Neck movements symptoms and conditions

I was on 80mg of Geodon for about 1 year. I started having uncontrolled eye and neck movements. I was taken off the drug. However, I've been left with the side effect of Dystonia. I have no control over my neck muscles, my head is in the backwards and to the left position. Trying to move my neck to the right is very painful. I have to get botox injections every 3 months in my eyes and neck. The shots stop the movement for a few weeks but do nothing for the positioning of my neck as the shots weeken the muscles. I've been told I will have this the rest of my life and the only other treatment would include brain surgery. I am in pain on a daily basis, and when upset or in public the movements are greater which only causes anxiety.