June 10th
2008
2:25 PM
Well, we just got out of the ENT and he couldn't believe that his ped put him on Singulair. He said he didn't like it, it wasn't a good drug, and hadn't heard of many good things about it. He also told me to take my son off immediately, to bad I already had. He also wanted me to put him back on Zyrtec but only when needed, not every day like he had been taking it. Told him about how the neb. had been talked about so he listened to my little one's lungs and he said that they are all clear and there is no need for one. While I was in this appointment, his ped. called. She said that she had never heard of any side effects with this and she wanted him to stay on it for a week to see if it worked or not. Sorry we aren't doing that, we had four doses of it and that is more than enough to say we aren't staying with it. This is just his first full day off the med and I shouldn't get all worked up but while in the waiting room to see the ENT we had two huge fits and even hit his head on one of the chairs because he didn't get his way. The ENT said to give him about a week to go threw "detox" and get it out of his system and then he should be back to himself.
Also, on top of the big mood changes and swings we didn't sleep good last night and had another fit of rage in the waiting room of the ENT. Not fun at all.
-- By coopersmom | Reply | (2) replies | Private Message me
June 7th
2008
12:17 AM
My baby (1 yr) was just prescribed Singulair from a CHOP doctor. I am so thankful that I found this website. I certainly will not fill the prescription. I was hesitant at first anyway because he only had one fluke "asthmatic" insident that sent him to the ER (but has many food allergies and dog allergy). Anyone have any advice on where I should go from here? Honestly, I am afraid to go back to that doctor and they told me it would be very difficult to switch doctors at CHOP. Everyone knows CHOP is one of the best. It is so hard to get honest advice. Every doctor thinks you will sue. Or they're out to use you for their research. He thinks this was the beginning of asthma and it will get worse. It was a scary episode...first time I ever called 911 for one of my children. Breathing is obviously very important, but he never has any problems breathing otherwise (running, laughing, playing) Just got a cold that turned bad quickly. Should I prevent with meds.? My thought is to just keep the neb. and Albuterol handy. I hate giving daily meds. to a developing baby. My gut says to let God develops his immune system naturally. (Not against periodic meds. - So thankful for Benadryl!) Please help! Mommy of 4
-- By mommy4thelord | Reply | (3) replies | Private Message me
March 28th
2008
10:35 AM
Hi All -- I am reading the effects that you have posted, and while I agree that after taking singular for 4 years, I do have the some of symptoms listed... BUT.. NOW I BREATH... I was living from nebulizer treatment to treatment, on Prednisone 4-5 times a year, had no energy and was afraid to do any exercise at all because of lack of breath. I used to negotiate with my Doctors on trying everything before taking Prednisone because of the side effects which are also mood swings and major anxiety... since taking Singular I have had a life -- I am aware of my asthma and allergies but have had pneumonia only once...
PLEASE -- Weigh the options... consider death through lack of breath and life - compared to suicide ... both are not living.
While the anxiety of Singular is real - through experience so is the ability to breath, live and when you are aware of it - the anxiety is manageable. NO DRUG IS WITHOUT SIDE EFFECTS... you need to balance the pro's and con's for you and your family. Make conscious and informed decisions, work with your physicians.
-- By now_i_breath | Reply | (2) replies | Private Message me
November 20th
2007
3:26 PM
My Asthma Doctor wants me off Toprol ASAP - he thinks that it is making my asthma worse. Said to go to my Primary Care Physician and switch to Diovan - said that immediately switching to Diovan means that I do not have to wean off the Toprol - does anyone know if this is true? Any help would be greatly appreciated. I take 50 mg of Toprol daily for HBP.
-- By vanessa74 | Reply | (1) replies | Private Message me
September 24th
2007
6:08 PM
I have a daughter that is 12 yrs old. she has been on advair for about a month and half. she has been having dizzeness,bloody nose, gaining weight and she is also taking singular and xopenex and albuterol neb. i to would like to get her off of all these meds. i also don't feel that advair is any help. she stills wheezes almost every day. i like to thank you people with all the advice you have put on this page. i am now going to take her OFF of ADVAIR.
-- By dnewman | Reply | Private Message me
July 20th
2006
11:56 AM
My almost 7 yr old has been on Singulair since he was 4. He was first diagnosed w/ allergies at 3 1/2 after having 3 sets of tubes, several episodes of pneumonia & bronchiospams. He was put on Pannaz (aka Blues Clues medicine since it's a bright blue color) first and has been on it the whole time just increasing the dose as he's grown. We added the Singulair when he got to the point of playing, coughing, gagging & puking. These 2 meds combined have done wonders for him! We've tried using 2 other meds in replacement of the Pannaz and he started the whole coughing, runny nose bit after 3 weeks.
My 4 1/2 yr old was put on Singulair last fall, Extendryl & QVar (for asthma) in March. He hasn't had the ear infections that my other son had, but he had the virus that turned bacterial and then microplasmic all in 1 1/2 weeks, the pneumonia, the bronchiospasms ~ we haven't used neb treatments since March.
For us, these combinations work wonders!
And about the cavities post I read, my kids just went to the dentist on Tuesday for their yearly check up and all are cavity free. They don't floss either. So I can't say that I've noticed a correlation between using Singulair and cavities.
-- By maryjcurtis | Reply | Private Message me
March 13th
2006
7:47 AM
My 3 yr old son was diagnosed with croup. Several days later it appeared to be going towards the lungs. His cough was more asthma-like so started neb with albuterol. A couple days later, he was still on neb but coughing almost nonstop. He was exhausted that night but hadn't been able to sleep b/c of the coughing. First, tried cough syrup. At two hours, no relief. Thinking back to last Spring and the cough relief he had with Singulair, I pulled out his still valid Rx and gave him one. Great relief! Around the same time the next night, coughing attack returned so hubby and I thought we'd try to give him relief one more night. Next day, we awake to a terror child. Crying and fits all day. That night, we notice he's talking in his sleep and grinding his teeth so loud we can hear it in our room. His last dose of Singulair was Thursday night. It's Monday AM and I still don't have "my son" back. If anyone has reassurance on how long it takes to recover from this, please email me at ******. I am praying that my sweet, laid-back son returns (sure, he'd throw the 3 yr old attitude out occasionally). This angry, irrational child I'm living with right now just breaks my heart. He doesn't deserve this... I want my happy, cuddly sweetheart back! There are so many cases like ours that I've read that it just makes me sick that I wasn't warned. He will never take Singulair again and I'm going to research more natural solutions for allergies, etc. What a tragedy that I hope doesn't take a long term toll on my son!
-- By helpmyson | Reply | Private Message me
January 25th
2006
2:48 PM
My son of 5 started taking Singulair in fall of 2005. It was a wonder drug in that the use of inhaler ended and we where using the neb it at least once per day. He is a typical boy but after a month of use his aggresion and anger level started to rise. He threw toys, crawled under a table at school and not come out, and cursed his teacher. After other month the aggrssion grew worse. Soon throwing toys was not enough, he started to go after others with hitting, biting, kicking. Today he had to be pulled from school for he destroyed his classroom and outright attached the teacher.
We went to the doctoer a few days back about his increased anger issues only to be told its not normal and he should see a mental health worker. Now today I find this website and wonder why the doctor did not mention this potential side effect as a possible cause.
So he is off the drug as of right now and I am only hoping no perment damage is done and I prey that I get my son back. I will put up with inhalers and the the like and lord help the manufacturer if permenant damage was done.
-- By peggy.weber | Reply | Private Message me
October 2th
2008
7:19 PM
I have a 26-month old grandson who has been on Singulair for "27 DAYS". His pediatrician knows that his immune system is already compromised due to some developmental delays. However, before he started taking his Singulair he was a very happy, funny and loving child. Within 2 weeks on this medicine we started to notice a few changes in him. He started waking up at night "screaming" and he has been sleeping through the night for at least a year now. And when his mother would go in to get him out of his crib, he would be so frightened and afraid to leave her side. It would take her a very long time to settle him down and put him back down for the night. At the same time, he started not wanting to drink his normal daily glasses of milk or eat his regular meals. He was simply a mess most of the day and would fuss, cry, bang his head and we were having a very hard time trying to figure out what was wrong with him. He is not yet talking due to his delayed speech, so he could not tell us what was going on. Yesterday, I told my daughter let's look at the side effects of Singulair since it was the only thing that had changed within the last few months. When I found this site, I could not believe what the parents/grandparents were saying about their children on this drug. We immediately took him off Singulair. This will be his second day without being on the drug. According to my pharmacist, it will take approximately 50 hours for it to get out of his little system. The pharmacist had not heard the latest that aired on the TV station, so she asked me to call her back in a few days to tell her how my grandson is doing. Parents should be able to trust the medications that are prescribed by their Pediatricians, especially at such young ages. My daughter is REALLY UPSET and has a call into my grandson's doctor. Thank God I found this website. I simply searched on "side effects of Singulair in children" and this site came up. I do believe the Lord is watching over my grandson. Thanks.
-- By grammysandy | Reply | (3) replies | Private Message me