February 11th
2009
7:46 PM
I am being treated for ulcertive colitis. I have been on prednisone since Sept of 08. I started out on 40 mg. In late Oct. my doctor started tapering me off 5mg per month. Each month following the tapering date, I would get sick. As I look back, all the signs of withdrawal were there. This Jan. I tapered once again, but the window was only 3 weeks. I hit rock bottom. If there was a symptom, I have it. Nausea, burning in my digestive tract, diarrhea every time I eat, muscle ache, numbness in my legs, swollen feet, sore bones and joints. ( The worst was in my feet. I ended up seeing a podiatrist. He thought plantar faciaitis until I told him about being on prednisone. The small bones in my foot were swelling, The muscles in my calf were buning they were so sore. That was last week. Today my other foot started. I can hardly walk. In addition to that, I am lightheaded, have elevated blood pressure, and fatigue. I also had some vision problems that sent me to the doctor. I went through a ton of testing which all were negative. It seems that pseudotumor is another symptom of withdrawal. I have a history of that. It would have been nice to know that. As I look back each month, I had different muscle and joint pain that lasted about a week. I was put on an acid reducer in Dec. to help my stomach, but in all of this time, I was not told that these all may be withdrawal symptoms. I have been off work for two weeks now in addition to the days I missed each month. My physician is now controlling the tapering procedure. They up the dose to 10 mg again. They plan on weaning me by 1mg doses. This has been a terrible experience for me. I have only been severely sick one other time in my life. This pain is awful. It is chronic. This drug may be beneficial, but it is like poison too. Anyone who takes this should really ask a lot of questions, and be careful..
-- By houbiecat | Reply | (1) replies | Private Message me
September 17th
2008
9:57 AM
I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.
August 3th
2008
11:32 PM
I have had mine for over a year now. I initially never thought any of these side effects were related to this device. After gaining weight when I have been exercising and eating the same (sometimes one pound per day), bloating, decreased libido, swollen legs (like when I was pregnant), nausea, and having this horrible neck/shoulder muscle ache (to name the biggest ones), I talked with my OB about this being the cause. She pretty much dismissed it as having anything to do with this. Then, after becoming so frustrated about the weight gain, I decide to research this little thing and I find this!! Oh my goodness. I have scheduled an appointment to remove this tomorrow. It also bothers me not to have a period. I feel like it has been building up for over a year and that is why my stomach is so pregnant like!! I think it works great for some women, and I had a fabulous experience for the first 8 months about. I just think it is important for women to pay attention to their bodies and just because a professional disagrees, does not mean they are correct.
-- By kimberly24 | Reply | Private Message me
April 28th
2008
3:30 PM
I am a 41 year old male that has BP averaging 140/90 and spikes that were extremely hi 190/125 (which landed me in th ER). Lisinopril 10MG was prescribed last Friday. My BP came down immediately yesterday 111/75 today 109/69. That is the only good thing. I have a headache, dizziness, feel disoriented, had urges to urinate and nothing would happen. Yesterday while trying to walk, wash my trailer, or even chew a piece of gum whatever muscle I was using became soar immediately. They felt as if I had run a marathon or something. Today after one flight of stairs to get to my office I was short of breath and my leg muscles hurt. I had to go lay down at lunch because this stuff makes me so tired. It is like I have been poisoned. As I'm typing my fingers hurt and the metal taste in my mouth has me thinking I want to trash this stuff. The doctor says they haven't herd of these side effects and and they said to cut the pill in half.
-- By glenswanson | Reply | (1) replies | Private Message me
April 3th
2008
12:23 AM
I was prescribed doxy as a precaution for a mole removal on Friday, started taking meds on Saturday. I am in day 5 and have noticed that since Day two I have had inexplicable joint and muscle ache and have been so tired for two days that I almost could not bring myself to return to work after lunch today. Normally I am a 4 hour a night sleeper who goes for a 3-4 mile run in the morning and works out with my trainer after a 14 hour work day without getting tired until about 11-11;30 at night. but something is wrong, I have never experienced the exhaustion of today and yesterday. Not even a grande Starbucks coffee, chased by a full shout of 5 hour energy brought reprieve. And I have been weepy and morbidly unhappy for absolutely no reason. Saturday night I heard a song that made me cry and I have never cried over a song. I have been moody and irritable since day one of the medication- without explanation and I took 3-4 hour naps this weekend. after reading other peoples comments I feel like its the meds. I am calling my doctor tomorrow to ask if I can get off the meds and I am not taking them tonight. d
-- By behrgreer | Reply | Private Message me
March 31th
2008
4:46 PM
I took Lipitor for about 2 years- 5 mg.
Leg cramps-soreness throughout my muscles- very sore buttocks-
my legs are shaky- if I use them too much; (as in walking 3 miles)
I am (was ) an avid body builder that could squat with 100 lbs- and now ( I am a health conscious -non drinking- NO other medication 104 lb slim female) have quivering legs if I stand for too long. I even had a muscle biopsy- and it cam back negative- I have not had a statin for 6 months- but I still have cramps- and abnormal liver values- and I have NO other conditions-I have been scanned from head to toe - open MRI- closed MRI -but the muscle stiffness- soreness- especially legs- continues-
does anyone know how long it lasts? I have also been tested for liver cancer- thank God-negative.
I really feel that Lipitor did this- has anyone else gone from fit as a fiddle to a quivering -achy person- I have gone through 5 doctors- internal - gastrointestinal - neurologist- hematologist and all is negative- just high liver values and muscle pain. Thank you so much.Maxine
March 15th
2008
2:15 AM
What started out as a simple visit to dentist became a nightmare. My BP was high l73/90...so I went to a doc to get something for the BP. I knew it had been creeping up. I should have been more vigilent and done my own research first. He prescribed l00 milligrams of the generic brand--metropolol. I questioned the dose, but he said it was safe, and I needed something to bring my blood pressure down right away.
By the third day I felt like I had a hangover when I woke up. I started feeling not quite right. Tiredness, depression, and headache. My BP got higher. On the 5th day my heart started racing, with a pulse in the l30's. I spent 6 hours in the ER. My pulse was in the 60's, but BP 210/110. They injected me with 5 mg of the stuff, and also gave me clonopine. My EKG had been normal at the doc visit. In the ER it showed abnormal with sinus tachycardia and First Degree AV nodal block. It returned to normal, and by BP dropped to 150/80 with the clonopine. My glucose was also high at 300. I could feel an immediate relief with the clonopine. Heart enzymes normal. ER doc denied that the Topol caused the racing heart. He said that's not a side effect..perhaps there was an underlying cause. He did say the episode could have been triggered by low oxygen to the heart. I think they all stick together----he's not going to say the first doc was an idiot.
They wanted to transfer me to the "big" hospital for cardiac workup. I refused, since I had an appt.with a cardiologist in a couple days, and the doc that prescribed his awful med. I didn't think my insurance company should fork out $50,000 for an adverse effect from a drug.
I had been doing heavy exercise the morning of the racing heart...it was after I sat down I noticed the increase in pulse rate. NO ONE gave me any warnings..not the doc, or the pharmacist. Both said this was a safe drug.
I cut the dosage in l/2 for two days, until I saw the cardiologist. He said ok to stay on the clonopine for now, and a diuretic. I feel much better, and BP has dropped to the l40's over 80 something...pulse near 80. I am going to do a stress test. Based on a heart scan, 3 arteries have 0 plaque, and two mild.
I read that this drug is not recommended as first choice for BP. In the UK they're weaning people off of it because it causes diabetes, and there's other better drugs out there. I did not wait to "ask my doctor" to take me off of it. I told him I am not taking it....I don't know how much longer he will be my doc. I don't think he should have started at l00 milligrams to begin with...and should have started out slowly at the least.
Caveat emptor (buyer beware) when it comes to this med...and do your homework, and don't be afraid to fire your doctor!
-- By gail123 | Reply | (1) replies | Private Message me
March 7th
2008
4:14 PM
Hope this helps someone:
Male 53, 5' 10", 180 lbs, slim
Occupation: Engineer/small biz owner and operator
Total cholesterol now is 4.53 (175), LDL 2.30 (89), HDL 1.43 (55), TriG 1.73 (66)
Presently on 20 mG Lipitor for last 2 months.
40 mG Lipitor for previous 8 months because lipid levels deemed too high.
20 mG Lipitor for 3 years before that.
20 mG Pravachol for 2 years before that.
SIDE EFFECTS I BELIEVE ARE DUE TO STATINS:
1) Difficulty learning/performing new tasks. I can read a technical article and forget most content almost immediately. I can read a book and forget what it is mostly about...difficulty forming new memory.
2) Difficulty communicating. I often stop a conversation in mid-sentence because I have completely lost my train of thought. I often cannot form difficult technical words properly.
3) Several times over the last year I have suddenly forgotten where I was going or where the location was...this was in normally familiar territory.
4) For the past year, I have often felt like I have a low grade flu.
5) I have decreased statin dose and improved my diet and recently significantly increased exercise. I am noticing some exercise intolerance and muscle stiffness that cannot be only due to exercise.
6) Extremely vivid dreams a few times a month (embarrassingly, howling in my sleep according to family members). This was the main reason for reducing dose back to 20 mG.
Most side effects were worst at higher doses of 40 mG. There has been some improvement since dropping back to 20 mG Lipitor. Symptoms first noticed to some degree at 20 mG Pravachol...got worse when switched to more potent Lipitor at 20 mG. Initially, I thought it was age. Both my doctor and specialist do not believe statins are related to any problems I've experienced and are convinced that any risks are outweighed by the benefits. I would like to see them competently run their practice under the conditions I've had to try and operate my biz.
I started taking fish body oil two weeks ago and have noticed a significant cognitive improvement. This may be partly due to reduced statin dose, however, there is lots of evidence online as to why fish oil will help some statin users. I started 50 mG CoQ10 a couple of days ago. My goal is to absolutely minimize statin dose or to eliminate it all together.
I am educated, intelligent and analytical. I am not a doctor. That said, no one can, and ever will again, tell me that the degradation in mental function I've experienced is not related to the statin drugs I've been prescribed.
If you look online, you can find a growing and disturbing number of statin induced side effects reported. This is especially true considering what was considered acceptable LDL a couple of years ago is now too high...doctors are prescribing statins in higher and higher doses.
THESE ARE DANGEROUS DRUGS.
I hope this helps someone. Recognize the symptoms and make your physician take appropriate action.
January 2th
2008
10:30 PM
I have been taking Lipitor for ten years 40 mg and I notice that even though I am only 45, my knees feel like I have been playing fullback for all those ten years. My sex drive is low and I get massages once a month to help with muscle ache. I can't sleep through the night and I have stomach pains. I also feel depressed (I listen to Bread A LOT). I am DONE I would rather try diet and vitamins than this.
-- By spoden | Reply | Private Message me
November 23th
2007
7:57 AM
Took a few tablets over a few days. Slept excessively. Extremely Mental Grogginess for a few weeks. Went Back to the Doctor & Explained the negative effects. He said, "That feeling of stupidity you had, some people don't come out of it. We don't prescribe it anymore." I feel it took about 6 months to regain sharp memory & mental abilities. I was prescribed Flexeril for cronic muscle ache & spasms. It did ease my back spasms & aches, but not worth it due to the side effects.
-- By turtlenick | Reply | (1) replies | Private Message me
September 12th
2007
3:31 PM
I originally went on 10mg of lipitor a day in January,2007, experienced leg pain,muscle ache and weakness,so after 3 weeks went off the drug on my own.In June 2007 after talking to different Dr's I went back on Lipitor,10mg, figuring that I had not really given the drug a chance as sometimes side effects do subside after a while.I saw my Dr on July 3rd & my cholesterol had gone down to 170 in about 3 weeks.I told him about my symptoms, which were the same as before & he told me to let him know if they got worse.By August 30th 2007 I just could not tolerate the pain and achiness all over my body,I was not sleeping well as every time I turned in my bed I woke up from the pain ( We even got a new mattress fguring maybe that was contributing to the joint pain) My joints became swollen & red,I could not lift up my arms,they were so sore and weak,my neck was so stiff that it was hard to drive and have to turn my head,I had a constant headache and what seemed to me like a"fuzzy brain"I am 63 years old and have never experienced anything like this,I am an active woman with a great deal of energy and people who know me could not believe what was happening, instead of scooting ahead of everyone I was barely keeping up.I found myself not wanting to eat as my stomach was constantly bloated & in pain & I was gaining weight too.
I went off Lipitor on September 1st and the withdrawal sypmtoms have been horrendous, I went to see my Dr yesterday & he put me on an anti inflamatory drug ,I have taken 2 dosages & am already feeling an improvement.This web site really helped as I felt I was not alone suffering from the side effects of Lipitor.Many people I have talked to have experienced the same symptoms but were attributing them to aging.
September 1th
2007
6:07 AM
I had a Mirena coil fitted about 3 years ago. It was brilliant. I had it fitted because I suffered terribly with painful periods. Not heavy though. I had it for about a year, then had it removed to try for a baby with my partner. I already have a 19 year old son. I didn't get pregnant, now, I believe a good thing, and I had a second Mirena fitted. Let's put it this way, it's not acting like the first one did. I get headaches, hot flushes, bloating, depression, crying, muscle ache, especially arms and hands. I have dizzy spells, and can't stand around for a while as I feel faint. I am overweight, and always intend to do some exercise, and control eating habits a bit, but when your mind isn't right, how can you? It's a vicious circle. Obviously I appreciate that some of how I feel is my weight issue, but as I said, it's hard to do anything about it when you can't get the incentive because your mind is working overtime! The bleeding though, is basically the same as the first coil. It stopped near enough straight away, but at this moment I am having what isn't really a period, but is stranger and little heavier than spotting! I also get sharp pains now and again at the moment, and am very bloated. Doctor said about a month ago, that the coil could still be settling! We will see! Any replies would be great, I hope I haven't rambled on!!! Ha.. Pauline, Gloucestershire
-- By charlie10 | Reply | (1) replies | Private Message me
July 13th
2007
11:37 AM
Had to stop the drug after 5 days. It was making me feel so incredibly bad and sure I was getting ready to check out. I did not have the cough, but did have the insomnia, muscle ache and cramps, made my lightheadedness which is bad really, really bad. I was getting abd cramps and the eyesight was getting strained. AND, the BP really did not improve. I stopped it, and the PVC's I have were so persistent and unpleasant I did return to my 25mg of toporol XL which I would prefer not to be on. But, I have to be able to function at some basic level. UGH. Liam
-- By liam13 | Reply | Private Message me
January 9th
2007
8:14 AM
Hi, everyone!
I just went on the pill for the first time. Ive never been on a birth control before. This is my second day on the pill and i feel muscle ache and also a little bit of nausea. After reading all this, im terrified. I dont know what i should do, either get off the pill before its to late or continue to see if my sideeffects are different.
THank you
-- By cool_downtown | Reply | Private Message me
October 31th
2006
5:57 AM
salty taste in mouth
kidney/liver damage
muscle ache and fatigue
October 5th
2006
3:24 PM
Muscle ache and stiffness, especially in the morning. General fatigue. I am 50 and have been on Lipitor for four years. I'm wondering if it may be causing these problems. I feel like I'm 80 when I get up in the morning.
-- By ptbsjb | Reply | Private Message me
July 14th
2006
6:05 AM
Upon taking fosamax I started getting shoulder pain. Approx. 2 weeks after 1st pill. Second, I started to develop leg pain. Lots of muscle ache in lower legs. After reading posts I will discontinue fosamax. Thank you for your postings.
-- By sheilaolivier | Reply | Private Message me
May 19th
2006
12:17 PM
I was on Mevacor for a number of years due to high levels and family hx. I changed doctors (insurance change) and started on Lipitor 20 mg. for a couple years. Muscle pain started but was attributed to 'getting older'. I've tried to exercise rigoriously and diet to lower levels w/o success. Now I'm on 40 mg. and the physical attributes of muscle ache, memory and hearing issues persist. I can see that there are nmany others out there with similar symptoms.....what can we do?
-- By irishdiver | Reply | Private Message me
May 17th
2006
9:03 AM
muscle ache,tiredness,loss of balance and coordination,but otherwise my deprssive state has lifted.
-- By marcialosak | Reply | Private Message me
February 10th
2006
2:24 PM
Hi (cant call u sickofbeingsick)
Thanks for ur reply
My doc had prescribed prevacid and the gi has told me to switch to pepcid. Anyways since its only 3 days since i stopped the pills i dont think i'll be alright so soon. I am also taking some vitamin b tablets for muscle ache and tiredness and also for my sore gum.
January 4th
2006
9:55 PM
Update to January 2, 2006:
I stopped Levaquin after Sunday (five days on it). Today is Wednesday and still am feeling week, fatigue, muscle ache, no appetite, feelings of high-fever exhaustion. However, this evening I have 101.5 fever which could explain some of my symptoms this evening. Until this evening I have not had a fever to trigger such syptoms...72 hours after beginning to flush my system with water/juice. We'll see what happens after my fever breaks...if I am still having persisting symptoms. I've visiting my chiropractor tomorrow for an adjustment and consultation on how best to continue to purge anything from my tissue. More to come...for anyone monitoring my reaction to Levaquin. Note: The substituting physician I saw yesterday for surgery follow-up said he QUIT prescribing Levaquin after several people complained of knew pain when they ran/jogged and other complaining folks.
-- By james219 | Reply | Private Message me
August 25th
2005
11:15 AM
After reading these postings, I am somewhat comforted to see that I'm not crazy. I've been taking lipitor for more than a year - and 6 months ago I started getting unbelievably horrible leg cramps at night. It's hardly what I would call a "muscle ache" - the pain is excruciating. Then I started getting the cramps during the middle of the day - often while sitting in a meeting for an hour or more. And, until reading these postings, I hadn't made the connection of the weird skin rash (psoriasis? eczema?) I've developed.
Per my m.d., I quit taking the medication about 1 month ago....but still experiencing the bad side effects (although not quite as frequently).
Does it get better?
March 10th
2005
11:03 AM
I've been using Advair 100/50, prescribed by my allergy/asthma dr., for about four years and love it! I have experienced some muscle ache, but I believe this is caused by my cholesterol med. Also, about two years ago, my ankles began swelling. When I went to my internist, she did the automatic BP check for the office visit and it was low. We started cutting back on the BP med and eventually discontinued it. My ankles stopped swelling and the BP has stabilized to normal. As I stated, I believe the aching is caused by my cholesterol med, but it's not debillitating and is something I can live with. If it is caused by the Advair, it's still not a big deal because I don't have the attacks I used to have. I can visit in a house with burning candles or a cat, which used to bring on an almost immediate attack. I used to avoid those situations. I couldn't enjoy a Christmas party or visit for more than 30 minutes or so. I love my Advair!!!
-- By lbmullens | Reply | Private Message me
August 26th
2004
11:54 AM
does anyone know how to cleanse your system of levaquin? some of the postings suggest that it stays in your system for a very long time. and if it can cause ruptured tendons, how long does one need to worry about this happening. i took two pills, experienced bad side effects such as dizziness, muscle ache and fatigue, and immediately stopped taking it. my worry is that now that it is in my system, i may be susceptible to a ruptured tendon. any advice on how to detox my body of this horrible drug would be greatly appreciated.
-- By bgart17 | Reply | Private Message me
Lipitor (9) Levaquin (4) Mirena (3) Yasmin (2) PredniSONE (2) Lisinopril (2) Toprol-XL (2) Lamictal (2) Maxidex (1) Femara (1) Flexeril (1) Advair HFA (1) Flomax (1) GlipiZIDE (1) Doxycycline Hyclate (1) Lantus (1) Fosamax (1) Pravachol (1) Zocor (1)
May 14th
2009
12:46 AM
I had my daughter in Sept. 2009. 6 weeks later I had the Mirena put in. I would first like to say that I was told it would not hurt going in. I screamed and cried at the top of my lungs it hurt sooo bad. The OB blamed it on a tilted cervix. I have since been irritable, always in a fog, very crampy, constipated, terrible acne (that I've never had before), developed hemorrhoids, Weight gain, and I have no sex drive. Now new symptoms occur. I am exhausted. I struggle everyday to get out of bed. I have a 2 year old and a 8 month old. Sadly this is affecting my parenting. I am having severe headaches. Now I am constantly nauseous. After I eat I am getting very sick for like an hour. I am extremely weak and can barely even walk. I shake uncontrollably also. Please, anyone with any info. please let me know. I am getting this thing out ASAP, but I am scared to death of the pain when it comes out and I am extremely worried that it has done some damage to my body. my email is fireflies10105 at yahoo. please I need advice!!
-- By fireflies10105 | Reply | (5) replies | Private Message me