June 25th
2009
12:09 AM
Hi, I was taking Yasmin for around 3 years when I started becoming really tired and lost half my hair among other symptoms. I went of BCP all together and read up my symptoms on the net as I suspected my thyroid was under active - sure enough TSH levels were too high but T3 and T4 levels came back normal - was put on 50mcg of thyroxine but because I was still symptomatic this was upped to 100mcg, I have since discovered I also have multiple nodules on my thyroid. 18 months later my doctor talked me into getting a Depo Provera Injection and in the last 9 weeks since I had it I have never felt so ill in my life. Night Sweats, fever, swollen glands, nausea, sore throat just to name a few. I have had to halve the thyroxine tablets and I am still feeling lousy. I am seeing a throat specialist this afternoon. Wish me luck. N.
-- By natjane1970 | Reply | Private Message me
May 18th
2009
4:42 PM
ive been on femcon for about 2 and 1/2 months. Im 18 and haven't had any major side effects..the first day i was on it i had nausea but after that i felt fine. ive noticed my cravings going up the wall and im trying to control them! As for acne, its horrible!! ive always struggled with acne but im getting painful cystic pimples all on my jawline and chin. and now its starting to spread to my cheeks. I hate it and i don't know what to do. I will continue the pill to see if my body adjusts. I went on this pill to clear up my skin and hopefully it works! anyone else with this issue and has it helped your skin?
-- By princessmarigold | Reply | (1) replies | Private Message me
March 9th
2009
9:40 PM
Like most of you all I am on Topamax 100mg. I am a 27 year old female that has suffered from severe migraines for over 20 years that would last up to 2-3 days and completely debilitated me. I would bleed from my tear ducts from the extreme pressure and I would need to be in a quiet, cold, closed off room to be left alone until the migraine was gone to continue on with my life. It was ruining my life and taking over my day to day routine. I could never really commit to anything without the constant worry in the back of my mind about a possible migraine until I found Topamax. Now on Topamax I went from 4-5 migraines weekly to 1-2 monthly, it is truly amazing, however there is a catch. Although the medication is wonderful and I will never get off of it at the rate of success that I am at, I do have side effects. I have extreme tingling in my extremities, (hands, feet) along with my face. It feels like they are constantly asleep. I also have noticed the poor tasting carbonating drinks along with my taste buds changing with certain foods that I use to be so fond of. I also have a very smokey haze where it almost feels euphoric if I wake up in the middle of the night. I have horrible nightmares of people that I have not seen in or thought of in years, memory loss and spelling issues-all goes away after 3-4 months of uses. I had shortness of breath, however that subsides as well with the use of the medications along with several other side effects. I have lost over 30lbs that is along with diet, so I can't say it is all Topamax. I have noticed little nodules that have been showing up on my hands since I stared taking the medication that I am in ? about I have a call in to my neurologist to see if he has heard of any such thing. Other than that I love the medication, because if not having migraines is one of the side effects-lol I can handle the side effects. I hope that this will help anyone that might have anything similar to what I am going through. If you can shed some light on my nodule situation please let me know. Thanks
-- By marfam23 | Reply | (2) replies | Private Message me
November 6th
2008
12:14 AM
I am a 21 year old female and have been on Topamax since October of 2006. I am up to taking 250mgs a day having a constant headache and getting a migraine about every week. I have had such a range of side effects and symptoms that I can't tell the difference nor know where to begin. The most recent is muscle spasms in my eye lid and leg that won't go away. I have spasms infrequently all over, but these have been pretty constant. I also tire very easily though I always get 8 hours of sleep a night. Though those are not always 8 full hours of sleep, because I do have boughts of insomnia. I have also dealt with the intestinal problems to the point of thinking that I had appendicitis. I have had multiple trips to the hospital for abdominal pain and severe migraines. I have had the vision problems - blurred, dizziness, vertigo, and the weird one were my eyes jerk back and forth. I rarely have all at once and they have come and gone throughout the 2 years, but they have come back
I think the most mysterious one of all are the lypomahs - these little painful nodules under the skin that just appeared. They are mostly on my abdomen, but have found them on my chest as well. Any one else heard of this?
-- By jloesing | Reply | (1) replies | Private Message me
September 20th
2008
12:11 AM
I was on synthroid for 10 years after getting treated with Radio Active Iodine. As the years went by my period was all all over the place. They were heavy the first three days and lasted 9 days or more days. I spotted all the way through the month. Other times I was so late that I thought I was pregnant. I had PMS two weeks before I started and was irritable. I had low grade depression. I had anxiety and heart palpitations. My skin was dry and rough. I went to the doctor and had my blood test. He checked for TSH and T4 and T3 levels. He insisted they were normal and that something else is wrong wth me (he wanted to give me sleeping pills, anxiety pills, depression pills) and that it had nothing to do with my thyroid. He sent me to an endo to get a second opinion and he said my levels were normal too. I ended up going to a holistic doctor (paid over 1000 dollars for two visits plus meds) that checked under my feet (yellow) and my reflexes. She checked my reverse T3 and my free T3 and T4. It turns out that my body was not converting T4 to T3 the way they said synthroid (T4 only med) should. My diagnosis was hypothyroid. I was put on Armour and felt the difference in my skin. It was softer and moist! My teeth felt strong compared to before I felt like my teeth were getting loose. My stamina last longer and can run on the treadmil 45 min at six miles per hour. I am less nervous and my low grade depression seems to be lifting. My days are brighter and less anxious. My hair is falling less. I know I have a long way to recovery because my Adrenal glands need some healing and I am still being optimized. I might still need to be raised on the dose that I am in. I will never go back to synthroid! My period has improved drastically as soon as I started on Armour! I am down to 4 days of period and less heavy. I still spot on day 5 and 7 but it is nothing compared to what I went through when I was on synthroid (T4 med only). My gynecologist wanted to burn my uterus to control the menstrual flow. He said that he could also pull it out. It seems like main stream doctors are more interested in treating the symptoms than looking to see what is the problem that is causing the symptoms.
-- By viviana2008 | Reply | (1) replies | Private Message me
September 2th
2008
4:13 PM
I had my thyroid removed 16 months ago. I had nodules and biopsies, but the biopsies couldn't tell if the nodules were cancerous or not---so I had the whole thyroid removed at my doctor's advice. I have been taking Synthroid and increasing the dosage---now up to 200---and I have gained 37 pounds!! I can't stand myself any more, none of my clothes fit,and I am so unhappy. I had gastric bypass surgery 9 years ago and lost 123 lbs. I had gained 20 lbs, but was stable for 7 years. Then I had the tyroidectomy and -boom- I'm fat again. I am really panicked. I don't want to gain all my weight back. It seems like I get fatter every day. My endo doesn't take me seriously, he says my thryoid is at the right level. I don't know what to do!!!!
-- By alicelund | Reply | (4) replies | Private Message me
May 26th
2008
11:06 PM
bronchial infections one month after being started on 1000 mg leading to lung cat scans a pet scan and the diagnosis of four nodules in my lungs that weren't there prior to starting Keppra
-- By isabelladog | Reply | Private Message me
May 5th
2008
4:51 PM
I had a thyroidectomy on 4/16/08 and started on the generic synthroid right after that. The reason for the surgery was nodules and pre-cancer cells( I have had breast cancer and mastectomy 12/06. Since starting it, I have had swelling all over my body and was wondering if it could cause it. Since reading all these blogs, I see it is probably the cause. I am taking 75 mg and was wondering if maybe it's to high a dose.(?) I don't go to my Endo for a month but was planning on calling him tomorrow to see if I can half the dose until I see him-Is that a good idea or should I increase it? I'd appreciate all replies. Theresa
-- By tessie51 | Reply | Private Message me
May 3th
2008
6:44 PM
Twitching of the toes and fingers, wondering if this drug is the cause of it. I am a 47 year old female, been on the drug one year because I have nodules. They have been tested, so far no problem, but they test me every 6 months.
-- By lisa61ct | Reply | Private Message me
April 26th
2008
7:36 AM
I first started to take Flowmax about three years ago and took it for about a year. I had most of the symptoms mentioned but also had swelling of one of my lymph nodes in the neck, also a nodule appeared next to one of my testicles (which I presume was another lymph node as it has now disappeared) , severe sore throat which had me off work for nearly a month. Together with all the other symptoms I thought I was on my way out! - Then I had reason to go away for a long weekend and forgot to take the Flowmax with me and most of the Symptoms disappeared!! It was only at this stage that I actually looked at the side affects of the drug on the packaging did I realize what I had put myself through. Never again will I take for granted that medicine "will do me good" I harsh lesson. My neck gland is still the size of a golf ball, and now through ultrasound they have found nodules in my thyroid gland. Is this all part of the same thing I ask myself? (ps I did not get the painful erection which was more or less the only one I did not get)
-- By masmas | Reply | Private Message me
April 14th
2008
4:04 PM
I was diagnosed with having hypothyroidism, and after having FNAs done on the two nodules that were found during a screening of my thyroid - it turned out that I also have Hashimoto's Disease. I am currently on the lowest dosage of Levoxyl - and have been for about two months, and I have never felt so bad in my whole life. Yesterday I cried the entire day - for no reason. I have migraines several times a day. I get dizzy and have hot flashes and I feel so ditzy lately, forgetting the littlest things. It is a very frustrating way to live, being married with two small children. It is hard for me to explain this to anyone, and I unfortunately take some comfort in reading that I am not the only one living with this. I keep wondering if I will get better, not only for me, but for the sake of my family.
-- By issysmalls | Reply | (1) replies | Private Message me
April 2th
2008
2:23 PM
I was prescribed Synthroid for Hypothyroidism about 6-months ago. I was told my thyroid is covered w/ nodules caused by Hoshimotos(?) Thyroiditis. Prior to that I suffered with severe anxiety attacks. Since my first dose of Synthroid I have felt much calmer. I realize Synthroid isn't prescribed for that, but I definitely feel much better. However, now it is early spring, and I ventured out for some light gardening and thought I was going to die from heat stroke and a pounding heart - it is only 68 degrees! Could this be a side effect or perimenopause?
-- By maxine0928 | Reply | Private Message me
January 3th
2008
10:48 PM
I must say that I HATE this medicine. I have been on it for about 30 years. Constantly like playing a game. Too much then too little. It is driving me crazy. I swear that I have tremors from it. I also have gain lots of weight and my hair falls out everyday. Surprised I am not bald yet. I use to be able to go to the gym for 5-6 days a week and now it is soooo hard to get out of bed in the morning.
I truly wish that there was something that I could do. I have had one side of my thyroid taken out and now have to go and get a ultra sound of the other side. Still cant figure out why the doctor took one side and not the other when the other side had nodules too.
I am so tired of it and just don't know what to do.
I do know that I will be definitely speaking with my endo and even if my levels are okay she has to do something to help me.
-- By cathym | Reply | (1) replies | Private Message me
August 25th
2006
9:04 PM
I too have recently had a CT scan done and I just recently found out that I had 3 nodules on my lungs. I have too have been on the advair diskus for a year. Don't know if this is one of the side effects but I've never had this problem before.
-- By fan2seeiland | Reply | Private Message me
August 23th
2006
5:23 PM
I don't know if this is a direct effect from Advair. I have been using it for about 2 years and my Dr did a Ct scan and found 2 nodules in my right lung. I don't know if it is directly from the med but I never had any thing like this until now! I have had asthma all of my life
-- By kwhtd1 | Reply | Private Message me
July 1th
2006
4:03 PM
Swollen glands,nodules on throat,fever that comes and goes,dizziness,sweating,muscle aches
-- By nannyjo43 | Reply | Private Message me
May 8th
2006
5:11 PM
My mother was prescribed zocor a month ago and 2 weeks ago she started having terrible abdominal cramps and muscle weakness. I had to take to ER and doctors could not find anything wrong bec all tests came back OK. A week later she went back to the ER because the muscle pain was so bad she could hardly walk. She took herself off the medication. Now she's getting blisters and nodules on her legs and torso. Is this going to get better?
-- By ivettemu | Reply | Private Message me
April 23th
2006
1:49 PM
I had a sudden increase in BP that I associated with situational stress. I'm a smoker not having much success with quitting. Been on Lisinopril for 2 weeks now and am experiencing the fatigue and lightheadedness and mild nausea. I am also experiencing what seems to be nodules in my throat which are spooking me a bit. Thoughts go to throat cancer but my mind runs away with me. Am taken care of by VA doctor but don't think his concern is thourough. 5mg of lisinopril daily. Where are the positive effects?
-- By dannotaro | Reply | Private Message me
November 21th
2005
12:13 PM
After surgery for a goiter with numerous nodules, I was started on 100 levothyroxine and felt fine. Due to too high TSH level (10+), dosage was increased to 150 and I went to the other end of the scale (.45). and the dosage was lowered to 137. Now my GP has reduced to 125 due to fatigue and depression. Have been at that level for 2 weeks and still have some depression and insomnia. Should I seek advice from my endo?? or keep waiting to see if these symptoms subside. It obviously is not easy to wait but don't want to compound the issue.
-- By cosummerour | Reply | Private Message me
July 21th
2005
9:15 PM
I started taking Levoxyl about a year ago for tsh suppression therapy- to help shrink nodules. I have never felt better in my life! No side effects other than losing weight. I lost over 40 lbs in one year (but that was with diet and exercise). I am afraid my ent will take me off levoxyl permanently and i will feel exhausted and gain back the weight. Go for ultrasound and blood tests tomorrow.
-- By dellmcghee | Reply | Private Message me
March 30th
2005
5:24 PM
I have been on synthroid for 18 months. I have always been 120 lbs. Now weigh 136. Way to much for me. My eyes feel like there is sand in them all the time. My hair is thinning, am tired all the time, my finger joints & toe joints ache, have a change in the skin on the front of my legs (skin apprears thicker & a different color, with nodules in a few places around the area), my throat feels thick. Yet my MD says my TC4's are right where they should be.
-- By dmkoenig | Reply | Private Message me
January 24th
2005
2:25 PM
Hi,
I have taken Yasmin off and on for 3 years. I have had depression, alot of crying and erathyma nodosum ?? which is nodules in the lower part of the leg. This is a rare disorder that feeds off of Yasmin. When I am off of Yasmin I am fine. Within the first month of taking the pill I will experience sore upper leg muscles and then within 1 month the soreness will move to my ankles then nodules will become very prevleant on the bones of my legs. The nodules grow QUICKLY even over night. At one time I had 5 and the largest one was 5 inches long. This is EXTREMELY painful and will last up to 8 months from the time you quit taking them if you allow it to get this far. My Dr.'s did not know that the Yasmin was causing this until it was so developed. It was so bad that I had to have punch biopsies on the nodules and set off for diagnosis. If anyone has had this problem please let me know what you did and are doing??
Thanks E
November 14th
2004
4:03 PM
I have been on Levoxy for 2 1/2 years now. I was subclinical hypothyroidism when diagnosed. 8 months ago my doctor increased my dose to 100mcg and my hair began falling out and I had mood problems. I complainded to him and he said that he didn't htink it was caused from the levoxyl because my TSH was in the normal range. IT HAD DROPPED FROM MID-NORMAL TO BORDERLINE LOW ABNORMAL! I had to gradually decrease my dose on my own and since, the symptoms have been better but I am still losing hair. When ever they make a change in doses, my pms is worse and overall mental health. Wish I could go off this med. Does anyone know of a better source? They also found a few nodules on my thyroid which I think is causing the whole hypo thing. Please email with comments to graham4@earthlink.net
All my best!
June 17th
2003
6:20 PM
first Ihave had a pain like someone poking their finger in my throat half way down the first near the middle then I went off and when i wnent back of I had a pain in that same spot...I was told I was taking it to shrink nodules but it reallly bothers I will goback to the doctor again sho uld I ask him for a natural product??? by the way I had a sonogram and it sowed two medium modules and one large which could be cancer went to another doc who read the sonogram and he should htere are only multiple nodules and w3e will only watch them for a year....so figure that one oout
-- By helene8231 | Reply | Private Message me
Synthroid (9) Levoxyl (5) Yasmin (2) Topamax (2) Advair HFA (2) Keppra (2) Ambien (1) Lisinopril (1) Navelbine (1) Zocor (1) Mirena (1) Femcon FE (1) Flomax (1) Lithium Carbonate (1)
October 12th
2009
5:47 PM
I have had Mirena for 1 yr and 5 months. The insertion was not painful that I recall, although I have had 4 kids, so I hear that may make a difference.
-- By lauralove11 | Reply | (1) replies | Private Message meI loved this IUD for the first 9 months or so, then started noticing things that I didnt know were attributed to Mirena until I started reading about others experiences. Bleeding and spotting were minimal at first, no biggie.
I stopped having my period at all around 6 months...haven't had a period in a year..and had spotting maybe 3 times total. Since about 9 months into Mirena....I have had cystic acne. (which I didnt know existed until mirena) I had never had a blemish on my BACK in my life! Also on my face, around hairline, and in my ears, on my neck, and hard to get rid of. I have noticed little cyst like nodules in my neck and the back of my head, behind my ears, like swollen lymph nodes but they come and go...never noticed this before. Have had a intermittent mysterious sharp pain in my side, like a side stitch, comes and goes, and feel it during sex. No doctors had a clue about it. I have been very tired lately the last 3 months and I am on a stimulant for ADHD, so I should not be tired! (also why I haven't gained weight like others) But most markedly, I have always had a history of migraines, and had auras about 6 times in my life. Normally I would have 3 migraines a month tops.....then after about a year, I would get them several times a week...NOW I HAVE HAD A HEADACHE for 21 days straight, with only about 4-5 headache free days in there. Severe enough that I am taking painkillers and went to the ER, and they did a CAT scan and so nothing. normal. So. What could it be???
I got fed up this morning...after waking up one more day with kids I cant take care of properly or enjoy.....so I took out my IUD all by myself.
Couldn't leave the house to go somewhere with my head throbbing.
Dont want to pay anyone to remove something that has already cost me so much. Just looked at the diagrams, and found the string, pulled gently and viola! It was pretty darn easy! No pain, no discomfort at all. Not a drop of blood yet after 7 hours. Head still hurts but the relief I feel is great. I know I made the right decision to take it out and I wont use a hormonal BC again. I am looking into Essure now.
It works for some people, sure, but don't forget it worked fine for me for almost a year before I realized what harm it was doing to me.
I cant wait to have my skin back and my body back to normal.
Be wary, but it did its job. But I have read hundreds upon hundreds of negative reactions to this. Class action lawsuits getting ready. So be careful,