November 2th
2009
10:50 PM
I am suppose to get my fourth shot tomorrow!!I have been experiencing a lot of I am get hot flashes,vaginal dryness really bad, increased appetite,night sweats,and weight gain,last one that has been horrible to deal with is my severe headaches.I am 24 years old and mom of 3 children.We wanted to have the option open if we did decide to have another child.I am still having the cramping to the point that I can not be the mom I want to be.I really don't know what I should do.Now reading all these messages I am very scared.Any one with comments please feel free!!
-- By mykids3 | Reply | Private Message me
November 2th
2009
12:14 AM
I have been taking Lamictal 150 mgs for about 2 years to prevent Basilar migraines. This medicine saved my life. I was having these scary migraines where I would have stroke like symptoms (loss of speech, vision and confusion) two or three times a week. My Dr. started me on a very low dose and stopped titrating me up when I hit a therapeutic level . I have night sweats, some nightmares and some anxiety at times but I'm willing to get over it because I don't have the migraines.
-- By debonyx | Reply | Private Message me
October 29th
2009
9:39 PM
I had my surgery July 16th. Last Lupron shot was June. My period has started back . I think it took about 2 1/2 months for mine to restart. I stop having the severe .irritating night sweats but I still get these off and on hot flashes that are not as severe as they were. I am hoping that the temperature changes will hopefully stop in the next few months. Although I don't like the body temp changes. I feel much better now that I don;t have the severe pelvic pain.back pain . severe abdominal pain . urinary tension and pain . difficulty standing straight and walking and excessive bleeding.
-- By virgo38 | Reply | Private Message me
October 25th
2009
6:10 PM
I'm 24 and just recently finished my lupron treatment for endo. I'm still having some of the side effects and have yet to start my period again. I honestly would've rather had surgery again for endo than go through months of the side effects. The memory problems, overall fogginess, night sweats, insomnia, mood swings, hot flashes, and just the stress and complete crappy quality of life I've had most of this year has completely affected all aspects of my life. It's not easy at work, at home with my husband- surgery took a day or so to recovery from and this has been a nightmare for months and months. I'd really think about it and research the benefits for you vs the side effects before doing it. If there are any other options- I'd absolutely consider them.
-- By jaroski | Reply | (2) replies | Private Message me
October 20th
2009
10:58 PM
I started Lupron injections 9/28/09 and I started having side effects almost right away. Headaches, mood swings, socialized anxiety, lack of appetite, no short term memory, no short term memory (LOL), confusion and extreme inability to focus, hot flashes/night sweats, tired all the time. Also, when I'm not having a hot flash/night sweats, I am chilled to the bone. This may be due to my appetite, which in turn is odd that I have cravings of chocolate. My husband has to pretty much force me to eat a meal. The chocolate craving goes beyond anything else, it's strange for me to eat like this. From what I understand is that it could be a hormonal issue due to the Lupron. Also chocolate can trigger endorphins that can help with pain, seeing how as the Lupron is doing nothing in that department!
-- By warning | Reply | Private Message me
October 5th
2009
9:42 AM
I have had the worst year and a half of my life-it should have been the happiest! I was on Yasmin for about 7 years. This last year I had gotten engaged and was excited to marry the man of my dreams! The first few years on Yasmin everything was fine-I did not notice any changes. Over the last few I seemed to recognize some anxiety and started having panic attacks out of the blue. Well, in July 2008, I went to the Dr. and was misdiagnosed as having an ulcer-I really had mono and walking pneumonia?? I was having all kinds of anxiety and they could not figure out why I was sick. I went to all kinds of specialists-neurologists, cardiologists, gastroenterologists, etc. They said nothing was wrong. I received a call from a friend of mine who is a nurse. She knew of my symptoms that had compiled over the last year and asked if I was on Yasmin. She told me to stop the pill but I did not think that this was causing me all of these problems. I ended up having severe insomnia, massive anxiety and panic attacks, irritability, moodiness, muscle aches, night sweats, chest pains, racing heart, depression, the list goes on...I wanted to cancel my wedding! I thought that I was going insane! I ended up at a therapist looking for some help. She was able to help me get through my wedding (December 2008)-thank God!
One of my friends wanted to get off the pill to try and get pregnant and decided to do so after my wedding. After 3 months, she was able to stop her anxiety and depression medicine...correlation?? She was on Yaz!
I immediately stopped the pill (March 2009) -that was the icing on the cake! I have NOT had a period since March, I still have anxiety and am in fear every day that something is going to happen to me.I still have insomnia and feel scared that all of this is taking a huge toll on my body-especially my heart. I just want my hormones to go back to normal so that all of this will end!
Does anyone have a similar story? Any advice as to when I will get back to normal?
Please do not recommend Yasmin or Yaz to anyone ever! It has ruined my life in every aspect. It has affected my relationships, work, school, my well being.
I would love any feed back and/or comments-help!
October 5th
2009
1:51 AM
This for a shoulder injury I was taking 80mg a day just for a couple days.
However that same day I got flu shot then read in the Interactions not to get any vaccinations may cause serious complications. Three days later got a steroid shot the started to reduce the meds, feel terrible, night sweats,heart burn, every thing I drink taste like salt,having to urinate all the time. being dizziness, up till wee hours in the morning.
October 1th
2009
8:25 PM
I feel compelled to share my daughter's horrendous experience, which we (and some of our docs) believe was a reaction to Bactrim. Her chills, high, high fever, night sweats, itching and majorly swollen lymph nodes mimicked lymphoma. She had a biopsy of one of the swollen lymph nodes and it revealed Kikuchi' s Disease or Kikuchi-Fujimoto's Disease. Google it. Thankfully, it was benign and self-limited, but it made her very very sick and it was scary and most probably triggered by her allergic reaction to Bactrim - taken for acne. We will never take this drug again.
-- By mjws19 | Reply | (1) replies | Private Message me
September 27th
2009
2:37 PM
I had a baby in May.I had the mirena inserted in the beginning of August. I began having night sweats and noticing a lot of hair loss at the beginning of Sept. I went to my Ob/gyn who said it couldn't be the mirena causing the symptoms. So I thought that maybe I had a thyroid issue.(After my last pregnancy I had post-partum thyroiditis, which caused my hair to fall out and night sweats). I had my levels checked, and sure enough my t4 levels were high. So, now I am waiting for my t4 levels to go back to normal and hope that's what was causing my symptoms, not the mirena. I have also read that the mirena can cause thyroid problems, so who knows what is REALLY causing my symptoms. My most recent symptom is numbness and pain in my wrist/hand. I'm thinking it is possibly carpal tunnel syndrome which can be caused by hypothyroidism. If you just had a baby and are having the night sweats, hair loss, heart palpitations, weight gain etc.... I would recommend getting your thyroid checked.
-- By beepskie | Reply | Private Message me
September 27th
2009
11:55 AM
Wow, what a relief. Thank you all for your stories and experiences with Mirena. I had Mirena placed in May 2009 and like others was not warned about the "discomfort" of the placement. I am 45 and have never had a child and my cervix was understandably angry at the unwanted visitor. I am an athlete and I like to think my pain thresh hold is high, and I almost came off the table with the pain and cramping. I bled for almost a month straight, sometimes heavy. I was told this would subside and it did.
Now three months in I was talking with a nursing buddy of mine (yes I am a nurse, cardiac) and she was telling me of her experience with Mirena and hair loss and blurred vision and weight gain. I am beginning to understand my last few months. Allow me to share. I have gained 10lbs in the last two months and have severe hunger symptoms if I go over 5 hrs without food. My typically flat stomach is now round and I feel bloated all the time. (I have even taken some of my girlfriends diuretics) I have night sweats and a few weeks ago I almost ripped my husbands head off for just a small disagreement. I remember planning our divorce in my mind!! My nipples get so sensitive to touch at times it hurts to wear a bra. I could go on and on but I am convinces this little uterine invader is coming out this week. If my obgyn won't do it, I will find another.
Thank you ladies for sharing, this is how we learn. I will keep you updated
-- By lisa92464 | Reply | Private Message me
September 23th
2009
8:39 AM
I got Mirena in Oct. 2008 because I wanted a simpler way to birth control. From day one I began to have problems. I had severe abdominal pain off and on, sometimes even waking me up at night. My face broke out severely and never clears up. I could not sleep restfully and experienced night sweats and mood swings. I have also put on about 15 pounds and have not changed my eating habits. I finally said enough is enough and had it removed September 1, 2009. I feel better and sleep better but I'm still having problems with acne. I still cannot get it under control. I still fell like I made the best decision to have it removed. If I would have found this website early, I would have never got it in the first place.
-- By laran1978 | Reply | Private Message me
September 21th
2009
2:20 PM
I am so glad that I found this site. I had my Mirena put in February 2009 when my son was 10 months old. I wan't even looking for options for birth control. My doctor kept pushing it on me every appointment we had. I knew 2 people that had it and they loved it so I thought why not. The day I had it inserted I had major major cramps. But the doctor said I would experience cramping. Well the next day the cramps were so bad I was doubled over in pain. They felt just like contractions from active labor. After about a week they went away.
Then came the rest. Heart palpitations. Tossing and turning at night. Night sweats. My contraction cramps came more and more frequently. I started getting pimples and I never get pimples. Joint pain especially in my left shoulder. Mood swings like I've never had before. I don't even want to be around my son who is now 16 months old. Most days I feel like both him and my husband would be better off without me.
I went to my doctor in June and she told me they're was no way it could be from the Mirena. I then called the Mirena clinic. They told me the same thing and said not only would I have to go through my family doctor for a referral to have it removed, I would then have to wait 3 months for my appointment. Needless to say I felt backed into a corner.
I made another appointment with my doctor planning on telling her we were going to try and have another baby and hopefully we would get a better response.
Well in walked in a new doctor saying my old family doctor no longer works there! So I told the new doctor about my symptoms. She took out a pen and pad of paper and started writing everything down. She told me that it's rare for it to happen but few people have serious side effects. I felt like giving her this website.lol
Anyway, 4 days later I have an appointment on Oct 6th the have it removed!!! I am so happy. I will post an update.
September 19th
2009
3:09 PM
I have just taken my sixth and FINAL Lupron shot. I was unaware of many of the side effects, like IBS. I am a lot different than most women. I was born with a birth defect called cloacal exstrophy. I am 41 years old and have lived my life with no bladder or rectum, due to extreme reconstructive surgery at birth. I have a permanent Colostomy and urinary diversion (ileal conduit). I do not have a very large amount of intestine, which creates an absorption problem of certain things, one of them being Calcium. I have also had severe orthopedic reconstruction since birth.
In December of 2008 they found a mass on the right side of my abdomen along with a hydrosalpinx. The hydrosalpinx was drained and I was then urged to start a 6 month cycle of monthly Lupron shots. There is a long history of endo in my maternal family. I have been advised that because of existing scar tissue from so many past surgeries a hysterectomy was not possible. I can not even have a laproscopy to determine that the growth is actually endo.
3 months into the shots I started to suffer extreme diarrhea, lasting from 1 to 3 weeks at a time post the Lupron shot...it was blamed on overgrowth from past surgeries, etc. It has become a terrifying experience for me. Due to my inability to absorb calcium well I now have several calcium kidney stones that must be broken apart with a laser. I have no idea what will happen with the GI symptoms or if they will continue once the Lupron "wears off".
I have no concerns about fertility, since having children has NEVER been an option for me. My concerns are surviving my life longer without additional risk to it from taking this drug.
I have had the usual symptoms of sweating, night sweats, fatigue, Hair loss, loss of appetite and occasional insomnia. Again, the most concerning to me are the kidney stones and GI problems I have been experiencing, including "sludge" in my gallbladder.
I am severely disheartened by the lack of looking at the whole picture, at least midway through this treatment. This is compounded by the fact that my treatment stems from one of the country's "top 10 Hospitals", which is a direct affiliate of the Children's hospital that did an AMAZING job of successful reconstruction in 1968. It is 2009 and I have fewer options to improve this situation than I did the issues from the original reconstruction in 1968.
I feel I never should have been put on this medication and am deeply concerned about my survival from here. If I could go back 6 months, as informed as I am now.....this IS NOT the path I would have chosen. I no longer know which Doctor to trust, what decision is best for me or how much more I can take.
If there are any AMAZING Dr.s reading this, please feel free to contact me...I am desperate, I do not feel that this should affect my survival rate and am willing to listen to alternative solutions IN THEIR ENTIRETY.
Anyone with a shortened GI tract, absorption issues, or previous health conditions should WEIGH ALL OPTIONS and do AS MUCH RESEARCH AS POSSIBLE before agreeing to this treatment. I placed trust and confidence first, not one of my better decisions concerning my health. I will not continue treatment with Lupron.
-- By cjcatz | Reply | Private Message me
September 17th
2009
2:59 PM
WOW!!! I wish I would have had access to this site sooner!! After 5 LONG years-yesterday I finally got my Mirena removed! I was asked if I wanted to get another one placed yesterday-I took a pass on it! I was told I could always change my mind & to give them a call when I was ready. After reading this & realizing my own side effects I WILL NOT be getting another one. I too have had some, if not, most of these side effects-but I only related the moodiness & weight gain as my only side effects from the Mirena. I'm always tired, all I want to do is be in bed all day. I have many LOW days-and sometimes any stupid commercial on TV would set me to tears-NO JOKE! Any little thing would set me off like a mad woman! And the headaches!-Oh the headaches!! My hair has been falling out a lot over the past few years (I'm talking small handfuls-daily!) I thought it was just due to the stress in my life. Since my last child-5 years ago, I gained 35 lbs that I CANNOT seem to lose, & once again-I thought it was just stress.My face has been breaking out-which I thought was INSANE because what I didn't have to put up with my teenage years-I now had to deal with. I would also too get night sweats, but just figured it was due to me being overweight. As far as the insertion-I can't really complain. I had very little cramping, & my period went away quick. The first 6 months was just occasional spotting, and after that they completely went away. It didn't affect my sex drive. But for the past 2 years-it's been haunting me that I hadn't had a period-(it's seems funny, but after 10 years of having it every month, & then for them just to not come at all-I never got used to it). I think the past 6 months have been the worst. I kept getting yeast infection that would go away w/treatment, but 2 weeks later, it was back. I had also been getting SEVERE cramping from time to time. They would only last through that day, but a few days later they'd be back. You figure I would have gone to get it removed, but reason for not having it removed was because this was the best method I had used, & didn't want the risk of having a pregnancy that we were not prepared for. I considered the other IUD (the copper one?), but my sister had worse problems with that one-extreme weight gain, cramping & periods lasting more that 2 weeks! I also considered the shot, but involves to many trips to the gyno-so I'm back to an older method........THE PILL, until we decide on having another child, or not to have any more, I am comfortable with the decision that I have made. I hope this helps some of you going through these same experiences I have gone through. I look forward to a Happier Tomorrow! (even w/the periods) =D
-- By chabelita211 | Reply | (1) replies | Private Message me
September 15th
2009
11:11 PM
I just had a baby about 8 weeks ago and started nuvaring and have only been on it for 2 days and i am already feeling nausea, headaches and severe cramps. i took it out and felt a relief of pressure immediately. i don't know if it is just because i just had a baby but it was not fun and i don't think i will use it again, it is not worth the effects you get from it.
-- By megandruss | Reply | (2) replies | Private Message me
September 8th
2009
4:54 AM
I forgot too add a few side effects:
memory issues (obviously), terrible night sweats, nausea (though not vomiting) and a constant kind of angry feeling to the point of not being able to even look at my fiancee (which is so unfair, because he's so supportive) and lack of patience with my baby which is scaring me.
Also restless legs and feeling tired all the time with out being able to sleep,
constantly hungry but I get bored of the flavours very quickly.
September 4th
2009
1:19 PM
I was on doxycycline for three weeks because the doctor believed I had Lyme disease due to the slight headache, mild fever, and aching joints that I was experiencing. I was fine for the first few days, but then I began to develop some unusual symptoms. The symptoms fluctuated day to day, but I was never free from one or more of these symptoms: severe headache, chills, night sweats, tingling in my arms, weakness in my legs, ear ache, numbness in my face (especially my eyes and lips), anxiety, depression, insomnia, pain in my eyes, and neck, and stiffness in my jaw. At the end of three weeks, I seemed to have more Lyme symptoms than before I began the medication. My Lyme test was negative, but with my continuing symptoms my doctor recommended that I take the medicine for ten more days, and retest for Lyme. The first day back on the medicine I was sicker than ever. I waited it out because the doctor insisted that it was the best thing to do. I finished the medicine, and the effects were less intense. My second Lyme test was negative. I am being tested for Fifth's disease (my son was ill with it just as I began to experience my swelling joints - a condition that can not be treated, uggh). I seem to get worse if I don't drink all day and night - a lot of water is needed, all the time. The effects also increase when I go to bed, recline on the couch, allow myself to become nervous about my condition, or over work myself through the day. I was at the pediatrician with my son yesterday, and mentioned my problem, wondering how long it could take to get the medicine out of my system. She told me it could be as long as a few months. It's been two weeks since I took my last pill.
-- By madmedicine5 | Reply | (1) replies | Private Message me
September 2th
2009
11:22 PM
I was prescribed Doxycycline Hyclate last week and the first night I took it, I had a fever of 100.4. It went down quickly but I had no idea it was from the anti biotic. I thought it was from my miscarriage. Then, I began to get HORRIBLE bloating, like very painful and constipation. I also began to noticed throughout this 6 day period, that anytime I took Doxycycline, THAT'S when I would have these symptoms. I have come to the conclusion that this medication is causes my fever, bloating, constipation and depression. I have also experienced chest pains 2 nights, night sweats and ringing i the ear.
-- By kaylab | Reply | Private Message me
September 2th
2009
4:15 PM
I just had my first shot of Lupron yesterday. I have an oversize uterus and will need to have it removed. I am 40 and do not plan on having any more kids, so that is cool. I am taking the shot to shrink my fibroids down to have the less invasive surgery because they are extremely huge at the moment. The same day I took the shot, I felt extremely drowsy and had to lay down to take a nap. I woke up and felt full of energy. The next day, slight tension in the neck and headache but that is it so far. I have some Premarin Estrogen tablets to take just in case of the hot flashes and night sweats but I am not taking those things unless I have to. I already had severe hot flashes and night sweats before all of this, so I am use to it..so its not a big deal..I also already had severe mood swings, extremely lethargic, and bouts of depression before all of this, so I really want notice the difference. So, so far, so good. I am not experiencing any side effects from the shot as of yet that I was already going through, anyhow..Each person is different..
-- By denise3664 | Reply | Private Message me
August 26th
2009
11:30 PM
I took lupron for about a year or so back in 1999. I don't remember a lot, just the hot flashes, etc, that I was warned about. I began to have memory problems a little. As the years passed by, it became worse. It is 10 years later and I have no short term memory. I have searched and searched to figure out what is wrong with me. My memory is gone. Its a sad thing, that this shot is still being given.
-- By cglortiz79 | Reply | (3) replies | Private Message me
August 26th
2009
5:20 AM
How could I forget the day and night sweats and terrible loose bowel movements and related vicious wind !!!!!!!!!!!!! The only parts of my body that have not increased in size are my ears and nose, I feel like someone has just pumped me up. In fact I feel really awful almost to screaming point.
I am really sorry if anyone else is suffering the same effects of this EVIL drug,
I am trying to just stay away from my husband so that he doesn't leave me.
From D. in Santa Barbara 26th August 2009
-- By debbiefromsantabarbara | Reply | Private Message me
August 22th
2009
1:17 PM
I started taking this drug about a year ago, for high cholesterol, I experienced muscle pain, night sweats, and fatigue, I did not associate it to the drug, I am on a cane I thought that was the reason for the arm pain and the other symptoms to menopause. It eventually stopped, but would return. We went on vacation and I forgot my meds and everything subsided, I started taking the Simvastatin when I returned home and my night sweats, fatigue and muscle pain returned. That is when I decided to look it up on line and found this site. I am going to stop taking it for now and see my doctor next week. Thanks for all the info.
-- By jaziyana | Reply | (2) replies | Private Message me
August 20th
2009
4:08 PM
I have had my Mirena removed since last Wed. 8/12/09. I started what seemed to be a period on Friday and only went a couple of days. Not heavy at all. I can totally tell something has changed. I have more energy, I sleep better at night, no night sweats, my aches are almost gone. It was getting where it hurt to walk by legs ached so bad, but now it doesn't. I haven't really experienced any crash so I'm thankful for that. My hair is not coming out as bad. I seriously can't believe that the birth control Mirena was causing all of my health issues. I can't believe that any woman would want to go through this. It seems to me that more than less are having these terrible side effects due to Mirena which tells me that it has not been properly tested before being put out there for us to be the guenie pigs. I am so happy to have that removed and my life is finally getting back to normal.
Good luck to all of you.
August 19th
2009
10:32 PM
My neurologist put me on Prednisone for cluster migraines. I started with 80 mg for 2 days, 60 mg/2, 40mg/2,20mg/2. It was so effective at keeping the cluster attacks from coming. I was so thankful to finally have something to stop the attacks. I have suffered with CH for 20 years and other than pain medication to abort an attack I never had anything that worked as a preventative. After taking the prescribed dosage I stopped taking the Prednisone. My neurologist warned me that this drug can be very effective short term but I would not want to have prolonged use because of the side effects. Unfortunately, when I stopped taking it my cluster migraines came back full force. So I went back on taking 20 mg daily. That was a BIG mistake. At first I was euphoric, on a constant high. I had so much energy even though I would only get about 4 hours sleep because my mind was racing from 2:00 am into the early morning hours. I would wake up with night sweats and needing to urinate 3 times per night. My face got puffy, I had terrible heartburn, increased thirst and a decreased appetite. My family was watching me wizz around like the Tazmanian Devil wondering why I was acting so bizarre. I thought I was seeing things so amazingly clear! The worse part of all is the itchy, red rash that started on my elbows, then knee caps. It has now spread up and down both arms and legs. I went to see my GP and I told him that I have never had any skin rash like this before. Could it be the Prednisone causing it? He of course said it was unlikely because Prednisone is used to clear up skin problems. Now having stumbled on to this site I realize that it must be the Prednisone doing this to me. I am unfortunately going to have to suck up the pain of the migraines and let them run their course until they leave me for a few years. I'm so disappointed that Prednisone isn't going to be the cure after all.
-- By clusterhead | Reply | Private Message me
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November 4th
2009
10:10 PM
I am so relieved to have discovered this site. I suffer from reoccurring UTIs. Two years ago I was prescribed Bactrim and within two hours felt all of the symptoms of a very serious virus, or so I thought.
Recently, I switched medical providers and was again prescribed Bactrim for my UTI. Within 4 hours I began to experience chills; the chills soon turned into a fever (fluctuating 100+) and night sweats. The symptoms continued throughout the night and into the next day when I started to get tingling skin, body aches, a severe headache with pressure behind my eyes and ears (which got worse when I bent over or stood up), vomiting, restlessness and insomnia.
I started to make a correlation between my first Bactrim incident and second. I called my Dr. to describe my symptoms and she said I most likely was suffering from both the UTI and flu. But, she recommended I stop the Bactrim dosage and call her in a few days to let her know how I was feeling. After missing the second dose of Bactrim I am starting to feel human again.
There is no doubt in my mind that this was the Bactrim. The symptoms came and went too quickly to be a virus. I still have a slight headache, especially when I stand up too quickly, but it's improving.
Thank you all for posting. No more bactrim for me!
-- By km1980 | Reply | Private Message me