January 9th
2009
2:47 AM
Thank God for each and every one of you'll who posted!! I am a 31 year old female who has consumed this poison since March 08. My PCP had started me on the Lisinopril 40mg and eventually increased it to 80mg per day.
OCTOBER 2008-
I begin having "flu like" symptoms which I started taking over the counter medicine for.
NOVEMBER 2008-
I was becoming worst so I went to my doctor (the one who prescribed this mess) and was told it sounds like bronchitis so she prescribed a "z-pack" (which is a 5 day course), "cough syrup", and stated to "quit smoking".
FIVE DAYS LATER-
I went back to my doctor with the same complaint chronic cough and now shortness of breath. I was told that since the "z-pac" didn't work it may be "asthma"!! SO of course I was prescribed more drugs one being one called "Augmentin" (which is a 10 day course), and an inhaler now for asthma!! I was ordered to have a "chest x-ray", and another script for more cough syrup with codeine!!!!
SEVEN DAYS LATER I WAS IN THE ER-
I felt as if I was dying! I was so scared and did not know what to do. I couldn't even go to work all I could do was cough, gag (sometimes vomit), and gasp for air!! I knew something was terribly wrong. The chest x-ray was clear other then a small amount of inflammation. I was prescribed yet more pills this time a 5 day course of "steroids" for the inflammation, more cough syrup, and was told I didn't need the inhaler!!!
1 WEEK LATER IM STILL COUGHING-
I was beginning to think that this condition was smoke related and begin to feel depressed as if my life was over. I decided to quit smoking as of 12/19/08, however the gagging cough and shortness of breath is still present.
I GOT A 3RD OPINION
I went to an internal medicine doctor (just 6 days ago) who stated that it appeared to be the Lisinopril the whole time and to stop taking it immediately. I was prescribed a medication called "Diltiazem" generic for " Tiazac" but the insert mentions cough as a possible side effect for this medicine as well. I am to weak, broke, and cautious to take another one so quickly. I'm still coughing as I type this!! I think I will just stick to my fluid pill and a better way of living before I continue to put this stuff in my body. To sum up this whole coughy blog, please, please think twice before taking this or any other medicine, trust me it will save you a lot of health problems and medical bills. And finally if your doctor wont listen, don't hesitate to get a 2ND OR EVEN 3RD OPINION IF NEEDED!!!!!
January 2th
2009
10:11 AM
I would like to know who is NOT experiencing side effects from Singulair.
We are not.
My 7 years old started Singulair three months ago because of allergy issues. She had asthma attack every other week, running nose all the time, she was so miserable, she missed many days of school and she couldn't exercise .Since she started to take SIngulair her allergy improved, no more asthma, no more running nose. SIngulair did not change her way to be. She is doing very good in school (she is above the average..) she does piano, ice skating, she is purple belt Tae Know Doe, speak two languages, she is doing great in everything. Of course she has her "bad moments" but which child does not?
I tried homeopathy, but it did not work, she got worst and worst. I was supposed to give SIngulair to my daughter a year ago, I did not because I was afraid of the side effects. But I wished I had started before because I could have avoid so much steroids since she had asthma most of the time. The doctor convinced me to use this medicine when she said " You think SIngulair has side effects, yes sometime it does, but do you know the danger of using steroids so frequently in a little body?" Then I thought I had to give a try. I am glad I did. Of course I keep watching my daughter behavior closely and reading all the possible side effects of this medication. I forgot to say that beside singulair my daughter is also taking Pulmicort, two puffs once a day.
December 31th
2008
10:31 AM
I have been taking Nasacort for only a week. I developed a rash on my forearm 2 night ago and decided to stop taking the Nasacort and Amoxicillin. I noticed last night that I couldn't taste my food. I could only sense the saltiness. PLEASE LET ME KNOW IF ANYONE HAS REGAINED THEIR SENSE OF SMELL/TASTE. I'm in the restaurant business. My sense of smell and taste is my livelihood.
-- By jkinney | Reply | (2) replies | Private Message me
December 13th
2008
9:24 PM
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.
Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!
Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).
There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.
BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
-- By nomeds2 | Reply | (5) replies | Private Message me
November 20th
2008
8:33 AM
could anyone tell me if claritin is the same as singulair or what i could give my child that would help with the allergies/stuffy nose she was on singulair and was taken off
-- By jodyehlers | Reply | (4) replies | Private Message me
August 29th
2008
11:56 PM
Please add me to the list of people with an extremely adverse reaction to Singulair. I had been taking 10 mg Singulair since 2005 after sinus surgery In June 2008 after returning from vacation I didn't get my prescription refilled in a timely manner and went without it for ~one week. In July I got a new prescription filled for Singulair and also began taking Advair Diskus 250/50 and AllegraD after an increase in asthma symptoms. I first thought the anxiety attacks were from the AllegraD as the "D" is for decongestant and contains psuedo-epinipherine. But the anxiousness continued and got worse after stopping the AllegraD. I then stopped taking the Advair (and also a nasal spray that I use called Flonase also since 2005) but was still in a major depressive episode with daily thoughts of suicide. It wasn't until I stopped taking the Singulair on August 23 that I started to return to normal. My normal does include a history of depression for which I take 10mg Paxil daily. Like the post from the psychiatrists wife noted, I am not sure if there is a direct scientific connection between these events. I do know that I never want to go back to that place I was in. I am shocked at the speed with witch I started to feel good after stopping the Singulair. I still have low grade sad feelings but I have stopped planning my own death. I always took my dose of Singulair in the morning and ~one hour later would begin to feel anxious. My evenings were tolerable with emotions slightly better. I simply stopped taking the medication without tapering and I am beginning to deal with what happened to me. Thank you all for sharing. Thank you.
-- By megs153 | Reply | (1) replies | Private Message me
July 18th
2008
8:39 PM
I began Doxy in Sept of 2007. The first week into it I noticed the roof of my mouth felt strange, kind of rough and sore. I attributed it to the drug and figured it would go away once I was off of it. I began to get a very sore tongue which I attributed to candida....it was a little white too. I was on the drug for five weeks and the mouth symptoms never went away, just went on to become a chronic burning tongue and mouth. Scalded feelings in the mouth as though I had slurped boiling hot coffee. Also, noticed I began feeling very tired and melancholy on the drug....those symptoms have never really gone away. It's been nearly a year and I have tried multiple remedies for my mouth and nothing helps. Has anybody else had the burning and inflammation feeling in their oral cavity. It shows no outward signs.
-- By rmorita | Reply | (1) replies | Private Message me
June 29th
2008
3:07 PM
Hello asthmatics,
I've taken Advair for about 10 years and have had a problem with bone and muscle pain since I've been on it. I started taking it because it was the only med. that enabled me to breathe, as I have severe asthma. Back in the day before Advair, I used nebulizers all the time. After reading the side effects of Advair (decreased bone density), I realize I need to stop taking it. I take a calcium substitute every day and this helps to eliminate the pain, but I feel like I have the body of a 90 year old and I'm only 24! Screw Advair, I don't need to mess around with bone density issues! I wish my doctor had told me that, or I had thought to look it up years ago. Only recently have I eliminated all other Rx drugs (except the occasional nasal spray) as well as most everything over the counter. I hope I'll still be able to breathe without it! If not I'll just have to find something else to take. Any thoughts on Intal? It seems like it might have less side-effects. Take care and good luck to all.
-Ange-
May 29th
2008
3:00 PM
In November, 2007, we moved to a new house. I immediately developed a terrible cough, which I attributed to new house construction dust, plus I had started spending 4 days a week at our cabin in the woods, which tends to be damp and moldy. I just figured my allergies were really kicking in. The doctor treated me for a "sinus infection" with antibiotics and codeine cough syrup. Over the next three months, with no improvement in the violent coughing spells, the doctor ran me through 2 more rounds of antibiotics, plus 2 rounds of steroids.
I sing in a competitive choral group and were preparing to travel to Italy for an international choral competition. The terrible coughing was really messing up my rehearsals and the concerts that we had to do prior to leaving for Italy. Since November, I've probably been through 6-8 bottles of Tussionex. That is the only relief I can get from the cough, especially at night, and for concerts. I know the druggist has me on a list somewhere as an excessive cough syrup user.
Then my doctor sent me to an allergist, who administered the 80 pin pricks, concluding that I'm allergic to grasses, dust, mold, summer trees, etc. So she started me on nasal spray, fexofenadine, and singulair. AND weekly allergy shots.
Anyway, it has been CONSTANT COUGHING since November. When I went back for my 2 month check up at the allergist, I told her my symptoms had not changed, still couging, coughing, coughing. She looked at my chart and said, "You know, I see that you take Lisinopril. That can sometimes cause cough." She asked when the coughing started, and when I started taking the drug. NOVEMBER, 2007 was the answer to both questions. YOU ARE KIDDING ME!!! AFTER ALL I'VE BEEN THROUGH WITH THIS, WHY DID MY REGULAR DR NOT SUGGEST THIS?????
Needless to say, I've quit the Lisinopril, then my regular doctor put me on Tekturna (which also has cough as a side effect.) I'm going to quit all of them for a while and see if the cough stops after all this junk is out of my system.
It has been a nightmare!!!
-- By beth_m | Reply | Private Message me
May 19th
2008
2:43 PM
In September of 2007 my then 13 year old daughter was put on Singular for mild asthma. At the time she was a straight A student, vice president of our school and a popular girl who's guidance counselor described as "the glue of her grade" because she was so well liked. In November she told me that she was struggling with advanced Latin and Science. She asked to drop down to on grade Latin so we did. In December her science teacher notified us that she had a C average. She told me that she thought she had ADD/ADHD and she couldn't keep up. At the same time she was having a lot of problems with friends at school and we just attributed it to being 14. 3 weeks ago we discovered that she is significantly behind in English and it was then that she told me that she is been having horrific night mares. She said that they usually involve someone killing her or her killing herself. She said that they were so graphic that she couldn't repeat it out loud. She also said that she would feel waves of anxiety that would come over her at school and she would act "witchy" to the kids in her class for no real reason. She said that sometimes when she is trying to do her homework she will read the same passage for 2 hours and still have no idea what it's about. She also said that the suicidal thoughts from her sleep happened during they day and that she had thoughts of her harming herself. Fortunately her pulminologist told us that this may be caused by singular and we immediately took her off of it which was 2 weeks ago. She has only had 1 "bad dream" not even a nightmare since. She had one anxiety attack 3 days after she was off it and she describes her moods as the "cloud lifting....slowly". Now, we have to pick up the pieces. Her grades have suffered, her friendships have suffered and most of all her self esteem is very low. I'm grateful that we found out the cause but I feel as if my daughter lost a year of her life and I worry that because Merck won't admit there are side effects we can't find out how long it remains in their system. Is anyone else concerned about the long term affect and has anyone pursued a class action suit to try to get this drug tested properly?
-- By maryfromct | Reply | (10) replies | Private Message me
May 15th
2008
10:20 AM
I live in the UK and have suffered terribly with Hayfever since I came back from a Holiday in Greece in 1994 , having tried every single medication possible my doctor tried as a last resort Kenalog.... within 20 hours my eyes were clear, stopped sneezing and was able to breathe!! Fantastic, have never had any side effects with Kenalog however about 4 years ago 2 of Docs in our Practice refused to give it and that year was Horrendous, however I spoke to the third Doc in our practice and he said he had absolutely no problem giving it as it gave so much relief to so many people so started on it again, once again no problems and complete relief from all Hayfever symptoms. However we have now moved from Cleveland to Lincolnshire and my new Doctor wont even discuss it, all he's said is you can have 180mg Telfast , Loratadine or a Nasal Spray all of which have had no effect in the past, absolutely gutted. Does anyone know of anywhere in my area that still prescribe Kenalog or could i obtain it privately?
mitch
-- By maverick | Reply | Private Message me
May 7th
2008
10:41 PM
My 4yr old son has been on allegra for 2 yrs now and it seems that it wasn't doing much anymore. so our doctor prescribed Singulair. He gave us a two week trial to see if helped. Well!!! Our once happy go lucky 4yr old is now very emotional and gets upset very easily and can't stop crying ( even says he can't stop crying) when he gets upset. He is unable to console rationally when he is worked up. Today was the last dose of the two week trial and I after reading all this, it was and will be his last dose...
Parents beware of Singulair
I would two to one rather chase him around with a tissue.
April 12th
2008
12:16 AM
the day after I used NASONEX nasal spray I started to feel like an increase in pressure on both of my ears. I just kept of swallowing believing it might just be caused by pressure which can be relieved by doing so. Then I noticed that my voice sounds like a robot voice, my hearing suddenly got worse which was so noticeable to me,though currently I am using hearing aids on both of my ears, it was so abrupt that in a matter of 2 nights of using NASONEX NASAL SPRAY it is so hard for me to hear somebody in front or near me even when I am wearing both of my hearing aids.I started to have these symptoms the day after using NASONEX NASAL SPRAY. I have been using loratadine and I don't know if it has any drug reaction with it.
-- By reygmendoza | Reply | Private Message me
March 31th
2008
9:58 PM
I've been having ringing in my ears (tinnitus) which started at about the same time I started taking Lisinopril. Has anyone else experienced this side effect?
-- By nancya | Reply | (13) replies | Private Message me
December 11th
2007
4:04 PM
I am SOOOO glad I found this site. My daughter is 6 years old and has been on Zyrtec on and off since she was 18 months old. About two years ago we added in Singulair. Two weeks ago she was diagnosed with ADHD and Oppositional Defiant Disorder and they want to start her on meds for that. I got to thinking about when all her behavior and academic problems started and it was shortly after we started the Singulair. Before the Singulair she was a brilliant, outgoing, well-behaved happy little girl. Now she has trouble remembering short and long term, trouble concentrating, extremely fidgety, impulsive, can't complete anything she starts, extreme persistent stomach pains, diarrhea, occasional vomiting, and extreme frustration. I stopped both the Zyrtec and Singulair 4 days ago and am now reconsidering any meds for ADHD. I am going to wait and see how she does without Zyrtec and Singulair in her system. I am excited to see if there is an improvement! I had no idea these two drugs were so dangerous!
-- By racheldean6461 | Reply | (3) replies | Private Message me
November 14th
2007
1:08 PM
I took this yesterday after suffering with asthma problems off and on the past couple of months. After two trips to the doctor, the final consensus was that I had a sinus infection, and that the continuous dripping into my chest was causing the chest congestion.
Anyway, within one hour of taking avelox, I had a full-blown anxiety attack ....I was dizzy, lightheaded, my head felt like it would explode, had diarrhea, couldn't breathe, and thought I was dying. I almost called 911. After about 4 hours of this I took half of a 1 mg lorazepam pill to calm down. I continue to feel completely unwell all evening, shaking and anxious. I finally took a hot bath, and a full lorazepam, which allowed me to sleep. I am telling you that the whole afternoon and evening was a harrowing experience. I am also wondering if the side effects were exacerbated by the Astiliin (nasal spray) I took, since this morning that drug made me feel extremely groggy and tight in the chest.
I will NEVER take this drug again,and now I am so afraid that I am scared to take the zithromax the doctor prescribed in place of Avonex, even though I have used zithromax in the past with no side effects.
At this point, I am ready to consult a naturopath or acupuncturist to help with my condition - most of these new-fangled drugs seem to cause more problems than they "cure".
November 1th
2007
5:55 PM
I had gotten Mirena a while back.(maybe 2 years ago) Everything seemed fine to me. But then I started getting really sick, and getting headaches. It was the strangest thing. It seemed like every weekend, there was one day where I was so sick that I couldn't get out of bed. I was throwing up at least 5 times a day, and couldn't eat or drink anything without it coming right back up immidately. All while having an awful pain in my lower neck area, and was very sensitive to light. It was horrible and very stressful, being the mother of a young child and sick almost every weekend.
I went to my doctor, after suffering through this for many months, and she told me I was having migraines. I had no idea because I had never had one in my life, prior to getting mirena. She gave me a perscription for migraine medication. My nausea was so bad that I had to get a nasal spray version of the medication, because I would throw up the pills before they got a chance to work.
So... months went by... I was waiting for things to get better. They didn't. And I got the mirena removed, and went back on the depo shot (only to gain 20 lbs in less than a year)
Now here's the strange thing. The nausea stopped (which is fantastic) but I haven't been using mirena for about a year now, and I still am getting the migraines. They aren't nearly as otfen, or as severe, but when I do get them, they are bad enough that I need to take my perscribed medication to make them go away, and take a really long nap in hopes that it will be gone by the time I wake up. I can't go to work, and I have to keep the lights off in the house until it goes away, and my poor son is looking to play with his mom, and all she can do is sleep.
Why is this?
How can I still be having side effects from something that I haven't used in almost a year?
Will this go on for the rest of my life?
Am I the only one that this happened too?
I really need some answers...
It's too bad that I had these side effects, because I would have loved to continue to using it. So if you are looking into this product, keep in mind that it hurts to get put in... but it works great IF you don't get painful migraines and spend a whole day throwing up stomach acid. It's your choice.
-- By lulladie | Reply | (3) replies | Private Message me
September 26th
2007
9:18 PM
addiction
I can't sleep without using this drug but as nasal spray
August 20th
2007
9:40 AM
I took the horrible drug for five weeks. I have been to the doctor 3 times. They gave me anti-biotics and said I had brochitis. I have a terrible sounding cough and mucus, I missed over two weeks of work and sent alot of money on medicine. I stopped taking Lisinopril 10 days ago, I feel better but not 100%. My doctor says that if will take a while for the cough to go away. I so mad because I really believed I was dying and took chest x-rays and a TB test. My boyfriend has been giving my dirty looks, and guess he think he going to catch somethimg This medicine has ruined my summer and my vacation, because I'm afraid that I will gave a coughing attack so I stay close to home or if I do go out I keep cough drops and cough syrup in my purse. I feel like a drug addict.
-- By krice9999 | Reply | (5) replies | Private Message me
August 18th
2007
8:10 AM
Glad to find your site. I have been on Lisiopril for 2 years (ever since my Insurance stopped paying for my Aceon and I had to have a substitute drug for blood pressure control). I have had increasing cough and horseness for the past 12 months to the point that I now have 24 hour symptoms! I also have been having leg cramps at night the past few months.
I will stop Lisinopril TODAY. Plan to monitor my blood pressure and see what happens. Does anyone see any problem with doing this?????
August 1th
2007
9:12 AM
I had a shot of Imitrex in the hospital for a migraine and it made me feel like my head was on fire!!! I hated it so much. They gave it to me as a perscription in pill from the next day so I thought maybe since the other one was a shot this wouldn't be so bad. I took it with my husband home because I was afraid to take it alone. I felt fine for the first 10 min then my head started to burn and my whole body started to ache and I could not fall asleep it was horrible!! It got rid of my headache but I rather have the head ache than having my body feel like its dying!!
-- By tiffany13 | Reply | (1) replies | Private Message me
July 9th
2007
1:37 PM
I have been on topamax for almost a year now. I had been having a nearly constant migraine cycle for three months which had to be broken with migranol nasal spray. I then started on escalating dosages of topamax. By 100mg I realized that life was wonderful but that I couldn't retain much information which was a problem as I had just gone back to school for an advanced degree. Upon consultation with my doctor, we reduced my dosage to 50mg and things improved dramatically.
I have experienced some fingertip and toe tingling which have been completely tolerable. I take the medication right before bed so that I don't have problems with fatigue during the day. I do get out of breath easily when I exert myself and carbonated beverages taste horrible. But my migraines are under control.
I have a Ph.D. in molecular biology and a few years of neuroscience research under my belt. I would like to say that it is EXTREMELY important for people to understand that no medication is going to work identically for any two people. What works for one person, may not work for everyone. I know people who swear by imitrex but this medication does absolutely nothing for me. You have to be your own advocate when it comes to medications and treatments. Your genetics will also determine how well, if at all, you respond to any medication. For some topamax is a life saver, for others it will be the bane of their existence. This will always be the case for any medication. Be tolerant of others' experiences and understanding of each others' pain and progress will be made.
-- By biogoddess | Reply | (3) replies | Private Message me
June 15th
2007
10:47 AM
I think I maybe just figured out the answer to these symptoms you guys are describing, with mood changes and nightmares?
From Merck Frosst website:
The team finally chose quinolein as the basis for their compound, because it has affinities with the LTD4 (leukotriene) region.
Quinolein - elsewhere it has been listed as a seratonin inhibitor...
Also, is Quinolein related to Quinine (a malarial treatment that causes nightmares and psychotic symptoms?)
What do you all think?
-- By curious55 | Reply | (3) replies | Private Message me
March 10th
2007
12:04 PM
I am 21 years old and have two children, I have been dealing with endo for about 3 years now, I have tried it all, I have used every type of birth controle there is out there, I have had 3 laprascopic surgeryies to try and remove it, I have tried hormone pills, a lupron nasal spray, and now the lupron shot, this is my last resort short of a hystorectomy.....the endo pain is truely unbearabel for me....but since getting the lupron shot I have had hot flashes, mood swings, bone and joint pain, migrains, night sweats, memory loss and a rash....I hardly can work because of the side effects and am on the verge of losing my job, mostly because I have so few "good" days since starting this shot about a month ago, my fianc'e and I argue alot now....mostly because he doesn't seem to be able to understand what I am going through.....if you are going to be put on any hormonale therapy please just make sure you do your research....I am also taking the add back therapy which seem to be of no help.....good luck...
-- By mommy422005 | Reply | Private Message me
Singulair (12) Lisinopril (6) Imitrex (3) Kenalog (3) Oxymetazoline HCl (3) Advair HFA (2) Nasacort (2) Nasonex (1) PredniSONE (1) Avelox (1) Naphazoline HCl-Pheniramine Maleate (1) Topamax (1) Doxycycline Hyclate (1) DDAVP (1) Lupron (1) Oxytocin (1) Levaquin (1) Fosamax (1) Mirena (1)
October 9th
2009
6:55 PM
Caused my heart to go into atrial fibrillation (A-Fib) and I had to be hospitalized. I used the nasal spray before going to bed and I would wake up with my heart going crazy.
-- By cg7033 | Reply | Private Message me