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50 Side Effects posted for much money

November 11th
2009
3:58 AM

I have had the mirena for over a year and all of a sudden, I start to feel the side effects? I am nauseated, tired, bloated..... I FEEL PREGNANT! Taking a home pregnancy test tomorrow morning. I thought the whole idea of getting birth control was to well......BIRTH CONTROL. This is happening at a time that is impossible for me to be pregnant! Single mom with hopes and dreams of maybe living those dreams?! That is why I got on birth control and now maybe I chose a device that dosent work? Not right! I have an appt with my OB/GYN next week to check the placement and to see if I am in fact pregnant. I am 43 years old and so didn't plan on this.........

-- By kierra | Reply | (1) replies | Private Message me

November 10th
2009
8:42 AM

I had been on Depo for basically 14 years, I came off of it, got pregnant 3 months later and after the birth went back on it. I had gained a lot of weight with it and had all the side effects plus so when I saw mirena I thought finally something better for me. I had it inserted in aug 2008. Other than painful insertion, like labor delivery contractions the rest of that day and some the next everything was fine. I didn't get my periods back, the only thing I liked about depo, and my weight was coming off and I was actually wanting and enjoying sex again. . A year later, and 15 lbs less, thought I was still doing good. Well I thought maybe my teenage daughter had jinxed me because I was bragging about still not having a period and I started, well a week later I am still having some sort of a period. It's very light and spotty, just when you think it's gone away, well there it is again. I have been noticing vision issues, I figured it was from where I had lasic done several years ago was starting to go but after reading everyone else's posts I think that's not it now. Everything I was experiencing, the back pain, blurry eyes, feeling sad, lower abdominal pain, I made an excuse for until now. I have recently started to loose my sex drive again. I hadn't had any, or so I thought, problems until several weeks ago. My problem is I can't take the pill, I don't want the depo back because of the side effects, the patch won't work for me so I am not sure what is left for me to take, I saved up for this and put so much money into it and now after reading everyone else's post realize that this BC is not for me either.

-- By whatnowmirena | Reply | Private Message me

August 19th
2009
9:06 AM

I'm feeling the same as many of you ladies on here- it's certainly breaking my heart for all of you too. If we had known then what we knew now....
I got my Mirena about 6 months after the birth of my daughter and then spiraled into some serious depression. I'm so horrified now thinking back about how angry and ungrateful I was to my husband- I returned everything he gave me for Christmas in an angry huff. My behavior was awful AND it wasn't me. Over the next two years I had serious mood issues felt pregnant all the time (I even took to buying those dollar store tests so I could relieve my suspicions each time but not spend a fortune). And then there were the headaches. I had always had hormone related headaches (a few a month) so they weren't really new to me, but it got to a point where I was having so many I went to a neurologist for help - he asked me to chart them, I fund I was having 14 to 16 days a month with pain. I think the "off" days were just off because I was still under the influence of the pain drugs from the day before. My husband and I were planning on a third anyway- and suddenly I really wanted this thing out! I took it out, here I am, 9 months later- headache free!!! 9 months of no headaches and the "freedom" came within days of removal. I have now been trying to get pregnant for 9 months too- my period returned immediately after removal (the one perk I loved of the Mirena was no period) unfortunately, I can't seem to get pregnant. This, from a woman who seemingly got pregnant just by her husband looking at her. Literally, 3 cycles pre-mirena, meant 3 pregnancies for me. We had to be seriously careful- I'm terrified that this thing has now caused me to be infertile. I have been tracking my cycles watching for my ovulation and I can't find it despite having a regular 28 day cycle. Don't get Mirena- it's just not worth it

-- By andromeda96ms | Reply | (5) replies | Private Message me

November 8th
2008
7:43 PM

I URGE YOU TO PLEASE SUBMIT ANY ADVERSE EVENTS OF THIS TERRIBLE KENALOG DRUG TO THE FDA--JUST CLICK THIS LINK AND COMPLETE THE FORM: http://www.fda.gov/medwatch/. The FDA is responsible for assuring safety of medications. Therefore, it is imperative that the FDA recognize the adverse effects to provide any credibility to a class action suit. Please consider forwarding your case to the FDA to force them into action and begin addressing these atrocities.

Here's my case: I am also a victim of having the Kenalog injection administered over a year ago to alleviate poison ivy itching symptoms. Prior to having the injection, I was not informed of any side effects. Not only did the injection not alleviate the symptoms, but has resulted in a discolored and uncomfortable indentation in my left buttock area and psychological anguish because of disfigurement of my body. It is over a year later and the indent remains and continues to cause discomfort. The dermatologist who administered the injection stated that there was nothing I could do to reverse such effects. I reported my case to the FDA (Food and Drug Administration) Med Watch and strongly urge others to report their adverse event to the FDA (see link above).

-- By slmgator | Reply | (6) replies | Private Message me

September 25th
2008
6:29 PM

I had my Mirena put in Feb 08. I heard wonderful things about it from other women I know who have it. So, I gave it a shot. Wow. I had wonderfully clear skin before the Mirena. Now it is so embarrassing. I get huge pimples all over my chest, my neck, and my face. They are so painful. I have spent so much money on face cleaners and what-not and nothing has worked. Within a week after getting the Mirena put it, I was in the ER for unbearable pelvic pain. I had developed large cysts on both of my ovaries. It was awful.I still get the lovely sharp pains in my pelvic region that will at times make me double over. My periods last a full week now and I can have 2 periods a month (everyone who has it told me they don't even get periods anymore...what gives?). My breasts get so tender that any touch sends me through the roof and outing on and taking off my bra is so painful. And the WEIGHT GAIN. I had just 40 lbs of pregnancy weight and finally started feeling good about myself again. I get the Mirena and I have gained 15 lbs. I am bloated and disgusting. I look 4-5 months pregnant. I feel horrible. I have no health insurance right now and I don't have enough money to pay out of pocket to get the Mirena removed. As soon as I get back on track, I am definitely getting this removed. I can't stand what has happened to me. I look and feel utterly disgusting. :(

-- By woahbilly | Reply | (3) replies | Private Message me

September 25th
2008
6:03 PM

Wow I can't believe all of these people feel this way! I had Mirena put in Nov. 07 and I can relate to most people on here. I go to the gym all of the time and I can't lose the weight around my belly. I'm usually about 118 lbs and for the last 5 months have been 124 lbs. I have back ache and mood swings still. I have no cramping anymore, but I'm very bloated. I have never in my life experienced all of the acne I have now. I have no sex drive either. The only thing I like is that I don't have a period at all. I paid so much money to have this put in, but I really want it out! I'd rather be on the pill.

-- By vicki1126 | Reply | Private Message me

August 11th
2008
2:45 PM

I took Diovan HCT for years without any side effects. We must do mail order with our health insurance and the providers website said that Lisinopril was an alternative to the Diovan that was available as a generic and therefore a lower cost. I spoke with my Dr. about it and she advised me of the "cough" and said it wasn't exactly the same but since I wanted to save as much money on scripts as I could I tried the Lisinopril. I took it for a couple of months and noticed being more fatigued and weak. Finally I got to the point where I was feeling like I was hungover 24x7 and started looking to see if there was any side effects from this different med I was taking and saw all the symptoms I was having from fatigue to palpitations to nausea to muscle weakness and cough. I went back to the Dr. and got back on Diovan and everything is much better now. My wife was on this medicine too for a while and she noticed the same thing but didn't put it together with the medicine. There should be some kind of advisory with this stuff or it should be taken off the market.

-- By joeblo24 | Reply | Private Message me

July 28th
2008
11:22 AM

I been on Synthroid now for 10 years. Almost right after I started the medication i started to have headaches. I had / have headaches every single day , all day long. Before the Syntthroid i NEVER had headaches, EVER. It has been 10 years and i still complain. I have spent so much money and wasted time on exams and doctors. All the doctors tell me is that i am stressed or its sinus or something else . Which i don't think i am . I have CT scans a few times. I am not crazy, i know what i am saying. Doctors don't listen. I looked on online and saw that headaches are a side effect. I went back to my doctor and explained. The doctor(s) insist that the Synthroid is not a cause of my headaches. With headaches every single day a person can not function normally.

I ran across this website and in a way i felt better knowing that this symptom is real and other people are experiencing the same thing. On the other hand it upset me that all these people are complaining and no one is listening.

Is there no solution?

-- By arn12 | Reply | (2) replies | Private Message me

July 24th
2008
1:22 AM

I am 21 years old and I was on Yasmin for three in a half months (i stopped the last pack half way through). The first month i was on it, i had a lot of leg pains especially at night and sometimes to the point where i couldn't sleep. I went to the doctors and told her about this and she said it had nothing to do with the pill. My leg pain stopped after the first month i was on it and for two months i was fine. At the end of the third pack i began to get leg cramps again, but this time it was different i had little sharp pains here and there and tingling and my legs became extremely itchy. In the matter of two months i got spider veins and cellulite on my upper legs. Before the pill i had NOTHING on my legs. I searched the internet and found that birth control can cause spider veins because of the hormonal change so I thought my legs were itchy because of the spider veins so i stopped using the pill and made a doctors appointment. Three days after stopping i got my period for the second time that month. I also broke out with lumps that are red and extremely itchy. The doctor told me that the bumps are eczema and i also have a lymph node, which she said is from the eczema (which i find very strange). Two days after i broke out and got a lymph node, i got sick with a fever, extremely soar throat and a swollen neck. Today is my 7th day off the pill and im still sick. Hopefully i get better. But from being a 21 year old whos 95 pounds and having nothing wrong and starting this pill and getting spider veins, cellulite and then eczema all around the same time, i feel like im aging before my time. If anyone else has had any similar effects please let me know. Thank you.

-- By jessica04 | Reply | (4) replies | Private Message me

April 30th
2008
10:45 AM

I discovered this site last Wednesday morning - without taking the time to list all of the grief I felt reading through the pediatric postings, I will briefly note my 4 year old daughter has been on Singulair for 2 years now. What I now realize is all the behavior issues, night screaming, etc. are so easily dismissed as stages of a toddler. She has suffered (as well as our family) every symptom and behavior listed by parents on this site with the exception of leg cramps.

Our entire family can see the dramatic results since taking her last pill last Tuesday night. The melt downs and tantrums are all but over, she even commented "hey, I listened right away" on the second day without Singulair. She is still having night terrors - I call them that because they are in no way a dream or nightmare, but rather agonizing moments that break our hearts to hear. I hope those will soon go away as well so her sleep pattern results in a restful night.

Am I angry that we have all suffered for 2 years only to find we have been basically poisoning her? Am I angry that for the 2 years her dad and I have sunk pretty low, feeling inadequate as a parent to teach and discipline our child? Am I angry that after 20 years of marriage, raising a great 16 year old in the midst of all this, we were to the point of the ADD, bipolar, etc. theory that would have been misdiagnosed? Heck no, we are all so thankful to have come across this site and are so giddy and excited to be happy again.

What I am angry about is this - when I called our pediatrician last Wednesday and relayed what I had seen on the Merck website for side effects added in recent months she had not heard this information and asked where I saw it. At that point I had not seen this site. I asked her how is it the well dressed pharmaceutical reps come in with doughnuts, exotic trips, etc. to market a drug with "ABC" treatments and "XYZ" side effects, continue to market the drug and never update the doctors when original selling points are altered - ie; new side effects.

The FDA website is troubling for two reasons: Merck is in charge of their own investigation regarding recent complaints and the FDA expects this to take 9 months. Gee, who gets to investigate themself? Secondly, in February the site notes the FDA and Merck are trying to find the best way to communicate the concerns being investigated to prescribes and patients. HELLO - we live in a world of real time, instant communication methods, two examples being the United States Postal Service and an internet connection.

Today is April 30 - a full two months after "trying to decide how to pass this information on" and my doctor, nor my pharmacist have received any information. Apparantly since we missed the story and coverage on Dateline we are out of luck.

I plan to start from ground zero to get our voices heard to change the way, or the law if you will, to implement an immediate communication link between the FDA and prescribes when an investigation such as this has been initiated. I realize Singulair has most likely benefited more humans than it has destroyed while on the drug and the FDA would have to clearly not communicate "panic". However, when a drug is used for pediatric treatments we need information quickly to assess on behalf of our children. In my case, since my daughter had been on the drug since 2 years old, I do not know what her "normal behavior" should be as that is the age they start to develop and show personality. Additionally, when enclosed prescribing information is updated with a prescription -MARK IT IN RED, "UPDATED INFORMATION". I read every ounce of information that accompanies a new prescription for any family member. I would NOT, however read the information every 30 days for an ongoing, long term prescription over the course of 2 years.

I am looking for anyone that may have started contact with a congressional representative or otherwise to change the communication to our doctors. Please note - I am in no way interested in any legal action regarding Singulair and our nightmare. We are moving forward and do not wish to live the nightmare one moment more. I simply want to see our doctors and pharmacists have vital information as it happens.

Thank you to all for sharing your experiences - I truly believe it is changing lives and making a difference. I am personally telling everyone I know about what is happening with our child and all of yours. Andy by the way, by telling one of my long time friends our amazing discovery, she realized she had been suffering from depression for some time and chalked it up to various things going on in her life. She had her last Singulair last week and feels tremendous! So keep the word going!

-- By rlcoffin | Reply | (5) replies | Private Message me

April 5th
2008
11:10 AM

If any one is following what research is being done, here is the description of the new study in children.

http://clinicaltrials.gov/ct2/show/NCT00540839?intr=%22Montelukast%22&rank=19

-- By concernedcitizen | Reply | (3) replies | Private Message me

March 31th
2008
11:45 AM

My 68 year old father has been taking Singulair for quite some time and in July 2006 committed suicide. We had no reason to suspect the Singulair until just the other day. How does someone go about finding out for sure if Singulair was the reason he killed himself. This would answer questions that have caused my life to be in a constant stated of depression for 20 months now. I don't think this will be my ticket to freedom but it would help to know if it was caused by medicine.

-- By ycart64 | Reply | (2) replies | Private Message me

March 28th
2008
10:26 PM

You know what the sad part about all this is for us parents who have lived through this and we just know it is the Singulair who did the damage to our children, that no matter how many times you report this to the FDA and Merck (first of all, Merck could care less unless of course, now they look at it more closely because there was an actual death reported and they fear the biggest monster of all - a lawsuit - it is fear of losing money that may actually cause Merck to take some overdue action) - no one will truly listen. Again, now they may start to listen because a death is actually documented. It all boils down to profitability. The profitable pharmaceutical market in our country makes it difficult to get things done properly for the benefit of the patient. There is just too much money involved. For every parent I meet, 3 out of 5 have their children on Singulair - how alarming is that?! Pediatricians have been bombarded by pharmaceutical sales reps promoting this drug as the cure all and frankly it will be the demise for many particularly children.
Again, I can only speak for myself and also what about all the other parents who listed all these side effects even back when I posted my own child's in 2005 on http://www.askapatient.com/viewrating.asp?drug=20829&name=SINGULAIR

Too much of a coincidence. And I respect everyone is entitled to their own opinion, but I believe that most of us are here on this board out of concern for ourselves, our own children or others - those who are happy with Singulair - why are you here reading this? I just don't understand what would bring you to this board to read these posts if you are defending Singulair not concerned about it.

-- By lulycelsa | Reply | Private Message me

March 28th
2008
10:08 PM

5 year olds do not talk about suicide...period!!!

My child was on no other medications. I have reported this to Merck and the FDA and have also changed pediatricians after a lengthy discussion with her. I cannot speak for others.

The issues with Singulair are far from over. Stay tuned.

-- By matthewct1 | Reply | (3) replies | Private Message me

February 20th
2008
1:05 AM

Many strange things have been happening to me for the last year and a half, that I did not ever experience before. I just turned 38 years old. I am now suspecting these are side effects from the MIRENA. I want to get opinions about what I'm experiencing and what happens when it's removed.

The most profound thing is the feeling of being in a mental bubble. Even though I'm aware of it and I try to be alert, I feel cloudy minded and can't even rely on myself to remember things or commit to things because I never know how I will feel when I wake up each day. Some days are okay while others are completely LOST because I may have struggled to sleep the night before, sweating and soaking my pillow case and waking up with a rapid heart beat, panicking for no apparent reason right out of sleeping. Or, I'm irritable due to discomfort which takes several forms like these:
- major moodiness, like feeling totally peaceful one minute and then something small triggers me and I'm angry for hours, later realizing that I was overreacting
- visibly shaking hands, especially when I drink just 1/2 cup coffee.
- increased oily skin and acne on face, back, shoulders and even in ears, along with thinning hair around face
- fatigue and stiffness in the morning, so it takes me forever to get out of bed
- off and on fatigue that has me uncontrollably dozing off during the day
- bloated tummy (visible), gas and menstrual cramps in no predicable pattern, but I never go more than a week without these things
- strange libido, one day I wouldn't care if I ever had sex again, the next night wake up horny as heck at 2 am
- ears ringing, jaw pain, mystery pains in back and joints regularly

All along I've been assuming these odd things were stress and age related but the more I think about it, there's just too many things, and these things don't necessarily represent the stress of a typical stay at home mom.
Sure, I have had stress and anxiety in the past, but they could always be connected to something large going on in my life. Now, the anxiety and moodiness hit unpredictably and indiscriminately, it seems. For a long time now I feel like I'm a total mess physically and mentally, even more so because I realize something is wrong
I am pretty sure as of right now that I should get this removed. If the symptoms go away I'll then know what caused them in the first place.
I am wondering what happens upon removal, will it also be a roller coaster of physical and mental anguish???????? How long will it last?

-- By dadam93021 | Reply | (11) replies | Private Message me

July 15th
2005
8:31 PM

Post your symptoms since stopping Yasmin!!!

Hey everyone it's Kay21 here and I just wanted to post my 3 month off Yasmin update. Because stopping the pill is a hard decision, I figured we should all post are updates here to help/support those who are planning to stop or who have recently stopped Yasmin.

I have been off of Yasmin since April 17. As some of you already know, I was experiencing horrible side effects while on Yasmin for 3 years (particularly stomach problems, vaginal dryness, muscle cramps, increased blood pressure and heart rate and anxiety).

The first 1 month off of Yasmin was okay. In fact, I felt the best I had ever felt in a while. My blood pressure and heart rate decreased and the migraines and muscle cramps went away. But when I hit the 2 month (8 week) mark, I felt HORRIBLE. I was severely depressed and anxious. I was crying all the time and felt a severe sense of DOOM! The physical symptoms also started to become problematic. The acne increased and I started growing more facial hair. The worse symptom, however, was that I started losing a ton of hair. I would lose stray hairs all day (probably about 200 a day). Since I have hit the three month mark, the hair loss has gotten MUCH WORSE! Now I am losing CLUMPS of hair all day. I have seen several doctors about this. Some say it's because of stress and a few (a derm, GYN and endo) say that hiar loss is common after stopping bcp. I have already loss about 1/3 of my hair.

I am also really concerned, because I have not had a period since April 22. So my doctor has put me on provera for 10 days to induce a period.

For those who have stopped Yasmin, what have your symptoms been (i.e. increased acne, weight gain, anxiety, etc.). Has anyone experienced hair loss? How long did it take to get a period???

Thanks...

-- By kay21 | Reply | (56) replies | Private Message me


 

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