May 27th
2009
5:12 PM
I have been on prednisone since I was two years old (I am now sixteen) because I have Autoimmune Hepatitis IIa. I would like to point out that there is still a life worth living being on prednisone, maybe I say this because I do not know life without it, but at least we're alive! Last year I had a flare up of the AIH and had to 6x my dose of prednisone. It sent me into a spiraling depression of constant sleep, crying, hopelessness etc....but I made it through. Just PLEASE keep hope that things would get better, because I know what it's like being on the dreaded drug better than most.
-- By xxanonymousxx | Reply | (13) replies | Private Message me
May 19th
2009
11:21 PM
I was diagnosed with Rheumatoid arthritis at the end of 2007 and have been on prednisone since then. I started on about 105mg a week and am currently trying to reduce it but it is really hard as the moment the dosage goes down I lose all mobility and cannot even get out of bed. I am only 23 years old and really feeling the disease to the extent that I cannot even cope with my life. The prednisone has really taken its toll on me and the side effects are crazy! I just want to go back to my old self as I am finding it sooo hard to get through a single day. My side effects include:
Insomnia, tooth sensitivity, depression, anxiety, mood swings, moon face (my face is so swollen that I cant stand looking in the mirror anymore, dizziness, temper, feelings of uselessness, nightmares, night sweats, water retention, and to top it all off the arthritis is getting worse and I am in constant pain. Is there anything anyone can suggest then please help me!
-- By rowrow | Reply | (6) replies | Private Message me
April 22th
2009
6:58 PM
Hi,
I have posted here before, and now I'm wondering about you who have gone off the ring after using it a few years, how your body has reacted to the stopping of Nuvaring? Has anything changed?
I was using it for about 2 years and now I have been off it for about 3 weeks (first 1 regular week off and then I just didn't start a new ring). I haven't had my period again after going off it (just during that regular 1 week off), so I'm not sure how my body will work now that I have stopped using Nuvaring after about 2 years of using it. For those who have gone off it after a few years, how has your body reacted?
Thank you!
November 10th
2008
11:12 PM
I just recently had the mirena iud inserted. Oct 30 2008. 3 months after having my first child under a normal vaginal delivery. When I have asked my doctor regarding any side affects he stated that women may have heavy bleeding the first 6 months/ and that after those 6 months that your periods will actually disappear.
The first week that I had the mirena in, I began bleeding almost instantly. Blood clots the size of my closed fist came out of my body from the uterine wall I suppose. I went through a super tampon/ and a pad in an hour and a half. ( I am one of those women who normally use a super tampon maybe once in a while/ normally a reg. size does the job) This bleeding has not stopped since the mirena was inserted.
Looking at a computer screen is part of my daily routine at work. It seems as though my eyes feel blurry through out the day as I am working. Towards the end of the day I can barely stand to look at it. This has never happened to me before. It is almost like I want to turn all lights off and sit in the dark, with no noise(headaches).
Of course sex drive is at the all time low. Who is in the mood to go for it when you are bleeding with a terrible headache?
The first few nights I had a horrible time falling asleep and staying asleep.
Well... at this point I have had headaches... all day for a week now. My head hurts like someone is pounding it against a wall. I have not had a headache in years. My stomach has been upset/ feeling as though I may have to throw up.
I am afraid that I may start seeing the other symptoms that ladies have talked about.
When you had the symptoms did they all happen at once or one at a time over different time periods?
July 29th
2008
3:29 PM
I've posted several times before, but it ahs been a while since I've updated on here. So a recap: Almost 33, have 3 kids(ages 13,11,and 7) Had insert on 12/27/07 after having used depo for many years with no major side effects...issues continually worsened over next few months. Had removal early May, 2008. Several issues cleared up within the first few weeks after removal, such as the joint pain, swelling, heartburn. Brain fog and moodiness became much better. Libido returned gradually as well. But I still have had no success in losing the weight gained over the last 6 months. Still 30 pounds heavier thatn was at insertion...increased workouts, decreased caloric intake, only lost 4 pounds in almost 3 months. Family doc even put me on meds to help with the weight loss, and they had opposite effect...I actually was hungry all the time and felt completely stoned! Acne still unrelieved to the point that I know have an appointment for a 2nd dermatologist as my first one ran out of options for me! Completely unable to clear up my face. Family doc wants to put me on antidepressants, but I don't' think that's the answer. Plus after all the problems I've had...don't trust a whole lot of meds anymore...especially ones that are known for reducing your libido! (Plus after all this and to STILL be overweight with acne...he'd be pretty depressed too!) Bloodwork all came back fine...actually a "Picture of perfect health!" The only thing he did say was that my testosterone level, although in normal range, was at the high end of normal. However, as I'm still young 30's, no one tested my hormone levels before...so I don't know what is normal for me. Will be talking to him about using an anti-androgen, like aldactone, to see if that will help. Not using any form of hormonal birth control any longer. As old-fashioned as it is...I now use a diaphragm and spermicide...and I'm actually pretty happy with it. I'm happy for all those ladies who had a flat belly again within a few weeks, and their faces cleared up almost instantly...but I must admit I'm jealous. I wish it was that easy for me. Good luck to all of you. Will post again in the future.
-- By nyrek | Reply | (1) replies | Private Message me
December 18th
2007
6:27 PM
Hair loss! My hair was falling out by the handfuls after about 5 months on Yasmin. It first I had no idea that it could be the BC, since I have never had any side-effects like that from any other kind. I stopped taking the pill immediately, but my hair still falls out! I've been off Yasmin and any other BC pill for over a year now, and my hair is still falling out! Help! My Dr. is completely ignorant and telling me that he's never heard of any side-effect like that. I also have really bad acne. I had thick hair and completely clear skin before I started this BC pill. What the heck is happening? I had all my hormone levels tested as well as thyroid, and those are fine. Any ideas? Anyone else having this problem? Anyone found a cure? What is going on, and how do I get my hair back?
-- By eknowlen | Reply | (6) replies | Private Message me
October 25th
2007
6:06 AM
My daughter has been on Yasmin for almost a month and the side affects for her are terrible. She has experienced major depression and pms symptoms. I'm relieved to know that these symptoms are "normal" for this type of BC. We will probably switch to something else.
-- By deej85 | Reply | (1) replies | Private Message me
March 14th
2007
9:25 AM
Hi Girls,
I haven't posted in a while, but I was wondering how everyone was doing with the weight gain. I have now been off Yasmin for 1 yr. I am feeling really great, I am now back to being able to run/walk or rollerblade 4-5 miles a day 4-5 times a week. My cycles are more normal than ever. Not exactly 28 days more like 38, but I'm ok with that.
The thing that is still getting me is that I not only can't lose weight, I'm still gaining it. I think I have now gained 40 lbs. I am taking vitamin b as well as women's one a day. Don't really want to take any more drugs though.
I had my thyroid checked when I was on the pill and going through the awful hell, had most of the side effects you have all posted, tingling, chest pains, anxiety, the list goes on. But they said thryoid normal and of course nothing wrong with me. Like most of you went to a zillion doctors about a yr. ago. But decided I was just going to give my body time to get back to normal.
Has anyone had similar problems with their weight. I just don't get it, I couldn't feel healthier, or be any healthier with my activity and lifestyle, but I just feel like I'm getting bigger and bigger, and according to the scale I'm right!
Any thoughts would be great. Silke how are you feeling?
Thanks,
Hill
December 29th
2006
8:50 PM
Hi again. I think some readers may be misunderstanding what I am talking about when I posted my story and talked about natural progesterone. Natural progesterone is a bioidentical hormone derived from plants. It's only side effects are that it may make you sleepy, and it may calm you. It is NATURAL; I am not talking about synthetic hormones like in BC pills or HRT. You can buy natural progesterone cream in any health food store OTC. I happen to have mine compounded into a capsule in a compounding pharmacy. Natural progesterone and other bioidentical hormones are not manufactured by the pharmaceutical companies, and are therefore, not pushed by doctors. You will not hear about them from your general practitioner or your OBGYN. They are generally recommended & prescribed by holistic & wellness minded physicians. Dr. John Lee is a famous author who has written many books on the subject if you want to research him for more information. Or just google bioidentical hormones for more information. I just wanted to clarify what I was recommending. I think some of you just heard "hormone" and got scared. I totally understand. I think synthetic hormones are evil too. My friend and I have been suffering from anxiety as the result of Yasmin for a few years now, and we have tried several things together trying to recover ourselves. This is the only thing we found that works for us. I'm not saying it is the answer for everybody.
-- By tclark | Reply | Private Message me
December 17th
2006
2:38 PM
flowerbabies sound like your doing well
how long have you been off?? A year omg Idont know how you guys did it without any help or any medications or any counselors its amazing. I wouldnt last a year like Iam now no way!
My eyes are so puffy from crying last night they look terrible
I hope with the Loprexa that I can just use it for a month or two and be back to the old me and get off of it the pharmacist said as soon as you feel good you can try to get off it so did my doctor.
Iam beginning to wonder if I wasnt having low estrogen low progesaterone symptoms for a long time prior to Yaz nothing like this at all but i was a little anxious sometimes if I went to a mall or drove on the freeway.
Hormones I hate them
Iam still taking the natural progesterone cream if iam a 2.0 beginning of my cycle thats low I think is it.
I know nothing about the levels.
Did I tell anyone I was iron deficient anemia going into this mess thats part of why my doc put me on Yaz.
My blood showed it is up now but I was a 8 or 9 now Iam a 12
I wish I would gain weight flowerbabies Iam so thin it terrifies me
-- By kim123 | Reply | Private Message me
December 12th
2006
9:15 AM
hi kim123.
you mentioned that you have been given natural progesterone,i believe it can sometimes make you feel a little more anxious for a little while but that it should eventually settle,it's something to do with the receptors,if they are full of estrogen,when the progesterone is introduced it has to release the excess estrogen to be re-filled with the progesterone,i have not tried natural progesterone but i am so scared of playing with my hormones now that i have been taking a low does agnus castus capsule daily instead of trying the natural progesterone cream. our hormones are so complex it is really hard to know what is the right thing to take or do. you may be feeling more anxious if you are somewhere near ovulation or menstruation? look up pmsa. you may find many of your symptoms,i get virtually all of them so it seems to be a really exaggerated case of pms. pmsa is anxiety lead and pmsd is depression lead. you may find that that constant feeling under your skin is anxiety and that it will lessen with time as the anxiety itself will.magnesium is definately a good idea,i take it daily and i'm sure it helps me. eat a diet high in fibre and drink loads of water,the fibre helps to remove excess estrogen and the water will speed the process as it keeps your kidneys clear and aids digestion. i hope some of this will help you. as voicesi says,hang in there it will get better,please stay positive,remember the good things in your life and really push yourself to do the things you love,you will get stronger and more confident again i can assure you of that,this time last year i wanted to die,i felt terrified all day,everyday,i cried all the time,i couldn't eat,sleep, or care for my children. i thought i had suffered some kind of mental breakdown and was going to be institutionalised, now 8 months after i stopped taking yasmin i can go out again,i can enjoy my life and enjoy my children again,in a strange way this experience has shown me how wonderful my life was,i always thought it was dull,but i just took it for granted,i will never do that again,i think of every day as a blessing because the story could have been so different if i had not found this site and these amazing women that shared their experiences and gave me the help,advice and courage to find my way back to health again even though many were and still are suffering themselves,you will see me posting on here very frequently as i try to return the help and support that was given to me to other people,i may not always be able to help but sometimes it can help just being told that someone else knows how you feel and has been where you are now,it always comforted me.
best wishes to you kim123.
sarah
-- By flowerbabies | Reply | Private Message me
May 5th
2006
9:01 PM
Hi all,
I have had very similar experiences to all of you. My obgyn also spoke so highly of Yasmin and I trusted her so I decided to go on it. I probably used it for 7-8 months in total. I stopped using it about a year ago. The first month was horrible. I felt like a 30 year old woman in a 90 year old body. I had been walking to local shops less than 1/4 mile from our house but couldn't even climb up the stairs in the house to the second floor anymore. I had the eye twitches that someone else described. I had only one normal period within the last year. The others I induced with a natural progesterone cream I bought at the health food store.
When I was on it, I noticed heart palpitations, hair loss, eye twitching, heat flashes and extreme cold hands. Sometimes, I could not get warm at all. I had trouble sleeping, couldn 't get to the gym, complete moodiness. The first few months after stopping I gradually started coming back to myself. After 7 months, I did get a normal period as I said but have not had one since then.
I am really concerned about how this has affected my fertility. I am 31 years old, have been trying to following my cycles with BBT and checking for ovulatory mucous and nothing. It is really depressing.
Luckily, after a few months of being off of Yasmin, my hair loss stopped. The frist few months though, it came out in clumps. I went to my obgyn and she said my scalp looked fine (but it was like I had severe dandruff and falling out so badly). Needless to say, I never went back to her.
I also started seeing a naturopath who has been great. I am taking lots of vitamins and nature herbs to try to regulate my cycles.
Has anyone else had a complete loss of getting their period and were able to get it back naturally? If so, I would appreciate hearing your story. This is driving me crazy.
Thanks for your time and hope everyone gets through this soon!
-- By minoosh | Reply | Private Message me
Yasmin (7) Mirena (3) NuvaRing (2) PredniSONE (2) Lutera (1)
November 2th
2009
11:49 AM
I am 49 years old and got the Mirena for heavy bleeding / perimenopause systems. I was told I would probably stop having periods a couple months after insertion and that appealed to me. I had it put in place on Friday October 30. Insertion was uncomfortable but over quickly and I did not bleed much as a result. I woke up Saturday nauseous with a head ache and tingly feelings in my extremities. I also felt this thing inside me. I laid on my side, I could feel it. I felt a heaviness inside. I took tylenol and Pepto for headaches and nausea but it persisted. I felt very tired and my skin itched. Sunday the same thing. Tingling, headache, nausea and the sensation of having a foreign object inside. My abdomen hurt too. I took tylenol and Pepto but as the day went on I felt worse. I wanted it out! I called a Consulting Nurse who recommended I go to Urgent Care. I went to Urgent Care last night. My blood pressure was very high as well. The Dr said it was a reaction to the hormone. I got the think taken out and felt immediately better. Today my skin itches but that will go away. I have decided to try natural Progesterone cream and other natural methods vs. synthetic hormones.
-- By wberry22 | Reply | Private Message me