March 18th
2009
10:23 AM
My 13 year old daughter had her third shot on 02/16/09. Her first two shots did not seem to be a problem. She said her arm hurt really badly after the shot, and the next day she complained of leg pains she hadn't had before. Within a few days, she had a high fever with body aches like the flu, except it wasn't the flu. She felt better, but a week later she still had a low grade fever. She was tested and had strep throat, and was treated with anti-biotics. A week later she started having stomach cramps and diarrhea. It's now March 18th and she still has diarrhea. I think it's criminal this vaccination is being given to our young women. How on earth could anyone think "possibly" preventing HPV and/or cervical cancer is worth the risk of what my daughter and so many others are having to go through?
-- By rgstone83 | Reply | (5) replies | Private Message me
December 10th
2008
6:51 AM
I was encourage when i read the post of the lady a few posts down,who picked up her prescription and it was covered in stickers telling her of post market side effects,a long time coming yes ,but it is happening none the less.Several articles on merck have noted flat Singulair sales,due to safety concerns,the word is getting out slowly but surely.I know we have been frustrated with how slow it is all happening,but it is happening.One of our hospitals here in cleveland now will list a doctors affiliation with a pharma company,important news for us that know what the implications of that could mean.We have had an education in the medical system,which quite frankly i found shocking,i don't think any of us will every fill a prescription again with out research,we have learned ,we are not the same,we must continue to change a system that is broken ,the dollar must be secondary to the health of all of us.I again urge all that still have issues to file a report with the fda,Keep on fighting
-- By flindy | Reply | Private Message me
October 10th
2008
9:15 AM
I have been on Ortho Tri-Cyclen Lo for 9 months. I went through a major depression last spring. I was diagnosed with MAJOR DEPRESSION and went on anti depressants and on sick leave from work. Now looking back it seems there could be a link with the birth control pill. Around the same time I started taking it, I started having such bad MOOD SWINGS, ANGER control problems, ANXIETY and fatigue. I was always getting angry at my boyfriend and picked fights. No more sex drive either. I spoke to my GP, to a psychiatrist and to my pharmacist. I asked them "should there be a link with the pill?". Each and everyone said "no", "highly unlikely". Nobody suggested I try stopping the pill BEFORE starting anti depressants. I got a second opinion from a other doctor. THIS is what he said to me:" you'll be very depressed if you get an unplanned pregnancy." the thing is ladies, they DON'T WANT YOU OFF THE PILL BECAUSE THEY DON'T WANT UNPLANNED PREGNANCY. THEY DON'T WANT YOU OFF THE PILL BECAUSE IT PAYS A LOT MORE TO PUSH PILLS THAN TO RECOMMEND OTHER METHODS (pharmaceutical companies giv big incentives and gifts to doctors). THEY DON'T ENCOURAGE YOU TO LISTEN TO YOUR BODY.
I'm going off the pill at the end of my pack and am giving myself a couple months to see if I feel better. then I am going off the anti depressants.
October 3th
2008
10:36 AM
Today is 4years exactly that Matt had his one and only asthma episode,that sent us done the road of singulair disaster,7 months of the drug now thanks to Kate who went public with her story.Each new day brings more hope for a full recovery,although the road is long and strewn with guilt and anger.First i was angry with my doctor,then Merck now the FDA,but the guilt always stayed with me.Ive spent hours on wouldas couldas and shouldas but none the less it is what it is.I have had an education in things i really didn't want to know,the medical system,the justice system,and our government.I have written hundreds of letters reported 3 times to the FDA,never a response other than your email was received,called and reported to Merck twice,they were always ready and willing to take my info,so today i wrote to the FBI asking if they could investigate corruption at the FDA,proberly they will laugh and trow it out,or maybe even put me on a list of some kind,but i will leave no stone unturned until some one explains to me how this happened in America
-- By flindy | Reply | Private Message me
August 15th
2008
5:38 AM
I started Eltroxin/Levothyroxin a month ago. I was warned about side effects to my eyes which started watering and stinging then my nose started to drip. Suddenly I crashed into depression and am having trouble stabilizing this so everyday I feel unwell. I am also having hot flushing at 68years of age! I haven't the energy to do much.
Have found that the brand Goldshield made in Britian has few side effects so will be paying for these rather than be miserable all the time
-- By lome4 | Reply | (1) replies | Private Message me
April 21th
2008
6:32 AM
I've also been prescribed Advair, two puffs, twice per day. What dose are you on? I was on 250 two puffs, twice daily and was actually told that this was not even the highest dose that you can be on. I didn't like the idea of taking more than the original dose I was prescribed and so my specialist told me to add in Flovent, which I did help. Even after all of this, I still do not like the drug at all and am trying to do my best to say off of it.
On another note, has anyone experienced severe asthma symptoms (very bad wheezing, coughing, chest tightness) BUT had a perfect oxygen saturation level? I have been in and out of the emergency ward for the past week and a half and am getting very frustrated with not only the medical system not treating me because of excellent oxygen saturation levels, but with their treatment plans for emergency. I can remember a time when I would walk into the emergency room and be seen almost immediately and be given a mask treatment as soon as I got in there. I'm guessing that treatment plans have changed as I have experienced three hospitals prescribing anywhere from 4-12 doses of ventolin.
Anyway, if anyone else has had similar experiences I would love to hear your story and what you did to get through it.
Thanks!
-- By jenbates35 | Reply | Private Message me
April 15th
2008
12:55 PM
I just saw this post and it makes me feel ashamed of our medical system which includes everybody.
about 12 hours ago on Apr 14, 2008 by jerseymomma, #7220
My boss has been in contact with all of the top law firms in the NJ & PA area. We want to make sure that we give you info thats actually going to help and not send you to some bloodsucker. When you file an injury suit, there is no money out of pocket. The lawyers only get paid if you win your trial or the case settles (so if you loose-- u dont loose anything either). And as a heads up, if this is something that can be proven to a jury, the suits take fooorrrrever. I think that is the worst part for the families that I personally have dealt with regarding liability suits-- u want closure and you want answers but it takes so long to get them!
Let talks about the "everybody knows category" of the pharmaceutical industry.
1. Everybody knows that: There are many compounds that never go to market for various reasons. Even back then, no pharmaceutical company wanted to spend money on a drug that was not as chemically "reliable" (I chose that word to encompass many things) as possible in all of the known interactions that could be expected in clinical use. The categories are also "everybody knows."
2. Everybody knows that: Merck did a lot of testing for "reliability" on Singulair. But Merck also did a lot of testing on Vioxx. No conclusions can be drawn from this per se.
3. Everybody knows that: Even back then, important decisions were being made as to whether to market a drug that related to how body enzymes metabolized that drug (meaning utilize the drug and then break it down so that the body could eliminate the waste products.) Genetics differences between different people were a factor that were also put into the decision making process.
4. Everybody knows that: clinical variations in efficacy and side effects can be a result of different factors. Some might include 1. genetic differences 2. drug-drug interactions 3. improper use 4. diet - take the grapefruit juice example. Those are just some.
What we don't seem to do in this country is adequately monitor post marketing complaints? Why did it take five years to find out about Vioxx? If we did monitor more carefully, could we identify some thing that was overlooked or the technology has changed so that it is easier to identify what is wrong?
When there is a problem, there is no way that we should go back to the same company for an explanation of the problem. Everybody knows that many companies work on the same category of drugs. Sometimes those companies encountered some road blocks and they abandoned the drug category. The FDA ought to require everything from everybody to get to the bottom of the problem. And also hire independent evaluators.
The next part of what I have to say is just a hypothetical - a FICTION like a WHAT IF. This is just to make a point. What if another group got different results for the metabolism studies? What if another group decided that the drug was not reliable because a hydrogen bond at a certain location could be influenced by too many different factors to be able to accurately predict what would happen?
So why do people have to hire lawyers, when the FDA should be doing it's job? There are many specialities of law just like the doctors. Does getting to the bottom of this problem require the lawyer-chemists? Why is it their job?
December 20th
2002
9:38 AM
To the mother of the child for whom Neurontin acts like speed:
Neurontin takes away irritability (or nerve-firing threshold) of the involuntary muscular system, and it sounds like the physical phenomenae is just another manifestation of the seizures for which she had the drug prescribed.
Poor kid, those side-effects sound TERRIBLE, and as her mother I would immediately talk to her doctor about change of dosage, or something else -- anything else -- the effect N has on her shows it's either not the right thing for her problem, not enough dosage, or another not-yet-understood indication of inappropriate treatment. The fact that she has headaches indicates it's not just her Mom's unwillingness to deal with a hyperactive kid. Having-headaches means it's poisoning her system. Please act as her advocate and protector in this matter.
And it's NOT the last-ditch treatment for seizures: ask her medical team about surgeries. If they won't do that, then either find new doctors who will give you access to everything possible that modern medicine can provide to help seizures, or explain the trade-offs of living with medicinal side-effects and the risks of surgery.
Jan S. Kauffman, Neurontin userid, parent and grandparent, Masters in Counselling, certificate in elementary education, survivor of decades of fighting the American medical system
-- By jank | Reply | Private Message me
Singulair (3) Advair HFA (1) Ortho Tri-Cyclen Lo (1) Avelox (1) Neurontin (1) Gardasil (1) Eltroxin (1)
June 5th
2009
3:06 PM
I was prescribed Avelox day before yesterday for an upper respiratory infection and took it for two days before calling and asking to be switched. I experienced severe sharp pains in my hips, lower and middle back, and a few in various places in my legs. My eyes can't tolerate light and I am experiencing right arm numbness, weakness, and disorientation with movement. I'm sure this drug works just fine for some but my pharmacist says some people are just not good candidates for it. Shouldn't there be some sort of process for finding out who those people are instead of treating us all like guinea pigs? I feel like we operate within a medical system that decides to shoot first and ask questions later.
-- By quigly11 | Reply | Private Message me