Mainstream doctors symptoms and conditions

I was put on synthroid a year ago, due to a tsh level of 87. I pretty much felt better right away after taking it. First I took 50mcg and then it was upped to 100mcg. Everything went well until I had my latest tsh test. The level was going up again (tsh 5.4) so the doctor decided to put me on 125mcg. After about a week I began feeling like crap. Slugglishness, tiredness, muscle pain, joint pain, and it became progressively worse. I have an appointment coming up thank god. In the mean time I read 3 books on thyroid and it was mentioned that most people don't benefit from just taking T4 (ie. synthroid), despite the fact that the pharmac. and some docs say that body breaks t4 down into t3.
Some people's body cannot successfully break it down enough, some are cellular resistant to thyroid hormones, and those people absolutely need t3 in order to not develop Hypometablolism. The cell need the T3 to function. But unfortunately one can be hypo and still have good TSH levels, because this particular test only tests if there is enough T4 in the body.
Unfortunately, it's so hard to explain that to mainstream doctors.
One doctor I read about said it right: Don't just treat the test results but also the bodily symptoms, for everybody is different anyways. Just like our finger prints are unique, so is our hormonal metabolism.
I'm going to try to talk to my doc about this, but if he doesn't listen I will look for another doc until I found one that will. Good luck to all in this hormone jungle.

I've been on synthroid now for about a year. My dosage is VERY little (0.075). My doctor keeps running blood tests every 3 months and assures me I am within the "lower-end" of the norm, but I still feel tired, sleep deprived, wake up with night-sweats and I keep gaining weight...

I am only 24 and have just been told that I need to take this medication for the rest of my life, it\s pretty depressing. I keep asking if there are other ways to lose weight and feel more energized. He tells me that I need to keep taking this medication and has put me on a "sleep hygeine" routine where I go to bed and wake up at the same time every day.

Does this "disease" mean I will always be overweight and tired for the rest of my life? I would like to know if someone else with more experience with this medication can give any sort of advice? Feeling a little hopeless about it and not really interested in complaining to my doctor anymore.

Thanks:)

Hello All,
I'm responding to Silke's post(attached below).

Silke,

I found that "mainstream" doctors that I went to or spoke with were unable or unwilling to help me.Which is why I SPECIFICALLY did a search for a NATUROPATHIC endocrinologist. Please don't take this as a "blanket" criticism of all doctors. Some are more helpful than others. My current doctor has been incredibly helpful. I have had 2 periods since starting the hormone replacement cream 1.5 mos ago. I'm 49 and hadn't had a period in more than a year; I thought I was finished! As for the dehydration, it was explained to me that my adrenals were totally stressed out, and even though I drink a LOT of water, I was unable to retain in(even though I was bloated!) There are many supplements that can be taken to get your adrenal system under control; remember, they're hormones, too!

As for MY weight gain, he told me it won't come off on it's own, but with the continued supplements and hormone cream to get all of the hormone levels balanced out, it will start to kick in(soon, I hope!)

I simply did a search in my metro area for "Naturopathic Endocrinologist". Fortunately, this doctor was recently listed as one of the Top 100 Doctors in my region. I feel truly blessed to have found him. Write me directly and I will supply his website, which contains many helpful articles.

Blessings,
Rita
PS - I hope I answered all of your questions!

Hey Rita!!

Thank you so much for your post!! That sounds very interesting and could be a solution for many of us. But I'm really afraid of perhaps again not finding the right doctor, who finally admits that our problems (I'm off Yasmin for over 1 year now, and still not 100% back to normal life......) are connected and brought on by Yasmin...

Exactly as you told, my gyn told me last year around july (had a blood test done there) that my hormone levels are "pretty" normal, though they were at the edge of what's normal (totally low)..... But I know, that this is already enough (hormones at the edge of being too low) to cause severe problems!!

I feel a little encouraged now to go and search again for an endocrinologist who could perhaps help me, too. I also have to mention, that I still didn't get my period. I had only one normal period around easter 2005 after getting off the pill!! So there definitely IS a connection between my still lasting symptoms (sometimes dizzyness, a little anxiety, a little weakness and so on, though everything much lighter as it was last year!!!) and my hormone levels, which are obviousely still messed up.

Did your doc tell anything further about that dehydration and the effects of that diuretic in Yasmin?? I would be so thankful to hear, if he thinks that this stuff could have caused my very heavy muscle weakness and muscle aching during the last year (has eased up but is STILL not completely gone!!).

Well I think that the dehydration brought on by that diuretic is on the other hand causing a heavy loss of vitamines and electrolytes. That could be an explanation for the fact, that in my case (I guess many other women would say the same) the symptoms slowly increased over the years and always got a little worse while I had some illness like a flu or such or while I was working out (because of the sweating)...

Over summer 2004 I got weaker and weaker and after a heavy cold with fever and sweating over 3 weeks in october 2004 i broke down completely with muscle aches, weakness and dizzyness and many more symptoms......

Sorry, if my posts always get that long, but I'm still searching for reasons of my severe illness I've been going through and which has lasted for over 8 months (that were only the hardest months... There were another 12 months where I didn't feel really fit and already had problems....) and is still just very slowly getting better...

God bless you all!!

Silke