Neurontin symptoms and conditions

Hello,
How long do side effects last after completing steroid treatment? I've been off of pred for 4 months for crohn's first time. I was on 40/30/20/10 for a 6 week period. When I got to 30 my legs went into extreme pain. They felt like they were on fire, burning knees. Went to several doctors. One said steroid withdrawal, one said inflammation of nerves from Crohn's. Neurologist put me on neurontin to get off of the pain meds. I am still in excruciating pain and wondering if it really is steroid withdrawal. I can barely walk at times with extreme sharp pains, like someone is stabbing me in the legs. Can't stand for long periods of time and pain pills barely touch the pain. During steroid treatment, they gave me 3 rounds of Dilaudid in the ER and I was still crying, and I don't cry. Has anybody ever had this effect this long after being off the drug??

I have just been put on Neurontin and found out about this weight gain thing!! I am freaked out. I have come off of Topamax due to I could not handle the side effects and I was like I was in a coma. I am also on lexapro for depression so the topamax really effected me. The Neurontin has said to be given to bi polar patients but from what I have read people are having depression problems on it. So the whole weight gain and the depression thing is scaring me.

I was first prescribed Neurontin in November of 2008 for cervical disc bulge touching my spinal cord causing severe nerve pain in my left extremities. I was prescribed narcotics and eventually prescribed Neurontin. The side effects from Neurontin, at that time, were seemingly intolerable, but as the narcotics were decreased several months later, I found the Neurontin was actually effective and did its purpose. The side effects from the Neurontin were not that great to outway the pain factor I had. I believe this drug does its job!!!!

I am switching from Lyrics to Neurontin. I have always had a weight problem and lost 50 lbs.on Weight Watchers and have gained about 10 of it back. I am switching from Lyrics to Neurontin, hoping to stem the weight gain. Opinions and experiences please . . . am I jumping from the frying pan into the fire? I CANNOT ALLOW THIS WEIGHT TO COME BACK ANY FURTHER !!!! HELP !!!!!!

LC - Ohio

Hello everyone..I have many great things to say about Neurontin. It has been a miracle medication for me. I was in a car accident in 2000 as a passenger my face and head hit the windshield at 80mph. my jaw was broke and the back of my teeth were broken.
Little did I know it was extremely traumatic! My MRI's came back fine and I moved on with my life. About 6 months later my life began to change a brown spot covered my eyesight in the left eye. I began falling all the time and having seizures.
I had another MRI's of by brain done it came back negative. Not one Doctor could seem to understand what was wrong with me. I was put on Topamax for bad headaches that seemed to help. I began loosing weight and continued having seizures(Granmal) where you lose ur vision and it began to effect my speech and i would become confused.
My life was like this for 5 long years. Life didn't get better, I began to be soo tired and felt exhausted all the time. One day out of no where , I couldn't raise my head to get out of bed for work, my whole right side was burning and i was in pure agony!!! i will never forget that day. I had to have my Daughter help me up and i could barley walk...I pushed myself to keep going thinking this is all in my mind!! theres nothing wrong with me.. The MRI's are negative. I proceeded with my day in so much pain and limping all day.
It finally went away and I was fine again fo a small amount of time, I started not being able to remember things ....and forgetting from one second to the next and getting lost when I would drive...i began to panic and have anxiety, I felt like my life was out of control. I called my Mom and she said she had noticed a change in me, things I guess I didn't even know. She said I couldn't hold a conversation as before and i would slur my words and I couldn't recall what she would tell me.
My attacks moved to 4-5 times a week sometimes having seizures 2-3 times a day. I ended up having to be taken care of and moving where my Mother was so she could watch over me. I didn't get better. I couldn't work and I couldn't do much of anything.
My Mother took me to a MS specialist and he was the one who noticed there was something wrong! My face and legs would jerk and I couldn't sit still ..I had so much going thru my mind what could be wrong? I had 2 Sets of MRI's this time and it wasn't fine this time...My Spinal Cord was barley attached to my Brain Stem and CV 5-6 in my neck.
I was at the stage of being in a wheelchair not that I hadn't been using one from time to time and needing a cane.
I was sent to ER Surgery and had a stay in the Hospital and really thought I was a lucky Person to have made it for 5yrs without dying. It has been 4years and I still have soo many problems, I'm held together with a steel plate in my neck that holds mt together.
I'm now 41 years old and I wonder what my future holds. I'm not the same girl I used to be and probably never will be. I have to have Neurontin 600mgx4 a day and 1000mg Keppra a day...Without it I would not want to live the pain is unbearable for me! The only negative side affect is my hair falls out and I have severe Insomnia. Neurontin is a Miracle for me!

I wish all of you the BEST! Prayers for all of you.....

Have been on Welchol for IBS for many years. It stopped my IBS symptoms but does cause constipation. I try to eat healthier in order to help with that. About 3 months ago, I began having pain in my fingers. I thought it was probably due to carpal tunnel syndrome. In the last two weeks, the pain intensified and spread to all the knuckles on my hand; I also had swelling and redness. The pain then spread to my toes, the rest of the bones in my feet, wrists, elbows, shoulders, knees, and ankles. Next came stinging and burning and then sporadic numbness. By late afternoon, the fatigue was incredible, and I would become dizzy. I went to the doctor, and he ran every blood test available. Everything came back normal, which was great, but my doctor couldn't pinpoint what was causing my problems. He said none of my medicines would cause such symptoms.

My boss asked me if I was taking any cholesterol medication, and I told her I took Welchol for IBS. She said she had read article upon article connecting cholesterol medication to joint paint and encouraged me to check online to see if I could find any answers. This site was one of the many I found where other people mentioned symptoms very similar to my own. My boss suggested I mention this to my doctor. I was thrilled at the prospect of finding such an "easy" solution since my other medications are not easily replaced.

My doctor instantly said that there was "no way" that Welchol could cause these symptoms since -- as so many of your doctors have told you -- that it is not absorbed into the bloodstream. However, he approved my stopping Welchol as an "experiment". I noticed that many of you mentioned it took a few weeks or more for the symptoms to reduce. My doctor warned me again that this was not the solution and that in a couple days, he wants me to consider taking Neurontin or going on a sedative for stress. He thinks, since all the tests have come back negative, that stress is the real culprit.

I know that stress can cause many health problems, but it just seems too coincidental that so many of you have experienced the same symptoms I'm facing. Do you think I'm making the right decision? My symptoms are difficult to cope with at times, but they are not incapacitating. I would really like to try staying off of Welchol and see if it helps in the weeks to come instead of adding yet another medication to my list.

I would appreciate your advice and thoughts. Thank you for your posts -- they have given me real hope for a solution.

I feel like I am walking on clouds; I feel light-headed; I can't think straight/logically; I feel drowsy; I see strange images that are not really there; my stomach is bloated and I have severe, disgusting gas; and my vision is blurred. All this to kill my carpal tunnel pain? It's high time I get off of this poison. I suggest all of you do too.

I was diagnosed with epilepsy thirteen years ago. I never had seizures where I would pass out; in the beginning I only had vibrations and this lasted a few days. After several occurrences and ignoring the doctor, I finally went on Neurontin and that worked fairly well for ten years. Over the last three years, however, I've been having periods where I become confused for twenty seconds or so and then come back to reality. I know it's happening and when I try to communicate it's mostly incoherent nonsense.

Since these seizures have picked up, I've tried every medicine in the book! Dopomax, Tegretol, Kepra; you name it, I've tried it. Finally I asked my doctor about Dilantin; I remember my cousin taking it when we were young. I remember him having to get his gums cut and stuff like that but I was out of options.

With the medicine, I seem to be doing okay. I still have periods of confusement, usually at night but when you teach 7th graders that's bound to happen! My question pertains to possible hemorrhoids or skin tags. Has Dilantin been evaluated in terms of causing such discomfort? I had the actual surgery years ago, so my rhoids have been under control for the most part, however, since I started Dilantin, it seems like my butt is always sore.

i have been on neurontin for nerve pain in my legs due to vasculitis for a few weeks now. i have only noticed a small increase in appetite. my eyesite seems to be out of focus, but its so bad anyway that i have no idea if its the neurontin or just my eyes, and minor headaches i had no pain relief either........absolutely no improvement at all. my doctor just raised my dose from 900 mgs a day to 1200 the other day. still no pain relief but i am now getting a bit dizzy. i guess we will see what happens!

49 year old male started 4 years ago at 20mg and 10mg HCTZ. some results in lowering BP. 2 years ago MD upped it to 40mg because BP inching up. quit smoking 3 years ago, not one puff since. After MD upped mg the side affects have really kicked in. I experience all the side effects listed on this site with the exception of the cough which I started with but went away after a couple months. I have had stress tests, Holter monitor for heart arrhythmias, mri, blood work, stool samples, colonoscopy, and all sorts of other tests all coming saying I'm ok, yet I don't feel ok, I get progressively worse. After 4 weeks of 5 day a week exercising with weights and aerobics to get in shape to return to racquetball I have had it. I couldn't last 45 minutes my second day out. I felt like I was hit by a truck and it took a couple days to recover.
My MD attributes the issues to aging. I going for a second opinion and third if necessary. I am told by my MD that there are no studies showing these side affects for this medications. However I look at this web site and find it hard to believe that these doctors just haven't seen any evidence of what we are all suffering from. Why don't doctors really listen to patients. We are asked to listen to our own bodies and told we know our bodies better than anyone, yet when we bring up these issues we are treated like children.
No real answers, just questions

I take 200mg for partial seizures, added it to neurontin about 9 months ago.
At 300mg I lost the ability to type correctly and would forget what I was saying in the middle of a sentence. I forgot phone numbers and lost a ton of weight. My doctor said that meant I was on too much. I'm glad he put be back to 200 instead of upping the dose, which is what I see most people doing - adding more. I am taking as little as possible to keep the seizures away, and I feel pretty good on it.

My side effects currently are constant movement of my jaw and tongue, and my new side effect is a strange involuntary movement of my arms and legs. I especially notice it when I'm on the computer and I move the mouse, my arm jerks. (At least it jerks in the direction I want it to!!)

Overall, I am happy with it and feel lucky that I'm not having any terrible side effects. The jerking thing is a bit concerning since it is new and I hope it doesn't get worse.

I do think my skin has gotten messed up - not quite acne, but redness under the skin. No bumps though.

Oh - the tip of my tongue gets numb about 15 minutes after I take it. Weird.

mood swings, short term memory loss, extreme sleepiness, edema, light flashes, constant ringing in ears that varies in tone, depression, stomach pain, flu like body ache, headaches, ear ache, continual nasal congestion, weight gain, constipation, dry & flaking skin & hair

Lisinopril causes burning and tingling sensations in your feet (peripheral neuropathy). The neurologist insists that the Lisinopril simply "unmasked" a hidden glucose problem. My primary physician does not understand what that means. I have stopped taking the drug. It has been over a year and the side effects remain. I tried 10 sessions of acupuncture which seemed to alleviate some of the pain & discomfort in my heels and middle of the feet. I have started a treatment of folic acid, B1 & B12. I also recommend diet & exercise. I was prescribed gapapentin by the neurologist; it alleviates the side effects but does "cure" it.

my right hand and fingers have been swelling along with numbness and tingling. I have seen that periphreal edema is a side effect. has any one else had this to happen to them

I have been on neurontin 300 mg for only 2 weeks, if not less and I feel the weight gain. I'm either bloated or this is unbelievable. I have a disc in both my left hand and my lower back, fibromayalgia and Lupus. Therefore, the severity of my pain is unbearable. With Neurontin, there is no pain. But, there is the dizziness, weight gain, forgetfulness and just feeling incoherent and drunk. I don't think I can handle the side effects. So, I do have a question, if I've only been on neurontin for two weeks, can I just stop them on my own or do I need to speak to my Dr.? I know he will tell me not to which is why I'm asking. I have an issues with my weight and gaining weight would destroy my psyche. Thanks for listening ..it's nice to be able to find common ground with people. I don't feel so alone anymore.

I just read the new article about Cody Miller and Dr. Douglas Briggs, who was taking Neurontin. That further confirms the work that I was doing to collect research regarding problems with GABA and suicide. How these drugs affect the brain chemicals is very complicated. I believe that the pharmaceutical companies do know that it is possible for a series of things to go wrong and create terrible adverse side effects in some people - not all.

I will be extremely disappointed if the FDA allows these companies to sweep this under the rug.

Suicide risks studied in drugs for physical ills
By RICARDO ALONSO-ZALDIVAR – 1 day ago
WASHINGTON (AP) — Cody Miller was a high school football player who was allergic to ragweed. Douglas Briggs was a doctor coping with pain from an old back injury.
Both are now dead, hanging victims driven to suicide, their families believe, when drugs prescribed to relieve physical symptoms upset their mental and emotional balance.

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This testimony should help strengthen our case for warnings for Singulair.
Neurologist Sought Warning for Pfizer Drug
By JEREMY SINGER-VINE
June 20, 2008; Page B10
A British neurologist who analyzed effects of the drug Neurontin told a court hearing Thursday that he advised its maker -- now a unit of Pfizer Inc. -- to include a warning on the drug's label for potential side effects of depression and aggression, but his advice wasn't followed.
The University of London neurologist, Michael R. Trimble, was testifying at a hearing to decide whether civil cases brought against Pfizer alleging suicides linked to Neurontin can proceed. The hearing was jointly held by judges for U.S. District Court in Boston and a New York state court who are hearing similar cases. In various lawsuits consolidated in the federal court, plaintiffs allege more than 100 suicides were connected to Neurontin usage.
Dr. Trimble described what he said was a "plausible biological pathway" that could lead from the compound gabapentin -- the chemical name for Neurontin -- to suicidal behavior, hostility, and aggression. Dr. Trimble said that in 1995 and 1996, he was hired to write two confidential reports for Parke-Davis -- now a unit of Pfizer -- because the company "was concerned about psychosis in relation to their drug." Dr. Trimble said he was unable to find a link to psychosis, but noted effects of depression and aggression.
Lawyers for Pfizer argued at the hearing that the evidence linking the drug to suicidal side effects wasn't scientifically sound. Under cross-examination, they challenged his description of a pathway as a patchwork of studies that didn't prove a biological connection. Neurontin and generic forms of gabapentin are approved for treating epileptic convulsions, but have also been prescribed widely "off label" for other conditions.
In five of nine patient cases he analyzed in 1996, Dr. Trimble said he saw depression and aggression in patients who had no previous symptoms of the side effects, so he said he recommended to the company that the drug "should carry some kind of warning" for susceptible patients.
Thursday's proceedings were the initial phase of a hearing requested by Pfizer to challenge the opinions of the plaintiffs' experts. Under cross-examination and a subsequent examination by the plaintiffs' attorney, Dr. Trimble said the biological pathway between Pfizer's Neurontin and suicidal events were plausible and supported by a series of peer-reviewed neurology research.

I was hospitalized about four months ago for a total of three days due to a massive kidney infection, during three days in the hospital I was pumped full of Levaquin. I began suffering what the doctor believed was a migraine on the second day, let me tell you it was far worse than any other migraine I had ever had. So not only did they send me home with a prescription for Levaquin they sent me home with a migraine prescription. I took Levaquin for a week after my departure from the hospital, I am young and very naive when it comes to doctors and hospitals and I had faith in my doctor that the medicine they prescribed me was good for me. After suffering from a migraine for almost two straight weeks I began to suffer from blind spots in my eyes, and a kind of slowing down effect. I would get up and it would cause my head to feel like it take my mind and my eyes a couple minutes to catch up to my body, vertigo. Well I returned to the hospital and was told I was suffering a migraine, once again, no migraine I had ever had caused blind spots. They referred me to a neurological ophthalmologist who took the time to look at my eyes, and diagnosed me with Pseudotumor Cerebri. He told me that the medicine had caused pressure to build up in my head and caused hemorrhaging in the back of my eyes, hence the blind spots. I have a scheduled MRI to validate the doctors concerns, but the treatment he is telling me may reverse the affects is a long term treatment, and has a possibility of not being successful. So for a medicine I was given to treat one thing I acquire something far worse and all for trusting a doctor to have my interests in mind

not sure if my symptoms are from my kenalog 10 injection but right after my injection I lost 15 pounds in about a month and all my muscle mass in my legs, arms, and butt. I then got tingling in my hands and feet which have advanced to my arms and legs as well! My face burns as well. I am now on Neurontin hoping this will get under control. Does anyone know how long this will last???

not sure if my symptoms are from my kenalog 10 injection but right after my injection I lost 15 pounds in about a month and all my muscle mass in my legs, arms, and butt. I then got tingling in my hands and feet which have advanced to my arms and legs as well! My face burns as well. I am not on Neurontin hoping this will get under control. Does anyone know how long this will last???

This testimony should help strengthen our case for warnings for Singulair.

Neurologist Sought Warning for Pfizer Drug
By JEREMY SINGER-VINE
June 20, 2008; Page B10

A British neurologist who analyzed effects of the drug Neurontin told a court hearing Thursday that he advised its maker -- now a unit of Pfizer Inc. -- to include a warning on the drug's label for potential side effects of depression and aggression, but his advice wasn't followed.

The University of London neurologist, Michael R. Trimble, was testifying at a hearing to decide whether civil cases brought against Pfizer alleging suicides linked to Neurontin can proceed. The hearing was jointly held by judges for U.S. District Court in Boston and a New York state court who are hearing similar cases. In various lawsuits consolidated in the federal court, plaintiffs allege more than 100 suicides were connected to Neurontin usage.

Dr. Trimble described what he said was a "plausible biological pathway" that could lead from the compound gabapentin -- the chemical name for Neurontin -- to suicidal behavior, hostility, and aggression. Dr. Trimble said that in 1995 and 1996, he was hired to write two confidential reports for Parke-Davis -- now a unit of Pfizer -- because the company "was concerned about psychosis in relation to their drug." Dr. Trimble said he was unable to find a link to psychosis, but noted effects of depression and aggression.

Lawyers for Pfizer argued at the hearing that the evidence linking the drug to suicidal side effects wasn't scientifically sound. Under cross-examination, they challenged his description of a pathway as a patchwork of studies that didn't prove a biological connection. Neurontin and generic forms of gabapentin are approved for treating epileptic convulsions, but have also been prescribed widely "off label" for other conditions.

In five of nine patient cases he analyzed in 1996, Dr. Trimble said he saw depression and aggression in patients who had no previous symptoms of the side effects, so he said he recommended to the company that the drug "should carry some kind of warning" for susceptible patients.

Thursday's proceedings were the initial phase of a hearing requested by Pfizer to challenge the opinions of the plaintiffs' experts. Under cross-examination and a subsequent examination by the plaintiffs' attorney, Dr. Trimble said the biological pathway between Pfizer's Neurontin and suicidal events were plausible and supported by a series of peer-reviewed neurology research.

WOW, I am so happy to find this site. I am a 56 yr old female. I too am on Toprol. I was on 75 mg 2 x's a day for HPB and mitral valve prolapse pain. Then yesterday the Dr. increased my dose to 100 mg 2x's a day .Today my ankles and feet blew up like balloons. I have been having profuse sweating and was cold and clammy for the past year and no Dr could tell me why!! NO sex drive , depression,sleep apnea, severe insomnia, brain fog, short term memory issues, moody, irritable, my husband has threatened to leave me. NO appetite!! Floaters in my eyes started a few months ago, I have so many symptoms that I have read in all your posts. No quality of life for the past year. I have felt like I was losing my mind, gained 35 lbs in past 2 years without changing my eating habits. I gained the weight after I had lost 50 lbs. Been on Toprol about 2 1/2 years ( I think ) Every symptom I have experienced I have read in your posts!! I have type 2 diabetes and am on glucophage, I also take 10 other scripts. I have fibromyalgia and chronic fatigue, RSD in my left arm, muscle pain and joint pain. Pain in my right upper qaudrant. Nausea/ some vomiting, NO ENERGY, Loss of interest in most of life. So now after reading all your posts I have to ask myself, are all my symptoms linked to the Toprol and not syndromes or illnesses? I am calling my doctor in the morning and getting off this med!! They will just have to put me on something else!!!
So how do I post to receive replies?
Joyce47oh

I've been on Lyrica 75mg 2x/day for Fibromyalgia for 1 1/2 wks. I was on Neurontin for 4 years before trying this new med. The side effect that I'm hoping goes away soon, is around 3-4AM every night that I take Lyrica I wake up to pee and when I lay back down when I close my eyes the room spins like crazy. It's exactly like a night drinking in college but I haven't touch any alcohol in months. The 1st few days that sensation did not go away until the afternoon, but now it's usually gone by the time I wake up to go to work around 7AM. Hopefully it'll just keeping shorter in duration. Other than that side-effect it does quite a good job controlling FM pain.

I was on Lamictal for 4 years and after the first year I suddenly started having all kinds of teeth and gum problems for no discernible reason. But since Lamictal has the possible side effect of "sores or blisters on the inside of the mouth" I wondered if it could be related.

I did a Google search and am coming up with no experts yet, but lots and lots of posts connecting anticonvulsant meds, particularly Lamictal, Topamax, Neurontin, and Depakote, with dental problems. Dilantin is well known for causing gum disease and breaking down tooth enamel, loosening of teeth, and even breaking down of jawbone tissue.

I don't think the experts have connected the dots yet, but is anyone else having this problem?

I have been on Topamax for 4 months and so far the migraines I have suffered for 40 years are gone. Great Some side effects like can't stand carbonated drinks. Reaction time is a little slower. I stress out a little more then I used to. I get really tired at the end of the day. I used to be a night owl but now love my sleep. Question to you all. Any one had problems with their teeth? Such as pain, fillings falling out? Let me know.

I have created a group on Yahoo to talk about the side effects of Gardasil. If you or a loved one has had the vaccine and has experienced side effects, please come and tell your story.

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