October 13th
2009
8:38 PM
Started taking Lisinopril approx. 6 years. ago. Shortly afterwards I started a spiral downwards for no apparent reason. Did not connect this med. Shortly after starting it I was put on Synthroid for low thyroid. Started having loss of balance, dizziness, vision problems, muscle and nerve pain. B/P went up instead of going down. Have been to every type of Dr. (Neurologist, Dermatologist, Endocrinologist, Internist) and every nerve & muscle test and blood work came back negative. I have extreme cold in my hands and feet, increased back pain. headaches. This past week I have broken out in a rash on my torso and down both legs. The doctors answers are that I'm suffering from depression. The irony is that when the symptoms first started I questioned if I could be having a reaction to the medication and they flat out said no. After reading some of the comments as of today I am discontinuing the Lisinopril and will searce for something natural. I'm fed up with doctors and really short on cash from all the money spent trying to find an answer.
-- By kathy1951 | Reply | (3) replies | Private Message me
October 9th
2009
11:10 AM
My husband and I were going to try to have a baby and then I was rear ended in a car accident causing nerve pain in my lower back. I had the injection without being told of the irregular period side effect even after the doctor knew we were trying to have a baby. I am very upset. Has anyone had luck regulating their period after a Kenalog injection? I had the injection 4 weeks ago. I had very predictable periods prior to the injection. I missed my period 2 weeks after the injection and then a week later began spotting that hasn't stopped for 4 weeks. It gets light and then heavy with no indication prior to being heavy. There are clots. How long does it take for the cycle to return to normal? I think I am getting depressed worrying about if I will ever be able to have a normal period and have my baby.
-- By annabelina | Reply | (1) replies | Private Message me
July 8th
2009
4:43 PM
Hi, I am a 47 year old woman and started Warfarin and Lovenox June 29th as a result of blood clots in my left leg from knee surgery. I was able to go off the Lovenox July 4th (Yay!) because my INR levels were above 2. I thought the Lovenox was the cause of the nausea I experienced, but apparently that is not the case. I keep telling the clinicians at the Anticoagulant Clinic about the nausea and their response is that they haven't heard of it as a side effect. Thank you all for posting to this website, there is some comfort in learning you are not alone with these strange side effects. I also experience dizziness and have difficulty finding words. I think I will switch from Warfarin to Coumadin to see if the side effects are less, though many of you have written about weight gain ~ yikes. For those of you bruising with Lovenox I was told if the needle is dry when it goes in there is much less bruising. And to everyone my thoughts and prayers are with you. Oh yeah, I also have nerve pain in the bottom of my left foot, the compression hose do help website is ******
-- By goawayclots | Reply | Private Message me
July 6th
2009
8:53 AM
I have been on simvastatin for 2 yrs . The past six months have had foot pain my doctor described as neuroma.By the time I started physical therapy the pain was in my arch + tendons. I went to physical therapy for two months, the therapist became concerned when improvement peaked. Still have burning nerve pain. I think its time for natural supplements . I hear "red Rice Yeast" is effective.
S. M.
June 29th
2009
4:42 PM
Worst night of my life--woke up feeling filled with anxiety, insomnia, had to get up repeatedly to urinate, felt very agitated, though I felt very peaceful & relaxed at bedtime, feet were swollen so badly I couldn't put on my shoes. I took 10 mg of Benadryl, which did not change how I felt. My internist took me off the Singulair immediately, when I contacted him the next morning.
Despite being on an antidepressant which was recently increased, very recently I felt sad, anxious, and was crying all the time, felt irritable, and was chronically tired. I took 400mg of gabapentin (Neurontin), prescribed for nerve pain, numbness, tingling in both hands & feet at 9 p.m. Just before bedtime at 10:00 I'd take 10 mg Singulair. 1-2 hours later I was wide awake, sometimes not sleeping for hours or at all, even after taking 1-2 Benadryl, without the dyes.
Over the past two years I've had eczema, for which I saw 2 different dermatologists and an infectious disease specialist. Eczema was so bad, I couldn't sleep at night. I consulted with every imaginable doctor, including the allergist who prescribed Singulair & was told it couldn't be the Singulair because Singluair was FOR ALLERGIES. Was diagnosed with fibromyalgia by a neurologist, recently had a repeat of an MRI because I couldn't walk the pain was so bad. My neurologist was unable to find any reason I had pain & difficulty walking, after reviewing the results of the MRI.
I've seen my internist for heart palpitations. When I reported urinary frequency, he had me get a cystocopy (negative) because I had hematuria, blood in my urine, and I had weight loss.
I still have many of the side effects, like the numbness & tingling in my feet and hands, however, I am able to sleep through the night and did so immediately after going off the Singulair. A lot of the fibromyalgia pain I was having has subsided, depression, anxiety has subsided as well.
-- By kaydea | Reply | (1) replies | Private Message me
June 24th
2009
5:49 PM
Give it a chance!! I have been taking Lyrica for 2 years now. I take it to help with nerve pain caused from an accident which caused numerous spine fractures and damaged nerves. It has been a life saver. The foot burning, tingling and shooting pains have subsided. Not gone but far better. When I tried to stop taking it the nerve pain increased tremendously. No weird nightmares, no weight gain, no side effects. My limited activity is due to back injury but I have found swimming to be wonderful and it does help with the weight. When you are in pain you don't exercise. Exercise and give Lyrica a chance. It took months to regulate the dosage I am on now. (3oo mg daily) Everyone is different. Most of you sound like you are on plenty of other meds too. Are you sure they aren't causing your side effects??
-- By dseymour | Reply | Private Message me
June 1th
2009
11:46 PM
I was first prescribed Neurontin in November of 2008 for cervical disc bulge touching my spinal cord causing severe nerve pain in my left extremities. I was prescribed narcotics and eventually prescribed Neurontin. The side effects from Neurontin, at that time, were seemingly intolerable, but as the narcotics were decreased several months later, I found the Neurontin was actually effective and did its purpose. The side effects from the Neurontin were not that great to outway the pain factor I had. I believe this drug does its job!!!!
-- By stacey39newhouse | Reply | (1) replies | Private Message me
May 28th
2009
4:50 AM
i have just been prescribed Lyrica, for nerve pain in my leg, whilst I am waiting for an MRI. After reading all the side effects, I have decided not to take it and wish anyone on it GOOD LUCK. Just out of interest has anyone out there had any good experiences with it?
-- By nory | Reply | Private Message me
May 19th
2009
3:03 AM
I am a 38 year old male suffering from a combination of occipital neuralgia and migraines. For 20 years, until a year ago, i would endure pain that was only manageable with narcotic pain relievers (imagine all the gamut of such kind). I would have neck and head aches typically 3-4 times a week, accompanied by vomiting, dizziness which would put me to bed for the entire day. Work and family suffered in magnitude comparable to my own suffering. So then I finally saw my GP for that. The pain meds went up the roof, imitrex, maxalt was added to the equation with only marginal side effect. I saw a neurologist. He had me do an MRI and put me on Topamax starting from 25 mg, which I upped to 200 mg within 6 weeks. Past the initial side effects, the headaches subsided, the frequency reduced and i was able to enjoy weeks at a time with no episodes. Stayed at 200 mg for 5 months. In the meantime, the MRI came back positive for some brain inflammation. False positive they said, does not fit the clinical picture. Second MRI, same positive, this time proceeded with LP, which was negative. Third, MRI still positive; making the neurologist uncomfortable. While dealing with MRI results, the topomax had yielded positive results as far as pain management was concerned. But little by little I noticed that I was becoming more irritable, more impatient and more forgetful. Someone would have to remind me of something several times before it would even register in my mind. I empathize will all the posts that mention feeling like having Alzheimer's. I didn't care in the meantime. As long as I didn't have to deal with the pain it was ok with me. But the situation became worst and worst. I couldn't concentrate on anything, the mere task of remembering to do something was insurmountable. I would wake in the middle of the night and find myself staring at the bathroom mirror for no reason. I would have terrible panic attacks which i control with valium. But yet i continued on with topamax convincing myself and being convinced by other people around me that i just had a "personality disorder". Finally, work begun to suffer. I was loosing track of meetings, deadlines and when this happens someone knocks on your door (boss) telling you that something just doesn't click, something just doesn't feel like a personality quirk. Other people playing doctor would slap on my face that i just had ADD, that I should take something for that and get on with my life. But something was wrong. Pain or dizziness or lack of concentration etc are all electrochemical processes in your brain. It turns out that topamax was helping my headaches but it was not slowly deteriorating other cognitive abilities. Finally, the neurologist decided I should wean of the topamax, stepping down from 200 - 150 and then we go to 100 and so on. I dread the re-occurrence of the headaches. I am waiting for them to happen again at some point as I drop the dosage. But in the end of the day, I'd rather be in pain and in control of my life rather pain free and absent minded.
-- By sithpadawan | Reply | (2) replies | Private Message me
April 28th
2009
10:31 PM
I was given Avelox by my Allergist three weeks ago because I had yet another sinus infection, she had me come in and pick up some samples she had with 5 days worth of 400 strength Avelox.
The night of the third dose I was awakened by numbing and tingling and pain in my right arm from the elbow down to my hand, I had never had this before. I called the nurse the next day and she said to stop taking the drug which I did. I figured now that I stopped taking the drug the symptoms would go away.
A few days later I was out shopping and within a few hours of walking around I began to have so much pain in my right foot/ankle/heel that I had to come home, I could not put my foot down.
Then within the next few days my knees began to hurt, behind the knee and in the side. It has been 3 weeks now and the foot pain is better but my hand,elbow and knees are bothering me so much I can't sleep. The other symptom feels like nerve pain in my legs, hands and fingers. I am really troubled by this, I am a very active healthy 62 year old Woman, I have not been able to exercise all of this time.
I went to see my Allergist who prescribed the Avelox and informed her of all of these symptoms. She said that this was a rare side effect and that I was particularly sensitive. I asked her if the symptoms would go away soon and she gently said that it would take time.
Then she said that she had prescribed Avelox to her husband a few months ago, she said he had the same reaction as me (how does this translate to a rare occurrence?) and that he was slowly improving. She thought I should go to a Physical Therapist or a Rheumatologist, I told her I can't afford that.
At this point I am scared I won't get back to how I was before. I have had knee surgery in the past but my knees were doing fine until this.
Have other people slowly recovered as my doc has suggested will happen?
I don;t know what I should be doing at this point. Help!
S.
April 27th
2009
2:07 PM
I have been on Topamax 75mg at night for three months now and is weaning down to get OFF. I have had stomach pains for the past month and I have to force myself to eat...toast. I have not lost a pound. My Dr.'s put me on it for nerve pain, which finally did help after 2 1/2 months into the drug but....the side effects are not worth it. I can't think, let alone play scrabble with my friends (and I was the best). I'm light headed and sleepy. Be careful when they say the drug will help one thing but cause a list of other side effects.
-- By rhondar | Reply | Private Message me
February 18th
2009
4:03 PM
i have been on neurontin for nerve pain in my legs due to vasculitis for a few weeks now. i have only noticed a small increase in appetite. my eyesite seems to be out of focus, but its so bad anyway that i have no idea if its the neurontin or just my eyes, and minor headaches i had no pain relief either........absolutely no improvement at all. my doctor just raised my dose from 900 mgs a day to 1200 the other day. still no pain relief but i am now getting a bit dizzy. i guess we will see what happens!
-- By strberry_fields | Reply | (4) replies | Private Message me
January 29th
2009
11:10 AM
777
I've been noticing that you as well as bobby are continuously replying to many of the posting. I stopped taking lipitor in December after having chest pains for 10 months which included being hospitalized for 2 days of testing. I'm still having the chest pain although I believe it's getting better. There was a week in the beginning of this month that I had no pain at all but now it's back. My question to you and bobby is you keep saying you still have some side affects for months but fail to list them. What are they and with your experience, why does Lipitor cause chest pain? What have you found out in your research? Is this drug causing damage to the interior lining of the arteries? Is this why many people are getting the pains from?
January 8th
2009
7:32 AM
I had tingling and numbing in my hands and feet. After few weeks without Lipitor all that tingling stopped. My doctor said that it could not be Lipitor's side effect but after doing research online I really wished they listed tingling and numbing as side effect of that drug. It would have saved me a lot of money I spent on all kinds of tests my neurologist did.
-- By alicja777 | Reply | (3) replies | Private Message me
December 8th
2008
10:11 PM
My husband has been taking doxy for 6 days. 2 xs daily 100mg, today he can hardly sit down. The area area his tail bone is very sore and tender to touch. I saw 1 posting that mentioned nerve pain, anyone else experience this ?
-- By tricialee | Reply | Private Message me
December 1th
2008
5:23 PM
Thank you so much for this site and your posts. I am on my 4th day of doxy. and I had a panic attack today and anxiety--I was doing fine until now. I would consider myself a calm person so this caught me out of the blue. I called the pharmacist who thought I was nuts, I'm sure. She said it was not a side effect of the drug!! I also noticed some nerve pain over my body. But my infection is lots better so I don't want to stop, but I don't want to have panic, either or get sicker.
I also get the stomach queasiness when taking a dose and always eat a slice of bread with it. I have noticed a worsening of reflux and I make sure to sit upright for at least an hour after taking the medication.
-- By jendreb | Reply | (1) replies | Private Message me
October 1th
2008
7:36 PM
I am writing in regard t my father in law . He says this is a cancer drug to help pain is this true? He is higher then a kite is right to thanks
-- By marie723 | Reply | (1) replies | Private Message me
September 26th
2008
9:00 PM
Have been on Lyrica about 6 months. It does help the nerve pain in my leg, but for the past 3 months I wake up with terrible muscle spasms in that leg. The spasm pulls my foot straight down. I have had to get up as many as 7-9 times a night. Has anyone had this or heard of it???
-- By sarafount7 | Reply | Private Message me
September 19th
2008
5:59 AM
my 11 y/o daughter has a chronic headache condition (NDPH), a non-stop headache since Oct.29,07. She had a supraorbital nerve block, occipital nerve block using Kenalog. Her first injection was only the occipital nerve block, then 2 weeks later, repeated the occipital nerve block and added the supraorbital (above eyebrow) nerve block. This was July 2nd. On July 10th, she started her first period...it lasted 19 days! Then, she had a week off, a week on, a week off, a week on, a week off........now, it's been 2 weeks since her last one. NOW.....I am seeing that the period was probably brought on by Kenalog and that the irregularity was too!
The other thing: She developed INDENTIONS across her forehead, they showed up on Aug.6th. One if very significant, the other 3 are smaller. There is some discoloration (greyish) and there is scarring at the injection site. We took her to the pain mgmt. doctor who did the procedure and she had researched it, after our call, and told us SALINE INJECTIONS would help to plump the indentions back up. She sent us to a Cosmetic Dermatologist b/c she'd not seen this or treated this before and he had. We saw him and he is waiting to talk to our pedi-neurologist to find out if she is a candidate for Saline Injections without effecting the nerves that are already messed up from the NDPH.
I am very upset about the side effects....we were NOT informed this could happen!!!!! The indentions are VERY TENDER! They are already at the site where her headache/nerve pain was severe..now you can't even touch across it! Hopefully her periods will regulate and stabilize! What a way to start your first one!!! UGGGHHH!!!! No one told us that could happen either! We had a doc fixing to put her on hormone therapy (BCP's) to regulate her! We are now waiting to see if it stabilizes.
My daughter has a great attitude about it, she has bangs and just said, "I'll just keep my bangs long enough to cover it up!!!"
I would NOT have taken the chance on this and do NOT recommend anyone with a child to take the chance with it! It wasn't worth what we ended up with!!!!
-- By bgcmom | Reply | Private Message me
September 18th
2008
10:04 PM
My daughter has Aloepecia Areata. Has anyone taken Kenalog to grow hair back. My doctors saying this may work and did mention about the dimpling effect. Not in the detail I read here, though. He made it sound like it would just be a dimple. I did not get the shot in his office, wanted to research some more. By the way, she is only a 11 yrs old. Not sure whether to try this stuff after reading all this.
-- By nancboutique | Reply | (4) replies | Private Message me
September 16th
2008
11:23 PM
Hi
My husband has been prescribed 2 different blood pressure meds Lisionpril and metoprolol back in June. Come mid July he started to have trouble sleeping and slight tingling in hands and feet. Then it progressed to the arms and legs and then the face and chest. We have seen cardiologist, neurologist, sleep apnea doctors, Had EKG, MRI, Heart sonograms, Nerve test done due to the symptoms. Everything came back normal. He is miserable. The burning and pain is unbearable to wear he wants to cut his feet off and the only thing we keep hearing is well LETS DO ANOTHER TEST or TRY THIS MED. So now he is taking a a sleep med for insomnia and some seizure med for the nerve pain, thinking he may have neuropathy. This is going on 2 months now of trial and error and after reading 20 minutes of experiences, I THINK ITS THE MED!!!!!!!
What do we do then? He had high blood pressure so what meds are good with no side affects of burning or insomnia? Any suggestions or help would be of great appreciation. Thank you!!!
August 6th
2008
11:51 AM
I have been on neurontin for 3 weeks due to nerve pain from a cervical disk. Last week I went to the doctor and it appears I have a bad urinary tract infection and a little incontinence. The pain is bad and I cant work right now. After searching the net I found on the manufacturer site that the above is an infrequent side effect. I guess I am one of the few.
-- By sickofpain | Reply | Private Message me
July 14th
2008
11:33 PM
I am a 39 year old man with peripheral neuropathy and migraines. When I was diagnosed 3 years ago, the pain in my right leg was horrible and headaches daily. My Dr. put me on Topamax and I was so happy, it seemed to help but one night( about three weeks into it) I went to bed and awoke in the morning legally blind. Topamax was stopped that day but it took 4 months ( and changing the prescription in my glasses 3 times) for my vision to return to 20/20. The doctors tell me I was lucky as some people have perminate lens damage from the optical pressure change.
My doctor said I could not take any thing in that class of medications as it would probably have the same effect on me. So he decided to put me on Cymbalta for the neuropathy. He said it was being tested as a possible use for neuropathy but had not been proven. It works great for the pain and oddly my migraines have gone down to about two a month.
July 13th
2008
12:00 PM
Complicated migraine, seizure, TIA, Killed IGa, Hypo Thyroid, Depression, Nerve pain and burning, confusion, memory loss, etc...continues 18 years post Lupron
-- By kimb3 | Reply | Private Message me
Neurontin (17) Topamax (9) Lyrica (8) Levaquin (7) Lipitor (7) Kenalog (5) Doxycycline Hyclate (3) Warfarin Sodium (2) Lisinopril (2) Simvastatin (2) Methylpred DP (1) Lidoderm (1) Ultracet (1) Ketamine Hydrochloride (1) Paxil (1) Advair HFA (1) Levoxyl (1) PredniSONE (1) Singulair (1) Avelox (1) Gabapentin (1) Vytorin (1) Ativan (1) Lupron Depot-Gyn (1)
November 19th
2009
9:17 PM
I started taking 20mg of Simvastatin on 10/17 due to high cholesterol. Five days later I came home from work feeling very tired and fell asleep. I woke up feeling severe flu like aches and pains in places I didn't know could hurt and then got the chills. I stayed home from work the next day and it's a good thing I did. I awoke with a severe cramp in my upper right thigh. I have always been prone to calf cramps so wasn't too concerned. However I stopped the meds on 10/22. This continued on a daily basis and I went to the dr on 10/27. I had an x-ray done which showed a bulging disc and some uncushioned discs. She put me back on the meds BUT with a COq10 am and pm and cut the pill in half. Do you think she knew it could be from the med? I foolishly restarted and by 11/4 took myself back off, had an MRI and such severe nerve pain in my right leg that I thought I would die. It was a bolt of lightening starting at my upper thigh and coming out the bottom of my foot. It felt like a hot poker running down my leg. The episodes were on a daily basis, would come every two hours, and could last as long as 45 minutes with no relief. I am now going for pain management and had an epidural a week ago which got rid of the nerve pain but I am still numb down my right leg to my right ankle. I have been healthy for years and feel that this was all brought on by Simvastatin. Any idiot can figure out that your nerves are running through your muscles. I am angry to think that this could have caused me permanent damage.
-- By purpleflamingo1 | Reply | (1) replies | Private Message me