March 17th
2009
5:11 PM
I thought i was going nuts in a matter of days. i figured i was just stressed out from work and how my lifestyles changed throughout this new year, but i'm only 18 life shouldn't be this way. I Started taking Doxy on March 4th for my acne, and for the first week i was fine, no side affects except for the feeling like there was something in my throat. but then as I continued into the second week, i would wake up fatigued and dehydrated; which stayed with me throughout the day. I started getting neck aches and in the lower back, all on top of a migraine that would come and go. All day i'd feel dizzy, fatigued, tired, disoriented, and thoughts that i'll never be healthy and i'd always feel this way would constantly go through my mind. I even went to my family physician because I thought had a pinched nerve in my neck which was giving me all this pain in my neck and the headaches. my doctor confirmed that i didn't have a pinched nerve so i continued to tell myself that im alright.... right? no news is good news.....right? It wasn't until today(march 17th) that i considered doxycycline hyclate to be a possible culprit. I realized something was very wrong when i couldn't even tell my dad what i was experiencing w/o getting emotional... for NO REASON!!!!! my dad looked up this "Doxy" and we stumbled across this helpful site filled with blogs about people taking the exact same medication with the exact same side affects. As much as i'd love to have a clear face, it's not worth messing up your mind. i took my morning dose today, but will not continue to take anymore of this "Doxycycling Hyclate" hopefully, with time, my mindset will return back to it's normal functioning. just THINK POSITIVE!!!!!!!
-- By anon_nomis | Reply | (1) replies | Private Message me
March 11th
2009
2:07 PM
I posted back in August or September 2008. I FINALLY had my Mirena removed and when I say FINALLY, I mean FINALLY. I went in late October to have it removed only to be told that it could not be located. I then had to have an internal ultrasound to locate the IUD. Thankfully she found it, but I was very scared of the pain of removal that I talked some more with my OB about it and decided to wait until the New Year to see if my symptoms had subsided. My symptoms were namely the horrible acne I started having after insertion. My periods at this point were non-existent, which was nice, but as a 37 year old woman, the acne was more than I could handle. Come 2009, the acne was still there - and when I say acne, I mean acne. I mean hard cystic acne that turns red and does not go away with time and medication. I have been a Proactiv advocate for a long time and sadly not even Proactiv was managing my acne on the IUD. So . . . January I went in to have the Mirena removed. The doctor knew it's general location and tried to remove it. She could not locate it and the procedure was extremely painful. Long story short, I had to undergo out-patient surgery and be knocked out to have it removed. I'm back on the Yaz and am already noticing a difference in my skin!
If you ever struggled with acne during your teens and early twenties, I would think twice about the Mirena. I struggled with acne and was finally at a point where my skin was "maturing" and the Mirena made me feel like that 14 year old with horrible skin all over again.
-- By hkc0821 | Reply | (1) replies | Private Message me
February 4th
2009
6:43 PM
Has anyone experienced multiple pulmonary emboli (blood clots in the lungs)?
-- By patient2 | Reply | (3) replies | Private Message me
February 1th
2009
12:42 PM
I have been trying to figure out what is wrong with me since I already suffer with anxiety. On New Year's Day I went to Emerg believing again that I was having a heart attack, as my left hand was so light I couldn't squeeze it closed. After test they determined my heart was fine, but the only way I can find relief is by hanging my left hand (and right hand) over the bed for the blood to flow back. My MD thought I might have carpel tunnel syndrome and I went to see a nerve specialist. They determined I was fine and anxious - of course! To date I'm still waking up in the middle of the night with tingling hands and pains in the bottoms of my feet that shoots upwards. I went on this site, by fluke, I never thought the IUD could do this. I "googled" Mirena tingling hands and feet and 2 pages of symptoms have come up. I realize that I am anxious, and that anxiety manifests itself in many ways, but these symptoms are real. I called my gyno and asked to have it removed. I believe that he won't believe me, as when I told him about the emerg visit, he said "well that has nothing to do with me". Meaning, the Mirena that was inserted. I am going to ask him though to take it out ASAP and also if other's have complained of the same symptoms as I am hoping that this truly is the reason for my discomfort. I'm only 40, eat well, work out 4 times a week and in good shape. Hope this is helpful in determining if this is also a situation for others.
-- By estegra59 | Reply | (2) replies | Private Message me
January 28th
2009
5:49 PM
I am SO sick at my stomach right now after reading all of these posts. My son is 2yrs old and was put on Singulair right after the new year. We have noticed a horrible change in his behavior....but we attributed it to his age and the fact that he is VERY strong-willed. However, thinking back, he has had some hallucinations. We had a babysitter tell us that when she tried to put him to bed that he cried and told her that there were monsters in the closet. When she picked him up and took him in the kitchen for a drink he kept reaching at the ceiling trying to grab something. Just last night he told me that he saw his Grammy dancing in the living room....my Mom wasn't even there. He has been throwing horrible fits to the point of gagging himself, hitting himself, kicking, hitting, screaming....you name it. At the end of them, I am usually in tears and we are both exhausted. I am not the only one who has experienced this with him....my Mom has too. He is also on Veramyst nose spray....both meds are for allergies. We have taken him off of both and decided to go a more natural route. We have bought local honey, an immune booster from teh health food store, and have him on a really good brand of liquid vitamins. It is hard as a parent to make decisions about your child. It is even worse when you realize that the decision you made has affected your child in a horrible way. I plan on giving him A LOT of attention tonight and giving him a big hug! I just want my fun, playful son back! Good luck to all of you and God Bless!
-- By concerned5 | Reply | (1) replies | Private Message me
January 25th
2009
9:58 AM
Hi! I am 29 years old and have had asthma since i was young. As i entered high school i had very rare exacerbations but around 4 years back attacks became more frequent. I visited my doctor and he advised me 40mg of Prednisone a day for 5 days (20mg in the morning and 20mg at night). He mentioned that this was safe and no tapering was needed for this short burst. So every time i start having exacerbations i just follow this regimen. I have had no tapering or withdrawal symptoms and i can breath very well even after the Prednisone is off.
Recently, i had an exacerbation as the New Year started. So i started my regimen again on Jan1. But after 5 days, my symptoms were not relieved yet. It seemed like my asthma, triggered by an acute bout of Bronchitis, was worse than before. So i continued this regimen until 12 days. I was taught before that as taking Prednisone approached 2 weeks, it would be wise to taper. So on day 13 - 15, i took 30mg of Prednisone per day (15mg in AM, 15mg in PM). On day 16 - 18, 20 mg per day (10mg in AM, 10mg in PM). On day 19 - 21, 10mg per day (5mg in AM and 5mg in PM). On the 22nd day, i had 5mg once a day only. The next day, i woke up very drowsy, with muscle and joint pains, dizzy and light headed. But i just fought it and went on my day feeling sooo out of it. And at night, i just felt chest tightness. I again had difficulty of breathing unrelieved by around 3 puffs of my inhaler (which was a combination of a long acting bronchodilator and an inhaled corticosteroid) which was also good for acute events of asthma. This provided no relief until i took a total of 15mg of Prednisone again. The next morning, on day24, i felt better. I tool 10mg thinking i could maintain myself on 20mg a day. But as the day progressed, as still had these joint pains and wheezes and difficulty of breathing. So a night i took 20mg again. I started reading on Prednisone and tapering and noted that these symptoms might have been an adrenal crisis, I haven't consulted my physician yet. But am trying to taper myself off decreasing my dose 5mg every 3 days. I hope i can get back when i learn more.
I hope this helped people in some way. Stay healthy everyone!
-- By youngdoc | Reply | Private Message me
January 22th
2009
7:40 PM
I had laproscopic surgery done in May to remove an ovarian cyst. At that time it was confirmed that I have endometriosis. I have always had very difficult periods and at times constant pelvic pain. I have experimented with many different types of birth control and had finally given up on them because they all cause me varying degrees of depression. After my surgery my doctor recommended Lupron because I cannot take the pill. I had my first injection in September. I only did the one dose because I could not tolerate the depression that followed. At times I was nearly suicidal because I was so depressed. I have also gained weight and completely lost my sex drive...
Just after the new year I went to the ER with extreme vomiting, diarrhea and abdominal pain. It turns out that my gallbladder is only functioning at 10%. I have since learned that this is probably due to the Lupron injection (my doctor never mentioned this as a possible side effect!! but I discovered other sites that mention it and my GI confirmed) I am visiting a surgeon tomorrow to discuss removal of my gallbladder and I am wondering if any other women out there have had similar experiences and what the outcomes were??
I live in CT and I am going to look for an OB/GYN that specializes in endo. Please let me know if anyone has recommendations for a doc in CT too.
Thank you!!
-- By flutterbee77 | Reply | (5) replies | Private Message me
January 21th
2009
8:28 AM
I have been on Loestrin 24fe for the past three years. The first two years were great; no period since Dec 06, it's very rare that I have any spotting. Since June 2008, my health has gone down hill. I have had extreme weight gain (20 lbs), retaining fluid, fatigue,terrible migraines, memory has gotten poor, lack of concentration, depression has gotten worse, very very moody and will cry at the least little thing. I have also experience eye floaters and eye twitching. My dr. wants to change my BC to Yaz, but the horror stories are the same. At this point, I really don't know what to do. I have been on BC for 18 yrs total. When I first started taking Loestrin, it was wonderful.....up until last year. I am still taking it, not sure if I should switch to another type or totally go off of BC to give my body a rest.
-- By kathy12143 | Reply | (5) replies | Private Message me
January 16th
2009
9:12 PM
I got my Mirena IUD inserted at the end October 2008. I had a tubal ligation with the birth of my fourth child so my IUD was supposed to combat my battle with endometriosis. Needless to say, I am not pleased. After insertion I spotted for about a month. Finally that ended and I was blood free for about one month and as of January 1st, I am bleeding again. Happy New Year!!!! At first, I didn't know where to attribute my horrible depression, severe acne, and migraine headaches but now I have an idea since discovering this website. I am 31 and have NEVER suffered from acne not even during those adolescent years. The spotting is the worst. It is this horrible dark brown color with a horrific smell!!! I was starting to wonder whether or not it was actually blood. I contacted my doctor's office and was told that this was normal. I was given an antibiotic because they assumed the smell was from some type of infection. Well that didn't work. My doctor didn't want to remove it thinking that eventually my periods and bleeding will stop permanently. That day has not come yet, and I don't know how long I can endure. I really just want it out. I am tempted to contact my family practitioner and have him to remove it. I just know, I want it out!!!!!! I am just grateful for finding this site and finally realizing that it is not just me. I am looking into some herbal treatments to try to ease my discomforts with my endometriosis. I don't think I want to risk dealing with any more IUDs, birth control pills, or shots anymore. It just seems like to much to loose at this point.
-- By djw77 | Reply | (1) replies | Private Message me
January 14th
2009
12:02 PM
My son started taking Singulair in Sept 08 when he was 22 months old. I never really gave it to him consistently, since it was just to help with his reoccurring ear infections. I noticed a little change in his behavior, but I thought it was the "terrible two's". I started giving it to him religiously at the beginning of Nov 08. He had his first meltdown on Nov 15. He was totally uncontrollable. I call it the "Exorcist" tantrum. I took him to the ER, but they told me nothing was wrong. (I did tell the ER all of the medications he was taking.) He started waking up in the middle of the night screaming. Each day, he got a little worse. Defiant, hateful, destructive, etc. He still isn't talking much, so he can't tell me what is going on. Christmas and New Year were horrible. We had NO idea that it could cause mood changes (that is putting it mildly). The pediatrician had no idea what could be causing the behavioral changes. He also started biting his fingernails and obsessing over little things, like the strings hanging off of his blanket.
We decided to take him off Singulair after double checking the side effects. We stopped a week ago, and the change is amazing. He is back to my great little boy. I am sooooo glad that we discovered this after only a few months. I cannot imagine living like that for years.
Two days after stopping the Singluair, I found this website: ******
As I read the different cases, I thought that it was exactly like my son. I was convinced it was the medicine. Each day that he gets better and better-like his normal self- I keep getting madder and madder that no one informed me about the possible side effect. The Dr. did not know nor the pharmacist.
Yesterday, I went to the FDA site to complain about the side effects. It just so happens that the FDA released a statement yesterday that they are still investigating the link between suicidality and Singulair.
We need to let everyone know, that if you are using Singulair, please pay attention to their child's behavior. Some people may be just fine, but others (like my son) are not fine.
-- By amichall | Reply | (1) replies | Private Message me
January 5th
2009
5:38 PM
Gee man cant believe it was last April I last posted!!
Well still on 225mg of effexor xr a day,have my ups and downs and must be 4 stone over weight!Xmas and new year not really a good time anyway but also separating from my wife.So we plod on,sex drive is naff.Hopefully next time I report back things will be better.
December 19th
2008
7:09 PM
It worked for me but as soon as I went off of it I hit a state of complete withdraw and detoxed for 4 days and attempted to commit suicide, it was so bad I don't even remember everything that had happened...so word of advice if you decide to stop taking this get off gradually and take it very slow!
-- By nikkijean | Reply | (2) replies | Private Message me
December 5th
2008
2:40 PM
I've been reading just now today of the side effects. What made me was I was at the dentist yesterday for a root canal. Couldn't do the original routine visit due to other worse problems had occurred. I've been on the Mirena for 9 months now. Guess what?! I've had every side effect that has been mentioned by every person. The new side effect that has not been listed is that I think it also has an effect on your teeth. The "Depot" shot has effects on your bones & teeth and I'm sure the Mirena has something to do with this year's bad review at the dentist office. In fact my habits of taking care of my teeth are great.... from drinking water all day long to now chewing sugar free gum...and since the Mirena my teeth are getting worse & worse! My dentist wanted to know what I was doing different? I didn't think of it at the time, but I have a hunch this is a source for my constant dental visits, not among the 38lb. WEIGHT GAIN!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! & COUNTING!!!!!!!!!!!!!!!!!!!!!! this WILL BE REMOVED AS SOON AS THE FIRST OF THE YEAR.....HAPPY NEW YEAR TO ME!!! CAN'T WAIT!!! My husband thought I was becoming a hypochondriac(if i spelled that right)!!!
I
December 2th
2008
2:51 PM
My 13 year old sister is a normal active teenager. She received the first Gardasil shot last October with Hep B. In November, she received the second Gardasil shot with the meningitis vaccine. Right before Christmas, she started experiencing tingling in her hands and fingers. Two days before the New Year, her knees swelled three times their normal size and were extremely painful. It took two weeks for her knees to become only slightly swollen. Several doctors and a specialist in pediatric arthritis later, she was diagnosed with chronic arthritis. She had no previous joints issue at all. She has been on medication for a year. We can only hope she has juvenile arthritis and that it will go in remission. Unfortunately, her wrists have started to hurt recently.
After much research by my mom and myself, we have come to the conclusion her spontaneous arthritis was a result of Gardasil. Most likely the combination of Gardasil and the meningitis vaccine was the cause. It should be noted that the FDA allowed Merck to fast-track Gardasil for approval. The Gardasil vaccine was never tested with the meningitis vaccine; however, most physicians give multiple vaccines at one time.
-- By alturner007 | Reply | (1) replies | Private Message me
April 2th
2008
11:34 AM
Our story is so similar to many of the others posted. I am including it because it adds to the data. Our 12 year old son has been on Singulair since age 7. Prior to going on Singulair (although I did not make the connection between these two events until this week..) he was an easy-going, happy, delightful boy. During the late fall of first grade he started developing strange behaviors--obsessive hand-washing, kicking our pediatrician, saying the water was poisoned. He is continuously irritable, moody, easily annoyed, impulsive, self-critical and has difficulty modulating his attention. He has had a few incidents where he has said he wants to die, he is worthless and a loser. He continually apologizes for his behaviors and is extremely remorseful, but then goes and does it again. We have seen so many specialists, spent so much money on counseling, have tried neurofeedback, Adderall, alternative supplements (eg omega 3's)...the list goes on. His issues have been like a part-time job for me. I never made the connection to Singulair, because the pediatrician and allergist assured me that Singuair had virtually no side effects. Right after the New Year (2008) he had a few days where everything seemed to go right for him-- moodiness disappeared, did his homework agreeably, seemed truly happy for the first time in a long time. In retrospect, I am guessing it is because we forgot to bring his Singulair on our vacation, so it was out of his system for several days. Now that we've tossed the meds, I'm hoping that the side effects are short lived...and we see our old son again.
As for the individual who wrote that we may be ambulance chasers, I can promise you that any money I receive in a successful class-action law suit would go towards helping other families avoid the pain and suffering our son has gone through. I consider myself an educated & well-informed parent and yet I was blind-sided by the medical industry.
-- By hsuttin | Reply | (3) replies | Private Message me
March 27th
2008
6:48 PM
Shortly before Christmas 2007 my doctor decided my LDL was too high (104) so changed me to Vytorin from just Simvastatin. Shortly after the new year I became so weak that I would look at my stairway and wonder how I was going to manage going up for the night. I was extremely tired and terribly weak, hurting all over. I didn't even want a back rub from my husband because I hurt so bad. I arbitrarily stopped taking the Vytorin and resumed my Simvastatin (40mg/day) When I called my doctor he poo-pooed my symptoms and said if I had those symptoms with Vytorin I would have them with the Simvastatin. 2 weeks later my cardiologist assured me that I was not imagining the symptoms and increased my Simvastatin dose to 60mg/day which seems to be fine. Three of my co-workers experienced the same problems and took themselves off medication. Doctors...listen up!!!
-- By candace1946 | Reply | Private Message me
January 9th
2008
12:10 AM
irregular period; flushed red face (first few days after injection); acne; bladder infection; indigestion (gas, burping)
I received an injection of 80 mcg of Kenalog in my hip joint to treat pain due to hip impingement. As is the case for most of the other women on this site, I received NO warning from my orthopedist of any these side effects. She said there were virtually no side effects for a single dose, only for repeated use. The only specific reaction she mentioned was the potential for infection at the injection site, which didn't occur. She gave me no information about which medication or dosage I'd received, let alone a handout with side effects.
A week after my injection, I got my period -- 2.5 weeks early. I was unable to speak with my orthopedist's office for the next 1.5 weeks because they were closed for the Christmas - New Year's holiday. I did manage to reach my gynecologist, whose office was also closed for the holidays, but she said she didn't think my early period was due to the steroid. Since I still didn't know which steroid I'd received, I couldn't do any internet research. I was worried because I have a uterine fibroid, which could potentially be causing the irregular bleeding. Also, I know there are other scary causes for irregular bleeding.
The period lasted 8 days, which is longer than usual for me. Almost immediately after it stopped, I started feeling PMS symptoms, like I could get my period again any day.
I ended up cutting my vacation short so I could see my gynecologist. When I finally got in touch with my orthopedist's office, they told me that I'd received Kenalog, which can cause menstrual irregularities. WHY DIDN'T THEY TELL ME THAT TO BEGIN WITH??? It would have saved me 2 weeks of needless worry.
Now that I've informed my gynecologist, she says it may take a few months for my menstrual cycle to get regular.
-- By magdy | Reply | Private Message me
January 7th
2008
9:31 AM
I used YAZ for one moth last July and it really helped with my mood swings. My period has always been light and I only have cramps the first day of my period and they are bearable by most standards. However, i stopped using YAZ after a month and a half and decided to get back on a few weeks ago (in time for the New Year) and within ONE WEEK I FEEL TERRIBLE!!! Like many of you I kept worrying that I was pregnant, took a test which turned out to be negative but still experiencing the NAUSEA, TIREDNESS even after a full night's rest, back pain and I am emotional!!!
I am VERY in-tune with my body so this is soo bizarre to me especially since I've only a taken 8 pills so far. My boyfriend says to get off it ...for all the bad side effects it just doesn't seem worth it!!!! I was thinking that the symptoms would subside as my body adjusts in the first month. I am still debating if it's worth finding out! ~ Still looking for the right pill for me! :o(
January 3th
2008
9:40 PM
Hello,
I have just gone through a series of tests and a heart cath over the holidays. I have MVP and two other leaky valves. I have known about these since I was 28, I am now 62. I have had problems with the valves, skipped beats, faster beats early on in diagnosis. Just this Nov., I started with problems again, thus the tests were completed. They found Ven. Fib, fast and skipped beats, therefore putting me on the Toprol XL Tab SA. I have only been on this 7 days. New Year's Day, 4 days after the heart cath, I started with fever and chills, only to find out 2 days ago I have full blown strep throat. This makes me wonder if I had this before the heart cath was performed, as I had complete exhaustion,.... anyhow, I took myself to my family doc and she is taking me off of the Toprol and after reading all of your reports I am very glad. She treats me with herbs and has for years, until this episode, I have been very well, I am actually an energizer bunny due to her efforts! So I am working with her on herbs to build my system back up and support for the heart. I hope the rest of you can find a way to wellness that works for you. I know many people don't believe in herbs but I firmly do! Don't be afraid to try herbs if you can afford it! I am 62 and don't look it or act it, like I said until this episode and it truly makes me wonder if it wasn't the infection playing the biggest part. What concerns me is why that was not caught in the first place? Anyhow, take heed to your own body warnings, other people do not know what is transpiring inside of you, only you can know this. Thank you Doctor ** for keeping me well!
January 1th
2008
11:38 PM
HAPPY NEW YEAR TO EVERYONE!
I WAS PRESCRIBED LORTAB DUE TO PAIN FOR CRAMPS AND I EXPERIENCE DIZZINESS, LIGHT HEAD, COULD NOT SLEEP AND ITCHING REALLY BAD!! THIS MEDICATION IS NOT FOR ME!!!
-- By monique70 | Reply | Private Message me
December 31th
2007
2:05 PM
I am 35 yrs old. My son was born 7/2/6 I got the Mirena inserted on 8/31/06. Right after I had my son. My body doesn't react well to the birth control pill and did not want to get pregnant. My Gyn said there is a slow release of hormone so I wouldn't even notice any changes. My period was off but I just had my son. In March I went to my primary and she put me on Zoloft since I was experiencing anxiety, a constant flush, and insomnia (kinda feel like your going crazy at certain times of day). I never had these before giving birth (and its not the stress of my son). They did blood work it came back fine. I took yoga, acupuncture and Zoloft, nothing is working 18 months later I went to my primary office and seen a nurse practitioner and she said take the Mirena out-she herself had certain side effects that I had. My Gyn says that is not the cause, it could be the Zoloft. How confusing is all this. I am really considering having it removed soon. I want to feel myself again. I'm sure my husband does too. Anyone with info. on after the Mirena is removed and how I might feel would be helpful. At least I have idea what might lie ahead even though every one is different.I am so glad I found this site. Ladies take care of yourselves. There will be happiness again.
-- By heather1127 | Reply | (2) replies | Private Message me
December 20th
2007
9:58 PM
Hi Ladies,
I was not aware that there was so many side effects, I had terrible pain having it inserted as most of you did, cramping for the first month after and then nothing till this morning when I woke up and felt like I was in labor I could barely move I had 2 Panadol which had no effect so I had a hot bath 2 Nurofen, a Berocca, called the hospital where I had my 2 children and the Mirena put in, they said it may have dislodged because it is a foreign object our bodies will try to reject it from time to time because it is a foreign object, it is not dangerous for us just really uncomfortable, the pain started to go away so i went to work, I feel a bit heavy but that is it!
She has booked me in for a consult in the New Year, I am not worried.
Not that Bad!
December 19th
2007
11:04 AM
Hi All, I am a 37 year old mother of 4, with a history of severe Hemiplegic migraines (up to 14 a month). I've been on Verapamil and Topamax for 7-8 months with a gradual increase of the Topamax to 150 mg a day. Before I start writing this I have to preface it with two things: First, Before Topamax I was one of those women my friends refer to as a "Supermom", I home school my kids and used to love it, we normally have a lot of fun and I have a successful, happy marriage. Second, on Topamax, I went from 14 migraines a month to 0. It didn't happen over night, they went away as we ramped up the dosage, but for the last few months I have had no migraines, I can feel it occasionally when my head is fighting one off, but nothing an Advil won't stop, and for those of us who've lived with trying to care for kids while having migraines (especially Hemiplegic) you may understand why I initially put up with the following: I started out with the tingling in my hands and feet (that went away in a couple of months), word finding difficulties (which never really went away, I just learned to accept it),occasional blurred vision which never lasts very long but which has been an issue the entire time I've been on the med, and weight loss ...I am 5'4" and was only 118 lbs to start with, and have nearly "disappeared" into a size 0 and 105 lbs, and it doesn't matter how much I eat, I've been trying 3 meals, snacks, cookies, candy, you name it, I can't gain weight. I was never nauseous, no diarrhea, I just don't get hungry... I had to start wearing a watch at one point to remind myself to feed the kids, because if they didn't ask, they weren't getting lunch until 2:00 because I wasn't getting hungry! Soda does taste like metal (fortunately I don't drink it normally anyway), and you do get loopy with one glass of anything alcoholic.
Then to add to the lovely appearance of skin and bones, my hair is falling out. Before Topamax I worked out regularly, I am even on commercials for my gym (recorded a year ago), since Topamax, I was so tired, depressed, and so afraid of losing weight that I stopped working out. Now a woman who has always made it a goal to set a good example for my daughters that a fit body is the goal, not a thin body, has her mother in law telling her that she looks "bulimic"! In August I noticed I was crying a lot, then I thought well, maybe it's the Topamax, so I started drinking more water and it went away... so I've been very careful to drink A LOT of water and only decaf tea while on this med, but apparently that wasn't enough, because a few weeks ago my husband pointed out that I stopped showering every day. I have been crying at the drop of a hat for a couple of months again, and I have never been someone to cry in public, I have even started crying in front of my daughters friends' mothers and near tears in front of her teacher over the littlest things... then last weekend I found myself with four hours to myself in my house for the first time in months and I was thinking about how I might be able to use it for unspeakable things like running away, or worse... if those aren't signs of a pretty severe depression I don't know what are, fortunately I recognized them and put them together with the memory problems, etc. As for the memory loss, there have been problems with that for months as well, my daughter has been telling me I "have a bad rememberer" , This weekend everything culminated and other people were recognizing the memory issues that I had been keeping private until now (including my husband). Before that, I would be in the kitchen cooking and forget what I was doing, I went to drive to a party this weekend and forgot where I was going, so I called a friends husband and he had to tell me four times where to go before I could retain it (at first he thought I was joking) and then I still couldn't remember the name of the place, only the # and street, I haven't been able to remember routes to places I used to drive... I'll find myself sitting at a light not sure where to go, and making mistakes with our money because I forgot whether I did or didn't pay a bill (something I've never done, we have always had excellent credit). On Topamax I went from feeling like an attractive, successful, good mom,with a happy family... to constantly stressed, even by things I had previously enjoyed doing, and a completely depressed failure... but I had no migraines. I have now been weaning off the Topamax for a few days. I was playing phone tag with my neurologist... so due to the urgency of the problem I took myself down to 100 mg a day. I have since spoken with my neurologist and I am going off of it completely... by the way don't ever discontinue this med without ramping off of it, doing so can cause a seizure. I am unbelievably grateful that I put 2 and 2 together the weekend I had time to myself and got lost going to the party and I already feel more awake, less tearful and depressed... I know that things will be ok anyway. I hope that anyone reading this who is having memory or emotional issues on Topamax and just brushing them aside (because they don't want to risk going back to the migraines or whatever), will get off this med. Please realize that this med could have cost me, my kids and my husband a lot more than my migraines ever will. I have never experienced depression before Topamax, and I can't say that I'm completely back to myself yet, but I hope that when I am off this med I will find normal again, and I pray it will be without migraines, but I know that I wouldn't wish these past few months that I've put myself and my family through on anyone. Now, I need to go take a shower :) , then I'm going to my neurologist to pick up some 25 mg samples to continue ramping off! Good luck to you all!
July 25th
2007
4:44 PM
I am on my last shot and I am so Glad.I have had night sweats,hot flashes,sleeping diffuculties,no energy,achey and a little weightgain.I am curious to see how I feel once I am off this for good.If anyone has any ideas or any comments about Lupron let me know.
-- By ksaul | Reply | (3) replies | Private Message me
Mirena (6) Singulair (3) Effexor (2) Gardasil (1) Lupron (1) Lupron Depot (1) Kenalog (1) PredniSONE (1) Plavix (1) Vytorin (1) Fentanyl (1) Doxycycline Hyclate (1) Lortab (1) Toprol-XL (1) Topamax (1) Remicade (1) Yasmin (1) Loestrin 24 Fe (1)
November 4th
2009
5:04 PM
been on them for nearly two years. i've had painkillers for 15 years due to ankylosing spondylitis and have been through a whole rake of medicine.
-- By jtracing | Reply | Private Message meabout a year ago i started getting tired spells, now in 6 weeks i see the specialist in the endocrinology unit with suspected hypoglycemia. But i reckon it's these patches, i went from 25 to 37 (25+12mg) and i got worse so it seems straight forward and all the blood tests are negative in regards to glucose. As for the constipation, a diet of all bran every morning without fail and it solves that problem. I still take celecoxib and omeprazole as well as 2-6 co-codamol per day. The withdrawal on these patches is awful. I am going to stop them after new year and go back to codeine/paracetamol and the celecoxib(celebrex) to manage the pain.