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50 Side Effects posted for medical circles

June 20th
2009
10:10 AM

Sorry to post again, but NO ONE REPLIED TO MY POST!

I am 5 days post removal and need reassurance. Unlike everyone else, I have NOT felt better right away. I am just as tired (if not more), more irritable, and JUST GOT ACNE on my face and arms 2 days AFTER removal! I'm still dizzy and the brain fog is just as bad. Have not bled a drop at all.

I know everyone is different, but my removal experience has been completely different... don't feel better, no bleeding/clots, no immediate improvement. IS SOMETHING WRONG WITH ME??? Was it not the Mirena after all???

-- By ameigh | Reply | (8) replies | Private Message me

June 18th
2009
3:30 PM

Hi all! Was just reading through all your experiences with the Mirena IUD, and let me just tell you, I am so happy I found this site! I had my Mirena IUD inserted about 6 weeks after my son was born (he will be turning one next month). I noticed my world literally falling apart within the first week of having it in. Of course when I talk to my Doc about what I've been going through, she says there is absolutely no link between my symptoms and Mirena. So then tell me why I am reading all your stories and it feels like I am reading my story back to myself? We can't all just be crazy here!!! I mean, some of my symptoms are so dead on with what others have shared, and the only thing in common is that we all have/had the Mirena IUD!! I honestly think people think that Doctors are Gods and that what they say is the word. Don't get me wrong, it takes a lot to be a doctor, and there are many many great ones out there, but in the end, you know your body more than anyone else!! So anyways, going back to the hell I have been dealing with: Within a week of having my Mirena put in, I got a MAJOR kidney infection. I have never had any problems with my kidneys whatsoever. The infection got so bad (I had no idea what it was) that I almost got Sepsis from it, which can be fatal. Since then, I have had 2 more kidney infections, as well as passed a kidney stone (which may or may not be related). Also, within that first week, I went from being a happy, active, energetic human being to being depressed, moody, panicked, weak, lethargic, and EXTREMELY fatigued all the time. I look in the mirror and don't even recognize myself anymore: I can't keep up with my son, the housework, cooking dinner and taking care of my family. I have watched my whole world literally fall apart. My partner and I split over a month ago, and I lost my job. I feel like the most worthless person on the face of the planet. I feel so horrible for my son because I just can't do the things he wants to do. All he wants to do is play, and I just can't do it. I can't be a normal mother to my child because I have no energy at all. I feel tired and weak CONSTANTLY, and just getting out of bed in the morning takes an act of God. I have to nap when my son does, because if I don't, I won't make it through the day. Even when I do get my naps in, they are not energizing naps, they are just to keep my head above water so that I can at least do the bare minimum to take care of my son. This is the complete opposite of the person I once was. I used to love life! I used to run and hike, and treat the world like it was my playground. Now all I do is sleep, and schedule my life around sleeping and just try to get by. The depression and anxiety attacks are new to me too. Some days I am in such fear of the anxiety attacks that I don't even leave the house. I have become a total hermit, and it's not fair to my son at all. I have also experienced pretty significant weight gain, and am still gaining. I have always been very fit, active and petite with an average weight of 110, and now here I am pushing 130! That just is not me!! With my small height of 5'3" it just doesn't look right. No wonder why my husband doesn't want me anymore!! I'm chubby, I sleep all day, I'm depressed, moody, and afraid to get out of the house!! I would do anything to have my life back. I would do anything to have my family back!!! That's why I ended up coming across this site in the first place. Like so many others, I have spent hundreds of dollars going to the doctor, and having all these expensive tests done just trying to figure out what the hell is wrong with me! You name it, and my doctor has tested for it, only to have everything come back looking fine. I can't even begin to tell you how extremely frustrating it is to sit there in my doctor's office feeling the way that I do, and knowing something is definitely not right, only to have her tell me, "You're fine. It's all in your head. Take this anti-depressant and you'll feel better." So, my initial intention was to go online and try to find some tips on how to increase my energy level, and suddenly all these links started popping up about Mirena and chronic fatigue. I started reading your stories on here and it was like a light suddenly went on in my head! And for the first time in almost a year, I felt the relief that I have been literally praying and praying for!! I have already called my doctor's office and made an appointment to have the damn thing taken out next week! I am actually excited for it! I keep thinking: What if this is it? What if this is the reason why I have been feeling so bad? What if they take it out and I become ME again? The me who used to camp and hike and fish and run and hold down a freakin job and play with my kids and take care of my family and have passions and hobbies?!!! What if??? Well, I am going to find out! I will post again and let you ladies know how it goes! If it does turn out that it was the Mirena that caused all this, you bet your booty I'm gonna be the world's biggest advocate on getting that thing pulled off the market!!!

-- By afuller03 | Reply | (1) replies | Private Message me

June 18th
2009
2:32 PM

It's nice to know that I'm not alone..

I got Mirena in November 08, and since then I've developed a plethora of unpleasant side-effects. Initially, I couldn't put them all together. As I'd had a fainting spell and some restless legs a few months prior to getting Mirena, I've been concerned that all of my symptoms were stemming from a nutritional deficiency like folate or b12 anemia. Nothing seemed to quite fit exactly right though, and I take vitamins regularly, so I was perplexed until last night. After googling "tingly feet" and "heartbeat" I stumbled onto one of these forums.

I have felt like a crazy person all of this year, and I am now quite certain that it's from Mirena. Feeling foolish that I didn't see this sooner.. but I guess I we perceive what we want to, and I was happy to have easy birth control.

I've NEVER had heart palpitations, this kind of foggy-headedness, anxiety like this, unexplainable nausea, tingling in my feet, or depression before. My dizziness and fatigue alone had me fearing for my health, and my extreme mood swings had me fearing for my life.

I'm getting this removed as soon as possible.
Clearly I could've done my pre-Mirena research better, but the pamphlet and pep-talk I was given did not mention everything that I've been going through. I'm a little pissed, to be honest.. but mainly relieved.

I think I'm going back to the Nuvaring.. I'd rather bleed than be a dysfunctional, ill, zombie-person.

-- By suzyleigh | Reply | (1) replies | Private Message me

June 25th
2003
3:40 PM

I've also had more trouble seeing after using 1 spritz of Nasonex in each nostril once a day (for several months). I've also felt progressively more tired. Most concerning, and my reason for being here, is that I developed a Rosacea-like condition. My dermatologist dx'd me with mild Rosacea, which is unbelievable to me, as my family line has nothing like this in it. When I did a Net search on Rosacea, it mentioned that steroids can cause this condition. Also, Rosacea is progressive and can damage the eyes and even cause loss of vision. So, if you suspect that this nasal steroid is affecting your vision, I'd recommend getting off of it. Oral and nasal steroids can become systemic if taken for long periods of time. This is common knowlege in medical circles. I took myself off of Nasonex today and am already starting to feel better.

-- By anonymous | Reply | Private Message me


 

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