November 11th
2009
6:27 PM
I am a 51 year old woman and I have been on Lisinopril for about 12 months. At first it was 20mg, then increased to 40mg per day. I started having shortness of breath and decided to cut back to the 20mg after a month or so. I am a nurse so I often adjust meds that I am on. I found this board about two months ago. I am so glad I did! I have BP of about 126/82 on meds. I have just stopped the 20mg two days ago, after developing more chest pain. I have lost all the weight that I needed to and eat a low salt diet now. I already feel better today. Chest pain is almost gone. I see my DR. tomorrow about all of this. I am going to try to stay off all HTN meds if I can! I had so many side effects that I never realized were being caused by this horrible drug. Some of them included: chest pain, shortness of breath, rib pain, extreme hair loss, tingling in all extremities, joint pain, muscle pain, headache, loss of appetite, loss of sex drive, difficulty thinking and comprehension, memory loss. I just wanted to let others know that I also know this drug is very dangerous. I am hopeful that I will continue to feel better as the weeks go by.
-- By gingerllt | Reply | Private Message me
November 10th
2009
11:13 PM
I was diagnosed 16 years ago with portal vein thrombosis which is a blood clot deep in the liver. Taking Coumadin or warfarin is not an option for me it is a necessity to live. I experienced headaches and depression early on which I did not connect to the drug because of the trauma I had been through. The symptoms have come on over the years and seem to be worsening. I am experiencing severe joint and muscle pain, cramps in my legs and hands, extreme weight gain, severe water retention ( I take 3 kinds of water pills a day), extreme fatigue, insomnia, heart valve problems, memory loss and have recently found out I have developed severe osteoporosis in the last 10 months. I have recently undergone tests for auto immune disease, lupus and rheumatoid arthritis which all came back negative. I am 42 and feel like I'm 72. I keep asking the doctors if these symptoms are related to the long term use of the drug and they say it is unlikely. I currently take pain killers to manage the pain so that I can function daily. I take 5 mg and 7 1/2 mg alternately and keep my INR around 3.0 to 3.2 and am very stable. After reading these postings I am even more convinced it is the drug. Is there anyone out there that has been these drugs as long as I have and if so, what are your side effects?
-- By cricket2 | Reply | Private Message me
November 10th
2009
3:32 PM
For me, it has been about 10 years, I think, since I was on lupron. I got a shot every 3 months for almost 2 years. At the time, the Dr. told me that the Lupron was still in the experimental stages but they thought it would be beneficial for me to try. I had a mini lap done because of a softball sized cyst rupturing so she couldn't see anything in my abd with the regular lap. I was diagnosed with stage 4 endo and started not long after on the lupron. I do not envy any woman that has or is going through menopause because the mood swings and hot flashes that I remember, were aweful.
Since the end of my Lupron, many years ago, I have noticed a few things that I never really put in line with the shots, ex...severe headaches, bad memory loss (to the point that I sometimes cannot remember things I just did), joint and muscle pain.
For me, the Lupron was a God send for the endo, I was cleared after about a year and went back 2 years ago for another lap and that was clear of endo but I have bad adhesions.
Before all of this started, I was a very active person with horseback riding, clogging (a type of celtic dance), and a very dependable person. Things are getting worse for me and I am only 32 yrs. old.
This is one of those moments, I know there was a reason for me to write this but now after being so long from reading the other comments, I cannot remember what my point was. No need to delete this though.
If anyone knows of anything that I can do to help with the memory issues, please help me out. All kidding aside, I cannot remember to take the vitamins that are suppose to help me remember.
November 9th
2009
8:00 AM
Have been taking Fosamax for 2 years until stopping 5 weeks ago at the advice of my gynecologist. It never occurred to me to associate my joint and muscle pain to this medication, it felt like I had generalized arthritis. I started to get informed online, to find out that my terrible problem stated with Fosamax. I am now feeling better from most of the pain, however I am still suffering from extreme pain in my right buttock muscle, keeping me up at night, to relieve the pain I am taking tramadol which only helps during the day. Is there anyway that this Fosamax side effect can be reversed? If anyone is experiencing what I just mentioned, please let me know, I am afraid that this horrible pain is permanent.
Many thanks.
A. R.
November 9th
2009
1:52 AM
I am 39 years old and work for an interventional cardiology medical device company in Tokyo, and so know the importance of controling one's cholesterol, keeping the LDL's low and the HDL's high. About two years ago, my doctor put me on 10 mg of Lipitor. Several months later I herniated a disc in my neck between C6&C7. From that point onward, I attributed all of my neck and back pain, and newly acquired total body muscle and joint pain, to the herniated disc, it made the most sense. Over the last seven months, I have really worked on my diet and began to exercise more (even though quite painful) and was able to lower my cholesterol. This resulted in my doctor lowering my Lipitor prescription from 10 mg to 5 mg. I noticed a slight alleviation of the pain I felt in my hip joints and calves. About two weeks ago I took myself off Lipitor completely and found further improvements in my total body muscle and joint pain. It's still there but greatly improved. In retrospect, I now believe the Lipitor may have been the culprit (or at least a contributing factor) to my herniated disc due to muscle degeneration in the neck, and all of the subsequent muscle pain, especially in my hips and calves. I fully understand I am not going to die from calf-pain, but may from heart disease. However, I have found my quality of life has improved tremendously over the last few weeks. Less irritability, better sleep, less pain, clearer head. I feel like I have lost two years of my life on Lipitor via personal suffering and lack of ability to do much of anything with my wife and two young daughters. We all need to take charge of our own health and therefore I encourage anyone who feels completely different after taking Lipitor to engage your physician, and make sure its the right option for you. If damage has been done to my musculature I hope I can reverse it. It is evident to me that some serious clinical studies should be done to investigate Lipitor's effect on muscle degradation and hope others will consider carefully whether or not do go on this drug. If you do, monitor yourself closely.
-- By thinner | Reply | (5) replies | Private Message me
November 8th
2009
10:28 PM
Been on coumadin for a year, horrible medication. Have aches all over, legs, shoulders, back, always tired, want to be off this med. Was taking alternative meds previously...nattokinase, bilberry which are blood thinners but are also SAFE. Then I had no leg pain, no muscle pain. I now take vitamin e and fish oil with the coumadin, no interaction since I've been using them for a long time and are more beneficial than the coumadin as far as I'm concerned. What I need is a naturopathic doctor, but they are hard to find, regular mds have no clue about supplements..all they want to do is increase your prescriptions. Doctors try to scare people telling them they'll have a stroke without coumadin, but have no solution on how to prevent stroke, etc. without drugs.
-- By jennyjay | Reply | (1) replies | Private Message me
November 2th
2009
4:47 AM
Burning sensation in joints ,specifically in knees started after 4 yrs of Arimidex use besides muscle pain,fatigue and weight gain inspite of exercise and diet control .Frequent fever lasting 2-4 days with lot of weakness.So far so good as long as I am protected of relapse.
-- By vipla | Reply | Private Message me
October 31th
2009
12:07 PM
I have been taking 20mg Lisinopril for six days for 140/100 BP reduction. Muscle cramps, muscle pain, dizziness, ringing in the ears (which I already had, but this medication has made it MUCH worse),some heart palpitations...generally scary and, on balance, I am going to find some other solution. Frankly, this is like taking a slow acting poison.
-- By michaeltheprofessor | Reply | (4) replies | Private Message me
October 27th
2009
3:23 AM
i have had excruciating pain in my right knee and upper part of my right leg while only being on Advair diskus 250/50 for about 3 weeks now. It did help with my wheezing however i cant sleep at night because of the muscle pain i have been having. I NEVER have had issues with either of my knees and am seriously considering stopping the Advair!!!
-- By michelle1956 | Reply | Private Message me
October 26th
2009
9:57 AM
I started taking 400mg yesterday for a sinus infection. Fifteen minutes after my FIRST dose, my stomach started cramping. About five hours later I noticed muscle pain in my thighs all the way down into my toes. It was like I worked out at a gym. This morning I have a metallic taste in my mouth that even lemon water won't cure. I have a VERY HIGH tolerance for medication and usually have to double whatever is prescribed. Fortunately I did not do that with this med since it was new to me. I will not be taking anymore. I will go back to the amox and deal with the infection. I read that apple cider vinegar was good for that - without the side effects. Seriously, beware if you are sensitive to drugs. This one surprised me.
-- By dacakes | Reply | Private Message me
October 18th
2009
8:36 PM
I have been on Fosamax for eight weeks. I had joint and muscle pain especially in the neck right from the beginning. I went to the pharmacy and asked about the effects. She told me to just continue to take the medicine.
After the second refill I also have been having stomach pain that wakes me up from sleep. My neck seems to feeling worse. After reading all the other blogs I am stopping this drug. All of my joints are painful and also there is a lot of clicking!! I hope that it hasn't done too much damage.
October 15th
2009
12:16 AM
A friend of mine directed me to here. After reading all of the side effects I realized that a lot of what is going on with me is these bc pills. I knew that the cramping and bleeding was from the pills but I didn't realize that my spaciness and inability to focus has been the pills. I have been noticing at work that my employer tells me one thing and i do the opposite and I can't figure out why I am not on top of it like I usually am. My heart feels like it is beating faster and I find that I am anxious and always starving and having to eat a lot, which is not like me. Slight headaches too and slight muscle pain - can these all be from this pill?
I used to take Seasonale but my dr recommended this one because it is the generic brand that is way cheaper. But I never had the side effects from seasonal that I am having now. I just thought these side effects were just me but now I know it is the pill. I am definitely quitting these and get Seasonale again. This is crazy, these side effects!
I feel sorry for women who can't switch because they can't afford the more expensive one and they weigh the side effects against having horrible periods, moodiness...etc.It all depends on which side effects are worse, the pill or their monthly period.
We trust that our best interest is at heart, but it isn't. I can tell you one thing, if a man was the one who got pregnant, the pill would be perfected with very little side effects if any.
-- By michellemoquin | Reply | Private Message me
October 9th
2009
11:45 PM
Within 5 hours of first dose, I had "severe body aches" like those with the flu. My joints and muscles hurt so much that night that I had to call my parents to help me take care of my kids the next morning. I told the doctor who prescribed it, and he said to try to stick it out for the week...what horrible advice! Thinking it was crazy advice, I reluctantly took doses 2, 3, and 4 and experienced the joint/muscle pain each time, but I guess I just somehow tolerated it as if I had the flu. My hands became rather puffy as well. After the 5th pill, I woke up in the middle of the night with HORRIBLE joint and muscle pain, which was so awful that I could barely move; I was able to move a little bit, with extreme pain all over my body--particularly my knees, wrists/hands/thumbs, feet, and shoulders. I felt and heard unnusual snapping, cracking, and popping all over my body when I would move around at all. I stopped the med immediately, and noticed some improvement over the next several days. It has since been 9 days since the last dose, and I still have considerable pain in my knee, my thumbs/wrists, and arms. Unable to do my regular exercise, I tried gentle swimming and light water aerobics several days ago, but found even that to be too painful to do. I'm still unable to pick up my young children, drive without pain (mostly in right knee and muscles connecting to it, when pushing the brake) and am still somewhat limited in typical daily activities. Also, for the last 5 days or so, I've had a strange nodule present on a tendon in my thumb which has been hurting since taking the antibiotic. This has been a very frightening experience, to say the least.
-- By amyalison71 | Reply | (1) replies | Private Message me
October 7th
2009
5:48 AM
i have just been reading this site and god am i glad, i took Yasmin for two months and came off as my boyfriend said i was being really nasty, i was also suffering with side affects. But i spoke to the doctor and they said to try and last it out as i have skin problems and she said it would help, so i continued to take it. But within one week in taking it side effects seem worse!! I have now two days left and decided not to finish the pack. The side affects are scary i thought there was something wrong with me . They include ...
* Moodiness*no energy*Pale*tired*muscle pain in legs, arms, hands, neck and the bottom of my back*Very sore tender breasts*no sex drive*thrush & dryness*needing to wee more often*Strange heart beats*itching more often everywhere!!
And there are probably more, im just hoping i loose all the side affects as quickly as possible.
October 2th
2009
8:00 PM
I have been "sick" and in pain since taking Levaquin - first prescription before my sinus surgery in Jan. '09 and then again after the sinus surgery. I thought it was just taking me a along time to recover from the surgery for some reason but now as I read all the posts, I believe it was the levaquin. The joint pain, muscle pain, extreme fatigue continue to this date. I see the only lawsuits are for torn tendons but what about all of the other problems people are experiencing. Are we to live with this?
-- By franciek | Reply | (1) replies | Private Message me
September 13th
2009
7:47 PM
I had a bulging disk and a pinched nerve and was put on PREDNISONE - 60mg for 5 days, then 40 mg for 5 days and then 20 for 5 days. I had a round face to begin with, which I always hated, but now, my face just looks like a balloon that someone painted a face onto. I have a huge face, a double chin, huge stomach, I look 5 months pregnant and I absolutely HATE myself on this drug. I've been off now for a week and nothing has subsided except the sweats -- very embarrassing! I work and in the middle of a meeting, I sweat so badly that it rolls off my giant red face in rivulets. I'm just miserable. Does anyone know how long it takes to get rid of the side effects of this demon-drug?? I want to stay in the house and hide.
-- By mare826 | Reply | (1) replies | Private Message me
September 12th
2009
12:40 PM
I was give Levaquin when I had a Prostate Biopsy and had a reaction to it , Hives, muscle pain oral thrush ,I told the doctor about it so he gave me another anti biotic,CIPRO which made things worse, then I find out they are both from the same family of antibiotics, these doctors don't know what they are giving you and he said all that I should have gotten from them was a little stomach problem, Its two years now and I still have skin
problems, joint pain and pain in my neck amd the doctors say it can't be from the Levaquin, Well how come I was healthy until I took it
September 4th
2009
5:11 PM
The Health & disability commissioner in NZ has received my complaint of criminal negligence re my former doctor. They have now asked my former doctor for a please explain his version of events. The police have written to me saying they are seeking medical advice re criminal/negligence/failing to carry out professional duties complaint. Whilst I agree with everyone's feelings on big pharma, it is my very firm opinion that the doctor is the "retailer" and it is the doctor's direct responsibility to us the customer/patient to monitor and inform us of all safety concerns. Big pharma in covering their butts have warned the doctors to warn the patients. Of the 8 doctors including an anesthetist I have spoken with socially and in consultation, not a single doctor could name any adverse effects with statins beyond mild muscle pain. Given the warnings from pharma on the labels that is wholly shameful & negligent. An effective way to help others avoid being maimed like us, is to fight back from the bottom. The FDA and CARM in NZ take no notice, litigation is expensive and drawn out so neither really helps future innocent victims. I encourage everyone where negligence is fairly on the table to take your complaints to your country's police and medical discipline bodies enough of these complaints will soon have the doctor's "reading & obeying instructions" which would go a long way to preventing more tragic victims.
-- By oldcarpetcleaner | Reply | (5) replies | Private Message me
September 2th
2009
3:56 PM
As I read these posts I want to S C R E A M! This drug is like a slow death from Arsenic. If your Memory is impaired, it should be. It's listed as one of the side affects right inside the pamphlet that the Pharmacist gets. I have a Pharmacist friend and she read me, muscle pain, joint pain, muscle twitching and on and on. It's poison for sure and anyone on it should get off it ASAP. My husband's been off for one year next week and he still experiences mental sluggishness and cognitive deficits. So much so, he's retired because he could no longer do his job. It creeps in on you slowly, and insidious. When you start to notice, you're scared to say anything or you don't associate it with this drug. Guess what, the only drug he's ever taken. And, oh yeah, lead to depression. This is a centrally active Ace Inhibitor that cross the blood brain barrier and is literally poisoning you. Actually, there is a derivative from a Brazilian Pit Viper. Synthetic or not, it's poison. Get off people, get off. It will eventually affect your memory more and more until you resemble some form of dementia. Maybe that's why so many people are sitting in Nursing Homes with full blow dementia. The disease that caused it are the DRUGS you're taking.
Get off.
September 1th
2009
4:55 PM
I was prescribed Bactrim for MRSA on August 26th, (2) 500 mg pills twice daily for one week. My first dose was that night, and the following morning I woke up with a severe migraine, and eye muscle pain. Day two I woke up with the same symptoms plus mild fever and severe pain from my neck down my spine. I was worried it was meningitis. Went and had my abcess drained and told the instacare Dr. all of my problems I had been having, and that I wasn't sure if it was a reaction to the antibiotic, or something else. Every day I have woken up sweating from the fever, I'm sleeping horribly, and the aches in my head and behind my eyes are at times unbearable. I will take my last dose tomorrow morning, and hopefully all of the symptoms will start to disappear. I am generally a healthy person, and rarely even get a cold, but this drug has really done a number on me, I haven't not felt these types of symptoms all at once before.
-- By sput_nick | Reply | Private Message me
August 27th
2009
12:50 PM
I began taking Levaquin for a kidney infection. After the first pill (500mg) I had insomnia, joint pain and a little under the weather. I thought maybe it was a combination of the pill and still having the kidney infection. I figured the infection wasn't gone because the first med, Sulfameth/trimethoprim 800/160 I had a reaction too also. That was prescribed for 10day when I only was 4days into it with that pill. So I went from Friday to Monday without any medications. I felt that the kidney infection was still there because I was still hurting, not as bad as when I went to ER but knew it wasn't gone. So Monday night I started taking the Levaquin. Felt bad after the first pill but after taking the 2nd pill I became very weak, had ringing in my ears, eyes started to swell,had sweats nausea, stomach hurt and became very bloated, neck pain so bad I could hardly turn my neck. Pain running down into my shoulder blades, jaw pain, sore throat, nausea, felt like someone was squeezing muscle in left arm and squeezing muscle on left side of neck Started to have some muscle pain in right calf. Call Dr. on call and he said STOP taking the medicine, take some Benadryl and if gets worse go to the ER. Well, I took some Benadryl which made it seem a little better, but this is the day after and my muscles by my shoulder blades are so sore and have a burning sensation. I still feel somewhat weak but not as bad as last night. Seems I tired out real quick. This medicine made me feel like I was on the way out. I was prescribed it for 7 days and only took it for 2. Now I am very hesitant about taking anything as I have had reactions now to 2 different meds. Still don't know if kidney infection is gone or not. Does anyone know of any natural ways to rid yourself of kidney infection? I would appreciate any advice anyone has. All I know this has been 2weeks of @@@@ since I was diagnosed with this kidney infection.
-- By bowler | Reply | (1) replies | Private Message me
August 23th
2009
7:33 PM
Hi All,
I am so glad that I found this group of postings. For the past 5 days I have been experiencing muscle pain which began on the inside of my left knee day 1. On the second day I had significant pain in both calf muscles as if I had begun a new calf workout routine(I haven't) as well as pain in the large back muscle that runs down either side of the spine. Day 3 I noticed serious pain in my forearms and wrists. The forearm pain is causing hand cramping and my thumbs don't seem to function properly. I tried to sign a credit card receipt today and could barely grip the pen. I now have pain in my neck muscles as well.
I know I have taken Levaquin in the past 6 months, I am just not exactly sure when it was. I am definitely going to research that. I went to the Dr. yesterday to discuss my muscle pain. He took 2 viles of blood. He said he is going to check for Lyme's disease and other infection. I am hopeful it is not something serious. I must say thought, many of the posts above sound a lot like what I am experiencing. I am going to be beyond angry if I have a permanent condition from taking Levaquin. Some pain I believe I can deal with. It is the current poor function of my hands I am most concerned with.
I wish all of you the best in recovering. If my condition turns out to be something else I will repost.
-- By scoot84 | Reply | (1) replies | Private Message me
August 22th
2009
1:17 PM
I started taking this drug about a year ago, for high cholesterol, I experienced muscle pain, night sweats, and fatigue, I did not associate it to the drug, I am on a cane I thought that was the reason for the arm pain and the other symptoms to menopause. It eventually stopped, but would return. We went on vacation and I forgot my meds and everything subsided, I started taking the Simvastatin when I returned home and my night sweats, fatigue and muscle pain returned. That is when I decided to look it up on line and found this site. I am going to stop taking it for now and see my doctor next week. Thanks for all the info.
-- By jaziyana | Reply | (2) replies | Private Message me
August 20th
2009
4:22 PM
I have been reading all of your Simvastatin experiences with high interest and would like to share my adventures with all of you as well. My story began seven years ago when I was relatively healthy and enjoying life. My doctor prescribed Lipitor for my elevated cholesterol and two months later I found myself in the emergency room after having a severe bout with vertigo for the first time in my life. I have since spent the last seven years fighting this debilitating illness which continues to haunt me after having seen every top neurologist in my area and having taken every neurological test available. It would be as difficult to convince me that I was not somehow "poisoned" by Lipitor as it was for me to convince my doctor.
I was eventually prescribed Simvastatin 40MG and seemed to stabilize for a few years even though my dizziness problems persisted. Suddenly I began experiencing bouts of upset stomach and severe lower abdominal pain. I allowed my doctor to order basically every nasty test known to man in an effort to discover the cause of this new problem, but all have come up negative so far. Eventually I began to experience total exhaustion in the middle of my work day, not to mention the back, neck, and muscle pain that has been described so vividly in this forum. Basically, I have become a 53 year old man who feels much older, has absolutely no energy, and rarely has a day when I can honestly say I feel alive and well.
I am not a doctor and I can't honestly prove that Simvastatin is the cause of all of my problems. However, I do have common sense and after reading all of your thoughtful comments on the subject I would be foolish to at least not suspect that the drug may possibly be making me less healthy and not more healthy. Thank you all for opening my mind to this possibility and I certainly plan on discussing this with my doctor very soon, who may no longer by my doctor should he continue to insist that I take this nasty drug.
-- By dizzyguy | Reply | (10) replies | Private Message me
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November 15th
2009
10:24 AM
I had my 1st child in March of 09! Before I had my 1st child I had been on Birth Control for 8yrs and it worked great. After have my baby I decided to use Mirena so I wouldn't have to remember to take a pill everyday and now that I am chasing a baby I can't remember anything when it comes to myself. I thought that I was just going crazy or just creating these side effects in my mind but after doing some research and finding this website it has confirmed what I have thought all along the Mirena is causing A LOT of problems for me. I have acne that never goes away, blurred vision(before I got Mirena I wore glasses just to see things far away when I drove or when I was reading really small print and now I can not even see with my glasses), I feel sick to my stomach all the time through out the day and I even get sick sometimes a couple times a week, I have constant abdominal pain, lower back pain, joint and muscle pain, I have constant infections that will not go away with meds, my breasts are tender, I have dizzy spells several times a week, I have really bad mood swings its like I hate the world and I use to not be like that, I am totally exhausted to the point where it feels like pregnancy exhaustion and for all women who have had children you know there is nothing like pregnancy exhaustion. Also I have pain during and after sex. I haven't lost my sex drive and I haven't gain a bunch of weight but I haven't been able to lose all of my baby weight either and I have tried like HELL to lose my baby weight.
-- By aba_326 | Reply | Private Message me