Mastectomy symptoms and conditions

I was diagnosed with ILC August 2007. I had bilateral mastectomy w/ reconstruction, chemo and started Tamoxifen. Then I had a hysterectomy and I started Aromasin about six months ago. Prior to starting Aromasin I had some muscle and joint pain from Tamoxifen but I could tolerate most days. Three months into Aromasin, I couldn't get out of my car. It literally took me 15 minutes one day and I had to trade cars with my daughter. Naproxen gave me upset stomach, ibuprofen wasn't enough, Tylenol wasn't enough, Hydrocodone kinda helped but makes you feel weird. My doctor decided to take me off of it and i haven't taken anything since. My side effects were: extreme stiffness, better with motion but joint pain was so bad i didn't want to move. I have been documented as having overall generalized weakness as a result. My doctor said Aromasin shouldn't make me feel this way but why is it doing this to everyone else (mostly) too? I am now being evaluated by a rheumatologist for arthritis. My joints still hurt so bad. I gained weight, cant concentrate, can't sleep, can't wear my shoes. my ankles hurt the worst after being on my feet. My ankles, knee joints, hip joints, neck, elbows, wrists, fingers, toes and jaw are all very painful now.
If i would have known all of this, i never would have had my hysterectomy and stayed on Tamoxifen. I can only hope at some point this will get better. I just pray the cancer doesn't come back in the meantime.

Fatigue, flashing in the left eye, worsening migraines:
I have been on Arimidex since July, 2007 (after lumpectomy in January 2007, chemo, a mastectomy in same breast in August, 2007 followed by radiation) and seemed to be tolerating it quite well, except for the fact that I wanted to go to bed at no later than 9PM every night.
Recently, however, I had noticed retinal problems in my left eye (could also be a result of my nearsightedness and my age --61) and worsening migraine attacks which I could not relieve completely with my usual medications. I did research on Google and found that Arimidex could indeed lead to worsening of headaches and perhaps lead to retinopathy as well.
This morning I decided not to take the pill and called my oncologist's office to find out what he thinks about stopping it for a while.
I have also made an appointment with a neurologist since I haven't had a brain MRI since 1987 (to rule out other causes than migraine for my headaches).

My 89 year old independent mother-in-law started low dose Arimidex after mastectomy 6 months ago. She experienced sever bone/hip pain (requiring a middle of the night ER visit). She was advised by the oncologist's office to discontinue Arimidex. Several weeks after stopping the Arimidex she began to have night sweats, becoming increasingly severe.. She is uncomfortable, to say the least. Is this truly a side effect of stopping arimidex? Have others experienced this side effect post arimidex? Should we look into some other cause?

I had a thyroidectomy on 4/16/08 and started on the generic synthroid right after that. The reason for the surgery was nodules and pre-cancer cells( I have had breast cancer and mastectomy 12/06. Since starting it, I have had swelling all over my body and was wondering if it could cause it. Since reading all these blogs, I see it is probably the cause. I am taking 75 mg and was wondering if maybe it's to high a dose.(?) I don't go to my Endo for a month but was planning on calling him tomorrow to see if I can half the dose until I see him-Is that a good idea or should I increase it? I'd appreciate all replies. Theresa

I'm glad I thought to check to see if Wellbutrin might be causing my hair loss. I had some natural thinning at my temples before and started using Rogaine for women with great success. Then after my mastectomy and breaking up with a guy I went on Wellbutrin. I am currently taking the 150mg three times a day. I am losing so much hair it's scaring me. It comes off my head all day long. Like others have said I also have a handful in the hour, another handful in my comb and then it just continues to jump ship all day long. I have lost at least half of my hair.

started Levaquin 2 weeks ago for pneumonia & pleurisy (had been prescribed 5 day kpack but that didn't work). after a couple of days started the insomnia, joint pain in left elbow, knee & hip. then started having problems walking, dizzy, nausea, headache, called my docs and they had me come in. they sent me to emergency room to make sure I wasn't having stroke! no stroke, but stopped Levaquin (it was helping my pneumonia) and switched to another antibiotic. my side effects were not going away, though, and the night before last I took a vicodin. DO NOT TAKE VICODIN! woke up crying in the morning and could not lift my arms cause of the pain. my husband had to hold a glass so I could drink water to take pain meds. couldn't even type! I did go to acupuncture, and last night I took Advil pm (2) and today slept till 2pm! I feel MUCH better, though side effects still not gone. I am mid 40's, fairly healthy, (had breast cancer last year, though, w/mastectomy & chemo, and had radiation for hodgekins in my early 30's) so my immune system is a bit weaker than most, but I get around and am VERY active, so this threw me for a loop. any advice anyone? gmf

I have been taking Levoxyl for 1 1/2 yrs, I had my thyroid removed due to severe hyperthyroid. In the past year, I have been getting pains and weakness in my hands. It is so bad now, I can't open a jar or lift a frying pan. It hurts sooo bad. My legs hurt and my knees have real bad joint pain.
The funny thing is, it's not every day and not always both knees. It is however all the time in my hands. Last week I went to an Arthritis specialist in San Antonio. He ran every blood test avail. Tested for Rhum. arthritis, Lyme disease, AA, and all kinds of stuff. He x-rayed my knees and injected cortisone in my knees and hands. - that hurt -
He found nothing wrong!
I searched on line tonight for "Levoxyl and joint pain" and this site came up. Boy am I glad I am not the only one who is questioning this horribly possible side effect. Oh, I also have memory loss. I feel like I am 80 yrs old. Just to make sure you know what type of person I am, here goes: I am fit, active, 37 yrs old and 115 lbs, I eat well and take vitamins, non smoker, non drinker.
On Monday, I am calling my doctor. I am printing this web site and all of the postings like mine. There must be something I can be put on that will fix this. Can anyone tell me if they have no Thyroid and have gotten off this stuff; does the hand pain stop? Does it get better or is this permanent damage?

Kerrville TX

My Aunt is 61 and had a one sided Mastectomy in January of this year. She had been suffering for about 8 years with the menopause (she took HRT for 18 months a few years back). She was told her cancer was hormonal and once she had the tumour removed (behind her milk gland) she was advised that she didn't need any chemo or radiation. She had 6 lymph nodes taken and all were clear. She was originally put on Tamoxifen for 4 months and then switched to Arimidex. She has suffered with hot flushes and extreme coldness (she had this beforehand) but has increasingly suffered with very painful indigestion/heartburn/acid reflux or possibly IBS. She has tried all the over counter indigestion medications to no effect. Is this normal? I am trying to get her to go to the DR about it - but she is very apprehensive. Is there another drug she could try other than Arimidex and Tamoxifen? Are these stomach problems normal? I would also say she seems to suffer with depression and tiredness. She doesn't sleep well because of the hot sweats etc. She also bloats out quite a bit and is still numb from where they took the lymph nodes under her arm. She also says her scar gets sore. Her mastectomy was Jan 3, 2007. She obviously didn't have reconstruction and doesn't intend to.

Is there anything I can get for her to make life easier? I am at a bit of a loss as to how to help her. Any thoughts would be very much appreciated.