Mcg symptoms and conditions

After a year and a half of synthroid because of removal of my thyroid for cancer, I feel worse than I have ever felt in my life. Many tests have shown that there is no recurrence of the cancer. I would think I had fibromyalgia if it weren't that I read the blogs from other sufferers like me. I now take 150 mcg on most days. Some days I have to cut it down or skip it because I just cannot bear the body pain, weakness, brain fog, constant awakening in the night, severe cramping knee and leg pain, and muscle aches (there's no word strong enough to describe this pain -- 'aches' just doesn't do it). On the days I don't take synthroid I begin to feel like my old self. But my old self was 40 pounds thinner and losing. My old self walked three miles a day and hiked into the back country with my son. And my old self felt energetic and woke up every day with happy plans. Now I feel like an invalid. Some days I can barely walk. I cannot stand for longer than 5 minutes. I have tried cytomel, unithroid, and armour with varying problems. Synthroid is all that is left. Those of us who are dependent on this drug really need some good research on its effects. And we also need compassionate physicians who do not dismiss our pain and, it is not overdramatic to say, suffering.

i have been on 137 mcg of synthroid after a total thyroidectomy 1.5 yr/ago. i have since gained 40 lbs...am fatigued and irritable...have severe pain in both of my feet...and my hair is falling out by the hand full. i am 43 yrs old and had hopes of conceiving a child with my husband...but have had no luck for the last 6 months. i am interested in meeting with a holistic doctor that is willing to listen to my symptoms. my physician now is only interested in my blood leves. will someone recommend someone in san antonio, Texas?

I have been taking Vagifem 25 mcg for about 3 months (about every other night or 3 times per week). I am starting to have chest pains. It feels like what might be angina, though I have never had chest pains in my life before. The drug information enclosed with the prescription does say that chest pain can be a rare but serious side effect. Anyone else had this side effect?

I've been on the same dose of Levoxyl (118 mcg) for 11 years and I have none of the side effects that have been described. My mother and grandmother also have hypothyroidism, but my mom take 110 mg of synthroid, also prescribed by the same doctor that prescribed me. When I was in the 4th grade my thyroids swelled to the size of golfballs, so much so that you could see them when my head was up, and I was extremely tired and had hot and cold flashes- scary for a 10 year old! My doctor recognized it immediately, and put me on Levoxyl. About a year ago, I gained 15lbs for seemingly no reason, but then this summer I lost about 20lbs. The only difference was taking the medicine 1 hr before I ate anything. I saw someone said that after taking the medication she would get hungry, which I also have, but this makes sense, because Levoxyl is in essence trying to up your metabolism and by doing this you are burning more calories and thus become hungry. If you let this hunger pass, about 20 min later you are no longer hungry and feel great! I still get slight hot flashes, but not too noticeable. I would recommend just as other on here have, that the dose that your doctor may give you may not be 'your' number, and to give it time. If you change your dose, give it 3 months, not 5 days like I saw above! If you have to wait 6 months for 2 dose changes isn't that better than hurting your whole life? GOOD LUCK!

IN FEBRUARY MY DOSAGE OF SYNTHROID WAS CHANGED FROM
100 MCG TO 200 MCG ... I AM WONDERING IF THE MAJOR CHANGE COULD HAVE MESSED UP MY MENST. CYCLE BECAUSE IN APRIL
I FOUND OUT I WAS PREG . AND DID NOT HAVE SEX ANY WHERE AROUND THE TIME OF MY USUAL MOST OVULATION CYCLE ... IN FACT BY THE ULTRA SOUND THAT WAS DOWN THE DOCTOR TOLD ME THAT MY LAST PERIOD WAS ACTUALLY LATER THAT I TOLD THEM
NOW MY HUSBAND IS ACCUSING ME OF CHEATING ON HIM
BECAUSE HE WORKS OUT OF TOWN AND WAS NOT IN TOWN
WHEN I SUPPOSEDLY GOT PREG I KEEP TRY TO TELL
HIM THAT MY MEDS PROBABLY MESSED IT UP

Ive been on synthroid since Saturday august 23rd and I noticed Im more nervous like I want to climb the walls and im sweating profusly. I have lost over 100 lbs since February and I had blood work done on tues august 19th and the doctor put me on 25 mg. Im suppose to go back in 6 weeks and get my level checked again but Im going to call the doctors office tomorrow and tell them what is happening. If this is what is going to happen Im not staying on it. Im only 42 and I am battling deg.disc disease which hurts enough and sciatia.

Just switched to synthroid 88 mcg after 8 yrs on Armour. My doctors found an ugly mass on my right thyroid and rushed me to surgery, certain it was Cancer: it was just an ugly goiter..now I have to take thyroid meds the rest of my life. :(

It took a year to get me regulated on Armour and I gained 30 #. 20:20 hindsite. I thought it was good and natural too... for 8 years

BUT here is an FYI: NOBODY TESTS THE PIGS. THERE IS NO QUALITY CONTROL TO SEE HOW MUCH THYROID WE ARE 'REALLY' GETTING.ANIMALS CAN BE HYPO AND HYPERTHYROID TOO.

Sooo... 7 weeks into a 90 day supply of my Armour and my pharmacy recalls it. I mention it to my doc who promply makes the connection and draws my labs, VOILA I am suddenly hyperthyroid AND now I can understand some of my crappy symptoms of late..

Lesson learned. Hoping to be feeling better soon. Hope you all find what works for you but these are all drugs and be aware.

Hi,
I am 50 years old. I was diagnosed with as hypo at age 39. My doctor prescribed Synthroid at 25mcg and I have (proudly-ha!) worked my way up to 125mcg. I was always one of the "lucky ones" who could eat any and everything and my weight stayed the same. I am a busy mom of two and a first grade teacher, so the 33 lbs. I have gained since age 39 has not been due to diet changes or sitting around with a bag of chips in front of a TV all day. I also questioned my doctor about this and he just brushed it off. Well, I am tired of not feeling good about myself. My life is in good order except for my weight. I want someone to take this seriously. Should I see a specialist rather than my regular internist?
Wow! I think I just lost a little weight telling you great people about this!
jf

I was diagnosed with graves disease last year, I had a really acute case that turned me into a total nut job.
In October after going through several thyroid storms and the doctors not being able to keep me stable with medications, I had a full thyroidectomy in October.
I started on .100 mcg of levothyroxine and then the dosage was gradually decreased, I started having a lot of random body aches, mood swings, lots of muscular pains and no energy.
They ended up raising my dosage and detected that I had a large vitamin D deficiency, after several treatments of taking 50,000 units of vitamin D, and also adding my levothyroxine dosage I started feeling better. I still have mood swings here and there, and feel sad periodically, but the last month or so I've been feeling more fine than I have in a long time. They have me on .170 mcg of levothyroxine for two months now. Last week I started getting headaches more frequently, and one of the times I got this nose bleed.
This past weekend I got a headache, and then later that night I had another nose bleed.
I don't usually get nose bleeds or this many headaches so I'm a little concerned.
Also the last time I was getting headaches and constant nosebleeds was when I was really hyperthyroid.
As far as the doctors go, I'm in between insurances and quite honestly I've been frustrated with both my pcp and endocrinologist...

Re: Dosage Confusion- Synthroid

This simple of communicating dosage became confusioning. To prevent confusion synthroid is always discussed in terms of (mcg). That is, micrograms (mcg) vs. milligram (mg).

This is of tremendous value The conversion factor is 1000, for example a dose of Synthroid represented as 0.025mg, would be converted as
.025mg x 1000=25mcg. To fully understand this blogger’s statement feel comfortable to talk with your pharmacist or physician.

I have just been switched to Synthroid (by my Endocrinologist) after being on Armour for 4 years. I have to tell all you out there that think "Armour" is the save all drug..and believe me I am not an advocate of Synthroid either because I have not been on it long enough to know what possible side effects I might have..however when I first started on Armour I felt like I did before I had been diagnosed with Hypothyroidism ..then about 1 yr ago I started to gain rate rapidly like 40lbs in 6 months feeling sluggish, off and on skin problems, puffy hands, face, feet,hives, pimples in the back of my head almost hive like,some hair loss that is noticeable to me as I have had very thick curly hair all my life now it is getting noticeably thin and It is making me very nervous...My Endo put me on .75 mcg Synthroid and .5mcg Cytomel which she calls a "controlled Armour"..Armour does not stay consistent with your T4's and T3 levels and that is what cause my thyroid to become suppressed and these are the symptoms I was experiencing...she also put me on Spironolactone which is a mild diuretic to lose the puffiness in my face,hands,and feet and so far so good...Like I stated earlier, I am not an advocate of Synthroid or Armour our any drug for that matter, I just want to find what is right for me and stick with it..and if Synthroid doesn't work for me, then I will try something else...Just remember one very important thing.."You" are the only one who knows how you feel and Dr's are not God they can't fix everyone that is why its very important to read about your disease and find out what things might work for you..I suggest getting this book I bought that was recommended to me by my Endocrinologist called "Screaming to be Heard" Hormone connections women suspect and doctors still ignore written by Elizabeth Lee Vliet, MD...its a fabulous book and I am sure all you women can relate to this book...its all about us....Most important thing is to stay healthy eat a well balance diet and exercise..also find out about the foods that only worsen thyroid problems...

I have Hashi's and have been on Synthroid for about 2 years. I was recently on 75 mcg and was teetering on the brink of being hypo again so my doctor increased my dosage to 88 mcg last week. Ever since I have been on the new dosage, I have had the worst insomnia. I wake up covered in sweat (in air conditioning) and I feel caffeinated all the time ( I don't consume caffeine). I feel strung out! Is my body just getting used to the new dosage or am I being over medicated? I don't want to complain yet to my doctor if this is just my body getting used to the new dosage but this really is terrible.

Hello To All,

I too am on this med, I have been on it for 1 year as of July 2008-

35 pounds, brain fog, headaches, eye sight for reading, chest pain and fluttering heart beat. My doctor who is my friend has told me that he will up my dose... "Dear God" any more and I will go nuts. Does anyone know of any study done in a medical journal that theu could forward to me so I can show my doctor.

Please email me at ****** I would be so very thankful.

Thanks to all and be healthy.

I am just slightly hypothyroid and could go without meds, but decided to try meds, and endocrinologist suggested Levoxyl 50 mcg per day. First day on the drug, felt exhausted by night time, next morning, usually jump out of bed for workout and was extremely tired at the gym, no energy, was starving during the day even after breakfast which is unusual for me, and exhausted by evening, and third day woke up with swollen glands and exhaustion, knew something was up. Decided to research the side effects and found others with similar symptoms and didn't like long term effects so I am going off the drug and hoping I caused no damage to my system. My doctor's reaction was "impossible" that the drug could cause this. My reaction was, "no thank you, I think for myself, know my body, and know this drug caused this reaction." I was feeling fine before 3 days ago, and how could so many have similar symptoms if it isn't the drug.

I don't know if my dry skin is from the Levoxyl or not. I'm on 25 mcg's and have been for about four years now and am seeking to be off of it as it is the only medication I'm now taking with regularity. As an asthmatic with a slight hypothyroid condition, I've just done "what the doctors ordered." Now at the age of forty-four I'm starting to do some of my own research and be my own advocate. I don't have answers for anyone but I strongly suggest you do some reading at the ****. Just plug Dr. Mercola in a search engine and you should find it. What a wealth of wonderful and informative reading. Watch the "Allopath" video. Food for thought. Physicians treat symptoms and while I'm glad that many meds are there, I'm thinking that the first line of defense AND offense ought to be a look at one's daily nutrition and exercise as well as hydration levels.
Blessings

I have been on Levoxyl 125 mcg for about two months after my thyroid was "killed" with the radioactive pill. Ever since I have been on this medication, I have constant headaches and feel sick on my stomach all the time. I had to go to the ER the past week because of the intense vomiting. The doctors tell me it's not related to my thyroid or the medication. How can this be? I didn't feel this bad when I was hyperactive thyroid. My wife has had to take care of our 18 month old all by herself ever since I have been taking this medicine. I feel like I am missing out on my life! This is terrible!!

Hi all. I'm posting again after being off Advair for about a week. I've noticed a dramatic change in my emotional health. The anxiety that I've been suffering from for the last three months while on Advair has now entirely vanished. I feel like my old self again, and friends and family have also noted the difference. I won't ever take this medication again-- I'd rather deal with my asthma in a preventive way.

I suggest to anyone that has Hashimoto's Thyroiditis (type of Hypothyroidism) to have a blood test done for Celiac Disease. There has been research done linking Celiac Disease and Hashimoto's Thyroiditis. Celiac Disease can be controlled by a gluten-free diet (wheat, rye, and barley free). In the US, not many doctors recognize/know of this link. I have been hypothyroid for 20 years (had Hodgkin's Disease (cancer) - radiation/chemo at age 16) I have 2 sisters with Hashimoto's Thyroiditis and were iron and B12 deficient. I was diagnosed with Hashimoto's Thyroiditis 3 months ago with iron and B12 deficiency. I have been on a gluten-free diet for 2 months now. My dosage of synthroid (levothyroxine) was 175 mcg and now is down to 137 mcg. I hope that I am one of the lucky ones that will have their antibodies to their thyroid normalized (no more synthroid!) I have a couple of days left before my next blood test and I hope that it goes down more. I am feeling better now than I have in a very long time. I have attached a link for those of you interested. It is an endocrine article from Finland outling the link between Celiac Disease and Hashimoto's Thyroiditis (among other things). I hope that this helps some of you. http://edrv.endojournals.org/cgi/content/full/23/4/464

I have been on Levoxyl for about 3 years now, maybe more. My mother , father, and I all have Hypothyroidism. Mine was diagnosed at 19 when I started on Levoxyl and now it is around 3 at 75 mcg. I do have alot of these symptoms, including fatigue, depression,insomnia, major migraines, bloating, but my mom and I also have ringing of the ears and I wonder if this is a symptom. I have been to an ear specialist and had my hearing checked, everything is normal he says. Maybe I just have very sensitive hearing and can hear the slightest things? I don't think so, I didn't have this ringing before a year and a half ago!

I've been on Synthroid for 8 months after gaining 10 pounds in two months. The symptoms started to appear when my Mom was very ill. Doctor said it was caused by stress and started me on 25 mcg of Synthroid. My reading at that time was 5.56. I had blood work done every 4 weeks,and the numbers are going down (1.8 last reading), but so is the quantity of my hair, which I see all over my white tile. My weight hasn't budged even though I am dieting. My doctor upped me to 100 mcgs. My blood work is not good - low white count, low lymphocytes, borderline anemic. Mom died, and I didn't get any better. I feel sick all the time and it's difficult for my husband to understand how bad I feel. I've tried to get my doctor to prescrive Armour, but he doesn't even return my phone calls. When I see him in the office, he keeps telling me it takes time. I hate living this way and want to stop the pills completely.

i HAVE SO MUCH COMPASSION FOR ALL OF US SUFFERING ..I have been on 300 mcg of levoxl and i am always filling with fluid,feel like i cant think straight or remember simple things....I have gained 150 lbs in 8 years and its not due to food increase...Myskin is dry and I am exhausted all the time..Hashimotos is what they say I have ..i am sure that this medicine is causing this,but what is the alternative?When i went off it years ago my thyroid tsh level went up to 13!....yet I lost weight!I think new testing has to be done on thyroid and the meds we are using...right after i take my med in the am I get really hungry..thats the only time i get hungry..my digestion is so slow!...Its a terrible way to live being fat when you arent eating like a pig..

I have been on Synthroid since about 1995. I had a thyroidectomy and do not have a thyroid anymore. I have been on 0.175 mcg for about 10 years and did not have any side effects except for fatigue and a little depression.Everything else was pretty good. My TSH is registering low so my doctor moved me to 0.1 mcg of Synthroid and 5 micrograms of Cytomel. I took this for about three weeks and for the last 1.5 weeks have had awful headaches and the dryest eyes ever. Something, I have not experienced before. My doctor keeps saying he wants to help me but does not listen to
any of my symptoms. I actually pulled off the symptoms from the list online of hypothyroidism and have 15 out of about 20. I am wondering why I felt so much better on the higher dose than this low dose. Can anyone releate. I am starting to think maybe my body is not processing this right. The funny thing is is that my lab work came back with normal results today, which means my doc is probably going to keep me where I am and I feel the worst I have felt in ten years.

We all experience similar problems. I think most of it is from frustration and is affecting us all mentally. You go to the doctor pay your co pays,blood work,and your prescriptions. Then patiently wait for change for the better. Go back and do it all over again every few months. You pay all this money and you still feel miserable.I feel like a lab rat sometimes.My muscles hurt,feel tired,can't lose weight.Don't feel like doing somethings I use to enjoy. I been on this stuff 3 yrs and my doc has me taking 300 mcg now.Wish I have some answers!

I was on Advair for 3 months. I had the following DAILY symptoms: throat constrictions/swelling, loss of voice, difficulty breathing/panic attack-ish reaction, and most recently heart palpitations followed by my heart skipping beats. I am now off of Advair for 5 days now. The first few days were rough - I got every symptom in full force. I am now taking Flovent 110 mcg. I am supposed to take it 2/day, but have started with only 1/day to see if my body will react to this lower dosage. I look forward to becoming healthy again - like I was prior to taking Advair.

Oh, and I went to 2-3 dr appts every week to try and uncover why I was having these terrible symptoms. All gave up on me. Including the asthma doctor that prescribed the medicine. Surprising that the entire GROUP of doctors did not know the side effects of Advair well enough to recognize them in me.

Wow. I am so relieved to find people like me ! I got the IUD when my son was 6 weeks old and It has been over a year and a half. ( I cannot take regular birth control because it affects my blood pressure)I thought everything was great with it at first- no period- no fuss. but when you have a new baby you are just exhausted and your body does weird stuff anyway. Most of the symptoms I noticed started in the last 2 months. I did not contribute them to the IUD because I have hypothyroidism and I thought my meds needed adjusted. I have not been able to lose weight despite trying- VERY FRUSTRATING! I was exhausted a lot of the time- sleeping 9 or 10 hours a night and still tired. My hair was falling out but not an extreme amount- I started having dizzy spells- No Sex drive- yuck! and I had spotting for over 2 weeks. So I had my thyroid checked and all was well and all I could think was " what the heck is wrong with me?!?!?!" and I found this site. Luckily I had the IUD removed 2 days ago because we are going to try again for a baby- I have felt ok- the first day I was still tired and I had an extreme nosebleed which I have never had before?!?!?! You know I think it is just safest to use natural methods of birth control cause all this medication can really mess you up!