September 16th
2009
12:35 AM
Good Evening,
My mother has been taking Remicade for several years now. I believe 4 years.
She has ankylosing Spondylitis. Nasty nasty disease. The drug has worked like a charm so far. Aside from the temporary side effects during the first few hours of injection - tiredness, drowsy, etc.
After that, shes as good as a goat.
Recently, shes been experiencing a loss of recent recent, very recent memories. Sometimes a convo here she wont remember or take a while to remember.
Or convo yesterday she wont remember at all. Also her ability to compute math problems in her head on the spot has decreased. She has a hard time doing any simple math. She was never like this.
Being in the medical field, her wit and brain power were her key features. Now that have dwindled, shes having difficulties coping with her loss.
Shes been tested for Dimentia and other ailments when reaching the age of 51. So far, soo good. No such things.
I would like to know, if this side-effect ( if i can call it that) is permanent or temporary
Her doctor in charge of her dosages has reduced her treatment volume to fewer ml and will prolly resort to other meds as well.
See how it fairs in the months to come
If anyone has any cases similar to this. Please relate and re-iterate!
God-bless!
-- By yellow_box | Reply | Private Message me
September 3th
2009
2:04 PM
I was put on 20 ml prednisone a day for PMR . My doctor said with such a low dose I shouldn't experience many side effects. WRONG! The first month was great. No pain and I felt better than I'd felt in years. Then the side effects started...every known side effect hit me. After being on the drug for two months I told my doctor I couldn't stand the side effects any more and to please ween me off. Two weeks ago which was end of third month I was completely weened off the drug. I still have blurred vision so bad I can't function...I can't work, I can't drive, I can't read. I can barely see at all. My question is will my vision improve? So far its seems to be getting worse and my vision was great before prednisone.
Depression was bad when I was on drug but seems to be even worse now that I'm off.
The only side effects that have diminished are appetite even though I haven't lost one oz of 40 lb weight gain while I was on prednisone and muscle cramps are not quite as bad. I am sleeping a little better and hot flashes aren't as bad..
-- By eambrose | Reply | (1) replies | Private Message me
June 29th
2009
3:08 PM
54 year old Male, Retired Marine, Very physically active, with Type II Diabetes; 5mg. Thanks for this Website. Started Lisinopril 3/25/09. Took it for 25 days, found this website and stopped taking it immediately. I had severe JOINT PAIN. It started in my hands, then feet, knees were next, then moved into my shoulders. The pain was the worst I've ever felt. Approximately 60 days after stopping the drug I went to see the Dr. after the Pharmacist told me Lisinopril should have been out of my system after 2 weeks. The Dr gave me Steroids (Prednisol) which completely eliminated ALL pain in 2 days . I was tested for Polymyalgia Rheumatica, however the my Sed Rate was normal. The blood tests did reveal that my RHEUMATIOD FACTOR is elevated (34.3 where the normal range is 0.0-20.1 IU/ML). Was told that if the pain returned, then I would be referred to a Rheumatologist. 3 Days after finishing the dosage pack of Prednisol, the pain/swelling in my hands and shoulder has returned. Going back to see the Dr today to discuss next steps.
Although the doctors don't agree, I believe Lisinopril caused this pain, and although out of my system now, triggered something that isn't going away.
The rest of this describes the roving pains I experienced.
Hand pain included swollen fingers, inability to make a fist or type on a keyboard. After light yard work on Sat., shooting burning pain up the inside of both arms. Trying to close your hands into a fist, you can feel the tendons up your arm burn with pain. Motrin did not alleviate the pain. Hot water did not help.
Pain in my knees each morning. The pain worsened over night and frequently causes you to wake up. The pain was like your knees were being squeezed in a vice. No position is comfortable. Motrin sometimes helped, but after awoken, getting back to sleep was impossible.
Feet swollen. Couldn't wear any shoes for extended periods. Loosening the laces helps, but still caused pressure which becomes unbearable and the shoes have to come off.
Shoulders; This is the strangest one. First pain was in the left shoulder, like I had impacted a brick wall at a full run (actually no trauma occurred). The pain felt like someone had stabbed it in my shoulder in the socket. At it's worst, no position is comfortable. Had to put my arm in a sling. 5 Days later, the same type pain moved to the right shoulder.
-- By tobarcus | Reply | (2) replies | Private Message me
May 27th
2009
5:12 PM
I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.
-- By xxanonymousxx | Reply | (13) replies | Private Message me
May 26th
2009
8:01 PM
i take 40mg a day, on week 6....i noticed that ive cut up a far bit, and feel a little stronger than usual, ive had no negatives, still get a raging hard-on, no acne,no depression, no back pain, just feel good.....don't know what every1 is talking about when they say they've experienced all these negatives and they are taking so small a dose! nearly finished my course now gunna come off for 2-3 weeks..then start my new course.....i have some test 400mg/ml...think i will do 400-500 mg a week, split into 2 injections, and was thinking about adding some more winstrol to it..and see how i get on....i train hard...but im new to using steroids...could do with a little help?
-- By hodman | Reply | Private Message me
March 10th
2009
3:53 PM
i went off yaz about 3 weeks ago. I have noticed in the past week and a half that i have had diarrhea and some constipation constantly. has anyone else had that side effect? i have noticed that my crazy mood swings and crying for days at a time have finally stopped, which could not make me happier!
ml
-- By maria0209 | Reply | Private Message me
February 22th
2009
9:07 PM
i have been on paxil 30 ml for over a year before paxil was not able to leave my hous i have had 0 side effects for me this med has been great however not wanting to be on meds the rest of my life im 35 i have started weening myself VERY slowly cutting 10 ml every month i am hoping by doing this i will not have those awful withdrawals has this worked for anyone thanks so far none
-- By donnell | Reply | Private Message me
January 10th
2009
9:16 PM
I took 4 500 mg doses of Levaquin for a sinus infection on Aug 19-22 2008. I am now almost 5 months out. I suffered multiple adverse reactions and have been waiting to post to see how things resolved. I am 39 years old and in excellent health. I rarely see doctors and have never had anything chronic. This is what I experienced: extreme fatigue, all over muscle soreness/stiffness, severe headaches, tingling/numbness in hands/feets, serious shoulder problems requiring ortho, physical therapy and chiropractor, irregular heart rhythm, irregular kidney function, constant ringing in my ears, impaired vision. Currently most of these are resolved except irregular kidney function (although this has improved), shoulder issues (not normal yet) and ringing in my ears.
You can't judge the full scope of your reaction by your body's initial reaction. As time unfolds you will get the big picture of how this drug harms the various systems of the body.
I can not begin to explain how taking this drug has impacted my life and my family. I have 3 children to take care of. I thank God that I am healing and have now resumed almost all of my daily activities. I pray that I will soon be back to full health. This is absolute madness. I am so sorry that so many of us have been injury in such a way.
-- By kvon | Reply | (3) replies | Private Message me
July 22th
2008
10:23 AM
I've been on Lisinopril for a couple to three years. I often get tingling and numbness in my arms when I sleep. Also, my sense of smell diminished
greatly. I've now gone off the 5 ml. and am noticing my SENSE OF SMELL is much better!! Has anyone had this problem?? My hands swelled badly too, and that has improved too. Cough all gone. I'm monitoring with a bp monitor, and my pressure is normal. Exercise and good diet seem to be working.
Am so glad to have my sense of smell back after years!!!!
July 5th
2008
8:49 PM
I am a 42 male, I have always been healthy and felt healthy as long I can remember, I never went to the doctor. So this year, 3 months ago to be exact, I decided to do “the right thing”, start taking a physical at least once every years, who know something might be wrong with me and I don’t know it.
Anyway, after I took the physical and some blood tests, my doctors office calls me and they told me that the sugar was a little high (124) and that I am at risk for Diabetes, so they started me on a diabetes medication. Although my Cholesterol wasn’t high, they suggested starting Lipitor (20 ML) just in case because I am at risk and I don’t want to take chances.
A month into it, I started having some back pain, but never suspected medication. I was exercising at least 4 times a week, some cardio and free weights, so I thought, I might have made the wrong move while exercising or maybe sleeping without knowing it ( although I never recall such a thing). Usually it takes a few days for the pain to go away when I did the wrong move, but this pain wouldn’t go away. A month after that (last month), a sharp pain started on my right wrist (shooting pain), that goes up my right arm until my shoulder blade and upper right back. The pain was so sharp and wouldn’t let go, all day, all night and every minute in between. Also, I experienced some numbness on some of my right fingers (especially the thumb and index). I never suspected the medication. Of course the doctors wanted me to take all sorts of tests and MRIs etc..you name it. They also wanted me to go on pain pills (strong ones), I never did, and I used Advil instead, which did not help much. This pain ruined my two week vacations to France (I didn’t not want to forgo the airplane ticket and the hotel, they were already paid for).
I started “googling” the web for “sharp back pain”, just to get some clues, which led me to side effect sites, which led me to this site. I decided to stop all medications immediately 3 days ago, the pain went away, I still have s slight numbness on my thumb, although it is much better, I will keep you posted. Thanks to all the people who shared their story with us, I know that everyone of us could be a different case, what worked for me doesn’t necessarily work for someone else, I know that many here are frustrated about these side effects and whether they are permanent or not, I wish I have the answers. One thing is sure, Lipitor could be poison for some people, I felt going down fast for the last 3 months with no way to stop it, glad I found this site.
April 28th
2008
6:37 PM
I had solu medrol 1gm/200 ml infused for 3 days for new MS. First day I became pale and "dead" looking. I had weakness and confusion. Day 2 I was irritable and weaker. Day 3, I was even weaker and began having shortness of breath. Day 4, I woke up feeling like I was drowning. I shuffled as I walked, had a total of 10 pound gain, I was weak and unable to eat. I began to not urinating and had extreme abdominal distention. I could not go to the bathroom. I had to sit or sleep upright. I spent a lot of time sleeping. Day 5 sudden 6 pounds more gain. Had a feeling of death. Heart rate was high..checked in the hospital..BP 90/50. I was so weak that a whisper is all I could do. I spent 3 days in the hospital. Today out of the hospital, I can only eat same amounts. solu medrol caused my system to stop functioning.
-- By starf6hnfl | Reply | (1) replies | Private Message me
April 28th
2008
2:56 PM
I am a 67 year old female who has been in good health. I was put on 40 ml of Zocor about three years ago. After taking it for six months I asked to be changed to Lipitor because of stomach pain I felt was caused by Zocor. I didn't have stomach pain with Lipitor.
A year ago I must have had a senior moment because I changed back to Zocor. Generic Zocor was much less expensive than Lipitor.
During the past year I developed most of the side effects that everyone is mentioning: stomach pain, nausea, memory loss, sleep problems. I didn't relate this to Zocor.
Then I woke up one morning and could not stand without severe pain in my left knee. It hurt to touch it. A week later my right knee developed the same symptoms. This didn't happen gradually. It was very fast. I can also identify with those who say that back pain makes them walk bent over. The pain also radiated into my shins and one heel.
I wept when I found this site and read all the posts about similar symptoms. I decided to go off the Zocor for a month and see what happens. I've been off it for three weeks today. The pain is MUCH less but not gone. I'm hoping that it will continue to get better.
-- By innesfree | Reply | Private Message me
March 29th
2008
5:57 PM
My six year old daughter was given this medication for idiopathic generalized epilepsy. As soon as she started on this drug we noticed a complete personality change. She was a completely different person. She seemed to be possessed while on this medication. My daughter is a sweet little girl, and is very good for the most part, but when she started this medication it turned her into a monster. She was on this medication for about 2 months, and was taken off it when we got a second opinion. She has not been on any medications while we explore additional opinions for her condition (which is very unusual - she does not have seizures like most people do). I would not recommend this medication to anyone.
-- By dooger242 | Reply | (1) replies | Private Message me
January 26th
2008
8:21 PM
I was prescribed Sulfamethoxazole-TMP tablets for a severe UTI that I developed. I was given 10 tablets total--and instructed to take two per day. Within an hour of taking the first tablet, my UTI felt much better, however, the rest of me felt horrible! I got nausea, dizziness, extreme confusion and depression, and stiffness and pain in my neck and shoulders. I continued the medication anyway, b/c I never had sulfur or ANY medicinal allergies. I had difficulty sleeping the next few nights, I would wake up in the middle of the night for no reason. The soreness of my neck and shoulders then extended to my butt and thighs. I can't describe how uncomfortable this was. I was sitting at work literally writhing in pain from what I felt in my legs. (and I blamed it on my poor desk chair!!) This happened on day three of five. Also, while at work I had an "episode" if you will, where I became extremely confused and disoriented, and nearly had a panic attack. It felt like the world was crashing down on me!! It only lasted for 15 minutes or so, but I will not forget the way I felt. All the while, my UTI symptoms were getting better and better. I was completely unable to have a bowel movement...sorry for this information...but it will start to make you worry if you can't poo for 5 days!! Day four of five is what I like to call "The Enlightenment". I was getting in the shower, still dizzy as hell, and noticed that I was very itchy. I looked at my lower back and I was covered in red, itchy bumps. I was say they looked like small mosquito bites, all in a cluster of about 8 on either side of my lower back. I realized then and there that this medication really was ravaging my body like I had feared. I found this site and others online which confirmed that I wasn't crazy...just poisoned. Later that day I was resting on my couch and looked in the mirror and saw that my entire face was covered in a red rash. (and I got a horrific headache) The worst part is you don't really look outwardly sick or anything...you just feel terrible. Everyone I told was very nonchalant about it..."Oh just take some Benadryl". I've lost my faith in the FDA. I stopped this medication one pill shy of my last dose. I am terrified of the possible lasting effects and will never take this drug again!! PLEASE!! NEVER TAKE THIS MEDICATION!! YOU WILL REGRET IT!!
-- By lindsayyorkie | Reply | (29) replies | Private Message me
January 1th
2008
10:35 PM
This is the worst drug I've ever been on. This has totally destroyed my life, I took it for 8 years, in which time I felt severely depressed (much worse than the depression it was meant to be treating), irrational and no sex drive whatsoever. I stopped taking it 2 years ago and have extreme withdrawal symptoms for months on end, feeling nauseous, depressed etc and now that I have stopped my body has still not recovered from the side effects. I feel that if I had never been prescribed this horrific drug my life would not be the misery it is today.
-- By sothach | Reply | (4) replies | Private Message me
September 2th
2007
9:12 AM
Maybe it was just a one-in-a-million thing, but I will never, ever touch this medication again. My 2-year-old son tolerates other meds very well with no problems but when we gave him this, he freaked out like he were on an acid trip at a Grateful Dead show. I checked and double-checked the dosage and gave him 2.5 mL (he weighs about 36 pounds), which was the correct amount. He grabbed at invisible floaters, beat wildly at his arms and legs because "there were bugs all over him," and screamed and pointed at things he imagined were trying to get him. I cannot recommend this drug to any young child based on my experience. I hope that his reaction was just a rare aberration but regardless, we'll never touch the stuff again.
-- By iffernel11 | Reply | (1) replies | Private Message me
February 24th
2007
7:27 AM
As a result of a long time infection that i never knew i had, my doc prescribed doxycycline.
my lord. what a fuss. The first couple of days i was fine. Maybe even a week and a half passed without complaint. Then one night i took the pill before bed, and didn't drink the full glass of water, only about 125 ml.
I woke up with the most severe heartburn that i've ever experienced. I find it hard to eat anything unless i've chewed it into tiny tiny pieces, and even then, i still get a lot of pressure in my chest.
I haven't sleep comfortably in weeks, and now i've started to experience horrible pain in my back as a result.
I have 6 pills left to go; but honestly... how much longer will i experience these symptoms? this sucks.
-- By laura_downing | Reply | Private Message me
February 8th
2007
11:31 PM
My 13 month old son has been taking Omnicef for 6 days now in 2 2.5 mL doses per day. He has been very whiney and clingy to me and has had the worst diarhea I have ever seen. He has also been running a fever every day upwards of 103. I just changed 4 diapers in less than an hour. I refuse to give him any more of this medication. He does not seem well at all. I'm at a loss. Amoxiclin didn't clear up his ear infection and the doctor gave him this. I will call tomorrow and ask what to do.
-- By miserydivine | Reply | Private Message me
January 12th
2007
2:53 PM
I have been on 450 ml of wellbutrin XR for about 5 years. I noticed I dont laugh anymore. If I find something funny I just smile. I used to laugh all the time and almost uncontrollably but it felt good. I feel concerned that I never seem to laugh. Could it be the wellbutrin?
-- By jyeymy | Reply | Private Message me
December 28th
2006
7:02 PM
I took Topamax for approx 6 months (25 ml / day). During that time I experienced severe hair loss. I have been completely off for about 2 months and am still loosing hair! Is this normal? Has anyone else out there experienced this side effect. Are there any vitamins I could take to counteract this?
-- By redhen94 | Reply | Private Message me
December 12th
2006
3:02 PM
Silke-
What did your doctor say? I have been going over some blood hormone tests I had done way back when I was feeling terrible, and my doctor confirmed that my testosterone was indeed low. My level was
testosterone 13 ng/dl
%free testosterone 0.45 %
free testosterone 0.6 pg/ml
It looks like yours may be even lower than mine was. I am thinking your free testosterone was measured since you said it was 0.37 ng/ml? or was it 0.37ng/dl?
Also as a side note throughout all of this my Iron levels keep dropping too. I have to take an Iron supplement to keep my level up. I thought it was because I had a history of anemia (low iron) but it may be a side effect of the unbalance as well?
Also I was wondering when in your cycle did they have you get your blood drawn? Was it at a particular day you had to do it, or just anytime?
Anxious to hear from you,
BitterRN
Also to KIM and DEJAY
please hold on. Silke is right, it is going to get better. coming off this pill is hard and everything you are mentioning is symptoms we all have experienced. The sore in your mouth Im sure is related to your hormones just like your sister said. I had a lot of mouth issues (sore, raw gums, my teeth hurt etc.) as well. Just take good care of your teeth right now maybe try to avoid acidic foods for awhile (oranges, tomatoes, pasta sauce) or anything rough in your mouth like crusty breads. I asked my dentist when I happened to have an appt once when I had a sore in the back of my mouth and he checked it out and said he definitely saw something and it looked irritated but not to do anything unless it did not go away in a couple of weeks. I asked him if it could be hormone related because I was having problems with my hormones and he said yes. It went away. Dont worry ok. Oh and one more thing, DO NOT believe those doctors that tell you this is NOT related to yasmin, it most certainly is!!!! I have had physicians tell me no, its not related to the pill its in your head. My second opinion Dr. (and third and fourth!!! opinion Dr. ) all told me YES of course it can be from Yasmin!!! And from here on out I too have been on the hormonal rollercoaster as everyone else on this site has. UP and DOWN you think your better and then your not. But Silke is right and Sarah too, and many of the women on this site, you will get better and what you are experiencing are things we all felt too, and you will get through it! Keep posting to this site. It helps. There are lots of kind women full of concern because they too have been through this nightmare and it breaks our hearts every time we read about another victim! I hope the drug company and the doctors wake up soon!!!!!
keep your head up,
BitterRN
December 12th
2006
10:30 AM
Silke
Im sorry I wrote that last post so fast it was confusing and I didnt even sign! Its me, bitterRN. Anyway I got those lab ranges from this website... www.earlymenopause.com/tests.htm
Dont let the name scare you, I dont think you are in menopause, but possibly having some kind of ovarian dysfunction where your ovaries are not producing enough androgens.(testosterone and progesterone)
Anyway please let me know what your doctor says and dont forget to ask him the normal lab ranges for each hormone right down to the measurement (example ng/dl or ng/ml) or better yet try to get a copy and it will have the normals listed next to your results. The other labs the LH, FSH, Estradiol looked pretty normal, I dont know why he tested Prolactin?? unless this was progesterone? But I dont think the testosterone is normal. Let me know.
BitterRN
December 12th
2006
9:57 AM
Silke
I am still here and still wondering about you. I think those numbers you told me on the testosterone are low. was is
testosterone 0.37ng/dl or ng/ml? see the dl or ml mean deciliter and milliliter, the website I looked up (since I am not familiar with ranges for blood tests, more for saliva tests which are measured differently) but the website I looked up said that testosterone 25ng/dl or less is deficient and 1.5pg/ml is deficient for free testosterone. I dont know if they tested your testosterone or free testosterone, but regardless your result of 0.37 is still lower than these UNLESS they used a different measurement. So listen to what your doctor says is normal. If he says your level is normal, ask what the range is and write it down. If it is "low normal" again, then I would say that this is NOT a normal range for what your body is used to and may be contributing to your symptoms. Also ask if a progesterone level was drawn as this is also an androgen hormone and may be low as well. Im sorry, I know this can be confusing but I want to get this message to you. Let me know. K.
December 12th
2006
6:03 AM
@ bitterRN!!
Hi you! Hope you're still there!?
Just wanted to let you know the results of my bloodwork of last week (hormonal test):
LH 3,27 mUL/ml
FSH 5,38 mUl/ml
Estradiol 38,36 pg/ml
Prolaktin 26,00 ng/ml
Testosteron 0,37 ng/ml
I'm sorry, I don't know the english words for the above... I hope it's nearly similar to the german words and you know what those results mean...?
A few weeks ago you mentioned a thought about low testosterone. Does that sound low to you? (Don't have any idea about those results, yet... I have a telephone appointment with my gyn in about 3 hours to talk about it.)
Thank you in advance!!
Best wishes
Silke
Yasmin (4) Lipitor (4) Lisinopril (3) PredniSONE (3) Zocor (2) Cipro Cystitis Pack (1) Epidural Single Shot with Lidocaine (1) Endrate (1) Fentanyl (1) Megace ES (1) Yaz (1) Maxidex (1) Risperdal (1) Poly Vitamin with Fluoride (1) Thyrox (1) Doxepin Hydrochloride (1) Clinimix Sulfite Free (1) Solu-Medrol (1) Paxil (1) Kenalog (1) Infumorph (1) Effexor (1) Robitussin Junior Persistent Cough (1) Vicks Cough Syrup for Chesty Coughs (1) Trital DM (1) Winstrol (1) Keppra (1) Flomax (1) Triamcinolone (1) Cheratussin DAC (1) Kaopectate Anti-Diarrheal Upset Stomach Reliever (1) Papain (1) ACTH Gel (1) Wellbutrin (1) Oxyfast (1) AllerTan (1) Multitrace-5 Concentrate (1) Flatulex Drops (1) Sulfatrim (1) Lovenox (1) Doxycycline Hyclate (1) Megestrol Acetate (1) Toprol-XL (1) Omnicef (1) Senokot (1) Remicade (1) Topamax (1) Sildec DM (1) Sulfamethoxazole-Trimethoprim DS (1) Hep-Lock (1) Methotrexate Sodium (1) Levaquin (1)
October 24th
2009
2:01 AM
My 9 year old is taking Trital DM liquid, the doctor ordered 6.5 ml every 8 hrs..
-- By happystar71 | Reply | Private Message meas soon as she started taking it, her nose will bleed, mildly/lightly, at least once a day, I called the pediatric doctor, and I'm waiting for a response from him,meanwhile I will extend the time, like every 12 hrs. 10/09