Myomectomy symptoms and conditions

I went from a rational non-emotional women to a crazy person!!! I feel awful. I would rather have pain than feel this way. I can't sleep though constantly fatigued. Achy body, headaches. Everything tastes like cardboard so I'm not eating well though I have gained a few pounds. I am severely emotional. I almost left my husband this weekend whom I adore, can't stop crying, very depressed and irritable. I want nothing more than to be alone and sleep, which no one can live that way. I am a mother of 3, a wife, and have a full time job. I can't function properly. I will never undergo hormone treatment after I get through this! I am currently on Lupron, just had laporoscopy 2 weeks ago for the 5th time all for endometriosis and I'm only 25. I started Premarin today to assist this anxiety and mood swings. Wish my family and I luck.

I am 30 years old and have been put on Depo Lupron after a laproscopy to help with endometriosis. I am 2 months into a 6 month course (one shot every 3 months) of Depo Lupron and my life has drastically changed. I started feeling life altering hot flashes and night sweats two days after the first shot and nearly drown myself in sweat 24 hours a day. I experienced a little postpardum depression after giving birth 6 years ago but have found myself sunk into a sinking hole of depression and anger like I've never felt before. I bawl at McDonald's commercials and become enraged if the dishwasher isn't loaded properly! I am ecstatic one minute and severely depressed the next. I have even had thought of suicide since being on this shot. I am normally a very outgoing, athletic, cheerful, happy person - but since taking this shot, I have become a stanger in my own head. I tell my family all the time that I need to "go stick my head in the freezer" to cool off because of the horrific hot flashes. I have to carry a handheld fan with me 24 hours a day and sleep with ice packs to keep cool. Since the shot started 2 months ago, I have lost all sexual drive, am thoroughly exhausted by 9am and find myself crying at my desk at work by late afternoon because I am so tired. My family thinks I am going crazy and I've never fought more with my husband. My daughter has gone to grandma's for awhile because I'm just so tired and irritable that I feel like an awful mother. Migraines have also come full circle since the onset of the shot as well as blurred vision and shaky hands. I'm a little achy throughout the as well. I know that everyone responds to medication differently, but I'm finding a lot of people with the same side effects as myself and have to wonder why the doctors don't warn patients about these types of problems before prescribing medications such as Depo Lupron. I don't think I'll be going back for the second shot. Could it get any worse?

I have taken Lupron injections for almost a week now. Me, and my husband are focusing on the end result...the baby. I am different than usual(as far as mood swings), but it is comforting to know that it will change here soon. It's also helpful to read other's issues with the drug, so I know I a not the only one.
Yesterday, my girlfriend came over to visit...I was crying uncontrollably....which I never do that! I also get VERY snappy with people..especially my husband. I am mad so much more and more intensely

I took one injection of Lupron for fibroids in Nov. 2001. It totally changed my life, I am no longer the same person I was before. It started with severe migraine headaches for 14 days straight and attacks of nausea, lack of appetite. I used to have a strong stomach - now I was very easily nauseated. I never went for the second shot. I began to have panic attacks regularly (I had not had them for over 20 yrs). I was tired all the time, and a person who used to work out at the gym 5 days a week - eventually I quit. Now I just walk. I feel about 65 yrs old (I am just 49). I look old, my face began to droop, my hair thinned. I had bouts of depression coupled with general anxiety. My migraines worsened. My sex drive dropped to zero, I feel almost "sexless". I used to be confident, now I was afraid of everything. I now suffer from irritable bowel syndrome - with bouts of diarrhea, bloating and severe gas pains. I have trouble eating sometimes.. I have had all the tests and no one can find anything wrong with me,and none of the doctors think all these problems are due to Lupron. But, I know - I was NOT like this before Lupron. It ruined my life. I just wish my doctor would have informed me of all the terrible side effects - she only told me about hot flashes. I looked into suing her for malpractice but the lawyers said they could not build a case with no real medical evidence that my symptoms are caused by Lupron. I just wish I had known then what I know now. I tell everyone - NEVER take Lupron. Six years later and I still feel like this. Oh what I wouldn't give to have not taken that drug.

For the first time since my doctor perscribed Lupron for me, it has been terrible. The heavy bleeding, the anemia, the hair loss, the aches and pains, the headaches. I never had this problem in times past when I've used this before and it did not affect me to this magnitude. I have a history of endometriosis and fibroids, with 7 "lap scopes" and a myomectomy. I cannot explain why I've had such a terrible time with the injection this time.

I definitely had vision problems. For a couple of weeks after my second shot, my vision seemed as though my eyes wouldn't focus correctly.

After cosulting my eye doctor I decided I would try lubricating drops. I used the drops constantly and it helped a bit.

The worst problem I had was that I lost feeling in my hands for few months. It was terrible. I couldn't really use them. I dropped stuff all the time. Then I had 2 MRIs to determine whether or not I had MS. It's been 2 years now since my Myomectomy and my symptoms are now pretty much gone, but it did take over a year after the surgery for everything to dissapate. My advice is to just be certain that the Lupron is necessary. It definitely has undesireable side effects that can linger for a long time. Good luck to all!

I had my last of 3 Lupron injections in March of 2003. I am still having mild symptoms that I think are the result of the medication. Initially the Lupron wasn't really a big deal. I had blurry vision/dizzyness for about 2 weeks during the 1st month, but I didn't have hot flashes until the 2nd injection and thought it was going to be a breeze to get through. We all read such terrifying things when researching Lupron and I did the same.

After my Myomectomy which was in July of 2003, I began having much more dramatic symptoms. I eventually lost all sensation in my hands, had swelling in them and couldn't really pick things up or type at my job nor wear my wedding ring. I had traveling parasthesia throughout my body, in my arms, legs and feet, but the worst was my hands. The parasthesia lasted until about December of 2003. I still occasionally have the same sensation in my arms or legs but my hands have finally returned to normal.

I've had 2 MRIs in hopes of ruling out MS (parasthesia is a very common side-effect of MS) but am stilling working with a neurologist based on the symptoms I've had. Doctors aren't convinced of the strength of Lupron. I still think that the Lupron caused these symptoms but there is no way to prove it.

Anyway, my advice to current and possible Lupron users is to, as strange as it seems, stay positive. It is hell during and unfortunately can stick around for quite a long time, but I am finally starting to get rid of the symptoms I've experienced, and I have tried to keep a positive mental picture throughout. I really thought I might never be able to use my hands again, it was very scary, but things are very gradually getting better.
It took me about 6 months to have a regular cycle again, and I now believe that our hormones are powerful! I think it just takes a while for everything to return to normal.
Good luck!

My Lupron experience has been mixed.

I had 3 Lupron injections--7 months worth of the drug--before my November 2003 myomectomy for a grapefruit-sized fibroid. I consulted 4 doctors (including a family member) before taking the Lupron plunge, and opted not to read too many scare stories online. I'm 32 and I want very much to have children, and everyone told me that my surgery would be most effective if we could use Lupron to cut the blood flow to the fibroid. The good news is that it seems Lupron (and a very good surgeon) did the trick--my surgery was without complications and declared a success. (Now we just have to get me pregnant!)

Now I'm just waiting for the effects of Lupron to go away. I had my last (3 month dose) shot in September 2003, and my most severe symptoms were in the weeks after that shot--especially severe and frequent hot flashes, night sweats, the works. For the entirety of the injection, my libido was utterly shot. For me, these were all annoying, but not unbearable. I figure it's just a taste of what's to come when the real menopause happens in another decade or so.

Post-Lupron recovery:
The hot flashes finally went away about 5.5 months after my last shot, and I've been gradually feeling more and more normal, though my libido is still not back to normal. Most worryingly, and this is why I'm writing today, is what happened to me this last week. Noone ever seems to write about the hormonal hell that your body goes through when it's trying to return to it's pre-menopausal state. I'm 90% sure that my symptoms are in fact attributable to these hormonal fluxes, and not to something worse (like abdominal adhesions from my surgery).

Three evenings ago, I got extremely dizzy and nearly passed out. It took me over 20 minutes to get back to my office, since I was so dizzy (loss of vision, balance, and nauseaI had to sit down three times in the couple dozen yards. I also had a pain in my abdomen. I barely made it the final steps to my office, where it took me at least 45 mintues to get to the point where I could make it to the car to go home. I had strong stomach pain, tingling hands, and gradually decreasing dizzyness. At this time I also noticed that my entire abdomen was very swollen. While the other symptoms have not returned, I have continued to have a very swollen abdomen, which has been very tender to the touch. I have been unable to walk at my usual vigorous pace, and have spent much of the last 3.5 days sitting quietly or lying down. The whole experience has been very frightening--and NOTHING like any PMS I have ever had before. But then again, I've never been menopausal for a year before!

So, I'm writing this post so that others might be aware that the hormonal changes the body goes through while getting OFF Lupron can be even more severe and frightening than the ones you experience going ON the drug.