April 28th
2009
11:07 AM
I had mine removed less than a week ago after using it for almost 2.5 years. Like most, I did my research post insertion (I'm finishing up my PhD and have always been very 'body aware') and thought I knew what I was getting into. I've had 2 children (now 11 and 13) so I'm familiar with the pregnant feeling.
My life has been pretty turbulent for the last 3 years (grad school, divorce, cross-country move, intense new romance) and I blamed my symptoms on stress. The last 9 months, however, have been relatively calm. With that background, here's the low down:
Long term symptoms (since within a few months of insertion): Mood swings (very up to very down), Depression (with poor response to treatment), Bloating, Bleeding (sometimes almost all month...mellowed after 1 year), Cramping, Hair loss, Vision effects, Mental fog (pregnancy brain), Weight gain (20 lbs in 2.5 years), Hip pain
More recent symptoms that finally tipped me off: Acceleration of mood swings and brain fog, Lethargy, Acceleration of wt gain (despite consistent workouts and diet), Spike in blood pressure (feeling heart beat in finger tips...like when I was pregnant...verified by nurse at removal appointment. Mirena documentation says remove it if you get a spike in BP), Panic attacks (totally irrational with no external explanation, lasted for days), Suicidal thoughts (SO not like me).
In just in the few days since removal, my mental clarity has improved immensely. Nothing like being foggy when trying to write a dissertation! My energy level is way up. While I've been working out regularly for a few months with continued wt gain, I can feel it coming off now, already. My moods are much, much better. Little things have been throwing me way off track for a long time. I had a couple emotional knocks last night that just rolled right off (no gruesome details, just know that a week ago I'd have been in a puddle of tears). My blood pressure is down and food cravings are gone. Hips feel much better.
Doc at Planned Parenthood said that she has seen a few women in her clinic who have had problems and wanted the Mirena removed (cost me $94). She thinks it might be the beginning of the wave. I had no idea that the hormones in the device could be causing so much trouble. Over the last year, especially, I have adjusted my whole life and lifestyle to stabilize my moods (and maintain a relationship with my very patient partner), not linking them to all the other symptoms. Ugh. I am relieved and angry at the same time. The difference, pre and post, is night and day.
FYI, I had a few hot flashes the day after removal, along with a mild headache for a few days. I was on my (light) period when I had it taken out and it's still tapering off. Moods were pretty rough the first afternoon post-removal (another suicidal rant in my journal) but consistently good since then.
I'm going to circulate a cautionary message with my girlfriends and grad student peers. I sure would have liked to have known long ago what was causing me so much trouble.
April 27th
2009
4:07 PM
First of all, a big thanks to all of you who have shared your experiences. I am a biochemist, with a background in pharmaceutical research...I chose the Mirena IUD after careful consideration of it's active ingredient, Levonorgestrel. The side effect profile seemed pretty acceptable...until I started to experience nearly ALL of them...I am 33 years old and had the Mirena IUD placed in October of 2008 after the birth of my second child in June of 2008. The initial reaction was to be expected...cramping, a little spotting etc...nothing to be alarmed about. I still have yet to have a period (which I really don't miss so no problem there) I never gave a second thought to this until now...for the past month or so (coinciding with the weening process, since I have been nursing the entire time, I believe the side effects were not as noticeable) I have been experiencing the following (that may or may not be related to Mirena as my OBGYN has so adamantly pointed out, but after reviewing your posts I'm willing to bet they're connected) and are in order of occurrence: Major, but temporary, hair loss after 2 months or so; Major respiratory infection lingering over a month with difficulty breathing, tightness and pain in the chest at around 6 mos; And in the past month, several instances of motion-like sickness/ nausea, dizziness, blurred vision, major impatience/ mood swings, loss of appetite (pregnancy-like symptoms...yep, I was thinking man I'd be pretty pissed if I was that 0.01% pregnant statistic), and as of this past weekend, my first aurora migraine with tunnel vision and serious nausea and vomiting, to the point where I went to Urgent Care...who referred me to the ER...who wants to perform a battery of tests including a head CT. I have an appointment with a trusted GP tomorrow to discuss possible root causes...but it is to coincidental that so many women are experiencing these same symptoms! I am certainly leaning towards having this removed. CAN THOSE OF YOU WHO HAVE HAD THIS REMOVED PLEASE RESPOND IF YOUR SYMPTOMS SIGNIFICANTLY IMPROVED OR WERE RESOLVED!!! THANK YOU!
These side effects seem to go well beyond a 5% rate of incidence according to all of you who have reported. I will investigate further and keep everyone posted. As someone who is highly experienced in the pharmaceutical industry, you bet your a$$ I'm going to get to the bottom of this! Good luck ladies!
March 15th
2009
12:39 PM
Hello Again,
This is my second post and was just wondering; How long has everyone been on doxycycline and how many mgs? How long have they been OFF it and has the depression/anxiety been better? PLEASE HELP!
Thank You
-- By greekboy | Reply | (3) replies | Private Message me
March 14th
2009
10:42 PM
Here's my horrible experience w/ Doxycycline Hyclate (100mg prescribed 2x day)
I only took 3 doses of this and vomited one of those.(there appeared to be blood in vomit) I was taking this for pelvic infection. I had severe nausea that came in waves. I also had severe drowsiness to the point that I could not lift my head up. I felt a sense of being "out of body" and extreme dizziness that almost made me feel like I was falling. I had confusion, disorientation, forgetfulness, and an inability to concentrate. I felt bone chilling cold, that alternated with sweating and hot flashes. My face, hands, and arms became puffy. I was very drowsy but could only sleep a couple hours due to insomnia. When I did sleep I had very weird and vivid dreams. I also felt a general sense of panic the day after I stopped taking it. This stuff was nasty and I will never take it again.
It is wonderful to have a forum like this to share stories and complaints but NOTHING WILL ACTUALLY BE DONE UNTIL REPORTED TO FDA. It takes many people reporting symptoms for Fda to even care or take notice. PLEASE PLEASE PLEASE HELP YOURSELF AND OTHERS BY REPORTING TO FDA. Go to www.fda.gov/medwatch. It is really simple to do and this is the first time I have ever reported anything. (and first time I had any major drug reaction). It is also confidential.
My experience on this drug after only 3 doses was very scary. I hope I will feel better soon. It is 1 1/2 days now after last dose. I will try to report back on here when I am feeling better. The half life for the med is about 18 hours, which means by tomorrow I will still have 25% left in my system. I am hoping after 2 more days I will feel back to normal. I have had as much water as I can tolerate and took dandelion root to help cleanse my liver. Take care everyone and remember to report any symptoms you had to the FDA at www.fda.gov/medwatch
-- By nodoxy4me | Reply | (4) replies | Private Message me
February 10th
2009
5:45 PM
I have been taking zoloft for 14 years for panic disorder with mild depression. various doses, but now im at 200 mg, and have been at that dose for a long time. it was like a lifesaver from my previous med, imipramine. i did have really vivid dreams, weird ones, for a long time, but not so much anymore. i think that the long term effect of taking it has taken a toll on my mental clarity/concentration, though. I feel like i can't concentrate on anything or complete a thought anymore. even typing this i feel like i'm getting lost. like i'm constantly in a fog. or it could be that i have 5 month old twins, lol, i guess. but really, its never been this bad.
i too feel like i have had some loss of emotion, not feeling sad when its completely appropriate to. and i've also had way too much emotion at the wrong times, flying off the handle at people and such. the worst thing is my dr. would ask me "what makes you happy, what do you do for fun?" and i would just stare at him with a blank look cause i had no idea what that felt like anymore. or maybe i couldn't think enough to answer him. physically i think zoloft makes me twitch - eye twitches, nose twitches, throat clearing. and i can't have an orgasm to save my life :(
recently i've been having some breakthrough anxiety and my dr. wants to add wellbutrin to the zoloft. if anyone has experience with this please send me a message. i'm kind of scared to do it.
January 2th
2009
11:52 PM
I started Wellbutrin in the beginning of December. Someone very close to me passed away and I developed severe anxiety with some depression. I took some control of it with simply taking Ativan, but the doctor insisted I get on something for depression as well. I didn't really understand why I need to take a pill when I was just fine before this event.... but ok, I agreed.
I was prescribed Wellbutrin XL 150 mg. I was optimistic about it. She said it might improve my focus, give me some energy back, had no sexual side effects.
I took it in the morning, and usually with at least something in my stomach. The first 3 days of taking it, I was severely unstable. I think if I didn't have my boyfriend, I would be dead right now. I would cry uncontrollably, for no reason, pace, have terrible anxiety... I remember going through my closet, throwing things around, looking for a belt, throwing a few on the bed and taking one and tightening it around my neck.. I then walked around and was looking for a place to hang myself.. Luckily my boyfriend got home because he had a bad feeling about what was happening with me... otherwise I, to this day, do not know what I would have done.
After the first 3 days... things sort of calmed down... sometimes I would feel "better" in little spurts the first week.
I also had my sex drive for the first 2 weeks and it was good. I still wasn't "happy" but the medication wasn't doing any significant harm.
In the 3rd week, I lost interest in nearly everything. I didn't want to step foot outside. I stopped talking to my family, stopped answering my phone, I would lay in bed for hours, thinking of depressive things. I began eating, a lot. Constantly. Which shocked me since it is supposedly supposed to suppress appetite. I stopped going to school.
In the 4th week, and last, things gradually, and then quite suddenly just went downhill. It started with me becoming very agitated, snapping at everyone. My mental clarity was out the window. When someone said something, it took me a long time to register it, if I ever did. Sometimes my boyfriend would look at me after saying something and I would realize, oh my god, he said something... I really didn't hear/listen anymore. I was brain dead to everything except these horrible thoughts of just wanting to die. As the days progressed in the 4th week, I became more and more depressed. If I had to describe it, I would say it was a mental breakdown. I would cry hysterically over nothing. Absolutely nothing. I couldn't think of a single reason. I would start to cry while brushing my hair, while eating, sitting, watching a movie... I would cry 20 or more times a day. I really wanted to die because I could not bear it anymore. I felt like this was the end and it was going to end.. I wanted to inflict injury on myself, but focused my thoughts on more "permanent" damage -- suicide. I became obsessed with buying a gun. I swear if I had one, I would not be here. I would hit myself, all over my legs, while sobbing uncontrollably on the floor. Days later my boyfriend would ask where the bruises came from because it would be in such a weird area that there was no way i walked into something... and I would tell him I had no idea, and I didn't..... until later I realized it was me, hitting myself.... I felt very depersonalized. I felt unpredictable and I felt that I was not sure what I was going to do next, I was afraid of myself and very paranoid. I lost my appetite and never wanted to eat, thinking of food made me nauseous. I felt sick to my stomach. My anxiety was through the roof. My mind wouldn't stop spinning with thoughts, repetitive... until eventually it lead to another breakdown.
With my luck, it reached it's worst around the new year when everything was closed and I couldn't get a hold of anybody. I desperately called mental emergency facilities but all they said they could do was commit me for at least 72 hours and I didn't want that. I just wanted this to end, NOW, not be trapped in another hell hole. My mental doctor was closed so I tried to see my primary care and he was too afraid to mess with anything and told me to double my ativan dosage (WHAT! Because of Wellbutrin, I went from taking .5 or less mg of ativan a day to taking 2mg or more and still, it barely did anything!), so I went to the ER, and they did nothing, except tell me that the only way to help me would be if I went to a hospital for 72 hours. I said NO. It is ridiculous to allow someone to get this bad, and to not help them immediately, instead leave it up to them, to either be placed in some state run down mental facility or kill themselves that day.
I got a hold of my doctor the next day and she switched it immediately.
-- By yellowdaisy | Reply | (2) replies | Private Message me
December 28th
2008
11:25 PM
I am also on lamictal, at the moment only 75 mg. My whole life I have had clear skin, and suddenly and getting these underlining bumps all over my face and chest. I am also processing information very slowly, have trouble finding the right words, and forgeting things constantly, and making mistake like crazy.
When I was first perscribed lamictal i felt great I felt like I was able to access my whole brain, and I had mental clarity. That lasted about 3 days and now I have had months of feeling like an idiot.. Let me tell you, this does not going over well in my job!
November 24th
2008
12:29 PM
I have found this forum to be the most helpful of all I have read about Levaquin. I have taken this drug for 3 days as it was prescribed for a lingering sinus infection. I am a healthy and active 46 year old woman with no medical issues. Since starting this drug, my body aches! My hips, neck, and legs are so stiff and painful. My mental clarity and word finding abilities are compromised. I wake up every 2 hours dying of thirst at night and last night my right side was numb, stiff and painful. I did have an episode yesterday (after only taking Levaquin 500 mg for 2 days out of the 10 prescribed) where in the middle of a meal for no reason, I felt as if I were going to vomit. I feel light headed and dizzy within 10 minutes of taking it but thought this may be due to the drug "opening up my sinuses". I have made excuses for the side effects by thinking it is either in my head or just me, but, after reading others experiences, I now realize it is the drug. I am going to stop taking it immediately and try the homeopathic route.
-- By eden | Reply | Private Message me
July 26th
2008
9:50 AM
I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.
While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.
I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).
-- By thom228 | Reply | (4) replies | Private Message me
March 16th
2008
9:44 PM
I was prescribed Advair a little over 3 months ago to treat my asthma. It was great for the first six days. No asthma symptoms whatsoever, even after jogging, and I felt great! I woke up the seventh day feeling as though my vocal cords were encased in an incredible amount of flem and my voice went from a baritone to a tenor; I'm a guy so this was disconcerting. During the second week I began experiencing nasal drippage, uncontrollable trembling, extreme physical weakness, memory loss, an unnerving lack of mental clarity and trouble maintaining my temper. The third week of using Advair I began struggling with overwelming thoughts of suicide. All of these things are completely out of character for me. I don't take any other medicine, prescribed or not, have always been healthy and am rarely sick so it was a no-brainer as to what was causing me to experience these things. I stopped taking Advair at that time (after the third week) and promptly developed a headache and other withdrawel type feelings in my throat and chest that took about a week to go away. I also promptly developed a cold that I could not get rid of for a month and a half as well as the flu which I hadn't had in years; I also had asthma related difficulties that were worse than before I started Advair but powered thru those episodes using Primatine Mist. In the month following discarding my Advair disk I noticed a gradual improvement in all the before mentioned Advair affected areas and thankfully the most immediate area of improvement was emotional (i.e., no longer suicidal). One of my vocal chords is still painful but at least I no longer sound prepubescent.
I started researching the side effects of Advair after the second week I was on it and found a reference to it possibly causing an overgrowth of Candidas Albicans. After researching that I'm convinced ultimately that is what I experienced.
-- By r_thompson | Reply | Private Message me
November 23th
2006
2:23 PM
My mother was given Toprol while in the hospital to lower her blood pressure. After a few days, she was completely disoriented and could not answer simple questions about the year or events that had just happened. The doctors thought it was just due to a combination of her age and the stress of being in the hospital but at our request discontinued the Toprol. Within less than a day, her mental clarity had returned.
-- By anemopsis | Reply | Private Message me
August 26th
2005
7:54 AM
I have been taking Wellbutrin Since April of 2005. My doctor prescribed it to help with overall stable moods (but I was not depressed and I told my doctor this) and for help in losing weight. I started with 150mg and experienced the following side effects:
Dizziness
Feelings like I had an urinary track infection.
My libido stinks anyway but it didn't seem to help or complicate anything sexual aspects.
I began taking 300mg about a week later. All of the above continued but the dizziness and urinary track infection feeling went away about a month later. However, these are the things I notice now that may be attributed to the Wellbutrin XL:
1. Extreme fatique that increases as the day goes on-I take my pill in the morning.
2. Difficulty concentrating and focusing. Mental clarity problems. I feel this affects my ability to work because I do a lot of writing. Memory problems. One example: left my keys in the car running until my husband noticed.
3. Sensitivity to light.
4. No wieght loss (as this was the reason I am on it), I feel like I am eating more and more often.
5. Physical weakness.
Among other things.
I must say that I am unsure as to whether all this can be contributed to the Wellbutrin XL. I had blood work done because of all the fatique and mental concentration problems. I was told that given the blood work that I might have arthritis, then I was told that I have a reactivation of MONO. Then I was told that I may have Lyme disease. Do I think it is the Wellbutrin XL? Right now I am weening myself off the drug. Taking half a pill until I reach my doctor to discuss this. Since taking less of a dose, I feel much better with more energy (not completing my self) and I feel I can concentrate.
We will see if the above side effects are in fact the Wellbutrin.
Good luck to all. For me, I am better off not taking Wellbutrin.
Regards,
Beth
August 22th
2005
12:36 PM
I have been on Topamax for a few months now. I can't remember exactly how long because, to be quite honest, I have the memory of a gnat since starting this medication. My neurologist prescribed this medication for me after I was finally put on medication for grand mals seizures. I had been having them sporadically since 1999. I also suffer from migraines and he said it would help with that, my weight and my depression. It sounded like a wonder drug until my dosage kept increasing up to the 300 mgs. he needed me to reach.
I became a lethargic, depressed and very detached, angry lump to describe myself best. I have had a difficult time doing housework and everyday activities like playing with my children. My depression was first improving but it took a turn for the worse and I have found myself feeling suicidal at times. I have suffered breast pain so severe I had to have a breast ultrasound done. Nobody ever told me that breast pain could be a side effect in women. My menstrual cycle has also been unpredictable as well since starting this medicine. I called my neurologist's office in inquire about this and they were unaware about this side effect.
My mental clarity is totally gone. My memory is so bad I have missed doctor's appointments for myself and my children. I have to write things down everywhere and have my kids remind me of things instead of the other way around. I find myself trying to form a sentence at times and it comes out like gibberish.
I stay on the medicine because my five kids were witnesses to my last seizure and it scared my oldest three so much they remember it as if it were yesterday. I made them a promise it would never happen again. The last medicine I tried left me with bruises all over my body and unable to get out of bed. If left with having to choose between the two medicines I have to pick Topamax. I can't be a guinea pig anymore. My kids need me to keep my promise and I have vowed to do so. If you could see what I deal with every night when I put my daughter to bed you would understand. She says she is afraid to leave me to go to asleep because she is afraid I will have another seizure. Being on this medicine is the reassurance I offer her to prove that everything will be okay.
I spent years on SSRI's trying to fight anxiety and depression and I suffered horrible side effects so I am at the point that I am willing to settle. Currently my dosage has been cut down to 250 mg. and my rage is pretty much gone. I am still depressed and somewhat lethargic. The good news is that I did lose 30 lbs. since starting Topamax. Unfortunately, Topamax doesn't do much for me in the way of migraine relief. Since my seizures are sporadic I honestly don't know if it is even controlling those either. I am keeping my fingers crossed.
My heart goes out to all of you taking this medication. I know how you feel right now. If you are lucky enough to get off of it and are able to find something else less stressful on your body then that is great. If you are in my situation and you feel as if this is as good as it gets, well, at least you know you are not alone. I know now that there are alot of us out there. I am not sure how much consolation that really is but it is something I suppose.
-- By babybooandzoebob | Reply | (1) replies | Private Message me
June 1th
2004
10:51 AM
I am 53 (female) and have been taking Lipitor for about 5 months. I haven't read the whole list below, but is anyone having problems with mental clarity and thinking that it might be related to the Lipitor.? I am experienceing short term memory loss and mental confusion. My M.D. is sending me for a brain MRI this week. While I don't fear this is early dementia, I am beginning to think it might be a side effect of the Lipitor. I stopped taking the Lipitor 7 days ago and it seems I am more clear minded.
I have felt a general overall "puffiness" since starting the Lipitor. This combined with the mental clairty issues are making be suspect of the Lipitor.
I also am experience an overwhelming fatigue. This too seems to have lessened since stopping the Lipitor.
My M.D. just stares at my blankly! I am starting to think I am really loosing it. Anybody having similar reactions?
Thanks for any responses!
Doxycycline Hyclate (3) Toprol-XL (2) Wellbutrin (2) Mirena (2) Topamax (1) Zoloft (1) Levaquin (1) Advair HFA (1) Lamictal (1) Lipitor (1)
June 14th
2009
5:45 PM
WILL THESE SIDE EFFECTS EVER GO AWAY, I BEEN ON THE COUCH FOR 3 DAYS CANT EAT? ANXIETY IS HORRIBLE AND FEEL LIKE IM DYING...HAS ANYONE EVER FELT THIS WAY AND IF YOU DID PLEASE RESPOND AND LET ME KNOW IF MY MENTAL CLARITY WILL COME BACK JUST FEEL OUTTA IT AND READ WHAT OTHERS WERE SAYING BUT WOULD JUST LIKE SOME FEEDBACK..... THIS DRUG IS RIDICULOUS I SLEPT 9 HOURS AND I AM STILL TIRED..
-- By staticmwp | Reply | (1) replies | Private Message me