Nerve pain symptoms and conditions

Thank you so much for this site and your posts. I am on my 4th day of doxy. and I had a panic attack today and anxiety--I was doing fine until now. I would consider myself a calm person so this caught me out of the blue. I called the pharmacist who thought I was nuts, I'm sure. She said it was not a side effect of the drug!! I also noticed some nerve pain over my body. But my infection is lots better so I don't want to stop, but I don't want to have panic, either or get sicker.

I also get the stomach queasiness when taking a dose and always eat a slice of bread with it. I have noticed a worsening of reflux and I make sure to sit upright for at least an hour after taking the medication.

Have been on Lyrica about 6 months. It does help the nerve pain in my leg, but for the past 3 months I wake up with terrible muscle spasms in that leg. The spasm pulls my foot straight down. I have had to get up as many as 7-9 times a night. Has anyone had this or heard of it???

my 11 y/o daughter has a chronic headache condition (NDPH), a non-stop headache since Oct.29,07. She had a supraorbital nerve block, occipital nerve block using Kenalog. Her first injection was only the occipital nerve block, then 2 weeks later, repeated the occipital nerve block and added the supraorbital (above eyebrow) nerve block. This was July 2nd. On July 10th, she started her first period...it lasted 19 days! Then, she had a week off, a week on, a week off, a week on, a week off........now, it's been 2 weeks since her last one. NOW.....I am seeing that the period was probably brought on by Kenalog and that the irregularity was too!
The other thing: She developed INDENTIONS across her forehead, they showed up on Aug.6th. One if very significant, the other 3 are smaller. There is some discoloration (greyish) and there is scarring at the injection site. We took her to the pain mgmt. doctor who did the procedure and she had researched it, after our call, and told us SALINE INJECTIONS would help to plump the indentions back up. She sent us to a Cosmetic Dermatologist b/c she'd not seen this or treated this before and he had. We saw him and he is waiting to talk to our pedi-neurologist to find out if she is a candidate for Saline Injections without effecting the nerves that are already messed up from the NDPH.
I am very upset about the side effects....we were NOT informed this could happen!!!!! The indentions are VERY TENDER! They are already at the site where her headache/nerve pain was severe..now you can't even touch across it! Hopefully her periods will regulate and stabilize! What a way to start your first one!!! UGGGHHH!!!! No one told us that could happen either! We had a doc fixing to put her on hormone therapy (BCP's) to regulate her! We are now waiting to see if it stabilizes.
My daughter has a great attitude about it, she has bangs and just said, "I'll just keep my bangs long enough to cover it up!!!"

I would NOT have taken the chance on this and do NOT recommend anyone with a child to take the chance with it! It wasn't worth what we ended up with!!!!

My daughter has Aloepecia Areata. Has anyone taken Kenalog to grow hair back. My doctors saying this may work and did mention about the dimpling effect. Not in the detail I read here, though. He made it sound like it would just be a dimple. I did not get the shot in his office, wanted to research some more. By the way, she is only a 11 yrs old. Not sure whether to try this stuff after reading all this.

Hi
My husband has been prescribed 2 different blood pressure meds Lisionpril and metoprolol back in June. Come mid July he started to have trouble sleeping and slight tingling in hands and feet. Then it progressed to the arms and legs and then the face and chest. We have seen cardiologist, neurologist, sleep apnea doctors, Had EKG, MRI, Heart sonograms, Nerve test done due to the symptoms. Everything came back normal. He is miserable. The burning and pain is unbearable to wear he wants to cut his feet off and the only thing we keep hearing is well LETS DO ANOTHER TEST or TRY THIS MED. So now he is taking a a sleep med for insomnia and some seizure med for the nerve pain, thinking he may have neuropathy. This is going on 2 months now of trial and error and after reading 20 minutes of experiences, I THINK ITS THE MED!!!!!!!
What do we do then? He had high blood pressure so what meds are good with no side affects of burning or insomnia? Any suggestions or help would be of great appreciation. Thank you!!!

I have been on neurontin for 3 weeks due to nerve pain from a cervical disk. Last week I went to the doctor and it appears I have a bad urinary tract infection and a little incontinence. The pain is bad and I cant work right now. After searching the net I found on the manufacturer site that the above is an infrequent side effect. I guess I am one of the few.

I am a 39 year old man with peripheral neuropathy and migraines. When I was diagnosed 3 years ago, the pain in my right leg was horrible and headaches daily. My Dr. put me on Topamax and I was so happy, it seemed to help but one night( about three weeks into it) I went to bed and awoke in the morning legally blind. Topamax was stopped that day but it took 4 months ( and changing the prescription in my glasses 3 times) for my vision to return to 20/20. The doctors tell me I was lucky as some people have perminate lens damage from the optical pressure change.
My doctor said I could not take any thing in that class of medications as it would probably have the same effect on me. So he decided to put me on Cymbalta for the neuropathy. He said it was being tested as a possible use for neuropathy but had not been proven. It works great for the pain and oddly my migraines have gone down to about two a month.

Complicated migraine, seizure, TIA, Killed IGa, Hypo Thyroid, Depression, Nerve pain and burning, confusion, memory loss, etc...continues 18 years post Lupron

I'm 46, female.. developed blood clots on my lungs for apparently no reason, found them when going to ER and complaining of bad headache, nausea and left shoulder and back pain. I haven't had a recent surgery, nor was on birth control.

I'm dealing with anxiety, depression, unusual headache, horrible back and upper shoulder pain, itching of head, hair falling out during shampooing, , tightness in chest, trouble swallowing, really bad pain in hips, legs and feel like feet swell. I don't sleep well, even on Ambien.. doesn't keep me asleep. I awake in the mornings around 4:30 with diarrhea, nausea, headache and feel awful. Never get a good nights sleep. My hips hurt as well as dealing with parathesias down right arm and into hand.. feels like needles sticking in my hand. Most days I feel wiped out in the afternoon.. as I try and drag myself out of bed to get some excersise.

Does anyone deal with parathesia's down their arms or hands.. what feels like nerve pain?

Has anyone ever tried Aggrenox, also known as Dipyridamole instead?

Or actually tried the real Coumadin, instead of the generic Warfarin?

Has any other woman out there been told not to use a tampon when on her cycle, as this will cause more menstrual bleeding?

I'm so tired of Dr.'s not having personal experience of their own with this drug.. and telling the patient that they are crazy and need to be on anxiety meds or anti-depressants. I just found out that Warfarin is the main ingredient in RAT POISON..

Has anyone EVER gone the totally nutrition route, juiced and gone radical, telling their Dr.'s that they were getting off of all meds?

Does anyone suffer from feeling like their ears are full, or hearing loss?

I'm so tired of feeling afraid.. and tossed around by Dr.'s who really don't want to do the research, nor listen to their patients.

I'd love to hear from anyone who has some insight..on any or all of the questions..

I am a 49 year old male and took a 14 day course of Cipro for a UTI. By day four the souls of my feet were very sore, especially first thing in the morning but no other side effects. Mentioned sore feet to Dr after 7 days of Cipro but he did not believe it was from Cipro and had me complete the course. After 14 day course of Cipro feet were now so painful that I could barely walk on them especially after resting or getting out of bed. Also burning sensation on skin of feet and hands and some minor tremor. Saw a specialist and he immediately confirmed Cipro as the culprit and advised never to take that drug family again. Have since done the whole web search thing and discovered the whole saga of these drugs. Other symptoms have also appeared, some pain in middle of back, sharp pain in middle of back of both knees, hot and cold flushes, pain in left bicep, fingers that are very susceptible to joint injury and feelings of weakness and anxiety. Has been over three weeks now since I stopped Cipro and condition shows no improvement, may even be slightly worse. About to try a shotgun approach with treatment as there appears little documented evidence of anything conclusive on line. Starting course of anti-inflams (Voltaren) and these have already reduced the pain in my feet. Also magnesium and calcium supplements (theory goes that it may mop up any remaining Cipro and there is plenty of reports from sufferers saying that symptoms continue to appear for some months after stopping Cipro), Vitamin B6 (can apparently help with some types of nerve pain and tingling) and Fish Oil (omega 3's can help reduce inflammation). Not very scientific I know and can't be sure that all these are compatible with each other but am a bit desperate at this stage. Bracing myself for a three to six month recovery (just based on experience of many others). At this stage I am just hoping that damage is not irreversible as this appears to be a real risk. As everyone here will agree it is amazing how this situation is being allowed to continue. I could have stopped my Cipro on day two or three if I had been made fully aware of the risks and what to look out for. I am no expert by any means on this but from what I can gather Cipro and its relatives do nerve damage by the very way they work. It appears that anyone taking these drugs will inflict some nerve damage but for many it will not manifest to a degree that is a problem or at least a noticeable problem. So in some ways we are all sufferers, just to varying degrees. Another point mentioned often is that the symptoms may not appear for some months after the Cipro is stopped and therefore is not always associated with the drug. Also some say there is an accumulative affect with using the drug a second or third time. Symptoms may appear only after multiple use or symptoms may get much worse and more likely irreversible with multiple use. It's all scary reading. At this stage I am just hoping I can make a full recovery. Do damaged nerves repair themselves, does the Cipro eventually leech out of our systems .... I don't know. I will post in this forum again in a few months or sooner if I make a recovery.

I am a paraplegic and have experienced severe nerve pain in my legs and feet since my spinal cord was severed in 2002. After going through a stringent pain management program,(two months of evaluation, psychological testing, spinal cord stimulation, nerve blocks, etc), my Pain MGT Physician at UT Southwestern Medical School in Dallas, began prescribing me Lyrica. Lyrica was just beginning to be prescribed by physicians. We gradually ramped my dosage to achieve the most pain relief for me. After experiencing excruciating nerve pain for three years, Lyrica was a miracle working medication to me. Finally, finally, I had found some relief in the burning, squeezing, and exploding shocks in my legs and feet. I take 600mg, 5 times a day. After every four hours, I can feel it wearing off and the same screaming pain comes racing back. Nerve pain is so difficult to control. I can't say that I am completely pain free, but at least it is a manageable animal.

I had been taking Lipitor for well over six years to help lower my Cholesterol count with no know side affects. A problem developed about two and a half years ago with nerve damage that gave me excruciating pain in my shoulder and arm. After an MRI and three cortisone shots I was referred to a neurologist for help. He had no idea what was causing the problem.

About six months after many doctors could do nothing for me, and referring me to a physical therapist, my wife showed me a story in a magazine, which I can no longer find, that talked about problems with Lipitor that had not been properly documented. The article talked about exactly the side effects I was having. The article said there was a problem with nerve damage. It had been well documented that some people had muscle problems, but it was not know there could also be a problem with nerve pain.

I contacted my doctor and stopped taking Lipitor. Two months later, the pain just disappeared. The very day the pain ceased, I had a visit from a good friend of mine who is a Radiologist and who had studied Lipitor because of a problem he was having.

He explained that Lipitor was doing the job it was supposed to do, namely keeping the liver from producing all fats. The problem I was having was that I had injured a nerve and Lipitor was keeping the liver from producing a particular fat needed to help heal that nerve. It seems that the myelin sheath around the nerve needs that fat to help the nerve heal itself, and Lipitor was preventing the production of that particular fat.

Once I quit taking Lipitor it took about two months for the healing fat production to do it's thing. Recovery of the nerves in that arm has been very slow, but they do seem to be healing now.

I thought this was such an important finding that I notified all the doctors I had seen about this problem. To my great surprise I heard from no one. Not even a thank you. I guess that since they didn't find the solution, they just were not interested.

I hope this discussion helps someone else. Thanks for listening.

I've been on Topamax about a month now for nerve pain. It really hasn't helped my pain much, but the side effects have been incredible. I've worked up to 150mg and have had side effects from the beginning. Unfortunately, I haven't lost weight, which I need to do and the Doctor said it was probably because I don't drink sodas.

Here are the side effects I've had:
memory loss, "can't find the right word", confusion, difficulty breathing, eyes burning when looking at computer and tv, trouble reading & spelling, slower movements, dry mouth and ears vibrating.

I forgot to fill my prescription and it's a Sunday morning, so I am cutting my dosage in half. I hope decreasing so rapidly doesn't cause any kind of reaction and I will have to see how I feel as to whether or not I continue at the lower dose. I probably will. My husband does not like me on this drug. It makes me quite stupid and slow, and it doesn't even help my pain.

The eye pain is what worries me the most. My Doctor warned me about glaucoma. I don't want to take a chance and over the last week or so my eyes have started hurting more and more.

Good luck to everyone.

you people are a trip, don't you have anything better to do with your lives?
most of you are a hypercondriac and don't even know it, did it ever occur to any of you that you may have other problems? or was that too hard to face the truth about yourselves? if Neurontin was all that bad, don't you think that, that would have all been out? I knew there was some wackos but you guys take the cake, GET REAL!

I was in the hospital for a bowel re-section. On the third day, they switched me to Levaquin because I spiked a fever. I was released four days later (after 2 doses of I.V. Levaquin per day) and sent home with three days worth of pills. Ever since I've taken the Levaquin, I've had horrible shoulder and back pain and feel somewhat neurotic. The doctor said that it's a side effect from Levaquin. I have one day left of the medication and will continue to take it, but I'm curious if anyone else has had mental side effects. All I've read about is the joint and muscle soreness. Please help! It's affecting my sleep and daily routine. I don't recommend this and will not take it in the future (not to mention the cost of the medication!)
thanks

I went back to my PCP today. Yes the one that gave me the Levaquin. He was very nice and even agreed it was the Levaquin I took back in December. He said that these types of side effects we all are describing are RARE (I would have kicked him for all of us, but my legs hurt to bad).

But he did acknowledge pain and my symptoms (listed in my December post) and prescribed me Prednisone for my ligaments and Lyrica for my nerve pain. He also said it was going to be a long haul. I know that some of you are dying to telling why these meds are bad too, but I am going to try it because I haven't really been out of my bed for two weeks.

I just wanted to let you all know, that maybe some doctors are starting to listen... and that we should keep speaking out and warning others about the HIGH risk of our side effects.

I took Cipro at 200 milligrams / 6 pills / 6 days about a month ago.

I cannot/barely sleep, I'm constantly wired.

My left leg voluntarily/involuntarily twitches sporadically.

My body feels like some kind of horrible "bubbles" build up and are then released...everywhere...probably some kind of circulation thing, I don't even want to know.

My legs have nerve pain occasionally, my right arm has pain occasionally.

My digestive tract has rare pains and is irritable/snazzy...I don't know when I'm full, I barely know when I'm hungry.

I have to force myself to urinate, as my body does not give me the "I'm full, empty me" signal anymore.

I get white lines of light that streak across my vision rarely.

I lost most of my emotions except the humor I receive when I think how horrible it is. I would not wish this on my worst enemy.

In July of 2005, I was prescribed 14 doses of Levaquin 750 mg for a bad case of viral pneumonia and mononucleosis. After two days of insomnia, I developed extremely painful feet, especially the bottoms of my feet. Last month (Aug 2007) I was diagnosed with Avascular Necrosis of the Hip, and just had my right hip replaced (total). At age 45, I am fairly young to have developed such an ailment and other than July of 2005, have been healthy and active my entire life. In retrospect, I am beginning to wonder if Levaquin caused my avascular necrosis, as the doctors are at a loss.

I took Lipitor for 4 or 5 years. I lost count. I am a type II diabetic and the Dr. threw tons of prescriptions at me. I was convinced all my problems were not the result of Lipitor because my sister's Dr. told her that if you had the muscle pain you would have it all over. Well I got sick of feeling like I was 85 years old. I am 57. I know I am not young anymore, but I couldn't sit for more than a few minutes without having trouble getting up. The right top of my leg hurt so bad some times that I could hardly walk . I also had really bad pain on the right side of my lower leg. I had pains in my neck and shoulders and attributed it to stress at work.Last, but not least I had terrible gas and bloating. The gas was downright embarrasing. Well I took it upon myself to stop taking it. Within several days I felt like a new woman! The minute I woke up one morning I could feel the difference before I even got out of bed. I felt like I had been given my life back.

When I called my Dr. to let her know she wasn't very happy and wanted me to come in. Well now she put me on Crestor and it's been two weeks and the old pains and gas are coming back. I am NOT going to take these terrible statins anymore. They say that the muscle and joint aches are rare, but that is only because most doctors won't listen to their patients. You know your own body better than anyone else.

I have heard that some of the "older" statins are not as powerful and they don't have as many side effects. Has anyone else heard this or had any experience using them?

All I know is that for now I am off statins.

OMG, I thought it was just me! I went to my doctor because of an ongoing infection and the worst cough I've ever had. I was given Levaquin 750mg and a steriod shot. Then it went down hill from there. My ankles began to swell, then my fingers and hands. I had a very hard time using my hands to open my back door and it even hurt to use my stapler at work! Then other joints began to hurt, like my neck and my knees. It was painful to get up or sit down. I tried to get up and get ready for work one morning, but I just stood in the shower crying because my entire body hurt. I went to an emergency clinic and asked them to start doing lab work to find out what's going on. I felt like I was 90 years old and had been suddenly stricken with menopause, lyme disease, fibromyalgia,arthritis and migraine. All the lab came back normal. I went back to the doctor that gave me the drug (handful of samples) and was referred to a pain and joint center. I am still trying to recover from this drug. .

Hi. I was on Topamax for about a year for severe pain in my foot. I had nerve pain on the front outside part of my foot so bad I could not walk. I am also a sufferer of chronic migrains and have been hospitalized several times a year for them. I stopped having migrains - didn't realize until now that it was probably the Topamax. I didn't know why they stopped and didn't know that Topamax was used for that. I took it for just over a year. 100 mg a day at bedtime. I lost 40 lbs, the pain in my foot went away, and I haven't had a severe migrain since. I have been off of it for abou 1 1/2 years now, but want to go back on it because of the weight loss and some other nerve pain I am having with my ciatic (sp?) nerve. I did experience tingling in my leg and toes and soda was flat. I didn't know what the leg tingling was from until I read this blog. I can deal with soda being flat because I really don't need the sugar!! I love Topamax. It worked GREAT for me!! The pros far outweigh the cons for me. But everyone is different!!

I have been taking Topamax since 2002 for migraines. I started out slow with 25mg at night for a week then 50, 75 then 100mg after one month. The following week I was suppose to start 25mg in the morning. I received headaches from that. I only stick with 100mg at night and have not suffered from a migraine since. Unless I am hung over. I did get the tingling in my hands and now I hate soda. Which to me is a good thing for all the sugar it has in it. However, when my script runs out and it takes me two or more days for a refill, I get extremely sick. Must be a withdrawel thing. So do not miss more than one day.

I have been on lipitor for a little over two years now. I experience extreme joint and muscle discomfort. I am also picking up weight at an alarming rate. No matter what I do to lose the weight, it's not working. I've had several blood tests, but all come back fine..but I know I don't feel well and I'm having trouble remembering things....

I have been taking Neurontin for 2 months. I didn't think it was really helping because I still couldn't function normally. I have had 3 disk surgeries on L4/5, and still have severe pain in my right hip and down my right leg all the way to my foot. I am told there is scar tissue build-up in the area causing the nerve pain. I started taking Neurontin in small doses and have built up to 1200mg 3 times a day. I still couldn't walk more than 20 feet without leaning on something, but the pain was noticably less severe. My doctor put me on Trileptal instead, and the first day off the Neurontin was a nightmare...the pain was worse than ever. I went back to the Neurontin immediately. I have experienced some weight gain, but have attibuted that to no exercise. It does seem to make me forgetful, tired and somewhat depressed, but without it, the pain is completely debilitating. I want my life back, but I don't know what to do from here. Neurontin has helped the pain to a more tolerable level, but if I still can't even walk, I'm not even close to functioning normally. If anyone has a suggestion, I would love to hear it...thanks.

I am an RN. I have complained to my allergist and Practisioner for years that I have terrible hip pain, muscle and joint pain with the Advair. It works great to control the wheezing, but everytime I start back on it, within 2 weeks I am limping and crying with pain in my legs and hips. Everytime I manage to get off for two weeks the pain subsides. I have had xrays of my hips and there is no deterioration. I too have gained considerable weight. We have tried Spriva and it also had adverse reactions. It increased mucus instead of decreasing it. If anyone has a suggestion, I would like to hear what it is.