Mirena coil symptoms and conditions

Oh my oh my, reading all ur posts is like ive written it myself. I thought i was going bonkers, i think i did actually!! I was on the pill for 16yrs and came off it to have my 1st child, aged 34. Never had any probs with the pill. I had my mirena coil fitted 2.5yrs ago and have had no end of thrush, discharge, itchy vagina and sharp cramping pains on my left. Greasy hair and falling out in shed loads. No weight gain or spots tho. I had the coil removed 2wks ago, that was hell in itself!!!!!!!!!! was looking for the gas and air!!! it took 2 nurses and 4 extremely painful tugs before it finally came out.I was nearly having to go to hosp to have it removed. The nurse said it had embedded into my skin. Bled due to the removal, but then it mustve triggered my period, which lasted just under 2wks. I have never felt so crap in all my life. Within a day i felt low, tearful, sad, headache everyday, face full of spots and very dry head to the point of bad dandruff. Still having cramps and period type backache, i don't feel as low, but still feel chocked & huge sore boil spots. Nice...not. This must be the 'crash' that ive only learn about from everyone on here, not my doctors, which is where u think u'd here it from. Thank all of u women willing to confide.

I am so glad I found this website. I had the Mirena inserted on April 14, 2008. Since then I've been having anxiety attacks and I'm always tired no matter how much sleep I get. My mom had an accident 2 days after Mother's Day (May 13th) and passed away on July 17, 2008 so I thought my issues were related to everything going on with her. On July 24th (the day after her funeral) I was transported from my doctor's office to the emergency room via an ambulance because I was having chest pains for about 7 hours. After 2 EKGs, and blood work, they could not find anything wrong (thank goodness) and I made the doctors aware that I had the Mirena. I haven't had chest pains since then but I googled Mirena side effects because I still have bouts of anxiety and I am extremely tired. After reading the posts I think my symptoms may be related to the Mirena. I will have a talk with my OB/GYN and see what she thinks.

I had my mirena coil fitted at my 8 week post-partum check after my second child, this was feb 07. I was breast feeding until july so didn't resume periods until last aug. When they did resume they were so heavy blood would drip onto the floor - and occurred every 2 weeks without fail. I was assured this would settle down, but by April this year I'd had enough. I was referred for a scan to check for cysts - nothing, then sent to a gynecologist who decided to remove the coil...except she couldn't find it. Another scan showed it was not there and I'd probably expelled it, but I had to have an abdominal x-ray just in case. Two weeks ago I finally got the results - my uterus has been perforated and the coil now lies in my abdominal cavity just near my left hip. I am in constant discomfort, and sometimes searing pain (I had to miss work today because the pain was so bad it made me sick) Yet I have to wait a full 2 months to have the operation under general anesthetic to remove the damn thing. I just want it out of me, and am unclear as to whether it can do any further damage. The consultant told me they can fit a new one whilst I'm under, but I'm having serious doubts as to whether I want another one. Interestingly I've steadily put on 4 - 5lbs since October but yet haven't changed my lifestyle at all.

Had the mirena coil fitted just over a year ago now, and wanting to have it out. The first couple of months of having it in i turned into a monster, i was constantly in a bad mood and would tear into anyone for no reason at all and that aint me as i am very laid back. This then calmed down and i returned to normal, and now every now and again every time me and partner had sex i wouldn't be able to move due to awful pain felt like the coil had pierced my wall or something, this would die down after a couple of hours and a packet of pain killers, it hasn't happened for a while thank god but now i am getting constant period like pains. I have gained 3 stone in weight and gone up 2 dress sizes and i have upped my excessing and diet but its just not shifting at all and i seem to be getting more headaches and my boobs just don't seem to stop growing. Although my skin is acne free as it has never been and i have had no periods for nearly a year now which is nice. But i have had enough and want it out, i want to feel normal again.

Slightly different I'm aware, first had the Mirena coil put in in 2000 and had absolutely no problems at all, bit pf pain when it went in, but no bleeding for 5 years, had it removed in 2006 and just had another one put in yesterday, so I know every one is different, but my experience has been brill on it is much more reliable than the pill.

I am 26 years old and I thought I was having a heart attack last night. I seriously thought I was going to die. At work my feet and hands started to swell up really bad, but that went away pretty quickly. Then I started getting dizzy and feeling nauseated. My heart felt like it was going to beat out of it's chest and all I could do was think about it! I went and had my blood pressure checked at Walgreen's and they said it wasn't high enough for me to go to the ER, but I was scared. I was told I was having a panic attack to take deep breathes and try to take my mind off of it! Well that is hard to do when you are convinced that you are having a heart attack. Now I am experiencing pain in my lower back and having sharp stabbing pains near my left ovary and in my left shoulder down to my elbow.......when will this end? I just want my body back again!

I am 3 weeks post removal and I am still experiencing aches and pains throughout my body, still have the 10lb weight gain, some mood swings and extreme tiredness and some periodic bloating...I am fed up! I have 2 questions: Has anyone found anything about this hormone levonorgestrel and how long it takes to get out of your system? Second, if anyone knows of any suits against these people, let me know because this is really interfering with my life and with my children and my boyfriend!! This is ridiculous, I didn't know about all of this crap prior to getting the Mirena and wouldn't have gotten it if I did know, and I am still paying for it after removal! Please let me know...thanks!! : )

i had my mirena for a year and i got it removed 3 days ago. the first 8 months was fine and i had no periods and no side effects apart from about a 10 pound weight gain. in the last 4 months i have been losing weight successfully and ive lost about 22 pounds so i couldn't really complain!! but about 5 months ago my hair started falling out and i had really bad acne. the worst thing was the pain in my abdomen. it was like the worst period pain you could imagine.
i had to get up in the middle of the night to take painkillers and sex was too painful. i was tested for infection and given 2 lots of antibiotics. this gave me approx 5 pain free days before it all started up worse than before. i had an ultrasound scan and they discovered a rotting lump attached to either my uterus or my ovary. this they attributed to the hormones from the coil but what was more worrying was the fact it was in the wrong place!!!
3 days ago i was very ill with severe pain, fever, going hot and cold and shaking and vomiting. my doctor removed the coil straight away and it was rotten with infection. i am again on 2 lots of antibiotics.
i feel a lot better, my acne already clearing up and my stomach is flatter. ive lost 4 pounds already but my abdominal pain is still there. i have started bleeding but it is quite light and i hope it doesn't last too long.
even though im not out of the woods yet i feel like a weight has been lifted from me and i hope im back to normal soon.
im thinking of making a complaint to someone as i think a lot of my problems stem from the fact it was fitted in the wrong place.
good luck to you all. many of my friends have a mirena coil and have no problems! i think they are the minority though!!

hi, I am a just turned 40 year old woman in the UK. Had the Mirena coil fitted in March 2006 and, yes, it was incredibly painful! Had it inserted due to heavy painful periods and it worked a treat for 18 months. Already have two children and now with a new partner, thinking I would like to at least try for another baby. Had the mirena removed at the beginning of Jan '08 and though I suffered cramps etc. for about a week, still to this day have not had a period. Worrying that I may be menopausal :-( Has anyone else had a menstrual delay like this through having the mirena coil removed? Thanks - Downhearted

I had my first Mirena coil fitted about 10 years ago and though it had been fantastic. No worries about getting pregnant and no periods. I had take the pill before and had ovarian cysts removed so I couldn't use the pill. However, my second Mirena only lasted 31/2 years before I notice problems. I had a new one fitted and it had been ok for 3 years. Or so I thought. 18 months ago I became very ill with chronic fatigue, sickness, severe depression for which I was prescribed Prozac and then I developed Irritable bowel syndrome. I felt like I was going nuts. Nobdy believed how I felt. My job is at risk. I had a new mirena fitted a few months ago and the problems had eased although I feel that they are now getting worse again. I am considering having it removed. I hadn't made the link between the Mirena coil and my illness until recently. I have also gained a considerable amount of weight but I also had this when I was on the pill. Has any one had problems after using the Mirena for a number of years? as most people seem to have trouble straight away.

I had the Mirena coil removed a week and a half ago and let me tell you I have had the worst week ever!!
My reasons for getting it removed were the same as most people, very bad mood swings,always snapping at my boyfriend, depression, always bleeding, severe stomach cramps all the time, anxiety, hair loss, low libido and the list goes on... I never had any of this before the mirena.. I never realised the mirena could of been the cause until I decided to google it one day and found thousands of women had the same symptoms, everything then made sense...

I made the appointment to get it removed and immediately started taking Vit B6, Primrose oil and I have ordered 5HTP on the internet cos I cant find it anywhere... day 4 I started getting very bad anxiety and horrible suicidal thoughts, I have always been a happy person and couldnt understand what was happening to me... the whole week at work was a blur and each day was a struggle to get through.. I was continuously crying and I had these horrible thoughts in my mind that wouldnt go away!! it has been a nightmare.. its like they are stuck in my mind and I cant think of anything else but these horrible thoughts! (The weird thing is I had the same thoughts when I had the mirena inserted 2.5 years ago but they werent as bad as now and they eventually went away) I saw my doctor on Thursday morning and explained these problems and she prescribed me valium tablets to take away the anxiety... later that afternoon I had a anxiety attack and landed going back to the doctor because of these horrible suicidal thoughts in my mind... My doctor reffered me to a phyciatrist which I saw yesterday, I have never had to see anyone like this before so it was very scary for me... the shrink I saw said that there was no ways the mirena could be doing this to me.... she gave me more valium for my anxiety and now I have to see a special therapist once a week until these thoughts are cleared from my mind!
I find it very strange that all this started 4 days after my mirena was removed! I know this is all happening because of the mirena, the only thing that is keeping me going is reading everyones posts and knowing that this will go way once my hormones settle, I know im not going crazy even though it feels like I am!!
Every doctor I have spoken to will not agree that the mirena could cause any of these side effects! It makes me so mad that so many women are going through this and the doctors think the Mirena is the best thing since slice bread! How can they have no idea!!??
If anyone is thinking of getting the mirena.. DONT DO IT!!!!!!!!!!!

i had the Mirena coil going two years now and i have being experiencing mood swings, no sex drive, hair loss, terrible black heads in my face and when i burst them left holes in my face, memory loss, sweating, dizziness, and the list go on, am going to remove it,any suggestion, am so depressed i have being wondering if i am going insane my boyfriend believed am making it up

Hi I have had a Mirena coil for the past 2 and half years. For the last 18 onths I have been suffering with Chologenic Urticaria. I react to change in temperature (cold to hot) devole hives and itch. Each attack will last for 20-30 minutes. Also have pain in my knees and legs and have trouble walking up the stirs some days. Has anyone had these type of systems?

Hi All,

I have recently had the Mirena coil fitted, (first week in Jan 08 this year). The insertion was so painful that i nearly fainted twice while having it fitted.......that night i couldn't sleep as i was in so much pain and was bleeding heavily. I am now 5 weeks on and can't get through the day without taking 2 Ibuprofen and 2 paracetamol every 4 hours as the cramping pains are so back that i can't concentrate on anything. I also started bleeding 9 days ago and instead of getting better it's getting worse. I went back to the clinic after calling every day for advise from the doctor who said my side affects were normal!! after explaining to the doctor that i was also taking the Femodene pill as the doctor who fitted the coil said this would help the coil settle in quicker. Anyway they said i should come in as it sounded like the coil was expelling......they did an examination and told me that everything is fine and that what i am experiencing is normal and that i should try and give it another 6 weeks. Can anyone reading this give me some advise ?? i called my doctors again today and can't get an app till the 21st of Feb. This thing is beginning to get me down and doing nothing for my sex life with my partner.

I wish i found this kind of site before i go the Mirena fitted.

Had mine from early 2003 and gained 5 to 6 stones (14lb = 1 stone). All other three pregnancies I returned to normal weight, but after the last one, the weight piled on. I had no periods which was great, but could not sleep well, felt 'switched off ' often muddling up words and generally feeling on the outside looking in on situations. Had dry scalp, dry skin,stronger smell down below, and had terrible water retention. Had mine out just before Christmas, cant wait for hormones to get out my system. The Mirena coil has ruined the last four years of my life, was bloated with puffy face, huge breasts and stomach. May work for some, but was worst thing I've ever done... Good luck everyone, its terrible we are all going through this.

I have had the mirena out now since the 17th October, I had had it for about 2years.it was causing me mood swings, very bad acne, chest pains, insomnia, a weird feeling-sometimes painful-during sex, lowered sex drive, itchy skin, a weird tingling in my facial skin and very bad pre-menstral depression. Am now using condoms as my sole contraceptive(bit scary, but doing fine so far!).
So far my skin has improved alot-I thought it would take a lot longer, the spots haven't completely gone, but no new ones and it looks alot brighter. Also, mood swings are alot better, no pmt and no depression. The chest pains have gone and the tingling, havent had such horrible sleeps and sex drive is definately back!
If this thing is affecting you, then get it taken out! I feel like a new woman! I have not had another period yet, due in the next week. mmmm...I wonder what that will be like! Weird. Anyway, Im just pissed off I never had it taken out earlier an that I thought I had no other choice. It definately didn't agree with me. Do not listen to any docs/nurses who tell you it is 'only local hormones and will therefore not cause side-effects'! LIES!!! It tells you on the leaflet that it may cause these side effects. I dont know why they give you this contradictory info.
Cheers X

wow this is interesting reading, I had the Mirena coil put in 3 years ago. It was agony while it was put in and I had severe cramps for about a week. Then I had terrible acne for about 6 months, now it comes and goes and isn't too bad. Since having the mirena coil in I have gained some weight, gone up a dress size.
My periods stopped completely.
The past few months I've been thinking about getting it removed.I've had terrible Irritable Bowel Syndrome for the past year with bloating and cramps. Also insomnia, weepyness,irritability, I feel so tired some days but just can't sleep at night, I feel stressed out and depressed.
Also I've been getting a lot of headaches and migraines which I thought were just because I'm so tired. Now I'm thinking maybe its because of the coil, but I'm not sure because it wasn't like this at the beginning

I had a Mirena coil fitted about 3 years ago. It was brilliant. I had it fitted because I suffered terribly with painful periods. Not heavy though. I had it for about a year, then had it removed to try for a baby with my partner. I already have a 19 year old son. I didn't get pregnant, now, I believe a good thing, and I had a second Mirena fitted. Let's put it this way, it's not acting like the first one did. I get headaches, hot flushes, bloating, depression, crying, muscle ache, especially arms and hands. I have dizzy spells, and can't stand around for a while as I feel faint. I am overweight, and always intend to do some exercise, and control eating habits a bit, but when your mind isn't right, how can you? It's a vicious circle. Obviously I appreciate that some of how I feel is my weight issue, but as I said, it's hard to do anything about it when you can't get the incentive because your mind is working overtime! The bleeding though, is basically the same as the first coil. It stopped near enough straight away, but at this moment I am having what isn't really a period, but is stranger and little heavier than spotting! I also get sharp pains now and again at the moment, and am very bloated. Doctor said about a month ago, that the coil could still be settling! We will see! Any replies would be great, I hope I haven't rambled on!!! Ha.. Pauline, Gloucestershire

Have been taking Yasmin since Sunday and I am having extreme mood swings. Not happy at all. My boyfriend is wondering what the hell is going on. My sister told me I should try giving it a month or so for my body to get used to the hormones. Not sure what to do.

I'm soooo confused! I have just recently started feeling VERY depressed- when I fisrt got it put in, I was fine, no pms or anything. But I've now had it in for about a year and am thinking about having it taken out. My moods and my self confidence are very up and down. One moment I feel great and the next I want to scream and break things and cry. And I often do. I thought I was going mad, but having read these it all makes sense. I had been taking the pill and it made me depressed, so I got the copper coil put in. That caused me to have terrible periods, that were very painful and when I went to the family planning, the doc said that a mirena coil would be better for me and the hormones would not affect me, since the hormone is localised. But I have had bad acne on my face, chest and back and I had never had acne before. If the hormone is that localised, why is it causing the acne?! I keep thinking, maybe its just me being mental and its not the coil making me depressed. But I think thats just cos I feel a bit desperate- what the hell contraceptive can I use that wont make me depressed(no hormones)?? condoms are just rubbish. O and my sex-drive is currently non-existant and my relationship with my boyfriend is going down the drain due to that and the moods. My sex drive used to be healthy. My breasts have also shrunk but are painful. I luckily havent put on weight. I have really bad period pains, that feel like a 'snapping' feeling. If I ever had period pains before, they never felt that way. Its weird!
I don't know what to do. I will get it taken out-its not a financial concern for me since I live in Scotland. But it is stress to find something to stop getting pregnant!

I'm soooo confused! I have just recently started feeling VERY depressed- when I fisrt got it put in, I was fine, no pms or anything. But I've now had it in for about a year and am thinking about having it taken out. My moods and my self confidence are very up and down. One moment I feel great and the next I want to scream and break things and cry. And I often do. I thought I was going mad, but having read these it all makes sense. I had been taking the pill and it made me depressed, so I got the copper coil put in. That caused me to have terrible periods, that were very painful and when I went to the family planning, the doc said that a mirena coil would be better for me and the hormones would not affect me, since the hormone is localised. But I have had bad acne on my face, chest and back and I had never had acne before. If the hormone is that localised, why is it causing the acne?! I keep thinking, maybe its just me being mental and its not the coil making me depressed. But I think thats just cos I feel a bit desperate- what the hell contraceptive can I use that wont make me depressed(no hormones)?? condoms are just rubbish. O and my sex-drive is currently non-existant and my relationship with my boyfriend is going down the drain due to that and the moods. My sex drive used to be healthy. My breasts have also shrunk but are painful. I luckily havent put on weight. I have really bad period pains, that feel like a 'snapping' feeling. If I ever had period pains before, they never felt that way. Its weird!
I don't know what to do. I will get it taken out-its not a financial concern for me since I live in Scotland. But it is stress to find something to stop getting pregnant!

I HAVE HAD MY MIRENA COIL OUT NOW FOR 12 DAYS AND SINCE THEN I HAVE BEEN BLEEDING NON STOP AND IT HAS BEEN COMMING OUT IN BIG BLOOD CLOTS AND I AM CHANGING EVERY TWO HOURS. LOOKING BACK NOW I REALISE THAT I HAD SUFFERED A LOT OF SIDE AFFECTS SINCE HAVING THIS BUT NEVER ASSOCIATED IT WITH THIS. I HAVE EXPERIENCED HAIR LOSS, MOOD SWINGS, SKIN PIGMENTATION CONDITION, BLOATED STOMACH, WEIGHT GAIN AND CONSTANT DISCHARGE, THE ONE GLAD THING THAT I WAS GLAD IT DONE WAS MAKE MY PERIODS LIGHTER. GLAD I FOUND THIS SITE.

Gyne appointment.

Hello ladies, I went to see my gyne today and as I expected she denied my symptoms were anything to do with yasmin (of for 16 weeks, heart palpitations server anxiety etc) after arguing with her she agreed to test my progesterone, estradiol, testosterone and dhea levels, but on the blood test form she put query adrenial cause, what does that mean.
She also denied yasmin was the cause of my problems but does not want me to go on any more pills because of the hormones they contain, she also said i can not have the mirena coil because of the hormones.
She told me she has no idea why I feel the way I do and I should see a neurosurgeon, the thing is I see one last week, I went private after having severe anxiety and convincing myselve I have a tumor I was told that I show no signs of any tumours but to put my mind at rest I will have a scan in a couple of months.
I knew I would have no answers today so I brought myselve some angus castus, can someone explain this to me and will I get a little better if I take it?

I can handle all these side effects but the anxiety drives me mad.

pls reply.
Joanne.

mirena coil fitted 1 year ago-since then continuous weight gain,extremely sore and tender breasts and nipples,severe bloating for 2-3 weeks every month.vaginal itching,and prolonged ,though lighter periods-lasting on average around 16-18 days,with cramps and lower backpain throughout