September 30th
2008
12:47 PM
I am a professional nurse with extreme allergies; however, please for you own benefit consult your physician but do not stop taking it unless he or she states adverse or of course, you have some reaction requiring emergency medical assistance (911).
Yes I am dizzy, weak, very nauseated (and with my emaciated body frame due to other health issues cannot afford to not eat), and the first 2 days of therapy got a whopper headache. However, I had a UTI that likely moved into the kidneys and also look to have stones and after 8 days am passing urine properly and not up every hour not passing urine; hence it is killing an infection that might kill me.
Early on with this drug we did prescribe higher dosages then perhaps necessary they have now cut back quantity and instead of doing BID dosing do QD dosing. You might require a lower dosage at my body weight they prescribed only 250 mg. a day and this has given me some side effects but is treating an infection that could be fatal...
K. BS,RN,UM,QC,DON
-- By karengeorgebsrn | Reply | (1) replies | Private Message me
March 21th
2008
2:25 PM
Allow me to introduce myself, I am Christopher Wunsch. I was a practicing Critical Care RN for 13 years active practice, until September 2002, the onset of my disability at age 34.
Until Sept 2002, I had been a healthy adult with very few medical problems. I had elevated cholesterol since I was in college that I know of, and I had always chosen to eat right and exercise regularly. which had no appreciable impact on my cholesterol.
In 1999, my father had bypass surgery at age 58, and it was decided that I be started on statin therapy, and I was started on 10 mg QD, which I tolerated well until September 2002, when I began to have terrible unrelenting headaches, disorientation and confusion. I would sleep for 14-18 hours per day, therefore I missed a lot of work over these 4-6 weeks. I had a CT scan done at a local hospital, despite my persistent request for an MRI scan. The CT scan was normal. After the 3rd visit to our local ED, I was discharged home with a diagnosis of a probable Migraine Variant, and was given Imitrex, which I could not even figure out how to give to myself. I called my PCP at home after we were sent home, and I requested he order an MRI scan for me, which he agreed to and was done the following day. revealing multiple scattered lesions throughout the grey matter of my brain. When my PCP received these results, he referred me to a Neurologist who diagnosed me with a migraine Variant. My wife and I sought a second opinion from the University Hospital and Clinics in Madison, where I was evaluated by a Neurologist who specialized in MS. When I was evaluated by him in the clinic, he did not think what I had was MS at all, he did not know for sure what I had, but was quite sure it was not any form of MS. I was sent home, to be rechecked in a few weeks.
Over the course of the next few weeks, my symptoms of Headaches, Lethargy, Fatigue, and confusion had worsened, only now it was accompanied by Ataxia and slurred speech. My wife called to UW Madison and spoke with my Neurologist who informed her that I should be re-evaluated as soon as possible. We dropped off our 2 year old son at my parents and headed to UW Madison to be seen again. When we arrived, I was given a mini neurological exam, which I failed terribly, and I was admitted. I was hospitalized for 28 days, I underwent a brain Biopsy, which revealed multiple areas of vacuolization, mitochondrial changes under electron microscopy revealed thickened disarrayed cristae, inclusions of lysosomal and autophagic vacuoles.
The Differential diagnosis from the Brain Biopsy was a new Variant CJD, a Mitochondrial Disorder such as MELAS, and a few others. My muscle biopsy done at this time, was suggestive of a Mitochondrial Disorder such as MELAS or MERRF. I was started on a Mitochondrial cocktail, which consisted of 12-14 Vitamins, amino Acids and Ubiquinone. I was scheduled to transfer to a nursing home, pending bed placement. When one of the residents suggested increasing my CoQ10 dose, which was done, now 150 mg BID.
Over the next few days, I began to become more alert, less confused, and less ataxic.
I was discharged home with aggressive Physical, Occupational and Speech therapies which continued for approximately 15 weeks. After several months of rehabilitation, I tried to go back to work as a Workers Compensation Case Manager, and after a few weeks of trying to do this, I was approached by my boss, who informed me that what I used to do in a couple of hours, was now taking several days, and was inconsistent with employment, and suggested I return to Disability, which I reluctantly did. A few months later, I had neuro psychiatric testing done, which revealed cognitive slowing and other issues consistent with significant frontal lobe pathology. After this occurred, I saw Dr. Beatrice Golomb on Good Morning America one morning, talking about a Statin Effects Study she was going to be doing, I never thought for one minute, that my Lipitor use could have had anything to do with this illness and disability, but I enrolled. After about 1 year in this study, I was informed by Dr. Golomb, that "Lipitor was the likely causal contributor to my diagnosis of MELAS, as well as the holes in my brain as evidenced on my Brain Biopsy.
I havd done probably thousands of hours of research into this, and I have found that most Doctors do not nor will not listen to your opinion no matter how much proof you have, nor how many studies you have found that prove your case. It is going to be a lifelong battle for me, but for each person I can get to not believe the lie that cholesterol causes heart disease, and convince them not to take a Pharmaceutical, thats just one step in the right direction.
February 10th
2008
12:00 PM
Been taking Lipitor for several years. I am 51
Tired all the time. Don't feel like exercising at all. since I got a flu shot have been experiencing sharp pain in upper arm near and including shoulder.
Taking Lipitor, 40 mg qd.
The arm pain feels like it's near the bone.
The only other explanation for the pain I can think of was the nurse hit a nerve when giving me the flu vaccine.
Otherwise I fear it may be from the Lipitor. I told my doctor about it. He made no response whatsoever. not even to suggest any further tests, x-rays etc. to see what might be causing the pain. Gave me free samples of...you guessed it...more Lipitor.
At next appointment I will tell him the pain is still there (3 months).
If he does nothing then I will stop taking the Lipitor and take my chances.
June 4th
2006
10:50 AM
I've been on prednisone 50 mg. qd for 3 consecutivel days; or for a week at a time for my very severe asthma. I have massive 24 hour sweating, and have amassed a very large weight gain. I eat mostly fruits and vegetables. What can be done to lose weight?
-- By awguzik | Reply | Private Message me
September 10th
2005
5:39 PM
I was up to 600mg of neurontin TID, for tension headaches, along with 150mg of elavil QD. My neurologist decided to wean me off the neurontin and told me how to taper off of it. I am now taking 600 mg QD, I am experiencing burning sensation that started in breast, then the rib cage, my back and all my extremeties and finally ended in my face. Is this a normal side effect from withdrawing from the neurontin. And if so, is there any damages that it can cause and if so, is that damage permanant? Can you please e- mail me back and let me know? I am very concerned and worried about this. Thankyou.
-- By daisyyygrl | Reply | Private Message me
Lipitor (2) Levaquin Leva-Pak (2) PredniSONE (1) Neurontin (1)
September 30th
2008
6:57 PM
Hi All,
In addition to what I wrote earlier if you do have a history of hypokalemia (low K+ or potassium) that is very serious for that electrolyte controls cardiac and renal function. However, it is quite simple while you are on this antibiotic to increase K+ rich foods such as bananas, baked potato, OJ, whole milk, avocado (which has more K+ than 5 bananas) and do so judiciously during your therapy for infection.
It is also significant to alert anyone that infection (bacterial) causes some fairly significant physiologic issues from fever, to myalgia, vomiting and loss of fluids, and organ impairment. This antibiotic like Ciprofloxacin has a huge ability to permeate bone infection and non circulatory areas that most antibiotics never reach. It is important to understand that if you are feeling that ill to require that antibiotic you may not be getting around to feeling "normal" until you are past taking the medication, follow up with your provider and rid yourself of the infection.
When you end an antibiotic early or play games with such a drug you can rebound to a super infection that is not treatable by the same antibiotic or even anything more powerful and after this drug you are talking IV antibiotics in a hospital setting.
I would strongly suggest if you are handling secondary side effects then continue onward for the result of an infection out of control is anything but desirable.
I do run low on K+ either and find that Cipro is more K+ wasting then Levaquin. I also am on the smallest dosage (250 mg. QD) and having a positive result but yes, the lovely side effects. In another few days though when done those will be gone and I might feel 100% human again.
K. BS,RN,UM,QC,DON
-- By karengeorgebsrn | Reply | Private Message me