March 30th
2008
9:52 PM
Well, night two was really tough. We had our son sleep with us so that we could keep an eye on him during the night and let's just say that my husband and I hardly got any sleep. Our son seemed as if he was going through some crazy detox...he trashed around violently kicking and crying in his sleep. He never actually woke up....he just had these episodes at least three or four times during the night. It was almost impossible to console him during these episodes - it was as if he did not know we were even there. I submitted my original post to Dateline NBC....I think we should all do the same to various news affiliates. Hopefully tonight will be better, my husband is doing our bed-time routine right now.
-- By mommybaby | Reply | (2) replies | Private Message me
March 29th
2008
7:49 PM
I feel sick to my stomach over this. I didn't see the report on the news, but my husband told me a little about it. I didn't look till today and when I read all these postings I can't believe it. My 7 year old daughter has been on Singulair for several years. The past couple of months she has been having some anxiety issues. She started talking about death. Fear of others dying, and today she told me she didn't want to die. She is afraid to go into any room herself, unless someone goes with her (which was never an issue before), and she is super sensitive. Everything gets her upset. I can't believe this all could have been caused by a drug I thought was helping her prevent her asthma. Last night was her last singulair. I hope she gets back to her old self soon.
-- By dml102 | Reply | (1) replies | Private Message me
March 29th
2008
1:19 PM
LET'S RAISE AWARENESS TOGETHER and stop more damage from occurring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become.
Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address:
******
I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at:
To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses:
20/20
147 Columbus Avenue
New York, NY 10023
Primetime
147 Columbus Avenue
New York, NY 10023
Together we will do something to help avoid more tragedies.
Lourdes
-- By lulycelsa | Reply | (1) replies | Private Message me
March 29th
2008
9:10 AM
My almost four year old son has been on singulair for a little over two years now and I am SICK to my stomach after reading all of these entries.
Our son was such an amazing baby, he was very even tempered and behaved beautifully. After some chronic sinusitis and environmental related allergies he was placed on Singulair 15mg granule packets once/day. It was a gradual change in his behavior but very noticeable.
Our wonderful child became very irritable, hipper, restless, moody, and overly sensitive, Our son went from sleeping trough the night to waking several times a night. We are lucky if we have a couple good nights a month. He has also been tougher to get to sleep at night he goes from 8am to midnight on most days (no naps) and will stumble and fall - and he will still protest sleep. On other days he is so hard to keep awake sometimes crashing after school, missing dinner, and going thought the night.
He too like others has been complaining of leg cramps, but I just thought it was a tingly foot....after he would continue to walk around for hours limping, I just thought he was joking. But, the funny leg cramp would always make a reappearance.....and now this could be why????
He is very physical with us and his brother....always hitting and kicking intentionally. His behavior was only exacerbated by the recent birth of our 6 month old. My husband and I have been brought to tears and worn out by his extreme behavior. One moment he is happy - then aggressive or moody and brought to tears....he is like an emotional roller coaster.
He always has a blast at pre-school but completely loses control and freaks out when it is time to go, he says he hates school and is miserable there, he cries so much he throws up. He also goes through hunger strikes, when he is so emotional he choses not to eat. It did not used to be like this!
Coincidental or medical poisoning????
After reading all of these entries, there is no doubt in my mind that Singulair is the culprit.
This drug should be recalled and the pharmaceutical company should be held liable and accountable for this. Our lives have been disturbed and our children's health compromised, what for....a PROFIT?
The FDA needs to do more extensive testing on pharmaceutical drugs and implement more stringent guidelines. and the prescribing doctors shouldn't push these drugs so emphatically.
As of last night we stopped the medication and are relying solely on the Zyrtec OTC. I pray for a change.....we miss the little boy we used to know :-(
-- By mommybaby | Reply | (4) replies | Private Message me
March 27th
2008
11:31 PM
Ohhh Lord now as I am writing this to you all i am crying b/c my mother told me about this after she saw it on NBC Nightly news tonight now when she told me about the suicidal thoughts that people were having after taking this medication thats what opened my eyes b/c i thought it was b/c i was stressed or something I have these thoughts on and off and also the waking up for no reason in the night and the stomach ache i started having about three months ago I started taking Singular damn there 2 years now for my damn asthma that i got from when i was in the Army now what kind of craziness is that I definitely have bad mood swings im just upset and shocked about this I mean how can these so called Doctors prescribed these damn pills to us and we are bad off then when we stared after taking this stuff I am soo pissed off right now and you know what I am thinking about suing the FDA my damn self b/c this is not right
-- By msmika15 | Reply | Private Message me
March 27th
2008
7:02 PM
I wrote a post on this site a couple years ago about my son having bad emotional, behavior problems, and leg cramps along with other issues. Tonight on NBC news their top story was about Singular and suicide. Interesting huh? Watch yourselves and your children.
-- By dee13ss | Reply | Private Message me
March 15th
2008
7:17 AM
I am posting again to say to click on SINGULAIR in the news on this page and you will see a story on exactly what this drug is capable of.This story was aired in New york but also went out to other nbc affiliated stations.I am the mom of the boy that died ,and am now planning a trip to Washington DC with a NY.Senator and Congresswoman.We are going to speek to the FDA and request that this drug be reevaluated for safety reasons.If they will consider also a black box warning on the label that would also help parents to know the seriousness of the side effects.If you have questions you can send me a private email and I will do the best I can to direct you in helping in your State.
-- By kate2 | Reply | (2) replies | Private Message me
March 4th
2008
10:51 AM
I posted the website for the story on new side effects, it was cleared only to soon, the nbc affiliate feeds are picking up the story about SINGULAIR around the country,try to watch it is very informative!!!!!!!!!
-- By kate2 | Reply | (1) replies | Private Message me
April 8th
2003
1:37 PM
URGENT URGENT death-connected symptom (swelling and pain in legs):
The death of NBC journalist 39 year old and otherwise-healthy David Bloom in the Iraqui war last weekend made something "click" in my mind: The cause of his death was a pulmonary embolism, a blood clot in the lungs brought on by sitting and sleeping in a cramped position (knees up under chin, in a Humvee) for days at a time, and (HERE'S WHAT IS IMPORTANT) he was dehydrated.
Taking Neurontin dehydrates a person, and many have posted side-effects of leg pain and swelling. Dehydration reduces the blood's ability to flow freely -- or rather -- increases clots, which then can travel to the brain (strokes) heart (heart attack) or lung (pulmonary embolism).
It is the same thing that has killed people who sit in airplane seats for long overseas flights, while not drinking
enough water.
Our society discourages us from drinking as much water as we need, and urinating frequently enough -- from lack of public restrooms to not letting school children go to the bathroom frequently enough (left to itself the human body will void the bladder every 20 minutes).
To all my fellow Neurontin userids: drink more water, your life could depend on it! JanK
-- By jank | Reply | Private Message me
May 22th
2008
6:51 PM
I've noticed that NBC and The Weather Channel appear to be two of the biggest advertisers of Singulair. NBC can always be sure to have one on during the evening news, at least here where we live, on our local NBC channel. There for awhile, I was logging what time, and what channel I saw the ad. The ad only lists the basic side effects that aren't even dangerous. Merck must be paying NBC the big bucks because they still haven't dropped it. I don't know, should we bombard NBC with letters of negativity or boycott or something to get their attention on this murderous drug?
-- By kate60 | Reply | (3) replies | Private Message me