Nuerologist symptoms and conditions

So I just read through a few of these and have to admit a similar story. I am 26 years old and have hereditary high blood pressure due to polycystic kidneys. My doctor put me on 20mg at first. I have always been an avid exerciser and after about 3 months on the drug I was in the pool swimming laps and my arms completely cramped up and started spamming, had no control whatsoever. My best friend's dad is a neurologist and his mouth about hit the floor when I told him how many mg of lisinopril my doctor had prescribed. He immediately cut my dosage in half. My symptoms have still progressed and I am officially stopping taking it because I have had heart flutters and palpitations that would scare any normal human being into thinking they're dying. I also have the shortness of breath, dizziness, numbness and tingling in all of my limbs, odd pains I have never had before in the most random places such as my forearms, calves, abdomen, and I feel like I have arthritis! NONE of this EVER bothered me before I started taking this medication and it has taken me months to actually come to the realization that these are not signs of aging or fatigue. I'm a healthy 26 year old female who exercises on average 5 days a week with low-fat high fiber diet. Point of my story: this drug claims to be the best on the market, but something tells me the doctor's push is coming from pharmaceutical endorsements!!!! Beware of the poison.

If I were you , I would have it removed ASAP. I had the Mirena for 16 months and I had every symptom you can think of. Depression, mood swings, bloating, back aches, severe headaches, 20lb weight gain, and high blood pressure. It had gotten to the point where I even had to go to a neurologist to get cat scans. All test were negative and I took it upon myself to have the Mirena removed. Literally 2 weeks after I had it removed I lost 10lbs without exercise. I have lost 5 more lbs since then, that was March 17, 2009. All of the symptoms that I had have went away. I feel like a different person. I checked my pressure last night for the first time since I've had it removed and it was 117 over 70. this is a great blood pressure, this is without taking any medication. With the mirena it was running around 140 over 100.

I have had pins and needles feeling in my fingers and toes, pretty strong too, I've been on Topamax before so I knew what to expect, I've had the loss of appetite and the soda tasting flat, as well. Some confusion with words, not being able to put together a complete sentence, like you know what you are trying to say but it's not coming out correctly. There may be times where you are somewhat staring off into space. My neurologist explained all of the side effects to me before prescribing me drug but also gave it to me as sor of like a ladder, to where I could build up to it so the side effects are not as bad, I went from 25 mg 4 night to 50mg at night for 4 night, then 75mg for 4 nights now I'm on 100 mg at night, so I've gotten used to it again, I still get the pins and needles and the confusion but if someone is considering taking Topamax, ask your doctor about trying to build up to it first by doing 25, 50,75 then 100.

I am a 27 year old female and have suffered from migraines for 10 years. My neurologist prescribed 12.5 mg for the 1st week, 25 mg the 2nd week, 37.5 mg the 3rd week and 50 mg by the 4th week and then we will re-evaluate on the 6th week. I am on my 2nd day and have experienced a few side effects.....tingling in my arm and lips, frequent diarrhea, carbonated drinks taste flat, trouble typing/spelling and a burning sensation in my eyes. My arm also feels heavy and dead. I am willing to give topamax a try--I can't stand living with my migraines! I think the most bothersome side effect is the inability to type/spell correctly. Hopefully with time, these effects will subside. Wish me luck! (hope I spelled everything correctly!)

Here is a update on my condition since last posting, please keep in mind that prior to 7-15-08 I was totally normal.I have recently found out that I have Psoriatic Arthritis,Fibromyalgia,COPD,3 bulging discs in my back and also Bursitis in Right hip.All from Levaquin! I also was the one that put 2 & 2 together and talked it over with my PCP and now I have a Rhuematologist,Lung DR,Neurologist and I am currently seeing a Pain Management DR.I had my 1st.epidural injection yesterday for the bulging discs and will have 2 more and see how it works.I am beyond being frustrated and I do not know what the future holds for me.Some days I wonder if my life will ever be somewhat normal again.Take care everyone and god bless us all,,,,

I just started taking wellburtin sr, ive have seen a neurologist in the past for headaches that I get in the back of my head on the left side, the doctor said it may be Hemicrania continua, been off and on diff meds for a while, anyway also have depression , was off meds for about year or less , and now am on Wellbutrin sr 150 mg for about 2 weeks and have been getting the pressure in the back of head, not sure if i have hemicrania continua, the pressure is dull , does anyone have some insight on this

After fighting heart failure for a year my heart function is now normal. The entire time I was on COREG I felt HORRIBLE. No one listened to my concerns about it... Well now that I am off ALL MEDICATIONS I am still having problems. The doctors all said it was in my head until a neurologist saw that I was having seizures! Odd that my seizures feel exactly how I felt when I was upping my dosage of Coreg! Now that I survived heart failure I have to deal with seizures caused by COREG.. What a nightmare.

I started taking Topamax 3 weeks ago. My Neurologist started me on the 25mg dose and gradually moved me up to the 75mg dose. I've had several different side effects. I don't like this medication at all. I want to stop it but I'm afraid because all the web sites say when you stop it you can have seizure's. I have suffered the last 3 years with everyday headache's and would do anything to have relief but cant stand the way this medicine is making me feel. I have felt nausea's for day's. My 3year old has ate more than me. I cry over anything. I'm tired! I've had a headache everyday while on the med's. I have a nasty taste in my mouth. My vision is impaired. I definitely will not stay on this medicine. I would rather deal with my Migraines, then to deal with Migraines and side effects!!!

I had Mirena in for 3 1/2 years. The first year was basically a fog. I started spotting, moodiness was ok, bad acne. The next 1 1/2 years I experienced light bleeding, acne , slight dizziness, some fatigue. On the third year that I was on mirena that's when things began getting worse. Around a month after my 38th birthday I started getting really bad symptoms. The worst part was the Dizziness. I got severe headaches, major dizziness, moodiness, less patience with everyone, weight gain, increased appetite, depression, fatigue during day, nervousness, panic attacks, some hair loss, bleeding gums. The dizziness was the worst. I would get panic attacks along with the dizziness. This especially got worse around time of period. I noticed just before I was scheduled to get my period I would get these crazy dizzy spells and anxiety. I have had numerous test and gone to Cardiologists, Nuerologist, Gyno. The gyno's are the worst. They deny that it is the mirena. However, I have been doing some research by myself and have come across many websites like this one. Most of the women who have been on Mirena have had the same symptoms that I have had. The one symptom that I did not here of was bleeding gums. During my pregnancy I noticed that I would bleed when brushing my teeth. Of course this is normal because of hormones. However, about a year after I gave birth to my daughter my gums were still bleeding. I was on mirena for about 6 months already. The dentist had me go in 4 times a year, because he was concerned. They thought it was bizzare that I had this promblem at 38, Wanted to know if anyone else experienced this? Also, wanted to disclose that in the early years of mirena I was taking Prozac. Around the second or third year of mirena I started to be a little forgetful about taking the prozac daily. This may be a reason why my panic attacks came on strong around third year.

I had been taking Lipitor for well over six years to help lower my Cholesterol count with no know side affects. A problem developed about two and a half years ago with nerve damage that gave me excruciating pain in my shoulder and arm. After an MRI and three cortisone shots I was referred to a neurologist for help. He had no idea what was causing the problem.

About six months after many doctors could do nothing for me, and referring me to a physical therapist, my wife showed me a story in a magazine, which I can no longer find, that talked about problems with Lipitor that had not been properly documented. The article talked about exactly the side effects I was having. The article said there was a problem with nerve damage. It had been well documented that some people had muscle problems, but it was not know there could also be a problem with nerve pain.

I contacted my doctor and stopped taking Lipitor. Two months later, the pain just disappeared. The very day the pain ceased, I had a visit from a good friend of mine who is a Radiologist and who had studied Lipitor because of a problem he was having.

He explained that Lipitor was doing the job it was supposed to do, namely keeping the liver from producing all fats. The problem I was having was that I had injured a nerve and Lipitor was keeping the liver from producing a particular fat needed to help heal that nerve. It seems that the myelin sheath around the nerve needs that fat to help the nerve heal itself, and Lipitor was preventing the production of that particular fat.

Once I quit taking Lipitor it took about two months for the healing fat production to do it's thing. Recovery of the nerves in that arm has been very slow, but they do seem to be healing now.

I thought this was such an important finding that I notified all the doctors I had seen about this problem. To my great surprise I heard from no one. Not even a thank you. I guess that since they didn't find the solution, they just were not interested.

I hope this discussion helps someone else. Thanks for listening.

My 5 year old son was having problems constantly with his seasonal asthma. His Dr. put him on Singulair and after about a week he made significant improvement and could even run and jump on the trampoline again and then on the 2 week mark, every morning he would get out of bed crying with severe leg pain in both legs and then he went from my sweet spirited, always sharing his things, wanting to play with everyone and make new friends, to cranky, moody, whiney, selfish and sleepy all of the time. He then started complaining of dizzy spells with vision changes such as not being able to see at all when he gets dizzy. His doctor said he needs to see a neurologist but I think it is all caused by Singulair and the doctor made me feel like a bad mother for wanting to take him off of it. he said the side effects would pass. This morning I watched a couple on the news who's son committed suicide after starting Singulair and they were talking about the mood changes, etc. I took all of my sons Singulair and threw it out. Now, I feel like a bad mother for letting the doctor talk me into keeping him on it. I am hoping that he gets back to normal within the next couple of days and I can cancel the appt. with the neurologist.

I'm glad I found this site. My OBGYN put me on Yasmin.. This is my first pack. I stated it on the first day of my period, that was more than a week ago and I'm still bleeding. The bleeding is also irregular, I used to have 3 sometime 4 day periods. Now I don't bleed at all at night, I have cramps all day and massive clots with sometimes no bleeding in between (never happened before). Should I wait and see if things will change? or should I get off this pill asap. I've been on other birth controls before (marvelon) and that was two of the worst months I had ever experienced...

I have been on Yasmin for 4 years. I switched from Ortho-Tri-Cyclin because the massive weight gain. I have had no visible problems with Yasmin until recently. I have not gained any weight, but I work out 5 times a week. Now, after reading other posts, I realize that I have had many of these problems. The past year or so, I have been crying for no reason at all. I have been extremely tired no matter how much sleep I get, a loss of sex drive ( which is hurting my relationship), very painful sex, and have had respiratory problems. Over the past couple of months, I have had severe gas, which has never been a problem before. It is painful. I have had very bad TMJ for about 2 years now. I have never had any problems with my jaw before then. The pain is on my left side. I just read some of the side effects of Yasmin, and left-sided jaw is one of them. I am going to talk to my Gyno about switching at my next visit. Has anyone else experienced this? Does anyone know why this happens?

HI I am 61 and took one puff of Advair and the joint pains that night were bad. I took it for three days. Three weeks later it is still very bad. about a 8 or 9 on the pain scale. I am weak in the joints and stiff. I would like to know if anyone had it like this and if it went away and how long did it last. Excedrin works the best, have a prescription for the night time but it does nothing so am using aspirin also.I called the company and they contact the fda also. The mornings are the worse because nothing lasts at night and I don't know why. I can hardly walk and get ready for the day and around 7 at night I get so cold and shaky. Has anyone had it this bad and does it stop. I don't know if the doctors even believe me. I do have a appoint for a arthritis doctor, but not until feb and the blood test I have had so far say there is nothing wrong.

I'm on my first month of Topamax and going to work for the first time in two weeks! Someone mentioned feeling like a box of rocks on this stuff, its true, but in my case the dosage increase might have been too abrupt. I take it for epilepsy, 100 mg. I was completely non-functional during the transition! Not only was I so tired I couldn't move, so sick I couldn't eat (I've lost a lot of weight), but I was constantly dizzy. I would often get icy to touch and pass out, mores after eating.

Cognitively, I was severely depressed, and had a constant "noise" sensation in my head which I started yelling at during odd moments. I believe I even hallucinated at one point that the room was expanding. Mostly, people thought I was stoned because I would just stare at the wall and have difficulty talking to them without slurring my words.

It's been a truly terrifying couple weeks, however I've settled pretty quickly out of the major side effects. I think thats pretty much what happens for everyone. I'm happy to have my brain back.

Hi, my 14 year old daughter was prescribed Topamax about 6 months ago due to migrains that started when she had Mono. The mono lasted a good five months and the nuerologist to whom we were referred prescribed Tomamax after nothing else worked.

This morning as she was leaving for school, she said " I will take Aleve twice a day for the rest of my life, the Tomamax has made me stupid and I can't take it anymore!" With that my beautiful, brilliant daughter was out the door.
I am sick that I didn't look into this drug sooner. I found this site and am floored at all the side effects that sound exactly like hers. She has always been an A+ sudent who works hard, she lately has been saying she feels dumb, can't remember things, her knees hurt, her hair is falling out, she can't think, she is depressed etc. I have been downplaying her symtoms and blaming it on the mono. I am outraged at the craziness this drug has obviously caused and my failure to recognize the cause.

My questions now are, can she quit the Topamax immediatly and when, if ever can she expect her cognitive ability to return?

Please tell me the effects are not life long and what my next step should be to help relieve her of these symptoms.

Peace, Becky

Started on Topamax about 3 months ago. Taking for visual seizures from scar tissue due to gamma knife on an AVM that bled.I was seeing all kinds of things like people, dogs, cars, you name it. Doctor first put me on Dilantin (pretty strong dose). It did nothing, and it did not even show up in my blood on a blood test. That was a nuerosurgeon. He sent me to a nuerologist. He put me on lamictal. I took it for one week, and wanted to drive my car over a cliff!!! I was so depressed and I felt horrible. I just stopped taking it. Then he put me on Topamax. I take 100mg. Soda is bad. I do miss my diet pepsi. I lost 30 pounds ( this is a benefit). My brain is fuzzy at times, and I can go to introduce a family member, and not even remember their name for a minute. I have trouble with urination, actually starting it. Sometimes I lose my balance, and bang into things. I get stomach cramps once in a while.However, all the people, dogs, cars, and "unwanted" visions are gone. So, I guess it is worth it. I wonder if I will ever like Diet Pepsi again. Also, now eggs and chicken are really starting to gross me out.

I had been taking topamax for 4 years for complex migranes and then stopped cold turkey after feeling like there was a tight band across my waist and watery diahrea and soreness in lower back , burning itchy pain..... went to the emergency room 14 times for them to tell me that I was crazy. I had a feeling like water was running in my head, normal cat scan of brain. water feelings throughout body... they still come and go but last a couple of seconds.... feels like sensory or nerve damage of some kind.... don't know if this is a side affect or not..... Doctor finally is getting something done. she checked my heart becasue I have MVP... and I am shedualed to get a mri of brain... I have a herniated disk in lower back, scoliosis, degenerative disk disease.... nuerologist checked for nerve damage due to herniation. won't hear back anything on that till after mri of brain. won't hear back about the heart till april.... Just found out that I am borderline hyperthyroidism... and the doc is sending me to a specialist. thyroid is inflammed and big.... My bones are crackly and pop alot and sore.... The water feeling and burning and tingling hands and feet scare me alot but I try to not think about it... Try to stay positive.. I am only 29.... I feel like I am 70 sometimes...... Does anyone have these symptoms after taking topamax...????? Yes I do have the thinning hair but that could also be the thyroid... and fatigue... problems sleeping and hot flashes. palpatations..... any help would be nice... Thank you,,,, love and light to all, jess

I just wanted to follow up to my earlier posting. (I have copied it below). Turns out the side effect was not from Yasmin. Actually caused by a nerve. I wanted to post a follow up should anyone be scanning this site.

I started taking Yasmin in July. I had taken other traditional birthcontrol pills for years. Decided to try Yasmin as my OBGYN suggested it may help with weightloss as I was having a really hard time losing weight despite diet and excercise and ruling out other issues. I have not had the side effects such as anxiety and skin pigmentation that others mention. It did make my periods heavier and more cramps. Cramps mostly went away with ibuprophin.

However, I have been having a symptom that I am wondering if others have had. I have been to my primary care doctor, orthopedist, nuerologist, vein specialist, and no one can seem to find the issue. I am now wondering if it could be a Yasmin side effect. Since mid July what started out as a tingling (almost numbness) in my upper right thigh. It sometimes feels like pins and needles, other times like a bruise, and other times like a sharp pain. Seems worse at night. But numbress is always there.

I am very interested in hearing what people have to say. I am going to make an appt with my OBGYN to try another pill.

I started taking Yasmin in July. I had taken other traditional birthcontrol pills for years. Decided to try Yasmin as my OBGYN suggested it may help with weightloss as I was having a really hard time losing weight despite diet and excercise and ruling out other issues. I have not had the side effects such as anxiety and skin pigmentation that others mention. It did make my periods heavier and more cramps. Cramps mostly went away with ibuprophin.

However, I have been having a symptom that I am wondering if others have had. I have been to my primary care doctor, orthopedist, nuerologist, vein specialist, and no one can seem to find the issue. I am now wondering if it could be a Yasmin side effect. Since mid July what started out as a tingling (almost numbness) in my upper right thigh. It sometimes feels like pins and needles, other times like a bruise, and other times like a sharp pain. Seems worse at night. But numbress is always there.

I am very interested in hearing what people have to say. I am going to make an appt with my OBGYN to try another pill.

My sister is currently on her 5th month of the Lupron shot. She has had serious, and unexplained complications that her doctors have been dissmissing as not results from the shot. She lost 45 lbs in less than 3 months, has high blood pressure, and recently blackouts. Her first resulted in only stitches, but the second time she was behind the wheel, and almost died. Now the doctors have banned her from driving, and are sending her to see Nuerologist, and Cardiologist for exams. They still say this is not a result of Lupron. Our family tends to dissagree.

Today my 5 year old son's father and I conversed about calling a child psychologist immediately for a "tic" my son has abruptly developed this weekend without warning. I spent most of today crying. He saw the Dr. today, and we are to follow up immediately with a nuerologist to rule out phsical damage. For five years there has been nothing wrong with him except seasonal asthma, and as an alternative to the nebulizer we were given singulair 2 months ago. Who knows, meds, in my opinion only lead to more meds. They are evil. My son slightly jerks his head to one side when he is aggitated. I know my situation is a little different than others I've read here, but maybe someone has experienced something similar.

After two doses, 250 mg, of Levaquin, I could not move. Instead of going to work, I went to bed. Three days later, my husband took me to ER. The first guess was a stroke, because I was so disoriented and could not move. There were specialists all around me. I was tested for meningitis, lupus, West Nile, arthiritis, etc. I had severe body aches and muscle pain.I spent 1 1/2 weeks in the hospital, unable to function. Body pain, no appetite, fever/chills, twitches, weak, very tired. My legs hurt the worst - knees and especially calves. I had no idea what was going on around me. I was incoherent. The hospital staff had me finish the Levaquin prescription.

I spent the rest of the month in a rehabilitation unit learning how to eat, walk, tell time, write, and other mundane tasks. I have been off work since Oct. 7. Mentally, I'm doing ok now, but physically, I cannot walk without a cane. I cannot go up and down stairs. My knees are still a problem. Acid reflux is better. My wrists and hands are weak. If my leg is straight and I bend it, I get a burning pain in my knee ... when I am laying down. When I get up in the morning, my calves are so stiff that I cannot stand. I have to grab the furniture. My hips are weak and have lost bone density. I cannot drive yet. I still get tired easily.

I was normally a low blood pressure person with a heart rate in the 60's. Now, I am taking beta blockers. My blood pressure is beginning to come down, but my heart rate is still high for me, but safe.

The doctors were not familiar with the side effects of Levaquin. I had a sensory nueropathy before Levaquin, but was totally functional. My physician prescribed Levaquin for a sinus infection. She never would have prescribed Levaquin, if she had known that it could attack your central nervous system! (My nuerologist said that "something" recently attacked my central nervous system.) I printed out some of the experiences from this website to convince her to fill out an FDA report. I will follow through with a letter to the drug company and my congressmen. And, I have spent some time educating the medical professionals in our community. I have considered legal action, but I don't know how to go about it.

I have been going to physical therapy. Those therapists can do a lot without drugs. My coordination is improved. I even have exercises to improve my digestive tract. We worked on isolated muscles for two months. Now, I'm trying water therapy. I am not strong, but I have gained coordination.

Two other suggestions for temporary relief: 1) Use a vibrator on your calves in the morning, and 2) Wear support hose/socks.