September 17th
2008
9:57 AM
I've been on 200 mg Lamictal for 2 months now, after 4 month titration up from 25mg; Going off Lithium 900mg titration to 450mg this week. Since 1st day of lower Lithium, all the common Lamictal symptoms went from mild to extreme. Whole body muscle aches (like 24 hours after a heavy weightlifting workout) worse in neck & back/shoulders/calves, bad headaches, swelling in hands & feet, extreme blurred vision, loss of memory, halted speech while trying to figure out what to say, fuzzy. I called the Clinic to simply ask which NSAID (aspirin? ibuprofen? Excedrin? naproxin?) to use to manage the pain. They all freaked and made me come in for a blood test to check Lithium levels. I explained I wasn't "overly" concerned about it at this point, but just looking for a recommendation, and that they may be over-reacting (even though I did appreciate their concern). I also reminded them that I had just **decreased** Lithium when it happened, so I wasn't having a Lithium Toxic attack (I'm well-versed in that, having been on Lithium for 7 years). It didn't do much good to tell them I thought their diagnosis was a little off. I'll find out the blood test results today, but I'm pretty sure I know what they'll be. They also wanted me to see my PCP since it could be something else. Again, the problem was a ramp-up of existing symptoms the next morning after I lowered Lithium (the only change), so I'm conviced everything centers around that. I think they're a little inexperienced with this med. (Lamictal/Lamotrigine) and if they'd just read this blog they'd probably learn a lot. They had never heard of the muscle ache side effect. Pretty hard to believe after reading all of your comments! My theory is that Lithium was somehow holding back the side-effects of Lamictal and now they're expressing themselves more fully. I haven't read anything like this on any internet discussion, so maybe my body is very different. But maybe my experience will give someone else some insight in a similar situation.
I might also mention something that happened to me I have only seen (kinda) in one other "blog" about follicle (sweat gland) cysts. Yeah, I definitely got the jawline acne starting at the Lamictal 50mg level & increasing at 100mg. But I also got my first ever "cyst" that concerned me and sent me to my dermatologist for the first time in 30 years (I'm 47 and saw the old guy when I had acne at 17!). It started as a blind pimple on my chest the week I increased Lamictal to 200mg (final dose), but didn't go away. It continued to grow (not diminish) over 4 weeks to 3/8 inch round/pink/solid/itchy/burn-when-rubbed. So off to the "Doctor" like my father used to do on a regular basis (I know I'm getting old now) and scalpel/pop/stitch it was out. But it was real, not my imagination or hypocondria, and the timing of its appearance was right when Lamictal changed to full steam. Since acne appears to be a common effect with so many, it seems it's not unreasonable that this occurs occasionally as well to others. Let me be the 2nd to mention it. No "official" verification, but....
I'm not bagging on Lamictal, and have been very hopeful that this would be better than Lithium. It has eliminated the GastroIntestinal problems I had on Lithium, but I am getting discouraged that it has all the brand new symptoms that are discussed in this blog. Your "stuff" is real. I wish the Docs/Nurses/Case Workers would spend 5 minutes checking your comments out. It might bring about a better informed conversation than the shiny Glaxo flyers provide. That is all.
August 31th
2008
2:53 AM
My wife has been ill and was recently diagnosed with a sinus infection, upper respiratory infection, and middle ear infection. She was prescribed Avelox, along with a combination of corticosteroids, a NSAID, and another medication.
Today was her third day, and LAST day of taking Avelox. The adverse reactions began yesterday when she began complaining of body aches and dry mouth. After waking this morning, she found that her entire neck was swollen, stiff, and sore to touch. We believed that this problem was probably glandular, caused by the sinus drainage, and we expected it to subside through the day.
As the day went on, she began to feel fatigued and the soreness continued to increase, escalating to tenderness and a physical pain response to touching her neck.
She took her third dose of Avelox at 9 p.m. and the reactions escalated from that point. Within an hour she felt her lips began to tingle with a numbing sensation, and believed that her tongue was swelling. She also began to feel the soreness and pain spread across her body, extending to her abdomen, arms, and legs.
Luckily, I have a significant amount of medical and emergency response training based on my career, and was previously a pharmacy technician. On top of that, I'm blessed with a father who is a DoctorPh. and has spent over 20 years in hospital pharmacy. I recognized the signs of these reactions and called my dad. We agreed that the Avelox was the problem and gave my wife 50mg of Benadryl.
It is now 1:40 a.m., and the effects are still ongoing, however they appear to be subsiding. In total, my wife experienced: muscle and joint pain, stiffness, numbness and tingling of the entire body, swelling of the tongue and neck, gastrointestinal pain, nausea, body chills including uncontrollable chattering of the teeth, an epidermal pain response to any physical stimulus (even the slightest touch), and also another reaction that I have not seen listed anywhere else -- her entire lyphatic system seems swollen and tender. You can actually feel the swollen nodes across her body (neck, arms, legs, etc.).
I am very thankful to have found this sight. I am sorry that so many people have experienced similar effects, however their stories have assisted me and my wife extremely. Our physicians office will definitely be receiving a complete and detailed account of the experience with this drug. Thank you again!
-- By bebowebb | Reply | Private Message me
July 20th
2008
11:39 AM
I had bladder surgery and was given levaquin 500 mg. I took 1 pill when I got home that day and my entire face was swollen and I was also sweating and definitely couldn't even think of falling asleep. My mind was going crazy and to try to tell you how I felt it was kinda like I was in someone elses body looking through their eyes, it's the weirdest feeling I have ever had, I didn't know that it was the medication at first because I just thought I was feeling bad from the surgery and them putting me to sleep. The next day I took another pill, same thing felt really really bad, got up on the third day went to work and left in an ambulance. They told me it's because of this medicine and what's in it. I still feel really weird and typing this letter is killing my wrist. I don't know why because I am on the computer a lot before all of this and never a problem. I wish I knew what was going on with me. I feel like I am going out of my mind, and my swelling is no better. My husband even ask me if I took my lasix and I already did and still swelled up in the face. Any feedback would be great. please help.
-- By roseann | Reply | (1) replies | Private Message me
July 3th
2008
7:30 AM
I am 24 years old and I had a pulmonary embolism last month. I was on the birth control YAZ for only 3 months, and that's what doctors seem to think caused it. My insurance only paid for me to be in the hospital for three daysand I was sent home with lovenox shots and Coumadin pills.
One month later, my INR is still unstable, fluctuating so much that they are checking it twice per week. My dosage is constantly changing. I have a red, painful rash on my buttocks - it hurts of sit for more than a few minutes. I am losing clumps of hair. I have lost my libido. I am very irritable and snap at my husband several times per day. I have a headache almost daily and frequent nausea.
I hate these side effects!
-- By sigmachideltachick | Reply | (6) replies | Private Message me
March 28th
2008
6:43 PM
I'm a 35 yr male and have been dealing with depression/anxiety for years due to current & past issues in my life. This post IS dealing with singulair side effects but want to give some history as to why I think it's singular and not something else. For the past 2 or so years I've been using xanax which has worked fairly well in controlling my anxiety, but my doctor preferred I stop taking it because of it's potential for abuse. I've been on SSRI's before and I hated them, so I did some research and decided to try wellbutrin which works differently from the SSRI's. I was still using xanax while ramping up on wellbutrin the end of February. To my relief, the wellbutrin started working wonderfully - felt like I could cope with life, increased energy, better mood, with no negative side effects (actually some positive ones) - the only problem I was having is I traveled during this time frame and developed a bad case of sinus rhinitis due to the climate changes. I've had chronic sinus problems my whole life so it's no surprise. I tried most otc meds and nothing was helping. In the meantime I was feeling so much better (other than the rhinitis) that I decided to start tapering myself off the xanax. When I got to the point where I'd stop taking the minimal dosage I would start getting physical withdrawal symptoms (headaches, dizziness, etc) which is fairly common after taking for a prolonged period of time. The side effects were strictly physical - no excessive anxiety or psychological craving My sinuses were still really bothering me so I had two reasons to visit the doctor - try to get something to relieve my sinuses and to get a short supply of a benzo with a longer half-life to ease the withdrawal from xanax. The doctor gave me a prescription for a month of diazepam and 9 weeks of singulair samples. That was 3 weeks ago. I immediately begin using the singulair, but still had some xanax left so I decided to continue on a minimal dosage and use it up before I went to fill my rx, which I just started several days ago. Coinciding with when I started taking the singulair, all the positive benefits I was feeling from the wellbutrin just suddenly stopped. My depression and anxiety came back worse than they were before - another persons post describes the change in me: feel very anxious, fearful, reclusive, depressed, that everything is going to go wrong, or is always wrong. I'll have extreme anxiety about small everyday things. I’m unable to concentrate. I've also become more irritable, argumentative, and aggressive. I have difficulty falling and staying asleep. I also experienced a very noticeable decrease in sexual energy after a very noticeable increase which is a side effect of wellbutrin. I can even understand the rationale for suicide just to be free of this emotional nightmare - not that I would do it - but can understand it. I couldn't figure out why I went from finally feeling good about life to suddenly feeling worse than ever before. I guess I didn't realize it right away because my sinuses were much better, but I know these symptoms began occurring very shortly after I started to take the singulair. I was trying to figure out what was going wrong with me and yesterday I did a web search on 'singulair side effects' (since it’s the only variable I could think of that changed within that time period) and came across this site and several similar ones. It blew my mind how many people were talking about the exact things I was feeling. Yesterday was my last dose. Does anybody know how long it takes for this crap to work its way out of your system after 3 weeks of use???
-- By detersde | Reply | (2) replies | Private Message me
February 3th
2008
5:16 PM
I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.
Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.
I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.
I have not been able to return to work and worry about the long term implications of this.
Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.
I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.
-- By fiona | Reply | (6) replies | Private Message me
October 25th
2007
7:59 PM
I had the Mirena inserted in March of 2007. I was required to sign a release form before they would insert the device. That seemed very strange as no other birth control method I have ever used required a release form.
My former OBGYN Nurse Practitioner had no experience implanting the Mirena into a woman that had not yet had a baby. But she went ahead and did it anyway. It was immediately painful. I cried while it was being inserted. The Nurse gave me an NSAID and sent me home. I wallowed in pain for several days-to the point of screaming and crying at the same time. I called her to ask for something stronger. She told me just to take some Tylenol. For those of you who have had the Mirena, you KNOW it's not the type of pain that can be solved with Tylenol. She is a QUACK. Her name is Leda Riley at the Women's OBGYN center in Cookeville, TN. Yeah, for your sake, NEVER go to this woman. She does not listen nor does she care if you are suffering.
I actually had to call my general physician, who is much more understanding. She prescribed Tramadol (which makes me itch, as it is a narcotic drug) and also 600 mg tablets of Ibuprofen (which are hard on my GERD). But these worked a heck of a lot better than tylenol.
Before the Mirena, I had perfect skin-the type that looks airbrushed in a magazine. Now, I have redness, acne, blackheads and boils. My dermatologist has tried everything, including spot treatments of super strength benzoyl peroxide (10% and higher) to rid me of the acne. Nothing works.
The hair is another thing. There are these inch long hairs growing like mad on my neck and chin. I actually have to shave, cut or chemically remove these hairs. I had no such hair growth prior to the Mirena.
My moods swing wildly and have led to obsessional thoughts. My anxiety is so horrible that I have had to be put on Zoloft. This is really difficult for me, as I am a student Mental Health Counselor. In other words, I know what is going on-the contraindication between my body's hormones and natural chemicals to this Mirena.
Also, I have gained nearly 40 pounds from the Mirena. I don't eat much. We're talking 2 rice cakes for breakfast with water; no lunch and a kashi meal for dinner or a similar low carb dish. I don't drink sodas. I don't eat high carb foods. I don't consume mass amounts of sugar. Then, I look at the rotund version of what used to be my beautiful and curvy figure in the mirror. What I see makes me so upset that I just cry.
I know that what is going on with my body is wrong. You can feel it way deep down on a level that seems so basic, so subconscious almost. With the 3 week long periods, followed by spotting for another week, then back to the period---I am ready to have my old period back. In fact, I WANT it back. I don't care, just so long as I don't have to wear damned tampons any longer than 5 to 7 days per month! (Can I get an Amen?)
This was originally supposed to prevent pregnancy (although I have had one ectopic pregnancy with this thing already). I had good intentions, but this is horrible. If you look VERY closely at the patient info on the Mirena, you'll find out that the researchers and developers of this IUD have absolutely no idea how this thing really works (hence the release form?).
If you do decide you want to get the Mirena, please read the blog spots about the real deal behind this thing. There are other options with much less pain and change. Think very hard and remember that no matter your decision, there are hundreds of women supporting you everywhere.
July 9th
2007
11:24 AM
I just recently found this site and am very thankful I did. Has anyone ever even heard of someone being prescribed 1000mg oral prednisone for 7 days, followed by 500 mg oral prednisone for 7 days for a one day occurance of optic neuritis. It happened to my father and he died 3 weeks later. I would appreciate hearing from anyone who can help me make sense of this dosage.
-- By 47140 | Reply | (2) replies | Private Message me
January 14th
2007
3:32 PM
I am taking Topomax for migraines. I always start everything at a really LOW dose since I have a lot of probs with side effects. Started at 15 mg and went right away to 30mg (15mg twice daily) the second week because I was dying from headaches. The other antidepressants prescribed for constant daily headache prevention all of a sudden weren't working. I didn't want to take my abortive med for migraines every day (Amerge) so I was curious if Topomax might help my daily headache pain. Possibly my daily headaches had become migraines... so hard to tell one from the other anymore. I teach exercise for a living and so much of my headache pain is exercise induced. I found that while on topomax, all of a sudden 2 Advil would take away a headache I would get after exercising which never happened before. I would take two Advil before doing some of my hardest exercise to prevent a headache and for the most part that worked too... and that never worked before. I had tried all kinds of NSAID's before and after exercise at the advice of my neurologist to no avail. I did have one diffuse headache yesterday that might have been a true migraine and I took Amerge because Advil didn't help. I have been on the 30 mg two week now. But, now the downside. Since on the 30mg I feel like my chest is heavy a lot of time when I do water exercise... I am exhausted a lot doing my usual routines... I feel edgy, can't sleep well at night. I HAVE to have a two hour nap after teaching in the morning or I can't function mentally or physically. I sleep well for that nap time. Seems like I have thermoregulation problems. I teach water exercise and if the water is a little cold it bothers me and it never used to. Then in the pool awhile I feel hot. Same when I sleep.. I need a lot of covers, then I throw them off. Then they are on again. No I am not menopausal yet. My brain is hazy on topomax as well. I take bellydance lessons and sometimes I realize I can't remember what my teacher just told me. Now people reading this, don't think that just because this happens to me, it will happen to you. I know people who LOVE topomax with zero side effects. They don't tend to write in to posting boards. Also, sometimes side effects go away. Be patient if you want to give topomax a shot. I am thinking I am going to go back to 15 mg again... and see how I tolerate that. Because I teach exercise, the hardest thing is to feel the heaviness in the chest and the lack of ambition. This is not me. It is great not to have the headache pain, but I don't know if this is the drug for me. I was excited about the "losing weight " side effect , and I could see how skinny people who lose their appetite easily might be affected, but it takes a lot to stop me from eating LOL darn! I did read in another chat some poor chap had sinisitis for months and took TONS of antibiotics before finding out Topomax gives sinisitis type side effects in a small amount of people. So if you get sinisitis, don't take antibiotics before checking out if topomax is the culprit.
My heart goes out to every person out there trying to find the magic bullet for their headache, siezures, whatever... ADVICE.. .start with SMALL doses... you may be able to get used to side effects if you work up slowly in ALL drugs. In many drugs that didn't come in small doses, I took out 3/4 of what was inside just to get a mini dose. Ask your doc if you can mix one capsule or one pounded up tab of your med with juice and store it in the referigerator. You can drink say 1/8 cup a day of the juice to get 1/8 of a capsule. It is a lot easier than chopping up a tab into eighths. Also ask your doc about childrens doses that come in liquids with droppers. Topomax makes taking smaller doses easy with the sprinkles.. you are encouraged to open the capsule and sprinkle as little as you want on food. Good luck all. L.
-- By lisa1362 | Reply | (2) replies | Private Message me
May 15th
2006
1:21 PM
I have been given Kenalog twice..once at the Emergency room and once at an orthopedists. The first time I got a shot it just made the pain worse. I told the doctors at the orthopedists and they did the same exact thing even though i said it makes it worse. Ive taken evry NSAID known to man for pain but nothing helps. What should I do? Dr. hardly ever prescribe pain killers and would rather you suffer than take the chance of the pain killers actually working. I cut my hands bad thr vicodin i was given for the pain made my pain in my arm disappear, but i cant just walk into the doctors n say i want vicodin cuz it helps can i?
-- By jbickford | Reply | Private Message me
March 27th
2006
10:22 AM
I am a healthy,active 25 year old woman. Here is brief discription of my experience with the drug.
About 2 weeks ago, i was seen in the Er for a kdney infection, they immediately startedm me on IV levaquin, as well as an oral dose and an NSAID (which can cause a severe reaction). I was not given much literature on the drug, and the pharmacy printout was BLANK. The only warning I recieved about this medication was drug interactions (which they gave me in the hospital) and typical allergy stuff. They mentioned nothing about joint pain, or any of the other horrible effects of this medication.
3 days later I naoticed a little pain in my knee, and my back hurt. I thought nothing of this because I have had a previous minor injusry to that knee, and just thought it was another flare up. The next day, the pain was in both my knees and my ankles. I didn't know what to thiink.
I then researched the symptoms, and was shocked that the medication was causing this.
Now my right arm is pretty much useless(too much pain in my fingers,elbow and shoulder) And I have suffered a TIA (which is a mini stroke) No ease in the pain os of yet, and I just hope that I live throught this.
-- By taojkd1 | Reply | Private Message me
September 8th
2005
6:01 AM
I was prescribed Mobic for shoulder pain in April 2005. I am a gastric bypass recipient and therefore should not have been prescribed anything in the NSAID's department. As a result, the Mobic adhered to the inside wall of my stomach pouch, created several ulcers, and caused severe stomach bleeding causing me three hospital stays and having to receive 4 units of blood. I think all physicians as well as the gastric bypass patients themselves should be aware of the damage NSAID's can do to their stomach pouches.
-- By gaoaks87 | Reply | Private Message me
July 22th
2005
3:31 AM
I have been on Prednisone for a year and had most of the side effects already mentioned. At Christmas I started to get an ache in my rib area when ever I lay down and if I turned over to my other side the ache would fall to that side, the only way I can explain the feeling is, my lungs felt too large for my rib cage..and then the ribs felt tender. A few weeks later I sneezed and a muscle in my back went into a locked spasms and I had to have oxygen to help me breath.
Over the months I still had this strange tenderness in the rib area, a chest x-ray showed my lungs were fine...now this tenderness has worsened and my muscles go into spasm as and when they feel like it...My doctor says it is inflammation of the muscles between the ribs and has changed my NSAID without any results so far...has anyone else had these symptoms ? I'm on 5mg a day now from 15mg for Atypical rheumatoid arthritis.
-- By trulee | Reply | Private Message me
June 30th
2005
7:27 PM
Hi:
I received a kenolog steriodal epidural shot in my neck for a C6C7 hernaition with level 10 pain that could not be assuaged by any NSAID, or even oral streroids. The impingement of pain from the bulge onto my spinal cord was debilitaitng and casuing nerve damage. So, after two months of agony, I went for the cervical epidural. Ten dyas later, I have been menstruating non-stop for two weeks, even though I had just finished a period right before the shot. Good news, the shot worked for the pain, for now, the pain is gone. But I am bleeding constantly. So, a tough trade off.
Mobic (2) Warfarin Sodium (2) Levaquin (2) Kenalog (2) PredniSONE (2) Naprosyn (1) Avelox (1) Topamax (1) Lamictal (1) Loestrin 24 Fe (1) Mirena (1) Singulair (1)
September 19th
2008
8:48 PM
I'm 23 and have been on Loestrin 24 for about a year and a half now. For the 1st month I was on it I was feeling really sick as if I was pregnant having morning sickness so I called my doctor and she said its takes about a month to get in your system so I should continue taking them, well after that month went by everything was great I got my periods on time every month they were longer than normal but I was fine with that, the pill even made my hair grow but about 2 months ago my period came but I was spotting for a day or two then last month I didn't have a period at all and I took a pregnancy test and of course it was negative but now i'm starting to get scared because since I started my period at the age 12 it has been normal and now all of a sudden it's gone and I know i'm to young to not have one at all, can anyone let me know if there going thru the same thing and what I should do. Oh yea I'm also experiencing the lack of sex drive my fiance thought I was cheating on him and was more interested in the other person (That doesn't even exists) LOL
-- By mya | Reply | (1) replies | Private Message me