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Mental fog symptoms and conditions

Here are side effects posted by other members, that mention mental fog.
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100 Side Effects posted for mental fog

October 31th
2009
1:58 PM

I am a 48 year old female with a-fib. I am not overweight...just started falling apart since now I am menopausal. I've been on Warfarin for 6 weeks. My INR has hardly moved. I'm now on 8 mg and have my INR test on Monday. I started at a 0.9. Now I'm at 1.20 and have been there for three weeks in spite of upping the warfarin. I've not changed my diet except to exclude greens and green tea when I began the therapy. Everything else is consistent.
I just started exercising again a week ago. Something I haven't done in five years since I lost my sister. I bought a Total Gym and enjoy it. It has helped me get some energy back, has helped alleviate some of the mental fog, and has lowered the incidence of anxiety attacks. (I've been getting anxiety lately...since the mental fog and memory lapses...that bothers me since I love to read and write and the mental fog seems to be taking the joy out of it now.) The reason I decided to start strength training again is because of the joint pain I have been experiencing lately. I didn't have it before warfarin. I do now. Only one joint, though. The strength training does help, but every once in awhile, that sharp pain comes back to visit. It's just a little less now.
I plan to tell the doctor that I have begun strength training again. Not just because it's good for me and my heart, but it seems to help with the side effects of menopause and warfarin...without adding another drug like an antidepressant.
Warfarin...I believe is a life saving drug. BUT, I have to do my part too.

BTW, if I didn't have triple thick hair, I would complain about hair loss. Right now, it's a non issue for me. Just saves money at the hair dresser.

-- By karenwest1961 | Reply | (1) replies | Private Message me

September 9th
2009
5:40 PM

I've had the mirena out now for close to 3 months. At first I was losing a lot of water weight - I had gained well over 20 pounds in 6 weeks after having it inserted. Unfortunately, I have plateaued in my weight loss, it's always easier to gain weight than to lose it, right? I still have numbness in my hands, to the point where I am quite clumsy, and I have spells of fatigue and dry-mouth. Before removal I had suffered from the anger and depression towards myself and others, and though it has improved significantly, I still have days where I feel like I could snap just because the 2 year is talking too much. I have found that a multivitamin in the morning gives me a little more boost through the day, and Motrin helps with some of the aches and pains. I'm not quite back to 100%, but I'm getting there. The hardest part for me to come to terms with is how poorly I've treated my boyfriend and our children because of the side effects. Even after 2 or 3 months without it I do suffer some of the side effects, but each day I can feel it starting to get better. I've even woken up a few mornings with feeling in my hands, instead of the tingling "sleep" sensation. All of this from 6 weeks of an IUD... Ugh.

All of the symptoms I suffered were made in previous posts including:
Nausea, severe cramping, severe mood swings, minor hair-loss, increased back pain - especially in lower and middle back, souring/reduction in breast milk, severe weight gain, fatigue, mental fog, vision changes, dry mouth, loss of libido, aggression towards others and myself, severe depression (thoughts of hurting myself), shortness of breath, hives and many more I'm probably not even aware of hahaha. Good luck ladies, this one is a doozy - and remember to report ALL symptoms related to Mirena to the FDA.

-- By becs84 | Reply | Private Message me

August 21th
2009
9:56 AM

I conducted a search for "long term effects of Topamax" and discovered this site, and am so glad to have done so. I have been on Topamax for around 2 years now, at the 200mg level, for chronic, sustained migraines. I have figured out, through tracking, that I will get a migraine lasting 3-4 days during ovulation and again on my period. The Topamax has helped considerably with the headaches, although I do still get at least one per month. It is generally not of the same duration, though, and is fairly easily controlled with pain meds.

I've been a bit worried, though, about continuing the drug for life, as it seems I need to do to control these headaches--thus the search. I, too, have experienced the "mental fog," and general decreased cognitive abilities. I am an extremely intelligent person, a writer, a former English teacher. Why am I unable to pluck words from my brain when I need them?

I've also experienced the tingling and numbness in various extremities, sensitivity to cold, blurred vision, fatigue, and loss of taste sensation. I've also become a royal bitch to my husband and children--although I had no idea that this could be related to this medication. I feel relieved to know this now...to know that I can change and be the person I once was. I don't like myself very much right now, but it's like trying to stop a runaway train. I can no sooner prevent or alter my knee-jerk reaction to things than I can stop that train.

I've been off of the Topamax for approximately two weeks now, and have already gained 5 pounds, although I work out 2-3 hours daily and play competitive volleyball 2-3 times per week for several additional hours. I had initially lost around 18 pounds and kept it off, even when my appetite returned. I'm uncertain, though, why I'm gaining the weight back so rapidly. I'm eating fewer than 1500 calories/day and exercising like crazy. It doesn't make sense.

I don't care about the weight, though. My chief concern is the return of my cognitive function. Has anyone experienced a return to their prior cognitive state after getting off of this medication?

-- By hintonrae | Reply | (1) replies | Private Message me

April 30th
2009
9:17 AM

I am a 44 yr old female. I have been on Zocor for 2 yrs. I have never had high cholesterol. I have a family history of heart disease and after my 44 yr old brother had a heart attack and the transplant, my doctor put me on Zocor as a precaution. I have had problems over the 2 yrs and have been to the doctor many times only to be dismissed as Oh, I need to lose weight, I need to get out of the house more, I need to exercise, It must be my depression....and on and on. I have never had a kidney or liver test in 2 years. I never knew I needed on and my doctor never tested me. I have over 30 symptoms/side effects of Zocor. I only looked into the side effects after my mother-in-law had muscle break down, an intestinal blockage and a ruptured bowel and almost died a few weeks ago. I couldn't believe what I found on this site. I immediately stopped the Zocor. I started to feel better right away but it was short lived. i felt great for 1 week and then it all crept back in on me for a week and then this last week I am back in bed with dibilitating fatigue and muscle weakness. I will now list my symptoms/side effects.
Shortness of breath; heart palpitations; droopy eye lid (left eye); eye lid twitch (right eye); optical migraines; numbness & tingling of my arms (from the elbows down) and my hands; My hands "fall asleep"; Itching all over; severe muscle weakness ( I have dropped things); muscle pain; joint pain (even the little ones in my toes); leg cramps; critically anemic (on 3 iron pills per day); ruptured ankle tendon (left ankle, currently being treated with a brace trying to avoid surgery); hot flashes/flushing; cold hands and feet; dizziness;, loss of balance; headaches; blurred vision; mental fog; confusion; loss of memory; loss of concentration; extreme and debilitating fatigue; insomnia; trouble staying asleep (wake every hour); huge weight gain; swelling of calves, ankles and feet; dark colored urine; gas; upset stomach; diarrhea; stomach pain; depression; anxiety; hair loss; bruises; mouth ulcers; back pain; tingling on top of head; heaviness in my thighs; EXHAUSTION! I feel like I am 100 yrs old. I have had nights that I thought I was dying and had panic attacks that I would not survive the night. I have 3 young children to take care of. I can not even put conditioner on my hair or shave my legs in the shower because I have to get out so quickly due to exhaustion. I have to lean on one elbow at the sink to brush my teeth. When I get out of the shower I can barely breath, I am wheezing, my heart is pounding and I feel like I will collapse so I have to get out and rush to my bed. I home school my 3 children and most days we do school in my bed. Everything is an effort. I can never plan anything because most days I am incapacitated. I may have a good day and can actually go out to dinner or Walmart once or twice a month and then I can't wait to get back home and get in bed because I am so worn out. I don't see how this drug can actually remain on the market. I am so angry and upset that my doctor never told me this could happen. When I asked about side effects I was told "oh no there aren't any really". My doctor never ran tests on me. I just can't believe this. I go tomorrow for blood work and I go to the doctor on Mon to discuss the results and all of my problems. I am so afraid that I have permanent damage to my muscles and possibly my heart. I went tot he doc months ago with shortness of breath and swelling and she did an EKG and said my heart was fine and I was not having congestive heart failure. I fear I was and still am! It is not normal to be out of breath just brushing your teeth and combing your hair. I hope we all get the answers we are looking for and that we all recover from this horrible drug. God bless you all!

-- By lisalucas0407 | Reply | (6) replies | Private Message me

April 28th
2009
11:07 AM

I had mine removed less than a week ago after using it for almost 2.5 years. Like most, I did my research post insertion (I'm finishing up my PhD and have always been very 'body aware') and thought I knew what I was getting into. I've had 2 children (now 11 and 13) so I'm familiar with the pregnant feeling.
My life has been pretty turbulent for the last 3 years (grad school, divorce, cross-country move, intense new romance) and I blamed my symptoms on stress. The last 9 months, however, have been relatively calm. With that background, here's the low down:
Long term symptoms (since within a few months of insertion): Mood swings (very up to very down), Depression (with poor response to treatment), Bloating, Bleeding (sometimes almost all month...mellowed after 1 year), Cramping, Hair loss, Vision effects, Mental fog (pregnancy brain), Weight gain (20 lbs in 2.5 years), Hip pain
More recent symptoms that finally tipped me off: Acceleration of mood swings and brain fog, Lethargy, Acceleration of wt gain (despite consistent workouts and diet), Spike in blood pressure (feeling heart beat in finger tips...like when I was pregnant...verified by nurse at removal appointment. Mirena documentation says remove it if you get a spike in BP), Panic attacks (totally irrational with no external explanation, lasted for days), Suicidal thoughts (SO not like me).
In just in the few days since removal, my mental clarity has improved immensely. Nothing like being foggy when trying to write a dissertation! My energy level is way up. While I've been working out regularly for a few months with continued wt gain, I can feel it coming off now, already. My moods are much, much better. Little things have been throwing me way off track for a long time. I had a couple emotional knocks last night that just rolled right off (no gruesome details, just know that a week ago I'd have been in a puddle of tears). My blood pressure is down and food cravings are gone. Hips feel much better.
Doc at Planned Parenthood said that she has seen a few women in her clinic who have had problems and wanted the Mirena removed (cost me $94). She thinks it might be the beginning of the wave. I had no idea that the hormones in the device could be causing so much trouble. Over the last year, especially, I have adjusted my whole life and lifestyle to stabilize my moods (and maintain a relationship with my very patient partner), not linking them to all the other symptoms. Ugh. I am relieved and angry at the same time. The difference, pre and post, is night and day.
FYI, I had a few hot flashes the day after removal, along with a mild headache for a few days. I was on my (light) period when I had it taken out and it's still tapering off. Moods were pretty rough the first afternoon post-removal (another suicidal rant in my journal) but consistently good since then.
I'm going to circulate a cautionary message with my girlfriends and grad student peers. I sure would have liked to have known long ago what was causing me so much trouble.

-- By mainstream4 | Reply | Private Message me

April 27th
2009
4:07 PM

First of all, a big thanks to all of you who have shared your experiences. I am a biochemist, with a background in pharmaceutical research...I chose the Mirena IUD after careful consideration of it's active ingredient, Levonorgestrel. The side effect profile seemed pretty acceptable...until I started to experience nearly ALL of them...I am 33 years old and had the Mirena IUD placed in October of 2008 after the birth of my second child in June of 2008. The initial reaction was to be expected...cramping, a little spotting etc...nothing to be alarmed about. I still have yet to have a period (which I really don't miss so no problem there) I never gave a second thought to this until now...for the past month or so (coinciding with the weening process, since I have been nursing the entire time, I believe the side effects were not as noticeable) I have been experiencing the following (that may or may not be related to Mirena as my OBGYN has so adamantly pointed out, but after reviewing your posts I'm willing to bet they're connected) and are in order of occurrence: Major, but temporary, hair loss after 2 months or so; Major respiratory infection lingering over a month with difficulty breathing, tightness and pain in the chest at around 6 mos; And in the past month, several instances of motion-like sickness/ nausea, dizziness, blurred vision, major impatience/ mood swings, loss of appetite (pregnancy-like symptoms...yep, I was thinking man I'd be pretty pissed if I was that 0.01% pregnant statistic), and as of this past weekend, my first aurora migraine with tunnel vision and serious nausea and vomiting, to the point where I went to Urgent Care...who referred me to the ER...who wants to perform a battery of tests including a head CT. I have an appointment with a trusted GP tomorrow to discuss possible root causes...but it is to coincidental that so many women are experiencing these same symptoms! I am certainly leaning towards having this removed. CAN THOSE OF YOU WHO HAVE HAD THIS REMOVED PLEASE RESPOND IF YOUR SYMPTOMS SIGNIFICANTLY IMPROVED OR WERE RESOLVED!!! THANK YOU!
These side effects seem to go well beyond a 5% rate of incidence according to all of you who have reported. I will investigate further and keep everyone posted. As someone who is highly experienced in the pharmaceutical industry, you bet your a$$ I'm going to get to the bottom of this! Good luck ladies!

-- By sam611 | Reply | (12) replies | Private Message me

December 3th
2008
12:49 PM

I had my second Lupron shot this last mid October that lasts, supposedly, 3 months. So I will be 5 months in this mid December and I have to say I was one of the people who was fine with Lupron...up until now. I had and have all of the typical side effects of hot flashes, headaches, memory loss, mental fog, etc. Then I had my first ever migraine a week ago that knocked me on my butt for 2 days. My memory loss and depression are by far, by far, the worst side effect I have experienced. At this point I am concerned my memory problems and mind fog will not go back to normal, which has already adversely affected by daily life. I was one of the people who spoke positive of this injection even after reading all the horror stories but now I am beginning to wonder if they were right on some levels. When reading all the different experiences I would get confused and wouldn't know what to believe. I am not saying I would change things, the jury is still out as to whether the benefits will outweigh the difficulties, but my personal experience and symptoms have been getting worse just in the last few weeks, so that would be between month 4 and 5 on it. I could lead a pretty normal life up until recently and I'm a pretty tough person, I clean houses for a living and work hard with a packed schedule so I am not just stating little symptoms I experience but ones that actually have affected my daily life. Just being honest so you know what to possibly expect, depending on your body's reaction. That is a point to keep in mind, everyone's body reacts differently but if the majority of people are saying the SAME side effects, makes you wonder if there is a consistent pattern.

One thing I will tell you that has helped me is B vitamins regularly in your system and staying as active as possible. Write things down to remind you for the memory issues, don't over-commit to things because of the mental affects-it hits you hard when you can't follow through, and try to watch your sugar intake, which messes with your emotions. Hope this is helpful.
I would love to know from someone who has the same symptoms (which looks like almost everyone who is on it) and who is now off of Lupron for at least a few months, if the symptoms of memory loss and mind fog go away. Is my memory permanently damaged?

-- By brpavey | Reply | (3) replies | Private Message me

November 28th
2008
1:20 PM

I was diagnosed with Optic Neuritis in my left eye, at the time of diagnosis, I felt fine. Had an MRI to check for lesions on the brain, there were none. I was put on IV solu-medrol for 3 days, then 90 mg of prednisone for one week, with a rapid taper the second week. 6 days into the prednisone, I started have shortness of breath, etc. Went to the ER and my white count was 22,000. Had bronchitis and the beginnings of pneumonia. Because of the breathing problems, I only did 2 days of taper (doctor's advice). I have lost site completely in the left eye and now I have blurred vision in my right eye. Extreme fatigue, and a mental fog I just can't explain. A "twitch" in my left left hand and muscle weakness. I just don't feel "right". How long does it take for this drug to leave your system? Has anyone had a similar experience? My eye doctor was considering another round of prednisone for the optic neuritis, but I am not so sure I can survive it.

-- By spammy08 | Reply | (3) replies | Private Message me

November 22th
2008
9:55 PM

i got mirena put in April 1st of 2008, considering removal. At first i bled like crazy, extremely heavy flow for 18-20 days long. They did start to lighten up after about 5 months so I'll say September is when they did. It is now November 2008, so i haven't even had it for a year yet! The periods did lighten up tremendously and last about 5-10 days, however, they are never on schedule. Along with all that i have developed uncontrollable mood swings, SHARP, TIGHT CRAMPING that feels like my uterus has a charlie horse with a rake clawing me to death and a spam sensation that comes and goes around my cervix. Sometimes my body even acts like its pregnant!! One month i was lactating, the next month i had morning sickness and nausea. Plus bloating and gas that is so uncomfortable; all the gas has left me feeling those spasms in my rectum!!! Part of me thinks this is more nerve raking then a pregnancy. i have had more then 2 scares thinking i was pregnant because the way my body was acting. The latest thing is my energy levels are low, and my schedule has changed. I tend to sleep all day and have a mental fog all night to where i am exhausted but sleeping is impossible. MIRENA IS NOT AT ALL WHAT ITS CRACKED UP TO BE LADIES!!! *******

-- By sarahfisher | Reply | (2) replies | Private Message me

October 29th
2008
11:12 PM

I have been on 20 mg Lipitor for years, and as I also have Rheumatoid Arthritis, all my symptoms have been blamed on that. I have been diagnosed with Fibromyalgia and put on Lyrica because of the muscle aches and depression. My lower back, hurt in a car accident when I was 17 years old, had gotten so much worse that I had 12 steroid shots in my lower spine a couple of years ago. They didn't help my back at all, but my blood sugar went from normal to diabetic levels, and I am now on Byetta to try to lower it.
I am a 56 year old woman who was the math specialist in a school district until last December when I had to retire early. My back pain was so severe that I could no longer go from school to school carting materials. I could barely make it from the parking lot to my office. Mentally I was not ready to retire, but physically, I was (and am) a wreck. I have severe muscle pain in my shoulders, sometimes one or the other, but always present. I have tingling in my right hand, especially in my fingertips, and have trouble gripping and drop things easily. In the last few months the pain in my right thigh and calf has gotten unbearable. I thought at first it was sciatica, but I have had sciatica before, and this isn't the same, although there is tingling, burning , but the pins and needles is so deep in the muscles I have just sat and cried, or wanted to scream. I have wished I could just cut my leg off. And...I am on some pretty heavy duty pain killers for the RA: a small dose of prednisone plus Enbrel, Methotrexate, and Vicodin, and this pain is cutting right through all these meds. I get severe headaches, I went off Lipitor for 5 days and seemed a little better, but then went back on, and it came back.
Since I no longer work, I sleep longer, am exhausted ALL the time, have terrible mental fog, am clumsy, cannot stand for more than a minute or so without wanting to scream, cannot walk more than a few yards...just getting to the car is an ordeal. I tell people that I can only shop in shoe stores and furniture stores...the only stores with places to sit down.
I no longer cook or clean, cannot play with my granddaughter, even holding a book to read can be too much, and I love reading. I feel I am just dying bit by bit as I lose parts of myself.
My doctor is really into lowering cholesterol, and has put me on Zetia in the past few months...and it has been in this time that the pain in my leg has gotten unbearable. He wants my cholesterol to be between 50-60, and has said that the Zetia along with the Lipitor will do that. Is this normal or in any way reasonable??? I am having a full blood workup done tomorrow morning, and I want to go off the Lipitor starting the day after.
I came across this web site tonight while looking up Lipitor side effects, and I am shocked. I have so many of these symptoms, and there are so many I had no knowledge of at all. I knew about the muscle aches, but that's all. I hope someone can help me with what supplements and vitamins I should be taking. I started taking CoQ10 a month or so ago. What else should I be taking for my health? I know vitamin C and fish oil, but don't know how much or anything else. Right now I am just stunned with the thought that all of these problems that have left me unhappily retired, exhausted and in constant pain can all be caused from a drug I have been taking to help me be healthier.

-- By lancbet | Reply | (5) replies | Private Message me

August 20th
2008
2:44 PM

I am so glad I found this website. I had the Mirena inserted on April 14, 2008. Since then I've been having anxiety attacks and I'm always tired no matter how much sleep I get. My mom had an accident 2 days after Mother's Day (May 13th) and passed away on July 17, 2008 so I thought my issues were related to everything going on with her. On July 24th (the day after her funeral) I was transported from my doctor's office to the emergency room via an ambulance because I was having chest pains for about 7 hours. After 2 EKGs, and blood work, they could not find anything wrong (thank goodness) and I made the doctors aware that I had the Mirena. I haven't had chest pains since then but I googled Mirena side effects because I still have bouts of anxiety and I am extremely tired. After reading the posts I think my symptoms may be related to the Mirena. I will have a talk with my OB/GYN and see what she thinks.

-- By njaka | Reply | (2) replies | Private Message me

July 29th
2008
7:23 PM

I had been on Yaz for about 1 1/2 years with little to no problems until the last couple of months I began to get severely depressed and experienced suicidal thoughts about midway through the pack. The rest of the month I felt like I was in an emotional and mental fog. My husband recognized a difference in my behavior after a couple of months of starting yaz. I finally broke down and called my doctor. She decided to put me on Yasmin... now that I have read through some of the thousands of side effects of Yasmin on this website, I'm not so sure that anything is going to get any better....

-- By redkitty2001 | Reply | Private Message me

July 23th
2008
11:54 AM

Why do I think I landed here, I have been having very bad mood swings mostly relating to anger and dissatisfaction in everything and everybody. Put the mirena in April 2008, braved it out for 4 months with the
1. spotting and all the time kept thinking that my
2. fatigue and no interest in everything was due the stress of having 2 kids, work and the pregnancy weight that I have to shed.
3. I am hungry always (maybe since I am breast feeding the baby)
I had a copper IUD between my first and second son,
4. I don't remember how that was ( am I in a mental fog?). must have been better than this one. I never wanted anything hormonal. I don't want pills. Dont even know why I went with this then. I know the doctor convinced me saying it has very little hormonal effects

Yesterday, I just lost myself over a silly issue, now I feel I am going to lose my wonderful relationships with people. My 3 yr old asks me If I am not angry any more uh!!!. Why cant I call the doctor to get it removed when I doubt it could be the IUD.
5.I am lazy( another symptom).

Do I have to wait a little longer or take it out and maybe get my self back.?
(What a question to an obvious answer)
Confused!!! lazy!!

-- By zvap | Reply | (6) replies | Private Message me

July 19th
2008
1:00 PM

Just an update from some of my previous posts. As back ground, I had a need for birth control beginning about a year and a half ago. It was time for my annual anyway, so I asked my OB/GYN of over 20 years what my options were. He mentioned that there were two pills for women "of my age" (42 at the time)...Yaz and Loestrin 24FE. He mentioned that he had heard less about libido issues from his patients on the Loestrin, so I opted for that. 5 months into it, I had an episode of I'm not sure what...felt like I was having a stroke...rush of heat, extreme dizziness, headache the next day...went to my GP on Monday and found out that my BP was slight elevated (I'm normally on the low side) but what was alarming was that my cholesterol was way up and my blood sugar was off the charts. Although high cholesterol runs in my family, no one has ever had any blood sugar issues. Stopped taking the pill right away, retested my sugar in two weeks and it was back to normal.

My OB/GYN said NO NO NO, no more pills...let's try an IUD. two months later, went back since I had my next cycle and I got the Mirena. I spotted for like a month and a half straight. Lots of bloating, headaches. As the months progressed, I started having anxiety issues (again, never happened before), had severe cystic acne (always had good skin), bloating to the point that I looked the way I did when I was 5 months pregnant, headaches every single day, extreme fatigue, blurry vision, complete inability to concentrate, mental fog, insomnia and my libido was in the toilet.

Went back for my annual in Feb and had it removed (I had it for 5 months at this point). Dr was wonderful, said that he had been hearing of these side effects more and more from his patients. He said that we'd give my body a break and then consider a Paragard with my next cycle. I feel the fog lift before I get to the parking lot. Next cycle never came. Hot flashes and heart pulps start in March. Gets worse and worse. Have my hormone levels tested...they indicate post-menopausal. Have the blood work repeated first week of June...confirmed post-menopausal at the age of 43. No family history of this. Start on an estrogen patch and within 2 weeks start feeling a lot better, flashes gone. Am taking Prometrium 10 days each month to protect against uterine issues. At day 8 I really start getting dizzy. I am obviously very sensitive to any progesterone although this natural version is more tolerable.

From the time I had the Mirena out, however, ALL my side effects are gone except that my vision is still worse...having my annual eye exam in 2 weeks. The concentration issues, insomnia, fatigue, anxiety...all that GONE. Libido is almost back. Very distinct diminishing of symptoms once the Mirena was removed.

If Mirena works for you, that's great. It's good at least that you are aware of issues others have had so that if it happens to you, you know that it could be the Mirena, contrary to what some doctors say. My doctor has been wonderful and never doubted me. I wish everyone had such a doctor! Just trust your intuition and take care of yourself. No sense jeopardizing your health, relationships, etc just to maintain this type of birth control. I apparently don't need birth control any more....not certain why I blitzed through menopause so fast...could be related to the hormonal assault on my body in the past year between the pill and the Mirena.

Bottom line, take care of yourselves and don't be dismissed if you feel that something is just not right!!

-- By red1964 | Reply | Private Message me

July 18th
2008
8:09 PM

I have experienced most of the side effects that others have listed here. Mental fog, dizziness, blurred vision, horrible fatigue, cold intolerance, weight gain, joint pain, etc. These started approximately one month after insertion. I have been to my PCP multiple times and have been evaluated for things ranging from hypothyroidism to lupus. All tests have come back negative. No one has once suggested that it may be due to the Mirena. I am going to have it removed at my next visit and I would be willing to bet that many of my symptoms will be resolved.

-- By anc | Reply | Private Message me

June 26th
2008
7:20 AM

I'm 50, a lifelong asthmatic (since age of 4). I started taking singular in 1999, Time Magazine's cover story back then. In the spring on 2001 I had stopped taking it. I got sick and my doctor had me taking it again. I told him subseqently that I had noticed changes in my moods. He dismissed the notion. I worked on wall street. 911 came and I was put on antidepressants (zoloft 200mg/day and gabatril 8mg a day). I lost seven years of my life. Yesterday I spoke to my pharmacist. I'm now on disability (respiratory, depression and anxiety). Medicare Prescription plan would not pay for Advair. The pharmacist to my surprise pointed out that depression was written up as a potential side effect of singular. I have read that head meds may leave 70% of those taking them left them still depress and with sleep disorders etc. I have been off the head meds for 9 months now. The mental fog has cleared, (from not being sedated).). An my depression continues unabaited as it has for the past ten years.

I also found out that MAXAIR is back after being discontinued. I used it for at least ten years (in the 80 & 90's). It has nt steroids, long lasting compared to albuteral as an emergency inhalher and precluded the need for multiple asthma meds. My life changed when Maxair was not being bottled which was just about the time Singular came out. I doubt it will undo 10 years of environmental injury and damage caused by singular and steroids. I also believe the best advice for keeping me breathing freely was drinking lots of water, (distilled, I bought a machine rather than carry a gallon a day from the store.). was truely life improving. It allows your body to flush out the impurities our modern day life threatens us with. I read the posts on this site and was compelled to share my personal experience(s), for you to consider....

-- By ll_ashmatic | Reply | (1) replies | Private Message me

March 16th
2008
11:10 AM

I had Mirena in for 3 1/2 years. The first year was basically a fog. I started spotting, moodiness was ok, bad acne. The next 1 1/2 years I experienced light bleeding, acne , slight dizziness, some fatigue. On the third year that I was on mirena that's when things began getting worse. Around a month after my 38th birthday I started getting really bad symptoms. The worst part was the Dizziness. I got severe headaches, major dizziness, moodiness, less patience with everyone, weight gain, increased appetite, depression, fatigue during day, nervousness, panic attacks, some hair loss, bleeding gums. The dizziness was the worst. I would get panic attacks along with the dizziness. This especially got worse around time of period. I noticed just before I was scheduled to get my period I would get these crazy dizzy spells and anxiety. I have had numerous test and gone to Cardiologists, Nuerologist, Gyno. The gyno's are the worst. They deny that it is the mirena. However, I have been doing some research by myself and have come across many websites like this one. Most of the women who have been on Mirena have had the same symptoms that I have had. The one symptom that I did not here of was bleeding gums. During my pregnancy I noticed that I would bleed when brushing my teeth. Of course this is normal because of hormones. However, about a year after I gave birth to my daughter my gums were still bleeding. I was on mirena for about 6 months already. The dentist had me go in 4 times a year, because he was concerned. They thought it was bizzare that I had this promblem at 38, Wanted to know if anyone else experienced this? Also, wanted to disclose that in the early years of mirena I was taking Prozac. Around the second or third year of mirena I started to be a little forgetful about taking the prozac daily. This may be a reason why my panic attacks came on strong around third year.

-- By frani | Reply | (7) replies | Private Message me

March 13th
2008
4:47 PM

Iam a 26 year old wife with 2 kids. I had mirena in since may 2007
2 months after I had my 2nd child. First I had spotting for a while. It seem to be ok. after 6 months until now I feel the following side effects:
TIRED, CRYING FOR NO REASON, MOOD SWINGS, GET MAD EASY WITH KIDS AND HUSBAND, CHEST FEELS TIGHT, PANIC LIKE ATTACKS, NERVE PROBLEM, DIZZY, HEADACHE, MENTAL FOG FEELING, CONCENTRATION IS LACKING. my sister had hers put in a little before me and she took hers out about 2 months ago. I am going to take my out also. All hormone birth control is just not natural for our bodies. but at the same time I dont want no more kids but not sure about getting my tubes cut. I dont know what to do. But the SIDE EFFECTS OF MIRENA IS NOT WORTH IT. FOR YOUR SELF AND YOUR LOVE ONES WHO HAVE TO PUT UP WITH THE EMOTIONAL DISTRESS IT CAUSES ON OUR BODIES.

IF YOU ARE THINKING ABOUT IT I WOULD SAY DONT GET IT IT IS NOT WORTH IT. THE MIRENA WEBSITE DOESN'T TELL YOU THE WHOLE TRUTH OF SIDE EFFECTS. DOCTORS DONT TELL YOU ABOUT THEM EITHER. THEY JUST WANT THE COMMISSION OFF OF IT. BE YOUR OWN DOCTOR AND TAKE CARE OF YOUR BODY. YOUR BODY TELLS YOU WHEN SOMETHING IS WRONG.

-- By gazania81 | Reply | (1) replies | Private Message me

March 13th
2008
2:52 AM

My Mirena Removal....
So i posted here a few weeks ago after I found this site. I had EVERY side effect listed and was so freaked out that i immediately made an appointment for removal.
For those of you reading and wondering what the removal is like..
Well, NOTHING like the insertion. I was so so nervous and it was over before we actually started. The DR was surprised that i was back in his office to have this removed. He then proceeded to do an ultrasound to be sure it was placed properly before removal. And yes, all was OK on the position of it. I explained to him my reasons and he looked at me like he had never heard this before. I honestly can not imagine with all the women he sees that NONE of them have complained. But...as I was getting dressed afterwards, I took a good look in his office. There was Mirena literature ALL over the place. In fact, that was the ONLY thing he was advertising. Not to mention...they made me pay up front with the insertion back in Nivember...billed my insurance and I still have yet to receive my reimbursement. Oh yeah, and that...they charge more than the actual Mirena costs, then they bill your insurance for the price they know they will pay and the DR then makes about $150 profit. Nice.
Ok, back to my side effects post Mirena. The removal was not painful at all. I did spot for about a week- nothing too heavy but it was clotty and def there.
A couple of days after the removal it felt like I was coming out of my skin something terrible. I figured this was my body adjusting to the lack of hormones. I also had some headaches.
It has now been 2 weeks and the spotting has disappeared. I also can see the bloating of my stomach is starting to go away. It looked like I was about 4 mos preggo while I was on it. I also have an increased sex drive. And sleep-- well let me tell you, I have not slept this good in a very long time. I am actually sleeping more than 6 hours now and the night sweats have also discontinued.
I can't believe EVERY time I come to this site and look up Mirena ALL the people that have posted their experience as being negative. Yet, the DR looks at me like I am crazy! I have been seeing him for years and I have never complained about something like this. I really am so happy that I have it out and wish I would have done my research on this prior to insertion (which was one of the most painful things ever!)
So..for those of you out there that are either contemplating having it inserted...I say NO WAY. And for those of you out there that are nervous about the removal or not sure..I SAY YES, DO IT! For our bodies to be reacting this way, it is clear to me that it should not be inside of us. Listen to your bodies...they really do speak to you and let you know when something is not right. Forget about the DR saying it is safe or he has not heard of any of these side effects...YOU be the judge.
Good luck! And I promise it gets better once you get that lil' demon out!
Mona

-- By monanigro | Reply | (76) replies | Private Message me

March 9th
2008
7:44 PM

Water retention, abdominal and thigh cramps, fatigue, mental fog. Try juicing greens, eating almonds, blueberries, garlic, eating the majority of foods raw, take plant sterols, lots of fruits and vegetables, fish oil, Complex B, and other supplements as needed. This happens because we are not eating the right foods and because we are eating mostly cooked foods, and in this way, we strip the foods from their medicinal value. We come from the Earth, and the Earth feeds and protect us. We are drifting too much away from nature and indulging into to much sugar, and processed foods which have so many preservatives, which can lead to many chronic and deadly diseases, including high cholesterol. Eating mostly raw foods allows for a high content of enzymes, minerals and vitamins in their natural form, to work to repair tissue and keep us healthy. And the best of it, I have as much vegetable juice as I want. I prefer to take the fruits in the morning. In addition, I have found that drinking Barley grass, even the bottled Green Magma, has been extremely beneficial. When I juice I am never hungry, and my body thanks me as to, "tabout time."

-- By liam23 | Reply | Private Message me

February 20th
2008
6:23 PM

I am so grateful I found this site! I only wish, like many of you, that I had done more research. I am glad to say that when I first encountered this site, I was suspecting I was having issues because of the Mirena, now I'm convinced. And the more I read, the more symptoms I realize are Mirena related not just "getting older". Thankfully, today I made the appt to have it removed. Unfortunately, it's not until March 17th. But, I will have it out and then have some green beer to celebrate!

In April of '06 I joined WW and was doing great, losing consistently. In June I had the IUD inserted, that went well...just some minor cramping. By September I was really struggling to loose weight and was feeling more irritable. But, at the same time had become caretaker to my Mother in law, so I attributed it to the stress of taking care of her in addition to my own family. Near the end of November I finally hit a 50 lb loss, and have barely lost any since then....that's 15 months!!!!! I've stuck with WW, and I know I'm not doing the program as well as I had but it shouldn't be such a struggle. Last week I started wondering if the problem was the Mirena, and that question led me here.

I couldn't believe what I was reading!!! It was me in all of you!! I have chronic depression and have been on meds for about 6 years, but even with increasing my meds to the max, I seem to be getting worse not better. I'm moody, irritable, blue, and impatient. It's like PMS all month long, and then when the real pms hits, I'm practically suicidal.
I also have had significant hair loss, fatigue, living in a mental fog, numbness in my arms and hands EVERY night, night sweats, lower back pain for several days on and off (are these cysts??), irregular and long lasting periods (although VERY light...I will miss that!!), nausea, headaches and dizzy spells on a regular basis.

I hope that when I have this thing removed I can return to my old imperfect self, and that I can finally achieve my weight loss goal and return my family life to a normal level of dysfunction! :)

-- By victoriaszen | Reply | Private Message me

February 20th
2008
1:05 AM

Many strange things have been happening to me for the last year and a half, that I did not ever experience before. I just turned 38 years old. I am now suspecting these are side effects from the MIRENA. I want to get opinions about what I'm experiencing and what happens when it's removed.

The most profound thing is the feeling of being in a mental bubble. Even though I'm aware of it and I try to be alert, I feel cloudy minded and can't even rely on myself to remember things or commit to things because I never know how I will feel when I wake up each day. Some days are okay while others are completely LOST because I may have struggled to sleep the night before, sweating and soaking my pillow case and waking up with a rapid heart beat, panicking for no apparent reason right out of sleeping. Or, I'm irritable due to discomfort which takes several forms like these:
- major moodiness, like feeling totally peaceful one minute and then something small triggers me and I'm angry for hours, later realizing that I was overreacting
- visibly shaking hands, especially when I drink just 1/2 cup coffee.
- increased oily skin and acne on face, back, shoulders and even in ears, along with thinning hair around face
- fatigue and stiffness in the morning, so it takes me forever to get out of bed
- off and on fatigue that has me uncontrollably dozing off during the day
- bloated tummy (visible), gas and menstrual cramps in no predicable pattern, but I never go more than a week without these things
- strange libido, one day I wouldn't care if I ever had sex again, the next night wake up horny as heck at 2 am
- ears ringing, jaw pain, mystery pains in back and joints regularly

All along I've been assuming these odd things were stress and age related but the more I think about it, there's just too many things, and these things don't necessarily represent the stress of a typical stay at home mom.
Sure, I have had stress and anxiety in the past, but they could always be connected to something large going on in my life. Now, the anxiety and moodiness hit unpredictably and indiscriminately, it seems. For a long time now I feel like I'm a total mess physically and mentally, even more so because I realize something is wrong
I am pretty sure as of right now that I should get this removed. If the symptoms go away I'll then know what caused them in the first place.
I am wondering what happens upon removal, will it also be a roller coaster of physical and mental anguish???????? How long will it last?

-- By dadam93021 | Reply | (11) replies | Private Message me

February 7th
2008
2:52 PM

I was doing just fine taking 50 mg of Topamax but I was still having minor headaches. My doctor said to go to a neurologist because there may be a tumor to worry about. He doubled my morning dosage and added an evening dosage so now I am taking 200 mg. a day. I started the insanity on Friday. By Monday i went grocery shopping and couldn't remember what I was shopping for. Thank God i brought my husband with me...when I could remember that he was with me. And then when I remembered to ask him what we came for I needed to remember where it was. Upon returning home I offered to help my 7 year old grand daughter with her spelling homework. Do you how embarrassing it is to not remember how to spell first grade spelling words? Tuesday was Mardi Gras and we went to the movies so I was saved any further mind questions. Then along comes Wednesday and I returned to work. Well, I tried to get to work. I got lost. Here I was at Walgreen's trying to figure out what I was doing out at 6:00 in the morning. What day was it? The looks on other's faces when you ask them these question is not something funny. So, I get back in my car and aim in the direction I hope is work. Luckily, I remember where I habitually stop for breakfast. My memory comes back again and I make it to work. I am on time and all is well. Now, the day begins.

I haven't had a period since December. Here it is February. And no, I am NOT pregnant. I can't concentrate. I ate 2 chicken nuggets for lunch and am full (now that is a healthy lunch, huh?). I was addicted to Dr. Pepper and now can't even stand the smell of it. I can't walk and chew gum at the same time. I found a note that I wrote sometime yesterday that really scares me because I don't remember writing it. It says, " Headache @ 1:55 no known trigger jut sudden movement to pick up papers from bin over desk. Nausea as well. Need to go to sleep forever." Good feeling to have? Depression is kicking in.

I just called my doctor and he says decrease the medication down to 100 mg. Ummmm...How about I decrease it down to 0 mg and I take a Imitrex or 2 and a hot bath with a nap when I get home and live to see my grandchildren grow old! I think living with a migraine or 50 is far better than what I have been feeling this past week.

If anyone can tell me that it gets better in less than 2 weeks I will stay with it but 1 more week of this and I will be a patient in a mental hospital. I can't even play Nintendo with my grandson...NOW THAT IS DEPRESSING!

-- By luanne | Reply | (4) replies | Private Message me

December 4th
2007
8:41 AM

I am getting mine removed FRIDAY!! And Friday can't come soon enough. I am kinda bummed tho for having to go back on the pill but I can't hack this ANY LONGER!!! One of my friends works for a GP and I went to him because of some of my side effects. The flu like symptoms minus having the flu (had it for at least 2 to 3 mos now) NO sex drive (causing trouble with my marriage. Hubby is taking it WAY to personal), swelling in my hands, feet, legs, and face. (my face will feel flush and BAM I'm swollen!!) VERY BAD MOOD SWINGS!!! Very Bad isn't the word for it!! There are no words to explain my moods!! ANYHOW..... I sent this to my friend to read and she pulled it up at work. Well the GP said that this isn't a reliable place to go for information on the side effects. "There are NO positive side effects to anything." Which is true BUT he seems to think going to Web MD or some sight like that is more reliable than here. And that this sight shouldn't scare me and he wouldn't urge me to have it removed after reading this. (OH YEAH I forgot to mention joint pain, I have HORRIBLE joint pain in my hands, wrists, elbows, knees, ankles, and feet. The worst of it is in my wrists and elbows) Back to what I was saying. To that (this sight not being reliable) I say go to Web MD and post there too! I pray that I can get back to me after this comes out!! I hope it don't take too long either! I MISS the old me and HATE the new me!! But FRIDAY HURRY UP AND GET HERE. And for anyone who has had it removed........ anything I should be repaired for??? Thanks for your time!

-- By angi13425 | Reply | (7) replies | Private Message me

September 5th
2007
3:31 PM

Cure for side effects? CoQ 10 helped me it could help you to. I don't think the private mail on this site works. You can contact me: seekers999@hotmaildotcom if you're a real person you know what to do with the"dot"... "." But nobody needs me, do the research yourself! checkout coq-10 and how lipitor and other statin drugs deplete your body of it causing muscle atrophy. (see my previous post for link)
I don't recommend websites or charge (even though I'm on social security disability w/kids and financially challanged ;-) I;m just trying to help people get better by pointing them in the right direction.

I was crippled up on crutches! Worst pain in my life! Couldn't even get to the bathroom 15' away WITH THE CRUTCHES!! If felt like muscle was tearing with each step, within a week the pain was gone!! The mental fog was gone also and I quit taking the Prozac, but this might have been also due to the Acetyl-L Carnititne.(500mg 3X a day)

I just know that stopping the lipitor didn't stop the pain and confusion!

God Bless all as they try and work their way through these terrible side effects! Remember I had to increase the coq 10 to 900mg a day before I saw benefits on the 3rd day.... There is hope! I hope it works for you!

-- By seekers999 | Reply | (1) replies | Private Message me


 

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