Objectivity symptoms and conditions

My 5 1/2 year old son began taking 4mg Singulair in the p.m. and an inhaler (asmanex) in the a.m. We were still having trouble controlling the asthma and his Sing dose was raised to 5mg. & within 1 week of the increase he began having terrible facial tics and aggravated behavior (defiant, poor listening, easily frustrated and angered) The tics were in the form of opening and closing his mouth, as if you were trying to clear your clogged ears after a plane flight. This caused him much pain in his jaws and facial muscles, so he would tic and then cry as he was in pain. This ramped up his anxiety and it made the ticking worse. He has been off of all asthma medication (cold turkey) for 5 full days. He has episodes where the tics happen for 10 min -1/2 hr, other times during the day it is one here and one there. He does not want to leave the house to do anything, even his favorite activities. Thank god I found this site (and others like it), as I got some answers and some hope. We went to see my cousin this week who is a neurologist and he never heard of the correlation of Singulair and neurologic side effects like these. He said that (hopefully) the medication side effects will cycle through and resolve the ticking and behavioral changes. If not we are probably looking at a Tic Disorder which is in the Tourettes Family.He put my son on a very low dose of Klonopin to mellow out his anxiety and help reduce the tics, but has only been on it for 1 1/2 days and it usually takes a wk or 2 for full absorption and results.I have since sent him and my pediatrician and allergist links to this site and others. I think that I see some improvement in my son, yesterday I thought he did better and my husband thought it was a worse day, I think we have totally lost our perspective and objectivity on this. If anyone out there has a time frame on when they saw significant recovery and positive changes I would love to hear from you. This is a total nightmare and if it is this drug, someone is going to pay. My prayers go out to all who are going thru this.

I like to live my life with facts, not speculation and drama. My child is on Singulair and doing fantastic. I remember the trips to the ER when I did not know if my child would live or die. Of course when I saw this report, it caused me some concern so I did some research on my own. Did you know that suicide is the leading cause of violent death in New York State, the United States and the world? In 2002 in New York State there were 1,292 suicides which exceeded homicides by 32%. The statistics show that 1 in 10 teenagers plans to commit suicide. The National Center for Health reports a 10% suicide rate in kids 15-24 years of age and 4 male suicides for every female suicide. Suicide is the third leading cause of death among those 15-24 years old.

So now we have 1 child in New York that has committed suicide that just happened to be on Singulair, and it is Singulairs fault? Show me the proof. All I see is one distraught mom who is trying to find blame for her son’s tragic death. Is there only half the story being told, a trend I have noticed in journalism these days. Let’s face it, life happens. I am NOT on Singulair and I have had melt downs, thrown things across the room, been depressed over things, cried, and even for the past week have been having some crazy dreams. I remember as a child putting notes on my room door telling my parents how much I hated them. I remember as a teenager thinking my life would be better if I were dead. I remember my child being cranky and fussy before she was on Singulair, gee maybe she was teething. The term “terrible twos” has been around a lot longer that Singulair. Let’s face it, we have turned into a society of people who always want something to blame. I think it is time people start taking responsibility for themselves and accept the fact that sometimes life just happens. Take accountability for your own lives, and stop trying to blame everything and anything.

I also live my life by reading internet blogs with a grain of salt. These blogs are public forums and places where anyone and everyone can post. How do you know that all these posts are real? Remember the day when kids made prank phone calls for fun? Now they have the internet and can post pranks on these blogs. How do you know that a competitor to Singulair is not posting in order to fuel the feeding frenzy? How about a registered sex offender or a felon in prison? There are a lot of “sick” people in the world and yes, they have access to the internet too. If you are hanging on every single one of these posts as being true and real then I feel sorry for you. The internet provides anonymity and it is easy to create a fictitious identity and a fictitious story. That is probably why if you do a search for “internet safety” you get 15,700,000 hits.

Until I see proof, I am not going to take my child off Singulair. The CDC reports that in 2002 there were 1.9 million visits to the ER for asthma and 4,261 asthma deaths. If I did stop my child’s Singulair, and she died in the ER from as asthma attack, whose head does that fall on? The media?