Medical science symptoms and conditions

I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.

I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.

I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.

I am a male 45 years and used simivastin another statin for three and a half years. Over this time i had severe muscle pain at time then about 4 months ago the muscle pain in my legs came on with a vengeance. It started in both thighs then calfs got very tight sore ankles feet and eventually got in to my arms. A deep achey sort of a pain and an irritability that casesa feeling like a toxin in my inside elbows that makes me want to stretch all the time. I feel very weak compared to my former self. I tried many things to alleviate the pain but nothing really took the pain away or even decreased it much. sometimes i would lay and groan in agony. I especially noticed that draghts and weather changes made me feel worse????. I stopped taking the simivastin 6 weeks ago. I have not had a lot of improvement but must admit thet i have been trying to push my self over this and probably done more damage. My ck levels are normal but my liver enzyme is increased a little. I started also to take q10 and L- carnitine along with magnesium. I might be improving a little each day but nothing definite. I saw a rheumatologist who has no diagnosis and isn't to committal on whether the statin is to blame. He put me on celebrex which has finally given me some relief. Can anyone relate to the worsening of symptoms with cooler changes in weather? and is there anything else i could do to hasten recovery? Thank you to all contributors on this board although it is the first time i have contributed this board has been a scores of help to me.

I had muscle aces and pains most of that time but near the end of the 3 weeks I would loose the use of my left arm for periods. I would feel faint and very weak. I have had restless leg since I was a child but my legs got much worse during the 3 weeks. Finally I remembered that if you had muscle weakness you were to stop Zocor so I did. The daily muscle weakness gradually went away but I developed severe restless leg and had to go on Requip. I also started having face spasms and “turrett” type spasms in my legs that would travel up into my arms and hands. My hands would clench and I couldn't talk plain. My head would jerk and my body would shake inwardly as if I were freezing. These symptoms were worse when I was stressed or got too hot. Eventually I had to quit my job, it was very high stress. Five years have past. I now stay home and garden and paint. I very seldom leave my home and my stress level is low but when I do get into a stressful situation I still have to deal with the “loss of control” over my body. My sleep is a nightmare every night. My restless leg syndrome is getting worse and I've had to increase my Requip and will probably have to do so again soon.

My cholesterol is very high and my doctor keeps trying to get me to go on some meds for that but I would rather die than add to the painful, exhausting struggle I go through now because of what Zocor did to me.

I have been on Zocor 40mg for many years and doing fine with it, until my doctor thought it was not working that well, hence, switched me to Lipitor 10mg. After a few months I developed severe chest pain along with neck pain. It felt like it might have been a heart attack, but it lasted more than 24 hours. I was admitted to ER for 1 night in the hospital and released the following day. They checked my heart and found it was fine. They ran my blood work, chest x-rays, cat scan and checked my lungs. All O.K.!!! The next morning they told me I had Slight Diabetes and an Under Active Thyroid and thought Esophagus Spasms were the cause of my pain. OH yeah, I also told them it hurt more with each breath of air I took in rather than out. It did not matter to them. They gave me Protonix 40mg because they thought it would reduce acid reflux to the esophagus, thus reducing my pain. Furthermore, they gave me Synthroid 25MCG for my Under Active Thyroid. After about 10 days of these medication plus LIPITOR, I had a recurrence of the same pain. I decided to research and came across this Website. I stopped the Lipitor and the next day my pain was subsiding. By this evening, my pain is almost completely gone. I am scheduled to have an Endoscopy in about a week from now and I am hesitant. Are the pharmaceuticals and physicians in cahoot with each other. I can't believe I was required to take all these tests and even more tests before the pain started (EKG, Heart Monitor, Nuclear Stress Test, Heart Scan and Angiography). Did I forget to mention I was diagnosed with High Blood Pressure and put on X-Forge a few months before all this started, but I was taken off it because of side effects (dizziness, lethargic, and so on). I did research on X-Forge and it said to NEVER use it as a first method of treatment for high blood pressure. I also was having pain under my right armpit. WHY DO WE HAVE TO SUFFER LIKE THIS BEFORE ACTION IS TAKEN TO PREVENT THIS FROM HAPPENING TO SOMEONE ELSE. Well, I guess it's just the price we have to pay before we decide to do things OUR WAY!! GOOD LUCK TO ALL OF YOU! THANKS FOR THE POST! PS. Can't wait to see what my Endocrinologist has to say about me next month $$$$$$$$$$$$$$$$$$$$.

I was prescribed Simvastatin four days ago, against my wishes, as I had heard about the side effects of muscle pain and numbness in the joints and feet. However, what I had not expected were the terrible nightmarish dreams that followed. On the fourth night I stopped taking Simvastin as I was literally too afraid to go to sleep.
I then slept fitfully but did not experience the vivid and disturbing dreams of the previous three nights.
I shall ask my doctor for alternative medication. If she cannot offer me anything other than statins, I shall stick to Benecol and research further!

Jacqui M.

I was prescribed Simvastatin 40mg four weeks ago and had horrendous side effects almost immediately eg deep depression, diarrhea, bad stomach aches and night cramps in my legs. Last week my doctor prescribed Lipitor 10mg and I feel no better in fact probably worse. The worst side effect for me is the stomach aches and constant diarrhea and complete lack of appetite. There can be absolutely nothing in my stomach any more. Does anyone else have these symptoms? After reading peoples experiences on here I feel I should stop taking this medication immediately!

Karen

I had 95% occlusion of the major artery in my heart July 2007 with no symptoms except slight shoulder pain on 3 occasions. They did a cath and inserted 2 stents. Started with Lipitor 10 mg. and my LDL dropped from 75 to 112. The MD wanted to double the dose, but I refused because of intermittent nocturnal nausea. MD switched me to another statin and I had immediate muscle involvement and severe nausea at night. She wanted me to try another statin drug and I refused. After a 2 month period of no statins, she put me back on Lipitor 10 mg. daily. I decided to cut the pill in half and take it twice a week, then move to every other day and gradually go to 10 mg. daily. Immediately, the nocturnal nausea started again. Last night I awoke at 2 a.m. with nausea, sweating, sore muscles around my rib cage. Still no sleep at 4:30 a.m., so I got up and tried to eat something. This has been the pattern every night since I went on Lipitor.

I don't know if I can take this any more.

CK

i am a male 48 years old and have been taking zocor for only one month now and started getting a lot of heavy headache pain, and nausea,sinus headache and not feeling of working. ever since i feel always tired and not been able to proform at work also i m constipating with no bowel movements .

I have been taking Simvastatin 20 mg. for about two and 1/2 months now. It really lowered my Cholesterol but I have been extremely fatigued and now I am getting really dizzy when standing up and having some nausea.

I have just been told by my primary care doctor that he cannot continue to okay any more time for me on my state disability.

He asked if I was going back to work ( I've been out 6 months ) and I told him my legs are still so weak and sore so often I cannot be on them for more than one to two hours without them feeling like they are going to go out from under me, as well as my arms to a lesser ( 50% ) degree and often the rest of my body if I do anything physical for more than 1/2 hour to one hour. And that I was also still totally depressed and feeling I could have an anxiety attack at any time which I do maybe every 3rd, or 4th day....so that no, I could not work at this time. I was still feeling about as totally disabled as I ever have been in my 54 years.

I also told him my feelings about Levaquin perhaps being the cause of all this. He got very agitated and ended the visit and said it was not the Levaquin but I would not be able to understand his explanation as to why it could not be the Levaquin because of my lack of education in the medical science field.

When I said that every symptom I have had since the second day of taking Levaquin were symptoms that I have never experienced in my entire 54 year life and I wasn't having "any" of these during the 4 or 5 days previous to being prescribed Levaquin when I had the flu and beginning bronchitis, he just wouldn't even comment.

He just stood up and turned to walk away. Then he stopped and said, "look...one thing we are sure of...is that you have serious mental health issues, and that's all we can find outside of some maybe beginning Crohns Disease with the results not coming in until later next month from the U.C.S.F. Med Center tests.

My last comments that I "tried" to say to this doctor as he was walking away were that " Why would I have myself taken to our local ER 3 times in one week as soon as I started taking Levaquin with terrifying symptoms like all the ones you all are describing here on this board from incredible insomnia to massive weakness and panic attacks, etc., when even with the flu I wasn't feeing that concerned and my 54 year long local resident history does not show a pattern of ever having to rush to an ER that often? And why....WHY would he nor any of the ER doctors ever once give one seconds thought to the "possibility" that I was having a sever reaction to Levaquin...especially when the symptoms I was experiencing are ones that are listed as those that may occur to certain people taking this powerful antibiotic? Can't we even consider this "levaquin reaction" a "remote" possibility?

His answer..."no." " I'll see you in 2 months."

If this doctors comments and behavior towards me isn't the most obvious and disheartening conveyance of dismissal, what is? This doctor would love to have me just never call him back. And sadly, so many doctors are acting exactly like him in my case.

And I've never had a problem like this before in my entire life! BOy, if a doctor doesn't see something on a test...there minds shut down on any other possibilites. I think also they are constantly thinking about the insurance companies questioning them about care provided when they aren't finding anything. So the whole system is geared toward dumping you when normal testing can't find your problem...and doctors are so insurance comapny minded...much more so than patient minded. OR, there is something else in these doctors training or mind set , that makes them very quickly dump their patients into the "psychiatric" area when they hit a dead end. And to do this to someone who has never had to see a psychiatrist in their life before...is what I would call a complete breaching of medical ethics.

When your primary care doctor gives you the "psychiatric brush off" after 6 months of torturous suffering, it's a pretty tough place to be as far as encouragement and knowing where to go from here. You have to take a deep breath and muster up even more courage and you realize that every month with this Levaquin problem...you are more and more on your own to just suffer with it. What a sad weight to add to this already horrible nightmare.