Mals symptoms and conditions

I've been on Topamax for almost a year. I've had auras for years which were misdiagnosed as hypoglycemia episodes, then started having grand mals after detoxing from alcohol (I'm sober now), continued to have them in sobriety (I guess I messed up my brain from alcohol). I tried Tegretol but it made me groggy. Anyway, a few months into using Topamax I stopped sweating completely and got the numbness and tingling in my extremities, which drives me crazy. I also have trouble with urination, I've been put on water pills. I live in a desert climate and during the summer had bad problems with overheating, had to drink so much water that I had trouble with water retention and my electrolytes got messed up. I had no idea that it was the Topamax--the doctors put me through multiple blood tests, I discovered it might be the medicine by doing my own research online. I'm tapering off Topamax and trying the Low Glycemic Index Treatment to see if I can be off meds and not have auras because I don't want to be on seizure meds if I can help it. The withdrawal is pretty bad--anyone else have the problems with no sweating and wicked withdrawal?

I have been on Topamax for a few months now. I can't remember exactly how long because, to be quite honest, I have the memory of a gnat since starting this medication. My neurologist prescribed this medication for me after I was finally put on medication for grand mals seizures. I had been having them sporadically since 1999. I also suffer from migraines and he said it would help with that, my weight and my depression. It sounded like a wonder drug until my dosage kept increasing up to the 300 mgs. he needed me to reach.

I became a lethargic, depressed and very detached, angry lump to describe myself best. I have had a difficult time doing housework and everyday activities like playing with my children. My depression was first improving but it took a turn for the worse and I have found myself feeling suicidal at times. I have suffered breast pain so severe I had to have a breast ultrasound done. Nobody ever told me that breast pain could be a side effect in women. My menstrual cycle has also been unpredictable as well since starting this medicine. I called my neurologist's office in inquire about this and they were unaware about this side effect.

My mental clarity is totally gone. My memory is so bad I have missed doctor's appointments for myself and my children. I have to write things down everywhere and have my kids remind me of things instead of the other way around. I find myself trying to form a sentence at times and it comes out like gibberish.

I stay on the medicine because my five kids were witnesses to my last seizure and it scared my oldest three so much they remember it as if it were yesterday. I made them a promise it would never happen again. The last medicine I tried left me with bruises all over my body and unable to get out of bed. If left with having to choose between the two medicines I have to pick Topamax. I can't be a guinea pig anymore. My kids need me to keep my promise and I have vowed to do so. If you could see what I deal with every night when I put my daughter to bed you would understand. She says she is afraid to leave me to go to asleep because she is afraid I will have another seizure. Being on this medicine is the reassurance I offer her to prove that everything will be okay.

I spent years on SSRI's trying to fight anxiety and depression and I suffered horrible side effects so I am at the point that I am willing to settle. Currently my dosage has been cut down to 250 mg. and my rage is pretty much gone. I am still depressed and somewhat lethargic. The good news is that I did lose 30 lbs. since starting Topamax. Unfortunately, Topamax doesn't do much for me in the way of migraine relief. Since my seizures are sporadic I honestly don't know if it is even controlling those either. I am keeping my fingers crossed.

My heart goes out to all of you taking this medication. I know how you feel right now. If you are lucky enough to get off of it and are able to find something else less stressful on your body then that is great. If you are in my situation and you feel as if this is as good as it gets, well, at least you know you are not alone. I know now that there are alot of us out there. I am not sure how much consolation that really is but it is something I suppose.