September 18th
2008
8:11 PM
While I am sure that Singulair has adverse effects for some children/teenagers/adults, I took Singulair for 2-3 years (until my asthma symptoms improved to the point where I didn't need to take it) while I was a kid and had no adverse side effects. Started back on Singulair in April after having severe reactions to my new puppy (I am now 21). Since then, I really haven't had any side effects at all. I agree that they should black box Singulair and possibly not prescribe it to some children/teens, but for some people (like myself), it works, and shouldn't be taken off the market completely.
-- By jesusfreak101 | Reply | (2) replies | Private Message me
September 18th
2008
6:35 AM
I recently went into an asthma attack that admitted me into the hospital on Sept 3rd. I was given albuterol treatments which I also use at home and have for 3 + years via nebulizer when needed. They also prescribed ADVAIR on Sept 4th or 5th and released me from the hospital. Once home my breathing started to decline despite using my nebulizer on time. By Monday night my breathing was shallow and my Cramps had severe pain onset. I began walking stiffly. I went to bed that night and my breathing continued to decline. In the morning I could hardly walk because of the pain in my calves. I could however sit and they "seemed " fine but turned in a bit. I took my children to school and at 8am dropped them off to the teacher at the curb check in. (Meaning I did not have to get out) I pulled aside to get out and see a friend and as I stepped out of the car my calves seized again. At the advice of my friend I decided to right away drive around the corner to the Medical Center where I go. I had an appt later that morning for follow up from Hospital, but decided I better not wait.
BY 8:10 I was in a red zone with my asthma Chest in FULL SEIZE (225 peak flow from over 375 an hour earlier using the peak flow meter I had in my car)
I got out of the car to go into the medical center and IMMEDIATELY Dropped DOWN a Foot and my Feet FLIPPED over my Knees Bowed out and I was walking like a Monkey. I scrambled to get into the medical center where I yelled for assistance and was given breathing treatment with no relief and sent to the Hospital via Ambulance. Breathing 3 breathing treatments in 3 hours no relief of Seizing in Chest. Xrays Clear. .I stayed there until Sept 16th where I have now been released, I am still walking monkey like , I have numbness in my face, a severe headache and I have not slept since Sept 14th at 5 am . I am not tossing and turning, I am wide awake.Today is Thursday Sept 18th. It took at least 3 days of before I was taken off ADVAIR. I had been on ADVAIR for at least 7-8 days 150/50 twice a day. I noticed a difference in my Chest muscle within 12 hours. My legs started to soften and not be so stiff within 1 or 2 days, however my feet drag sideways as I take a step. I have to swing my legs forward for each step. I directly link this to the ADVAIR.
June 9th
2008
4:21 PM
My 15 month old son was just put on this Friday, four days ago. He had been on Zyrtec since he was five months old and his allergies had recently gotten worse along with a percistant cough. As the weekend went on he became more and more angry and fidgety. Sunday afternoon, after his nap he came running down the hall screaming and crying (this nap is usually 1 1/2 hours long and he had only been asleep for 30 to 45 minutes when this happened). He was very upset for about 20 minutes. He is normally a very happy, fun loving child. Later that afternoon he didn't get his way and took it out on me. He began to kick and scream(at the top of his lungs) , throwing his head back, and then hitting me. Everyone that was with us have been around him from day one and they all said how he wasn't himself and had never seen him act this way. Now, this morning on our drive into town to go to daycare he normally is talking the whole way (45 minutes) but this morning he was just staring off out the window and didn't want to talk or "have a conversation" with me. I knew something wasn't right and had already had it in my head he wasn't getting another dose of this. I found this site and some of the little things began to jump out at me and I know for sure we aren't going to take this again. I just hope and pray that this hasn't caused any lasting side effects, again he has only been on it for 4 days. After reading all of this I have called the daycare to check and the doctor, who hasn't called me back yet. Going to see his ENT tomorrow and we will be having a long conversation about it all. His ped. is the doctor who put him on it. She is trying to try everything before he is put on a nebulizer.
Another side effect named on the Singulair web site is ear infections. This med. should have never been given to my son who has already had one round of tubes because of ear infections. The tubes have already fallen out and within a week he had an ear infection.
-- By coopersmom | Reply | (2) replies | Private Message me
May 30th
2008
11:42 PM
My 22 month old daughter has been diagnosed with asthma. She was prescribed albuterol to inhale with a machine and mask every 4 hrs as needed beginning on Monday. This medicine is dangerous as she has been more than hyper. She has been falling and injuring herself. She fell last night and gashed her forehead on the radiator. We were in the E.R. until midnight. Thank God she's better, now. I gave her one treatment this morning at 7am and have refused to give her any more. It is too dangerous for her. I've rubbed eucalyptus cream on her chest and she seems to be wheezing less. Any other moms go through this? Any homeopathic suggestions for asthma? Do you find that all doctors diagnose children for asthma if they are coughing and wheezing a little?
-- By bouvier12 | Reply | (2) replies | Private Message me
April 29th
2008
1:32 PM
(A divorced father)
My son has been on Singulair now 5 years and I am in the middle of fighting to get him off. My son is now 7 years old and has been diagnosed with allergies (no test have been done which I find very odd), which leads to a case of mild asthma. This past weekend his mother forgot his Singular on Friday so I could not give him any till the next day, where we met at his soccer game. Saturday night I gave him his usual pill and thankfully due to his exhaustion from playing out side all day he went to sleep in 10 min. vs 3 hrs later which is the norm since Singulair seems to jack him up.
He also has red puffiness under his eyes - most likely allergies.
Seems depressed - just driving down the road and I look at him in the rear view mirror and he just sits and stares into space. When I ask what's wrong he either says nothing or I am tired.
He will try to tell a story or think for himself and just stops mid sentence and says " never mind I am just confused"
He will be having fun one moment and just starts crying or gets depressed.
He was throwing a ball in the house (yes I know) and accidentally knocked a glass over breaking it - he went running to his room, crawled under his bed and sobbed profusely for over 30 min.
He has a hard time doing / focusing on homework - becomes bored very easily.
Does not want to go outside. I will take him to allot of cultural events/ hands on or participation events - he will not try anything. He is unsure and will not come out of his box so to speak.
I spoke with his doctor who was reluctant to take him off, but then agreed that if it was OK with the ex, to take him off for a week to see what happens.
The fun part: My ex is convinced that since he has been on Singulair for 5 years he is fine and does not need to come off it.
1.) Son is diagnosed with mild asthma or allergy induced asthma.
He has never had an allergy test done and has not had a lung function test in over a year.
2.) It is documented that our son has four outbreaks a year. (sounds like the changing of the seasons) but is given Singulair all year round and the dosage has also been increased.
3.) Since the court order, ordered my ex to enroll our son in sports (she would not let him play anything) he does not wheeze or cough uncontrollably.
4.) Since I had to battle to get our son on my insurance I have cut her control issues off a little, but she is refusing to take him off Singular just for a week to see how he reacts. Although I do agree that he should have some form of allergies medicine.
5.) When I found out about the side effects of Singulair, I also found that his doctor was getting ready to add two other allergy medicines to his portfolio - totaling 3 different meds.
I see our sons behavior getting worse and I watch him turn into something he is not and with a controlling individual not believing anything about the side effects it looks like I will have to rely on the medical system to prove my point. I do believe he needs to be accurately tested for allergies and given a regularly lung function test but most of all since he is now on my insurance, a second opinion and a 3rd to narrow down what the situation is and an alternative medical procedure that is fit for the symptoms.
-- By aussie63385 | Reply | (9) replies | Private Message me
April 18th
2008
9:55 AM
Tried to quit cold turkey but asthma flared up immediately. Doctor put me on Asthmanex and told me that I can't escape taking an inhaled steroid. However, since being off Advair my mood is much better and I feel hopeful again. Also back to using my nebulizer. But I at least I am starting to feel like my old self again. Going to see a nutritionist at end of month which will hopefully unlock the key to losing weight while on steroids!
-- By jcgirl1101 | Reply | Private Message me
April 17th
2008
8:59 PM
Hello to everyone, I just came home from a parent teacher conference for my son who is 7 yrs. old, and heard the same old thing, "he is restless, impulsive and has a short attention span". He has been taking Singulair for about 3 yrs.. Since he has started school I have had these complaints and have also been told he displays symptoms of ADHD, which ironically has been for the last 3 years. Like any parent, I question" if I am doing something wrong with my parenting, is his diet good, etc. etc.", I am also a nurse, I realize that medications are needed and beneficial in some circumstances, however I firmly believe and was taught in nursing school that medication is last resort. That being said, I have been very adament about NOT giving my son ADHD medication after doing alot of research on the different meds and their side effects. So, we started him on all natural vitamins, changed his diet some ( kids got to have candy once in a while) and started a more structured routine( the best we can since we both work) and also enrolled him in Sylvan. The teacher says there is a 50% improvement but he is still impulsive and still does not pay attention like he "COULD", again suggesting he needs ADHD meds. I came home in tears and started to do more research online to see what else can I do besides putting him on psych meds?....Then I came accross this site, I just want to cry after reading all these posts. I wonder, could this be his problem, the Singulair?.. About a year ago he use to get up in the middle of the night, 5 out of 7 complaining of nightmares, hearing things at times, headaches, decreased appetite, stomach upset, all AT TIMES, not all the time so I never thought alot about side effects of Singulair. When the school started complaining I did look at side effects of Singulair and seen HYPERACTIVITY and mentioned it to his pediatrician and she shrugged it off saying she never heard of it being a problem. She's a great MD so I listened to her because his asthma was bad when he was younger and it is now under control. But then I think maybe he is outgrowing the asthma. I am afraid to stop Singulair and him have breathing problems again but then I can't help this strong feeling in my heart that says this may have been his problem with everything else all along. We are going to stop the Singulair tonight and see what happens. If anyone else has a child with asthma any suggestions for alternative treatment would be appreciated. I already know what's out there but sometimes it's nice to hear from another parent going through similar situs. Thanks for reading, Bobbie
-- By bobbiejo | Reply | (5) replies | Private Message me
April 11th
2008
2:20 PM
After reading more posts and comments to others re: SINGULAIR and discussion of side effects of steroids - I am really scared as you could all imagine! Do I need to look for any side effects from the flovent and albuterol? What should Iook for? I am so not the paranoid type but am quickly becoming more now b/c I don't want my son to suffer anymore. I know predisone long term but what about the flovent which is a steroid? Any advice would be greatly appreciated!
-- By njcukett | Reply | (1) replies | Private Message me
April 8th
2008
9:09 AM
Update...Today is the 11th day my 7 yr. old son has been Singulair free! He was taking it for "cold induced" asthma. He never had the typical asthma where he needed an inhaler. He got RSV when he was almost 3, then whenever he got a URI it seemed to go straight to his lungs, so the dr. prescribed Singulair and Xopenex (to be used with a nebulizer). I had asked the dr. a few times to take him off Singulair because he seemed to be doing much better and I wanted to see how he would do without it. The dr. would say "oh, let's wait until summer or let's wait until allergy season is over" and kept putting it off. I just had some sort of bad "feeling" about it. Of course, I look back now and know with certainty that his wierd behaviors started around the time he started Singulair. I am relieved now because his erratic behaviors are almost totally gone!!!! When I heard the news I decided to take him off the Singulair immediately. I was nervous because he had a cold and a bad cough, but did it anyway. You know what? He is fine! His cough is almost gone now without the help of Singulair! He is much happier and can actually focus on doing his homework without getting up from his chair until he is done. Before he would get up about 10 times and just couldn't sit still. He has a better attitude about everything now! He is doing great! I hope everyone who was taking this and stopped is doing better! I learned a valuable lesson from all this. I won't put him or my other son on anything until I research it! I will not trust anything anymore, and that in itself is sad, but true. Good luck to all!
-- By laura_seeley | Reply | (2) replies | Private Message me
April 1th
2008
9:39 PM
These stories sound all too familiar! What a nighmare this is for so many people. My son is 7 yrs. old and has been on Singulair for 5 YEARS! His dr. prescribed it for "cold induced asthma" which was a complication from RSV. Just about every time he got a cold he would develop pnemonia. The Singulair along with a nebulizer seemed to help his breathing. At first he was clingy. He wouldn't leave my side. We had to take him out of preschool because of it. Then, slowly his behaviors got really weird. He experienced severe anxiety, depression, self hatred, worried that me and his dad were going to die, sleeping problems, seperation anxiety, trouble focusing, stomach pain...etc. I too thought that I must be a horrible mother. My 9 yr. old isn't on any medication and he is a normal child. I thought I was doing something wrong with my youngest boy! My husband and I were seriously thinking about taking him for mental professional help. We have been to his dr. two seperate times to discuss his behavior problems and he basically blew us off! There are no side effects listed (from his prescription) that have anything to do with behavior problems. I always check the paper I get when I refill his prescription. I haven't given him this junk since March 28th as soon as I heard the news. Finally, all the pieces of the puzzle fit! I have seen improvement already! Last night he actually asked to go to bed. Before it was a terrible struggle to even suggest that he goes to bed. He did his homework tonight without any difficulty focusing!! That was awesome to watch! I hope he continues to get back to the sweet and happy boy he was a such a long time ago! He and his brother share a room and have bunk beds...right now I hear (for the first time in forever) him laughing with his big brother! Oh, what a beautiful sound!!!!!
-- By laura_seeley | Reply | (3) replies | Private Message me
March 30th
2008
3:05 PM
I have been on Singulair for nine years and I thank Merck for discovering and manufacturing it. I also thank my doctor for prescribing it to me. I have my life back! I had asthma so bad I was on high dose inhaled steroids and Albuterol. I had a nebulizer on my kitchen table and a drawer full of Albuterol in my refrigerator. Like clock work I would wake up wheezing and gasping for air and have to administer myself a treatment at 4 am every morning. I would try to exercise and I would wheeze and cough. I then went on Singulair and my nebulizer has been in the basement for at least 9 years, I have the drawer back in my refrigerator too. I exercise now and even ran my first race last summer without needing an inhaler. Thank God for Singulair. I am not going to die from my asthma.
There are so few choices to treat asthma and allergies and all the medications have problems like an FDA black box warning for increased death on Salmeterol(I stopped taking that) which is in Advair and emotional disturbances with steroids and increased suicide risk with Zyrtec which is now over the counter.
I do feel sorry for Cody's parents. It must be tragic to lose a child. My heart does go out to them. However looking rationally at this story, there seems to be a whole side missing. The news story did not mention anything about Cody's past history on the news. Did he ever have signs of depression? Was there an interview with his doctor? Was he having problems with friends at school? Was he into any drugs or adolescent games? Teenage boys also have the highest rate of suicide, medicines aside.
With all due respect, I never saw any of Cody’s friends or teachers be interviewed. Maybe this did happen and I missed this but I watched the news cast videos. Could there be more to this story that is purposefully being edited out or just not asked?
I never believe the media fully. They are very irresponsible and inaccurate at times.
If you read the product information of any drug including aspirin you would never want to take it. The truth is that many times the benefits of drugs out weigh the risks. I know I will keep taking my Singulair because I do not want to die of asthma sucking on inhalers like my mother did.
March 26th
2008
11:42 PM
I have three children who were all taking Singulair and also Zyrtec. My oldest, 11 year old son has been on these medications since he was diagnosed with chronic Asthma at age 3. The aggressive behavior, bad dreams, leg cramps (growing pains, we were told),head aches and stomach aches were all explained as age appropriate for a 3 year old boy. As he grew older, he would say he wished he or one of his siblings were dead. Yes, the Singulair
along with a Flovent inhaler controlled his Asthma wonderfully. We have never had to take him to the ER. However, after hearing in the News about the Singulair, I have done a lot of research. I have not given him either of these meds for a month now. He does still use the Flovent. After not having any Asthma attacks for about a year now, we were hoping he was out growing it. So, I guess it was good timing. And then the trees started blooming and the pollen is everywhere. Son gets congested, coughing up lots of thick, green mucus. I treated him with Children's Mucinex mini-melts, benadryl, and sudafed. It helped that it was Spring break and I could treat ever 4 hours. He needed the nebulizer a total of about 6 times for the entire week. Today, he was mucus free. As for his behavior, he still acts like a typical 11 year old boy, but has been less aggressive and mean towards his siblings.
My daughter age 10 has been on Singulair and Zyrtec for unknown allergies off and on for about 5 years now. They did seem to help, but once again we had unexplained behavior. At age 5 she told me she wanted to kill herself. The school counselor said she must have heard it on TV.Bad dreams, headaches,mean to brothers (above the normal sibling rivalry thing), mean to me, leg cramps, stomach pains,itching all over. Many times, too many to count, she would be moody and go into fits of rage. When asked what was wrong, she would cry and cry that she didn't know. Been off for a month, and less rage. Actually playing nicely with younger brother. Recently, the pediatrician ran a lot of blood tests. Daughter complained that she hurt all over and she ran a low grade temp for 3 weeks. (less that 99.7) All tests came back fine. Last Monday, the fever went away and the aches are gone.
Now for the last, my 7 year old son has been off and on these two meds for about 5 years for severe allergies. Again, they did help. He did not react as badly as my other two children did. Leg cramps( which he still has nightly, just might be growing pains),headaches, and bad dreams are the only three I can think of right now. Anyhow, after hearing about the boy on the news, I got scared. Plain and Simple. My husband thinks this is a bunch of nonsense and everything can be explained. The Singulair was costing us a hundred dollars a bottle for a month supply for one child.
I am still watching my children very closely,especially my asthmatic. I still haven't told the pediatrician that I've taken them off the meds.
March 13th
2008
1:55 PM
I am 58 with mild hypertension. Started Lisinopril 10mgs and started to cough and feel like I was getting a cold within 48hours. 4 days later I was in the MD office with what I thought was an Asthma exacerbation. We treated it with Solumedrol dose pack and xeponex nebulizer treatments. Two days later I am in the ER unable to stop coughing. My MD was on call and realized that this was due to the Lisinopril!! This dry hacking cough also sometimes produces some phlegm but I am exhausted. This is miserable. It appears from what I have been reading that Lisinopril has the worst record of the ACE Inhibitors for this cough side effect. I am an RN and had no idea that this could be so bad. No more ACE inhibitors for me...they go on my "allergy" list. There are other allternatives and I think the Calcium Channel Blockers are a better alternative.
Maybe it is time for the FDA to re look at Lisinopril????
February 21th
2008
11:48 AM
Thanks for all these posts! My 4 year old daughter has a history of allergies which have in the past led to sinus infections and bronchitis. We used Xopenex and Pulmicort with the nebulizer along with Vazobid and Delsym and cleared up the bronchitis during Christmas 2007, but her pediatrician suggested her taking Singulair as a preventive medication for her allergies. This medication has turned our household upside down. She has taken it every night for 3 weeks and the side effects are the same as others have posted.......aggressive behavior, severe defiance to simple tasks, nightmares, stomach cramps, wetting accident at school (first time ever), weight gain, bruising, and vomiting. When told "no" she replies with wanting to kick me and tells me she doesn't want me as a mom anymore. The devilish behavior is intolerable. She was never like this before she started taking Singulair, and I am so thankful that I found this website quickly enough to put 2 and 2 together, and I am taking her off of it TODAY!!!
-- By vigsmith | Reply | (4) replies | Private Message me
February 12th
2008
10:26 AM
I'm not sure if this is related to Singulair 5mg. chewable, but now that I've been reading everyone's experiences, I fear that it may. My 7 yr. old has been taking Singulair 5mg chewable tablets these past 2 years. He takes it during the months of Sept. to October. His pulmonologist has not determined whether or not he is an asthmatic or not. When he would get a common cold, he would almost always cough as if he had the croup and he would need to use a nebulizer with Pulmicort. The Singulair worked great. He hasn't needed the Pulmicort for almost a year now and colds this year were limited to two minor sniffles.
My son just started experiencing sharp pains on the left side of his chest. They would come quick and hard and disappear within 2-3 seconds. We immediately rushed him to the Emergency Room. He had experienced 5 quick episodes during Sunday, February 10th. The first 3 were spaced out about 20 minutes apart. the fourth was about an hour apart and the 5th and last occurred 2 hours after. The ER conducted a chest x-ray and an EKG, Neither showed any abnormalities. He felt a quick pain today, which is Tuesday. He has an appointment with a cardiologist on Wednesday morning. Now that I have read a number of postings, I am frightened. My son has not only experienced pains in his chest on the left side, but night sweats. occasional leg cramps. nightmares and is extra sensitive to emotional situations.
I'm pulling him off Singulair. Last night was his last dosage.
January 29th
2008
11:09 AM
Hi. My eight year old daughter has been on singular for 6 months. She has had chronic stomach pains that she says feel like pressure. Her appetite is terrible. She always says she isn't hungry. I have to search for anything I think she will eat. She is very tall and very thin for her age. She grew an inch in the last year but gained no weight. First time her growth just stopped. No surprise as she doesn't want to eat. I took her to the doc several times and they think she has acid reflux and have given her 2 different acid eliminators ( which freak me out as well) Said she should see a gastroenterologist. We have appointment in March . I started reading this site and thought well maybe it's the singular. So I called her allergist and told them I was taking her off to see if that's why she has the stomach problems. They said I could since it wasn't a big trigger time(seasonal) and she wasn't sick with any cold or flu) She gets mild asthma when sick. Her allergist asthma doc thinks her stomach aches are related to the mucus dripping into her stomach. I have taken her off all meds to try to see if it could be the Singular. She also has been very tired and can't keep up in her dance classes. Her school teacher had to put her in the front of the class because she said she wasn't paying attention. She seems to lose it over anything that requires focus or attention.She also seems kind of depressed. She is worried that something is really wrong with her. This child used to eat normally and is gifted academically .Her tests results(taken while on the Singulair) went way down from last year. She was put in gifted pull out program from last year results but would have barley made it in this year based on her much lower scores. That does not make sense to me. Never has had attention or focus problems before. I will keep everyone posted. Does anyone know how long it might take to get this drug out of her system? Has anyone else had this kind of reaction to this drug? I also wonder whether she had reflux before but this made it worse? I had her blood tested for Celiac and general stuff and nothing showed up.I wanted to get the Singular out of her system before we see the G.I. doctor. anyway thanks, Elizabeth
-- By liznjayne | Reply | (5) replies | Private Message me
January 2th
2008
5:56 AM
I went to my doctor on Monday December 17, 2007, because I was experiencing a fever, chest congestion, with an extremely painful cough. He gave me 7 sample blister packs of Levaquin 500mg, and a sample Pulmicort Flexhaler 180mcg. He also prescribed a cough medicine for night time if I needed it. He said I had bronchitis or a possible pneumonia he couldn’t hear. I also used a nebulizer with Abutrual.
On December 23, 2007 I awoke with the most intense pain I have ever experienced. My wrists, finger, toe, elbows, knees and ankle joints all hurt. My muscles in my legs and back burned. My hands, fingers, feet, toes, and shins felt like they were “asleep” or the worst pins and needles ever.
My husband went online and found out that is was most likely caused by the Levaquin. And thankful I was taking TWO steroids! So when I called the company that makes Levaquin they told me to stay in bed! When I asked them how long this could last they said 1 week to two months.
As of today, the pain in my fingers, toes, wrists, elbows, ankles and knees, which is like tendinitis is mild to moderate. The burning in my muscles in my legs and back is still intense. The “pins and needles” is affecting mostly my hands and feet and my left leg from the knee down. I also still have a deep pain under booth knees. I have also experienced a periodic facial twitch on the left side, below the eye about 1.5 inches.
I am weak, and completely unable to get around do to the pain in my legs and feet. I am furious that my doctor prescribed a medication that could cause these problems without warning me, as samples do not come with warnings. I feel disabled, angry, and would like to know what I am supposed to do now!! Has anyone found anything that helps with the pain?
-- By queensoccermom | Reply | (3) replies | Private Message me
December 12th
2007
9:47 AM
My 2 year old son was prescribed Singulair for eczema yesterday and gave him his first dose last night. His bedtime is at 8 and since he is two years old and fights sleep, it normally takes him 30 to 60 minutes to actually fall asleep. He was still awake at 10:30. He couldn't seem to wind down. I knew it was from the Singulair immediately. I woke up this morning and got the prescription literature to see if this is even prescribed for eczema. It didn't say. So I got on Singulair's ...... and nothing about eczema. I then searched ...... and found this website and I am completely blown away by everyone's stories. I think I will take the 30 bucks for next months prescription and buy a humidifier for the apartment and use some Cetaphil lotion. He didn't have breakouts this summer due to the humidity, so I will just make my apartment humid. The doctor not only prescribed Singulair, but also Clarinex. The pharmacy had to order it and I was supposed to pick it up today, but I am going to search the side effects for it first. I will probably just save my money and see what I can do with home remedies.
-- By lisam0014 | Reply | (2) replies | Private Message me
October 12th
2007
7:23 PM
i have high BP and was on a med that worked well but was rather expensive, so i asked my Doc if we could try something more affordable. he put me on Lisinopril and within a few days of starting this med i had headaches, coughing, upset stomach and dizzyness. i assumed this would be temporary as per getting used to the new med, but it only got worse... and by 2 months later i was also having shortness of breath, constant fatigue and trouble sleeping. i looked up Lisinopril side effects online and called my Doc to say that i was having many problems with this med, he assured me it was not the Lisinopril and to keep taking it. on Sept 28th 2007, i went in to see the Doc and my BP was still a bit high so he doubled the dosage of Lisinopril. 2 days after i started the new dosage i had such serious breathing problems i was literally gasping for air and had to go to Emergicare, my BP had come down and the Doc at Emergicare said the breathing problems were just seasonal allergies and prescribed some Prednisone which he said would help. he also said i might want to come in for some Nebulizer treatments. i continued to take the double dosage of Lisinopril and was so sick every day that i no longer even cared what happened to me. i had a constant pounding headache, chills/body aches, blurred vision, nausea, weakness, coughing, fuzzy confused feeling, and i felt totally exhausted...breathing was still difficult and at night just rolling over in bed caused me to gasp for air. well 2 days ago i could not take it anymore and called my Doctors office to firmly explain that the med was making me VERY ill, they said they would get a message to my Doc right away and in like 5 minutes they called back and said STOP this med immediately!! well it's been 48 hours now since the last dose of Lisinopril and i feel much better already. i still have a headache but the other problems are fading down to very mild. i can even breath again YAY....i only hope that in a few more days i will feel normal again. to ANYONE reading this dont take this med, it will make you very, very sick!! and for those of you who actually are on this stuff please pay attention to how you are feeling and tell your Doctor right away, dont ignore the side effects.. make your Doctor listen and tell him how you feel even if it seems like mild issues bcause it will get worse!! good luck and peace to all.. :)
-- By more4sure | Reply | Private Message me
September 10th
2007
3:35 PM
I am 48 yrs old and have been on Advair 500/50 for a little over three years now and although it helped my asthma dramatically in the beginning, everyone around me has commented on the crazy mood swings I have been experiencing for the past two years. I have also developed a very persistent case of thrush in my mouth/throat that never seems to go away-the doctor keeps on asking me if I rinse my mouth and it's starting to get annoying because I'd be an idiot not to rinse out my mouth-I even gargle, but the thrush keeps coming back! Also,my throat always feel tight-I frequently feel like I'm choking and I get hoarseness that interferes with the important thing like reading a book to my son. Recently, I have started bruising very easily. Everytime I mention all these things to my doctor she says that I should stay on the Advair and disregards my complaints about the side-effects. I would really like to stop using it, but I stopped once for Three weeks and I had a really bad bout of tightness in my chest and shortness of breath-any suggestions on how to get off it and what I can do instead?? I forgot to mention that I have gained weight and even dieting won't get the weight off-I am very active and exercise, but the weight stays.
-- By liamtai | Reply | (2) replies | Private Message me
September 4th
2007
4:09 PM
After reading this accumulated several years of reporting below:
Yes to higher heart rate and BP for sure - after several days using albuterol in the home nebulizer I have had - it is for emergencies and every severe asthma attack but one (Oct 06) it kept me out of the hospital. I also tho have a GERD ulcer in my throat that causes caughing - Nexxium is THE ONLY med proven to heal those btw - and they do still come back! But anyways, this latest irritated throat followed by uncoltrollable coughinghas been on the "other" side of my throat for 6 days -
(this is all separate from my bronchial and lung coughing from asthma and the lung infections that come with it).
So anyways - ta daa - I came here suspecting the new spot in my throat that is super-sensitive is due to the nebulizer and after reading the other comments- maybe this really is it! The forced air in particular - because I just don't get coughs like this when I stick to my little purse canister.
-- By firebrrd | Reply | Private Message me
August 1th
2007
11:42 AM
After a month on Lisinopril, I started noticing shortness of breath. Then awoke one morning with pain in shoulder and numbness in arm - thought I was having a heart attack! ER diagnosis was asthma. Advair, methylprednisone (steroids) and albuterol helped at first, but after two weeks, breathing problems all came back. Started using a nebulizer which provided only short term relief and was then referred to a pulmonary specialist. He put my on Advair, Singulair (another side effect horror story), Nasonex, Intal inhaler, albuterol inhaler, the nebulizer as needed. Upon follow up two weeks later, it was all still going on! He rx'd another prednisone pack, but NOW he notices in chart that I was taking Lisinopril, which he said is KNOWN to cause breathing problems - and to stop taking it, immediately. Within one week, all of these horrendous asthma problems WERE GONE. It's been two weeks and I have since discontinued ALL asthma medications - everything - not to mention the Lisinopril. How could prescribing doctor and ER doctor mis-diagnose Linsinopril side effects for asthma! How could I? I would like to think that if they're going to prescribe this stuff, they would be familiar with possible side effects as such. I'm just lucky this stuff didn't kill me and that I didn't get rid of my cat!
-- By sarahb718 | Reply | (1) replies | Private Message me
July 26th
2007
8:39 PM
i have suffered from Chronic ASthma and Allergies since I was two weeks old and have been on and off Prednisone ever since. The first 6 years of life were in and out of the hospital, recieving ventolin, intal, beclifort, and prednisone treatments. at times I would be on up to 10 meds 5 times a day. My doctor who is still my Doctor today (Im 22) said that they didnt know how i survived. Im assuming it was the above list of meds, my wicked parents and faith. I remember as a kid , my mom would have to crush the prednisone up and put it in jam and i would cry becasue it is honestly the tiniest and wort tasting pill I have ever ingested! I shoul dhave known i was in for trouble.
the thing of it is that by grade 1 I was moonfaced and gained excessive weight in my stomach and back. my brothers were thin and active adn parents the same. but i was a real case, couldnt swim or skate or stay outside too long or go on sleepovers without my "machine" as i called my nebulizer. Frankly it sucked, bu i only say that now, becasue i realize that not everyone had to live this way. up until like teo years ago i just assumed that most people dealt with the same stuff.
anyway, im 22, my legs and arms are ridiculously strong, like we are talking hard. but since im 5'2 on the best of days , my rather large leg muscles make me look even stouter. I have had most fo the symptoms, my hair is a lot thinner, swelling etc, but the worst is the weight in my middle. I CANNOT get rid of it. I feeel like im clogged full of cortisone and steroid byproduct and that it is making weightloss in my middle , nonexistent. this really has affected my emotionally because og course i grew up in a country town and was fat and it scared me for life and now i have trouble being touch by men becasue i feel like they are just feeling my fat. which isnt my damn fault. I wish i had at least had the pleaseure of eating all my favourite foods in order ot become more than 60 pounds overweight. it scares me too because of course fat around the middle is the worse place to have ti and leads to all sorts of lovely things.. and my parents feel so bad becasue i had to go through the mental torture from kids and adults alike but like they say , it was either prednisone or death. i am also now a narcoleptic, and take effexor and alertec for that whcih has its own set of side effects, but none as severe as prednisone. I suppose we all have our crosses to bear though.
April 22th
2007
7:31 AM
I had previously taken singulair for asthma and seemed fine! So fine I stopped taking singulair end of December 2006. Recently, I noticed I needed my inhaler a couple of times a day--I exercise vigorously 5-6 days a week. I asked my GYN to re-prescribe. Started my first 10 mg dose Wednesday evening (!8Apr), Friday afternoon I had a sore throat..pretty severe by day's end--Saturday I had full blown bronchitis (upper respiratory infection) Had to dust off my nebulizer.
Love Merck's disclaimer: Side effects are generally mild and vary by age, and may include headache, ear infection, SORE THROAT, and UPPER RESPIRATORY INFECTION. Side effects generally did not stop patients from taking SINGULAIR. IS IT WORTH IT? DOES IT GET BETTER?
Singulair (25) Advair HFA (16) PredniSONE (4) Albuterol (4) Lisinopril (4) Tobramycin (1) Advair Diskus (1) Levaquin (1) Zometa (1) Atrovent (1) 5-Aminosalicylic Acid (1)
October 18th
2008
2:40 AM
I been taking ALBUTEROL in a nebulizer for Wheezing an for Asthma that got worse from a Upper Respiratory infection,I never have gotten any bad side effects from being on this medication,I have used it a lot threw the years,times a box a week,2-3viles a day,this medicine does work and stops wheezing,and opens up the air passages! You could get shaky from using it but only if you use too much at a time,go by what dr. tells you how much to use.
-- By lildarling3080 | Reply | Private Message me