June 15th
2009
10:16 PM
My 11 year old step-daughter has been on Singulair for 3 years and has had trouble sleeping - waking up 8-10 times nightly, sometimes with terrible nightmares as listed on some of the other posts. Thank you so much for sharing this info. We took her to an ENT today and the only thing they offered was to take out her tonsils and adnoids but the were basically normal - all they wanted was money the way I see it. We are taking her off all her meds tonight; she also takes Asmanex, Nasonex and Allegra.
-- By evie0727 | Reply | (1) replies | Private Message me
May 24th
2009
3:51 PM
Wow! My husband and I have thought recently maybe I should stop using Zyrtec. Maybe it is causing my lethargy, weight gain, difficulty sleeping, inability to work for more than an hour doing anything, intense hunger. I have taken Zyrtec year round for several years since living in Santa Fe where I developed bad allergies. There I took it in conjunction with Nasonex. After leaving there I couldn't afford it so I switched to day hist but I started sneezing and had an itchy nose constantly. Sinus infections also. So I started Zyrtec full time a few years ago. I can't lose weight to save my life and have no energy. Depression-yes. I would never have thought I would experience that. My journals are full of it. But I thought it all was because of "the change" because I was under the impression there weren't any side effects. But I am all organic and still struggling with trying not to gain anymore weight. I have a terrible time just trying to clean one room without feeling wasted! I don't look forward to stopping but I have got to see if this is affecting me this way, Thanks to all. I want me back!
-- By 2lumpsofclay | Reply | (1) replies | Private Message me
May 18th
2009
7:35 PM
I have just started my son on Singulair about 1 1/2 weeks . ago. He is also on Allegra plus using the Nasonex. The allergist did warn about all the things that have been reported about this drug. We still decided to try it to see how he responds to it. The number one thing we have noticed is: it has really made a difference in him with his allergies for the good. As in all the things we have heard about behavior issues with others, we have seen an increase in his energy and hyperness but not enough to alarm us yet. We have decided to keep him on it until we see a difference that we feel he is in any kind of danger or anyone else. Hopefully this will not be the case, we all are just getting our exercise which we did prior with him anyways. I hope that a few more positive reports come in, taking any kind of drug you run the risk of side effects. I'm not a fan of taking them but right now they help my son breathe and enjoy being outside where kids should be playing and loving life.
-- By sherry68 | Reply | (2) replies | Private Message me
February 28th
2009
5:45 AM
I don't know how many of my problems are associated with NR, but after reading your posts, I am seriously wondering. Here's what I've got:
--tired all the time - no problem found with my thyroid, I've had it checked multiple times
--weight gain. I don't know how much of this is because I got married when I started NR and of course eat more complete meals rather than on-the-go kind of meals, or how much because I am so tired it is hard to make it to the gym. I will say, though, that for a couple of months I was really good (exercising for about an hour each day, four to six times a week, plus eating much better) and still gained weight. Disappointing. I don't try as hard now - what's the point if exercise and diet don't help?
--no sex drive or much enjoyment while having sex
--pain when having sex - not sure if that's cuz we only have it about once a week (I have to force myself for the sake of my husband). Now I take a bath after sex to alleviate some of the pain. Still annoying, though.
--nasal issues - I know someone mentioned having to take sudafed, I take it every day and also nasonex and mucinex... no apparent nasal problems to the doctors to explain this... I think it's overkill on the meds, but I take them because otherwise I am miserable with nasal problems
--headaches - I have never had headaches bad enough to take even tylenol or asprin before using NR, now I take ibuprofen about 5-6 times a week. I don't know if it is related to the stress of being married or not. I have graduated, so it is not related to stress at school, and stress has never given me bad headaches before. Basically unexplicable for me.
--problems with contacts
--pain in area right below breasts. Very tender. If I touch, it feels as though it will leave a bruise. It doesn't, but it hurts for about a minute before it goes away, just from pressing lightly.
--can't keep the nuvaring in. Not really a side effect, but very frustrating. I also have to keep pushing it in each time I use the restroom. I can't seem to get it in far enough, I guess.
--periods seem to be getting later and later. At first they came like clock-work, the day I took the nuvaring out. But after a year, the period seems to come about the day I put it back in, which leaves me freaked out that I'm pregnant. And they aren't even lighter. They still last about five to six days and are just as heavy, just late.
--muscle stiffness. It is a little hard to walk sometimes.Not sure this is related, but quite a few of you have listed it. Not many cramps though, which is nice.
I have been on NR since a couple months before I got married (about 17 months ago), and hadn't had sex before NR, so I don't know how much NR has affected some of these things since I don't know any different, but as I said before, these are some of the symptoms I have had while on NR, things with no apparent other cause. I am seriously considering another BC option, since I don't really like having no energy and no desire for sex (biggest problems for me).
-- By sklemas | Reply | Private Message me
February 11th
2009
4:50 PM
I'm glad I found this forum. I been taking zocor aka simvastatin for about 6 months. I started experiencing dizziness and lighhead about 6 weeks ago.
I am going to stop taking this drug immediately. I also feel like I am drunk but Im not. All my blood test came out fine. I went to the ENT Dr. and they told me
it does not look like a ear problem. All I know, I did not have any medical problems until I started taking this drug. I will let you know in 6 weeks if my symptoms improve or not.
chivazo.
-- By chivazo | Reply | (1) replies | Private Message me
January 20th
2009
8:09 PM
Is anyone experiencing confusion, trouble thinking, trouble concentrating, decreased cognitive function, mental sluggishness, trouble solving problems or situations which require logical thinking and sequencing, and memory loss? Would love to hear from anyone experiencing any these symptoms and if so, how long were you on the drug.
Thanks!
December 15th
2008
5:32 PM
My 2 year old Grandson was put on Singular and Nasonex after having tubes placed in ears and adenoids removed. His nose continued to run all the time he would not nap and wake up all thru the night and I would have to plead with him to eat or drink anything, his behavior was out of control and he was irate at times , not the same little boy at all. I got online and did some research and I stopped the medications.. It has been over a week and he is his sweet little self again, and his nose is not running at all , he eats and naps and sleeps all night. I would not recommend this medication for anyone, especially a child. Concerned Grandma In Indy
-- By treath55 | Reply | Private Message me
December 13th
2008
9:24 PM
My 4 year old son started taking singulair when he was two. I don't think I picked up on his behavior change right away b/c I thought that he was just entering the "terrible two's". But over time, his allergist added on Nasonex (I know the docs say that it doesn't cause side-effects b/c it's a nasal spray, but I don't buy that...it's a steroid, plain and simple) and more recently zyrtec was added on for his hives. Well, the zyrtec was the straw that broke the camel's back. I mean, he has been a real "handful" since the singulair, but after zyrtec was added 5 months ago - let's just say he was completely out of my control. His meltdowns were so bad that I couldn't go ANYWHERE with him. I either got a sitter or just didn't go anywhere. He became aggressive, defiant, emotional, unhappy. And to top it off he started to have serious "autistic-like" self-stimulatory behaviors (grinding teeth, squinting eyes shut, flapping his hands, punching himself...). At this point my life had become a complete nightmare, and my poor 10 month old son was getting NO attention b/c my 4 year old was so out of control and aggressive. I was afraid for the baby's safety...oh, I could go on all night. This medication has impacted my marriage, my finances, my sanity. Shortly after he started Singulair I had to go on an antidepressant b/c it too so much out of me just to be his mommy. Anyway, a week ago I had him scheduled for a psych evaluation (thought for sure we were going to walk away with either autism or bipolar diagnosis), but two days before I decided to look up the meds he is on and BINGO! All of these posts sound like what we have been going through. I stopped all of his meds that night, cold-turkey, and he has been the most pleasant little boy I have ever met!! My husband and I have fallen in love with him over the past week - we had no idea he was such a sweet child.
Now, while I'm ecstatic that we have found the answer to our nightmare, I also feel SO STINKIN' ANGRY! We lost out on 2 years with our sweet boy, there were times when we raised our voices at him when he just couldn't help himself - he was suffering inside!! When I went to talk to the allergist about my findings this past week, he said, "well, maybe he just had a good day. I'd like to see what happens if he goes off all his meds for a week". Well, there you have it, he has been off for one week and he's an absolute angel. He has an amazing heart and is so caring!!!
Singulair is awful (and so is zyrtec). Please don't give this drug to your children. Research other alternatives (I am giving my son Nordic Naturals Fish Oil, Culturelle probiotics, vitamin c, and am changing his diet - increased magnesium and decreased dairy. I came up with this after hours of research...).
There is a woman on this site whose daughter committed suicide after 3 years on Singulair. This is no joke and the FDA needs to get with it.
BTW, I used to date a Singulair rep (I knew there was something I didn't like about that guy:)
-- By nomeds2 | Reply | (5) replies | Private Message me
November 26th
2008
3:41 AM
Thank you for this site...although it is too late being I already poisoned myself with my 1st dosage - I know better now to STOP TAKING THIS DRUG IMMEDIATELY.
31 y/o male - non smoker - In good overall health.
What happened...(brief history of what got me to the point of being prescribed this horrid drug)
I caught a cold a few days after drinking quite heavily at a wedding (Aprox 1 month ago). It was severe enough for me to take a trip to this new doctor that is in my network and nearby (how I wish I could use my old family doctor that is out of network).
Symptoms then were congestion in my head and upper chest, cold sweats, runny nose. The doctor told me to take some over the counter stuff and try to fight it off w/ Mucinex, and Zyrtec - and lots of liquids. If that didn't work, he asked me to return.
It took about 5 days, and I seemed to kick the cold.
Approximately 2 weeks went by where I was feeling fine, then it seemed as if I was coming down with something again. (Last Thursday was when I started feeling ill)
I think what brought it on this time was breathing in excess dust at work opening some skids of paper in our warehouse.
Anyhow, this time around I had a pretty serious cough, felt feverish, and fatigued.
Sunday morning I woke up and took two Mucinex to break up the cough (which work great by the way)...and I hacked up something awful enough to call my doctors emergency line and have him paged. I was ready to go to the ER. It wasn't just phlegm or mucas - it was a soild mass of lord knows what containing blood. It look like an organ from a small critter.
Doctor said to keep taking the Mucinex and if I didn't feel better to come see him.
The coughing got worse on Monday, and the mucus I was spitting up wasn't pretty.
I went to see him yesterday afternoon (Tuesday) and he said its time to start you on an antibiotic and diagonsed me with an Upper Respiratory Infection.
He gave me Avelox, and Advair, and I asked for some of the good cough syrup w/ the codeine. He also sent me for a chest X-ray.
I got home around 4pm, made some food, then took some syrup and tried the advair.
I waited to take the Avelox til later on in the evening so I could set up a routine as I work nights and 9pm would be good.
I took the Avelox, around then, along with another dose of the cough syrup.
Around 1 hour later I felt extremely nauseous. I would burp, and feel almost ready to vomit...it was my body rejecting this horrible drug. The nausea came and went, came and went - then I got tired.
I laid down around 11pm and then the REAL trouble started. I must have fell asleep for about 30 mins, then woke up suddenly gasping for air...It felt like my heart was about to stop. I sat up in the bed panicked. I then got a little nervous, but calmed myself down, drank another glass of water and tried to fall back asleep. Sure enough just as I was about to drift off, the same sudden feeling of my breathing or heartbeat was interrupted and I sat up again. I had tingling in my chin area and in my arms. Walking to the bathroom I felt slightly disoriented and dizzy, and my legs and whole body felt weak. I also started getting itchy in my legs and groin area. Now I'm scared to go to sleep so I come to the computer and started researching this Avelox. It's 3:30 am now as I'm writing this. I looked at this site and http://www.fluoroquinolones.org/ before decided to post my experience.
I am still very itchy, slight nauseous, and feel disoriented. I'm scared to lay down to sleep now, but hopefully that will wear off soon - but I feel very nervous, uncontrollably. I almost want to induce vomiting to maybe get out any of the drug that is left in my stomach, but hate vomiting.
I will not take another dosage of this Avelox, no matter what this doctor tells me...and will give him a piece of my mind for prescribing this instead of something like ammoxocillin or just penicillin.
November 5th
2008
10:56 AM
My son was on a cocktail of Singulair, Zyrtec, Astellin and Nasonex. Like a miracle, his severe allergies cleared up almost immediately. Months later, behavioral changes started to surface. Extreme irritability, major meltdowns over nothing, problems in school and pulling out his facial hair including eyelashes and eyebrows. We stopped the medication in April and he improved. By mid summer, the hair pulling stopped. When his allergies started up again about 10 days ago, I put him back on the Zyrtec, because I was certain the Singulair was causing most of the problems. Within 3-4 days, the emotional outbursts started, panic attacks that never happened before - he said he couldn't breathe. Now the hair pulling is back. Everyone thinks I want to blame medication for his problems, but I am certain that Zyrtec has something to do with these problems in addition to Singulair. We have taken him off Zyrtec 2 days ago. We have a dr. appointment in 2 days and we will discuss all of this with him. In the meantime, his allergies are back and he is miserable. I would rather him be physically sick than mentally at this point.
-- By ginalynn2 | Reply | (4) replies | Private Message me
September 25th
2008
7:13 PM
for the people that have taken their children off singulair...
what are you using for a preventative med?
my daughter has really bad asthma and I don't know of any alternatives
September 22th
2008
12:13 PM
My 5 year old daughter was started on Zyrtec about 10 days ago (Dr.s orders) and WOW... not good. We can not see any changes in her allergies but her moodswings are way off. Last nite she told me "daddy that clear medicine I take now, makes me feel busy and funny". When we ask her why she is acting rude and being ugly, she says she doesn't know. She has been taking Singlar for about 2 months and Nasonex for about 1-2 years. HELP!!!!!
-- By ijr927 | Reply | (3) replies | Private Message me
September 4th
2008
10:34 PM
I just started Singulair about a month ago. Before I started taking the tablets I remember hearing some negative information on the news about the medicine. I found this web site and read about all the side effects before taking my first tablet. Even though there was so much negative information I thought I would give the medicine a try anyway. I have always been in good health and only needed this medicine for seasonal allergies. Part of me said "I know the side effects wont affect me!" Well I was WRONG! I have had the worst nightmares!!!
The nightmares started the first night I started taking Singulair. I continued taking the medicine hoping the nightmares would pass. Well, they have only got worse. However, last night was horrible. Not only did I have my nightly nightmares I had a hallucination! It started when I heard my 2 year old son wake up. He first opened his bedroom door then drank some water that was on his night stand, then was on his way over to my room. I got up to put him back in bed just to find out his bedroom door was closed and he was sound asleep in his bed. I haven't had any other side effects, but I think this is a good enough reason to stop taking the medicine. Does anyone have any other suggestions for another allergy medicine I can take. I've already tried Nasonex and Flonase they don't work nearly as good as Singulair. Any suggestions would be great thanks!
-- By vartis | Reply | (1) replies | Private Message me
August 20th
2008
7:10 PM
Hello everyone. My name is Michael, and my experiences with Advair were so horrific, I thought I would post here as a both a cautionary to those who would use this product, and to validate those who thought "they were crazy" while using it.
I was diagnosed with "World Trade cough" as a result of my four month exposure from that disaster. It finally culminated in frequent walking pneumonias and a sinus-drip initiated cough, which is really part of a complicated process from GERD, also World Trade related. Finally, the pulmonologist diagnosed the obvious "RADS", Reactive Airway Disease.
I was prescribed Aidvair Diskus inhaler 500/250 twice a day, along with Nasonex and Nexium. The first two months seemed uneventful. As my cough cleared, I saw no reason to take the medication anymore and slowly titrated its discontinuation.
Then everything went awfully wrong and my nightmare started. First, panic and anxiety attacks, which I hadn't suffered since World Trade overtook me at different times of the day. Only the Toprol for my high blood pressure kept me under control and out of the E/R with uncontrollable tachycardia. Next, the Depression which also was overwhelming, and the compounded fears from physical symptoms. Then the "TRUSH" came in my mouth and a concomitant fungal infection in my groin. Swollen glands in my neck. Fever, fatigue, listlessness joined the symptoms.
Though a committed heterosexual, a bachelor party a month ago raised spectre's too awful to contemplate and I insisted on the most ultra-sensitive diagnostic blood tests to rule out dreaded disease ( I did responsibly use a condom ). The 24 hours from yesterday to today were like sitting on death row, awaiting an answer. ALL NEGATIVE, including Diabetes.
Then I saw this site and had to enroll to tell this story. All of it was here from the THRUSH, which scared me the most, to the Depression and anxiety attacks, which made my fears really get out of control. The Advair had nearly destroyed my immune system.
I am taking "CLORIMAZOLE" for the fungus, which is no bargain...liver toxicity and nausea. Still, far preferable to the feared diseases.
I learned that so-called "modern medicine" is little advanced from the witch doctor. If you read the Pharmacology inserts, half the time they don't even know why something works, and they can't isolate the good effect from the bad. Then, they assault your body with another extreme ( anti-fungal ) to combat what they caused from the first medicine.
My new girlfriend is Chinese. Next time I am sick, I am trying alternative medicine. In the meantime, for anyone prescribed or handed a sample by their doctor, AVOID THIS MEDICATION IF YOU CAN!
-- By usjustice | Reply | Private Message me
July 18th
2008
8:38 AM
My son has been taking Singular as well as Advair and Zyrtec and Nasonix for the past 6 months. He is doing so well. He has not had to go to emergency, he has not been sick, and he has not had mood swings. If you look at the prescription information that comes with Singular, you can see what the side effects can be. My recommendation is to take your child off of them if they have a side effect. I contacted my Dr. and Merck is studying only 1 case with a child that had side effects, but they did not say if this child was on other Psych medicine at the same time. The 2 psych meds that have shown a bad interaction with Singular are Phenobarbital and Rifanpin (spelling may be wrong). With all the posts I have read, very few people indicate if they are taking other medications at the same time as Singular. My suggestion is that you consult your Dr. and then send your case to Merck for more studies. If all you are doing is posting on the web, you are not solving this issue with the makers of the medication.
-- By motherbird | Reply | (4) replies | Private Message me
July 2th
2008
8:51 PM
After reading all the horror stories on here, me and my husband soon began to realize that we were having a lot of the side effects listed here and not listed on my son's actual Singulair prescription. The side effects my son had were behavioral changes, irrational behavior, inattentiveness, not able to stay on task or stay still -- in fact he broke his arm twice being so hyper, yelling, screaming and just plain mean.
We took our son off of Singulair as a trial for a few days. Immediately we began to notice differences in his behavior. He wasn't as agitated and quick to yell or get angry. (He's only 5 years old). He actually would be listening when we would speak to him. He would sit calmy and read books and the one huge thing he would do was look at us and smile. He even said to my husband once, "I love you Daddy," which just brought tears to our eyes. I never realized what a Singulair fog he was in and what it did to him. Here we were pretty close to getting him evaluated for ADHD or even Aspergers. So now we're in the same boat as others that are searching for other asthma meds to give my son. Right now we have gone back to Pulmicort, Xopenex, Nasonex and Allegra. I'm so glad I read this forum because I was desperately searching for answers for my sons behavioral issues. Oh, by the way he was on Singulair for 1-1/2 years.
-- By rtorzewski | Reply | (3) replies | Private Message me
June 27th
2008
2:13 PM
My 10 year old son has taken Singulair on and off since he was 5 years old and has been on it for the past 3.5 years. My son at an early age was affected by a bad marriage and then the divorce when he was 5 yrs old. So we always suspected that his behavior issues were caused by this and I had done everything I possibly could to give them the help he needed to get over and through his issues. He was held back his first year of Kindergarden and during his second year midstream he was placed in a special class for behavioral problem children. Nothing ever seemed to help him, everytime we would see some progress and encouragement we were always blind sighted by a behavior that was always worse. Two steps forward and them 5 steps backwards. I always knew that his problems would never get better overnight so I just kept on going. He was diagnosed with ADHD but because he has some ticking issues I had to put him on Strattera which was did not do a thing for him. I always described him as my Dr. Jeckyll/ Mr. Hyde child. He could be really good and sit still and behave but I think he had to try really hard to do so. He eventually was always overpower by the impulse to show negative behaviors. Defiant, extremely impulsive, always negative and completely miserable all the time. He also went through phases of compulsions. There was always a compulsion of the month- germs, bathroom habits, noises, repetitive words. He hated school and always complained of a stomach ache which i thought he was always faking to get out of school. He had confrontations in school everyday for most of the day. I often thought some of this was because of being tired all the time. We had battled over bedtime every single night. He was terrified to go to bed alone, I tried everything to get him to sleep alone. I wore myself out falling asleep next to him, I would then go to my own bed only to be up with him half the night going back and forth. I gave in many a night and slept with him just so we could get a good nights sleep. At age 8.5 I finally got him to go to sleep alone but the lights haf to be on and he has to know that I am still awake before he will fall asleep. He would always say he didn't want to go to sleep because when he does he has bad thoughts about me and people that he loves. He always had an extremely hard time excepting the word "no"- he would flip out and hit his head with whatever was handy, throw things, break things, scream holler etc. It would take hours to get over it. When he did he would be very remorseful and lovable. He was always in turmoil. Finally in February of this year, this graduated to a new level where he would want to just kill himself and would actually go and pull a knife out of the drawer and just shake with anger as he held the knife to his throat. I was terrified although i really didn't think he was going to harm himself he just wanted to scare me. Then at the end of March when i first heard the news about the possible side effects of Singulair, I had only heard about the suicide effect. Oh great just what I needed was this medicine causing him to do that. The doctor was thinking about taking him off if this summer because he wanted to see if he out grew his seasonal allergies so I took him off immediately. Well I had no idea about the other side effects until my son turned into a completely different kid. School noticed a huge difference in him! His grades went up, his is able to control his behavior, he is happy he is NORMAL. I never suspected this drug as the culprit due to the timing of taking it. Our lives have changed completely. When i first found this site, it seemed as though some of the parents were writing about my child. It is amazing. My son still has some old habits to break but overall he is a wonderful and normal 10 year old boy. He did not outgrow his seasonal allergies but Allegra seems to help in through it. I get so angry- his whole early childhood was ruined by this medicine. He is a labled kid in our school system. This whole experience has opened up my eyes. Thank you for letting me share my story.
-- By cindy48 | Reply | (5) replies | Private Message me
June 23th
2008
9:54 AM
I have been a Nasonex for only a couple of days... I have stopped because I have a terrible ringing in my ears...which I have always had but now it is 10 times worse. I also have headaches, sore throat and nervousness. Now that I have stopped I have worse congestion than before. Has anyone else experienced these side effects?
-- By aatwood | Reply | (1) replies | Private Message me
May 21th
2008
8:47 PM
I have a three year old son who has severe allergies. He's been taking singulair for 2 years on & off just in the allergy season. He started taking, singulair again in the beginning of April. One morning he woke up and both eyes were really swollen and red, I called his doctor's office and told them i thought he had pink eye, after 2 different drops and no change I brought him into the doctor's to see if it could be his allergies, and they agreed and started him on Zyrtec. I still was not impressed with the results so i brought him back yet again to see if we could see a specialist. Instead they put him on nasonex to try.
In the beginning of March I started to see a change in my usual happy fun loving son. He was scared to sleep in his bed, waking up in the middle of the night from bad dreams, uncontrollable screaming fits that would last up to an hour, saying he wants a Boo Boo. At first we thought it could be jealously over his new brother, or maybe something at his school.
Then i found this website and everything clicked, how scary it must be for a child to have these horrible thoughts and not be able to understand or stop them. What are the people at merck thinking??
Can any one tell me when the symptoms stop. He's been off for a week and we see some improvements. But he still has these fits with almost an OCD tendency to them (mainly when he's overtired), stomach pains, lack of appetite.
May 15th
2008
11:13 AM
My son is almost 6 yrs old. He has been taking Singular for approx 3 years, in addition to Claritin and Nasonex. This is all for his allergy to mold. His doctor started him on these meds after a 6 month episode with sinus infections leading to asthma-like symptoms. We have not noticed anything unusual about his behavior until approx 3 months ago. He started waking up every night (2-3 hours after going to bed) with bad dreams. At first he would not fully awaken and fall back asleep immediately. After a month or so of this happening most nights, he had two nights in a row where he woke up screaming and was inconsolable for about 30 minutes. We initially thought it was night terrors, but he was not scared or fearful, he was just upset/angry. He would hit the bed repeatedly and yell. He didn't know what he was upset about but would talk about how he thought we hated him, he was dumb, etc. After about 30 min he would 'snap out of it' and return to his normal self and go back to sleep easily.
At first we thought these were night terror brought on by a recent fever, but he had another episode last night. He has also been falling apart at the littlest things and getting quite violent (for a 6 yr old). He was sent to his room yesterday evening because he was complaining about the dinner his mom made (lots of complaining these days..). He had a total melt down an started throwing things and hitting the door so hard he put a hole in it.
Some of this behavior I would chalk up to normal kid stuff, new baby brother, etc. But I am suspicious about the negative thoughts, bad dreams, and instant melt downs... I stopped giving him Singular today and we will see what happens. God bless you all as we figure these things out...
May 14th
2008
9:36 PM
My baby is 3. She had strep throat from Jan to April. I'm talking off the antibotic for max 4 days and the fever would return along with swollen glands, difficulty swallowing and just plain miserable. Took me 2 ENT referrals for someone to finally agree with me that this is not normal and something needs to be done. We scheduled a T & A for April 18th. The surgeon told me that she had a severe sinus infection as well (surgery day). He recommended that we start Singulair 4mg at night along with Nasonex to possibly help with her constant sinus congestion. I gave it to her and noticed nearly an immediate a change in her disposition.(looking back now) At the time I simply chalked it up to having her tonsils out. She was on the medication until Friday May 9th. Her babysitter said that she was seeing what I was at home...only I hadn't shared my dgtrs behavior at home with her...call it guilt for being a single mom who works...I just thought she was having trouble adjusting from a week at home with mom from the surgery recovery to getting back into the "norm" routine. At home she would cry at the drop of a hat. Not just wimper or whine....but tears and screams for nearly an hour. I would ask her why she was crying and she'd simply reply "I don't know Mommy." One minute we'd be playing and she's be laughing and the next she was angry and anxious. She would complain of "tingles in her feet"...I thought she had just been sitting on her legs and her foot had fallen asleep. She would deliberately instigate her older sister...totally not her. She became fearful of her room at nighttime...and took for ever to get to sleep. A co worker had mentioned that a little boy she worked with had his medicine changed b/c the dr said one of his meds may contribute to his behavior issues. Being a nurse I asked what med...SINGULAIR. I immediately went to the web and googled singulair. I found this site...and began to read parents horror stories of their experiences. She has not had another singulair nor will any of my children - EVER. I feel guilty that I didn't take the time to research it before I put her on it. I feel blessed that I was in the right place at the right time to find out about this site. I thought that my kind and sweet little girl had turned into. I know it's only 5 days off the med but she's back to her sweet self about 75%. I am blessed that my experience was not even a month long...but losing your child to a medication that no one warns you about even for a day is WRONG. I think I would be more "forgiving" if anyone along the line of me picking up the med had said ANYTHING...but no one said a thing. My prayers are with those who were not as lucky as I was to stop this med so quickly. I hope your children return to their pre singluair selfs quickly and permanently.
-- By rhondajrowles | Reply | (1) replies | Private Message me
April 23th
2008
3:35 PM
BAD BAD BAD BAD BAD! I took this drug today and thought i was going to die from a heart attack. I began getting palpitations and then it progressed into a full blown panic attack. Thank god I had some Xanax to bring down the side effects. But now I just feel out of it and foggy. I almost called 911, it was that bad. I felt like I couldn't breathe, like there was something standing on my chest. I called my doctor right away who said they had no other samples, that Avelox was the only thing they are really getting right now. That seems really odd to me that a drug like this is on the market with so much negative press and yet its all our physicians have on hand for people like me with no insurance. PLEASE DONT TAKE THIS DRUG, it is terrible...
-- By jasminerosa | Reply | (3) replies | Private Message me
April 18th
2008
9:33 AM
Sinus infection and chest congestion: doctor knew I was on HCTZ, a diuretic, as well as Zyrtec and Nasonex. The HCTZ I now known is an agent that should have triggered a modification of the treatment protocol. First night on the 400 mg Avelox, during conversation at the supper table, a black cloud of depression suddenly descended upon me like a curtain. Then I became extremely irritable and short-tempered. (Hard to blame on a drug, except that this came out of the blue right when I was feeling mentally and emotionally happy and relaxed, enjoying my husband's companionship. No reason for depression, irritability and short temper, especially to such an uncharacteristic degree. This was severe!) No sleep whatsoever that night due to shivering without getting warm, feeling like my whole body was crawling, feeling terrible frustration and anxiety and depression. Had taken the Avelox with my supper. Second night: unable to breathe through nose at all. Nasal passages so dry they hurt. I decided to abandon Nasonex and Zyrtic but never thought about stopping the HCTZ (the info insert from the drugstore never mentioned that). Insomnia and feeling electrified. Again, the feeling of total body crawling and restlessness. Irritable to the max. Frustration. Wound up sitting up most of the night to avoid waking loved one with my tossing and turning and misery. Third night, I took the Avelox early, at 5 p.m. Had been having to turn on the shower and steam up the bathroom to moisturize my nasal passages enough to bear the painful dryness. Also began using Ocean Mist to ease the pain. Despite the dryness, my nose was still too stopped up to breathe. Heavy sinus congestion and pain not any improved yet. Dozed some that night but a phone call came at midnight for my husband and after that I was wired awake again. I am desperate for rest. This is the fourth day and finally I'm coughing less and the congestion is coming up. But my sinuses are harder than ever to empty. Mucus extremely thick and sticky (sorry for the graphic quality of this post). One very severe side effect is that I am now incontinent. I never make it to the bathroom in time to urinate and so am wearing pads. Having to change them every time my bladder begins to fill. Leaking, dribbling and now gushing urine without any control whatsoever. I have just read the full prescribing info and wonder why on earth was I not given a safe antibiotic (I realize everything has some risks and side effects, but why was I exposed in this way to such a dangerous drug without a life-threatening disease to require its use?) This is an outrage. Now I"m stuck finishing the script or else my infection will be back worse than ever and then I'll be given yet another bad drug. I have only one clue to this question: I was asked what my Insurance company was just before the script was written. I cannot help wondering: what if I'd had no insurance, or another insurance? Would I then have been given a less-expensive and much safer, even safe drug? If you are ever asked just before the script is written what your insurance company is, ASK WHY THEY NEED TO KNOW. They will probably tell you it's so they can pick a Preferred drug. That would be a bogus answer, because after I told them what my insurance company was, they never went and looked for a list of preferred drugs! They simply swiftly wrote for Avelox! I was never told any of the bad effects. Now I fear getting the colitis, the tendonitis (no one told me not to exercise!). I even fear permanent incontinence. I also think that this depression, anxiety, and insomnia, and the horrible restlessness and whole body crawling sensation could be lasting and that really makes me feel very depressed. My husband has had to suffer with days and nights of my irritability and temper -- and he has cancer and I never wanted to ever be cross or complaining or to worry or burden him. This medicine is not worth it. THere are safer better options. DEMAND BETTER OPTIONS. I also wonder if the HCTC or Zyrtec or Nasonex taken on the same days could have damaged my kidneys or liver. I really think that antibiotic resistance is the ultimate bad side effect of this drug. What could be worse? Why is this being used for garden-variety sinus infections? Why is it not an option only for those who must have it or probably die of some life-threatening illness? This medicine needs more than a black box. This medicine should be available only to doctors treating patients who are in danger of dying of an illness. I have had doctors give me black box medicines before and I was spineless enough (and ill enough with severe, recurrent sinus infection) that I took the medicine. But from now on, never again. There are still better options and I deserve the safer options just as much as the next person -- no matter what my insurance coverage is! Doctors don't hesitate to use black box medicines anymore. Why do they hesitate so long to prescribe medicines without black boxes? They say it's because of the new resistance to antibiotics and the super bugs. Well now I'm susceptible to super bugs PLUS all these other severe side effects have to be endured. If anything else goes wrong, I'll come back and add another post. Meanwhile, I'm praying for each of you to make a full and speedy recovery.
-- By 1jesse | Reply | (1) replies | Private Message me
April 12th
2008
11:20 PM
Previously posted 8 year old son w/ suicidal ideation and depression...I'm seeing comments about "inattentive." I've been saying my son is ADD for years....How many of you saw this possible side effect? Off of Singulair for 14 days now....behavior unbelievably improved.
-- By nonstop934 | Reply | (9) replies | Private Message me
Singulair (25) Nasonex (9) Zyrtec (4) Avelox (3) Lisinopril (3) Advair Diskus (2) Advair HFA (1) Micardis (1) PredniSONE (1) NuvaRing (1) Simvastatin (1) Geodon (1)
July 12th
2009
12:02 PM
I am a 36 year old white male - generally good health. Could use to lose a few pounds but not overweight. I've been taking Singulair for a little over a year and since then (I also take Zyrtec - over the counter and Nasonex) all are for allergies. I since developed acid reflux - went to my pharmacist and she said that most people with this mix of allergy drugs form acid reflux. Anyhow, I am generally a moody person-have always been - too intense and most of the time I am not a go with the flow person-since I've been taking Singulair my mood swings amplified horrifically - I blow up at my wife over stupid assanine stuff - after reading these posts..today is the last time I am going to take Singulair. Wish me luck. I hope the mood swings decrease.
-- By armybanker | Reply | (1) replies | Private Message me