July 5th
2008
1:21 PM
I started taking 80mg a day for a rash I developed after the Celestone didn't work. This has been the worst hell I have ever gone throught, I would much rather have given natural birth. 80mg a day for 5 days, 60mgs a day for 5 days, 40 mgs a day for 5 days, then 20, and 10 for 5 days. I am on the3rd day of 40 mg. My face is so swollen. I have had to cancel social events as I cannot even carry on a decent conversation. The nervousness is over whelming. I cannot work . I come home and drink alcohol to take the edge off, which the affects are greatly exaggerated, but no hangover in the morning, which I'm sure is putting my body through hell. The Dr. gave me 25mg of vistarill to help me sleep. Wonderful drug! If it wasn't for my dogs, I would be insane, as they are the only living creatures I can stand to be around. I am going to cut my dosage to 3 days instead of 5 to start weaning myself off. I read on another web site that the moon face should start to dissapear when I go down to 10 mg a day. Thank GOD!
-- By twoodrow | Reply | Private Message me
December 14th
2007
9:00 PM
I got it installed yesterday (we call it the cell tower) and it was definitely more painful than I'd been lead on (not by my gyn who warned me to take pain reliever). I told him I should have gotten an epidural for it. (Trust me, I was glad I did a C section over natural birth after that)
I cramped but it wasn't anything worse than when I got my periods pre Pill. It wasn't until after I got breakfast then went to pick my son up at preschool that it hit. The pain was intolerable. The nausea was horrific. I was praying for death, fetal position in my SUV. I was getting horribly gassy and feeling gross. I managed to get my son and bring him home but just barely.
Once home, I got my son out of the car, into the house and ran into the bathroom. Once there, everything that I had eaten or drunk in the last 24 hours exited my body. My son, two years old, seemed to understand that Mommy was under duress and was very gentle with me. Which is highly unusual for him. But, I was there, shaking, for a few minutes while my body was doing all out, no waiting.
After that, I felt a lot better. My son went down for his nap 45 minutes later and I did also. That helped tremendously.
Twenty four hours later, I feel all right. I'm not as aware of it being in me. I am very aware of the strings they use to remove the Mirena from me being 'hidden' behind my cervix. But, it's only been 24 hours. We'll see. My doctor wants me back in two months to make sure I'm doing good with it.
June 13th
2007
5:19 PM
Hi! I am a 36 year old female and have been on this HORRIBLE HORRIBLE drug (prednisone) for 2 1/2 years now..... Hopkins doctors still arent sure exactly what i have. My immune system is attacking my liver so to speak. My body is basically looking at my liver like it doesnt belong and is attacking it with large multiple lesions that is eating it away... the good thing is that it hasnt interupted the functioning of it yet but is leaving horrible scar tissue. I have been in and out of the hospital 13 times, have had just about every test imangable, 12 liver biopsies and they STILL have NO clue! They are leaning towards Church Straus desease and Wegners but the weird thing is i have half symptoms of both. The first year they had me on 80 mgs of prednisone a day which had seemed to put me in remission for about 4 months and then they came back even worse so i was put back on the prednisone, 80 mgs a day AGAIN along with 100 cc's of Methotrexate, another not so nice drug... i had EVERY SINGLE BAD SIDE EFFECT OF BOTH DRUGS!! This second time around was ALOT WORSE for some reason!!! My body DID NOT LIKE IT!! Nausea, hair loss, moon face, gained 40 pounds (and i was in great shape, worked out, i am 5'4 and was 110 pds!), EVERYTHING was swollen, legs, ankles, arms, neck, face, had the camel hump, fingers and especially my belly!!! UGH!!! Have bone, muscle, and SEVERE joint pain! Kaliedescope vision, dry eyes and then had mucus discharge (kindof like pinkeye), headaches, intestinal problems.... VERY CONSTIPATED and then the opposite!!! I literally felt as if i had turned into a man in my behind!!! Sorry to be so gross but thats how bad it was!!! Jaw problems, teeth and gums as well, skin sensitivity and have little bumps all over my skin (kindof like tiny little moles), itchy, broke out with acne and pretty much NEVER had more than 1 pimple a month, had facial hair (VERY DISGUSTING!!!! HAD IT WAXED EVERY WEEK!!!!) and then on top of all of that the swelling of my liver not to mention the PAIN! I was recently in the hospital again with 12 new lesions, pneumonia, and 104 fever. My doctors said the Methotrexate was the cause and i was having a bad reaction to it so they now have me on 100mgs per day of Azathiroprine. I am now finally down to a maintenance dose of 5 mgs of prednisone cause my body was starting to reject that as well. I thank god that i am now down to that dose!!!! It as only been 2 wks and the withdrawl symptoms are horrible worse then they were but i know what is to come =) loosing all this fluid and all of the HORRIBLE side effects i listed above. I will have to be on the maintenance dose of 5mgs the rest of my life and can live with that cause when my body gets back to somewhat normal i wont even notice that im on this CRAP!! I will be on the high dose of Azathiroprine for a few years and then on a maintenance dose of that as well for the rest of my life to keep whatever this is that i have under control.... the scary thing is is that they arent even sure that all of these meds will even work...... im a guinea pig..... The only thing that i am on out of all 25 pills/meds that i take everyday that works is my pain meds. Oh and i also forgot to mention that i had to be put on some "HEAD CASE" medication (thats what i call it =) ) for depression. Its a low dose but it does seem to help... I am terrified of what the future holds but continue to be strong and have an amazing support team... my fiance and family =) I dont even want to think about how i would be without them. I go back on the 25th of this month for my MRI so please who ever reads this keep me in your prayers as for all of you are in mine. I feel for each and everyone of you that has to endure this horrible drug everyday and i hope that everything works out you. =)
Sue =)
-- By sue36 | Reply | (5) replies | Private Message me
July 5th
2009
7:32 PM
I'm posting this message b/c I have had years of experience with Mirena and want to share it. My experience has NOT been horrible. I got my first one inserted 4 years ago, had minimal side-effects, then wanted to have another baby. I had it for 2 years before I removed it and a month later was pregnant again. IT DID NOT HURT TO HAVE IT REMOVED!
-- By mommato3 | Reply | (5) replies | Private Message meI had a second one inserted after the birth of my second child and have had minimal side-effects. There are only three things I would like to share that I have considered "annoying" about Mirena. Acne, yeast infections, and my period has not changed or stopped...still 7 days every 4 weeks. And, as I'm reading all of these postings I'm starting to realized that the overwhelming theme here is not just Mirena...its that we're all new mothers. Motherhood brings a whole new world of problems...hair loss, hormonal imbalances, weight gain, lack of sleep, (oh and to the person with the ganglion cyst...could it be from lifting that heavy car seat in and out of your SUV with the same wrist that's bothering you?), abdominal pain from c-sections...or natural birth, depression, anxiety...the list goes on and on. I would only warn some of you that taking out the IUD may not fix all of your problems and with the risk of possibly getting pregnant again, it may actually exacerbate some of the so-called "side effects" by adding another child to your family. Good luck with your decision, but I wouldn't necessarily blame it all on that little IUD.