August 20th
2008
7:10 PM
Hello everyone. My name is Michael, and my experiences with Advair were so horrific, I thought I would post here as a both a cautionary to those who would use this product, and to validate those who thought "they were crazy" while using it.
I was diagnosed with "World Trade cough" as a result of my four month exposure from that disaster. It finally culminated in frequent walking pneumonias and a sinus-drip initiated cough, which is really part of a complicated process from GERD, also World Trade related. Finally, the pulmonologist diagnosed the obvious "RADS", Reactive Airway Disease.
I was prescribed Aidvair Diskus inhaler 500/250 twice a day, along with Nasonex and Nexium. The first two months seemed uneventful. As my cough cleared, I saw no reason to take the medication anymore and slowly titrated its discontinuation.
Then everything went awfully wrong and my nightmare started. First, panic and anxiety attacks, which I hadn't suffered since World Trade overtook me at different times of the day. Only the Toprol for my high blood pressure kept me under control and out of the E/R with uncontrollable tachycardia. Next, the Depression which also was overwhelming, and the compounded fears from physical symptoms. Then the "TRUSH" came in my mouth and a concomitant fungal infection in my groin. Swollen glands in my neck. Fever, fatigue, listlessness joined the symptoms.
Though a committed heterosexual, a bachelor party a month ago raised spectre's too awful to contemplate and I insisted on the most ultra-sensitive diagnostic blood tests to rule out dreaded disease ( I did responsibly use a condom ). The 24 hours from yesterday to today were like sitting on death row, awaiting an answer. ALL NEGATIVE, including Diabetes.
Then I saw this site and had to enroll to tell this story. All of it was here from the THRUSH, which scared me the most, to the Depression and anxiety attacks, which made my fears really get out of control. The Advair had nearly destroyed my immune system.
I am taking "CLORIMAZOLE" for the fungus, which is no bargain...liver toxicity and nausea. Still, far preferable to the feared diseases.
I learned that so-called "modern medicine" is little advanced from the witch doctor. If you read the Pharmacology inserts, half the time they don't even know why something works, and they can't isolate the good effect from the bad. Then, they assault your body with another extreme ( anti-fungal ) to combat what they caused from the first medicine.
My new girlfriend is Chinese. Next time I am sick, I am trying alternative medicine. In the meantime, for anyone prescribed or handed a sample by their doctor, AVOID THIS MEDICATION IF YOU CAN!
-- By usjustice | Reply | Send Private Mail
July 18th
2008
8:38 AM
My son has been taking Singular as well as Advair and Zyrtec and Nasonix for the past 6 months. He is doing so well. He has not had to go to emergency, he has not been sick, and he has not had mood swings. If you look at the prescription information that comes with Singular, you can see what the side effects can be. My recommendation is to take your child off of them if they have a side effect. I contacted my Dr. and Merck is studying only 1 case with a child that had side effects, but they did not say if this child was on other Psych medicine at the same time. The 2 psych meds that have shown a bad interaction with Singular are Phenobarbital and Rifanpin (spelling may be wrong). With all the posts I have read, very few people indicate if they are taking other medications at the same time as Singular. My suggestion is that you consult your Dr. and then send your case to Merck for more studies. If all you are doing is posting on the web, you are not solving this issue with the makers of the medication.
-- By motherbird | Reply | (4) replies | Send Private Mail
July 2th
2008
8:51 PM
After reading all the horror stories on here, me and my husband soon began to realize that we were having a lot of the side effects listed here and not listed on my son's actual Singulair prescription. The side effects my son had were behavioral changes, irrational behavior, inattentiveness, not able to stay on task or stay still -- in fact he broke his arm twice being so hyper, yelling, screaming and just plain mean.
We took our son off of Singulair as a trial for a few days. Immediately we began to notice differences in his behavior. He wasn't as agitated and quick to yell or get angry. (He's only 5 years old). He actually would be listening when we would speak to him. He would sit calmy and read books and the one huge thing he would do was look at us and smile. He even said to my husband once, "I love you Daddy," which just brought tears to our eyes. I never realized what a Singulair fog he was in and what it did to him. Here we were pretty close to getting him evaluated for ADHD or even Aspergers. So now we're in the same boat as others that are searching for other asthma meds to give my son. Right now we have gone back to Pulmicort, Xopenex, Nasonex and Allegra. I'm so glad I read this forum because I was desperately searching for answers for my sons behavioral issues. Oh, by the way he was on Singulair for 1-1/2 years.
-- By rtorzewski | Reply | (1) replies | Send Private Mail
June 27th
2008
2:13 PM
My 10 year old son has taken Singulair on and off since he was 5 years old and has been on it for the past 3.5 years. My son at an early age was affected by a bad marriage and then the divorce when he was 5 yrs old. So we always suspected that his behavior issues were caused by this and I had done everything I possibly could to give them the help he needed to get over and through his issues. He was held back his first year of Kindergarden and during his second year midstream he was placed in a special class for behavioral problem children. Nothing ever seemed to help him, everytime we would see some progress and encouragement we were always blind sighted by a behavior that was always worse. Two steps forward and them 5 steps backwards. I always knew that his problems would never get better overnight so I just kept on going. He was diagnosed with ADHD but because he has some ticking issues I had to put him on Strattera which was did not do a thing for him. I always described him as my Dr. Jeckyll/ Mr. Hyde child. He could be really good and sit still and behave but I think he had to try really hard to do so. He eventually was always overpower by the impulse to show negative behaviors. Defiant, extremely impulsive, always negative and completely miserable all the time. He also went through phases of compulsions. There was always a compulsion of the month- germs, bathroom habits, noises, repetitive words. He hated school and always complained of a stomach ache which i thought he was always faking to get out of school. He had confrontations in school everyday for most of the day. I often thought some of this was because of being tired all the time. We had battled over bedtime every single night. He was terrified to go to bed alone, I tried everything to get him to sleep alone. I wore myself out falling asleep next to him, I would then go to my own bed only to be up with him half the night going back and forth. I gave in many a night and slept with him just so we could get a good nights sleep. At age 8.5 I finally got him to go to sleep alone but the lights haf to be on and he has to know that I am still awake before he will fall asleep. He would always say he didn't want to go to sleep because when he does he has bad thoughts about me and people that he loves. He always had an extremely hard time excepting the word "no"- he would flip out and hit his head with whatever was handy, throw things, break things, scream holler etc. It would take hours to get over it. When he did he would be very remorseful and lovable. He was always in turmoil. Finally in February of this year, this graduated to a new level where he would want to just kill himself and would actually go and pull a knife out of the drawer and just shake with anger as he held the knife to his throat. I was terrified although i really didn't think he was going to harm himself he just wanted to scare me. Then at the end of March when i first heard the news about the possible side effects of Singulair, I had only heard about the suicide effect. Oh great just what I needed was this medicine causing him to do that. The doctor was thinking about taking him off if this summer because he wanted to see if he out grew his seasonal allergies so I took him off immediately. Well I had no idea about the other side effects until my son turned into a completely different kid. School noticed a huge difference in him! His grades went up, his is able to control his behavior, he is happy he is NORMAL. I never suspected this drug as the culprit due to the timing of taking it. Our lives have changed completely. When i first found this site, it seemed as though some of the parents were writing about my child. It is amazing. My son still has some old habits to break but overall he is a wonderful and normal 10 year old boy. He did not outgrow his seasonal allergies but Allegra seems to help in through it. I get so angry- his whole early childhood was ruined by this medicine. He is a labled kid in our school system. This whole experience has opened up my eyes. Thank you for letting me share my story.
-- By cindy48 | Reply | (5) replies | Send Private Mail
May 21th
2008
8:47 PM
I have a three year old son who has severe allergies. He's been taking singulair for 2 years on & off just in the allergy season. He started taking, singulair again in the beginning of April. One morning he woke up and both eyes were really swollen and red, I called his doctor's office and told them i thought he had pink eye, after 2 different drops and no change I brought him into the doctor's to see if it could be his allergies, and they agreed and started him on Zyrtec. I still was not impressed with the results so i brought him back yet again to see if we could see a specialist. Instead they put him on nasonex to try.
In the beginning of March I started to see a change in my usual happy fun loving son. He was scared to sleep in his bed, waking up in the middle of the night from bad dreams, uncontrollable screaming fits that would last up to an hour, saying he wants a Boo Boo. At first we thought it could be jealously over his new brother, or maybe something at his school.
Then i found this website and everything clicked, how scary it must be for a child to have these horrible thoughts and not be able to understand or stop them. What are the people at merck thinking??
Can any one tell me when the symptoms stop. He's been off for a week and we see some improvements. But he still has these fits with almost an OCD tendency to them (mainly when he's overtired), stomach pains, lack of appetite.
May 15th
2008
11:13 AM
My son is almost 6 yrs old. He has been taking Singular for approx 3 years, in addition to Claritin and Nasonex. This is all for his allergy to mold. His doctor started him on these meds after a 6 month episode with sinus infections leading to asthma-like symptoms. We have not noticed anything unusual about his behavior until approx 3 months ago. He started waking up every night (2-3 hours after going to bed) with bad dreams. At first he would not fully awaken and fall back asleep immediately. After a month or so of this happening most nights, he had two nights in a row where he woke up screaming and was inconsolable for about 30 minutes. We initially thought it was night terrors, but he was not scared or fearful, he was just upset/angry. He would hit the bed repeatedly and yell. He didn't know what he was upset about but would talk about how he thought we hated him, he was dumb, etc. After about 30 min he would 'snap out of it' and return to his normal self and go back to sleep easily.
At first we thought these were night terror brought on by a recent fever, but he had another episode last night. He has also been falling apart at the littlest things and getting quite violent (for a 6 yr old). He was sent to his room yesterday evening because he was complaining about the dinner his mom made (lots of complaining these days..). He had a total melt down an started throwing things and hitting the door so hard he put a hole in it.
Some of this behavior I would chalk up to normal kid stuff, new baby brother, etc. But I am suspicious about the negative thoughts, bad dreams, and instant melt downs... I stopped giving him Singular today and we will see what happens. God bless you all as we figure these things out...
May 14th
2008
9:36 PM
My baby is 3. She had strep throat from Jan to April. I'm talking off the antibotic for max 4 days and the fever would return along with swollen glands, difficulty swallowing and just plain miserable. Took me 2 ENT referrals for someone to finally agree with me that this is not normal and something needs to be done. We scheduled a T & A for April 18th. The surgeon told me that she had a severe sinus infection as well (surgery day). He recommended that we start Singulair 4mg at night along with Nasonex to possibly help with her constant sinus congestion. I gave it to her and noticed nearly an immediate a change in her disposition.(looking back now) At the time I simply chalked it up to having her tonsils out. She was on the medication until Friday May 9th. Her babysitter said that she was seeing what I was at home...only I hadn't shared my dgtrs behavior at home with her...call it guilt for being a single mom who works...I just thought she was having trouble adjusting from a week at home with mom from the surgery recovery to getting back into the "norm" routine. At home she would cry at the drop of a hat. Not just wimper or whine....but tears and screams for nearly an hour. I would ask her why she was crying and she'd simply reply "I don't know Mommy." One minute we'd be playing and she's be laughing and the next she was angry and anxious. She would complain of "tingles in her feet"...I thought she had just been sitting on her legs and her foot had fallen asleep. She would deliberately instigate her older sister...totally not her. She became fearful of her room at nighttime...and took for ever to get to sleep. A co worker had mentioned that a little boy she worked with had his medicine changed b/c the dr said one of his meds may contribute to his behavior issues. Being a nurse I asked what med...SINGULAIR. I immediately went to the web and googled singulair. I found this site...and began to read parents horror stories of their experiences. She has not had another singulair nor will any of my children - EVER. I feel guilty that I didn't take the time to research it before I put her on it. I feel blessed that I was in the right place at the right time to find out about this site. I thought that my kind and sweet little girl had turned into. I know it's only 5 days off the med but she's back to her sweet self about 75%. I am blessed that my experience was not even a month long...but losing your child to a medication that no one warns you about even for a day is WRONG. I think I would be more "forgiving" if anyone along the line of me picking up the med had said ANYTHING...but no one said a thing. My prayers are with those who were not as lucky as I was to stop this med so quickly. I hope your children return to their pre singluair selfs quickly and permanently.
-- By rhondajrowles | Reply | (1) replies | Send Private Mail
April 23th
2008
3:35 PM
BAD BAD BAD BAD BAD! I took this drug today and thought i was going to die from a heart attack. I began getting palpitations and then it progressed into a full blown panic attack. Thank god I had some Xanax to bring down the side effects. But now I just feel out of it and foggy. I almost called 911, it was that bad. I felt like I couldn't breathe, like there was something standing on my chest. I called my doctor right away who said they had no other samples, that Avelox was the only thing they are really getting right now. That seems really odd to me that a drug like this is on the market with so much negative press and yet its all our physicians have on hand for people like me with no insurance. PLEASE DONT TAKE THIS DRUG, it is terrible...
-- By jasminerosa | Reply | (3) replies | Send Private Mail
April 18th
2008
9:33 AM
Sinus infection and chest congestion: doctor knew I was on HCTZ, a diuretic, as well as Zyrtec and Nasonex. The HCTZ I now known is an agent that should have triggered a modification of the treatment protocol. First night on the 400 mg Avelox, during conversation at the supper table, a black cloud of depression suddenly descended upon me like a curtain. Then I became extremely irritable and short-tempered. (Hard to blame on a drug, except that this came out of the blue right when I was feeling mentally and emotionally happy and relaxed, enjoying my husband's companionship. No reason for depression, irritability and short temper, especially to such an uncharacteristic degree. This was severe!) No sleep whatsoever that night due to shivering without getting warm, feeling like my whole body was crawling, feeling terrible frustration and anxiety and depression. Had taken the Avelox with my supper. Second night: unable to breathe through nose at all. Nasal passages so dry they hurt. I decided to abandon Nasonex and Zyrtic but never thought about stopping the HCTZ (the info insert from the drugstore never mentioned that). Insomnia and feeling electrified. Again, the feeling of total body crawling and restlessness. Irritable to the max. Frustration. Wound up sitting up most of the night to avoid waking loved one with my tossing and turning and misery. Third night, I took the Avelox early, at 5 p.m. Had been having to turn on the shower and steam up the bathroom to moisturize my nasal passages enough to bear the painful dryness. Also began using Ocean Mist to ease the pain. Despite the dryness, my nose was still too stopped up to breathe. Heavy sinus congestion and pain not any improved yet. Dozed some that night but a phone call came at midnight for my husband and after that I was wired awake again. I am desperate for rest. This is the fourth day and finally I'm coughing less and the congestion is coming up. But my sinuses are harder than ever to empty. Mucus extremely thick and sticky (sorry for the graphic quality of this post). One very severe side effect is that I am now incontinent. I never make it to the bathroom in time to urinate and so am wearing pads. Having to change them every time my bladder begins to fill. Leaking, dribbling and now gushing urine without any control whatsoever. I have just read the full prescribing info and wonder why on earth was I not given a safe antibiotic (I realize everything has some risks and side effects, but why was I exposed in this way to such a dangerous drug without a life-threatening disease to require its use?) This is an outrage. Now I"m stuck finishing the script or else my infection will be back worse than ever and then I'll be given yet another bad drug. I have only one clue to this question: I was asked what my Insurance company was just before the script was written. I cannot help wondering: what if I'd had no insurance, or another insurance? Would I then have been given a less-expensive and much safer, even safe drug? If you are ever asked just before the script is written what your insurance company is, ASK WHY THEY NEED TO KNOW. They will probably tell you it's so they can pick a Preferred drug. That would be a bogus answer, because after I told them what my insurance company was, they never went and looked for a list of preferred drugs! They simply swiftly wrote for Avelox! I was never told any of the bad effects. Now I fear getting the colitis, the tendonitis (no one told me not to exercise!). I even fear permanent incontinence. I also think that this depression, anxiety, and insomnia, and the horrible restlessness and whole body crawling sensation could be lasting and that really makes me feel very depressed. My husband has had to suffer with days and nights of my irritability and temper -- and he has cancer and I never wanted to ever be cross or complaining or to worry or burden him. This medicine is not worth it. THere are safer better options. DEMAND BETTER OPTIONS. I also wonder if the HCTC or Zyrtec or Nasonex taken on the same days could have damaged my kidneys or liver. I really think that antibiotic resistance is the ultimate bad side effect of this drug. What could be worse? Why is this being used for garden-variety sinus infections? Why is it not an option only for those who must have it or probably die of some life-threatening illness? This medicine needs more than a black box. This medicine should be available only to doctors treating patients who are in danger of dying of an illness. I have had doctors give me black box medicines before and I was spineless enough (and ill enough with severe, recurrent sinus infection) that I took the medicine. But from now on, never again. There are still better options and I deserve the safer options just as much as the next person -- no matter what my insurance coverage is! Doctors don't hesitate to use black box medicines anymore. Why do they hesitate so long to prescribe medicines without black boxes? They say it's because of the new resistance to antibiotics and the super bugs. Well now I'm susceptible to super bugs PLUS all these other severe side effects have to be endured. If anything else goes wrong, I'll come back and add another post. Meanwhile, I'm praying for each of you to make a full and speedy recovery.
-- By 1jesse | Reply | Send Private Mail
April 12th
2008
11:20 PM
Previously posted 8 year old son w/ suicidal ideation and depression...I'm seeing comments about "inattentive." I've been saying my son is ADD for years....How many of you saw this possible side effect? Off of Singulair for 14 days now....behavior unbelievably improved.
-- By nonstop934 | Reply | (9) replies | Send Private Mail
April 12th
2008
3:31 PM
Ok I haven't been following along for several days so I may have missed some info. But what I'm wanting to know is if anyone out there has had the their child off singular for several months and had the attitude problem get worse rather than better. I don't know what is going on with my son but he has been off the meds for almost 7 months and within the last month turned very mean and ill-tempered. We would get this reaction sometimes while he was on the medicine but now it's 10X worse. Could be totally unrelated, but I thought I'd through it out there just to see.
-- By poohina | Reply | (5) replies | Send Private Mail
April 9th
2008
12:53 PM
Our 6 year old son is on Singular since March 2006. His smiles turned to frowns, laughter to screams, playfullness to agression. Although, he is quite bright for his age, it appears at times that he is in a fog. He says unbelievable things for a 6 year old; " I just want to die, I hate myself, you hate me don't you, I just want to kill myself, I can't stop/help myself, my brain is telling me to do it". Singular was very helpful for his asthma but, what it has done to his spirit and our lives is not worth a single mg. He is off the drug for 3 days, we pray our little "sunshine" will return to us.
-- By conkel | Reply | (3) replies | Send Private Mail
April 8th
2008
9:49 PM
Sorry guys. The post below is mine and I left out a critical part of the entry. My three year old daughter was put on Allegra (along with the Singulair and Nasonex) in mid-March which is when her sleeping patterns changed. I've researched the side-effects of Allegra and I can't find sleeplessness anywhere. Therefore, maybe it's the combination of the Singulair and Allegra causing the problem. Does anyone else have a small child on this combination of meds. that is experiencing similar problems?
-- By raaryount | Reply | (2) replies | Send Private Mail
April 8th
2008
9:40 PM
Both of my children are taking Singulair. My seven year old son has been on the drug for 3-4 years and we've noticed no problems. However, I am becoming very concerned about our three year old daughter. She was put on Singulair in November/December 2007 along with the other allergy medicines that she was already taking: Nasonex, Rynatan and Zyrtec. However, our allergist took her off the Rynatan and Zyrtec in mid-March and replaced them with Singulair. Since then, the child will not go to bed as she has in the past. She tosses and turns for an hour or hour an a half EVERY night. I've considered that maybe she needs to do away with the afternoon nap BUT she is still restless even if she hasn't had a nap that day. She is also doesn't want to get up in the mornings. We practically drag her out of the bed. This is very unlike her. She used to wake up easily every morning with a smile on her face and ready to go. Now she's a grump throughout the day and cries easily. My husband and I have decided to take her off the Singulair and see what happens. We already know that she is sensitive to some medications. We had an experience with Levalbuterol and Pulmicort (nebulizer treatments) in February that was scary. The pediatrician wanted her on the treatments 2X a day for 6 wks. The child was out of her mind on these meds. If someone had videotaped her and covered her face, I would not have know that it was my child. These meds. changed her entire personality. She took the treatments for 4-5 days and we decided enough was enough. As soon as we stopped the meds. she was back to her old self. She WILL NOT take them again unless there is absolutely no other alternative. I've decided that I've got to be more vigilant about watching for possible side effects of medications.
-- By raaryount | Reply | Send Private Mail
April 8th
2008
1:41 AM
Our 4 year-old son was prescribed Singular 4mg tabs approximately 1 year ago and I started to notice a dramatic change in our son's behavior almost immediately. He progressively became more aggressive, suffered from very strange/intense dreams, cried easily, temper tantrums and became very physically aggressive. He also seemed to suffer from dramatic mood swings. He even tried to choke me several times. THIS IS NOT OUR SON!!! We sought out Professional Therapy thinking that it was emotional ties to his father being in Iraq. It was only after I (Pharmacy Technician), decided to investigate the drugs he was taking for allergies a bit further. I felt this "maternal instinct" if you will to discuss termination of the Singular with his doctor. I approach it from a decrease in meds for him at the time. He was taking Zyrtec, Singular and Nasonex. I tapered his dose for a period of two weeks. (This was my decision, please follow DR or Pharmacist recommendations for stopping this drug). We noticed a marked improvement in mood swings, sleeping patterns, attitude, house rule compliance. We agree that his therapy was responsible for some of these changes but it was only after we dc'd the Singular that we noticed a change in his overall being. He is now a more stable and friendly 4yr. old.
Trust your instincts as a parent. All drugs carry side effects and you must be well informed as a patient and a parent. Consider the side effects against the usage for the drug. This is our experience with the drug Singular and our Pediatric patient. We will not put our son back on this medication.
April 4th
2008
3:49 PM
My daughter is in kindergarten and has been on singulair for about 4-5 weeks. Her allergies are gone, no more snoring and and no more coughing attacks. My husband did ask the other day what was wrong with her because she had cried about 3 times that day. For any little comment regarding her older brother/ saying we loved him more etc. This is just not like her, now that I am reading this... I am putting two and two together. Does anyone out there know if Clariton will help with allergies as well as singulair?
I am seriously thinking of stopping the singulair.
April 3th
2008
3:33 PM
Both my son and I were on Singulair. As of Sat March 31st we both stopped taking it. My 6 yr boy has been on it for apprx 3 1/2 years for allergies along with nasonex and claritin when needed. He started pre k after being off the singulair for the summer. His first 3 weeks of school had no complaints. 3 weeks into school he started singulair and teacher immediately noticed the difference and brought it up to dr's who said it had nothing to do with his behavior. Over the years he has experienced, problems with excess urination after taking dose at night causing exploding pullups.. changed to day time and that helped somewhat. nightmares/ hyper /moody, irritable, leg pain, stomach pain,angry outburst (he says his brain made him do it), headaches, stuttering,sinus infections that he finally had his adnenoids removed in Feb.. He started kindergarten last Sept and it has been a nightmare..I tried to take him off Singulair in Oct but due to his enlarged adenoids his allergy symptons became so much worse I put him back on. The last few days where up and down as the Singulair was coming out of his system but I was seeing improvements.. Well I decided today to remove him also off the nasonex as I have read similar side effects about the nasonex. He had a pretty good morning today and went to school and came home for the FIRST time all year with smileys for the entire day!! I am overwhelmed with emotion! So happy that he is coming out of the fog and guilt that I have been giving him this medication and didn't follow my Mommy instinct to stop it years ago! I had side effects as well to the point people were telling me my personality had changed. I was irritable, short of patience and having alot of headaches. The last few weeks I was having days of depression and crying over little things especially with the stress of what my son was going through.... I am also coming out of the fog and happy to be back!
-- By sp2008 | Reply | (1) replies | Send Private Mail
April 3th
2008
9:52 AM
Our son was put on several medications 9/07 due to bad asthma and allergies. Since then we saw his behavior begin to go down hill. He would complain of stomaches, not want to go to school, became increasingly more irritable and has mood swings. He was a good student and we have never had a problem with him attending school. Since 9/07 we have taken him to a total of 10 different doctors. Pediatricians, therapist, allergy doctor and three licensed psychiatrists. Everyone said that we were crazy when we suggested that this behavior was linked to the medication. The psychiatrist diagnosed him with anxiety disorder along with school phobia. This has been a nightmare. I finally took him to an acupuncture doctor as a last resort because the doctors wanted us to put him on Prozac for the anxiety. Our family doctor has even suggested he is Bipolar! The acupuncture doctor has recommended a diet change and some treatments with her so that we can remove him from all his medications. I am so glad that I listened to my instincts and did not put him on the Prozac. I was so upset when this story aired about the Singulair. We have been trying to get the doctors to listen to us since 9/07 about the possible link. They still deny the connection and advised us to not remove him from the medicine. But for once I am going to handle things my way and we have already seen a difference in his behavior. We will keep our fingers crossed and hope for the best. My heart goes out to everyone that has had similiar experiences. These doctors should listen to the parents instead of assuming we are all trying to blame behavior problems on medication.
-- By swaldron | Reply | (4) replies | Send Private Mail
March 28th
2008
2:47 PM
I've been blown away also. My son is 10 years old and was originally diagnosed with RAD (Reactive Airway Disease) when he was about 3 and has had allergy and mild asthma issues since. When he was 5 he was put on Singulair, Nasonex, and Zyrtec. My son has always been a beautifully happy child, but the last few years have been extremely emotional for him. He gets depressed, he's extremely hard on himself and is ultra-sensitive and scared about everything. He has never been frightened and was a baby that loved his room and always slept really well. Now I think that I understand why he’s been afraid to sleep in his room alone. Ever since he's been on Singulair he complains and complains of bad dreams. I can't believe that I'm hearing that he's been taking this medication like clock-work for 5 years and all of his problems may be related to this. His allergies are not severe and nor has his asthma ever been - but I was told constantly that he needs this medication. This is unbelievable - I've stopped giving Singulair to him and have made an appointment with a new allergist.
-- By makmom | Reply | (1) replies | Send Private Mail
March 28th
2008
1:59 PM
I have been crying for almost 24 hours now. I cannot believe what I am reading and hearing about Singulair. My son has been to hell and back again and again. I cannot say for sure the Singulair is the culprit. But after reading all of the other stories on this website, I am convinced it is a strong possibility.
My son is 11 years old. He has severe allergies and asthma. He takes many, many medications for this including Singulair. He as been on Singulair for about 8 years now (my best guess because he has been on it for sooooo long.)
My son was diagnosed with ADHD in pre-school. He has taken many medications for the ADHD, but none have ever done any good at all. We thought some of the medications even made things worse. Now, I'm not so sure.
After exhausting all the ADHD medications, our pediatrician sent my son to a psychiatrist and a counselor. The psychiatrist put him on 2 different antipsychotic medications. Again, neither one did any good and seemed to make matters worse. The psychiatrist sent my son to a psychologist to be tested for Asperger's. For those of you who don't know Asperger's is a high functioning form of autism. The psychologist ruled out Asperger's by diagnosed ADHD and Anxiety Disorder. He did not prescribe any medication.
For some unknown reason, I've only given my son the Singulair off and on for the last year. My son had the best year in school ever. However, his pediatrician was still not satisfied. He sent him to see another psychiatrist at Children's Hospital in Pittsburgh. We were told he is believed to have more than one disability. He is believed to have ADHD, Aspergers, Teurettes and a possible 4th medical problem that has not yet come to light.
We are scheduled to see a neurologist at Children's Hospital on the 15th of April to rule out any medical reasons for his tics. We see the psychiatrist again on the 18th of April.
I am so tormented by this recent news. Has all of these problems been caused from him taking the Singulair for so long? Although he has had his best year in school yet, he still has a lot of problems. Are the side effects of the Singulair permanent.
The other side of the coin is this: It is also very scary to watch my son not be able to breath. Asthma can also be life threatening. What is a parent supposed to do.
Also, I now don't know whether to keep these appointments that are coming up. I hate so much to put him through more. He has endured enough doctors and tests to last him a lifetime. However, what if it is not the Singulair and there is help out there for him that I am not aware of.
Please if anyone else has had a similar experiences e-mail me. I would love to hear from you.
God Bless everyone who has been through this kind of hell.
-- By foxhlam | Reply | (4) replies | Send Private Mail
March 9th
2008
3:14 AM
My 12 year old has asthma and has good and bad years. Her asthma seems to be linked with the amount of flu/cold/viral infections she gets in any given year. This past year she has had strep, viral infection, sinusitis, and several viral infections consecutively. She has been hospitalized for masks and has taken 3 course of antibiotics, Prednisone, ventolin puffers, nasonex, and has recently been switched from flovent to advair. Since taking advair, she can't sleep, she has severe headaches every day, her vision is blurred, her asthma doesn't seem to be better, it seems worse, she loses her voice regularly and is up in the night crying because of pain in her throat.
I'm at my wits end as to what to do for her. This has disrupted our lives and she has missed a significant amount of school. She has currently no quality of life to speak of as she is always at home not feeling well.
I'm looking for some help.
-- By kathyhoover | Reply | Send Private Mail
February 29th
2008
12:35 PM
My daughter was put on Nasonex last year for mild fall allergies, which had just been diagnosed. She ended up with heart palpitations, shortness of breath, anxiousness and night terrors. Once I finally made the connection with Nasonex , after three weeks, we had her stop using it and she was fine. During that time she hardly slept was afraid to play soccer because of the heart palps and ended up having a heart ultrasound because our doctor was so concerned. We since use an over the counter med on bad allergy days and she uses an over the counter menthol inhaler during soccer games. For us these alternatives help enough to make up for the bad side effects of Nasonex. By the way, our doctor doesn't agree, we came up with alternatives by talking to other parents. My doctor still keeps asking if we need a refill even though I've insisted she will never take it again.
-- By lovethe20car | Reply | (2) replies | Send Private Mail
February 23th
2008
3:11 PM
VERTIGO!
I've had bouts of it in the past but nothing like this! Falling down, unable to drive, to the point of vomiting. I thought it was from allergies (which are bad but if I'm taking the Zyrtec... as well as Nasonex and psuedofedrine... and I am not getting better... what was I thinking?). Went to the doctor who gave me a 3 more medications and exercises and told me to continue the Zyrtec. Then, after starting the other medication and feeling better, I took Zyrtec before bed and my symptoms got worse again! Thankfully I realized what was provoking it.
I contacted Pfizer to see if they were collecting additional information to fine tune the side effects info they have now.
February 5th
2008
5:43 PM
I've used Nasonex for at least 5+ years now. I thought it was wonderful. BUT now I realize that some of my other health problems may be due to Nasonex. For years now I am tired, shortness of breath (which is getting worse) and chest pains. Has anyone else have these symptoms?
-- By gadee | Reply | (4) replies | Send Private Mail
Singulair (19) Nasonex (6) Advair Diskus (2) Lisinopril (2) Avelox (2) Advair HFA (1) Zyrtec (1)
September 4th
2008
10:34 PM
I just started Singulair about a month ago. Before I started taking the tablets I remember hearing some negative information on the news about the medicine. I found this web site and read about all the side effects before taking my first tablet. Even though there was so much negative information I thought I would give the medicine a try anyway. I have always been in good health and only needed this medicine for seasonal allergies. Part of me said "I know the side effects wont affect me!" Well I was WRONG! I have had the worst nightmares!!!
The nightmares started the first night I started taking Singulair. I continued taking the medicine hoping the nightmares would pass. Well, they have only got worse. However, last night was horrible. Not only did I have my nightly nightmares I had a hallucination! It started when I heard my 2 year old son wake up. He first opened his bedroom door then drank some water that was on his night stand, then was on his way over to my room. I got up to put him back in bed just to find out his bedroom door was closed and he was sound asleep in his bed. I haven't had any other side effects, but I think this is a good enough reason to stop taking the medicine. Does anyone have any other suggestions for another allergy medicine I can take. I've already tried Nasonex and Flonase they don't work nearly as good as Singulair. Any suggestions would be great thanks!
-- By vartis | Reply | (1) replies | Send Private Mail