What I am angry about is this - when I called our pediatrician last Wednesday and relayed what I had seen on the Merck website for side effects added in recent months she had not heard this information and asked where I saw it. At that point I had not seen this site. I asked her how is it the well dressed pharmaceutical reps come in with doughnuts, exotic trips, etc. to market a drug with "ABC" treatments and "XYZ" side effects, continue to market the drug and never update the doctors when original selling points are altered - ie; new side effects.

The FDA website is troubling for two reasons: Merck is in charge of their own investigation regarding recent complaints and the FDA expects this to take 9 months. Gee, who gets to investigate themself? Secondly, in February the site notes the FDA and Merck are trying to find the best way to communicate the concerns being investigated to prescribes and patients. HELLO - we live in a world of real time, instant communication methods, two examples being the United States Postal Service and an internet connection.

Today is April 30 - a full two months after "trying to decide how to pass this information on" and my doctor, nor my pharmacist have received any information. Apparantly since we missed the story and coverage on Dateline we are out of luck.

I plan to start from ground zero to get our voices heard to change the way, or the law if you will, to implement an immediate communication link between the FDA and prescribes when an investigation such as this has been initiated. I realize Singulair has most likely benefited more humans than it has destroyed while on the drug and the FDA would have to clearly not communicate "panic". However, when a drug is used for pediatric treatments we need information quickly to assess on behalf of our children. In my case, since my daughter had been on the drug since 2 years old, I do not know what her "normal behavior" should be as that is the age they start to develop and show personality. Additionally, when enclosed prescribing information is updated with a prescription -MARK IT IN RED, "UPDATED INFORMATION". I read every ounce of information that accompanies a new prescription for any family member. I would NOT, however read the information every 30 days for an ongoing, long term prescription over the course of 2 years.

I am looking for anyone that may have started contact with a congressional representative or otherwise to change the communication to our doctors. Please note - I am in no way interested in any legal action regarding Singulair and our nightmare. We are moving forward and do not wish to live the nightmare one moment more. I simply want to see our doctors and pharmacists have vital information as it happens.

Thank you to all for sharing your experiences - I truly believe it is changing lives and making a difference. I am personally telling everyone I know about what is happening with our child and all of yours. Andy by the way, by telling one of my long time friends our amazing discovery, she realized she had been suffering from depression for some time and chalked it up to various things going on in her life. She had her last Singulair last week and feels tremendous! So keep the word going!

-- By rlcoffin | Reply | (5) replies | Private Message me

April 13th
2008
10:18 AM

I had the Mirena coil removed a week and a half ago and let me tell you I have had the worst week ever!!
My reasons for getting it removed were the same as most people, very bad mood swings,always snapping at my boyfriend, depression, always bleeding, severe stomach cramps all the time, anxiety, hair loss, low libido and the list goes on... I never had any of this before the mirena.. I never realised the mirena could of been the cause until I decided to google it one day and found thousands of women had the same symptoms, everything then made sense...

I made the appointment to get it removed and immediately started taking Vit B6, Primrose oil and I have ordered 5HTP on the internet cos I cant find it anywhere... day 4 I started getting very bad anxiety and horrible suicidal thoughts, I have always been a happy person and couldnt understand what was happening to me... the whole week at work was a blur and each day was a struggle to get through.. I was continuously crying and I had these horrible thoughts in my mind that wouldnt go away!! it has been a nightmare.. its like they are stuck in my mind and I cant think of anything else but these horrible thoughts! (The weird thing is I had the same thoughts when I had the mirena inserted 2.5 years ago but they werent as bad as now and they eventually went away) I saw my doctor on Thursday morning and explained these problems and she prescribed me valium tablets to take away the anxiety... later that afternoon I had a anxiety attack and landed going back to the doctor because of these horrible suicidal thoughts in my mind... My doctor reffered me to a phyciatrist which I saw yesterday, I have never had to see anyone like this before so it was very scary for me... the shrink I saw said that there was no ways the mirena could be doing this to me.... she gave me more valium for my anxiety and now I have to see a special therapist once a week until these thoughts are cleared from my mind!
I find it very strange that all this started 4 days after my mirena was removed! I know this is all happening because of the mirena, the only thing that is keeping me going is reading everyones posts and knowing that this will go way once my hormones settle, I know im not going crazy even though it feels like I am!!
Every doctor I have spoken to will not agree that the mirena could cause any of these side effects! It makes me so mad that so many women are going through this and the doctors think the Mirena is the best thing since slice bread! How can they have no idea!!??
If anyone is thinking of getting the mirena.. DONT DO IT!!!!!!!!!!!

-- By tarryn | Reply | (15) replies | Private Message me

April 1th
2008
9:24 PM

I have been on seroquel since july 2006.I take 200 to sleep at night, although in times of stress I add 25mgs pills as needed, and I also take effexor xr 37.5 and 75.First, the good effects- the combo got rid of the crazy highs and deep dark despairs of the lows.It got rid of the compulsions,the anxiety, social phobias lessened,unbidden harming thoughts, and the ocd rituals, and delusions...So it has been a real lifesaver for me.Now, on to the side effects.
I have gone from size 12 to size 16. thats a lot! I know its the seroquel, cause and effect. I got a foot infection from trying on shoes at the outlet mall-(never again) although I have never ever had one before, and i am 55.Guess what- I am still getting flareups of infection 2 1/2 years later! And isnt that a diabetes sign? The rest of the side effects are somewhat helped by drinking water. The side pains,occasional digestive issues, dry mouth, snoring, nonexistant sex life, confusion, memory issues,and the need to consume, and consume, food, are all there.Ive been existing on samples of these meds, but samples are no longer available, and the cheapest price for my meds as above is just over $800 per month.I cant possibly pay for thisI would be happy to take something else that didnt have side effects, and cost less, but what?

-- By flowergirl | Reply | (5) replies | Private Message me

January 10th
2008
11:37 AM

I've had my Mirena for about 15 and a half months and I am having it removed today at 2 o'clock. At first I had sharp pains when I would sit down and I felt like the cords were poking me and irritating me. My OB/GYN requires patients to come back one month after having it put in so he can check it and make sure it is still in place. At this visit he also trimmed the cords although he acted like he didn't believe me when I told him that I could feel them poking me when I sat down and that it hurt. At first I didn't notice any bad side effects, but I did have one good one: my periods stopped, but I still had occasional and sporadic spotting. I didn't think to look for any bad side effects because I got the device under the impression that it had no bad side effects. I thought it only had a rare complication of perforating the uterus, but since mine was in place at the one month check, I didn't think about anymore until I started thinking about having another baby recently. I went online to see if I had to have a doctor remove the Mirena or if I could do it myself, and I found out that it's best done by a professional because bad things can happen and then you'd have to go to the doctor anyway. Plus, I didn't want to hurt my chances of having another baby. While online I discovered this whole world of message boards where women were having a lot of the same problems I'd been having in recent months and they all blamed their Mirenas. Some claimed that their problems had gone away since having it removed. I never thought to link my circumstances to the Mirena, but when I saw how many women are having the exact same problems as me I knew that I needed to go ahead and get mine out ASAP. Here is a list of my side effects, and I've found other women have had them as well with Mirena: weight gain, bloated stomach, depression, short temper with husband and daughter, acne, low sex drive, spotting, cramps, constipation, and back pain. There may be more, but I can't remember them all right now. Some of them may not even be related to the device, but I've read of so many women with Mirena who are having or have had the same issues, so I suspect a link between my problems and Mirena. I hope this helps someone out there looking for answers. God Bless!

-- By melathome | Reply | (56) replies | Private Message me

November 27th
2007
2:21 AM

PLEASE READ BEFORE TAKING LUPRON DEPOT:
Hey there, I just thought I would add my experiences with the drug for everyone. I am a 25 year old with stage IV endo. I have already done a Laparoscopy and removed some of my endo. Started the Lupron on a six month treatment. My doctor said I would probably lose my period in a couple of months... well, I was due for my period two weeks after first shot and I didn't get it. I didn't have a period from then on.

This drug is great for only one thing: pain removal. It's been great for this aspect. I was in SO much pain that it was unbearable, but the Lupron Depot shots REALLY helped with this. No pain whatsoever.

HOWEVER:
Side effects: Wow...these are extreme!

WEIGHT GAIN:
Now, I am a very healthy person. I was a college cheerleader and in shape. I eat well and exercise very regularly. This did not help one bit after taking the shots! Within six months I have put on 30 pounds!!! And this is even though I am still exercising more than ever and eating amazingly! It just doesn't seem to matter.

HOT FLASHES:
My hot flashes are severe. I carry a fan with me everywhere I go--and use it all the time. They can come on me so sudden. Sometimes they are based on emotions (e.g. if I get nervous or excited or sad...they come on really strong).

NIGHT SWEATS:
Um, yeah...it's gross. I keep a fan on my face, the window open, barely any clothes on, no covers...and I still sweat!!!!!

INSOMNIA:
I have not had too many good night sleeps since I started the shots. I will say though that as long as I am kept cool through the night then I have a better chance of sleeping well

NAUSEA:
It's strange, but I never get nauseous...not even from motion sickness, but I have been starting on the last shot of the treatment. It was so bad that I would throw up!

One last thing, I tend to have a messed up equilibrium a bit. Seriously, I find myself walking crooked all the time!

On a whole the best I can say is that this drug makes you feel like it's not really your body. I kind of feel like my body has the flu or something.....it just feels weird and strange all the time. You can tell your body is all screwed up.

Other than that I haven't had anything else.

This drug is GREAT for pain removal and it's also nice to not deal with a period for a while, but the other side effects are so horrible that I would rather deal with the pain.

I just pray that the weight I gained will come off after the estrogen returns to my body....

-- By sunshinekiddles | Reply | (1) replies | Private Message me

November 25th
2007
3:46 PM

I am a 26yr-old, another victim of Yasmin.

My story's gonna be a bit long, but hope you can bare with it.
Please also forgive me for my incorrect grammer as English is not my mother tongue....but I hope I can get my message across to all of you.

Here it goes!

Ever since I had my first period at a late age of 18 (I was anorexic and severely underweight btw the age of 14-15 when I was supposed to start my mensus had I been healthy,,,,), my mensus had never been regular.

I only had about 3 full-fledged mensus per year, with occational spotting.
Apart from that, I was a happy, bubbly, cheerful lady.
Nevertheless, worried about the side effects of "not shedding", I made my first visit to the gyn.

The Dr. ultrascanned me.
Both my uterus and ovaries were normal in size.
She ran a blood test for my hormones and thryroid level.
They both came out fine.

So then she recommended me to take Yasmin, which will help to regularise my cycle and "shed" all the accumulated lining.

I was quite happy during my first box as I lost my water weight, and my skin cleared.

But then the nighmare began......

Half-way thru my second box, I suddenly became sooooo depressed.
Sure, I did have some ups and downs prior to taking Yasmin, but the ones I'm experiencing while on Yasmin is just beyond anyone's imagination.

Prior to taking Yasmin, I was confident with myself, which I believe made me an attractive person.

HOWEVER, ever since the onset of depression, I seem to have lost all the confidence in me.

All that "self-esteem" I used to possess is now GONE.

I feel so insecure about myself, and don't feel good about myself even when I'm in my favourite outfit.

Before Yasmin, I was so easily "turned-on" !: listening to my favourite tune turned me on, watching drama with my fav actors turned me on, thinking about what to have for dinner turned me on.... just about any thought was enought to mass-produce dopamine in my brain.

But these days, none of these make me happy.
Nothing makes me happy, but anything can make me go DOWN.

I've been off Yasmin for 5 days now.
I do feel slightly better than 5 days ago.
But I'm suffering from elevated heart beat around midnight, which is making me insomniac.

But my biggest concern is ;

WOULD I REGAIN THAT "GLOW" IN ME?
WOULD I REGAIN MY CONFIDENCE?

Also,

Is taking Evening Primrose Oil beneficial to regain my peaceful hormonal level?
Can I start taking EPO directly after stopping Yasmin?

By the way, I notice that I look older (as in aged) ever since taking Yasmin. Does BCP make you age faster? Or am I just imagining things out of depression?

PLEASE HELP....

Thank you for spending your time to read my story,,,,,,

-- By annak | Reply | (1) replies | Private Message me

November 17th
2007
10:32 PM

Hi, I am 26 year old mail, I received an "injection" of "kenalog" about 5+years ago. I hate to say but the stuff is still affecting me. I am not lying or exaggerating I am telling the truth. I am totally logical and don't imagine stuff plus all the side effects and everything is totally obvious you don't have to be a genius to figure it out.
Insomnia
Depression
Anxiety
Nightmares
Hairloss on head Hairgrowth in nostrils and arms
Tiredness
Muscle wasting and weakness.
Irregular heart beats/ heavy heart beats
Swelling of the throat/ sinus'
Fatigue
Disorientation
Itching on the body especially the neck
Acne
Divets or small holes in face and nose now I look bad.
Slower reflexes.
Stomach problems
Other side effects that I am not willing to list
Discoloration of the skin
Probably others I haven't remembered

I would just like to say I feel bad for ANYBODY who has had this happen
to them. And I think the nurse might have gave me a way higher dose
than normal because the side effects have been so far lasting.
If there was a way to broadcast this to more people I would. Don't get a
kenalog injection whoever you are. I am going to try chlorophyll as another person mentioned. I do believe there is a God and do believe he will wipe out all suffering on earth in the near future. If you are suffering please pray to God his name is Jehovah and pray in the name of his son Jesus and He will hear YOU. Revelation 21:3,4 "  With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them, and they will be his peoples. And God himself will be with them.  And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.” "

-- By cbentley | Reply | Private Message me


 

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