Nodule symptoms and conditions

I have been taking Levoxyl for about 2 years. I have told my Endo doctor many that I have had headaches, nausea, stomach pains and have gained 40+ pounds in the 2 years. Every time I go in to review my blood tests and tell her I'm not feeling right I get the same respondents as a lot of you; they are you sure you are not pregnant? you need to change your diet and eat right? you exercising enough?...The Dr always seems to ignore my symptoms. The last 4 weeks have been Hell for me...I woke up one morning thinking my stomach was going to burst. I went to the Er. They did an ultrasound...found nothing..gave me stomach reflux meds and I went home. 2 days later the pain was a lot stronger right under the center below my rib cage. Went back to the er. They gave me more protonics and gave me a gi dr. I went to the GI doctor and got a contrast scan and then a scope. They of course found NOTHING. A week later I woke up again with the worst pain yet and the cold sweats...to the point where I was going to pass out...Went back to the Er where they gave me a cat scan. Everything was perfect the er doctor said. "They said they couldn't tell me what was wrong". I knew I wasn't going crazy and having all these symptoms but no one could explain why or what is was. I was getting fed up of being sick...So I took my Levoxyl like I do every morning and within 15 mins the pain was back. I went online to look up the side effects of Levoxyl and found this site. Its great to know that I am not the only one out there with these side effects from this medication and am not going crazy! I made an apt with my Endo Dr today called and told her this med was making me sick. She made me have an apt with her assistant. I printed off this page to show her I wasn't alone. As of today I am off of Levoxyl. Thanks to the new Dr who FINALLY listened to me. I do not have to take any other form of this med either. Since I just had a nodule not hypothyroidism. Please Can anyone tell me what they went through from withdrawal from this medication? and anything that helped it go away? and How long did the "detox" from Levoxyl last?

I am 57 years old and have been on synthroid for about 3 1/2 years. I had a nodule on my right side that was removed.I felt great but was told to see the endocrinologist. I felt better for quite a while but NOW I have gained over 25 pounds, out of breathe just going up stairs and feel like I always have a lump in my throat. The weight gain has made my feet, back and knees hurt. I have been exercising and even did Jenny Craig and only lost 10 pounds just to put it back on. I retain fluid in my hands and legs. Sometimes my legs feel like they are going to burst. I am seeing many of the same complaints on this site about synthroid. What is this Armour people are talking about?

Hi I was given a shot of Kenalog-40 in the center of my hand for a nodule from Dupreytron Contracture two days later my hand swelled to the size of a large boxing glove my fingers were so misformed and pulled apart and I had red streaks running up my arm. It wasn't until they did a echocardiogram of my heart and seen that I had a vegetation mobile mass on the right cusp of the aorta to my heart from this shot. I got my shot at the VA Hampton Medical Center in Hampton Virginia on August 27, 2008
and in the hospital the 29th of August 2008.

There were 11 other people who also had trouble with the Kenalog-40 injection but we don't know who the other eleven are so we could get together and do something jointly about this my husband's hand and his heart are damaged for life this is unforgettable.

2/21/09

I have had my Mirena in for two weeks now. I have been having abdominal pain, I thought perhaps the Mirena had bruised my ovaries. The insertion was extremely painful. I had a two week check up and now I have multiple cysts on my ovaries.
I have a 6 year old and 22 month old twins. I have always had heavy, long periods. After having the twins I began experience extreme cramping 2 weeks prior to even having my period, lower back pain, and mood swings. I have never been a fan of contraceptives but felt if the Mirena could stop me from feeling crampy all month long it could finally be the relief I have been looking for.
Now I am in more constant pain because of the cysts and after reading this site wonderf if I should have my thyroid checked again. Before the Mirena I was positive for Hashimoto's disease and have had a nodule removed (non-cancerous). I wonder if the Mirena is going to push my horomones so that I will have to begin taking medicine for my Hashimoto's.
I wonder what releif is out there since the pill is still a hormone.
When I spoke to my OBGYN she said the Mirena had nothing to do with the cysts. I don't know if it is because there are a couple on each ovary?
So far my side effects include ovarian cysts, facial hair, acne, swelling in ankles.
Thanks for having this page and I hope we can all find some relief.

As most of you, my TSH always came back normal/border line as well. However, due to all of my symptoms - every single one for Hypothyroid - they went ahead and did an ultrasound. I had a nodule 15mm x 5mm on the left lobe and 5mm x 4mm on the right. Because I had the constant "turtleneck" feeling around my throat, it was getting hard to swallow and sounded like I was an 11 year old boy gowing through puberty again, because of the hoarseness, I had Total Thyroidectomy last week. My surgeon put me on 150mg of Synthroid. So far so good with the side effects, granted it's only been 6 days. I actually have more energy, and a decrease in appetite. I've already lost 5 lbs. Not real sure if my energy level has gone up because I no longer have a thyroid to bring it down or if it is from the medication. Either way I hope my side effects stay as they are, I could stand to lose another 50 lbs - haha

i have a lot of the same symptoms and had a nodule and was told i may be able to get off of my thyroid medicine after it went away, but please be careful and don't just stop taking your medicine. Your body is not making enough of the thyroid hormone that is why you had a swollen gland it was trying hard to make enough but couldn't keep up. Your body has to have that hormone to function without it. If it doesn't have enough it can throw you into toxic shock and a coma. the side affects are terrible and I agree get to your doctor and demand help! But the side affects are nothing compared to what going without your medicine can do to you. i know i tried it and ended up in the er!

Hello Ladies....I am 56 and diaged Hashimotos disease 3 years ago.At the moment on 112mcg of synthroid....dosage started off low and have gradually worked up....So angry with drs...was seeing endo, but moved and using family practice...so frustrated with weight gain approx 25lbs since diag. Also does the word sweat ....mmmm perspire for all us ladies, mean anything? I can't even wash dishes without breaking out in to a sweat...mmm beads of perspiration....Dry skin, I own stock in Aveeno....Also....does anyone get "boil type" skin eruptions in the nether region...butt, inner thighs etc? Does anyone or has anyone done any serious research on Iodine? I try to eat as well as I can, was doing Weight Watchers and gained weight do ya hear me? I am questioning my idodine intake or lack of....Presently take mulit vit with 150mcg. Considering uping it and dc ing my synthroid...cuz docs have been useless....eat less, (how much more less?) exercise more...I swim so much I look like a freaking prune....Any comments?

I first started to take Flowmax about three years ago and took it for about a year. I had most of the symptoms mentioned but also had swelling of one of my lymph nodes in the neck, also a nodule appeared next to one of my testicles (which I presume was another lymph node as it has now disappeared) , severe sore throat which had me off work for nearly a month. Together with all the other symptoms I thought I was on my way out! - Then I had reason to go away for a long weekend and forgot to take the Flowmax with me and most of the Symptoms disappeared!! It was only at this stage that I actually looked at the side affects of the drug on the packaging did I realize what I had put myself through. Never again will I take for granted that medicine "will do me good" I harsh lesson. My neck gland is still the size of a golf ball, and now through ultrasound they have found nodules in my thyroid gland. Is this all part of the same thing I ask myself? (ps I did not get the painful erection which was more or less the only one I did not get)

My thyroid troubles started in 1993. I am not sure how long before the discovery I had the problem. Mine started as a nodule on one side. I was immediately put on Synthroid and had to go see the Endo every 6 months for a biopsy. In 1995 I became pregnant. I had one more biopsy until after the birth of my daughter. The Endo told me he wanted to see me right away after she was born to do another biopsy. I had my suspisions, but didn't think anyhing until after she was born and went for my biopsy. Well, I had cancer. I went through the whole thyroidectomy, the 3 days isolation with radio-iodine, and every year to every few years after I had to go back and get the radio-iodine treatment, while not the high dose as the first time, it went with the complete body scan. In fact, I am due now, but don't have health insurance. My dose has been switched a lot, I have probably been on every dose from the lowest up to .200mcg, which has been the highest for myself.

Symptoms: pre-thyroid disease, I am 5'2. I was always 110-115 lbs, I was 22 yrs old and 120 lbs. when I married in 1993. I did notice gradual weight gain, probably because of my thyroid problems. I am sad to say that now I am around 180 lbs. I cannot seem to lose the weight unless I go on a total starvation diet. I managed to lose 10-15 lbs over the past summer, but unfortunately for me it has come back over the winter. I tried to stay as active as possible by going to stores and malls to walk around. I do for a fact notice that when my dosage for Synthroid goes higher, so does my weight gain. I was on .137mcg over the summer, and I think that was a good dose for me, that was through the regular dr. The Endo is the one who put me back up to .150mcg. My Endo told me the thyroid is a regenerative organ, so it CAN grow back. I guess they don't want that in case of cancer again, and I guess that is why he keeps me on higher doses.

I personally cannot stand it. I feel it is a horrible curse. I feel very robbed of my previous active life. I have been dealing with this now for 12 years not having a thyroid and being on this medication. I feel angry that I do not have the energy to do things with my 12 yr old and 3 yr old. I miss the way I was before having thyroid disease. I feel very sad when they come up to me asking to do certain things and they (nor anyone else I know for that fact) can understand that I just feel so whooped, and no energy. All I ever seem to want to do is take a nap. I have migraine headaches constantly, I am constantly tired. I cannot concentrate, I have some memory loss. My ex-husband, and my current husband too for that fact think I am just being lazy. Well, that is not so. There are moments when I do feel a burst of energy, but then, I have to use that burst to do the things I need to do around the house.

Pre thyroid disease I was always active, never tired, could do anything. After: TIRED, I was 24 in 1996 and felt like an old lady, dry skin, no matter how much lotion I put on. The tub is full of hair, while it doesn't come out in clumps and I still have thick hair, I have hair all over the place. Irritable, mood swings, happy to angry and the snap of a finger. I can have insomnia some nights, constipation, lots of the same stuff others have listed on this forum. Those side affects are the same no matter what dose I am on. And like I said the higher the dose for me, the more weight I pack on. It is instantanious. Over Christmas, and no, it wasn't from eating all the goodies, I gained a lot of the weight I had lost over summer back, and that was because a few weeks before, the Endo had put me on the .150 mcg.

I started Yasmin three years ago. It was great, lighter periods, fewer cramps, less acne. About a year ago, I noticed my left arm would kind of be numb. Then two months ago, I started getting light-headed and dizzy. I went to the emergency room, they couldn't find anything wrong. They said I had a panic attack, but I knew that it wasn't that. I'm a very calm, happy person. I went to a doctor, said I had fluid in my ear, prescribed Antivert, didn't help. Went to another doctor, did an ecg, glucose test, nothing. Said I should go to a neurologist. I didn't because I don't have insurance and I suspected that it was probably the Yasmin. In fact, I asked each doctor if it could be the pill, since this was the only thing I was taking and they said no. Went to an ENT, found nothing. Finally, I just decided to go off the pill, got better, but still having dizzy spells and migraines. It's driving me crazy. Missing work, social engagements. I had the brown spots and vaginal discharge. That I could deal with, but this is ridiculous!

I am tired all the time, short of breath on exertion (ie. climbing stairs, running, etc.). Have cold feet and hands, especially at night. Also, either feel overheated and too warm or cold and it can change instantly. Have difficulty concentrating, am extremely tired in the morning upon awaking and can hardly get up. I take .05 mg of levoxyl. My TSH tests come back normal, but I haven't felt right since my thyroid surgery for removal of a nodule and 2/3 or thyroid about 3 years ago. I was also diagnosed with sleep apnea shortly after my thyroid surgery. I am not overweight.

I had 2/3 of my thyroid removed in the 90s' because of a nodule, non cancer, wish I wouldn't have. After being on 125 for years now in Oct I started having palpations and numbness, went to my family dr, my endrocronoligist disapeared, anyway, he cut me in 1/2, I went from .2 to 20 on my levels, he raised me to .88, I was at 8 when my gyn raised me to 100 and then to 125 fast, I went to the ER last Sunday, and still having flushes and my hands are going numb. Right now my family dr has me off thyroid meds til tommarrow, and then start back with the .88. I feel like I am going crazy.. nervous, and then now getting tired, still having flushes and my hands are going numb.

I don't have any problem with Celexa. It's been great for me - I lost almost 50 pounds, my depression and especially the anxiety are way down. My problem is with the generic for Celexa, Citalopram. I tried taking it once before, a few months ago, and I started getting sore spots in my mouth, mostly on my tongue. I was in agony, and finally talked my doctor into changing the prescription back to Celexa, although she argued that generics are virtually the same as the name brand, and it would be impossible to have a reaction to the Citalopram and not the Celexa. I did go back on the Celexa, and after a couple of weeks all the mouth soreness was gone.

Recently, after a meeting with my doctor, she came to the conclusion that although the Celexa was working, for various reasons, she changed the dosage. When I got the new medication, it was the generic, but I thought this would be a good way to test whether the Citalopram really caused the mouth sores. After 3 days, my mouth hurts so bad, i can hardly eat or talk. I haven't found anyone else that has had the same experience.

Within 10 days of taking Lipitor I developed an unusual nodule on the knuckle of a finger on my left hand.

Within 14 days, I began awakening at night with INTENSE, BURNING PAIN in my right arm and hand. Also carpal-tunnel-like symptoms of hand and arm tingling in right arm and hand.

Within 21 days my left wrist developed a type of arthritic joint problem, which left me wearing arm splints on both arms.
Stopped the Lipitor, under Dr.'s advice, blood tests showed no muscle damage, but all problems listed above are now improving. SLOWLY IMPROVING. Left wrist may never be the same.

I CAN'T BELIEVE HOW MANY PEOPLE HAVE SIDE-EFFECTS FROM THIS DRUG!!!! And they say it's safe? This is our pharmaceutical companies talking here, this DRUG IS NOT SAFE... IT IS MAIMING PEOPLE.....
Donna

I have been taking synthroid for 20 years due to a nodule. It shrunk the nodule almost imediately but my eye, ear, nose and throat dr. insisted I continue to take sythroid. Today I had an regular appointment to check levels and he said that we are going to take me off synthroid. That a recent school of thought is that Synthroid doesn't need to be continued after the nodule is reduced!! I inquired several times about going off synthroid thru the years because I had alot of side effects. Hair loss, anxiety, heart palpitations, chest pain, sweating constantly, insomnia....all of the symptoms described by others on this page. I am kinda pissed but relieved to finally get to STOP TAKING IT!! Ask your Drs. about this if you just had a nodule and take synthroid for shrinking the nodule!!

Been on .15mg sythroid for 2 years. Had thyroid removed due to cancer nodule. Just recently started having lower back pains, neck, and leg cramps at night with anxiety, also my fingernails keep splitting.

I have been talking Levoxyl for years. I had my whole thyroid
removed in 99 with a precancerous nodule. For years
I have had trouble with concentration -- always feeling
kind of "out of it," "zombie -like," but just since about
September I have felt very bad. I have noticed this bad
feeling begins bout an hour or so after I take
my med.

I began in Sept on 88 mcg, then went to 100mcg,
then to 112, and then to 125. I cut myself back to 112
because with 125 I was so so so tired, and cried with
strange anxiety every day. Since cutting back to 112, I don't feel a lot better. During the day I feel to tired to do anything,
and I have lost my interest, personality, and sense-of-humor.
But, on days when I completely skip my med. I feel soo
good, but I can't do that two days in a row b/c then I feel
worse. Also, at my last dentist visit, I had 3 cavities and
I brush my teeth twice a day, every day.

I have another apt. tomorrow (with my specialist).
I hope he can fix me.
I have suggested Armour and Cytomel many times,
but he always says "this is rare that anyone needs to take
these" I hate feeling this way. I want to feel like everyone
else so bad, I just feel like I never will. It is very debilitating.
I have recently graduated from college and I feel like
an old woman -- too tired and bad to go after my career
goals.

Write back anyone that feels this way too.

hi there-
well just to fill you in im a 33 year old woman living in brooklyn, ny.
i was recently diagnosed as having a thyroid tumor-
there were also nodule growth on my thyroid-
i was so frustrated when they told me ---they could tell me i had cancer- but they could not tell me it didn't unless they removed the whole thing.
so two weeks ago out she came- tumor , thyroid and all. the aspirate showed that it was a solid mass- and the test result was "suspicious"
i have noticed since i have been on the synthroid-
leg pains- anxiety and depression.
i may be shakey but i am still taking the pain meds-
i think to even out the whole emotions that go with the experience-
i just saw my neck for the first time two days ago-
i feel like a peez dispenser-
and feel constant feeling( almost like a pressure) where the surgery was performed-

they say it might be environmental or genetic. it does seem to be prevolent in the north east-
im still figuring this whole thing out-really
but it helps to hear other testimonies- the leg cramps were really bothering me!

I've been on sythroid for 2 months and gained 9 pounds despite the fact that I strictly follow a Weight Watcher diet (and have remained on it successfully for 6 years...until 2 months ago) and exercise 5 out of 7 days a week. The doctor said it is not from the medication, but I'm getting off of it anyway, as I'm only on it to reduce the size of a nodule.