Neurologist symptoms and conditions

I finally stopped taking Topamax because of the side effects. But the worst was getting kidney stones from it. I only drink water and drink a lot, but I still got stones. The first time I was in so much pain that I could barely stand it. The second time, I had the pain and with it a kidney stone that was too big to pass. I could barely urinate. Had to have emergency lithotripsy to remove it. The doctor did a CT scan recently and it showed I still have many stones in both kidneys. I can't take another one of these attacks because they are so painful. My neurologist gave me a natural remedy for migraines called Petadolex. This stuff works! It has made my headaches much less severe when I have them which is not very often and my daily low level headaches are gone. This stuff is made in Germany and can be found in most health food stores and pharmacies. It also cost a lot less than Topamax.

When the generic Topamax (topiramate) came out, my insurance company wouldn't cover the real Topamax and it was costing me $400 a month if I wanted it over the generic. The generic was the worst drug I have ever taken. It is NOT the same as Topamax. I got so ill off of it that I had to get back on Topamax. I am finally off of Topamax completely after decreasing the dosage over many weeks. I was on 200 mg a day. I had all the side effects too like tingling hands, cognitive impairment and depression along with some others. This drug is poison and I am so angry the manufacturer didn't state all the possible side effects when they knew damn well it had them. There is a class action lawsuit against this manufacturer for not disclosing some of the horrible side effects.

I was literally in tears when I found this site and read all of your posts. It was as if I was reading something I HAD WRITTEN. Having just returned from getting a CT scan of my head, I started researching "causes of severe headaches not related to migraines" and lo and behold this site popped up in my search. What caught my attention was the word "Mirena". Up until today I had never even considered that all of the issues I have been having since the birth of my daughter in August 2008, were in any way related to Mirena. When my daughter was about 2 months old (after my 8 week check up and insertion of the implant) I became extremely moody, sad, social anxiety kicked in, I cried for no reason, had no desire to talk to anyone, not even my husband - VERY unlike my personality. After talking to my doctor it was determined I had post partum depression so I was prescribed zoloft. Didn't work. Was still irritable and lethargic but maternity leave was up so I went back to work. I was exhausted, couldn't process my thoughts, was constantly dizzy and had blurred vision and it was all attributed to the "baby schedule (nightly feedings, no solid sleep, adjusting to schedule, etc.). My mood swings were out of control and it got to the point that I even through a knive (albeit a butter knife) at my husband. I began seeing a psychiatrist who determined I had mild bipolar disorder so he put me on medication for that. It has helped some but still doesn't control my crying spells or occasional outbursts. Recently I was so dizzy that I saw my ENT doctor who said I had vertigo. I was prescribed something for that. Still, I am dizzy and feel off balance. Most recently, I have had severe, severe, severe headaches and though there is a great possibility it is a viral issue, I was ordered to have blood drawn and to obtain a CT scan. Nothing much revealed so we set an appointment to see an neurologist next week. So, because of the worry over it, I started doing an internet search and her I am. Reading these posts brought on an overwhelming sadness because my poor family has had to endure my wrath for past 12 months. I am so angry that I didn't see this sooner and moreso that their !@#@#$% side effects didn't list ANY OF THESE discussed here. Additionally, my hair has been falling out in clumps and I can't seem to lose weight despite my 1500 calorie diet and exercise.
I made an appointment TODAY to have it removed. If I could yank it out myself I would. Thank you all for your posts. You may have just saved my marriage and my life.

On Sept. 2, 2009 I had a cortisone shot in my back for L4, L5, C1 disc problems. The shot was painful but brief and I went out of there with no particular symptoms. It was done in a hospital by a neurologist. On Sept. 4th I woke up and the whole room was spinning. I threw up and this continued for awhile. I could hardly stand and went to the hospital emergency room where I spent the next twelve hours getting all kinds of tests. My blood pressure was 185 over 110. Finally, they told me they could find nothing physically wrong and dismissed me with meclizine for dizziness. This is now Oct.27th and I had these vertigo symptoms for seven weeks! I was sent to an ear specialist and underwent vesicular therapy for benign position vertigo several times a week at a rehabilitation center. I had brain MRI and a neck MRA which showed nothing. Last Saturday I passed out for a few seconds. Every medical specialist insists that the Cortisone shot had nothing to do with all this but I am still undiagnosed. Yesterday (Oct. 26th) the dizziness ended (7 weeks). I don't know if it is gone for good. I cannot believe that it is just a coincidence that all this happened two days after the cortizone shot. Does this strike a bell with any of you?

Hello, I can't help but get into the Mirena conversation. Three months after my son was born, I was put on the Mirena IUD. I had a ton of symptoms. My hair was falling out, tired, weak, headaches, stomach cramps, and just all around felt like crap. I went back to the doctors to have the Mirena removed positive that it was the Mirena that was making me feel like crud. The doctor persuaded me to keep it in longer and after much debate and feeling flustered with the doc I agreed for a couple more months. Well symptoms got ten times worse to the point I called and demanded to be seen right away to have it removed. Well after it was removed, I felt better but not completely. I started losing weight, I had periodic migraines which mind you I never had a migraine in my entire life, and felt like a truck ran over my body every morning when I got out of bed. I went to the doctors and they ran a slew of tests and NOTHING! Well about a month after a car ran a stop sign and crashed into me. I hit my head. IT was the best damn thing ever, I got a cat scan and it showed something on my brain. A MRI picked up a right cerebellum hemangioblastoma about 3cms. I had to have brain surgery to have it removed. They decided to do a full scan and I now currently have a kidney hemangioblastoma. Moral of this story. I am 31 years old, I have always been healthy with no migraines, no ailments, nothing. I have the Mirena put in and I feel like shit and they found a brain and kidney tumor. The estimated both my brain and kidney tumor to be about 2 yrs old. THE EXACT TIME I GOT THE MIRENA IN. Hemangioblastomas are either sporadic of VHL. With sporadic, usually you only get 1 and if you get another its later on down the road and my two tumors would not be the same age so it rules that one out. VHL, I had a genetic test done and it came up negative. So anyone of answers for my mishap. I know the Mirena caused this for me. Im just looking for someone with a similar story

Oct-14-09 I found your site on Oct-1-09, read several stories with very similiar symptoms of my husbands, and at that time, wrote one of my own. Today several weeks later, I must tell you what has happened. I printed several of your stories and shared them with my husband's Dr. After his Dr. read a few, he in fact agreed that my husband might be having these reactions from the Lisinopril. He instructed my husband to stop taking the medication. It has been a little more than a week since my husband has stopped taking Lisinopril, and I am happy to report that his symptoms have decreased significantly. I had read the warnings about this drug before my husband started taking it more than a year ago, but it never occurred to me that this drug was his problem. In the past year he has seen a neurologist, stomach specialist and a endocrine specialist. Not one Dr. had even questioned the use of ths medication!! Had I not stumbled onto this site and read your stories, I know that my husband would still be taking this drug, We would still be searching for ANSWERS to the cause of his continued symptoms. It scares and saddens me to think of the many people who are taking this drug, who are suffering and don't know that the drug is causing all of their pain. Thanks to everyone for sharing their stories, God Bless!! A.

hair loss, neuropathy in my right leg, complete exhaustion, numbness and tingling, stabbing pain in my back that wraps around my chest, headaches, depression, paranoia, stomach pains, chest pains, tremors in my head, pain down my neck, pain in toes, blurred vision, tearing pains in feet, very weak, moody, pain in face, really bad symptoms week prior to period, cracking sound in joints, -- Have had symptoms for three years and just had a neurologist confirm today that all of these problems have been caused by my doctor prescribing avelox and prednisone!

Was prescribed avelox for bronchitis. Took it for the full ten days. began having diarrhea. It has been 5 weeks since i stopped taking the medication and have continued to have diarrhea, cramping, abdominal pain. The diarrhea is a loose stool. Have had stool tests done and do not have a secondary infection from this.

Started taking Lisinopril approx. 6 years. ago. Shortly afterwards I started a spiral downwards for no apparent reason. Did not connect this med. Shortly after starting it I was put on Synthroid for low thyroid. Started having loss of balance, dizziness, vision problems, muscle and nerve pain. B/P went up instead of going down. Have been to every type of Dr. (Neurologist, Dermatologist, Endocrinologist, Internist) and every nerve & muscle test and blood work came back negative. I have extreme cold in my hands and feet, increased back pain. headaches. This past week I have broken out in a rash on my torso and down both legs. The doctors answers are that I'm suffering from depression. The irony is that when the symptoms first started I questioned if I could be having a reaction to the medication and they flat out said no. After reading some of the comments as of today I am discontinuing the Lisinopril and will searce for something natural. I'm fed up with doctors and really short on cash from all the money spent trying to find an answer.

I had the Mirena placed in 2004 after the birth of my second child. I had weight gain, mood swings, hungry all the time (i would sleep eat), depressed, joint pain and was tired all the time. I eventually got it removed 3 years later and my symptoms got even worse. I was severely depressed, my sleep pattern was abnormal, my mind was fuzzy, couldn't concentrate, joint pain worsened and had absolutely no energy. I started itching and having tingling sensations and "bug biting" pain/sensation especially in my extrementies. It was weird. It stimulated a hormonal response that affected my central nervous system. I know it did. I will never be convinced otherwise. It was a shock to my system. There needs to be studies done in this. I finally drug myself to the my general practitioner 3 months later and I thought that I would get admitted in a psych ward. I was hardly functioning. No kidding. I had no reason to be depressed. My life was better than ever. I was not admitted, but I was put through the ringer for tests and my healthcare bills became outrageous. I had tons of blood work, sleep studies, saw a neurologist, had a myelogram, mri, and put on several medications which added to the weight gain. It has been almost 2 years now and I am just now starting to feel like myself. All of the tests were inconclusive. The neurologist dx was something neuromuscular. I am not on any medication now, but am not 100%. But I know that damage was done and I am older. So I'm afraid that I will never feel great again. I wish I had never had the Mirena. Never. I know I miscarried once and suspect that it happened twice. I didn't have a period for those 3 years but it was not worth it. This product should be recalled.

10-1-09 For the past year my husband has complained of severe headaches, muscle and stomach cramps, nausea, diarrhea, hot flashes weight gain and severe depression.(he takes anti depression meds) He sleeps 8 to 10 hrs during the day and all night. He has seen a stomach specialist and a neurologist. He has had numerous tests done by both Drs. He had his gallbladder removed in Dec.08 He had over 100 gallstones His thyroid is very low, (has been since diagnosis 6 yrs ago) his medication has been increased 2xs in the last 2mos. He is not any better. He will see an endocrine specialist 10-5-09. I have researched for hours on the internet for anything that will help the drs. find what is causing all of these complaints. He has so many symptoms, nothing matched and from head to toe. No luck until now. He has every symptom that you good people are describing. I will most certainly use this information and share these stories with his Dr. I have seen the LIFE being sucked out of my husband. None of these "Specialists" have ever suggested that perhaps the lisinopril might be the problem. I GUARANTEE YOU I WILL!!
Thanks to all of you for sharing your stories, GOD BLESS EACH AND EVERYONE OF YOU. A. A.

Hi all.

I just discovered this website, and reading all these comments makes me want to comment also. I, too, am on Lisinopril and am suffering many of the side effects mentioned here.

I'm a 54-year old male, and have had high blood pressure since around 1998-99. Nothing really controls it, although I've had episodic success from time to time. I lost a lot of my hearing last year due to a BP-related disorder called "hydrops" (my right ear particularly), and my eyesight has declined from 20/20 to "mediocre" in record time (although it's been largely stable now for 5 years).

Really, everything bad started when the medications began in 2002. For example, I now have Type II diabetes, almost certainly as a result of the diuretic I was prescribed from 2002-2007. I could also tell horror stories about clonidine, Toprol, Accupril, and others.

Latest event: I ended up in the hospital ER last Wednesday for what seemed like a minor stroke. I am now suspecting the Lisinopril because the symptoms so mimic much of what folks describe here. I've never had the bad cough, but the joint aches are awful. As for the stroke (actually, a TIA -- Transient Ischemic Attack) -- we'll know for sure after the MRI tomorrow, but my regular doc and the neurologist suspect it was NOT a TIA. Then I see descriptions here of tingling, neuralgia, and other symptoms identical to what happened to me!

Sadly, I don't have any simple answers to share. I've tried to cut all sodium from my diet, and I know that's helped. I am now trying a device called the Zona Plus (******), some $300 but possibly worth it. I used it for 90 days in 2007, then gave up and went to a no-salt diet ... and my BP dropped like a stone. I thought diet would do it all, but I was wrong. I should have continued using the Zona. So now I've started a new trial of it. We'll see what 60-90 days on it PLUS a low-sodium diet can do.

There's another device called the Resperate which is also kind of spendy. Anyone tried it and had success?

I'll be seeing my doctor this week or early next, and asking him to get me off the Lisinopril. But what to replace it with? Any ideas will be welcome.

Gran-Mal Seizures and myoclonic jerks for over 30 years as a result of being struck by lightning while serving in the Marine Corp. Have tried "all" of the medications and most made it difficult to do my civilian job. (School Administrator) The best advice I every received was to keep a diary and record everything I could remember happening to me before a seizure. By doing this I have been able to develop a warning system of oncoming seizures. (Same think as most people saying they can feel a headache coming on,) I can live with the myoclonic jerks as they only occur once or twice per day. The seizures while at work or driving are a different matter. (I have warning signs for seizures on the average of once or twice per week, and around one per month goes into a seizure.) Most of the medications other than Lamictal cover up my warning signs and I simply refuse to take them. I work very close with my family Dr. who understands my case better then most Neurologist I have ever had. Neurologist want to give any drug at a strength that will stop all seizures and that can and often does result in side effects that prevent normal live. Lamictal in low dosage, 25mg twice per day may make my seizures less sevier. Any higher dosages causes many of the side effects others have described on this site, but for me the biggest problem is that it blocks my warning signs of oncoming seizure. I get 20 to 30 minutes warning of oncoming seizures and many times can avoid a seizure by just stop doing what I am working on and taking a break and resting. If that does not work, I take two 10 Mg Valium and find a soft place to lay down, the valium will stop or lessen my seizure and I will sleep for one or two hours, and wake up. Sometimes I will have a seizure after taking the valium, but I am in bed or resting and usually under observation. My key has been to learning the warning signs of an oncoming seizure in time to get to a safe place and by always having the valium with me. We are all different individuals and our medical problems are different. Share everything you can remember with a Dr. you trust and attempt to develop warning signs of an oncoming seizure is the best advice I can give after over 30 years of living with a seizure disorder.

Last month, I went to see a dermatologist as a result of being bitten by bugs while staying in a motel. The doctor looked at the bites and one particular bite on my right arm, which he said was a tick bite. For that bite, the doctor prescribed to me a drug called Doxycycline HYC for Lyme Disease that I had to take for 30 days. Number one, I hate taking drugs and I have never taken any medication for that long a period of time, except for the Centrum multi vitamin I take on a daily basis.

I went back to the doctor's office earlier this month showing him more bites on my back and a rash on my right leg, the latter of which he said was an allergic reaction to the drug prescribed. He said Doxycycline HYC was the drug that is used to treat Lyme Disease and that I had to finish the course.

On Wednesday of last week, I had four pills left when I noticed a slight change in my vision. I took the pills Wednesday and Thursday and was done with them on Thursday to finish the course. By Saturday, my vision was very blurry and I only have one eye. I wear safety glasses to protect that eye with no prescription in the lenses.

On Saturday, I walked over to the pharmacy and the pharmacist printed out a report on that drug and there is an indication – along with many other side effects – citing blurry vision. On Sunday, I spoke with the doctor's colleague, who asked me whether I was also having headaches while taking that drug. I told the colleague I was having headaches but that I was taking Tylenol when the headaches occurred. The colleague not only told me I could have been prescribed another drug (which I was surprised to hear but would it have mattered anyhow because I only had four pills left) but he also said that my vision will get better but it will take time. I really wish I knew in what time frame my vision will come back because the colleague also mentioned that I may have to see a neurologist and I am wondering because of that statement if something happened in my brain during the times I was getting the headaches that could have affected my vision.

Then I was talking to a nurse friend yesterday concerning the blurry vision – which is still blurry since Saturday of last week – and she asked me if I have diabetes. I told her I do not have diabetes but she said blurry vision is associated with diabetes and that I could lose my sight.

I cannot believe all that has happened as a result of taking that Doxycycline HYC. I also went to have an eye exam and the eye doctor scheduled an appointment for October 8 to see me again to see if the vision clears up on its own. He said if it does not, I must now start to wear prescription lenses. But I am really skeptical about waiting that long because every day I wake up, my vision seems to be getting blurrier and blurrier. I am blown away about all of this -- all as a result of taking that drug. And I have to sit very close to the computer screen in order to see to type anything.

Because my nurse friend was talking about diabetes being associated with the blurry vision, I also went searching about that yesterday and found this statement:

"The use of antibiotics can affect blood glucose levels, at times contributing to elevations and in some cases a decrease in blood glucose levels, depending on the antibiotic used, as well as individual response. Antibiotics are also used for the treatment of infections, which often contribute to elevations in blood glucose, in and of themselves. In the case of Lyme disease the relapsing cyclic activity of the Borreila spirochete, may also contribute to times of elevations in blood glucose, due to the increased presence of infectious organisms during periods of such activity. It is important to discuss your blood glucose response to treatment with your Doctor, as improved blood glucose control during times of treatment
for any infectious state, helps the body put up a better fight."

I am stuck in my apartment scared to death and very, very, very depressed about this blurry vision. Moreover, I unable to drive to the locations I need to get to for my job because not only is it hazardous for me to drive on a consistent basis, but my bills are coming due and no way of paying them.

My daughter has had seizures for 20 years. She was on Depakote and Tegretol for about 15 years. We switched neurologists because of the continued seizures and involuntary movements that made her fall. She is now on lamictal (300mg) and topamax . Her seizures seem better, although she still makes the movements. But what is very different is her speech. She is speaking very nasally to the point I almost can't understand her and she repeats her sell constantly. Going to the neurologist next week.

I had my Mirena taken out in May 2009, still feel foggy in my head and occasional dizziness... so afraid I will never feel like my old self again. I know feeling like this isn't normal and while I had mirena in I even sought the help of a neurologist because I had no idea why I was so dizzy. Could barely function and even now it effects my life so much. I am so upset still and can't explain to anyone how sick I still feel. Any responses are greatly appreciated, I am disgusted and distraught!

My daughter is now 20 years old. she received her 1st gardasil shot in 3/08 and the second in 8/08. She didn't get the last one and will not be getting it. From the day she got the first shot we should have known something. She nearly fainted immediately after both shots and complained of weakness and flu like symptoms. Started feeling poorly in the days and weeks to come. It was the end of her senior year the doctor tested her for mono. and it was negative but she had an extremely heavy schedule at high school. He chalked it up to the stress of that. Between the two shots she started having numbness and pains in her hands,elbows and arms. She continued to feel poorly and terribly irritable in the upcoming months. We saw a orthopedic doctor for her pains in her arms. He referred us to a neurologist. She was beginning her first year of pharmacy school and we put off the neurologist because she didn't have much time until spring break. During her 1st year of school after her 2nd shot. Her personality changed completely. Became insecure, moody, very anxious , constantly complaining of flu symptoms, bladder infections and had a hard time urinating. When my daughter returned home from her first year away at college I knew immediately that she had changed. She had been a very bright, intelligent, independent daughter and came home the daughter from hell. I couldn't believe what I was seeing. She was miserable, disliked pretty much everything. I had been talking with the doctor and friends over the course of the year and they all said that she was in a very stressful field (pharmacy) and college life takes some time to adjust. Then just a few weeks home from college she was complaining of dizziness, light headedness, headaches and saying she was having an episode. I thought maybe low blood sugars.....until I witnessed one. She was having Myoclonic seizures. She could feel them coming on but couldn't move or react. By the time I witness one of them she hadn't slept in 3 days. She was diagnosed within a week seeing a neurologist and having 50 to 60 a day. It took 4-5 weeks to get them under control in and out of the hospital . She has been on many seizure medicines it seemed like if it worked to stop the seizures she had crazy side effects. She was diagnosed with Juvenile myoclonic epilepsy. No one in our family has ever had seizures. I asked about the shot right away everyone said no and it was dropped. Since last July 08 we have been trying to help our daughter get her life back and it has been the worst year of our lives. She was unable to return to pharmacy school. The first fall 08 she was completely disabled. It looked as if she had had a stroke. They were saying it was the meds or maybe she had a breakdown of some kind. I am learning that it was side effects of this horrible shot. This is why I am posting this lengthy message because I wanted to let other people know that you and your daughter are not crazy!! We just started 2 weeks ago investigating the possibility of the gardisil shot being the reason for this madness. We have learned many things and are very sure that it was the shot that change our daughter.. I was contacted by a friend of a friend about a similar girl having the same pains in her arms and the focal seizures. I am learning more and more everyday about similar situations.. If this information can help one person it was well worth the time to jot it down. I will be praying for all of your families out there dealing with side effects from this vaccination.. I will let you know what we hear when we visit the neurologist at the end of the month. Any comments or information that may help us help our daughter can be sent to ******

Hello,
How long do side effects last after completing steroid treatment? I've been off of pred for 4 months for crohn's first time. I was on 40/30/20/10 for a 6 week period. When I got to 30 my legs went into extreme pain. They felt like they were on fire, burning knees. Went to several doctors. One said steroid withdrawal, one said inflammation of nerves from Crohn's. Neurologist put me on neurontin to get off of the pain meds. I am still in excruciating pain and wondering if it really is steroid withdrawal. I can barely walk at times with extreme sharp pains, like someone is stabbing me in the legs. Can't stand for long periods of time and pain pills barely touch the pain. During steroid treatment, they gave me 3 rounds of Dilaudid in the ER and I was still crying, and I don't cry. Has anybody ever had this effect this long after being off the drug??

I am also really glad I have found this website. I had my mirena placed in March 2006. I loved it, told all my friends thought it was a miracle. I have completely changed my mind. I have dizziness, headaches, joint pain and my PCP put on Lexapro for anxiety and mild depression in September 09.
I have a 3 and 4 year old, but am so fatigued at times I don't want to do anything but sit around. I can not lose any weight. I tried nutrisystem and
that didn't help. I am also having having a symptom that hasn't been mentioned on the site. I have done some research and noticed that the mirena can also cause blood vessels to constrict. In December 08 after having some (quite a few) drinks and smoking cigaretts at my husbands
Christmas Party the next morning my forearms and hands were a dusty blue color. I have had this happen one time since. A couple of times the bottoms of my feet were a purple/ bluish color looked as if they were badly bruised. After researching the cause of this, the only thing I can find is that the mirena can also cause constriction of the blood vessels. Has anyone else had this happen???? I had and echocardiogram done, that was fine all my blood work has come back normal. Am seeing a neurologist, he has me scheduled for a nerve condition test, but he thinks
I may need to see a vascular doctor.

I have been on Lisinopril Hctz for 7 years and have started getting numb feet and hands. Also, muscle weakness...I feel like I have 50 pound weights attached to my legs and have trouble walking. Nerve conduction tests are fine, also, blood work came back normal. Next step is the neurologist a month from now but I am going to stop taking the Lisinopril and see what happens.

I have not had good experiences with various statin drugs through the years. I was on Zocor a few years ago. I suffered from a tripping gait at times (seemed as if the bottom of the toe area would stick to the sidewalk and I felt as if I was going head over heels and balance issues), so much so that I was referred to a neurologist. My internist poo-pooed my symptoms at the time until I mentioned the formation of cataracts. That did it. Zocor stopped. On to Crestor. Crestor was briefly tolerated until I was walking up four flights of stairs. While on the second flight, my legs literally locked. I could not raise my legs (thigh muscles had tightened so badly, that I had to stop, regroup, and start again. Next course after a brief respite, Lipitor. I am taking between 5 and 10 mg. as tolerated.

I have had issues with Lipitor as well, despite the 'pediatric' dose. I have felt occasional ankle tweaks, and most recently over this past weekend, upon going down a flight of stairs, my left knee buckled. Thank goodness I did not fall, but the weakness was there for the day. I have not taken Lipitor since last Friday night. My cholesterol level (off the statins) had reached a high of 357. As of the last testing (my first after being started on Lipitor), it was 255 - my LDL was 137. I know that if I stop the medication that the numbers will start to rise. This yo-yo effect is very frustrating but my overall well-being is of my utmost concern. Both parents had heart disease. My father passed away at 63 years of age (heart attack, recuperation, then massive heart attack 22 months later), and my mother had angina pectoris, bypass surgery and recurrence of blockages, only to die from multiple myeloma at the age of 89. My newest symptom is pain in the right side, outer portion of the rib cage area. This started two days ago. I had this when I was on Welchol as well.

I began getting debilitating headaches 3 years ago. They were everyday and not the classic headache (no visual, nausea etc). It felt like a jackhammer to the back of my head every single day. My neurologist told me they were migraines. I was skeptical as every other migraine med had not worked. I began on Topamax at 25 mg twice daily. I started at this dose for a month. The body really needs to adjust SLOWLY to this med. My side effects were pins and needles in the hands and feet, strange taste in foods, flat tasting sodas, drastic cut in appetite. My doctor assured me these would go away. Headaches did not start to improve until the second month when I went up to 50mg twice daily. By the third month I was up to 100mg twice daily and I feel like I have my life back. I still will have occasional migraine breakthroughs, but nothing like the misery I had before. Within 5 months or so, food began to taste normal again and the pins and needles stopped. I dropped 30 pounds total on Topamax. It has been a life saver for me!! My advice for anyone thinking about this drug is to ease your way up slowly until your body adjusts. One week on a dose is not enough time.

I too have memory loss. It is humiliating not to recall events with friends and family and people I have been introduced to. I cannot conversations, movies and names of bands. I am 43 and have been taking this drug for seizures. The seizure disorder is gone due to the drug. I have gained weight, awaken with a severe headache on several occasions behind my right eye, feel tired and dizzy after an hour of taking the drug and blurred vision. I thought it was early onset of Alzheimer ( i forget how to spell it though I am in the medical field). My generalized Doctor and my Neurologist say this is not from the medication but from age and normal. The quality of life is not as I would like. I feel like I am missing out on my own life. Thank God I came across this blog! I have been researching this drug on the net and NOWHERE does it state this as a side effect. This is the only med I take.

My neurologist put me on Prednisone for cluster migraines. I started with 80 mg for 2 days, 60 mg/2, 40mg/2,20mg/2. It was so effective at keeping the cluster attacks from coming. I was so thankful to finally have something to stop the attacks. I have suffered with CH for 20 years and other than pain medication to abort an attack I never had anything that worked as a preventative. After taking the prescribed dosage I stopped taking the Prednisone. My neurologist warned me that this drug can be very effective short term but I would not want to have prolonged use because of the side effects. Unfortunately, when I stopped taking it my cluster migraines came back full force. So I went back on taking 20 mg daily. That was a BIG mistake. At first I was euphoric, on a constant high. I had so much energy even though I would only get about 4 hours sleep because my mind was racing from 2:00 am into the early morning hours. I would wake up with night sweats and needing to urinate 3 times per night. My face got puffy, I had terrible heartburn, increased thirst and a decreased appetite. My family was watching me wizz around like the Tazmanian Devil wondering why I was acting so bizarre. I thought I was seeing things so amazingly clear! The worse part of all is the itchy, red rash that started on my elbows, then knee caps. It has now spread up and down both arms and legs. I went to see my GP and I told him that I have never had any skin rash like this before. Could it be the Prednisone causing it? He of course said it was unlikely because Prednisone is used to clear up skin problems. Now having stumbled on to this site I realize that it must be the Prednisone doing this to me. I am unfortunately going to have to suck up the pain of the migraines and let them run their course until they leave me for a few years. I'm so disappointed that Prednisone isn't going to be the cure after all.

I'm feeling the same as many of you ladies on here- it's certainly breaking my heart for all of you too. If we had known then what we knew now....
I got my Mirena about 6 months after the birth of my daughter and then spiraled into some serious depression. I'm so horrified now thinking back about how angry and ungrateful I was to my husband- I returned everything he gave me for Christmas in an angry huff. My behavior was awful AND it wasn't me. Over the next two years I had serious mood issues felt pregnant all the time (I even took to buying those dollar store tests so I could relieve my suspicions each time but not spend a fortune). And then there were the headaches. I had always had hormone related headaches (a few a month) so they weren't really new to me, but it got to a point where I was having so many I went to a neurologist for help - he asked me to chart them, I fund I was having 14 to 16 days a month with pain. I think the "off" days were just off because I was still under the influence of the pain drugs from the day before. My husband and I were planning on a third anyway- and suddenly I really wanted this thing out! I took it out, here I am, 9 months later- headache free!!! 9 months of no headaches and the "freedom" came within days of removal. I have now been trying to get pregnant for 9 months too- my period returned immediately after removal (the one perk I loved of the Mirena was no period) unfortunately, I can't seem to get pregnant. This, from a woman who seemingly got pregnant just by her husband looking at her. Literally, 3 cycles pre-mirena, meant 3 pregnancies for me. We had to be seriously careful- I'm terrified that this thing has now caused me to be infertile. I have been tracking my cycles watching for my ovulation and I can't find it despite having a regular 28 day cycle. Don't get Mirena- it's just not worth it

I am 18 years old. I started yaz three months ago. During my first month taking yaz, i had a really bad fever and started getting these electric shock sensations in my head. My heart was racing and I couldn't stop twitching. I was panicking and will skip the long er story but the doctor told me it was anxiety and an allergic reaction to my cough medicine and sent me home with vicodin and atavan. I got better and didn't have that sensation for the next week. However, I was growing increasingly anxious and panicky for no reason at all and would have long crying jags where I couldn't calm myself down. I am usually a very happy person, and I just feel so depressed. The shocks started coming again, along with the twitching and feelings of vertigo. I started thinking that maybe it could be the yaz causing it and went off it mid pack. I went to my doctor for the shocks and she had no clue. I had a mri of my brain and it came back normal. I have been off yaz for two weeks now, and have since seen a neurologist. She put me on an 80mg prednisone pack which she said would stop the shocks but only have me the worst migraine of my life and shaking so bad that I couldn't function or leave my bed for for four days. I went to a new neuro and am on an new migraine medication which seems to be working better as I am up and my headache is better. He seems to think the shocks are a result of yaz. Have any of you had this symptom, and the twitching? I feel like someone has turned an electricity switch in my body and I cant stop moving. I have no clue whats wrong with me and its really scary. The only way I can sleep at night is with ambien, and I cant stop twitching even during the day. If yaz can cause this why can they even sell this awful pill?