August 21th
2009
9:56 PM
I have been taking Wellbutrin 150 generic bupropion 2x daily for one month. I have been experiencing very noticeable and disconcerting hair loss (a la 'male pattern baldness'). RAPID. I took the shears to my head because I was going crazy at the amount of hair I was losing (that seems to have slowed the process!)
Also, extreme memory loss. I forget the names of friends and family; sometimes myself. I will call people the wrong name by accident. More than a few times, I've stopped mid-sentence in conversation, forgetting what I was talking about. Almost like I've been put on 'pause' for 15 seconds. The crappy thing is that I'm sure that the person can see that I'm struggling.
I am very scared to drive: 35 mph seems like I'm playing a drugged up video death game. There have been episodes where I feel like I've been sleep-driving. Sort of like an out of body experience. Which freaks me out because I manage to make myself aware of the danger in the situation but the body/brain connection seems impaired.
I am/was an avid reader (3-4 books per month) but I have completely lost interest and the couple times that I have tried, I couldn't read half a page before quitting. I read the same sentence over and over without making any connection. The same with my writing. It has become a chore.
Also, extreme impatience at the smallest things which before I would have not been bothered by. Sometimes even seething anger, which is very out of character. Since I've been on Wellbutrin, I can no longer tolerate the "cuteness of children" antics and such. There are no 'minor' annoyances anymore.
I told the doctor of the symptoms I was having, not attributing them to the Wellbutrin (which I now call 'Zombie') and I was completely dismissed. The hair loss and memory problems he attributed to stress, and he wanted to up the dosage to 300mg and prescribe Xanax (which I call 'Mind Eraser' from previous juvenile dalliances).
I don't like ANY medications...Which reminds me...I forgot why I'm even taking it...the doctor suggested I should take it after telling him I felt like crap after a bout of Lyme Disease. I laugh at the completely unnecessary BS I've put myself through for a month!!!
I feel like I have little choice other than to wean myself off. I will most certainly NOT keep my 3.5 GPA this next semester if I continue taking this drug. I am glad I found this site, because the doctor looked at me like I was crazy when describing the symptoms. Now I know what to blame/quit.
***ON A VERY IMPORTANT NOTE, I WAS ABLE TO QUIT A PACK A DAY CIGARETTE HABIT AFTER TWO WEEKS!!! After 10+ YEARS of trying patches, gums, lozenges, and even chewing tobacco (ick) I've been able to go two weeks without smoking. Wellbutrin has made me FORGET about the habit.
-- By vts3 | Reply | (1) replies | Private Message me
May 19th
2009
9:42 PM
I am 16 years old and i have been taking topamax for about 5 months now. I am taking 200 mg a day as a mood stabilizer. I have experienced nothing but horrible things on this medication such as, memory loss, inability to considerate in school or anywhere for that matter, loss of word for example stropping in mid sentence a lot trying to figure out what in the heck i am talking about, also i lost weight on this when first taking it i was 130 lbs now i am 110 lbs, and not only does it not make me hungry but when i eat after i experience nausea. This medication is horrible.
-- By jaq92 | Reply | (1) replies | Private Message me
May 11th
2009
2:45 PM
I have been on Topamax for 2 1/2 months. My dosages have been varied due to side effects that scared the daylights out of me. Never more than 100 mg a day, at which point I was a vegetable. After such terrible side effects - pressure in the eye, blurriness, loss of speech, coordination, complete exhaustion, inability to work, stopping mid sentence with inability to complete sentence - I finally had it. I talked to the doctors all along that I was terrified what was happening to my mind and body but they just said it was too soon to tell if the meds were working or not.
Out of pure frustration and concern for my own well being, I decided to try to taper off Topamax and then stop completely. I lost feeling in feet and hands, pins and needles, weakness in feet and hands as well as spasms- lovely. Frightened me so much I wound up in emergency thinking something else must really be wrong with me. MRI said all was fine as regards to MS or stroke, etc. Whew!
Continuing to withdrawal and mad as @#*! that the Dr.s don't know what they are prescribing to poor patients, Topamax is a dangerous crap shoot. Funny to me how something as horrible as this drug can be prescribed in our government, yet medical cannabis prescribed properly with little to no side effects is a crime in most states.
What have I learned from this experience?...be your own advocate. Don't let anyone ever push you into saying something is black when you clearly see it is white. Get angry, state your feelings if you feel you are being harmed and brushed off and not helped. You still have the brain cells in you to make good decisions though Topamax and pressure from others about "not taking your meds" may knock you confidence for a loop.
I'm thankful I live in CA where I can make legal choices that are not available to others in the USA. Shame on the drug companies, shame on the Dr.s that need to do their homework, shame on our FDA for letting this horrible drug on the market whilst holding back natural herbal relief that grows right out of the ground for all to use legally. Shame on me for not doing my homework earlier and doubting myself and letting other decide for me for so long now.
Good luck, hope you all find some comfort and fire in this message. We are our own best advocates. No one knows us better than ourselves. Freedom of choice is a wonderful thing - so thank you makers of Topamax, for helping me to find the strength inside to tell you....JUST SAY NO! to drugs - your drug in particular. May you be recalled and not harm any others, and may your profits plummet as you have make you $ on the suffering of so many others.
April 13th
2009
2:00 PM
50 y.o. female suffering from severe depression (or so I thought) since mid-teens. Finally sought professional help 8 mos. ago - diagnosed w/ bipolar disorder/depression/anxiety. Lamictal (now up to 300mg/day) has literally been a life-saver for me. I feel calm, rarely depressed, a bit more patient w/ myself and others, and the suicidal thoughts I've had for 30+ years are gone. I feel happy. The side effects, however, are disturbing. W/ the higher dose, I feel emotionally well but the memory problems are scaring me. When I write, I know which words I should use, but now I frequently omit or misspell words - not a problem before. I've always been a fast, accurate typist but I feel clumsy when typing and frequently hit the wrong keys. I misplace things and since I'm a bit OCD about losing paperwork, etc., it's happening. My job requires me to handle important financial docs. for people and I'm worried that I'll miss or lose something. Some days I can be very articulate w/ great use of vocabulary and other days I feel lucky to put a string of words together that will make sense. I'll lose a thought in mid-sentence. My doctor recommended that I take 1 mg of folic acid per day; it seems to help the memory issues and I may increase that amount. I grind my teeth at night so badly that I'm wearing a night guard to avoid ruining my molars. I find myself frequently rubbing parts of my hands together - especially when my hands aren't otherwise occupied. My dreams are vivid and I recall most of them, which is a pleasant side effect because I went many years without remembering my dreams (maybe due to alcohol abuse?). Another unpleasant side effect is clumsiness. I'll reach for something and miss it or jam my hand into a solid object, I drop things, I hurt myself more often - stubbing toes, smashing fingers, and cutting my hands more often in the kitchen. My doctor has put me on two different anxiety meds but the side effects were not acceptable so I stopped them. I'm considering lowering the Lamictal dosage to see if the memory issues improve; I can deal o.k. w/ the other side effects. I can't imagine not taking this drug, so I'll most likely endure the side effects for as long as possible.
-- By sphilpott | Reply | Private Message me
March 21th
2009
9:34 PM
I had my Mirena put in May 2008. The procedure went well there were no issues but I do remember getting a headache that day and the day after. Really didn't think much of it even though I had never been a headache person. Now almost a year later I have been having headaches regularly. My GP said that it was probably stress. I thought not, I thought sinuses so I went to an ENT who told me I had no sinus issues. In addition to the headaches I was also feeling dizzy, in a fog and having memory issues. The GP told me I needed to have my eyes checked. Nope not my eyes. Not one to go the Doctor a drop of hat I just kinda gave up. But the memory issue and not being able to concentrate is getting worse. I finally mentioned it to my husband. I told him I was going to the OB/GYN next week with the hope that they would check my Thyroid because if you search the symptoms that comes back. My husband said what about the Mirena. Not knowing any better I searched Mirena side effects and I found this site. OH MY. All the symptoms I have been having someone here has also had. I feel so much better. I thought I was losing my mind. Thank you everyone for posting and shedding some light on this.
-- By hconsidine2001 | Reply | (2) replies | Private Message me
January 18th
2009
3:11 PM
Hello everyone: Just let me say that i feel relieved to know that i am not the only one going through hell with the Mirena. When i first heard about this birth control I thought it was too good to be true, and after talking the side effects over with my dr I was assured that this was the right choice for me. I have two beautiful daughter 3 and 1, I do want a third child but not until i finish my Masters. So i decided to have the Mirena put in after the birth of my second baby, she was born in Aug07 and i had the Mirena inserted in Oct07. Keep in mind that i had already lost all my baby weight by this time. Well a couple of months later i had already gained 15pounds, i exercise, eat healthy and those 15lbs did not budge. I began getting these awful headaches and by back feels like i am getting an epidural all over again. Acne is a major issue, i thought that maybe it was stressed related, i have never had a issue with my skin until now, i recently discovered dry patches on my arms. I have a regular period every month, but I have a awful discharge with a horrible odor. I have to wear panty liners every day. I feel dizzy all the time and i have to pump my self up just to clean my house. This is not my idea of living a healthy life. I think a lot more research should have been conducted before this product was put on the market, or maybe we are the research? Depression and anxiety attacks are major for me, i don't sleep and when i do i wake up having an anxiety attack. Memory loss is bad i can be in mid sentence and completely forget what we are talking about, that scared me to the point to where I thought i was going crazy!!! I went ot my doctor and told him everything that was going on and he just put me on an anxiety med and did blood work to make sure my thyroid was functioning properly. All test came beck ok!! So I need an explanation of what in the hell is going on. I had none of these issues before i had mirena, but now i feel like I am someone else. I am calling my doctor on Tuesday to schedule an appt to have this evil device taken out of me. My health is far more important!! And I would rather use condoms and prayer as my contraceptive!!! Good luck to all you ladies and i pray you all make the right decision concerning your health~!~
-- By jen7982 | Reply | (3) replies | Private Message me
January 11th
2009
12:39 AM
I got on mirena June 2006. Since that time I have had ovarian cysts like crazy, weight gain depression, acne and constant muscle pain. Also, more and more, I forget things. I forgot my age a couple weeks ago...I forgot my boyfriends age too and had to ask him after deep intensive thought, I JUST COULDN'T GET IT! So I made an appt. to get it taken out. I can't wait to see what happens....I've never had problems before, no acne, no weight problems, no memory problems, no cysts....now I have it all and I'm miserable. So, wish me luck ladies, and I hope all goes well for you guys too.
-- By misstricia85 | Reply | (1) replies | Private Message me
January 10th
2009
11:47 PM
MEMORY LOSS, acne, mood swings, fuzzy mind, dizziness, dry hair, low sex drive, insomnia, depression, feeling like a baby was kicking inside my belly.
I had Mirena put in February 2008 and it is now one year later. I have had such extreme memory loss for several months now that I was really starting to feel like I was losing my mind. I am only 32 and have the memory of an 85 year old. My mind was so fuzzy I almost couldn't function some days. I attributed it to lack of sleep because I've also had a lot of insomnia over the past few months. I started drinking more and more coffee to wake my mind up and get rid of the fuzzy feeling, it seemed to help but certainly attributed to my insomnia so it was a vicious cycle. After reading all the other posts, I am getting it taken out ASAP. I also experienced the dry hair, acne, mood swings and low sex drive. I really hope I get my mind back once it's gone!
-- By module2323 | Reply | (3) replies | Private Message me
November 22th
2008
6:37 PM
I am so glad to know that I am not the only one that feels like I am in a "fog". I just associated that with normal motherhood stress, lack of sleep, full time job, and a husband who works several nights out of the week, leaving me to do most things on my own. I am normally a very active, get things done, kinda person, but lately I have felt like I didn't know if I was coming or going...and completely forgetting my train of thoughts and what I was working on. It's the weirdest thing. I have never felt this way before. On top of this, it seems as if I am bleeding every other week. My husband is completely frustrated! I tell him "How would you like it if your were bleeding all the time and had no control over when it happens?" It's hard on me too! I have had Mirena for almost a year now, but I am SO ready to be done with this "thing". Can someone explain to me why my head feels so "foggy" all the time???
-- By kim_mcd | Reply | (1) replies | Private Message me
November 6th
2008
11:42 AM
I had Mirena put in about 5 weeks ago to control heavy periods. After about 2 weeks I started experiencing a foggy head feeling and bouts of dizziness. I didn't relate this to anything and thought it might be from lack of sleep. Last week I stated having spells of rapid heartbeat and nervousness that lasted anywhere from 10 minutes to 10 hours. Exercising is out of the question since it makes me now feel lightheaded. I feel like I can't think or concentrate. At first I didn't think the symptoms were related to Mirena, but since I am otherwise very healthy and don't take any other medications, I started doing a search online and came to this website. I called the doctor and told the nurse my symptoms and she called me back to say that they never heard of anything like that and I must have some other medical problem...They insisted it was not Mirena causing the symptoms. I mentioned that my symptoms are actually ones listed by the manufacturer as "possible" side effects. They disagreed with that. Now I'm thinking of going to another doctor to remove it, if they'll do it. Can anyone tell me if they had these symptoms and if they got "better" with time? Or do they just get "worse"..??? If I knew that they would improve I would hold on a little longer. Has anyone had improvement after the first few months?
-- By jady4 | Reply | (7) replies | Private Message me
October 21th
2008
6:21 PM
The medical professional is particularly unhelpful in this matter. Talking with medical personnel about fluoroquinolone poisoning is a go-nowhere exercise. In an era when Monsanto genetically-modifies our seed stock you might think medical caregivers would advise us in advance that their prescription antibiotics mess around with their patients' DNA. (IT's that deregulation thing, yes?)
I experienced painful calves and a strange dream, possibly a nightmare, immediately, e.g., on the very same night, after having injested one Levaquin dosage for a prostate condition and maybe a year after separately having taken cipro for a week to combat traveler's diarrhea. The post-Levaquin early evening dream was strange insofar as I rarely drempt, and I never recall having been roused to wakefulness by a dream shortly after having gone to bed. Early on I did NOT associate Levaquin with the really terrible symptoms that I experienced within 60 days of having injested Levaquin.
My wheels fell off when I entered a period of insomnia. I thought my sleeplessness was stress-related because my health history includes a major depressive episode 11 years ago. I presented myself for help to a psychiatrist who prescribed a small dose of an atypical antipsychotic as a sleeping aid. My drug-induced sleep felt like a coma that lasted each night for a couple of hours. There were heart palpitations, agitation, panic attacks, racing heart, racing thoughts, insomnia, depression, paranoia, poor cognition, body shuddering, muscle twitching, night sweats, and pain in both Achilles heals. The symptoms filled a note book page. I felt like Jean D'Arc who was being burned chemically at the stake from the inside out. I would rise in the morning and then minutes later fall back into bed. I could stare off into space and completely lose track of time. I could not even find the right words in mid-sentence. I could not fill-in the registration papers when I presented myself for a second opinion at Mayo Clinic. I became a full babbling idiot. My wife said that I had retreated or devolved into some kind of primate or ape who communicated solely his emotional states by means of eye contact only.
I asked my doctors if the sum of levaquin and cipro had pushed me over my peak quinolone tolerance level. Or was it the medicine that the psychiatrist had prescribed to make me sleep? . I was no stranger to depression and I knew my symptoms were not merely emotional or psychological in nature. Why did I always feel as if I had been poisoned? The psychiatrist decided my paranoia warranted higher med levels. I declined the advice and stopped taking the meds altogether. My anxiety today is lower, my sleep is improved but fitfull. My neck aches. My head feels as if it were in a vise. It's not a headache and it's not painful, but there is a tingling, crawling, scorching sensation at my forehead and behind my eyes as if someone had beat me with a pillow and then filled my head with novocaine.
I'm not sure there's a moral to the story. It might sound a tad over-the-top, but I think we're faced by a pharmaceutical plague. There's really no excuse for the absence of informed consent. There is nowhere above ground, e.g., nowhere on main street, and no-one with whom you can speak in order to take the full measure of fluoroquinolone poisoning. If you are at this URL merely to find out about the FDA's recent black box warning re: Levaquin's link to ruptured tendons, you are in for peep into hell. Read the other thousands of postings on this site, and decide for yourself who bears the ring of truth.
September 26th
2008
3:27 PM
When I started taking it I suddenly started to fall asleep at odd times.Falling asleep in mid-sentence, when I would just sit down during the day, dizzy, disoriented. After I stopped, I quit doing that.
-- By corvair16 | Reply | (1) replies | Private Message me
August 22th
2008
12:39 PM
I have been taking 25 mg. at bedtime of topamax for the last week. I was prescribed topamax to end my chronic headaches. The last week has been very difficult for me. In just 7 days I have gone from being sharp, aware, motivated, focused and in control... to scattered, unable to focus, can't remember my pin # that I have had for 20 years, stop mid sentence because I can't remember what I was trying to say, unable to hold a conversation, unable to think clearly, unable to interact with my children. My family says I have turned into a zombie. I am not safe to drive and cannot work. I did not take my topamax last night and won't be taking it anymore. I would gladly have my headaches back if I could just feel like myself again. I had no idea it would affect me so negatively in just one week on such a low dose. (25 mg)
Be so careful before taking this medicine. My doctor didn't discuss any of these side effects with me, but I did research the drug online before I took it and was aware there were serious side effects, but it never seems that serious until you actually endure the side effects for yourself. The drug is not for me.
-- By sammie101 | Reply | (1) replies | Private Message me
August 18th
2008
11:09 PM
Blurred vision, 15 lb weight gain, irritability, insomnia, excess hair growth (exacerbating my PCOS), nausea, nightmares, fuzzy thinking, bad memory, lose train of thought mid-sentence. Been on 100mg for 3 months. Doctor upped to 200mg but after 3 days on it and 3 days of no sleep, I dropped back down. Helps a bit with my depression, but I feel sort of numb. Not as bad as on some, but not good.
-- By scarpetta1978 | Reply | Private Message me
August 15th
2008
1:16 PM
I have been taking Yaz for a month and a half. The only medication I have been on in several years.
At work yesterday, my head started getting foggy. And my perception, was all messed up. After about 15 minutes of this not getting better, I started to lose my speech communication. I couldn't finish sentences or words. Stuff was jumbling together. In my right hand, two fingers went numb, then the whole hand. A client ended up driving me to the ER. I tried to call my receptionist, but I couldn't get the words out, my client took the phone and told her I was going to the ER. By the time I got to the ER, feeling started coming back, and I could communicate, in full sentences, if I paused between. By the time I was checked in and saw the doctor, I was able to tell him all that happened. With no problem, then a huge headache came on.
He wanted to rule out stroke, so did the CT scan and MRI. The nurse had some trouble getting blood from me. She kept mentioning that the blood kept clotting. The doctor sent me home saying my brain was perfectly healthy, and to go see my regular doctor.
A friend told me it was the birth control, because she could not take it, as she has lupus, and could have a stroke. She said it causes clotting. All of this was making sense to me. I looked up the side effects I had and found the "stroke symptoms", listed as rare, on Yaz.
My opinion of what happened, I had a blood clot that ended up passing through, and it could have become a stroke.
Another thing I read, besides the clotting. Was that oral contraceptives increase the potassium in your blood. I had been eating a banana for breakfast, 3 mornings in a row (the third on the day of this episode). The added potassium, could have been related to this episode.
How is anyone to know they can't eat something like "bananas" with birth control? I certainly didn't.
I am afraid to try any form of birth control at this point.
August 13th
2008
5:12 AM
Hi, I am 25. I have taken omeprazole 20mg. for 4 months for my GERD, and after the fourth month, I started having these abnormal heartbeats. I am really worried if these are side effects of omeprazole, and if this medicine may cause permanent damage to the heart. So I decided to see my PCP and requested a change in medication, so he prescribed me 6 month-refills of Aciphex 20mg. It’s my second week now, and I feel this weird itchy feeling inside my chest. I feel like I am always tired, and breathe hard than usual. Id this a side effect of Aciphex? Should I stop taking Aciphex? And does achiphex damages the heart muscle, or cause CAD?
-- By max101 | Reply | (2) replies | Private Message me
July 14th
2008
11:02 PM
I've been on Topamax for a few months now........this is the second time. The first time was in 2002-2004. I was up to 400mg for migraines & depression. It was supposed to do double duty. Well, I was stupid, to put it briefly. I couldn't remember anything. I would stop mid sentence because I couldn't think of the word I wanted to use. I lost a lot of weight, too much. I had needed to lose a little....baby weight. But I looked anorexic. So out to buy a new wardrobe. $$$ I lost a ton of hair!!!! So off it I went. The weight came back very fast....too fast I think. My friend says the same thing of her experience. THIS time I'm on 250mg.....no more than that, as per me. I was stupid for a little while, but it seems to have gone away for the most part. My hair is still falling out, so not much longer on this one for me. The reason I went back on it was for the weight loss ( and it does help the migraines). I was on some migraine meds that made me gain 40lbs over a 2 yr period(Abilify,Cymbalta). NOTHING could get off the weight. Not exercise, not diet. I've lost 21 so far, but my progress has slowed because of Wellbutrin...it makes me crave sweets. And my willpower is nil. lol So off the Wellbutrin I go. I also learned my nastiness could be from Topamax. I snap at the kids. Who knows which drug it's from! I also take Singulair. That's a story in itself. That one's gonna go too.
-- By robin43 | Reply | Private Message me
April 29th
2008
1:32 PM
(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.
1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.
2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.
3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.
4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.
5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.
I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.
-- By aussie63385 | Reply | (9) replies | Private Message me
March 23th
2008
1:12 AM
Been taking Topamax 300 mg a day for the past 4 year. I also take 450 mg of Wellbutrin. This is to help with migraine. Although my total count of Zomig pills I took last year was 120 pills and some of those I broke in half so I wouldn't have to use a whole pill for a migraine. So that mean, with the Topamax and Wellbutrin combined, I still had at least 123 migraine this past year. Three months of migraines. That's insane. I can't stop the "Dopamax" because my doctor says it would be really bad with it. I have terrible memory loss, forgetfulness, and loss of words that is embarrassing. The nurses did not inform me of the side effects when I first started taking it and I thought I was going crazy. I started looking up ADHD on the computer thinking I had developed it as an adult. I was made at the nurse when she asked me how I was doing remembering things and and if I was stumbling for word......I wanted to slap her off her stool.........at that point it was NOT funny.
-- By starleena | Reply | (4) replies | Private Message me
March 7th
2008
4:14 PM
Hope this helps someone:
Male 53, 5' 10", 180 lbs, slim
Occupation: Engineer/small biz owner and operator
Total cholesterol now is 4.53 (175), LDL 2.30 (89), HDL 1.43 (55), TriG 1.73 (66)
Presently on 20 mG Lipitor for last 2 months.
40 mG Lipitor for previous 8 months because lipid levels deemed too high.
20 mG Lipitor for 3 years before that.
20 mG Pravachol for 2 years before that.
SIDE EFFECTS I BELIEVE ARE DUE TO STATINS:
1) Difficulty learning/performing new tasks. I can read a technical article and forget most content almost immediately. I can read a book and forget what it is mostly about...difficulty forming new memory.
2) Difficulty communicating. I often stop a conversation in mid-sentence because I have completely lost my train of thought. I often cannot form difficult technical words properly.
3) Several times over the last year I have suddenly forgotten where I was going or where the location was...this was in normally familiar territory.
4) For the past year, I have often felt like I have a low grade flu.
5) I have decreased statin dose and improved my diet and recently significantly increased exercise. I am noticing some exercise intolerance and muscle stiffness that cannot be only due to exercise.
6) Extremely vivid dreams a few times a month (embarrassingly, howling in my sleep according to family members). This was the main reason for reducing dose back to 20 mG.
Most side effects were worst at higher doses of 40 mG. There has been some improvement since dropping back to 20 mG Lipitor. Symptoms first noticed to some degree at 20 mG Pravachol...got worse when switched to more potent Lipitor at 20 mG. Initially, I thought it was age. Both my doctor and specialist do not believe statins are related to any problems I've experienced and are convinced that any risks are outweighed by the benefits. I would like to see them competently run their practice under the conditions I've had to try and operate my biz.
I started taking fish body oil two weeks ago and have noticed a significant cognitive improvement. This may be partly due to reduced statin dose, however, there is lots of evidence online as to why fish oil will help some statin users. I started 50 mG CoQ10 a couple of days ago. My goal is to absolutely minimize statin dose or to eliminate it all together.
I am educated, intelligent and analytical. I am not a doctor. That said, no one can, and ever will again, tell me that the degradation in mental function I've experienced is not related to the statin drugs I've been prescribed.
If you look online, you can find a growing and disturbing number of statin induced side effects reported. This is especially true considering what was considered acceptable LDL a couple of years ago is now too high...doctors are prescribing statins in higher and higher doses.
THESE ARE DANGEROUS DRUGS.
I hope this helps someone. Recognize the symptoms and make your physician take appropriate action.
December 28th
2007
8:04 AM
I am going to begin taking 25 mg of Topamax at bedtime tonight. After reading all of these posts I am a scared. I was prescribed Topamax for bipolar disorder. I am currently taking Lamictal as well. I always gain weight on psychotropic drugs and need to lose about 15 lbs (all of which I have gained over the course of being on Lamictal). Any who-my psychiatrist said that this medication may help counteract the weight gain I have experienced. Although I do not consider my self an overeater now. I do hope that it helps me to not like the taste of sodas though. I am addicted to Mt. Dew and caffeine, which I wouldn't mind stopping. Anyway, I am supposed to increase my dosage by 25mg per week until I reach 75mg per day. I am also supposed to go back and see my doctor before I increase the dosage beyond 75mg. I just hope I do not have the horrible side effects I have read here. Some of them I know I can deal with especially if they are temporary but the anxiety/depression/shortness of breath/lack of energy/morbid thoughts are the main ones that concern me. My psychiatrist said that with this medication I should drink plenty of water. He said that it could cause headaches and other side effects if I'm not sure to drink plenty of fluids with this medication. So, I am planning on hydrating myself really well today before taking it this evening. I'll post back and let you know how the side effects are going. Is anyone else on a combination of Lamictal and Topamax or on it for bipolar disorder? I'd like to hear more of your experiences.
-- By cmbandrwb | Reply | (7) replies | Private Message me
November 18th
2007
12:30 AM
Hello, I have been on Topamax for about 2 months now for severe and unexplained dizzy spells\vertigo. I am at 100mg. The spells are gone thank God, because they were debilitating, but the side effects are HORRIBLE! First it was me just feeling like an idiot, dropping everything, forgetting words, losing my train of thought mid sentence... I am a hair stylist so this could be quite embarrasing. Then I got the crazy weird tingles everywhere, but they are kinda cool. Except when they wake you up in the middle of the night. AHH! But luckily the stupidness has worn off, and the feeling like I never get enough sleep has too. But now I AM LOSING SOOO MUCH HAIR! Like handfulls of it. I took a ziplock bag of it to my Dr. and (extreme, I know...) he says "yeah, that can happen..." not to me! I'm a hairdresser! I think I may go off of it... Has anyone else experienced this??? Soda still tastes like crap most days, but I don't like it much anyways. It can up your anxiety level at times too, i think. The positive is that it keeps you from overeating. The side effects get better, as in not as constant, but they never completely go away.
-- By deemarie321 | Reply | (1) replies | Private Message me
November 7th
2007
10:16 PM
I have been taking Topomax for quite some time.Tried it several years ago, the mgs were not high enough (only 25mg/day).My doctor didn't really know the prpoer dosage.It didn't help the migraines.My new doctor has me on it again.50 mgs/day.Here's the good - NO MIGRAINES! Here's the bad: Acne at 45 years old, tingling doesn't even describe my legs or face, ringing in the ears, remembering names and places just doesn't happen, I'm eating less but gaining weight quickly,& one last thing- Itchy spots that I would describe as "hot spots" if I were speaking of my dog. Still sticking with it because I don't have the migraines.I tried to slowly take myself off and the headaches came back.What choice is there?
-- By eliseb | Reply | (2) replies | Private Message me
August 21th
2007
7:45 PM
on Topamax 1 mo experienced nightmares, could not spell, remember my address, phone #, ringing in ear and since off drug going on 2 mos. also altered personality; slight hair loss; trouble driving. Trouble typing. Horrible drug............
-- By kar | Reply | (2) replies | Private Message me
Topamax (10) Mirena (6) Singulair (3) Lamictal (3) Wellbutrin (2) Yasmin (2) Topamax Sprinkle (1) Lipitor (1) Yaz (1) Baclofen (1) Levaquin (1) Aciphex (1) Zomig (1)
October 11th
2009
3:03 AM
I have been reading these posts for awhile now and am so glad to have found them.
-- By pippy | Reply | (4) replies | Private Message meI am a 25yr female with epilepsy and have been on lamictal for the past 4yrs. I changed from epilim because I was getting married and heard that lamictal was safer in case of pregnancy. Not long after I found myself getting very angry over small things and not being able to sleep. I thought this was just me so I tried to get myself together. It went on for some time before I gave up and got help. I was diagnosed with depression and given fluoxetine. This helped me get back on my feet but I did not want to be on it long term and have been of the fluoxetine 2yrs. I still struggle with my mood but is manageable which I am happy for.
I did not realize that the headaches and the memory loss I had were from the lamictal until I found this forum then it all made sense. I had always thought that I was staying up too late and hence getting headaches. As for the memory I often feel like a blithering idiot. Cant remember words and often the wrong ones come out its so embarrassing. So often I feel like I'm in a daze and life is passing me by.
After all this said I have not heard of any other drug that would be any better. I have found comfort in knowing that I am not alone in this. There are a lot of people that do not understand the effects of medication or take it seriously when I try to explain. If there is anyone out there that is keen to chat about epilepsy or lamictal I would love to talk.