Oct 31st symptoms and conditions

I had my daughter Oct 07 and got the Mirena in Nov 07, and other than light cramping I had no issues but three months in I still had weight I just could not get rid of from my pregnancy, my hair was literally just shedding horribly.
I have always had a nice thick head of hair and it was all over the bathroom floor most of the time. I had no cycle pretty much and I wasn't complaining about that at all. However, my moods were darn near psychotic.

Well Oct 31st 08, I had the Mirena removed and viola, I am down 12 pounds, my hair is still shedding terribly and my cycle is didn't come back until December and it was like I was hemorrhaging and I didn't care as long as I was getting back to normal, well January 09, I had a somewhat normal cycle and after a normal time period, I started back spotting again this week

I thought the Mirena was the best thing of me because I had no intentions of having another child and I just turned 35 so I was using it to bide my time until the doctors will willingly agree for me to get my tubes tied, but I think the Mirena sucks and they should tell the truth on what the issues are with this thing.

Hi Everyone, I am so happy i found this site. I feel just a little better that maybe this Femcon Fe is prob working the right way. Doctor had told me I has polycystic cysts on my left and right ovary so he put me on Femcon Fe. I am 30 years old and I was never on any type of birth control pill in my life (this would be the first time). I have been on this pill for almost a month now. A month ago when i went tomy GYN he had said that the pill would help stop the bleeding (prior to this I had been bleeding for maybe a month). A few days later I did stop bleeding but a few days before dec 26 I had been spotting (on and off). On Dec 27th I started bleeding (my period i guess), its Jan 5th now and I am still bleeding...and cramping (been cramping everyday). I feel as if I am bleeding a lot, been changing my pad a lot. I don't know if this is because I just started this pill and it may change later or what? I panic so much about things like this...is anyone having these same effects or had?

well im 19 and have had two kids.I have had mirena since oct 31st 2008 and I thought it would be great to not have to take the pill but now im am bleeding all the time . I didn't bleed for the first week but then it was time for my period...oh was it time.i had heavy bleeding for 18 days then it got lighter but it still hasn't stopped it will look like im about to finish then it will be red again and i am so bloted.I had my second kid 3 months ago and I was losing weight. till i got this ,i was 125 and am now 155 i have gained over 25 pounds in the past month and it looks like i am 4 month pregnant. i feel horrible like my body is falling apart. I thought i was depressed and was thinking about calling my doctor.to get something to make me feel better.then i saw this site. i was looking for any answers on if its normal to bleed this long. I also noticed i was very irritable my 3 month old is the happiest baby ever always happy never crys kind of baby. I find my self so stressed and irritated i don't know what to do.i also have a 2 year old who is very independent.she also throughs temper tantrums and i just want to leave curl up in a ball and be away from everything.I have also been with my boyfriend for 5 years and i all of a sudden have no sex drive .it also hurts when i did try to then i bled a lot after ..i went from doing it 2 to 5 times a day to none in the past 3 weeks and like the post i read earlier he also gets frustrated and thinks i don't love him or am cheating on him because i just don't even want to here the word "sex".i thought maybe i was just sick of the way my life was an thought it was my boyfriend. from being with him so long, but i never felt like this before. im the fatest i have ever been and i feel like im falling apart.i hate the fact im yelling at my kids and for no good reason.i think after reading all these post and seeing so many people have the same exact problems as me i will get it removed.

I just contacted CNN to give them a tip/heads up to our message board so that they can consider doing a news story about this situation to raise awareness. Please send them your concerns and personal story to:
http://www.cnn.com/feedback/forms/form11b.html?2
If enough of us email them, they will start to listen.

Lourdes
Mother of Julian
(severely affected by Singulair use)
Suffered severe head drops seizures, obsessive compulsive and agressive behavior and night terror and hallucinations.

Repeating Our Story:

Repeating my post from way down below - IN CASE someone's child with these head drops is looking for someone with similar symptoms. WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray alot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure. We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed ALOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student. Doctors cannot explain how he was cured - there is just no explanation. Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life. He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine. My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair". I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too. If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me starwedd2@aol.com - I will be glad to share any other information. LET'S RAISE AWARENESS TOGETHER and stop more damage from occuring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become. Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address: Dateline@NBCUNI.com I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at: To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses: 20/20 147 Columbus Avenue New York, NY 10023 Primetime 147 Columbus Avenue New York, NY 10023 Together we will do something to help avoid more tragedies I went ahead and reported our experience online to the FDA: https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm

Repeating my post from way down below - IN CASE someone's child with these head drops is looking for someone with similar symptoms.

WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray a lot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure.
We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed A LOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student.
Doctors cannot explain how he was cured - there is just no explanation.
Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life.

He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine.

My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair".

I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too.

If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me ****** - I will be glad to share any other information.

LET'S RAISE AWARENESS TOGETHER and stop more damage from occurring. Remember, my son (post is far down) almost became a vegetable and was given a grim prognosis by 2 pediatric neurologists including the top one at Duke. No cure we were told. But we always knew it was Singulair. He was cured and there is no medical explanation. Had he continued to take it he would be the vegetable they had predicted he'd become.

Okay, I just emailed DATELINE NBC - please be sure to submit your children's adverse reactions story to them - here is the email address:
*******

I also tried emailing ABC for PrimeTime and 20/20 but they use regular snail mail for story suggestions - please do your part and mail out your story to them at:

To submit a story idea to one of the ABC News shows listed below, write a single page letter including your name, phone number, and address. Include photocopies of backup information. On the outside of the envelope, write "Story Idea." If a producer is interested in your story, he/she will contact you. Here are the show addresses:

20/20
147 Columbus Avenue
New York, NY 10023

Primetime
147 Columbus Avenue
New York, NY 10023

Together we will do something to help avoid more tragedies

I went ahead and reported our experience online to the FDA:
https://www.accessdata.fda.gov/scripts/medwatch/medwatch_online.cfm

FILE YOUR REPORT - TOO.

WELL - Thank God! It is so about time! My son, age 6 now was given a very grim outcome/future by two top pediatric neurologists 2 years ago when he started having not the typical seizures we associate with epilepsy (no epilepsy in our family) - his head would drop forward - like his muscle tone in his neck would collapse for a few seconds and he would literally bang his head on tables (this was when he was 3.5 yrs old) - my husband and I always knew in our heart of hearts it WAS THE SINGULAIR he had been taking for 1 year after he had a bad coughing spell the year before - not formally diagnosed with asthma - but the pediatricians insisted it would only benefit him to continue to take it. When we noticed these head drops and his eyes would at times roll back in a matter of just a second or two and he was the most loving, caring and affectionate child and turned into an aggressive and obsessive compulsive child, who also began to have HALLUCINATIONS at night - he would sit up in bed and be seeing things and scream and cry, WE JUST KNEW IT WAS THE SINGULAIR and we stopped it COLD TURKEY on Oct. 31st 2005 - against the advice of the pediatrician. We took him to a neurologist and we told him about our suspicions about the Singulair he, just like the pediatrician brushed it off, but he had an MRI and an EEG - the MRI came back normal, but the EEG was devastating!!! We were told to get ready and pray a lot - that our little boy would become a vegetable and would require assisted living for the rest of his life. That he had a rare form of seizure disorder for which there was no cure.
We took him then to Duke University Hospital and had him checked by the top pediatric neurologist for a second opinion - he gave him another EEG and the diagnosis from this dr. was even worst - he would probably die an early age due to the severity of his condition and that he would lose all his motor skills and regress to a vegetable. Those were the worst days of our lives. We went back home and put him on anti-seizure medication and prayed A LOT - even strangers added him to their prayer list. Well, the seizures stopped in late January 2006 and just last March of 2007 he had another EEG and it was NORMAL - he was weaned off the anti-seizure medication and is thriving and his a great kindergarten student.
Doctors cannot explain how he was cured - there is just no explanation.
Aside from the faith we have in God's hand in this cure, we just KNOW THAT STOPPING THE SINGULAIR saved him from further damage and probably loss of life.

He is the most affectionate and caring little boy you can imagine and I do want to point out that his speech was affected in our hearts, we know it was the Singulair but in the last year his speech has improved dramatically and he is doing just fine.

My husband and I have been struggling to get awareness about the dangers of Singulair and children but the doctors do not believe us. At our last appointment with the pediatric neurologist, I told him, "one day, you will see that we were right about our suspicion regarding Singulair".

I do want to add that it was just too much coincidence that when he went for his first EEG in Dec. of 2005, there was another little boy in the room next door that his parents suspected Singulair as the culprit too.

If anyone wants to email me and if there is anything I can do to help with my own personal testimony - please email me ****** - I will be glad to share any other information.

Snowflake, and others who want to know what happens after you stop, yes, I am MUCH better. (My original post was done on Oct. 31st.) My therapist has even noticed the dramatic change in me. Good to know the majority of my depression and severe anxiety was due to the NuvaRing. If I have an issue, it is nowhere near as bad as it was before. I have gotten my sex drive back, though haven't lost the weight yet. ;) Gonna have to work on that. I feel like my old self again and my relationship with my finance is getting better. Though a couple weeks ago, I had my first period off of it and after gotten a yeast infection. I have never had one before, and I am 25. I stopped it a little over a month ago, but it could take about 2 to 3 months for the hormones to fully be out of your system. So my advice to you would be next period, try something else. I am waiting a while until this is all out, then going to consider another option. Again, all birth controls affect people differently, so I am in no way bashing the NuvaRing. Wish it worked for me because it was convenient in other ways. Hope that I was able to help, and hope you feel better soon.