September 6th
2009
11:24 AM
I've posted here before right after I removed my mirena. Well it's been 27 days since I've had it out. At first I felt great. I had a period two days after I removed it. That period lasted a week long. Right after my period I CRASHED MAJORLY!!!! I had severe depression, severe anxiety and really bad leg and joint pain. All of that lasted about a little over a week. I got put on clonazapam and 20 mg. of celexa. So far I'm doing pretty good. I still get a little leg and joint pain, but not as bad and it doesn't last as long. I feel 90 % better and am expecting my second period on the 9th. I really hope I don't crash again. It was awful!! While on the mirena I had high blood pressure, fast heart rate, low grade fever, joint and leg pain, anxiety and depression, bloating like I was 4-5 months pregnant, nausea, heartburn, headaches, body aches (like I was sick), carpul tunnel syndrome (which I only get when i'm pregnant just like the heartburn) and more! Everything went down or completely away within a couple of weeks of having it removed. All except my heart rate. I am on a low dose of beta blockers to keep my heart rate from going over 100. Just like many of you I have been tested for many things like lupus, rheumatoid arthritis and so on. i have also been suspected of having hyperthyroidism, but with negative results from blood work. We are experiencing a major hormonal imbalance from this mirena. I just hope and pray our dr.'s will do their research and realize we are all right about our experiences and something can be done about this IUD. There is hope. Your bodies will regulate. It's only been about 4 weeks for me, but I am feeling better so far since my crash. Don't hesitate to tell your dr.'s about any depression and anxiety you may be experiencing as those are very serious side effects and can be treated even if it's just temporary to get you through the crash. I also take a one a day multi vitamin. So maybe that will help to.
-- By makyjoykad | Reply | (1) replies | Private Message me
July 24th
2009
4:29 AM
I will be on prednisone for the rest of my life so my Pulmonologist says. I have an auto-immune disorder called allergic broncho pulmonary aspergillosis. I thought I was alone until I read all your messages when it comes to leg, and joint pain. My doctor acts as if I am crazy, and that it is not a side effect of the medication I am taking. It has gotten worse the longer I have been on the drug. I rarely sleep, and I have an appointment with him tomorrow. If anyone can suggest something that helped them I would love to hear it. I have tried everything, and the only relief is when I take pain medicine which I do not want to be on forever.
-- By gypsy1228 | Reply | (1) replies | Private Message me
July 15th
2009
9:21 AM
started this 7 days ago for a prostate infection... I thought i've been going crazy this week until i saw this post..im having a horrible reaction to this stuff..although it does seem to help my prostate...it leaves the rest of me in bad shape. First off ive been getting lightheaded like every other day to the point as i think im have a panic attack but heart isn't racing...I've gotten diarrhea 3-5 times a day i go now...i had a bagel the other day for breakfast..it was the hardest thing to eat as i felt sick to my stomach and knew i had to eat something so forced it in..today i had a banana and some grapes and 15 minutes later was throwing it all up. I just called my doctor and asked for a change in antibiotics as this thing has lead me to believe there was something wrong with me although my doctor seems to think these side effects don't generally happen...i come here and see they happen EXACTLY how i have been feeling and just hope this doesn't last much longer in my system!
-- By stmfdups | Reply | (5) replies | Private Message me
May 27th
2009
5:12 PM
I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.
-- By xxanonymousxx | Reply | (13) replies | Private Message me
May 19th
2009
11:21 PM
I was diagnosed with Rheumatoid arthritis at the end of 2007 and have been on prednisone since then. I started on about 105mg a week and am currently trying to reduce it but it is really hard as the moment the dosage goes down I lose all mobility and cannot even get out of bed. I am only 23 years old and really feeling the disease to the extent that I cannot even cope with my life. The prednisone has really taken its toll on me and the side effects are crazy! I just want to go back to my old self as I am finding it sooo hard to get through a single day. My side effects include:
Insomnia, tooth sensitivity, depression, anxiety, mood swings, moon face (my face is so swollen that I cant stand looking in the mirror anymore, dizziness, temper, feelings of uselessness, nightmares, night sweats, water retention, and to top it all off the arthritis is getting worse and I am in constant pain. Is there anything anyone can suggest then please help me!
-- By rowrow | Reply | (6) replies | Private Message me
May 1th
2009
10:57 AM
Responding to a couple of posts: Low energy and leg cramps are signs of low iron, you might be anemic, ask your doctor to have your iron checked at your next blood test. Also, ask about taking a multi-vitamin, all of the literature about Warfarin mentions not taking vitamins but it’s more about consistency. I’ve been taking a multi-vitamin daily - with my doctor’s permission - and I’ve had very consistent PT’s and INR’s. I’ve been on 7.5 mgs of Warfarin daily for six months and am holding steady. It is very important to take it every day if you do take a vitamin, it’s important to be consistent.
And about the socks, they are called compression stockings and can be prescribed by your doctor, or some are also available at drug stores, ask a pharmacist at the store.
And also about headaches, it helps me if I stay hydrated. When I don’t drink enough water I tend to get headaches.
I’m back to exercising at my pre-pulmonary embolism rate, it took me six months to get there, and I started slow, but my body has gradually responded. I’m 52 and was pretty healthy before I got sick. Just keep at it, you’ll see results (and feel better too!).
-- By bullette | Reply | Private Message me
April 29th
2009
9:32 PM
I had a lot of the negative side effects listed above by others including depression, fatigue, trouble concentrating, aching body, restless nights, irritability, my arms and legs falling asleep and so on. Then I found out that i had a vitamin b deficiency - a lot of these symptoms are also symptoms of vitamin b deficiency. Yaz along with other oral contraceptives interferes with the bodies ability to absorb vitamin B. Taking vitamin B supplements a few times a day has helped me. They are water soluble so you do not have to worry about overdosing- if you take more than your body needs you will just pee out whatever is extra.
-- By elizabeth676 | Reply | (2) replies | Private Message me
April 11th
2009
6:12 PM
I have been on Prednisone for 3 months for PMR (polymyalgia rheumatica)and so far the pros have far outweighed the cons. PMR is an extremely painful condition that affects the shoulders and hips especially at night and early morning, I spent all of December and January sitting upright in a chair trying to sleep, untill I was diagnosed and prescribed Prednisone and oxycodone. I started at 25 mg and I'm now down to 15mg. The side effects that I do have are weight gain (about 10 pounds), mild mood swings and insomnia.I am an avid bicycle rider (25-35 training miles per day on week days a lot more over the weekend),I am 60 years old and now back on the bike. The strange thing is after about one month back in training I am much stronger this year than last even with the added weight. Last year, a solo, 30 mile hard ride I would average about 17 mph this week I went out on my same training ride at 19.4 mph, over 2 mph faster. Everything I read about Prednisone says that it wastes muscles,but I have become stronger. Is it possible that it's the Prednisone?
-- By andycolnago | Reply | (5) replies | Private Message me
March 28th
2009
5:09 AM
I experienced severe hair loss. I never associated it with Centrum Performance until I ran out of it a few times and that's when I noticed the correlation. Now that I no longer take that multi-vitamin, my hair has stopped falling out and is becoming thicker with new hair growth. Too much Vitamin A in Centrum Performance.
-- By hayseed2 | Reply | Private Message me
March 8th
2009
7:21 PM
I have polymyalgia and the rheumatologist put me on 15 mg prednisone a day for one month then 12 1/2 mg 2 weeks then 10 for two weeks and now 7 1/2 for a month then down to 5 mg next month til next doctor visit. The only side effect I feel I am experiencing is not being able to loss weight. I have not gained any in the 3 month on the meds, but have been really watching my weight and can't seem to lose any. I do at times get a hot flash, not at night but in the daytime, but compared to the pain and stiffness from the polymyalgia.. I'm a happy camper. Before I couldn't get in or out of the tub or car the pain was so bad! Mornings were unbearable. I am 150 pound 54 year old female.
Does anyone else feel good about this drug and have had success with it. My doctor wants me off it in a year.
February 23th
2009
1:35 PM
I loved it for years! I went on the NuvaRing in late 2005 and I recently discontinued the use of it (Jan 2009). I was suffering from 3 periods a month for years and no pill or even the Depo shot helped me. The NuvaRing cleared it up beautifully! I had regular and relatively pain-free periods and I could not have been happier.
A few months ago I started experiencing some major PMS symptoms that I have never experienced before. I gained 15 pounds over the course of 5 months and by breasts were swollen to the point that my nipples were dry and cracking (and yes, 4 different pregnancy tests confirmed that I was NOT pregnant). I was going insane with mood swings and I just felt like a jittery crappy mess all the time. My body temperature also dropped a full degree on average from what it was a year ago and I am really sensitive to cold now.
So, I discontinued the use of the Ring and started taking a vitamin regiment that I found other Ring users found useful (B-Complex, zinc, selenium, Evening primrose, and a multi-vitamin).
I have not lost the weight yet, despite working out 3-4 times a week with weight-training and cardio. The doctors have told me to wait it out for a year. It bums me out, but it's worth it. I have been on hormones for 9 years and it is time to be natural again. Thanks for listening.
-- By pappycole | Reply | Private Message me
January 18th
2009
2:54 AM
having vivid dreams dealing with the past. thought I being shot at while hanging on the trunk of a car then decided to jump off the trunk and lay below the rear bumper....only to find out I had thrown myself off the bed and was awakened by bumping against the wall,. I instantly awoke and
realized I was laying next to my bed confused and remembering the dream vividly and know that was why I had thrown myself off the bed. This is extremely scary to me and have been yelling (not talking) never just talking, always confronting...always yelling at someone or an animal.
I take 100 mg of Toprol a day for blood pressure. I also take a multi vitamin, 10 mg of lexapro, 800mg of fish oil and enjoy a vodka martini or 3 three times a week. I am 52 and still having regular cycles. Sometimes heavy sometimes extremely light. I drink a whey protein mixed with 2% milk every morning along with the above mentioned.
Can you give me advise please?
January 7th
2009
3:40 PM
I am a 33 yr old male with Cystic Fibrosis. I started prednisone in 2006 and as of 2009 i have never been off of it.This drug has destroyed my body. I was under weight when i started, at 130 lbs. I am 5'9'' so i admit that was thin,but know i am at 170 lbs. This has had an effect on my relationship with my girlfriend since i met here when i started taking it. It may actually help me breathe better,but I am not sure. I have decided to stop it myself. I will do so slowly,but i am sick of the way i look and feel. This may sound silly to some but i just hate being in this state. I look like a pregnant woman playing a trumpet. I wonder how long it will take me to look like me again? Good luck to all of you. BK.
-- By billy123 | Reply | (1) replies | Private Message me
January 6th
2009
12:30 PM
My daughter is 11 years old. In Nov 08 she received her first Gardasil shot, she did okay at first just some very mild tenderness at the injection site. Just two days ago, she was just lounging around the house and a substantial chunk of her hair fell out! Of course she was devastated and I immediately called her pediatrician. The on call doctor did not seem concerned and didn't' provide any useful information so I took to the internet. I found photos of Alopecia Areata that looked EXACTLY like the bald spot on my daughters head, same shape and size. I searched for a couple days and racked my brain trying to figure out what caused this to happen to a healthy, athletic 11 year old, then I found this website. Although none of the other sites even mention hair loss as a side effect to Gardasil, I now realize that it has occurred in many. I am connived it was the Gardasil that caused this.
-- By ggill78 | Reply | (3) replies | Private Message me
December 4th
2008
10:56 AM
I was on prednisone while getting over pneumonia to help with my breathing. I was only on it for 7 days and the doctor didn't have me go off of it gradually. I missed the last dose on the 7th day and by bedtime, my muscles were sore enough it almost hurt to lay down. I took the last pill that night before I went to bed and had no muscle soreness in the morning. After that, the muscle soreness came back, along with dizziness. My pulse was also higher than normal. Two days later at night, I was still having muscle soreness and dizziness, although not nearly as but, but I was having a lot of trouble breathing and my pulse would refuse to go below 100 no matter what I did and the problems continued thought the night. The next morning I went to the clinic that prescribed me the predisone because the information they gave me said to see a doctor if these problems persisted. I told them I thought I might be having a predisone withdrawal because my mother, a nurse, said it was the most likely problem from experience. They completely ignored that saying it had been several days since I've stopped the steroid and kept asking me about my asthma (inhalers weren't working and it was definitely not an asthma attack -- I've had plenty of those, to all different degrees) and ended up giving me medicine for anxiety, which helped the closing of my throat, but none of my other symptoms. Three days later, my resting pulse is down to 80, but my breathing is so much worse than it would be with just my normal asthma and taking my inhalers as much as is allowed. I had no noticeable symptoms when I was on the prednisone except being less able to sleep. If it keeps up, I intend to go to a different doctor to see what is really happening, but I don't think it's 'normal' to have the withdrawal symptoms for this long after only having it for 7 days. I know I took it when I was younger (I'm 22), but I don't remember ever having issues going off of it before.
-- By breannatala | Reply | (4) replies | Private Message me
October 16th
2008
2:17 PM
Hi everyone well yesterday i started to to take Prednisone 2 hour later my heart is racing along with high blood pressure , so ill try to calm my self down blood pressure kind off got back to normal but heart still beating rapid, today i woke up my blood pressure was fine but my heart still pounding do ya know how long it t takes for my heart to go back to normal , and im sorry to hear about everybodys different reactions to this stupid pill hope everybody gets better.
-- By fernando86 | Reply | (1) replies | Private Message me
September 28th
2008
2:00 AM
eat avocados to help with cramps. No one tells u that prednisone depletes potassium. Better avocados than banana because prednisone also raises your blood sugar.
-- By caradeluna | Reply | (1) replies | Private Message me
September 24th
2008
1:47 PM
I was prescribed Zocor for high cholesterol. Almost immediately I began to experience body aches -- some days more severe than others. I would take ibuprofen and it would help. Then, I started getting a pretty strong pain on my hip which radiated down my leg onto my foot. The pain was so severe, even the Motrin 800 mg. pills didn't help it. I am 53 years old, but I felt like a 90 year old. I had problems walking, especially after sitting for an hour or so. I had problems with stairs. Even laying down was painful. I tried heating pads, ointments, etc. When I told my doctor about it, she said that this was a typical side effect of statins, and that because I am diabetic, I need to continue taking Zocor to keep my cholesterol down. Just the other day, I stopped taking Zocor for 3 glorious days and guess what? NO pain!!! I resumed it because my doctor insists that I stay on it, but I wish there was something else I could take that wouldn't cause pain.
-- By michellerodriguez2392 | Reply | (12) replies | Private Message me
September 16th
2008
3:40 PM
Hi I am a 44 year old asthma patient. I have had asthma since the age 2 and have been on & off prednisone since that time. As a child until age 20 I was on predinsone daily. My question is has anyone experienced nerve problems due to long time use? I do have muscle weakness and spasms, but I am interested in if anyone has had nerve problems. Please email me at ****** and refer to prednisone.
-- By maureen1 | Reply | (2) replies | Private Message me
August 11th
2008
5:05 PM
After having the third shot I noticed my hair began falling out (July 2007). It is now over a year later and after having numerous blood tests, visiting a dermatologist and doing tons of research, I have concluded that gardasil must be causing this. My hair continues to fall out, I have bald areas around the crown of my head and my mood is very depressed by this. I also experienced soreness in my legs and joints but these are not constant. My periods also are out of whack. They can be between 28-50 days apart. I would not recommend anyone getting this vaccine. I wish my OBGYN had not sold me on it. I was 31 when I got it but she said age didn't matter, she said one day insurance companies would cover this vaccine for all women no matter what age they are. I paid $190.00 a shot and now I have a thin head of hair that may one day soon be bald if it doesn’t stop falling out. I think they should take this vaccine off the market. If anyone else has had severe hair loss, has it stopped falling out after a certain point?
-- By holly1976 | Reply | (7) replies | Private Message me
July 27th
2008
11:39 PM
Lately my wife has been experiencing of depression, lack of energy, muscle cramps, nausea, enlarged and soar breasts (nipples are hot also), headaches, insomnia, vaginal discomfort and sourness with and without physical contact, constipation, and other symptoms, which I cannot as a male, properly describe. Is this accumulation of symptoms normal or should we look in another direction for birth control (besides condoms)? A concerned husband, Kenny...
-- By kenny16fl | Reply | (1) replies | Private Message me
July 16th
2008
11:03 AM
Just a quick tip... i've read several times that certain vitamins and drugs effect the pill such as tylenol and vitamin c... iv been spotting a ton and i take a large dose of womens multi vitamin each day. every time i stop taking vitamins, my spotting goes away. i don't know if this is directly related, but it might help some of you, because it has helped me. i am also only on my third pack.
-- By beachbabe77337 | Reply | Private Message me
July 11th
2008
1:25 PM
I was taking Lovastatin until the VA told me that it was not on their formulary any longer and I had to take Simvastatin. Within a couple months my feet started burning and a numbness began creeping up my legs. I began falling, staggering and lost the ability to walk without two canes. I thought I was in the early stages of MS or ALS and feared I was dying. My fiance' did research on the internet (Spacedoc.com) and discovered that the symptoms I was suffering from were the result of Statin Poisoning (don't take my word...look it up) I took myself off the Simvastatin at the doctors request and began taking 4 1000mg of Omega 3 Fish Oil, 2 50mg CoQ10, 1 50mg L Carnitine, a multi vitamin, and 1 81mg coated aspirin per day. I still have numbness in my legs and some burning in my feet one and one half years later. My Neurologist has told me (and written a letter to the effect) that I am permanently disabled...that this will never go away. Statins (all Statins) are poison...don't take them....the pharmacutical companies only push them to make MONEY they don't care about you or your health. If you need more information contact me anytime and I'll be happy to share any research I have. ******
-- By dbuchanan51 | Reply | (2) replies | Private Message me
June 18th
2008
11:39 AM
I was prescribed prednisone for cronic sinus infections along with antibiotic for 30 days. I was not weaned off just stopped completely after 30 days. It has now been three weeks and I am suffering from swelling in feet, lower legs and hands. Any suggestions on what I can do to reduce the swelling and how long this may continue? I
-- By helpmeksp | Reply | (1) replies | Private Message me
PredniSONE (16) Yasmin (9) Warfarin Sodium (3) Synthroid (3) NuvaRing (3) Gardasil (2) Toprol-XL (2) Mirena (2) Lipitor (1) Simvastatin (1) Centrum Performance (1) Lisinopril (1) Doxycycline Hyclate (1) Lamictal (1) Manganese Sulfate (1) Topamax (1) Paxil (1) Chromagen (1) Chromagen Forte (1) Loestrin 24 Fe (1) Lupron (1) Singulair (1) Zocor (1) Strovite (1)
September 24th
2009
7:02 PM
I have been taking prednisone for three years now and I love it. When I am off of it I cannot breath and I get fluid in my lungs and my arthritis comes back and I ache all over. I could not live without it. The only side effects I have is a little weight gain, sweating, and moon face but the side effects are better than the all over acheing and not being able to breath. This drug has been very good to me.
-- By foxylady628 | Reply | (2) replies | Private Message me