February 4th
2009
5:59 PM
I am trying to hold back the tears after reading all of this. Everything that is posted happened to me. I had my Mirena removed this morning after discovering that it may be the cause of my high blood pressure and weight gain. I had it inserted 6 months after my daughter was born (11/07). The doctor really promoted this method and had info posted all around the office. I chose this dr. after I had a major concern with my OB. She gave me the ring-while I was still breastfeeding!!! As a result of struggling to produce milk for my baby and knowing that I was possibly feeding with this unapproved method of BC for breastfeeding moms, I thought I was doing the right thing about choosing the Mirena with the new dr. Unfortunately, I could not find any thing on negative side effects or probably didn't look hard enough. At first, I thought that I was in heaven- no nausea or side effects like all of the other methods and I can even keep breastfeeding. Long story short, I gradually began to loose my mind!!!! I thought I needed to see a doctor for drugs ( moody, anxiety, irritable, confused, shortness of memory). Then all of my hair fell out. I have shortness of breath. I too could look in the mirror and see between the strands of my hair. And it continued to fall out and I now wear very expensive weaves and I hate it. I was loosing lots of weight and around the time my periods changed to just spotting for a day or two I gained 15 pounds. No matter what I did- close to starving myself, treadmill 5 x a week, no loss only gaining. I had cravings for sweets and I never did before. Almost everything that has been mentioned by others has happened to me. The headaches and dizziness caused me to go the doctor yesterday. She said that the Mirena works like Depro provera, (sp) aka the 3 month shot, and I used that almost 15 years ago but the doctor took me off after a year because of the weight gain. I could not believe I was using something similar. If I get back on an IUD I think I will use the one without any hormones or estrogen. Until that time, I will give my body some time to heal before our next baby, no BC for me. Please be careful with this drug and thanks to all for sharing.
-- By simonee | Reply | (2) replies | Private Message me
December 17th
2008
10:52 AM
My daughter's doctor put her on Singulair just about a week ago. She had a persistent barking cough that would not go away, even after 3 weeks on Albuterol. Because the pill was so expensive (even WITH insurance it was $120.00) and I could not afford it, her doctor gave me free samples. I gave it to her for the first time last night. I was telling a friend of mine about how nice it was that my daughter's doctor gave me free samples and what a blessing it was. When I told her what pill it was she started telling me about what happened to some of her kids in her class (she's a teacher). I was surprised. She told me she didn't want to scare me, she just wanted to make me aware. I didn't get scared, but I certainly wanted to find out if what she was telling me was common or just rare in a few cases. I am one of those people that will ask advice of other moms, etc., but ultimately do my own research and find out for myself to confirm any suspicions. I know some moms who freak out over every little thing and take someone's word for it, even without doing their own research. I am not one of those mom's. So I Googled "singulair side effects" and found this site. I could not believe that everything my friend had told me has also been experienced by so many others on this site. Needless to say, I will NOT be giving her Singulair anymore. I am just so thankful that I had someone tell me about it BEFORE she had to experience some of the terrible things that other children have had to experience. It is unacceptable that this drug is allowed to be prescribed, especially for young children. I am going to look into a more natural way to help ease her sniffles and cough.
-- By mommaofone | Reply | (1) replies | Private Message me
December 13th
2008
9:24 PM
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.
Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!
Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).
There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.
BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
-- By nomeds2 | Reply | (5) replies | Private Message me
April 29th
2008
3:36 AM
My son is 5 years old. He was put on Singulair in August following a case of pnemonia. He has asthma. I found it worked well since I was barely using inhalers anymore. His eczema was even getting better. So I was happy with the medication. He also seemed to be getting more agitated with us. At least three times a day he would have an outburst towards his brother or us, like he was going to punch or hit us. Then I would say "why are you mad at me" and he would say "I'm not mad, I'm frustrated" and then burst in tears. He was getting a lot of time outs. Then two months ago he started saying "this is not a good day" or "this is a sad day". I was wondering if singulair was to blame, but it wasn't until I heard concerns from other moms. I took him off it as an experiment and noticed the next day was without his outbursts. Then I just never gave him anymore...and I am relieved to say he is as "normal" as I remember him before Singulair!!! He also was unable to get to sleep easily on Singulair, sometimes 1, 2 and even three hours to get to sleep. Now he is out in 20 minutes if not less. I haven't talked to the Doctor yet. I have noticed his eczema is flaring up again and he has used his inhaler this week (although he has a cold). I think I can deal with that without Singulair and the problems I am suspicious come from it's use.
-- By sunflowergurl76 | Reply | (4) replies | Private Message me
April 25th
2008
9:13 AM
Unfortunately my lawyer told me that they do not want to take our case because of the lack of evidence that Singulair has caused our daughters problems. :(
Does anyone out there have a pending class action lawsuit that We may be able to get in on? I have tons of proof that Singulair has caused our daughters problems and loss of almost 5 years of her elementary school career!
My phone number is *** and my email is ****** if You email me please put "Singulair" in Your subject line so I know it pertains to this posting.
Thank You in advance,
Chuck & Brenda
Jamestown New York
April 11th
2008
3:17 PM
I had mirena put in 6 weeks postpartum and shortly after my breast-fed baby developed skin rashes. Now she is five months and has full blown eczema. I was just wondering if other moms have had similar experience? And could this be related? I have some of the similar side effects myself ( night sweats, insomnia, bloating and dizziness and also eczema) Please help. Should I have it removed?
-- By itchymamam01 | Reply | (2) replies | Private Message me
April 11th
2008
10:47 AM
I just came back home from the dr. We made some tests and my 5 years old daughter is allergic to house dust mites and has beeing diagnosticated with athopic asthma. The dr. prescribed Singulair. Now, after reading all the posts, I freaked out and I have not idea what to do. I am really sorry I did't ask about side effect, but I considered, her beeing a dr, knows better than me. My thought now is: I'm not going to give my daughter Singulair.
-- By stephanie12 | Reply | (7) replies | Private Message me
April 10th
2008
9:52 AM
Hi everyone! I am one of the moms who has been posting here after taking my son off of the singulair.. He is doing better every day! Someone at his school commented to me this morning about what a happy child he is (as he was giving the principal a big "Good morning!". I'm also posting the link for the support board that was created the other day. The link may not work when you click on it but you can copy and paste it. If you still have a problem you can email me at staceynlilphil@yahoo.com and I will send you an invite. All the research posts that are being posted will eventually have links to the posts so they can be easily found for future reference.
http://health.groups.yahoo.com/group/Singulair_side_effects_friends/
April 9th
2008
8:25 PM
I just visited Merck's Singulair website and spent a long time really, really thinking about everything that they had for physicians. After thinking about the pathways for myself from the standpoint of chemical interactions, I wanted to know what was explained to the physician. I approached the site from the standpoint of -- if one of my patients was overdosing, how could I recognize that. What would happen? Merck's site has diagrams and movies on the nasal passages and the lungs. You get a picture of a mast cell producing-- doing it's thing. That was it. And on every page, this...
SINGULAIR is indicated for relief of symptoms of allergic rhinitis (seasonal allergic rhinitis in adults and children aged 2 years and older and perennial allergic rhinitis in adults and children aged 6 months and older).
In clinical trials, SINGULAIR was generally well tolerated, with a safety profile similar to that of placebo. Adverse events varied by age. The most commonly reported adverse events, occurring at a frequency of ≥1% and at an incidence greater than placebo, regardless of causality assessment, were sinusitis, upper respiratory infection, sinus headache, cough, epistaxis, headache, otitis media, pharyngitis, and increased ALT.
SINGULAIR is contraindicated in patients with hypersensitivity to any component of this product.
Okay, let's talk about headache at greater than 1%. Headache is 18-19%. How do I know that from what they put on their website?
It might be a very good question to ask your doctor if they could go to the Singulair website and be able to know what would happen if they had a group of children or adults that liked to take pills. Yum, one of good, more is better. I had no clue from that website if there was a risk of overdose or not.
This is not my area. I am trying to help. I am essentially as in the dark as you are.
-- By concernedcitizen | Reply | (3) replies | Private Message me
April 5th
2008
2:08 PM
My Daughter has been ill since Feb 4, 2008. Here are her symptoms. Rash on head neck and chest, low grade fever, almost daily vomitting, nauseau, low grade fever, kidney issues, severe abdominal and lower back pain. All tests have been negative, hospitalized twice.
I sent just a local email out to a few contacts talking about the symptoms, girls in our community Papillion, NE are suffering from similar side effects. How can we stop this from hurting other children?
jo
-- By gardasilisdangerous | Reply | (3) replies | Private Message me
March 28th
2008
3:24 PM
my son is almost 4 and has been taking singulair since right before he turned 2! I am just blown away by all these things i've heard and now read about this med. I NEVER would have thought about this making him act the way he does! I thought it was just his terrible 2's and 3's! He has major anger issues, he screams out of nowhere for no apparent reason, when he gets in trouble he hits me or makes these horrible faces! he scares me sometimes! he has trouble falling asleep but once he is asleep he is out for like 11 hours sometimes! Here in the past yr when he plays with other kids he is very very mean to them... hitting them, beating them up, yelling at them.. i've NEVER seen my son act like that! It really sucks when other people just don't even wanna be around anymore b/c your kid is so mean! Which he has never been a mean kid! everyone loves him to death but can't understand why is so mean and has these outbursts sometimes! B/C that just isn't my Brayden!! sometimes i just think he is flat out crazy... like maybe i need to get him tested for some kinds of disorders! i just don't know what to do! the doc will tell me its normal 3 yr old behavior I'm afraid... and now if i take him he will think i am some crazy mother who is hearing all these stories and believing everything! Well hell ya I'm reading all this and believing everything cuz I'm sitting here experiencing the exact same thing other moms are who's children are on the same medications! I've even thought maybe its me i just had a baby 3 months ago so maybe its postpartum... so went to the doc and she has me on Zoloft which i DON'T need... I'm not a depressed person at all! But i have days where i just don't know what to do with my 3yr old i just cry i cant handle it it is entirely to much for me! it just blows me away to think that it may all be caused by a med that I give my child every night to help him! But is it really doing more goood than bad? I don't even wanna know whats gonna happen next... what is he gonna do?! I don't wanna even think about the possibilities... To know i may have an answer to his anger and everything else is kinda relieving, yet this whole thing scares me!! The med has seemed to help his breathing problem since hes been on it though! But if it makes him angry I'm sure the zyrtec and breathing treatments will do just fine!!
-- By txmom08 | Reply | (2) replies | Private Message me
March 2th
2008
3:14 AM
i am a 25 year old wife and mother of 2 beautiful girls
i have had my Mirena for 2 years now and i have a list of symptoms that a lot of you have as well:
mood swings
insomnia, yet tired during the day
acne
weight gain
MARJOR vaginal dryness (makes sex unpleasant)
NO SEX DRIVE
headaches daily
hot flashes
heartburn
dizziness
at my 1 year check up i told my doctor that i had a lack of sex drive and he told me it was normal for tired moms. since then i thought it was just me. in the last month i began to search online to see if it could be anything else. while on web md i found that most of my symptoms we matched up with menopause. could this thing make my mind think i am going through menopause?? i have an appointment with my gyno next month. i am printing off this site to prove it is not just me. i really like the positive effects, no pregnancy, no need to remember a pill everyday, and periods.After reading this site i don't know what i am going to do. i hate the side effects, but it has been so good at preventing pregnancy. basically what is going through my mind right now is, "is the Mirena worth it?"
January 21th
2008
9:35 PM
I have been on Topamax for a little over a year. I've had most of the side effects; tingling, numbness in the fingers, dry mouth, forgetfulness, and weight loss - love the weight loss. All the side effects have sort of slowed down as I've been on the medication longer. The weight loss has slowed and I've even began to get my appetite back- I'm afraid I'm going to start gaining weight now! I've lost about 40 pounds and I needed to lose it, so that was wonderful. I've had a very hard time losing weight all my life so this was wonderful.
I was addicted to Coca Cola and this med also helped me kick that habit because I lost my taste for the carbonation.
Does anyone know if the weight loss usually evens out after about a year or a year and a half? I need to lose about 30 more pounds and was hoping that I would continue losing weight!
Anyway, I was on the Topamax for headaches and it has completely helped that! It has truly been a God-send for me. Other than monthly hormone headaches, I don't get migraines hardly at all!
I am wondering about having my doc up my dosage for the weight loss aspect????
-- By mzcheryl | Reply | (19) replies | Private Message me
December 19th
2007
7:14 PM
With all these problems we are all having, do you think we have a lawsuit on our hands? For all the time, energy, pain and $, we have spent to insert this thing only to have it taken out again?
-- By rachca | Reply | (3) replies | Private Message me
September 26th
2007
8:03 PM
just an fyi for all you moms out there. my 6 year old son was on zyrtec for 2 weeks and went from a super happy child to an emotional train wreck. we were given a prescription for singulair today, but wanted to check side effects before filling it. we definitely won't be filling it. i just wanted to warn everyone who goes off singulair not to get on zyrtec!!
-- By jlenarth | Reply | Private Message me
September 30th
2006
2:29 PM
We have a 2 1/2 year old who is on Singulair for mild allergies. He is a spirited child but has ALWAYS been a GREAT sleeper and very sweet. We started seeing very very intense fits, agressivness in his behavior and decided the terrible twos had set in. Now his sleep has become very disturbed. He will not go down at night.. generally awake in bed for up to 2 hours (used to ask to go night night). And he wakes up screaming, crying or moaning every night sometimes more than once. We just thought night terrors is a stage at this age. And now he requires a light on, which we thought was a stage also. We started putting two and two together and noticed the timing of all events was when he was prescribed Singulair. I got online immediately and WAS SHOCKED by what I have read and startled at the similarties in problems described by moms. We took him off the meds last night and are hoping for great changes and to have our happy sleeper back soon. If this is what has caused our child all of this stress and sadness I will be angered beyond belief, have we been poisoning our own child with his meds..I hope the doctors are smarter than this. It appears we are ultimately in charge of our own care. WILL UPDATE THIS WEEK.
-- By tracimarlow | Reply | Private Message me
July 12th
2006
6:02 PM
I have a six year old son who has asthma. He has been taking singulair and Flovent every day for 4 years. He also has a lot of the side effects that I see listed on this site. I was wondering if anyone with children taking Singulair have more cavities than their other children. My son with astham is the youngest of four child and last week we found out he had four cavities. One was so bad he needed root canal. Fortunately, these were all baby teeth. My destist said it is because he does not floss since the cavities started between teeth. Most moms I spoke to said their kids do not floss and never had a cavity! I'm just wondering if there is a connection between cavities and Singulair
Joanne
May 30th
2006
6:50 PM
I took Zofran for nearly my entire pregnancy for severe vomiting, and it was the wonder drug. HOWEVER, I want to let everyone know that my son has a lot of health issues (i.e. severe reflux, asthma, hypotonia, oral motor issues) and I've met some other moms with children who have similar issues. Surprisingly, all of these moms took Zofran through their pregnancies as well, so my gut tells me there is a link.
-- By nicolebusby | Reply | (1) replies | Private Message me
February 26th
2006
12:02 PM
topamax- started 2months ago...the sinus trip is unbearable! i always sound like i have the flu! haven't lost a pound and i am craving sweets like crazy. i hate the tingles everywhere! the thirst is unquenchable. i feel like i am suicidal. i hate my husband when i use to love him. i am also on effexor er 300 mgs topamax 200mgs ....i have now decided to go off ALL of these drugs. iwas first put on them when my mom died because of anxiety.......then when my daughter went to jail. more stress....more drugs....zoloft...attempted suicide....effexor er...for the pass 4 yrs...i am no longer suicidal..i am at peace with my moms death. my daughter has grown up and has stated a family of her own with her husband .... do i really think i need to be on these drugs any more???? nope! comin down the hard way starting tomorrow...need encouragment people! drudogs
-- By drudogs | Reply | Private Message me
April 9th
2009
12:47 AM
well ive had mirena 4 7months now n last Saturday i did my regular check 4 the strings n i felt them really low very low, n a lot of pain. the next morning i felt again, n it was back where it was b4(maybe its me freaking out) but i cant stand the pain, n after reading all the other experiences maybe i need 2 get it removed! i go 2marrow n ill ask the doctor than. but i don't have a car n i 4get 2 take the pill im 2 busy taking care of my boy n cleaning. this was the best birth control 4 busy moms who cant keep track of things! but im really going 2 talk 2 my doctor 2marrow n c wats really going on! GOOD LUCKY LADIES!!!! =)
-- By lopezd | Reply | (1) replies | Private Message me