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50 Side Effects posted for medical world

July 24th
2009
3:13 PM

I know this is long, but I could really use your help, so I would appreciate you taking the time to read through to the end. (thanks :-) )

First, I want to thank everyone posting. I needed to read this stuff because I'm absolutely terrified of what's happening to me. I'm on the second week of my very first pack of Loestrin- my very first birth control pill EVER. I didn't want to start, but my OBGYN encouraged me to, once I told her I had 8 day long episodes of clots, cramping, vomiting and just sheer misery once a month. She said this would help if I'm sure to take it as recommended.

So I took the first one the Sunday after my period started, at 8:45am and have taken it religiously since. I have not changed my diet or routine. I exercise and eat fairly well. And there are no particularly stressful factors in my life. I am also quitting smoking- just down to 2-3 a day instead of 10 or 15.

Now that I've been doing this for 2 weeks, I think I would rather suffer what I had before. At least it was predictable! I have been bleeding for 5 days now. And this is NOT my time to be on my period. I'm sad and tired. I have back pain and on-and-off cramps. I have nearly no sex-drive. My boyfriend and I had sex at least 4 times a week and I masturbated on the nights we didn't. And although he is INCREDIBLY supportive, I can tell he feels lost and helpless around me. I don't want him to touch me, hold me, or even breathe on me! Normally, we are very affectionate and I am active and fun. Now, I just want to be left alone. I feel fat, unwanted, dirty, depressed...the list goes on.

I feel as though there is something seriously wrong with my body, because I shouldn't look or the feel the way I do or bleed like I am. I called the doctor and she said that I should give it till the end of the month. But 1 month is a long time to live with a depressed quality of life. 1 month is a long time to cry yourself to sleep with alcohol and Motrin.

I feel angry that the best the medical society can do is give us something that is trial and error, fully aware that it may hurt us, though temporarily, and make the lives of the people around us miserable. I am concerned the even my doc is in the pocket of some pharmaceutical company to give me a drug that she said would help and has only hurt.

Or maybe I'm just paranoid...

Anyone have any encouraging reasons why I should continue this? My sister, who was on Ortho for a while and DIDN'T like it, suggests that I stick out a little longer and I trust her opinion, but would like more. I'm open to suggestions or comments. (Especially if you know a way to stop my period so I spend less days of the month on it than I am on...)
Thanks :-)

-- By natacha | Reply | (4) replies | Private Message me

November 9th
2008
1:42 PM

Hi everyone....
I just had the Mirena inserted Friday...primary reason was easy birth control and second was because I did not want to take estrogen. I'm 29 and do not have any children so the insertion was pretty uncomfortable to say the least. I'm good with pain but this was intense...if that's anything like childbirth no thanks! Thank goodness its over quick. Anyway, I had some cramps afterwards for that first day and my whole "area" felt like it was clenched in fist...really tight and sore. I took Motrin and used a heating pad for my cramps. The next day I was good as new...no cramps, barely any spotting. So although it's only day 3, I'd say my experience thus far is totally manageable. Everyone's body is different. I've been through the ringer already with my hormones...been put on lots of different forms of progesterones to regulate my cycles and even premarin at one point...I know what hormones can do. If it's not working for you, you're not crazy!!!! Just tell your doctor you don't like it, you won't have it, and get it out! You've gotta be your own advocate in the medical world. No woman should put up with feeling like a lesser version of herself at the hands of birth control.
I'll keep yas posted as time goes on...I see that some women start out feeling great then get issues down the line.

-- By brenjamin | Reply | Private Message me

October 4th
2008
3:00 PM

As a Doctor myself I think drugs are NEVER the answer except in EMERGENT issues in Heroic life saving... YOU however and all individuals are and should be MORE accountable for your own health and STOP DEMANDING the Drugs and look to LIFESTYLE changes in DIET and EXERCISE to achieve the GOALS so necessary for quality and quantity of life.... The tools are at your fingertips ... The almighty internet ... And your OWN imaginative mentation is your TRUE limitation... So TAKE control of yourself and BE accountable .... Sorry so blunt but MORE tough love and Educating people is whats needed.... NOT more drugs....

MDG

-- By traumaerdoc | Reply | (28) replies | Private Message me

August 22th
2008
8:54 PM

My son, who just turned 14 this month, was on Singulair for over 2 years.
He was diagnosed with reactive airway disease and possibly Asthma--and prescribed this awful drug-even back in 2004. The doctor said how wonderful this med was and prevents any further attacks.. So, for 2 years-every night, he took this mood altering, destructive drug. He lost all interest in school, his athletics-soccer, skateboarding, biking..in fact became almost a vacant , very unhappy, child-had stomach aches, joint pains and reflux--why--I brought him to the doctor and Pediatric center so frequently--all they kept saying his --his asthma is better, much be other issues...Even after the March 2008 suicide--his doctor said-that is just an isolated incident-just monitor him--It is a good drug. Right, month by month his behavior escalated to wanting to die, no reason to go to school-he said he was stupid and a failure and why don't I understand there is no reason to his life. A usually happy fun-loving boy -my son- didn't want to live. Nothing made him happy-I started to believe what the doctors said--maybe something or someone at school (bully, pedophile??) caused this change. Terrible nightmares and vivid dreams...Until this past July, I asked him want to go to the library for some books or dvd's...he went ballistic-threw everything off his computer desk and tried to break his chair. He is not an aggressive boy but this behavior was becoming a daily issue. Along with everything flying off his table, was his bottle of Singulair pills. It then dawned on me..I have been poisoning my only son. The child I know and love and gave birth to returned within a few days--although I am worried sick about further asthma attacks --all the doctors can prescribe is a steroid drug-asthmex or Pulmicort.. I cannot understand nor comprehend why this drug is being prescribed for children and young adults. The guilt I live with is terrible as my son has lost 2 years of his life--
and thought there was something really wrong with him-At least we woke up---in time--how about some other parents..thinking it's just normal adolescent behavior for their child or their fault???

-- By wakeup101 | Reply | (7) replies | Private Message me

April 29th
2008
1:32 PM

(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.

1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.

2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.

3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.

4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.

5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.

I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.

-- By aussie63385 | Reply | (9) replies | Private Message me

April 11th
2008
11:13 PM

I talked to my childs Dr today and she had no idea about all the problems with Singular but she did recommend that I take him off of it for a couple of months just to see if it helps with some of his symtoms or all of them.. But I also find it very discomforting that drug reps that promote these drugs to dr offices usually have no pharmacutical background at all that all they do is go tell the drs what they were told about the drug.. I think there needs to be guidelines in place for drug reps to have some sort of pharmacutical knowledge and background before taking these drugs to drs to get them to give it to us as adults and more for our childern something needs to be done. How many people have to be hurt before they take notice...
My thoughts a prayers go out to everyone who is dealing with this nightmare if you all are having as much problems with your children as I am we and mostly our children need all the prayers they can get.....

-- By kitkat08 | Reply | (2) replies | Private Message me

March 9th
2008
4:11 PM

I really felt the need to post my story about Advair. I started having seizures 2 years ago. I have been seeing a neurologist since then. In the mean time, I have been working with a lung specialist for asthma/COPD. I was placed on Advair. Over several months I started experiencing vision changes, muscle pain, muscle cramps, headaches, weight gain, confusion, trouble speaking, constantly clearing my throat, severe pain near my left armpit, with sever muscle tightening. The muscle tightening was so severe that my arms and legs started moving and twisting by themselves. This is called agentatious movements. The neurologist has been putting me through a battery of tests because these symptoms can be from a severe neurological disease. As of now, I have been passing them with flying colors.The neurologist thinks I am faking, or these symptoms are a figment of my imagination because he cannot find a reason for them. That's when I decided to start checking the side affects of all my medications, and found this site. I have printed off all the stories that match my symptoms and will take them to the neurologist to prove I am not a nut case, and them I will see my lung specialist and take care of getting off the Advair. It does work, but there has to be something else in the medical world than can help us breathe without feeling like we are dying other wise. I want to thank everyone for putting their story out there is is a great help to know you are not alone. Good luck!

-- By angelgait | Reply | Private Message me

February 18th
2008
1:28 PM

About eight to ten years ago i had a violent reaction to lactaid. I had taken it numerous time before with no problems and then I woke up one morning - had a bowl of cereal and a lactaid pill - within the hour I was experiencing severe stomach pain along with vomiting and diarrhea. I thought it might have been due to the fact that i had had very little to eat the day before and only a bowl of cereal that morning with the extra strength pill.

the following weekend i was brave enough to try it again with some ice cream at night (this time i had a full stomach from dinner). BIG mistake - this time it was worse - the stomach pain was out of this world (i have a high pain threshold but this had me in the fetal position) and i couldnt leave the toilet and trash can for a few hours. My girlfriend was scared and called one of those nurse hot lines. they told her to coat my stomach with some kaopectate - which seemed to help. I checked the bottle of lactaid - and the expiration date had passed - so i threw it away and swore off of lactaid pills. fortunately they came out with the lactaid milk!

Fast forward to now - never touched the stuff again. well the other day I was out of lactaid milk and my wife (yes the same girlfriend) had picked up some samples of lactaid pills at a trade show - so I guess with the passage of time - I forgot how painful and miserable the other experiences had been - so i took the pill. Nothing happened!

Last night i decide to take another one because i had a craving for ice cream (had been awhile!). I figured it was ok since i had no reaction a week ago. Well sure enough - within the hour I was on the floor in severe stomach pain - followed by vomiting and diarrhea. This time we had kaopectate in the house - so i started taking it - well i just threw it right back up.

This episode lasted about an hour and a half this time. There was a metallic taste in my mouth about the third time i vomited, and the fifth and final time, there was puddle of yellow liquid that came out at the end.

-- By pocoloco | Reply | (24) replies | Private Message me

October 18th
2007
10:55 AM

Have been suffering from bad muscle cramps in the back of my calves, Cardiologist trying to find out why. I believe it is from the Lisinopril (40 mg a day). He has taken me off of Vytorin, that hasn't helped. pharmacist believes it is from the Lisinopril, my primary doctor doesn't think so but I am glad that I have my Cardio b/c he will try anything and believes in side affects that meds can cause, since reading all the other posts I can't wait to tell him and hope that is the answer. I miss walking and right now can't go a half mile without severe pain in my leg calves

-- By prepgirl | Reply | (1) replies | Private Message me

October 10th
2003
6:43 AM

I've taken Levaquin before with no ill effects. This time around for a sinus infection...I'm 5 days into tx and last night I couldn't sleep at all. Severe insomnia, worse than with Sudafed. Was restless and agitated. I didn't like that very much but I successfully zeroed out the effect with a sleeping pill. Still, I'm considering D/C'ing the med since I never had this effect before. I don't know...it's a very effective antibiotic.

I agree with a lot of people posting to this group who realize that all medications, even innocuous aspirin, have severe and sometimes even deadly side effects. In the medical world, we all have to practice the "buyer beware" creed: Research everything that goes into your mouth. Figure out what literature and the public is saying, learn how to interpret side effect percentages and put it in perspective by looking at side effects for OTC meds, too. There is hardly a single med out there, Rx or OTC, that hasn't caused *someone* to have a severe side effect, but we need to evaluate which side effects are acceptable risks and which not. Weigh the benefit with the risk.

Minor illness + large % irreversible side effect = don't take it.

Deadly illness + large % irreversible side effect = what do you have to lose?

Anything in between is a judgement call between you and your brain....

I agree...Drs. should tell us more about these things...but since we all know by now that the medical establishment is being driven more and more by HMO attitudes and Drs. are driven to prescribe drugs based on the basket of brownies and free samples that the cute drug rep brought in this week, let's just agree that it is now OUR responsibility to figure this stuff out for ourselves.

I's a sad state, but the medical establishment is not going to change. We all need to realize that we are the last stop on the road between sickness and health.

-- By bikergirl | Reply | Private Message me


 

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