Medical records symptoms and conditions

Hi everyone ~ I am so glad I have found all of you. I have an appt today to have the Mirena placed. I highly considering canceling the appt now. I have read probably 98% bad and only 2% good. can anyone help me decide what I should do? I was having it placed for my heavy, painful menses, the birth control is/was a bonus feature. really? I shouldn't do this eh? someone please respond.

I'm 47 yrs old now, & have been on Methadone since 92'. My journey with pain started at age 11 yrs, when i had a disease that totally screwed me up. From 11 yrs to 24 yrs, I was prescribed everything from Tyl #3 to Fentanyl patches. I don't know how many of you were around back then, but the 70's & 80's for pain patients wasn't easy. Lots of us put bullets into our brains because the Government made Doctors afraid to treat us "humanely" (so to speak). I was one of the lucky ones because I had outward physical signs of being in pain, so Doctors treated those outward pain symptoms. If i had not had those signs, I know I would wouldn't be here typing this now. I'm relaying this history, before my methadone side effects, because its important pain patients know something.

When I was 21 yrs old, got married & had a child. He didn't live very long, and it was at that point i started using my pills to stifle my feelings. At first I didn't realize what I was doing.. but.. it didn't take to long, and I realized it. Up to that point.. after losing both limbs, skin, and bone grafts, ulcer surgeries up the wazoo, fusions, countless medical procedures, hospitalizations, and operations.. to many to remember.. I had three surgeons, and a internist. All of them knew about one another, but it was up to me to keep each informed as to what they were prescribing.. and I didn't do it. Cut to the chase... About two years after my child dying, my internist retired, so I had to have my records transferred to another Doctor, at another Clinic. Everything with the Dr/ Patient relationship went well, up to about a month. One day.. Something in my head told me I should go to the clinic office, and read my records (i.e. Chart). So.. for the first time in my life, I listened to my head, and went into the clinic, told them what I wanted.. they directed me to medical records.. I told the lady there what I wanted.. she took me to a private room.. handed me a waiver to sign.. kind of stupid waiver, since I was reading my own file.. but.. none the less, signed it.. she handed me my three volume chart. It didn't take long for me to see why, and I'm sure most veteran pain patients will know why too. Right there in Bold Red on the very first piece of paper was "Drug Seeker! Abuses Opiates". Now.. I'm not saying I'm not deserving of that title, but what I am saying is.. "They don't let you know you've been labeled, they let everyone else know, but you." So.. If you are a pain patient.. read your chart once in a while, because once you get that title.. life gets much harder, & you have no idea how judgmental people (even Doctors) are. To most M.D.'s your too big of a liability, & a "criminal" Lastly.. be very careful with these medicines because, it's not that far of a jump from, you controlling them, to them controlling you." Once it happens, its not easy to turn it around again. From age 24 yrs to 27 yrs.. it was hell. I came close many times. Loaded my 30-06 three times, & My 45 twice that I remember. My wife came home early from work on that second time, and found one live round that had fallen on the floor, bent down to pick it up, then found the revolver under the couch.. took me to the hospital.. the E.R. doc admitted me for the pain, and actually treated it with Methadone. With the first dose, I noticed a relief, as I had never felt it before. Not all pain was gone, but after a could days of upping the dose.. it was. When my pain was controlled, it was time for discharge. The doctor that took over my care during admission sent me home with a week supply, & wanted to see me in a week. When I went to his clinic, he had read my previous doctors notes, & now wanted me to come off, & go back to something else. He told me, "that people like me, have to go to Methadone clinics to get methadone." I had been conservative with hiss discharge meds, so I left his office, went home, looked up the nearest methadone clinic, and stayed there for over 7 years (ME BEING STUPID AGAIN!). During those 7 years, I met 4 "pain patients" who were only guilty of being in pain, & having a doctor that didn't want to deal with them, so (like my doc) they mention the only real place, they can get it without bothering them (Methadone clinic). What I didn't realize until the day I walked out, and never went back (and never will), is that Methadone Patients are treated like criminals.. not patients.. AND by being a methadone criminal, you give your state permission to be part of your treatment (And believe me.. you may not see or hear from them,, but they know you by name). I found out after my pain doctor at the time got authorized to prescribe to me, supplemental Methadone at bedtime. After about a month, I get called into my councilors office, & she tells me "the State Methadone Authority says, I have to go back to Phase I because, apparently the pain doctor had been prescribing to other methadone patients without their permission, and that all of us patients had to go back to Phase I". There was no way I was going back to driving 90 miles a day 6 days a week, for something I had nothing to do with. I'm guessing the State was thinking I spread the news about my good fortune with this new pain doctor.. but everyone at the Clinic knew, I came there, sat & waited for my turn, & left. I might say Hi as i passed someone.. AND.. none of the 4 pain patients I mentioned above, were the patients being punished by the State.

The Country says, "its doing better when it comes to treating chronic pain patients." and to a point, I'd say its better.. but there are still miles to go.

METHADONE SIDE EFFECTS:

Someone here mentioned that by taking methadone, he doesn't feel the need for any other opiate. Thats very true. I felt it, & its why they use it for heroin addics. THe first month, I felt really sedated after about 20 minutes of taking it.. But that went away, & now all i get is pain relief.

Constipation-

When I have a operation, I stop taking them about two days before. Three if its possible, because its also true.. after the operation the pain increases, but you get little pain relief from anything.

I can't think of anything else.. except.. soon my only doctor since being on methadone is leaving to another State 3000 miles away, so soon, I'll be back to unthinkable thinking again, I'm sure. Who's going to take a past "drug Seeker-Methadone clinic patient? No Body that doesn't know me.. thats for sure.

I'm sorry this is so long. Good-Luck All

THANK GOODNESS!!! I honestly thought I was losing my mind. I was in a automobile accident in 2007. We are in a lawsuit with the insurance company. Just today i am looking over all the medical records. I never knew what I was being injected with. They told me it would help and it was safe. So today i google Kenalog injections. I was given 120mg injections every 3 weeks for 4 months. I gained 38 pounds. I grew hair on my face. My emotions ran the spectrum and were subject to change any given moment. I became depressed. I have a menstrual every day for a year. Constant headaches and fatigue. The pain in my back decreased but I was constantly sick in some other way. Had I been told before hand about all of the possible side effects I would have refused treatment. Something should be done so that no one has to experience these things. I have not had an injection for almost 1.5 years and the dimpling has yet to resolve itself. If anyone know s anything that can be done please let me know. Also I think the drug company should be help accountable. If anyone figures out how to do that let me know.

M.

Hi,
Back in May of 2008 my it was alleged by doctors that my mother needed to have her gallbladder removed. During the surgery, she was given Diprivan 200MG AMP, and Fentanyl 5ML vial. Since the surgery, she is yet to recover. After seeing many local doctors and surgeons, we decided to go to UNC Chapel Hill, where the doctors there cannot even tell her what is wrong. She has since (the surgery) also developed C-diff. She has had her medical records released an I'm trying to take this into my own hands as I'm tired of seeing her literally get sicker and sicker. Here's my question: Is it possible for these side effects to last over this long period of time, from just having a 5 ML vial of Fentanyl? The reason I ask is because every above listed symptom that people have had after using the medication, is what she goes through on a daily basis. Here is a small list of her daily symptoms: flue like symptoms, hot flashes, constant fatigue, sometimes diarrhea, sometimes vomiting, slurring of some words, disfunction in her language ability -- sometimes she cannot read a sentence clear on her first attempt. EXTREME short term memory loss, physical instability, as well as weakness in her body. I've researched side effects of this medication and those are all listed, and I've seen more lists above. Is it possible for her to be having long-term adverse side effects from this medication? Is it possible for her C-diff to be related to the medication? If anyone could help with anything I could greatly appreciate it. While this is risky, I'm going to put my personal email because I just need immediate help and advice from anyone, and I check my email ample amounts of time throughout the day. So, please email me if you have any suggestions. ******

Was diagnosed with Lupus in 2003 and told by my Rheumatologist to get the Paraguard IUD for birth control. He said anything with hormones is off limits. So, I go to my OBGYN to get the copper iud and go on with my Lupus Life for 6 years which included severe joint pain in my fingers and shoulders, sun sensitivity, constant fevers of 105 degrees and infections that resulted in hospital stays and hair loss so bad that I had to wear wigs for 2 years, greenish discharge from my nipple, depression, severe fatigue and rashes. Well, I figured that if the Mirena was causing these same symptoms in women that maybe the Paraguard was too; so I made an appt to have it removed. Well, when my Gyno pulled it out, he freaked out because to EVERYONES SURPRISE, I WAS MISTAKENLY GIVEN THE MIRENA BACK IN 2003!!!!!!!!! SO, YES, WITHOUT A DOUBT, THE MIRENA ABSOLUTELY CAUSES SEVERE PROBLEMS BECAUSE IT'S BEEN OUT OF ME FOR OVER 6 MONTHS AND I FEEL PERFECT NOW!!!! My doctor's don't even think I have or ever had Lupus in the first place. They will retest me next month but they think I was diagnosed with Lupus too soon (after only one visit) then going right away to my quack Gyno and getting the Mirena instead of the Paraguard was what was causing all the problems. Will see soon what the bloodwork says but that Gyno who put the wrong device in me is going to pay for wrecking my life for the past 6 years!! My medical records even say he was supposed to insert the Paraguard. This experience has caused me to have zero trust in people because no one does their job right anymore. I could go on and on. . . Will take personal contacts if anyone wants to chat or vent about the poison that's inside of them. But, be ready for my response, GET IT TAKEN OUT NOW IF YOU HAVE ANY SYMPTOMS. Remember back in the 80's when women were getting silicone breast implants and getting Lupus? It's the same thing with the Mirena, our bodies are rejecting it! Good luck and God Bless you all ~ Teecee007

I am just in shock. I have been on Avelox for 7 days now, and I can tell you that the side effects are not worth it. I still feel sick and have the bad cough. Now, I also have Thrush. But the weirdest and most upsetting part of this was that I didn't notice any of the other symptoms. So I went all week, talking a mile a minute, sweating, dry mouth, hallucinations, etc. Then on Saturday, a few of my friends staged an intervention. They actually believed that I was taking Crystal Meth - ICE. I was heartbroken, confused, and mad. I knew I had not done any illegal drugs, but several of my friends were convinced.

I went to the doctor today and found out that it was the Avelox. However, I had already taken today's dose. I even told the doctor about the situation with my friends and asked if this drug could be related. He said no, it must be the steroids and sent me on my way. As luck would have it, the pharmacist saw me in the store and approached. I asked him if Avelox could make me feel the way I was feeling. He told me that I should have never been prescribed Avelox and Effexor as they had drug interaction issues. He also told me that my symptoms were disclosed on the pamplet. The problem was that I got the Avelox as samples after the Augmenton didn't work.

So, I came home took the meds for the Thrush and watched tv. I haven't slept since Thursday, nor have I eaten since Saturday. I am hearing and seeing things. Now I am scared to go to sleep because I may not wake up. My heart is beating fast, I can't stop talking, dizzy, blurred vision, disoriented but extremely happy given the circumstances, paranoid, jittery, extremely thirsty even though unable to pee.

This is just horrible. I am not a drug adict and do not do Meth/Ice or any drug like that, but now my best friends are doubting me. They don't understand or believe that an antibiotic could do this and how am I supposed to prove it to them? It looks like, just because I got sick, I may lose some of my closest friends... Remember, most drug adicts and alcoholics DENY it first. Great, huh. Now everyone is going to be watching me to see if I am on drugs. I feel violated because evidently I got all high on this antibiotic, didn't enjoy it, and now am suffering the consequences.

What makes it worse is that people I love now don't trust me, and I didn't even know what was going on

I was perscribed Valuim for anxiety and depression but i think that the valuim is helping very well for my anxiety but it seems to be makeing my depression a whole lot worse i hade crying spells and once i started crying i couldnt stop.

WOW!! I cannot believe I found you all! I am having severe reactions after taking Avelox. I took it for 9 days, stopped it on 12/20/08. Sice then, I have continued to experience extreme dizziness, confusion, sleeping problems, stomach upset, depression and severe anxiety. Please someone tell me I have some sort of recourse here. I am about to lose my job over it. Thanks ~

I am a 36 year old woman living in hell for 3 months now.

In early October of last year I was admitted to the Hospital with diagnosed bronchitis a possible pneumonia. I was given Avelox which is a member of the Fluoroquinolone drug family. At the time I was in sever distress, could not breath, and was extremely weak from the infection. I stayed in the hospital for 6 days while they gave me Avelox along with various other meds to treat my symptoms and was released after finally getting a clear chest x-ray. The drug had done its job. But it was a week later that hell started. I was re-admitted to the same hospital with sever abdominal pain. They told me that I had hepatitis due to a reaction from the Avelox. My Dr. Also suspected I could have Wilsons Disease so he prescribed a liver biopsy, to say the very least this was a painful procedure. The biopsy came back negative and the liver function began to return to normal just as the pain everywhere else began.

joint and muscle pain
headaches
insomnia
uncontrollable twitching
arm and leg numbness
neck pain/spasms
a mass on my left breast (further diagnosed after mammogram, CT and Biopsy as a side effect to the Avelox)

My internist, Rheumatologist and the liver specialist all suspect “Post infection pain syndrom”.

However, after hearing now 3 separate times from 3 seperate Dr's about the possible side effect of Avelox I did a little research and every single one of my “symptoms” are on the lists of dangerous side effects for this drug. Now none of my Dr.s can tell me if I will ever get rid of the pain I am in. None of them seem to be able to do ANYTHING but treat my symptoms. By treating the symptoms all they can do is pain management which means pain killers. I simply can not function day to day with most pain killers so I am forced to live with the pain.

More drugs than I have ever taken, Dr.s visits, time off work, stress and a standard of living that simply put is not living, not to mention the tremendous outlay of cash...to say the least I am frustrated.

As a follow-up to my post earlier today about my daughter's severe reactions to Avelox.... I wanted to add that we weren't given a prescription -- the doctor actually put a weeks worth of samples into a bag, individually wrapped pills. So even IF there was a warning on the box or a pamphlet included with this toxic drug -- we wouldn't have gotten them. Doctors get these samples from the drug companies and hand them out like candy with no regard for their patients and obviously no knowledge of what they are giving them. This is very wrong in my book. If anyone knows of anything that can be done to stop this drug from being given out - please post here.

I HAD MIRENA IUD PLACED IN FEBRUARY 2008. MARCH 28, 2008 I WAS HOSPITALIZED WITH BLOOD CLOTS IN BOTH LUNGS. I HAVE NOT BEEN THE SAME SINCE.I HAD TO STAY IN THE HOSPITAL FOR 21 DAYS DUE TO THIS KILLER MIRENA. I HAD SEVERE BREAST PAINS, AWFUL CRAMPS AFTER IT WAS INSERTED, DEPRESSION , HEADACHES, STOMACH PAINS WEIGHT GAIN, NAUSEA,TROUBLE BREATHING,AND ONLY LORD KNOWS WHAT ELSE. I FOR SURE WOULD LIKE TO BE IN ON A CLASS ACTION LAWSUIT!!!!!!!! I HAVE ALL OF MYMEDICAL RECORDS!!!

I am writing on behalf of my elderly parent, Carmela, who has been diagnosed with Lupus since 1991. She has been on a small dose of prednisone since her diagnosis in 1991. In the last several months she has developed very many odd hazey type grey spots all over her body. Dermatologists and doctors are not giving her any answers. They took her off predisone because they THINK this may be the cause. She is on an inhaler and does not like it. She wants to go back on the prednisone as she is feeling chest congestion and lethargy. I read an article on the internet that describes prednisone may cause unusual bruising. I'm not sure if this is what her spots are. They are only the color grey and appear to be beneath the skins surface. They are soft or hazy looking. They are small, about the size of a dime. Has anyone heard of this before in Lupus (prednisone) patience. Any info you have is sure appreciated. S. ******

Started with a Pred pak for a sinus infection. Made my heart race and had tach and early heartbeat, which kept me from sleeping. Went to Cardiologist. Several doctors denied that the Pred would cause the rapid heartbeat. Then the Cardiologist did an echo and found a pericardial effusion and some weird spots on my lungs. They suspected lung cancer which may cause the effusion, so I had surgery to do a pericardial window and a lung biopsy. Then a pulmonologist decided to put me on Pred again...steady dosage...because she didn't know what else to do. (Didn't have lung cancer) I didn't have any more funny heartbeats, so maybe the pred didn't cause it after all. But I've gained 40 pounds. My hair has grown faster, and I've gotten some facial hair (not supposed to have that, being a female)...which I call fur. Moon face with cheeks that are hard, muscle cramps, can't sleep, but once I do go to sleep, I can't wake up. Tired all the time, headaches, joint pain-sometimes severe, dry skin, generally bad attitude, with very little patience, low potassium levels which add to my muscle cramping problems, difficulty swallowing, indigestion which I've never had, with painful and burning reflux. And occasionally when I eat, I have the rapid heartbeat again. I go in search of food like I'm going to store it in my thighs for winter. Anything you eat will turn to fat, including protein. Can't wait to get off this stuff which will take until June of next year. Then my doctor says it will be 3 months before all these effects wear off. No one told me I would get fur.

WOULD EVERYONE PLEASE SEND IN A MEDWATCH REPORT BY GOING TO WWW.FDA.GOV.
IT'S THE ONLY WAY SOMEONE WILL LISTEN TO USE.

ALSO, CALL ORTHO-MCNEIL AND LET THEM KNOW THAT YOU GOT SICK ON THEIR WONDER DRUG. JUST DON'T GIVE THEM ANY INFORMATION REGARDING YOUR MEDICAL RECORDS.

Hi

I just ran upstairs to look at what Antibiotic I was on last and it's the same one. I got a rash on about day 7 and googled it and saw all the patients with lots and lots of complications. Actually I mentioned this to the doctor when I went back and she said lots of people react badly to it ...she could even take it. You think they should have to warn you of the serious side effects ...
I wonder why they are using this antibiotic all of a sudden as I have never heard of it before!!!
Interesting ....you should have this in your medical records in case you are in an accident.

There are on line sites that people post reactions to things that others can read....you should add yours....like I said SCARY!!!!

Jackie



-------------- Original message --------------
From: "Heather" ******
I just googled Levaquin and read this: Quinolones, including LEVAQUIN, may also cause central nervous system stimulation which may lead to tremors, restlessness, anxiety, lightheadedness, confusion, hallucinations, paranoia, depression, nightmares, insomnia, and rarely, suicidal thoughts or acts. That describes what happened to me.

I can't believe what I am reading! I have been a competitive runner for over 25 years, and in the past two years I started running mainly trail ultras - races up to 70 miles. This March my husband noticed a huge dent in my left glute muscle that over the course of four races got worse and led to a secondary dent in my hip area. I just assumed I had injured my muscle somehow, but no amount of rest, PT, or stretching has helped.(it's been 6 months now) I developed hip bursitis, medium to severe pain in all my joints, including both knees, my left ankle, and extreme spinal stiffness.

None of the experienced PTs I've been to have seen anything like my dent, and they are baffled by my worsening condition. I'm so scared I'll have to give up running altogether, as my joints are failing me. My PT has advised me to go to my regular doctor to get bloodwork, X-rays, an MRI & all tests done to see if something is wrong with me that is beyond muscle-skeletal. Before all of this, I had low back issues but no joint issues at all.

I found this web site by chance, and suddenly I remembered that several months before noticing the dent, I received 2 steroid injections in my butt, as well as pills & cream for a super severe case of poison oak that covered my whole body and face. Do you think my doctor will tell me if it was Kenalog if I ask?

I, too, am very very interested in any other stories of severe joint pain and inability to run especially after receiving these shots. I hope we can help each other figure this out & get answers.

I took this antibiotic for 2 days. I have no history of mental illness whatsoever and I thought I was losing my mind for 2 days. I had a panic attack 2 nights in a row and stayed up all night starring at front door afraid that someone was going to break into my home and hurt my children. I can not believe that this "antibiotic" is even on the market. This is an extremely dangerous drug. I called the doctor and he sounded like he didn't believe me- maybe I should share some of this stuff with him so he can experience the crazy too!

I am 43 yr old woman and have been on simvastatin on and off for the past 3yrs, it's only since coming across this website that I have actually managed to find a connection between this awful drug and a whole heap of medical problems. The most recent course made me so ill that I thought I had an incurable illness that no one could diagnose, at times I have been in so much pain I thought I was going to die. It started with severe knee pain, I have a little arthritis in the knee but doctors were baffled at why it would hurt so much as x-rays on knees and hips were ok. I ended up having an operation to cut a ligament, that was over a year ago and had been in crippling pain ever-since. Also; foggy head, headaches everyday lasting all day, pain in jaw, shoulders, neck, swollen throat, incredible limb swelling, numbness all down right side, kidney problems, weakness in muscles, aching hips and legs, itching, insomnia, to name a few. I complained to my doctor when I was prescribed 50mg of this poison because as soon as I took it, I immediately felt ill and collapsed from terrible weakness, couldn't even lift a feather. They reduced it to 20mg, and I blindly kept taking it, in the meantime, my leg function was worsening, my back was killing me, I couldn't sleep because of the unbelievable burning in my shoulders, hip, neck and legs, everything hurt so much. I have been in tears from the pain and frustration of not knowing what was happening to me, painkillers, even high potency prescriptions just didn't work. I was a healthy gym-going person with a slightly high cholesterol reading, and suddenly, I was almost crippled, unable to function or look after my family, couldn't even handle simple chores that I had done a thousand times before, couldn't think, speak well, do crosswords, it was unbelievable. I have had ECG's, heart stress tests, been to and fro to doctors, hospitals, specialists, even seen an osteopath with these pains, they must have thought I was a hypochondriac! Finally, I insisted on an MRI on my thigh as it had changed shape as there was a lot of muscle wasting in both my right arm and thigh, and so much pain. A lump had also appeared and was really worrying me. The doctor tried to fob me off and said it was a fat lump, I argued that if it was fat it wouldn't hurt so damn much, so the result of the MRI is that I have a tumor which is getting bigger. If I find out that this is a result of the medication, the gates of hell will open.
I took myself off this lethal stuff immediately as soon as I realized there was a connection between it and my debilitating condition, though it's too late to save my 12 yr relationship, that went down the tubes because I just couldn't function well, oh, and my job. and any chance of working after being ill for so long.
I have been off it just a few days but already I feel almost human again. I know it'll be a while before I can see a marked difference and do some of the things I used to be able to do like walk the dog!! but I am furious with my doctor's and have written a letter of complaint, and have told them that I would rather take my chances with god and be a happy person than ever trust them again. I am in no doubt whatsoever that this drug has ruined the last 3 years of my life and probably caused irreversible damage to my leg muscles. Why take a pill because the doctor said so??NEVER AGAIN from now on everything will be checked via websites like this, I am so disgusted that instead of helping me, my own doctor just prescribed other medications I need not have had because of this pill when all he had to do was take me off it. I find it hard to believe that they don't know of these side effects, or pretend not to, how can they not make the connection?? Absolutely furious. I am in worse health now than I ever was, there should be a serious health warning before this is given to anyone, and the first port of call for any complaints should be the doctors who prescribe them instead of offering alternative solutions. This is a time bomb waiting to explode.

I took my 16 year old child off of singulair 6 weeks ago (3-28-2008). She started taking it 11-17-2003. She became dark, depressed, grades dropped, dropped out of dance and cheerleading, started cutting her legs with razors, stomachaches, headaches, anxiety attacks, trips to the emergency room. 6 months of fluoxetine given by her psychiatrist. Nothing helped her be happy again. Sad and Dark young woman. NOW: She smiles a lot, and is eating diner with the family. No headache or stomachache for a month now. She is sleeping better. Before she said that her mind would not stop thinking. She is taking pictures again and even asked me to order her book called "Understanding Exposure" and is talking about taking a class on digital photography at NMSU branch university to start on her college electives now. She is out more and even has a part time job at an ice cream parlor. Just lately I have stopped checking the trash for waded up tissues with blood (from cutting). Chris, I have had all her medical records sent to her primary Doctor and we are very willing to open them up. You have to have a child suffering to understand where we are coming from. The most dangerous place on earth is standing between a mother and her child. Singulair took our children from us and maybe changed them in some way forever.

Chris555, our stories ARE proof. 99% of us have medical records to prove the problems our children have gone through. Not just one doctor, many doctors. Nothing that these doctors suggested worked. All of the tests, added medications, etc. But when Singulair was discontinued almost EVERYTHING went away within days. How can you ask where is the proof???? Sure, no one wants to have open up medical records etc. but I would be more than willing to do what it takes if it will save others the anguish our family has gone through. Imagine losing a child to a drug that you had no idea could even cause such things?? If parents were only warned.....

I am posting an email address for people that have stopped dispensing this drug and see the symptoms of the side effects disappear.Please tell all who have seen a change in their child or loved one to email this woman.I met with Dr.Sarah Sellers and other members from the FDA in Washington DC she is in charge of Safety Review in the office of Surveillance and Epidemiology.This is critical in the investigation into SINGULAIR .Everyone wants to help and this is how to begin.The email is sarah.sellers@fda.hhs.gov Our Congresswoman has requested the TV advertisement for SINGULAIR to be changed,they are stating mild side effects and that is not known to be true at this time.I am reaching out to all of you who have posted and that know anyone who has ,to please do this along with filing on ******.We have to work within the guidelines of the system,this will certainly help the investigation to be more accurate.My husband and I are in this to help all the families that have suffered so greatly,take this opportunity to help also.Thank You in advance Kate and David M.

I have previously posted; my 17 year old son, A.J., committed suicide in October of 2007. I have filled out two FDA reports, written to Dateline and I will write to every that I can. I'm not getting an attorney. I don't want anything. If it would bring my son back, then yes, I'd put up a fight. I'm interested in providing medical statistics to Merck and the FDA. I'm interested in education and truth. I believe Singulair is a dangerous drug, no doubt about it. But I beg all of you, gather medical records and provide them to the proper entities. Be interested in education and statistics. Not money. It won't bring back the lost years when your child was miserable and bouncing off walls. If you've taken your child off of the drug, you have most likely solved the problem. Thank-you. Kate Kendle

Here is some perspective for you all. I take Singulair and do well on it and in ACTUAL studies it has one of the safest safety records. Understand that post marketing reporting does not mean there is a correlation between the event and the product. Throughout the life of a drug the companies must disclose any report of side effects reported to them REGARDLESS of causality. A popular antihistamine that is OVER THE COUNTER also has suicidal thinking/behavior listed in its post marketing section. However, just because patients who had reported having these thoughts while taking the product doesn't mean it was a result of the product! Maybe they had a depressive personality and were also on multiple other medicines to treat that. You must look at the "Adverse Reactions, Warnings and Precautions" sections of package inserts to see the side effects that were actually seen in studies. You can die from ulcers derived from over use of aspirin or ibuprofen. Decongestants can throw off your blood pressure and these events are documented in actual studies! Listen to your bodies when taking any med. If you feel differently report it to your doctor.

These are all drugs people, there are potential side effects. There are also side effects to those "natural" over the counter remedies that are not nearly as regulated by the FDA or studies by the drug companies.

To anyone out there who has experienced side effects to singulair timed to when you started it, talk to your doctor, stop taking it and see if it goes away. Same advice for any product prescription or over the counter medicine. Side effects can be a combination of many factors (what other meds are you taking?) But understand for many people this product is the safest and most effective treatment for them. The FDA and Merck are reviewing all information to see if there is any correlation to the reporting. But singulair been around for about 10 years and prescibed to billions of people and is known to be one of the safer medicines out there overall.

In between the legitimate posts on this site I get the sense there is a lot of ambulance chasing going on. People looking to cash in on this big drug companies. We want drugs, we want them cheap and with no side effects which is not a reality. Keep stepping up the regulation and make the companies hire more lawers to protect themselves and jump through even more hoops and see what happens to the price and access to new meds. Even better, see how regulation has impacted the development of new medicines around the world (here's a tip, it will dramatically decrease). Drug companies certainly aren't perfect but which industry is?

Please, when taking any medicine over the counter, prescription or herbal supplement listen to your bodies to see if the potential benefits of the product outway the risks or side effects. Report any changes to your doctor.

Everytime I read these side effects, I am still amazed about how the stories are so similar. My youngest son and I went to the doctor today. I think my son's doctor does a very good job. However, he is still suggesting the Singulair. He checked for updates on Singulair. Since the "FDA" has not sent any information with some of these serious side effects, it is still the green light. That is fine. But, I will not be administering this medication to him or my other child. These stories and my sons' side effects are substantiated enough for me. I think it is a matter of time, and we will all blessed after its findings. I am reading all these side effects again because my youngest son is again sick with diarrhea and puking. This has been happening a lot this year, and he is suppose to be taking the MAP testing. This stresses me since he has missed so much school. Last year, for quite some time he suffered with separation anxiety, and it took my husband and I forever to get him to school. Sometimes when we got him to school, he would not get out of the car. Sometimes we had to go inside with him and negotiate to get him inside the classroom and try to tell him we would be fine. One morning it was two hours, and another morning I finally left the school with him and took him to his father. I was exhausted!!!!!!! The school counselor would try to help too. I just do not think this is my child's disposition......................

If anyone lives in the western New York Area and want to get in on a class action lawsuit along with My family contact me ASAP!

I have already consulted with my lawyers office and they are going to consult with another firm from Buffalo.

Get all of Your child/childrens medical records together!

Email me at behindthesecret AT gmail .com with Singulair lawsuit as Your subject.